This form of lupus mostly affects women from 18 to 50 years. The cases of men suffering from discoid lupus erythematosus are very rare. The racial factor seems to be decisive: the majority of patients are black American women and the symptoms are much more severe in their case. We cannot be certain about the real causes of this disease but there are several risk factors like the hormonal factors (such as estrogen excess), genetic factors and environmental factors (antibiotic long term treatment). The genetic factors have a particularly increased influence on the apparition of discoid lupus erythematosus compared to the other lupus forms.

Discoid lupus erythematosus appears under the form of large size lesions with circular aspect. Like all types of lupus, it also has an auto immune character: the immune system doesn’t protect the body from the viruses or bacteria but attacks its healthy tissues, which causes skin lesions. Long term solar exposure significantly worsens discoid lupus. The neck, face, arms and scalp are the most affected areas in which the lesions appear. But it is not compulsory for them to be the only parts: lesions may also appear on the back, legs or chest, which suggests the evolution into systemic lupus erythematosus.

Systemic lupus erythematosus – unlike discoid lupus erythematosus that only affects the skin – can generate a series of severe disorders: tuberculosis, cardiovascular diseases, gastrointestinal problems, pneumonia, musculoskeletal or nervous system problems.

The diagnosis of discoid lupus erythematosus is only given after previous physical exams, analysis performed in laboratory on skin samples and complicated blood tests. The adequate medication will be given once the diagnosis is confirmed by the test results. Contemporary medicine doesn’t have yet a cure for this condition but it may be kept under control and its signs – improved. But in order to have the best possible treatment result and to avoid the worsening of the lesion and a permanent scar formation, a patient with this condition must absolutely stay away from solar light.

The skin lesions that appear in the first phases of discoid lupus erythematosus are circular and reddish, with prominent borders. The next stages cause the scales and crusts on the skin’s surface. In case it affected the scalp, the hair is lost; this may be temporary or permanent. The most at risk category is the black American population because they have more chances to develop skin cancer than others. The proper medication, doubled by the protection against sunlight will keep the disease controlled and an obvious improvement of the symptoms will be noticed.


75 thoughts on “A Look At Discoid Lupus Erythematosus

  1. LoVe_Is_LiKe_A_rOsE

    should I worry…could it be Lupus?
    i have been having aching feet and aching legs for the past month now. I also have a red dry rash on my cheeks, forehead and chin. Lupus runs in my family. Am I being paranoid in thinking that this is what it could be? are these symptoms of lupus?.

  2. betsy_51783

    Can anyone help me with a rash on my arms, hands, legs, and chest?
    I have a raised rad rash that comes and goes on my body some times it is worse than others but it never goes away. I have had it for over a month now. I have tried topical ointments over the counter and prescription. I have taken antihistamines again both over the counter and prescription. (prednisone, atarax, benadryl…) The thing is no one seems to know what is causing it including 3 different doctors. It itches and there is no hiding it when it decides to flare up. I do have Discoid Lupus but this is not a symptom of it (so the doctors say) I am at a loss. A few people have told me that it might be caused by stress. I have tried to do research and have found very little on rashes caused by stress. I have been through a little lately and I could attribute it to that I just need to do something. Please any advice. Nothing I am taking or using topically is working and doctors are not helping. Any advice or help would be welcomed!!!!

    1. Love the babies

      If the “raised red rash” is obviously square or triangular in the areas that it pops up in, it is probably a contact allergy to something. A lot of folks have nickel allergies, so you may want take notice of where it happens and what you are wearing in those areas. You may want to consider patch testing as well. Contact a dermatologist rather than a family doctor.

  3. ScreamingSolicity

    Please read, what’s wrong with me :(?
    Hi! I’m Miranda. My health has been very poor this year. I’m 14 years old.
    Let me just give you the jist of my medical history.
    I was diagnosed with severe asthma at 2 (progressively got much worse).
    A couple years ago i saw an allergist and found out I’m allergic to pretty much everything, not even kidding(i have to rotate my foods).
    Last year I was diagnosed with clinical depression along with a slight anxiety disorder, insomnia & psychosis like symptoms(never fully diagnosed on that one).
    & this year I’ve been to the eye doctor 7 times with some sort of eye infection (as of a week ago they’re starting to think its dry eye because it always happens after i cry) + I’m very sensitive to light.
    I’ve been hospitalized well over 20 times since i was born (90% of the time its for asthma).
    As for illness within my family, my mother had a cancerous tumor in her leg, grandma had lupus(fatal), My uncle has diabetes, & my grandpa had prostate cancer & heart issues.
    I’ve been in & out of doctors & specialists & I’m really just at my wits end – no one has been able to fix me 🙁
    I have been looking online a lot lately & trying to put the pieces together myself, although I’m not a doctor,i think i may have systemic lupus. Everything just kind of makes sense!
    Ever since i was little I’ve had this rash sort of thing on my face. Everyone just thought my skin was very thin and sensitive. It’s on my cheeks and my nose, like the butterfly rash (associated with lupus).
    I’ve had mouth & genital ulcers (not sexually active so..).
    My severe lung inflammation (asthma), depression, ulcers & rash, dry eye & everything else I’ve mentioned seem to be somehow connected to lupus. What do you think? Should i tell my parents so i can get tested?
    I know this all probably sounds very hypochondriac-ish, but I’m just really tired of being sick & no one believing there’s a serious problem. Please help me.
    Thank you, for your time(:

  4. Anonymous

    DOCTORS PLEASE HELP! I have EBV and my dr. said I will most likely develope Lupus> What should I be expecting?
    I am a 14 year old girl and I have Epstein-Barr Virus and I was told that I will probably develope lupus. Many symptoms I have had are — a red rash that is on my cheeks and nose and it is always on my face just its not always bright red but I can see the outline if i look really close. Here are some other symptoms I have had since July if I remeber correctly. For starters I have the hardest time remebering things, depression, really hard time consintrating, 2 periods of where it hurts when I take deep breaths or move my head, I can’t sit criss-cross anymore because it hurts my knee’s, I have several swollen lymphnodes that come and go except the one behind my ear that never changes, I have musle weekness i think because I can’t even hold a book out to someone for more than 2 seconds before my hands and arms start shaking. Also, my hands and feet are always cold but my legs are always really warm and lets just say you can feel the heat off my legs through my pants. Also sometimes I have just plain out muscle aches that move from my leg to my arm and so on. I think my parents think I am faking it because I never have a fever. I don’t want to tell my doctor either cause he might think im faking. Really need some advise or something I feel so helpless and down. Does this sound like I have just convinced my self that its lupus or is it just in my head. Please answer with something useful and you will get some free easy points. I would wait until im 18 to go and talk to my doctor but it is so frustrating not being able to consintrate in school and its so hard to read because I forget things so easily. Also, track is going to be starting soon and I don’t know how I am going to handle this with sports and school work plus being so tired. Please realize that all my symptoms don’t come at once and they aren’t an everyday thing its on and off. Thanks for the help 🙂

    1. Suzan K

      As lupus does not really have any consistent or real treatment in conventional medicine, I hope you will not get it. If you think the cause was that Epstein-Barr Virus, why not to fight against it?
      –Have always fresh air in your house
      –Be on a kidney diet, avoiding too much salt and proteins
      –eat a lot of raw garlic with food
      –Often use vit C to strengthen your natural immunity
      –Eat a lot of fruit, avoid sugars, artificial sugars like aspartame splenda are worse, and avoid high fructose corn syrup.
      –Avoid all kinds of flu shots or other shots which can affect your immune system, as lupus is an immuno allergic disease.

  5. whipper

    bright red sunburn look on all body and rash, now my legs are turning blackish!?
    they say im allergic to my lupus med. ive been off that a week and im still getting worse! what is going on here?????

  6. 4 due in Sept 2011

    doctor testing for lupus? because of rash?
    rash started small on arm thought was an allergic reaction to something,

    then it spread on more of arm and leg thought was staph infection
    treated no luck

    its not staph its also not scabes or bed bugs,

    they are saying it looks like blood pockets where blood is comming to the skin surface and then some spots where those are inflamed

    it has spread and is all over my body but the main spots is my arms and fingers and palms of hands

    also had severe back pain since around the time this rash started and very tired and no appitite hardly

    what would you think i can take pictures if you want to see if you think you may know what it is

  7. HealthNut

    Tell me what these are symptoms of?
    Ok, so I have been searching and searching to find out what is wrong with me, and I have posted on here several times. I have considered everything from Lupus, Hashimoto’s and Fibromyalgia, but none of them are the answer. So I just need help to see if anyone knows what I could possibly have
    Symptoms:
    Body aches
    Fatigue
    Headaches
    Numbness and tingling in arms and legs
    fluid retention
    rash on chest and face
    weight gain
    acid reflux
    get sick easily
    ear infections
    bladder infections
    hair loss
    anxiety
    high blood pressure
    low blood sugar
    low platelet count
    Listen, if I wanted smart ass answers like “hypochondria” I would post this on facebook or something and let people who don’t know anything answer it but I put it on here to get advice from people who actually know what I’m going through, so until you have some actual advice to offer, please don’t comment on my question.
    Thanks for all of your answers. I see my Rheumatologist tomorrow and will be talking to him about everything. I’ve already had my thyroid checked out and everything seemed ok. What exactly do you mean by false negative lymes? I have tried looking it up but the only thing that comes up in lymes disease, and I have been sick for almost a year now and I would think that if it were lymes disease that it would have gotten progressively worse by now.

