Despite the fact that the last decades brought a significant decrease of the mortality rate of lupus, this disease is in its nature a real menace for the patient’s life. This auto immune, chronic disorder severely affects the people that have it. From the about 2 millions Americans with lupus, 90 % are women aging between 18 and 30. The most predisposed to systemic lupus erythematosus seem to be Hispanic, Asian and black American women and the symptoms as well as the risks are much more severe in their cases. This type of lupus is often encountered in old people, small children and even babies.

In absence of a certitude regarding the causes of SLE, modern medicine analyzed the most important categories of factors related to the apparition of lupus: genetic factors, hormonal factors (estrogen is considered to play a role in the apparition of the disease) and the environmental factors (long – term use of antibiotics).

SLE is generated by the abnormal actions of the immune system and may cause temporary or permanent damages to many body areas including internal organs, such as the lungs, the cardiovascular system, the skin, the kidneys, the gastrointestinal tract, the nervous system and the brain and the musculoskeletal system. The auto immune character of the disease is given by the fact that the antibodies produced by the immune system damage both healthy cells and the DNA.

Because SLE often triggers heart, kidney or lung disorders, the treatment for every such consequence should be included in that for lupus. In the treatment for SLE, the attention is directed towards minimizing the casualties generated by the immune system’s malfunction which makes the prescription of immunosuppressive medicines very frequent; despite their side effects, corticosteroids are commonly used to control systemic lupus erythematosus. Azathioprine (imuran) and cyclophosphamide (cytoxan) are only prescribed in extreme situations because they have very dangerous side effects.

SLE is a chronic disease which explains the alternation of flares and remission periods. The difficult to predict nature of this disorder makes extremely necessary the continuous monitoring of the patients – including those in the remission phase – and repeated physical exams; the patients may be affected by the long term use immunosuppressants which makes them vulnerable to possible infections. In case you have SLE, you should be more careful and cautious than a healthy person, because your immune system is out of range and you are vulnerable to all kinds of disorders that your body is not able to fight without treatment.


41 thoughts on “Chronic Disorder Lupus And Its Complexities

  1. Phil Collins

    Itchy rash around eyes, mouth, armpits, inner thighs, and nipples with unknown cause?
    I have had a very red, itchy rash in various parts of my body for a month and a half, supposedly caused by an allergic reaction. The rash is around my eyes (upper and lower eyelids, extending to the brow ridge), around my mouth, under my left armpit, on my inner thighs, and on my left nipple. The rash is very red and has clearly defined borders. Sometimes the rash on my eyes is so swollen, I am unable to see and cannot drive to work. The rash around my mouth makes it so that when I open my mouth wide enough (to eat a sandwich or burger), the corners split open and bleed. I have been to 4 different allergists, and 2 different dermatologists, and nothing has been figured out other than that it is contact dermatitis. I have been on three rounds of prednisone, which eliminate the rash completely (but have very nasty side effects), have tried cortisone cream (did not work), and various other prescription-strength anti-itch cream (did not work). I have been on hydroxyzine, a prescription-strength antihistamine (did not work). I have eliminated all possible allergens that come into the contact with my body. I have stopped using deoderent, I switched to baby shampoo, I stopped using shaving cream, I switched to cetaphil (unsecented, hypoallergenic) body wash, and I have stopped using sunscreen. I stopped using fabric softener, I use ivory flakes laundry detergent, and have switched my bedding. I have even stayed at a different house for a week to see if the allergen was where I was living and the rash still got worse. I was blood-tested for various auto-immune diseases like lupus and the results came out negative. It seems like my doctors have all given up and want to put me on prednisone for the rest of my life to mask the symptoms but not try to figure out the problem.

    Can someone offer some help? What should I do? I will pay you if you give me advice that turns out to be helpful / finds the cause. Also, please give me the names of very powerful antihistamines (perhaps experimental ones that need test subjects) or any kind of medication that is being used to treat rashes. I would prefer non-steroidal ones. I hate the side effects of prednisone and related medications.

    Thank you.
    Thank you for your prayer. I don’t know if it will help, but if it does, I will let you know.

    1. Dr.A Srivastava

      Hello,

      It looks like you have chronic hives and contact dermatitis. It is defined as urticaria that persists for longer than 6 weeks. In most of the cases of chronic urticaria, the underlying pathology is idiopathic i.e it is not linked to any cause. It is essential to rule out the presence of serious illnesses of which recurring hives can be a symptom. Examples are hepatitis, hyperthyroidism, lymphomas, collagen vascular diseases, and cancers of the rectum, kidneys and gastrointestinal tract.

      I feel that you should find out the cause of your chronic urticaria from an allergist by ruling out the various conditions causing it.

