There are a vast amount of patients who walk into a clinic desiring relief from their allergy issues. But what about those patients who suffer from Autoimmune diseases or Autism, also? Is there an allergy link there that the patient may not even be aware of? The National Institutes of Health (NIH) estimates up to 23.5 million Americans suffer from autoimmune disease and that the prevalence is rising. Researchers have identified 80-100 different autoimmune diseases and suspect at least 40 additional diseases of having an autoimmune basis. These diseases are chronic and can be life-threatening. Autoimmune disease is one of the top 10 leading causes of death in female children and women in all age groups up to 64 years of age. Then add Autism in it’s now epidemic and climbing rates. The Center for Disease Control (CDC) estimates 1 in 150 children are diagnosed with autism. These statistics mean that every 20 minutes another child in America is diagnosed. [1]

Although there is much additional treatment necessary for both autoimmune disease and autism the fact remains that allergies play a significant role in these health concerns. When a patient walks through your office door with symptoms or diagnosis of one of the over 80 various autoimmune diseases, wouldn’t it be wise to address immediately any allergies that patient may have? Autoimmune disease studies are finding the correlation of allergies triggering the disease itself. A new study by researchers at Children’s and the University of Washington (UW) identifies a connection between allergic diseases and autoimmune diseases. The study was published in the April 1 edition of Nature Immunology. “Our study implies that allergic and inflammatory diseases may actually trigger autoimmune diseases by relaxing the controls that normally eliminate newly produced, self-reactive B cells. This is important because many autoimmune diseases are caused by self-reactive antibodies produced by such B cells” said Dr. David Rawlings lead researcher and section head of Immunology at Children’s Hospital and the UW. [2] If an allergy can actually trigger such diseases quick implementation treating those allergies is simply basic common sense.

In regard to autism, which not only affects a child but extends beyond to his / her family, schooling and as we are discovering; society in general every possible aspect for treatment must be considered. Therefore any allergy link needs to be addressed. Dr. Stephen M. Edelson from the Autism Research Institute writes, “People with autism are more susceptible to allergies and food sensitivities than the average person; and this is likely due to their impaired immune system. The best way to stop a reaction to a particular food substance is to remove that food from the person’s diet. Other treatments include taking nutrients to strengthen the immune system and giving the person sublingual drops, i.e., very small amount of the substance. In general, it is important that people realize that allergies and food sensitivities can affect one’s health and behavior, but these problems are treatable.” If treating these allergies is as simple as Allergy America’s sublingual drops makes it, shouldn’t every doctor offer this simple therapy as a means to help elevate symptoms in those suffering with autism?

Often we miss some of the basic measures that can produce relief from various ailments because we bypass the immediate opportunity for treatment, instead jumping ahead to tackle the greater issue. With sublingual drops, immediate treatment and recovery from a patient’s allergies not only happens, but in the case of autoimmune disease and autism, could also assist with reduction from symptoms or perhaps triggers of the disease manifesting itself.

1. American Autoimmune Related Diseases Association, Inc. (2008, November 22) Autoimmune Disease Stat Sheet

2. Children’s Hospital and Regional Medical Center of Seattle (2007, April 6). Connection Between Allergic Diseases And Autoimmune


80 thoughts on “Diseases In The Lupus Family

  1. roxemarie

    Is it possible to have lupus even though non of your family has lupus?
    I have tested positive for lupus, and I have many lupus symptoms. My doctors believe I may have lupus, but I have not been officially diagnosed with lupus. All of my family members are very healthy. No one in my family has any illnesses. No one in my family has ever had any type of autoimmune disease. I am the first and only person. Is this possible and how could this be?

  2. S S

    my daughter has been tested positive for lupus, what is it first of all and how concerned should i be about it
    my daughter took a blood test in may07, which she tested positive for lupus, she has been crying since the doctor told her, i can’t really comfort her because i don’t know what it is. My daughter is 17 yrs. old and thereis no family history of this disease. i need help

    1. dwhelper

      I am so sorry you both are so distressed. Lupus is, at this time, not curable. It is, however, not a death sentence.

      There is much info on the web about this malady. I suggest you start with Wikopedia.

      There are support groups – almost everywhere.

      Lupus can be managed/controlled.

      Think positively! There are some theories and even evidence to indicate that these autoimmune diseases are affected by attitude.

      My prayers are for you both.