    1. 2blest2Bstrest

      Sure sounds like thyroid!

      I wonder why you say it is not Hashi’s (or at least hypOthyroidism)….You would not know that for sure with just TSH test (which is all most doctors order for you)…you would also need an ANTIBODIES test. Sometimes you could have Hashi’s and TSH be in normal (.3 – 3) range. If you need to persuade your doctor to do the antibodies test, there is much info online by Mary Shomon that you could print something to take to the doctor.

      God bless

  8. fw

    I think I have lupus?
    Wondering if I might have lupus. Few reasons this came to mind.

    Scratched my head, and found blood under my nail. Ended up I had some bumpy scabs, and of course I googled it. One of the things that came up was lupus, which has crossed my mind in the past at other times. I am 23, and when I was in college I developed one winter an odd rash that has small spots on my legs. I attributed this to being out in the cold, as I almost always have a rash on the least protected areas (such as legs only covered by jeans). The nurse said she didn’t know what the spots were, and said it looked like my immune system malfunctioned. I was prescribed a drug to basically restart my immune system, and my rash/random spots went away, and I haven’t seen them since. A year or so later I was woken up nightly with severe charlie horses, and that lasted for about a month. Then they went away quickly.

    Recently, I find myself walking and every so often (once a week to sometimes very often- few times a week) I find my knees or ankles have extreme unprovoked pain. I have to sit down or sometimes walk through it, and eventually it goes away into nothing. And I have started to have pain every time I am washing dishes. Maybe I am holding the dish too firmly, but it doesn’t seem right.

    Please give me some feedback as to what this might (or might not be).

  9. Rita G

    Positive ana swollen hands aches in legs hips feet and knees. ?
    Could this be lupus? One doctor asked me if I knew what lupus was and kind of brought it up. I have been given a refferal to a rhemotologist. I am always tired. Sick. And I always hurt. Clean ct. But I have been getting a red rash like on my cheaks and nose. It feels like a sun burn it comes out of no where. I am tired of waiting it has been monthes. I also have cluster headaches and I have had asthma my whole life. I’m 16. Any thought would be helpful.
    it’s not RA I have already been tested. And my moms uncle died with ms.

  10. cazeek1

    Little cousin gets rashes (usually on stomach/legs). It was usually after swimming in the ocean, pool, or..?
    She is 15 years old. She was getting them after swimming in the ocean or pool, and now she gets them after she exercises on the treadmill. The doctor originally said it was some sort of allergy to water at a certain temperature, but that does not make sense based on what I’ve observed. I am thinking it might be related to the clothes she wears, but she has worn cotton and spandex (bathing suits), and she has still gotten it.

    She recently got a blood test back which tested ANA positive and also had elevated ALT/AST liver enzyme levels (in the 80s). I am thinking lupus, but she has no other symptoms. She is getting a series of other blood tests today, but does anyone have any other ideas?

    Thanks for the help

    1. ♥ Due 1-20-2010 with 2nd boy ♥

      I would say look up information about Irritant Contact Dermatitis.

      There are many different causes and types. My niece has the problem and it’s eczema based. I also have a few problems like that. Most of all because I have fair skin, and there are so many germs in water.

      Here is a little information on helping the situation:

      The mainstay of treatment for irritant contact dermatitis is avoiding as many of the irritants as possible. Other helpful measures include:

      * Reduce water exposure – because frequent water exposure actually dries out the skin and disrupts the barrier function of the epidermis, keep water contact to a minimum.
      * Moisturize – Frequent moisturization improves the barrier function of the skin. Avoid the use of moisturizers with perfumes since these may also act as an irritant.
      * Protection – Because the hands are often affected by irritant contact dermatitis, the use of gloves may help reduce exposure to the irritant.
      * Topical steroids – Medium- to high-strength topical steroids may be needed to reduce inflammation and itching.

      I posted the link below, it has the different types. Perhaps she can speak with her doctor about it. You may could try a very strong sun tanning lotion that is water proof. That’s what I use. Banana Boat is my favorite brand. She wont get a tan, but at least it will help her from breaking out hopefully. Make sure she keeps lotion with her (non fragranced) Coco butter is what I would recommend. Keep it on her every time she’s out of the water. Most of all water with the most germs.

      Hope this helps you!

  11. faith64

    I’ve been to specialist and they say I might have Lupus but until I have more symptoms?
    there is nothing they can do to help me. Does anyone have any suggestions to relieve any of the symptoms? I have aching joints in my fingers, wrists,ankles, and toes. I get very fatigued and Never feel rested. I have muscle fatigue in my arms and legs. Low grade fevers that last days or weeks. When I get an infection of any kind it takes weeks of taking antibiotics to get rid of it. I’ve had pluerisy twice this past year. I get the butterfly redness if I am out in the sun for more than i few minutes and I get a red rash on my eyelids. HELP
    I’ve had all the blood work.. the one for Lupus comes back above normal level which is why they think I have beginning stages of Lupus. My prob is that they say there is nothing they can do for me at this point except keep an eye on my symptoms. I take Imetrex for the migraines and take Ibuprofen for the pain(doesn”t help much) just thought someone might have more suggestions as to how to handle this condition

    1. Linda R

      Lupus can be very difficult to diagnose and there is no single lab test for it. I hope you are seeing a rheumatologist. That will be your best bet for diagnosis, whether it is lupus or another autoimmune disease.

      In the mean time:
      1. Stay out of the sun. If you must go out use a high SPF, wear tightly woven clothing and a hat.

      2. Warm baths and showers help with the pain. So do non-steroidal anti-inflammatories like ibuprofen or naproxen. You can get those at any drug store without a prescription.

      3. Rest when you need to.

      4. To avoid infection: Use handsanitizer all the time. Avoid people who are sick. Be careful about touching your face after you touch anything that another person might have touched. Get a flu shot. Eat yogurt with live cultures to help ward off some kinds of infections. Drink cranberry juice.

      5. Do not take echinacea, goldenseal, zinc to try and get rid of an infection. Do not eat alfalfa sprouts.

      6. Do your best to get some mild exercise every day. Walking works. It lubricates the joints, improves circulation and gets your body to create endorphins, which are natural pain killers.

      7. Watch funny or happy movies. Listen to happy music. Your emotional state DOES have an impact on your immune system.

      8. Eat a healthy diet that is high in fiber and low in fat. Avoid processed foods and empty calories.

      9. If you smoke, stop. Smoke plays havoc with lupus. Avoid overconsumption of alcohol.

      10. Good luck to you.

  12. Laura

    my mom has lupus. now im developing symptoms like hers including rash on my back easy bruising and others?
    my mom has lupus. now im developing symptoms like hers such as rash on my back swelling of my legs and feet and even easy bruising. should i rush to the doctor cause my doctor cant see me for another month in a half.