  2. Phil Collins

    Itchy rash around eyes, mouth, armpits, inner thighs, and nipples with unknown cause?
    I have had a very red, itchy rash in various parts of my body for a month and a half, supposedly caused by an allergic reaction. The rash is around my eyes (upper and lower eyelids, extending to the brow ridge), around my mouth, under my left armpit, on my inner thighs, and on my left nipple. The rash is very red and has clearly defined borders. Sometimes the rash on my eyes is so swollen, I am unable to see and cannot drive to work. The rash around my mouth makes it so that when I open my mouth wide enough (to eat a sandwich or burger), the corners split open and bleed. I have been to 4 different allergists, and 2 different dermatologists, and nothing has been figured out other than that it is contact dermatitis. I have been on three rounds of prednisone, which eliminate the rash completely (but have very nasty side effects), have tried cortisone cream (did not work), and various other prescription-strength anti-itch cream (did not work). I have been on hydroxyzine, a prescription-strength antihistamine (did not work). I have eliminated all possible allergens that come into the contact with my body. I have stopped using deoderent, I switched to baby shampoo, I stopped using shaving cream, I switched to cetaphil (unsecented, hypoallergenic) body wash, and I have stopped using sunscreen. I stopped using fabric softener, I use ivory flakes laundry detergent, and have switched my bedding. I have even stayed at a different house for a week to see if the allergen was where I was living and the rash still got worse. I was blood-tested for various auto-immune diseases like lupus and the results came out negative. It seems like my doctors have all given up and want to put me on prednisone for the rest of my life to mask the symptoms but not try to figure out the problem.

    Can someone offer some help? What should I do? I will pay you if you give me advice that turns out to be helpful / finds the cause. Also, please give me the names of very powerful antihistamines (perhaps experimental ones that need test subjects) or any kind of medication that is being used to treat rashes. I would prefer non-steroidal ones. I hate the side effects of prednisone and related medications.

    Thank you.
    I have tried benadryl – it does not work, but I am thinking it doesn’t work because of the permanence of the rash. The rash itself is very red and inflamed, and I would doubt that any single dose of anything would make it go away. I noticed that with the prednisone, the itchiness went away immediately, but the rash itself did not dry up and go away until after a few days. Also note that the rash oozes clear fluids and fills with pus occasionally, especially around the eyes.
    Apparently the blood test was comprehensive and tested for syphilis, which came out negative. I have seeked professional help (which is strange because usually one would seek professional help AFTER yahoo answers), but my doctors have disappointed me. No progress has been made in terms of finding out what is causing the rash, and I am sick of wasting my time and money seeing doctors who just prescribe prednisone and tell me to wait it out. It has been a month and a half and the rash is NOT clearing up at all.

  3. Phil Collins

    Itchy rash on eyes, mouth, armpits, and inner thighs?
    I have had a very red, itchy rash in various parts of my body for a month and a half, supposedly caused by an allergic reaction. The rash is around my eyes (upper and lower eyelids, extending to the brow ridge), around my mouth, under my left armpit, on my inner thighs, and on my left nipple. The rash is very red and has clearly defined borders. Sometimes the rash on my eyes is so swollen, I am unable to see and cannot drive to work. The rash around my mouth makes it so that when I open my mouth wide enough (to eat a sandwich or burger), the corners split open and bleed. I have been to 4 different allergists, and 2 different dermatologists, and nothing has been figured out other than that it is contact dermatitis. I have been on three rounds of prednisone, which eliminate the rash completely (but have very nasty side effects), have tried cortisone cream (did not work), and various other prescription-strength anti-itch cream (did not work). I have been on hydroxyzine, a prescription-strength antihistamine (did not work). I have eliminated all possible allergens that come into the contact with my body. I have stopped using deoderent, I switched to baby shampoo, I stopped using shaving cream, I switched to cetaphil (unsecented, hypoallergenic) body wash, and I have stopped using sunscreen. I stopped using fabric softener, I use ivory flakes laundry detergent, and have switched my bedding. I have even stayed at a different house for a week to see if the allergen was where I was living and the rash still got worse. I was blood-tested for various auto-immune diseases like lupus and the results came out negative. It seems like my doctors have all given up and want to put me on prednisone for the rest of my life to mask the symptoms but not try to figure out the problem.

  4. Phil Collins

    Itchy rash around eyes, mouth, armpits, and thighs?
    I have had a very red, itchy rash in various parts of my body for a month and a half, supposedly caused by an allergic reaction. The rash is around my eyes (upper and lower eyelids, extending to the brow ridge), around my mouth, under my left armpit, on my inner thighs, and on my left nipple. The rash is very red and has clearly defined borders. Sometimes the rash on my eyes is so swollen, I am unable to see and cannot drive to work. The rash around my mouth makes it so that when I open my mouth wide enough (to eat a sandwich or burger), the corners split open and bleed. I have been to 4 different allergists, and 2 different dermatologists, and nothing has been figured out other than that it is contact dermatitis. I have been on three rounds of prednisone, which eliminate the rash completely (but have very nasty side effects), have tried cortisone cream (did not work), and various other prescription-strength anti-itch cream (did not work). I have been on hydroxyzine, a prescription-strength antihistamine (did not work). I have eliminated all possible allergens that come into the contact with my body. I have stopped using deoderent, I switched to baby shampoo, I stopped using shaving cream, I switched to cetaphil (unsecented, hypoallergenic) body wash, and I have stopped using sunscreen. I stopped using fabric softener, I use ivory flakes laundry detergent, and have switched my bedding. I have even stayed at a different house for a week to see if the allergen was where I was living and the rash still got worse. I was blood-tested for various auto-immune diseases like lupus and the results came out negative. It seems like my doctors have all given up and want to put me on prednisone for the rest of my life to mask the symptoms but not try to figure out the problem.

  5. Miyakamikague

    EVERYONE—-PLS. ADVISE about live-in?
    hi guys!i just want to ask advise from you about my problem. Well me and my bf decided to live together just like a normal husband and wife, its not possible for us to be married coz his been married before due to unexpected pregnancy of his “x” so he has no choice (well philippine culture) and they just get married because of the baby but it not took so long coz their not comfortable with each other so it last for 1 year. Then after that i met him and that’s it we been for 4 years and now we decided to live in together. There’s no problem with his family coz they accept it since then yet my family is against with him because of his situation. My family is too old fashion and their concern for the marriage,but what we will do? Divorce here in the phils. didn;t exist and its against in the filipino trait.
    And now the problem is im sick! I probably have lupus not confirmed yet (though i have some symptoms)so, his family refuse me to tell our situation with my family.wat will i do?

    1. WhateverGirl

      I dont know if moving in is the right decision. I believe that if 2 people live together they should get married.

      Find out if you are really sick. If you are get some help. A girl on Americas Next Top Model has lupus and shes still doing good.

      If you really love him it shouldnt matter what his family or your family says. And everyone makes mistakes.

      He should get divorced from his ex. You shouldnt be married to someone you dont love.

      Do what you and your boyfiend think is right.

      I hope everything works out! I pray that you are not sick.

  6. dede

    How serious is Lupus during pregnancy?
    My daughter had preclampsia with her first pregnancy. She is approximately 9 wks. along and is showing signs of the condition already. Last week her doctor told her that current symptoms she is having all point to the possibility of Lupus. He ran some test, and said depending on the test results may decide to hospitalize her for a few days for further testing and begin a treatment plan. I am terribly worried for my daughter and her unborn baby. Just wondered if anyone out their has experienced somewhat the same, and looking for some feedback. Thank you in advance.

    1. Faerie

      Don’t worry. Lupus rarely affects the baby of a woman who has it, but it isn’t nice at all for the mother. Often women contract Lupus whilst pregnant or after they’ve had a baby, as Lupus is often triggered by this. I once knew a woman who had her Lupus at its very worse after she had her first baby. I’ve known 2 women with it, and the second one was so exhausted she spent most of a year in a wheelchair. But Lupus is rarely fatal nowadays, and it’s not disfiguring. They usually use steroids to treat it. (I’m not talking about illegal drugs, I’m talking about medical drugs that have nothing to do with muscle building). Lupus can range in severity. Your daughter’s baby will be fine.

      I’m not going to guarantee you that everything, including the baby, will be ship-shape and fine and dandy, but it is VERY likely. I know the woman above gave you some bad news about premature or ill babies, but the truth is, the two women I know have had 2 or more babies, all completely normal and healthy. Seriously. Not trying to make you feel better. Have a little faith, dear:) Good luck xxx

  7. Monica

    Cipro & Its Side Effects… Am I Being Irrational?
    A week ago, I noticed that I had severe lower back pain, but only in the middle of the night. It was enough to wake me up, but generally went away with a few baby aspirin. The pain was completely gone during the day.

    Went to the doctor today to find out that I have a UTI (urinary tract infection). Weird, since I have none of the symptoms of a UTI except for lower back pain. Anyway, he prescribes 500mg Cipro to be taken twice a day for a week.

    Now, my back story. Last year, I had recurring muscle and joint pain that would last anywhere from a week to months. It would move around mysteriously. First, my leg. Then, my foot. The worst was my hip. Whenever I moved, it would crack or pop. It was so bad that the doctors first thought I had lupus or rheumatoid arthritis. The pains eventually went away, and we never figured out what was causing it.

    Now, I am presented with this antibiotic that seems capable of causing a lot of the same symptoms. It got me thinking – What if the cause of my pains last year was some random antibiotic I took years ago? After all, it could take months for Cipro side effects to show, per the patient leaflet.

    Am I being irrational? Or are these side effects really something to be concerned about? Are there other alternatives for UTI and/or kidney infections that are equally as effective, but with less severe side effects? I realize that these side effects have to be reported, even if they are rare, but it seems like Cipro is particularly nasty.

    1. Fox

      Yes , Cipro ans other antibiotics are very bad for your body , the side effect is very evident . I think you are being irrational . The side effect is the thing that you must pay attention to . If you want to cure your UTI , the Chinese herbal medication Diuretic and anti-inflammatory pill is the drug that you can use , this is a green and safe med , it is made up of 50 natural plants , it is just like the vegetables that we eat everyday . there is not any side effect at all . The Diuretic and anti-inflammatory pill can be searched in google . That will help you with your UIT . You do not need to use the antibiotics any more .