    1. Lisa H

      Yes I would get to your dr and ask him for a Lupus test. (ANA test) THen you’ll at least have peace of mind. I just want to mention to you to keep an eye on your symtpoms. I have Lyme Disease and it usually starts with a rash and I have swelling in my face. The only reason I’m bringing up lyme is cuz they kept thinking it was Lupus with me at first. But the ANA blood test should let you know. 🙂

  13. Alanarama

    can anyone with lupus help please?
    i have recently been diagnose with raynauds syndrome which i understand can be a symtom of lupus.
    i have been to the doctors and bloods have been taken and sent off to find the cause of my raynauds i am just waiting for the results, but i am extremely worried. i have other symptoms of lupus too i just didnt realise they were symptoms of it.
    here goes
    ranaud’s symdrome
    white patches of skin near my eyes, genitalia, hips, and underarms
    butterfly rash
    fatigue
    aching knees (comes and goes)
    random nose bleeds (althouh i havent had one in a while)
    really red blistered toes
    chest pain when i breathe in sometimes(can be in my shoulder too)
    feelings of nausea or being sick for aparently no reason
    fever-i always feel freezing and have to wrap up but my boyfriend tells me iam really hot but i insist i am freezing cold
    abdominal pain and wierd feelings in my stomach
    red spots on my skin that come and go
    tingling and numbness in my arms mainly but sometimes in my legs
    i have been ill several times and they found exess protein in my unrine
    i get like blisters on my fingers and toes
    mostiof the time i want to do something but just feel “whats the point” or “im too tired”

    i think really what im wanting is your opinions if it could be lupus? or could it be something else? i guess i am just looking for reassurance. any help will be greatly appreciated, and any advice too, thanks xx

  14. Crisen H

    Possible Lupus?
    Is lupus a slow progression or does it rapidly develop? I think I may have lupus. After researching, I’ve come to realize that I have several of the symptoms, some I’ve had for years and others developed recently.I’m 25 Symptoms are: Knee pains; started in my early teens,had x-rays but they showed nothing.In the past few years they’ve started giving out and tingling like they’re going to sleep. Next: migraines; started in my later teens, Dr. said they were stress related. I’m tired alot, I get the recommended 7-8 hrs of sleep most nights but I’m still tired. Then there is depression/anxiety:Started having mild anxiety attacks and mild depression in my late teens, again Dr. said it was stress. I also have been getting knots on my legs when I stand for more than 10-20 mins. The knots don’t hurt. This spring I was out in the sun and developed a rash on my exposed skin.First it felt like razor burn, then it became itchy.Never happened before. None on my face however.Normal signs of lupus?
    About the skin rash, it was definitely not a sunburn, I’ve had plenty of those. It was small red bumps. My mother has the same reaction to the sun/tanning bed but her’s is everytime she’s in the sun. Her doctor told her it was just an unexplained reaction to sun rays. Any other suggestions on what the rash could be?

    1. hello

      Well, those are all the symptoms that I had for APS a sister of Lupus that was dismissed by doctors for years! Migraines were TIAs. Geez, I knew my vision cutting out in one eye wasn’t right.

      I suggest you see a rheumatologist and get tested for both Lupus and APS.

      I am now on Coumadin, Aspirin and Plaquenil and guess what most of my problems including the so called “depression” is gone. Listen to what your body is telling you.

      ETA following your comments: Polymorpic Light Eruptions? Sounds like it is time to see a dermatologist. But tanning beds are high in UV that set off Lupus rashes. Start taking pictures of them for your doctor. And stay out of the tanning bed.

  15. Snooks M

    I think I could have lupus but I am not sure how to talk to my dcotor about it..?
    When I was younger I tested positive for Lupus but my pediatrician said because I didn’t have a butterfly rash, he didn’t think I had it. So he gave me athritis meds and said I had rheumatoid athritis and sent me on my way. Years later I still suffer from the joint pain in my hands, hips, back and legs. I am exausted all the time, I have been diagnosed with anemia. I have been having emense pain in my lower back but it doesnt feel like my spine. I can’t stretch it out, I feel as if I am being stabbed. I am also on meds to control night terrors, paranoia and hypopalmic Hallucinations. I have super bad dry skin that causes these red bumps all over my arms form the wrist up even to my back and my face feels like sand paper. I feel as if they are treating the symptoms but not the problem. They give me ambien to force me to sleep. I have sever headaches and even dizzy spells. When I talk to my doc, he never runs tests just tells me to buy lotion which I own tons and pills for motion sickne
    ss. I just want to feel well again. I am tired of being in Pain. I need referals to go somewhere and he doesnt’t even refer me to a specialsist to get answers

    1. mgnysgtcappo

      You need to demand that you see a specialist. A doctor has an obligation to help you feel better. If he can’t then he needs to send you to someone who does.

      Here’s what you should do. Call and make and appointment with him. Prior to going to your appointment make a list of every symptom that you are having along with all the medications that you are taking. Have a family member come with you as an advocate. When the doctor comes into the room calmly and methodically go over the list of symptoms and medications that you are taking. Tell him that you don’t feel better and all of the medications aren’t helping. Tell him that you desire a second opinion and need a referral to a rheumatologist.

      He’ll either do one of two things. He’ll either refer you to a rheumatologist or he’ll tell you that you don’t need to see anyone else. If he gives you the referral then you’re good.

      If not then you let him know that you’ll be making an appointment on your own to see a rheumatologist for a second opinion. If they find something that he failed to test for then you will report him to the AMA for possible malpractice.

      Once you mention this he’ll give you the referral. No doctor wants to be wrong but no doctor wants to be reported to the AMA for failing to listen to a patients complaints only to have those complaints validated. I know it sounds harsh but you really need to get some answers. This will work 100% of the time.

      Having a family member or a friend in the room with you during this will also put more pressure on him/her as it’s not just your word against his/hers anymore you have a third party involved.

      The stabbing pain you feel in your back could be kidney issues. Have you had a urine test recently? I would make sure you follow up as soon as you can because if you do have Lupus and it has attacked your kidneys, time is of the essence.

      I wish you all the best!

  16. LoveMe!

    LUPUS……………?
    I’m a 17year old african american female, I’m a hypochondriac. No one in my family has lupus, ever since I heard snoop doggs daughter had lupus I’ve been stressing out thinking I have it to, I have never had fatigue, joint pain, rash, or any of the other symptoms, but as soon as I looked up the symptoms my legs had a dull ache in them, its rarely been my joints and it dosent hurt really bad, I never got this dull ache until I started stressing and now I get this dull aches on my arms and stuff, I’ve been stressing my man out with this because I’m scared 2 get it. What kind of pain do ppl with lupus have? Is it a dull and mild pain or bad? Please answer all my questions
    most of the time its a dull ache on my left thigh

    1. Jennifer

      Hi…..Well I consider myself a pro when it comes to SLE or LUPUS… I have lupus and have had lupus since 1987.So,I am very aware of it’s symptoms…This can be a very tricky disease,and almost everyone who has this disease has his/her own symptoms,they vary with each person who has lupus.I have every symptom you can think of,except any renal involvment,I have had some mild heart involvment,but that’s about all for renal involvement.I had NO idea that Snoop’s daughter has SLE!! It’s the worst form of lupus a person can have and dear? If your ONLY experiencing a mild left thigh pain? Then trust me? You do NOT have lupus!!!! I wish that was my ONLY symptom….I would be a very lucky woman if it were…I just came from my lupus doctor(that’s what I call her),and my ‘double stranded dna’ was very worrying to her,I am concerned for myself right now.I am taking Plaquenil,Imuran,and just had an injection in my thumb joint due to jaccoud’s arthropthy,which is rare with SLE patients,but it happens with long disease….anyways…trust me? You are FINE!!! And you are lupus FREE!!! Just to make sure ask your doctor to run and blood test for lupus he/she will know what kind to preform….this will make you feel at ease,ok? I don’t think anyone’s word’s will make you feel any better except you doctor’s…i wish you all the best of good health….:)

  17. Sansy

    When does Plaquenil (for Lupus) kick in?
    I was diagnosed with Lupus a little over a month ago. I started taking Plaquenil a month ago (in April) and I don’t feel any different. I still have joint pain in my legs and knees. I still have the butterfly rash on my face and I still have “Lupus” hair. Anybody have experiences with this medication? When does my hair stop falling out?????

    1. Army ♥ Wife

      I started noticing a difference about 3 months after starting it. I have had no side effects and to me its worked great. I only take one 200 tablet a day. My hair never fell out because of my lupus though, Im sorry you are going through this. Good luck!

  18. blahblahblah

    leukemia / lupus question?
    i am a 15 year old female and i have had odd unrelated symptoms recently. a family friend of ours was just looking around at things on the internet and said i am showing symptoms of lupus and leukemia. but i dont have a fever. these are the symptoms i have been having

    i get this rash on and off on my legs its like red pinpoint looking dots it doesnt really itch to much or anything its just kinda there , i thought i got it like a sun rash but every now and then i get it indoors too , andi have some bumps mostly on my left arm which looked just like bug bites and they itch pretty bad when i first get them and i have had some scabs on them for about a week now i had about 15 bumps total and find some new ones every now and then and some of the old ones are gone

    i get short of breath often , like even when i get up quick and go up stairs my heart beats super hard and weird and it also happens when im active

    i have been loosing my hair , like not completely but just noticeably thinner feeling and i get clumps of hair when i shower or brush my hair i find hair on my bathroom floor.

    i have noticed i have been needing more sleep recently and i am more tired then normal. i used to not need much sleep at all and just be fine.

    and i think i slightly bruise easily. like as an example i ran into our boat about 2 weeks ago , and i still have some of the bruise left. i didnt even hit it that hard. but its not like i wake up with random bruises on me. and my scabs take awhile to heal. in softball i had slid and it took about a month total to heal, my scabs when heeling the scabs shrink instead of just falling off (i always though shrinking scabs were normal it was my friend who noticed it was not)

    i get lightheaded very often. like when i get up things go black but then fade back to normal

    i dont really like exercising because i tire easily and just cant really do most of it

    and i havent been to hungry lately either

    i am also very fair skined normally but have been a little paler then i normally am too.

    i have been decreased in hunger mostly since i got a bad virus in the begining of the summer and right when school was ending. i just got over it fully in the begining or middle of july. and i am already getting a cold. i have had slight weight loss, wwhichis odd for me because im super thin and skinny so my weight nnormallydoesnt change much if it does only by 2 or 3 pounds tops

    i wear contacts and have been having extreamly red eyes. i think it may be irriatation to my contacts but even if i dont wear them for a few days it slowly gets better but its still there. it normaly gets a little better overnight. but within the past almost week i havent woren my contacts at all or for only a few hours a day and its hasnt gotten better. its off and on. and just last night i got these white bumps liek 2 or 3 of them on the outter ring of the colored part of my eye. it looked just like it was a little clump of eye goo (kinda like the goo you get when you have pink eye just white clearish goo)
    just last week i had some pain under my left rib cage and it lasted for a long time and we went in and they said it was constipation? i still slightly slightly barly have that pain anymore even though we fixed the constipation problem a long time ago. and none of my symptoms are to sever either
    i am going to the doctor. and i am not researching the internet. a family friend had mentioned it.

  19. House, almost MD

    I don’t really see any appreciable rash on your face in any of those photos. If you think you might be getting lupus, go get the blood tests for it to make sure you are not in the early stages. Based on what you have said so far, I am confident that you do not meet the diagnostic criteria for lupus. However, it is definitely something you should keep an eye on and if you have other bothersome symptoms you should go to the doctor and get tested for lupus since you have a family history.

  20. tinygirl3366

    Could you tell me how to deal with Dermamyositis?
    I have bad muscle weakness. Cant walk. I stumble around alot. Bad memory loss.Depression, anxiety.I have very bad pain in my joints and muscles and a brownish red rash on my legs hands and brownish patches on my face. When I get in the sun I get so sick I want to throw up or pass out. And I see black or red spots in front of my eyes all the time. And I stay extremely tired. Does this sound like Derma or Lupus?

  21. Clarkey

    Does any one reading this suffer from LUPUS?
    I’m a 24 year old female and I was diagnosed with lupus about 4 monthsd ago. I had the rash all over my body (luckily not the typical butterfly rash on my face), but my chest, arms and legs were badly affected. I’m also photo – sensitive and get tired easily.
    Can anyone suggest ways to make the disease easier to cope with and possibly dietary advice.

  22. Lis

    I am scared about going to the doctors tomorrow and finding out if I have lupus disease or not? Is it bad?
    I have been so scared for these past few days that I cannot sleep. I woke up one morning to find I had an itchy rash on my chin and at work, I work near hot steamers, that irritated it and I had to be sent home. The next day, my cheeks were swollen red, I couldn’t eat properly and had to go to the doctors where he said I may have Lupus disease or some other autoimmune disease. He took a swab of my rash (and named it malar rash, or butterfly rash on the package) and I had to go in for a blood test. I get my results tomorrow.

    After reading about Lupus online, I discovered I have many of the symptoms; I am iron deficient with a low blood count, which even prevented me from donating blood. I also get blue tinged fingers and stiff swollen fingers depending on the cold and if I am stressed. I also gets aches and pains on my shoulders, arms and legs and am weak and tired half the time. Sometimes in the sun I get dizzy and faint headed. The doctor also prescribed me an antibiotics and prednisolone medication.

    I am so scared to go into the doctors tomorrow to get my results. Is Lupus life-threatening? Do you think it is possible I have it? The rash and swelling came on so suddenly, is this common in Lupus? Thanks so much.

  23. Natasha

    Do I have lupus? Signs?
    I was just wondering If I have lupus…
    So here are my symptoms:
    Joint and muscle pain;I once woke up in the middle of the night in agony with the muscle in my right leg.I get joint pain a lot,in my knees,hands,wrist and hips.Sometimes my fingers swell a little and go a little red.Not massive swelling but enough to notice.
    Headaches;I have really bad headaches sometimes,It gets worse if i move my head.It feels so painful that I find myself sitting there and dare not to move and pain relief doesn’t take it away.
    Kidney pain;I was treated with bladder infection last year.I went to the doctor to have another urine test to see if it had came back because both sides of my back(kidneys) were painful.
    Rough patch of skin on face;I have a little blotch of rough skin on my face just below my eye.It isn’t red like most cases I’ve seen.It is hardly noticeable until you get up close.It is a shade darker than my skin color.
    I also got a rash on my leg about a week ago,I thought it was the heat off my laptop(because it gets hot) but then I realized it wasn’t when I woke up with the same rash..It is blotchy and red in color.
    Chest pain;sometimes I get a really bad pain in my chest,where every time I breathe in the sharp pains get worse and worse then I find myself struggling to breathe but then it disappears within 5-10 minutes.

    So this leads me to the question…Do I have lupus?
    I was asking for advice not an opinion!
    If you don’t feel like you can help me don’t answer..Simple!
    @Ron Type: Some doctors answers questions on here,dumbass.
    @Nadee: Thank you! Atleast you gave a decent answer unlike the other fools! I just needed advice before going to the doctors(I’m pretty nervous like that) You’re going to be top answer 🙂

    1. Nadee

      You do have symptoms that would definitely fall into the category of symptoms of an auto-immune disease like lupus. However, it could also be rheumatoid arthritis or a number of other related conditions. You do need to see your doctor and ask to have an ANA and RA (bloodwork) done. They will not give you a definite yes or no answer however, if they are positive, your doctor will then know to do further testing or refer you to a rheumatologist. Be aware that lupus is a difficult diagnosis and it can take years before they finally are able to rule out everything else and confirm lupus. Even then, they can treat your symptoms and put you on prednisone to control the flare ups but there is no cure at this time. Your first step is a visit to your primary care physician for testing.

  24. donna c

    Does it sound like lupus?
    I have fibroyalgia, osteo, ankylosing spondylitis and have been on meds for years. I was only diagnoised with the last two a year and a half ago. The last time I saw my doctor I had a positive ANA but he told me not to worry yet that it was nothing to change my lifestyle over but not to be surprised if later on i was diagnoised with lupus. Lately i am having sensitivity to any light, red face and nose but no rash swollen finger stiffness in legs and fingers joints in fingers hurt and are sore. Does it sound like I have lupus?

    1. green&blue

      The American College of Rheumatology (ACR) has established eleven criteria in 1982,[10] which were revised in 1997[11] as a classificatory instrument to operationalise the definition of SLE in clinical trials. They were not intended to be used to diagnose individual patients and do not do well in that capacity. For inclusion in clinical trials, patients must meet the following three criteria to be classified as having SLE: (i) patient must present with four of the below eleven symptoms (ii) either simultaneously or serially (iii) during a given period of observation.

      Malar rash (rash on cheeks)
      Discoid lupus (red, scaly patches on skin which cause scarring)
      Photosensitivity (exposure to ultraviolet light causes rash)
      Oral ulcers: include oral or nasopharyngeal ulcers
      Arthritis: nonerosive arthritis of two or more peripheral joints, with tenderness, swelling or effusion
      Renal disorder: More than 0.5g per day protein in urine, or cellular casts seen in urine under a microscope.
      Neurologic disorder: Seizures or psychosis
      Serositis: Pleuritis (inflammation of the membrane around the lungs) or pericarditis (inflammation of the membrane around the heart)
      Hematologic disorder: Hemolytic anemia (low red blood cell count) or leukopenia (white blood cell count<4000/ul), lymphopenia ( <1500/ul ) or thrombocytopenia (<100000/uL) in the absance of offending drug.
      Anti-nuclear antibody test positive , very sensitive (98%) but non specific.
      Immunologic disorder: Positive anti-Sm DNA, anti-ds DNA, anti-phospholipid antibody and/or false positive serological test for syphilis, presence of anti-ss DNA in 70% of patients (though also positive in patients with rheumatic disease and healthy persons[12])
      A useful mnemonic for these 11 criteria is SOAP BRAIN MD: Serositis (8), Oral ulcers (4), Arthritis (5), Photosensitivity (3), Blood Changes (9), Renal involvement (proteinuria or casts) (6), ANA (10), Immunological changes (11), Neurological signs (seizures, frank psychosis) (7), Malar Rash (1), Discoid Rash (2).