  8. Cam's mama

    Are these Lupus symptoms?
    Hello all,
    I am trying to get ready from my appointment with the Rhuematologist. I had a positive ANA both Homogeneous and Speckled @1:320. Well I wanted to know which of my symptoms are lupus symptoms, cause not a lot of my symptoms fit the lupus symptoms mold. It all started for me with Diarrhea, I would get randomly. Now I have almost all time and for about 2 to 6 weeks at a time it will be really bad along with stomach pains. In march it got so bad the lower left part of my colon was so inflamed you could see it when I laid down. Then I got what they thought was Bell’s Palsy for no reason at but that came and went. I don’t really get rashes but I do get sun burn really easy at times but not all the time. I have also had sun poisoning twice, oh and I black if that matters. My hands and feet swell sometimes, and last summer the knuckles swelling petty bad no color just lots of pain. In April my joints start hurting, slight at first and it was on and of. Now its all the time, and sever, with weakness in my hands. I do have a vitamin D deficiency. Shortly after the joints I started feeling dizzy all the time, the kind of dizzy where it feels like your not breathing enough. Then started getting a crackling in my neck like I had pop rocks in my neck, followed by sever pressure. I also have a sore in my nose that I have had for about 2 months. Well sometime in mid July I started getting what I thought was heart burn, but nothing I took for it would make go. My chest to my throat was on fire for 3 weeks and then it just went away. I’m very fatigued. My hair is falling from the root, about a brush full a day. I can’t focus. I feel like I’m breathing baby powder and coughing doesn’t help it go away. And last but not least, I keep having these spells where my pulse rate stays around 120, and it feels like my heart and lungs are in competition for space and oh does that hurt, I even went to the ER, and they just did an EKG and sent me home feeling the same way.

    Sorry its so long but if some could please read and let me if these are symptoms of anything or if I’m crazy.
    Thanks,
    Brittany

    1. banana

      No two cases of lupus are exactly alike. Signs and symptoms may come on suddenly or develop slowly, may be mild or severe, and may be temporary or permanent. Most people with lupus have mild disease characterized by episodes — called flares — when signs and symptoms get worse for a while, then improve or even disappear completely for a time.

      The signs and symptoms of lupus that you experience will depend on which body systems are affected by the disease. But, in general, lupus signs and symptoms may include:

      Fatigue
      Fever
      Weight loss or gain
      Joint pain, stiffness and swelling
      Butterfly-shaped rash (malar rash) on the face that covers the cheeks and bridge of the nose
      Skin lesions that appear or worsen with sun exposure
      Mouth sores
      Hair loss (alopecia)
      Fingers and toes that turn white or blue when exposed to cold or during stressful periods (Raynaud’s phenomenon)
      Shortness of breath
      Chest pain
      Dry eyes
      Easy bruising
      Anxiety
      Depression
      Memory loss

      When to see a doctor:
      If you develop an unexplained rash, ongoing fever, persistent aching or fatigue, see your doctor.

  9. REBECCA T

    ANA positive 1:640 Could I have lupus with no symptoms?
    My son was stillborn 7 weeks ago and I had blood tests done. The results say I have an ANA of 1:640 so the doc is sending me to be tested for lupus SLE. I really have no symptoms though. I have always had cold hands, right from childhood and get quite pink/red cheeks that come and go but that is all. We want to start trying for another baby in a month or two but now I don’t know if this was all linked to our son’s death.
    Can anyone help with some ideas? Thanks
    I have had one normal pregnancy – my first son is now 2 and a half.

    The baby also had umbilical cord complications (he only had one artery – SUA) so we had thought that was the reason until my blood results came back. Now we are confused. We are still waiting for results from the cord and placenta.

    Thank you for the website link, it has been very useful.

    1. mgunnycappo

      Yes you could have asymptomatic Lupus however this is extremely hard to diagnose as Lupus is diagnosed with blood tests and symptoms. However, usually this just means that your symptoms haven’t started showing up yet. They could be around the corner. The Raynauld’s Syndrome (extreme cold hands) is a definite symptom of Lupus as is having a still born. It is possible that you have Antiphospholipid Syndrome (APS). You should be tested for this immediately. Do not assume that the ‘normal’ Lupus panel has this test in it. It is a special test but a simple blood test. My wife had Lupus for 15 years, had a blood clot and still wasn’t diagnosed with APS until about 10 years later. It nearly killed her. About 50% of people with Lupus have APS but only about 25% of Lupus Patients are actually tested for it. Make sure you ask…this is what causes miscarriage in Lupus.

      Good Luck to you

  10. Natasha

    I live in Las Vegas, NV, does anyone know a doctor who is willing to prescribe pain meds?
    For the past 6 years I have been experiencing extreme whole-body pain, but my spine is what really kills me day after day. I had a baby 17 months ago and all of my pain symptoms seemed to go away for the most part during that time. But after my child was born, the pain came back worse than ever before. I forgot to mention I’m a 25yr old female.
    Not only did I start having severe pain in my back, but also in my limbs, hands, feet, shoulders, hips, knees, and muscles. For whatever reason, I started getting noticeable tremors, severe cramps and spasms in different parts of my body (especially my legs and back), migraines (at least 5 times a month), pins and needles, and temporary paralysis that would start in my hands and eventually go up my arm and into my face. On top of all this I have many other issues that began like IBS, frequent urination, extreme fatigue but insomnia at night, ice cold hands and feet, the list goes on and on.
    I wake up every morning feeling like I’m so stiff and in so much pain that I can barely stand it. The pain has come to the point where I can’t sleep even with sleeping meds. Laying down for too long causes my back to burn like its on fire. I also wake up with horrible swelling, mainly in my hands, joints, and face.
    I recently went to the ER back in August and they said I could possibly have MS, fibromyalgia, a rare form of migraines, Lupus, etc. I got a referral to a nuerologist who I’ve been seeing for a month now. I had a Ct scan and MRI of my head with nothing abnormal. But he wants me to get all these other tests I can’t afford until I find work. Since I’ve had endometriosis and ovarian cysts since I was 15 years old, I have a high tolerance to Lortab. So for the pain, my doc put me on Lortab 10mg at first (which did nothing), then Nucynta (which gave me horrible side effects), and now he will only give me 50 Percocet 7.5mg taking 1 every 8 hours which does not help. Supposedly, this is for “breakthrough” pain, and I guess he is NOT understanding that I have pain 24/7.
    I went down to his office recently and tried to explain that I have to take at least 2 percocet every 6 hrs for any pain to be relieved and since I’m trying to find work, I care for my child full-time, and I’m in the process of moving, I need to have reliable pain management. I forgot to mention I’m also taking Lyrica and Ibuprofen. He basically made me feel like I was a “drug-seeker” because I was making up these dramatic stories about my life in order to get pity. I asked him how he expects me to pay for these procedures and tests if I can’t work due to pain, and he once again made me feel like I was a drug-seeker. And let me just say that I’m highly against street drugs, alchohal, and medication abuse.
    So now I’m at a loss of what to do. I’m not asking to be put on super strong pain meds like morphine or something, I just want something that works, and enough of it that my quality of life improves for me so I can take care of my son, work, and go back to school. I’m seeing a rhuematologist on november 9th, and hopefully he will be more concerned and caring then how I’m being treated right now.