      Some patients may have SLE without four criteria and SLE is associated with manifestations other than those listed in the criteria. Dr Graham R.V. Hughes, an authority on lupus in the UK, has published alternative criteria to diagnose SLE in 1982.[13]

  25. Ashley Pinder

    Help understanding lupus :(?
    Hi everyone my name is Ashley I am a 17 year old high school student and have just been diagnosed with lupus on April 1st. I am pretty sure I have Systemic Lupus. Although I was diagnosed with Lupus on April 1st I thought it was a joke but unfortunately it wasn’t. I started taking Plaquenil 200mg 1 tablet per day on the date of my diagnosis. After about a week I noticed 2 small spots on my stomach the size of a penny. After about 2 weeks I noticed more spots on my stomach and then on my shoulders. I seen the Rheumatologist on May 6th, 2011 and he had put up my medication to 300mg 1 1/2 tablets per day due more spots. About 3 weeks after that the rash spread everywhere on my back, shoulders, arms, stomach and legs. I have no idea why their not going away. I figured once taking the medication prescribed the rash would disappear. I was wondering if there is anything I should do? Or any other medication that would have a better effect on me? If anyone has more information please let me know as it would be great to understand this disease more. Thankyou

    1. Hanold/Ham

      There are several reasons why you could be having this rash. To me, it sounds like you might be having an allergic reaction to the medication you are on. They might say that it is really rare, but you can still be allergic to it. If you are taking steroids (specifically prednisone) that usually keeps the inflammation of Lupus under-control, though it has lots of side-effects. If it’s a flare-up then you should ask your doctor about it. Most of the time, doctors prescribe immuno-suppressants in order to prevent flare-ups which usually prevents rashes.
      I hope this helps!

  26. nerak

    Do you get dizzy and throw up from Lupus?
    For years I have been getting dizzy and then I throw up. I have a rash on my legs and feet that get worse in the sun. Achy joints, tire all the time. But was diagnosed with Psoriasis. I have been on the embrel shots for psoriasis. But still have the rash on legs and feet and gets way worse with heat from a shower and sun. Does this sound like it could be lupus. I had a ANA blood test and going to the DRS for the results. I wonder if all these years they were misdiagnosed me, So what does this sound like. I was wondering if any body ever gets dizzy, throws up and have diaria? Than you Karen

    1. ★☆W.a.b.b.y✿❀

      There are many symptoms of Lupus. None of us on here could tell you if your symptoms specifically are related to one thing or another.

      Enbrel is used to treat rheumatoid arthritis and in severe cases it may be used for Lupus too. So your doctor would probably expect the Enbrel to help if this was Lupus.

      An ANA test can be positive for no reason or in autoimmune diseases. Most people who have a positive ANA do not have Lupus.

      If you’re not sure if you’re being treated correctly, you should see another doctor, possibly a rheumatologist.

      Has it even been suggested you may have Psoratic Arthritis? This is treated with Enbrel as well.

      Good luck.

      …..

  27. michimama

    Help, I’m having signs of Lupus should I go to the ER?
    I’ve been having weird symptoms for 6 months and I think I may have Lupus….

    I have been getting;

    a butterfly rash on my face that feels warm

    red rashes and swelling in my knees, hands and other joints, sometime with purplish spots

    swollen lymph nodes,

    lightheadedness

    feeling faint

    shortness of breath,

    chest pain,

    fatigue,

    difficulty urinating/straining to go

    nausea/vomiting

    myoclonic-like muscle jerking in my arms and back,

    tingling, numbness and sensations of hot and cold in my hands, face, arms, legs and torso.

    I recently had a 48 hour holter monitor test that came back abnormal. My doctor didn’t tell me until yesterday on a phone message, but I can’t reach her for for 7 days. She said it was probably no that urgent, but now I’ve been feeling really strange and awful.

    Now I have pain on the left side of my chest, when I press on my chest it hurts and I can’t tell if it’s just a swollen lymph node or something worse and have been feeling deathly ill off and on the past few days. Should I go to the ER?

  28. Maddy

    7 year old child with high ASO level- Rheumatic Fever?
    Hi.
    Well my daughter has had this rash on her legs, wrists, ankles, under arms for almost 3 years. It looks like a eyrthema scaley ring type ..raised at times. We have been to the Hematologist to the dermatologist, to the allergist, to the rheumatologist and now we are going to the cardiologist because they believe she has Rheumatic fever, due to her ASO titer is 1280. Other then the rash she has had periodic low grade fever which I assumed as a 24 hr bug kept her home from school and she was find next day. She has had strep throat in the past many many times and they sent her tests out to see if she was a carrier which was negative. I dont know much about this and would like some insight. I have to now see the cardiologist to see if her heart is ok because rheumatic fever can cause heart problems. We have tested for Lyme disease over and over, CBC over and over and numerous immune checks for lupus JRA and many more. I am so udderly upset overt his whole thing, i just want my daughter to feel better. She also complains about her feet from time to time, which I brought her to the foot specialist and they told me there was nothing wrong with her except growing pains- so do they have growing pains their whole life?

    Her other medical problems –
    3 endoscopies for acid reflux which she developed a hiatal hernia from
    Labia adhesion surgery from a fused vagina
    2 eye surgeries she wears a plus 8 prescription since she is 4 months old
    she also has had a upper GI series
    A positive mild ANA 1:40
    ASO 1280
    ESR mildy elevated ( i dont know the numbers)

    1. norton g

      Madeline, Yes, your daughter’s ASO is quite elevated. The ASO titer helps determine whether a person has had a recent Group A streptococcal infection; to help diagnose post-streptococcal sequelae of rheumatic fever and glomerulonephritis. Testing is done when someone has a fever, chest pain, fatigue, shortness of breath, edema, or other symptoms associated with rheumatic fever or glomerulonephritis, especially when a person recently had a sore throat but no rapid test or culture was done to confirm a Group A streptococcal infection. If her kidney function is normal, then perhaps some genetic testing may provide further help in diagnosis.

  29. Kelsey J

    Could I have lupus or something else?
    I’ve been at different doctors who have been treating different things, but nothing seems to be getting better. I’m being treated right now for a thyroid problem that was discovered because of my extreme fatigue. I also have a dermatologist for a rash on my legs-I’ve had to go back 3 times for stronger lotions, but no help.

    I also have random aches and pains, nausea, and I am stressed very easily.
    Could it be lupus?

  30. Lady Prism

    People diagnosed with Lupus… need help and info!?
    I do not wish to write a paper about all the details and symptoms, so I’ll just summarize, then ask my question.

    Over the last 5 years, I have had symptoms of EXTREME fatigue, joint pain, canker sores, mild hair loss, etc. I am also anemic (which no amount of iron or B vitamins changes in the slightest). In this time, I have also had a false positive Syphilis test, and chronic kidney stones (3 in 7 years).

    In August of 08, I developed a cough that STILL has not gone away. I have been to TONS of doctors and been diagnosed with pneumonia, asthma, bronchitis, allergies, etc, and put on more antibiotics than I care to think of… all the antibiotic treatments actually made me feel worse.

    I also developed a sudden, strange rash on my leg after being out in the sun for a couple days… which also has not gone away. And more recently, I have a light butterfly rash on my face.

    Last month, I finally found a doctor that said “Wow… 8 of the 11 symptoms of Lupus… let’s get you tested.” I was x-rayed to check for Pleurisy (in the lung tissue), and put through about 10 blood tests (also checking for lyme disease, just in case).

    Even after the false positive Syphilis, and the anemia, I tested negative on the ANA test. Kind of. I tested higher than normal, but apparently too low to make a full diagnosis of Lupus.

    What does this mean exactly? Is there such a thing as borderline Lupus? And I know there are a few other diseases that mimic Lupus… but what are they? I know that Fibromyalgia is one of the “mimic” diseases, but would that also account for the blood disorders that I DO have and the rashes?

    I do have another appointment with my doctor in a couple weeks, and I also know that making a Lupus diagnosis can sometimes take a while… but has anyone had the negative ANA issue and still been diagnosed with SLE? And what was your experience… anything I should ask my doctor to look for on the next visit?

    Thanks!
    Oh, they did also check my thyroid… everything normal there.

    And should I mention, also, that my symptoms began during pregnancy and have gotten progressively worse? This has been going for about 5 years… and just now I’ve screamed loud enough that I am being taken seriously.

    1. Constance

      Unfortunately it may take years to DX Lupus. I had all of the symptoms you do and saw a Rheumatologist for about 5 years before my ANA was positive. In the 5 years I also had a pos. Scleroderma and Sjogrens. All along my doctor said that probably I would develop Lupus buy it was a wait and see. Keep a diary of your symptoms and continue to see your doctor. Hope this helps.