    But my main question is, is there anyone living here in Las Vegas, NV that has a doctor who has a good bedside manner, listens to their patients, and isn’t against pain meds??? I’d really rather not be on any meds at all but until I can get a diagnosis, I can’t be living in extreme pain like this.
    I haven’t had an MRI of my spine yet, or even and x-ray. But, my neurologist prescribed me Lyrica and that helped with the pain in my body but not in my back AT ALL. I’m on oxycodone 7.5mg/325 but its not even worth taking because the pain is so severe that it doesn’t help. I try explaining this to doctors and they think because I’m petite that I should be able to to take a lortab and be fine. I feel like i’m being undertreated due to people who actually do abuse drugs.

    1. JMITW

      a doctor is going to want to do tests to find out what is wrong before prescibing a lot of meds

      this does not sound like fibromyalgia

      you say your back seems to be the focus of the problem.have you had mri of the spine?

  11. xandersmom<3

    Postpartum rheumatoid factor w/ weak positive ANA? Need a Dr House!?
    I’m trying to condense this as much as possible, hoping for professional thoughts / opinions while I await a rheumatologist referral (5 weeks away, ugh).

    31 years old, delivered my first baby in January. Severe diarrhea last 4 mos of pregnancy, which my OB didn’t take seriously & never treated. The day I went into labor, the hospital staff was astonished by how dehydrated I was, and my potassium level was at 2, requiring several IV infusions before my cesarean and afterward. OB still insisted “no big deal” despite the nurses thinking it was.

    Worried about this for 2 months before seeing my FNP for a physical to make sure I wasn’t going to up & die unexpectedly (the hospital experience turned me into a hypochondriac, lol). To my horror, my bloodwork came back with a weakly positive ANA (titer 1:80) and a rheumatoid factor of 12, and my FNP flatly told me I may have an autoimmune disease & got me a referral to a rheumatologist (August is the soonest they can see me).

    I’ve been stressing over this for 3 months now, went to a GP yesterday for a 2nd opinion, he is going to repeat the labs to see if any change, but didn’t make me feel any better. He said he is unsure whether pregnancy / breastfeeding could have any effect on ANA levels / rheumatoid factor, and told me I don’t *look* like I have lupus or scleroderma.. : /

    I have no symptoms at this time of anything, except for feeling tired (but wouldn’t that come with having a 6 month old lively baby?) And my hands seem to fall asleep a lot (but said baby sleeps in my arms a lot, which is usually when that happens).

    Can anyone see a possible connection in any of this (unexplained diarrhea, hypokalemia, ANA, etc)? I can provide further detail on bloodwork if needed. I am sorry this is so long, but I am finding myself obsessing with this matter because I want to be healthy for my sweet little boy!

    1. Clint

      Thank you again for the question and the additional history.

      As per my previous response, the weakly positive ANA and the negative rheumatoid factor mean nothing in and of themselves. From the clinical information that you’ve provided, I seriously doubt that you have an autoimmune disease. I’m disappointed in your GP. Repeating these lab tests is a clinical exercise in futility. These test results will likely remain unchanged, and again, will add NOTHING to the discussion. Your original FNP erred royally in ordering these tests. Yes, I agree with you that rearing an infant and enduring countless sleepless nights (I’m not a parent) can easily account for your fatigue. Yes, it may be that simple.

      Regarding your severe bout of diarrhea in the days before you gave birth, unfortunately that was the cause of your dehydration and hypokalemia. It’s possible that you had a bout viral gastroenteritis before labor. It’s also possible that you were infected with a hospital acquired bacterium that caused the diarrhea (such as C. diff). Nevertheless, whatever caused the diarrhea, I believe that it was in no way related to your lab test findings. In my medical opinion, you may have had these test results if they had been checked a year before your pregnancy. Again, no clinical correlation. I can emphatically assure you that breast feeding is in no way related to your test results. I doubt that pregnancy can cause a an elevated ANA; and even if it did, that does NOT mean that you have, or are about to develop, an autoimmune disorder.