  31. Anastacia E

    i’m looking for people who have lupus or firsthand experience with it.?
    i was adopted but know that my biological mother died of lupus. i never really worried about it because up till recently i have been very healthy (and because i have never had a butterfly rash). i am now 21 years old and worried. i will list my symptoms: weakness/fatigue that makes even walking into an olympic sport, hard to breath, leg craps that wake me up at night, nausea, shaky, constant mouth and nose sores, constant headaches, knee, ankle, finger, toe, elbow, and wrist pain, and mood swings like you wouldn’t believe! while i have never had the “butterfly rash” , i now have a weird itchy burning flaky rash like thing on my left eyelid. the only reason i have held off going to the dr. is because i don’t have a. the butterfly rash and b. health insurance. i will go however if i can find proof that you can have lupus without the rash. please don’t judge me for not going to the dr. i just lost my job and can’t afford a hospital bill. and out here in CO i cant find a doctor who will see me without insurance. thank you in advanced for all your help.
    i also have a list of other symptoms but there are so many these are the ones that i can recall right now.
    oh! and most importanly the reason i think these symptoms might be lupus is because i can go days, weeks, or months without any of them. then BAM! there they are again!

  32. tammy_lynn2003

    i have lupus and fibromyalgia and im diabetic,what im concerned about is this skin rash that?
    on my legs above my ankles and below my calfs and on my arms above my wrists and below my elbows.i do not use any body soaps with smells and i do not use any clothing soaps or softners with any smells or dies and i dont understand what the prob is,i stay out of the sun and i dont eat bad foods im at my witts on what this is, and as far as my house being unclean thats not a case i do not use harsh cleaing chemicals but i have noticed when i am asleep those places ive mentioned on my body sweat and then itch,so this is off,any way i need some feedback and my house does any have any fleas or bugs im very up on that

  33. Shelly H

    cutaneous lupus questions…thanks?
    I was diagnosed recently with cutaneous lupus
    I have a rash all over my back…shoulders…legs…feet
    i had it on my chest but thats seems to have improved with a cream docs perscribed

    2 days ago…they started me on prednisone and plaquenil

    how long does it normally take to notice skin clearing ????????

    1. honey brown sugar

      well your skin is going to puff up because of the prednisone. the higher the dose, the more noticeable it is. i have lupus SLE. i refused to take the prednisone anymore. the side effects are horrible. it also causes you to go insane and have terrible mood swings. mine resulted into bipolar disorder. i still have my rash on my face all the time, but it is not as noticeable as before. it does reduce the appearance of the rash. it disappeared from my body but the redness on my face stayed and has never gone away. but my lupus is VERY aggressive. the cellcept plus the plaquenil work for me. and be aware of ALL the side effects. they do not list all the side effects on the side effects list you are given with the medicine, and usually doctors won’t tell you about them either. the worst side effects are weight gain, hallucinations, uncontrollable mood swings, increased appetite, tremors, insomnia, hot flashes, blurred vision, and hair loss. i hope your lupus improves. i have been fighting mine for 8 years. good luck

  34. abav23

    Is there any Impact of lupus (DLE) on pregnancy?
    I am 28yrs old..I was suffering from eczema for 8-10yrs that was frm period 1992 to 2002 approx. and i was under medication for that..now i m having black marks on my legs and m not having any medicines currently..later i had another skin issue called lupus(DLE),some rashes wherever i get exposed to sun.which started in 2006 and i was under medication for sometime…I got married in 2007 and its gng to be 2 yrs..we r planning for a family for more than a year,nothng has wrked till now…..We have also consulted gyaenic, done scanning and all tests no problems in the reports for both of us..could u pls help me out whether this can be the problem behind it?

    1. Angie

      I would consult a rheumatologist or immunologist with your concerns. I have Sjogren’s Syndrome, another autoimmune disorder which affects the skin and organs. I have had two successful pregnancies and both of my children are healthy. The specialists that deal with Lupus would have great knowledge about your issues. I wish you the best of luck.

  35. batgirl9923

    Besides lupus, what else causes butterfly rash?
    I have the butterfly rash on my face, lesions on my arms, stomach, scalp, and legs. Tested negative for RA, ANA, and normal sed. rate.
    What else could it be???
    I also have muscle aches all over my body, and have trouble sleeping. Can’t get to sleep and then wake up several times during the night due to back and neck pain.

  36. Anonymous

    DOCTORS PLEASE HELP!!!! Does this sound like lupus?
    I am a 14 year old female who was diagnosed with Herpes simplex virus six about six months ago.What is scaring me is that my doctor told me I will most likely develop Lupus and I think I am starting to show symptoms of it but im not sure if it is lupus or not. I have had a butterfly rash that has came and gone over the last few months. The last few days If I sit still for 10 minutes or so when I go to get up I am stiff or my leg or something is sometimes asleep. I have a lot of memory problems also and it makes school hard for me. The other day my friend was telling me that my hands where swollen and that kind of scared me. Also lately my legs have been hurting and when my hands are cold it is hard to bend my fingers and if i do it hurts. I am also tired a lot but I think that the Herpes simplex six causes that. Also, can you tell me a little about Herpes Simplex 6 because there really isn’t anything on the internet about it. Then I don’t know if this is normal but my hands and feet are almost always freezing. One other thing is that the last few days I have been peeing a lot more than I usually do but then again I could just be freaking myself out.

  37. Apache

    What is wrong with me?
    I have a rash of some sort that has come out of nowhere! I was running in the sun, in jeans and all sweaty, and once I got home and took my sweat soaked pants off my legs had rashes everywhere. The rashes are on both of my inner thighs, below my buttocks by my knees I believe, and on the lower backs of my calves. My whole body is stiff, swollen and I’m bloated really bad. Think, rigor mortis. Do I have >> lupus?

    I’m twenty years old.

  38. Candy

    Are there any lawsuits against the drug minocycline causing drug-induced lupus?
    I began taking Minocin or generic name Minocycline approximately five years ago for rosacea. In August 2009, I developed a rash on the inside of my forearms that spread to my legs and finally 90 percent of my body. I then started having severe pain in my joints and muscles, depression, fatigue, brain fog, blurred vision, hair loss, and my toenails are even coming off! Since this began I have seen four different emergency room doctors, four family doctors, two dermatologists an allergist, and a rheumatologist. Finally, after years of suffering, I have been diagnosed with drug induced lupus caused by Minocycline. Also, my liver enzymes and histone levels have went from moderate to severely elevated. I have been referred to Kelsey Seybold Clinic in Houston, Texas for further evaluation. My health has deteriorated extremely and I don’t know how much longer I can work. I am single and have no other income. My question is why did it take so long before I was diagnosed, and why is this “bad drug” still being prescribed? How many more people have to suffer like me (as well as many others have), before it is taken off the market? I fear the damage to my liver and skin may be permanent. I have been off this drug for five months but I am still suffering. If you are suffering with these symptoms and take Minocycline, be sure your doctor orders blood work that checks for “drug induced” lupus. My first lupus panel was normal, and the only reason they found it was because addition tests were ordered due to abnormal liver tests. I would appreciate hearing from you. Thank you, Candy in Louisiana

    1. ★☆W.a.b.b.y✿❀

      It is well known that Minocycline causes Drug Induced Lupus.

      If you presented with these symptoms to a rheumatologist and they didn’t order blood tests, your rheumatologist should be fired. I’ve seen four rheumatologist and three of them have mentioned drug induced Lupus as I’m on Doxycycline. Doxycycline is in the same family of antibiotics but far less likely to cause DIL.

      Most people with Drug Induced Lupus go into complete remission after stopping the medication. It’s unlikely you’ll be dealing with this in 12 months time. Are you on any other medications? Have you been taking an anti-inflammatory like advil? Or regularly taking tylenol? These medications are tough on the liver which could explain your liver tests.

      I don’t know of any lawsuits, but I don’t know if you’d have a leg to stand on. The doctor who prescribed the medication to you should have warned you. I always look up the side effects of any medication that I’m prescribed.

      There are medications they can use to treat Drug Induced Lupus, usually Plaquenil. But in most cases, stopping the medication is enough to stop the symptoms.

      …..

  39. Anonymous

    Could it possibly be Lupus?
    I’m very tired of being treated as though I’m just going nuts. A hypochondriac in a sense. I’m not…I’m sick. Without much to back up what is causing it. The symptoms mainly started when I was around 18…I’m 24 now. I’ve been to the doctor many times being told the same thing. I’m perfectly fine. One doctor finally took into consideration I had a list of symptoms too long for my age and sent me to a digestive specialist. I wasn’t able to continue seeing the specialist, but from the two visits I was able to attend, he determined I had GERD. But I just keep getting worse. It’s not just my upper digestive system, it’s my entire digestive system. Nothing seems to work properly. I’m vomiting in the mornings from acid and bile building up in my stomach throughout the night. I can hardly eat anything without feeling nauseated afterward. My stool varies in color and texture. Some days it’s near normal, others is sticky, others it’s like water. I stay pretty bloated the majority of the time. So bloated and gassy that I have to where a pant size larger than usual. I have to pee once or twice an hour. I get chest pains that are more than likely associated with pain in my esophagus. It’s pretty deep and aching.