      Bottom line: I believe that you are fine. Since your GP also appears clueless, for the sake of providing you professional reassurance, you may just have to wait to see the rheumatologist next month to hear what your GP should have been in a position to tell you – “You’re fine, m’aam.”

  12. Miyakamikague

    PLS HELP I NEED ADVICE (live-in)?
    hi guys!i just want to ask advise from you about my problem. Well me and my bf decided to live together just like a normal husband and wife, its not possible for us to be married coz his been married before due to unexpected pregnancy of his “x” so he has no choice (well philippine culture) and they just get married because of the baby but it not took so long coz their not comfortable with each other so it last for 1 year. Then after that i met him and that’s it we been for 4 years and now we decided to live in together. There’s no problem with his family coz they accept it since then yet my family is against with him because of his situation. My family is too old fashion and their concern for the marriage,but what we will do? Divorce here in the phils. didn;t exist and its against in the filipino trait.
    And now the problem is im sick! I probably have lupus not confirmed yet (though i have some symptoms)so, his family refuse me to tell our situa

  13. Elisse

    Strange symptoms after pregnancy…which doctor should I see?
    Ever since I got pregnant I’ve had a number of strange painful symptoms come up. I have history of Idiopathic thrombocytopenia in remission since 1997. Platelets normal since then. During my 2nd trimester earlier this year my WBC shot up to 25K & I had occasional low grade fever. The WBC still hasen’t dropped to normal (I gave birth in April so I’m almost 6 months post partum). Saw hematologist & after a gazillion blood tests everything came back normal except for the high WBC. No explanation. During my 3rd trimester, in addition to separated pelvis, I developed severe pain of both my wrist joints. Pain never went away after birth. Was diagnosed with DeQuervain’s tendonitis and injected with cortisone. Post partum I’ve developed the following additional symptoms: severe, constant pain in left hip (can’t sleep on the left side, can’t walk without pain, it’s a constant, throbbing ache that seems to radiate down my leg), knees and ankles; itchy rash all over body and face especially nose (they are like mosquito bites but larger and flatter; someone told me it’s hives; I’ve never had that before); severe, dry, painful gritty eyes; my eyelashes have fallen out as they were much longer and fuller prior to pregnancy; WBC is still hovering at about 20K but all other counts are normal; occasional fever of 99-100F with no indication of illness or infection. All of this is in addition to the severe fatigue and anxiety…yes I have a newborn but she sleeps 10-12 hours straight at night and has no issues at all so it’s not like she’s the cause of my exhaustion. Thank goodness she’s such a mellow, awesome baby. Someone mentioned I should see a rheumatologist and get checked for lupus or thyroid disorders. My thyroid has always come back normal but I was informed that there are other thyroid tests that probably haven’t been done on me. I currently see a pain management doctor who injected my wrists and hip with cortisone. This helps short term but the pain just comes back. In terms of meds, I currently take oxycodone and naprosyn for the severe joint pain, ambien as needed for sleep, and Nuvaring birth control which I’ve used for years and never had an issue with. So, do these symptoms sound familiar to ANYONE? Should I see a rheumatologist? Orthopedic doctor? Chiropractor? Psychiatrist? Endocrinologist? Hematologist again? I’m in so much pain and it seems like every day I develop a new odd symptom and I need to figure out what’s going on. I’m supposed to return to work in 7 weeks and I can’t even imagine how it’s going to be since I feel so terrible. Help!
    My internist sent me to the pain management doctor and the pain management doctor said there’s nothing more she can do for me.

  14. Miyakamikague

    EVERYONE—–ADVISE PLS. about live-in?
    hi guys!i just want to ask advise from you about my problem. Well me and my bf decided to live together just like a normal husband and wife, its not possible for us to be married coz his been married before due to unexpected pregnancy of his “x” so he has no choice (well philippine culture) and they just get married because of the baby but it not took so long coz their not comfortable with each other so it last for 1 year. Then after that i met him and that’s it we been for 4 years and now we decided to live in together. There’s no problem with his family coz they accept it since then yet my family is against with him because of his situation. My family is too old fashion and their concern for the marriage,but what we will do? Divorce here in the phils. didn;t exist and its against in the filipino trait.
    And now the problem is im sick! I probably have lupus not confirmed yet (though i have some symptoms)so, his family refuse me to tell our situation with my family.wat will i do?

    1. NY Buzz

      Darling, he has too much baggage. Leave him and go back to your family. Go to a doctor and find out why you don’t feel well.

      Then start out looking for a new guy.

      We tend to think that there is only one “soul-mate” in the world. That is rubbish. You could be happy with many different men.

      You probably won’t listen to me. You will foolishly follow your heart. But when he leaves you with several small children, and you have no way to support yourself or your children, you will realize that I was right.

      It’s your life. Choose wisely!

  15. THERESA A

    could my symptoms be ms or something else?
    recently i have been experiencing joint pain acommpanied by slight numbness and burning sensations in my hands and feet sometimes even on my lips and face.. i told my doctor and they ran some blood they ruled out lime ra and lupus.. i did have some hormonal levels off which they believe could cause the joint pain.. i recently had a baby and sometimes this happens.. my concern is could this be signs of ms has anyone had these symptoms? and it was ms or something else.. please adviseh

    1. Carlos M

      …Those symptoms sound like a peripheral neuropathy which can be caused by many illnesses. They are not specific symptoms of MS. If you are worried about that, have your doctor send you to a neurologist first. I’m glad your tests for arthritic conditions ( RA, and SLE ) came out okay. They shoud check you for Diabetes also.