    Aside from my digestive problems, just last year I started developing eye and skin problems. I’ve never had any problems with my eyes. Never needed glasses. I’ve started having static like vision (visual snow), I sometimes see bright spots (seeing stars), I’ve noticed an increase in floaters in my vision. Some have came and gone…others are still around. I feel what feels like sparks bursting in the inner corners of my eyes several times a week. I see ghosting. Distant objects are now slightly blurred and my eyes tend to stay dry. All of this developed within the last year. The eye doctor said I had developed an astigmatism. Seems like more is going on than that…just in the last 5 months since my visit to the eye doctor…the symptoms have worsened. Seems a bit quick and much to just be an astigmatism.

    My skin problems started developing around the same time my eye troubles started. I started out just getting a rash on my side. It wasn’t raised…more like a big red blotch. Didn’t itch. I didn’t pay much attention to it until I noticed over a week period it had come and gone in the same spot 3 different times. A few weeks later I started breaking out in hives. They started just on my thighs, then progressed to my entire body over time. They wouldn’t go away unless I laid down, and even then it took hours before the majority would cease. Hives became an ongoing problem that randomly popped up for about 8 months. I could never find a trigger for them. Some days I’d be working and notice them, others I’d wake up and have them…indoors, outdoors, no food allergies, no medication…stress…nothing. I could never find anything. I haven’t really had an outbreak in hives now for about 3 or 4 months. Instead I’ve been getting itchy skin (not dry skin), and more red blotches (not raised) on my skin. First they were mainly coming on my chest, then I started getting them on my hands, feet, stomach, legs…wherever. They seem to start on my chest. Sometimes they itch…sometimes they don’t.

    My symptoms all come and go…aside my eye problems. The dryness in my eyes come and go…but the rest stay pretty constant. But my digestive problems and my skin problems come and go. I have no thoughts as to what may trigger these problems.

    I know that is a lot to read, so if you’ve done so, thank you. Aside from all of that, I stay tired, I have minor body aches that come and go. Especially in my arms and in my knees. I find some days I can’t think as clearly as others…mild confusion occasionally. I have good days and just down right nasty hateful days. Dunno why. I stay depressed for weeks at a time. I went to a State Park just two days ago. It was a cold but sunny day. First time I’ve really been out in the sun that long in months. That night I noticed the butterfly rash across my nose and cheeks. Not a sun burn. It faded yesterday for a few hours and today it’s darker again. This is what made me begin thinking…could this be Lupus? and yes, it does run in both sides of my family. Lupus and Leukemia both do. I’ve had several people tell me even on good days…”You don’t look so good” My last employer told me I wasn’t working out because I just seemed too drained all the time.

    I am uninsured now, and I’m not sure how I would get tested for Lupus…or even how they test for it at all. I’ve read some websites about Lupus, it just seems like such a complicated disease. Any thoughts? Thanks again.
    I forgot to mention my miscarriages. I’ve had 4 healthy children, yet before and after my successful pregnancies, I’ve had 6 miscarriages without a reason being determined. Dunno if that has any relation to this…but thought I’d add it.

    1. Cally J

      Well knowing someone who personally has Lupus it sounds like it may be. However I had very similar symptoms due to a bad reaction to medication, (antacid of all things), and it took awhile to figure it out! So I mean it could be so many things. No one here can answer it for you.

      I would say that you should try to figure out how much it would cost. Maybe call around to different doctors or internalists and see how much something like that would be and try to get it done. If it runs in your family I’d get tested just to be on the safe side. If you want to talk just send me an e-mail.

  40. fromrussiawithlove

    Does this sound like Lupus?
    I have severe pain in my hands, fingers, and ankles. I have fatigue. I go to bed early, and get up at about 8 am but still get tired at about 2 pm. I don’t have the butterfly rash I don’t think, but I get a very noticeable blush in the same region. (cheeks, bridge of nose).

    I get rash on my hands and body out of nowhere that itch sometimes, and are not consistent enough to be an allergy to something specific.

    I have very bad asthma and lung problems as well.

    I get random, spontaneous fevers and chills.
    I get depressed easily.

    Sensitive to sun and bright light.

    Sometimes get a numb, tingly feeling in legs and hands.

    When I wake up, or sit for more than a few minutes, my ankles get very stiff and it becomes hard to walk.

    I get depressed easily too.

    I have to be homeschooled this year because I was missing so much school. I am not a hypchondriac , I don;t enjoy feeling ill.

    Can someone please help?

    Also, I’ve heard ANA and autoimmune diseases can sometimes “hide” in bloodwork?

    1. openairway

      I’m no doctor, but sounds like you have some of the risk factors associated with Lupus. As your doctor may have told you, there is no one test for lupus, rather, it’s diagnosed after assessing various signs and symptoms. ANA levels and other blood indicators are only part of the symptomology, and yes, current bloodwork tests can only show bits and pieces of the whole picture. Joint pain is a very common symptom, and you don’t seem to have that one, so it truly is just a guessing game for you without seeing a doctor who can send you to a rheumatologist. Rheumatologists specialize in autoimmune disorders including lupus.

      There are several other conditions that share many symptoms with Lupus, including fibromyalgia, chronic fatigue, multiple sclerosis, and connective tissue disorders. Some experts think that they are all just different manifestations of the same disease.

      All of these disorders can take years to diagnose, even with the best rheumatologists, because onset of different symptoms may come on gradually, or others may go away.

      I would recommend controlling your signs and symptoms and seeing a rheumatologist regularly. Only a rheumatologist will be able to properly diagnose lupus.

      Although it may “feel good” to have a definitive answer, don’t try to rush into getting a diagnosis, just control your symptoms by doing things like wearing long sleeves, sunscreen or hat in the sun, getting plenty of exercise, taking an antihistamine for your allergies (sounds like they are “ideopathic” allergies, which means the cause is unknown). Eat right.

      That being said, make sure you see a doctor – you may have some other disease or condition that requires immediate treatment or intervention.

      You may also want to make sure you have health insurance before you push your doctor to make a lupus diagnosis – if you are already covered and then get diagnosed, most health plans have to cover you, but if you get diagnosed and don’t have health insurance, or lose the insurance by not paying or something, most plans won’t cover autoimmune disorders when you apply for insurance, or if they do, you’ll be paying much more. This can affect your ability to get treatment for the rest of your life.

      Hope that helps.

  41. f

    questions about lupus / ANA please anwser if you can?
    I JUST GOT MY OTHER RESULTS FROM MY ANA

    my first ANA in oct. was 1:160 also liver functions came up abnormal like sgot/ast 134 sgot/alt 219

    and they reran the test less than a month later and came back 1:80 rhemy said it was neg ( the paper said low positive/borderline ) (also ran sed rate crp and came neg)

    i been having a lot of symptoms ranging from full body joint and muscle pain (entire body )
    insomnia fatiuge sleep paralysis
    forget fullness/daze
    itchy all over no rash
    dry eyes/mouth
    urinating a lot
    restless legs
    mouth /nose bumps/sores
    anxiety depression irritability
    possible butterly rash very light (could be somthing else )
    and more symptoms

    they’ve been going on for about 4 months could this be early signs ?

    could this still be lupus or maybe another autoimmune problem even though rhemy doesn’t think i have it ? can ANA fluctuate like that ?