  16. jessibee2

    I need information about pregnancy help and what is called so I can do more research on it.?
    I been having miscarraiges problem 7 times but I only got one lucky survivor permature baby. I believe that it my immune system cause rebel the embyro when I conceive because all test came out normal. My body won’t accept holding the baby in full term and I get miscarrage before 3 months. I am RH negative and my immune system is very senstive. I tried test for Lupus but it came out negative because my body have silmiar symptom of lupus. My husband’s sperm is good and it shouldn’t cause problem. So I want to know where can i get information from online about getting my egg and my husband’s sperm to put in another woman body to carry baby for us full term. I heard about that but Im interest in research about that because we might want to do that way because I want to protect my health and Im on medication recently for nerve and body pain. I really apprecaite if I get helpful information. I want to get information first before I go talk doctor about that. We both are deaf

    1. captain9901

      There are many infertility clinics that offer the service you are talking about. I am having a hard time conceiving and have seen different options on websites. If you put in Infertility into your search engine, the internet will pull up many clinics for you. Also, it will help you find one in your area. Most insurance plans do not cover infertility, just to warn you. The cost can be pretty extreme. I would also fight to get some answers from your dr about why you are miscarrying so much. Have they tried putting you on progesterone? That might help.

  17. Vampire

    Can you spread lupus?
    I think I have it but I don’t know and I’m 13(In a few days)And I Am going gto my moms in the morning and i don’t want to give my sisters or my baby nefew of my bro or anyone so I need to no and what are a few symptoms please and osorry sorry abut the spelling I’m using a ZuneHD….not to easy lol thx!!!!

  18. Sabrina B

    How do I know if I have a uterine infection after giving birth and if Keflex is the right atbc to treat it?
    Hi! I just gave birth to my first child 10 days ago and had really bad complications after the delivery. I was in labor for 27 hours, pushed for an hour, and got the usual Pitocin and epidural. My OB had manually pulled out my placenta immediately after the delivery of my baby and I had not asked him to! I was hemorrhaging for the 1st 2 days. I even passed out 2 hours after I gave birth, as soon as I transferred to the maternity ward! The same night, I was about to pass out a 2nd time and my blood pressure dipped at its lowest. They had to call an emergency code and all of the doctors and nurses rushed into my room. The reason for my postpartum hemorrhage was because I had retained fragments of the placenta in my uterus and a dr. had to manually push the clot out! On top of that, I had a distended bladder and couldn’t urinate on my own, so they had to Foley cath me for 3 days. I didn’t have an episiotomy or any tears, but had a few abrasions inside my vagina. I also had a hematoma on the left labia. I lost so much blood, 55%, I became anemic and was supplemented with a stronger iron than what I was taking during pregnancy. I was on IV fluids for 3 days and stayed in the hospital for 4 days. Ever since I got home, my lochia had been getting less and less but the hematoma on my left labia became so painfully excruciating it had even turned hard even with the sitz baths I’ve been taking. It was so painful every time I went to the bathroom, to urinate or pass a bowel. Even on pain meds, the vaginal pain was so severe, I had to go to the emergency. I was examined and they told me in time, it will heal and go away on its own and the hematoma is too small to cut open and drain.

    Then today I noticed I started bleeding more and even passing big clots, whereas previous days, my bleeding was brown and very small, like dime sized amounts with no clots at all. In addition, I’ve been having extreme severe abdominal pains since this morning. I saw my OB today and he examined my uterus by pressing down on my belly and I grimaced so much because the pain was so bad. He told me it’s not supposed to be that painful at this point, 10 days after giving birth. He concluded that I had a uterine infection and put me on Keflex 4 times a day for 10 days. I’m not sure if he diagnosed me correctly since he only pressed down on my tummy and didn’t run any tests to confirm that it’s an infection. Also, how would he know what kind of antibiotic to prescribe to me if he doesn’t even know what kind of uterine infection is invading me? I know there are different kinds of uterine infections based on the different types of bacteria! I’m a new grad LVN (practical nurse) and even though I haven’t worked since I got pregnant during school, I know that I should be skeptical of something about his diagnosis! I don’t have a fever or any other signs and symptoms of an infection other than the extreme abdominal pain and painful urination/ bowel movements. The emergency department took a urine sample from me and a bladder infection or UTI came out negative so I know I don’t have that! Someone out there please help me! I just want to make sure my OB and medical team during my labor and delivery have the best interest in taking good care of me instead of killing me! I just want to be alive and healthy to raise my daughter and for my uterus to not be affected so I can have more children after this! Thank you so much in advance!

    FYI: I also have Lupus, but a mild form of it since none of my organs are affected….only Raynaud’s Disease and eczema which is about it!

    1. mgunnycappo

      Keflex is a broad spectrum antibiotic and will cover you regardless of what specific bacteria you have. He’s probably giving you the antibiotics as a prophylaxis, just in case. I would venture to say that you’ll improve over the next couple of days.

  19. Miyakamikague

    I NEED HELP PLS ADVICE (live-in)?
    hi guys!i just want to ask advise from you about my problem. Well me and my bf decided to live together just like a normal husband and wife, its not possible for us to be married coz his been married before due to unexpected pregnancy of his “x” so he has no choice (well philippine culture) and they just get married because of the baby but it not took so long coz their not comfortable with each other so it last for 1 year. Then after that i met him and that’s it we been for 4 years and now we decided to live in together. There’s no problem with his family coz they accept it since then yet my family is against with him because of his situation. My family is too old fashion and their concern for the marriage,but what we will do? Divorce here in the phils. didn;t exist and its against in the filipino trait.
    And now the problem is im sick! I probably have lupus not confirmed yet (though i have some symptoms)so, his family refuse me to tell our situation with my family.wat will i do?

    1. 2 Legit 2 Quit

      I pray nothing happens to you. I have close friends and family with lupus and its not cool. You need to look after yourself. Focus on you and your health right now. All this is going to do it make you depressed and you don’t need that because of whats going on with you. I pray you don’t have it but in case you do, you comes first always. Lupus is deadly and you want to make sure you take care of yourself.

      Good Luck and God Bless.

  20. Ms.Cooper

    5months I still haven’t got pregnant, why?
    My Husband and I have been trying to have a baby for 5mth we have tried a fertility map. I start my period on the 3rd of every month, but when I was in the 9th grade a doctor said I had 2spects of Lupus. I don’t get sick nor take any medicine; because I don’t have lupus symptoms anymore. Could it be I am not ovulating or does my husband have bad sperm?

    1. ♥It's a boy♥

      5 months is nothing.It can take up to a year or longer to concieve.It took me a year……..just be patient.If nothing after a year then you can go to the doctor and get on clomid.For your husband there is an at home test he can take called baby start male infertility test….costs about 30 dollars at the store or online.Good luck!

  21. Kiki

    Lupus?Lyme disease?? whats going on?
    SYMPTOMS
    Pain, weakness, or numbness in the arms or legs, swollen joints everywhere, joint pain everywhere, dizziness -and everything literary spinning like I just got off a roller coaster-, jaw sharp stabbing pain, head ache, pressure in my head, blurry vision, problems with walking, Poor memory and reduced ability to concentrate [sometimes during a day I forget the first half of it completely], Heart pain, little hallucination -an object moved-, extreme fatigue……

    I would like to add that I had a baby 4 months ago, and that I have a dog who has lyme disease. I don’t know if it can spread via flees -I got bitten-. I know I havent been bitten by a tick -I also havent been out lately-. What you think
    I also have problems with concentration while talking
    Im a SAHM and I clean cook and take care my son the whole day.
    I have only 1 kid
    in addition I got so dizzy once I ended up falling on the ground.

    1. Will

      Sounds like a new Mom … do you have other kids at home … do you work … do you have anyone to help you out or are you doing it all? I have an 8 week old … I am all of these things and more. You should take a day and relax, we left the kids with Sister and Mother in law and took off for the amusement park. Everyone had a great day.

  22. Happy Little Trees

    How to ease back into Macrobiotics?
    I was “diagnose” tentatively with Lupus three years ago. I went on kind of a crash Macro diet to clean out my system and booster my immunity. It worked very well and had no more symptoms or problems..but eventually I went back to my older diet which wasn’t so hot. I ate pretty well when I was pregnant but since I had my baby in September I have gone downhill with no sleep, no time, etc…eaten a lot of what I shouldn’t. I really would like to get back into it..I do nurse and I think the whole foods will be beneficial to my son as well. Advice? Websites with good recipes for a working mom? Thanks!

    1. Scocasso !

      Recipes are the easy part.

      The first is to start gardening, even if it’s in containers on the balcony of an appartment. Get some seed catalogues, order seeds, get some interesting things to eat. Read the book: The One Straw Revolution. There are so many websites and recipes; I don’t know where to start. Grab some macrobiotic books from the library along with some gardening ones too and get started. Our main kitchen tools we use are: purple clay inner pot automatic rice cooker (which can cook other grains too of course); Thermos Shuttle Chef cooking pot; wok; cast iron frying pan (for pancakes, flat breads, etc.); air popcorn popper; toaster oven.

  23. Miyakamikague

    EVERYONE—-PLS. ADVISE about live-in?
    hi guys!i just want to ask advise from you about my problem. Well me and my bf decided to live together just like a normal husband and wife, its not possible for us to be married coz his been married before due to unexpected pregnancy of his “x” so he has no choice (well philippine culture) and they just get married because of the baby but it not took so long coz their not comfortable with each other so it last for 1 year. Then after that i met him and that’s it we been for 4 years and now we decided to live in together. There’s no problem with his family coz they accept it since then yet my family is against with him because of his situation. My family is too old fashion and their concern for the marriage,but what we will do? Divorce here in the phils. didn;t exist and its against in the filipino trait.
    And now the problem is im sick! I probably have lupus not confirmed yet (though i have some symptoms)so, his family refuse me to tell our situation with my family.wat will i do?

    1. whyteangel11

      You need to do what makes you both happy, whether parents accept or not. Your health comes first though. If he will be there for you through your illness, count your blessings. It is not important what relatives, friends think. Life is too short too worry about all that. Many of my friends are filipino so I know what you mean. Hopefully your friend can get over the “guilt” of the culture.

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