  42. blahblahblah

    Lupus / leukemia question?
    i am a 15 year old female and i have had odd unrelated symptoms recently. a family friend of ours was just looking around at things on the internet and said i am showing symptoms of lupus and leukemia. but i dont have a fever. these are the symptoms i have been having

    i get this rash on and off on my legs its like red pinpoint looking dots it doesnt really itch to much or anything its just kinda there , i thought i got it like a sun rash but every now and then i get it indoors too , andi have some bumps mostly on my left arm which looked just like bug bites and they itch pretty bad when i first get them and i have had some scabs on them for about a week now i had about 15 bumps total and find some new ones every now and then and some of the old ones are gone

    i get short of breath often , like even when i get up quick and go up stairs my heart beats super hard and weird and it also happens when im active

    i have been loosing my hair , like not completely but just noticeably thinner feeling and i get clumps of hair when i shower or brush my hair i find hair on my bathroom floor.

    i have noticed i have been needing more sleep recently and i am more tired then normal. i used to not need much sleep at all and just be fine.

    and i think i slightly bruise easily. like as an example i ran into our boat about 2 weeks ago , and i still have some of the bruise left. i didnt even hit it that hard. but its not like i wake up with random bruises on me. and my scabs take awhile to heal. in softball i had slid and it took about a month total to heal, my scabs when heeling the scabs shrink instead of just falling off (i always though shrinking scabs were normal it was my friend who noticed it was not)

    i get lightheaded very often. like when i get up things go black but then fade back to normal

    i dont really like exercising because i tire easily and just cant really do most of it

    and i havent been to hungry lately either

    i am also very fair skined normally but have been a little paler then i normally am too.

    i have been decreased in hunger mostly since i got a bad virus in the begining of the summer and right when school was ending. i just got over it fully in the begining or middle of july. and i am already getting a cold. i have had slight weight loss, wwhichis odd for me because im super thin and skinny so my weight nnormallydoesnt change much if it does only by 2 or 3 pounds tops

    i wear contacts and have been having extreamly red eyes. i think it may be irriatation to my contacts but even if i dont wear them for a few days it slowly gets better but its still there. it normaly gets a little better overnight. but within the past almost week i havent woren my contacts at all or for only a few hours a day and its hasnt gotten better. its off and on. and just last night i got these white bumps liek 2 or 3 of them on the outter ring of the colored part of my eye. it looked just like it was a little clump of eye goo (kinda like the goo you get when you have pink eye just white clearish goo)
    just last week i had some pain under my left rib cage and it lasted for a long time and we went in and they said it was constipation? i still slightly slightly barly have that pain anymore even though we fixed the constipation problem a long time ago. and none of my symptoms are to sever either
    yes i do have a doctor app comming up. because i know that alot of my sypmtoms are mild thats what makes me wonder

  43. Rita G

    Could I have lupus??? People with knowledge of lupus please ?
    So I have had an ANA test that came back positive. My knees,hips,legs,wrists,hands,and feet ache a lot of the time. I have “cluster” headaches. I don’t think that’s what they are. My hands swell. I get a red almost like rash on my cheeks and nose. It comes out of no where and it feels like a sunburn when I touch it. When I get hot I get really sick. I miss a lot of school because I always feel Ill. I have been given a refferal to a rhemotologist but I still am curious. Could it be lupus?
    Also a doctor brought up lupus asking me if I knew what of was. I guess what I want know is it it likely that I have lupus or unlikly. I have been waiting monthes to get the the rhemutologist and it is really bothering me now. I have never been to the doctors this much in my life and I go to the doctors a lot. I hate missing school I feel like people will judge me and think bad about me even though of is legit that ok at home. My grades are fine but it still bother me that people think I am lazy or faking it when I would much rather be at school then home. I just want to be done and diagnosed with or without something. Thank you and sorry it is so long.

    1. viggo.blixen

      Don’t freak yourself out!

      Yes, it could be lupus, but it could also be stress or a food allergy or something trivial like that. Get to the Neurologist as soon as you can to make sure.

      At this point you’re kind of like Schrodinger’s Cat… [A quantum Physics Thought Experiment] A THEORETICALl Cat is placed in a steel enclosure with a radioactive atom that has a 50% chance to decay in a given time. When this atom decays, it causes the death of the cat. At the end of the “given time” the cat exists as both alive and dead until an observation causes it to revert to one stage or another.

      This is you, right now, of sorts. You are existing in a state of both having Lupus, and not having Lupus.

      In any case, you don’t know until you know. Don’t worry, it only gives you Ulcers. Go to that neurologist as soon as She can see you.

  44. betsy_51783

    Does anyone have discoid lupus and is pregnant?What are your symptoms? How do you deal with them?
    I am about 9 weeks pregnant and I cannot take my medication to help prevent the rash. Every day about 2 hours after I wake up I get a flare up on my hands, arms, legs, ankels, neck and chest and they seeming to get worse. Is this normal? I can’t get into my dermatologist for 2 weeks and none of my other doctors will touch the lupus issue. HELP!

    1. Linda R

      Call the dermatologist back and be very firm about getting in earlier. If they gatekeepers still refuse, ask to have the doctor call you that day. If that does not work, call your rheumatologist.

      Personally, I would look for another dermatologist ASAP. Lupus patients need to be able to see their doctors within a reasonable time when there is a problem Two weeks is not reasonable. It is most likely the receptionist who is the obstacle. Asking the doctor to call you should by pass him or her. Don’t bother telling her your whole story. You can also fax the doctor explaining your symptoms clearly and asking him or her to call you ASAP. You can also call after hours and get the doctor’s service and leave a message with them if you think your other approaches are not getting through to the doctor.

      You might also call your ob/gyn and ask if over the counter cortison cream is permissible during pregnancy. Throughout your pregnancy the doctors who treat your lupus and your obstretician should be working hand in hand. You will be the one who has to make that happen.

  45. Yes I am a ruthlessbitch

    What kind of doctor treats leg edema?
    I have Lupus and symptoms are like RA. In the last year, I have had bad leg edema and my Rheumatologist took me off Celebrex thinking that was causing it. Swelling went down but is still there and it hurts to walk/move/etc. They did prescribe me tablets for 1 month for fluid over year ago, but I need this swelling GONE. Last week I also all of a sudden got a rash on both legs and one of my arms.

    1. Jewels

      What other medications are you taking? because it sounds like a medication causing this, If your Rheumatologist hasnt got it better then you can seek a cardiologist-leg edema is sometimes caused due to your heart not pumping the way it should, but there are also several things that can cause it so please dont let me scare you keeping your legs elevated above the level of your heart such as laying down on the bed and having them elevated on pillows should help, it if you are taking prednisone this could be the cause and/or prednisone can be used to treat this type of swelling as well. sounds crazy but its true alot of times the problem that medication is supposed to treat is also a side effect-for example phenergan which is taken for nausea and vomiting can cause nausea and vomiting as a side effect. I hope this has helped in some way. Good luck

  46. Jill

    could my symptoms equal lupus?
    I am a 20 year old white female. I have had a very sever scaly rash on my scalp belly and legs for almost 3 years now. Around the time it first showed up I had a doctor tell me it was psoriosis but no medication has ever made it go away. I have a rosy colored painless redness that goes across my cheeks and nose. I always have ulcars in my mouth and never really think anything of it. Ever since I was little I have had terrible kidney infections and have been hospitalized twice for them. I am always sleepy and never feel like I am fully rested. I am nervous that this is all sounding like lupus symptoms. could anyone give me any feedback before i go to a physician?

  47. fw

    I think I might have lupus?
    Wondering if I might have lupus. Few reasons this came to mind.

    Scratched my head, and found blood under my nail. Ended up I had some bumpy scabs, and of course I googled it. One of the things that came up was lupus, which has crossed my mind in the past at other times. I am 23, and when I was in college I developed one winter an odd rash that has small spots on my legs. I attributed this to being out in the cold, as I almost always have a rash on the least protected areas (such as legs only covered by jeans). The nurse said she didn’t know what the spots were, and said it looked like my immune system malfunctioned. I was prescribed a drug to basically restart my immune system, and my rash/random spots went away, and I haven’t seen them since. A year or so later I was woken up nightly with severe charlie horses, and that lasted for about a month. Then they went away quickly. Recently, I find myself walking and every so often (once a week to sometimes very often- few times a week) I find my knees or ankles have extreme unprovoked pain. I have to sit down or sometimes walk through it, and eventually it goes away into nothing. And I have started to have pain every time I am washing dishes. Maybe I am holding the dish too firmly, but it doesn’t seem right.

    Please give me some feedback as to what this might (or might not be).
    Googled, and found this:

    “Cutaneous (or skin) lupus, which usually affects only the skin and is characterized by a rash on the scalp, legs, or arms. The rash has sharply defined patches and can be raised from the skin.”

    This describes (and the pics looked) like how my legs and arms did when I was in the cold. When warmed up though, they eventually went away.

    The rash I was in the doctors office for was just little blotches, at their largest they were the size of abt a pencil eraser.

  48. anjoek5859

    Mystery rash on hands, fingers and various places on body?
    I found out 2 months ago that I’m diabetic 2. Taking 1,000 grams of metformin daily. Blood sugar is down to 150 on an emply stomach. I’ve been having muscle weakness in legs and arms. It’s hard to get up from a sitting position or out of bath tub. Scheduled for a muscle biopsy soon. I’ve read up on Lupus, etc. Had anyone had these problems and got a diagnosis of some sorts? Appreciate any feedback…..I had muscle weakness before I found out I was a diabetic and taking meds.

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