  3. Princess2008

    I’m Lost, Frustrated And Really Don’t Know What To Do??? Please HELP!!!!?
    My mom passed away about 4 years ago, my dad has remarried since (about 4 months after my mom passed away). Since she passed away my dad has felt that my moms way of raising kids wasnt’ the best and decided to change it and start raising them the way he thinks is the right way. My dad believes he doesn’t do anything wrong and that it is all his kids fault. He is very overbearing and when we were younger he was on the road making money for our family to survive, so we all weren’t that close with our father. He what some would call guilts people into what he wants them to do. Like our first born child he says oh i never get to see him he won’t remember who i am…yet he is fully capable of taking him whenever he like and i have taken him to his house lots. My brother(18) didn’t like our step mother and had a fight with her so my dad kicked him out, i talked to him and offered to let him stay with us if he wanted to. When i didn’t openly tell him my brother was living with us he staked out our house and when we got home he said i’m nothing but a liar and a bad daughter and to have nothing to do with him anymore. We worked things out awhile later and were talking again, and at our sons birthday party they both ended up coming and that started them on their way to talking things out and now they are apparently the best of friends, he got his own place at the beginning of this year. My youngest sister (16) ran away when she turned 16 and decided to go live with someone that isn’t the best person to be living with. my dad believes that if he has a problem with someone in our family everyone else should have a problem with that person cause thats how a close net family works. (i don’t really agree with that) She is pregnant and I later found out that her bf was abusing her (mentally,physically, emotionally) the only reason he hadn’t hit her in the last 8 weeks is cause she is pregnant. I am not the kind of person to stand by and let someone especially my sister be abused so i called the cops and got her out of there and she is now living with me. She still needs lots of help as she feels that the baby is going to change her babies dad and that he won’t be the way he is now. My dad felt I wasn’t calling enough or going over enoug. I just stopped working not long ago as I am pregnant and it isn’t safe for me to work anymore but when i was working i was working the odd shift and by the time i got home i was way too tired to do anything and just went to bed. I also don’t think its worth calling someone if you really have nothing to say however my dad feels i should call him everyday. So I went to his house the other day just to visit and i told him openly that my sister was living with us, he didn’t really say much except that he kinda regrets having kids as they are a disappointment and he can’t even enjoy having kids, that we keep hurting him and that we are pushing him out of our lives. I told him my sister getting pregnant is nothing compared to what my other sister (18) is doing like drugs, drinking, meeting random people and sleeping with whoever, whenever she wants. His response to that was let her do you even know what she is going through? He said she has a life threatening disease (lupus), her family doesn’t really have anything to do with her hardly, she has a hard time keeping a friend. So if she wants to go do drugs, or meet random people or do whatever let her cause she is going through alot. I am so lost on what to do, I really want to tell my family off as I do have 2 kids and I believe they should know their grandparents but on the other hand its getting ridiculous and I really don’t want to play this childish game anymore. I want to move away from here as ever since we moved here when we were younger its been nothing but hassle and drama. I want a change however my parents family also lives here and my husband doesn’t really want to move away. Can anyone please help me I am really lost and don’t know what to do anymore!!!

  4. CeeCee

    I don’t know how to handle my health and my family’s reaction to it.?
    I am seriously ill with Lupus and it is causing liver and kidney failure along with joint damage and if anyone understands Lupus then they would know that it is not a fun disease to have. I am in the hospital several times a year and take a lot of medication but I am not depressed over being sick and basically I live as if I don’t have the disease. My problem is that with Lupus one doesn’t appear to be “sick” like maybe a person with cancer does so my family seem to forget that I have many days that I really don’t feel well and treat me as if I am just a kid trying to get out of going to school by faking being sick. Some days I can’t move very easily and some days I am so tired but no one seems to remember that I am ill and I hate to keep reminding them because I am not wanting their pity–just their understanding. My husband says that it is hard to believe that I am so sick because I basically look healthy and I almost feel guilty that I don’t look worse then I do but the fact is that this disease is killing me and I need my family to understand that I am not able to function and do all the things expected out of me by them because I really am sick. It is as if no one will talk about it and I feel like I am fighting this battle alone. If anyone understands what I am trying to say, please tell me what to do because it is really making me feel that I am letting them down by being sick. We are raising grandchildren that are young and my husband’s business envolves a lot of shovel work and when I am not up to helping very much with either, I get treated as if I did something wrong rather then recognizing that it may be a bad day for me. It really hurts my feelings..
    I don’t need someone trying to sell me on products, I need someone to honestly want to help me deal with my family and my illness.

  5. mecia-jade

    Can you still live abroad with Lupus?
    A friend of mine has the illness Lupus, I dont know if many people have heard of it, but basically she is on tablets to help her immune system to stop her from being ill as she is more prone to it, she’s on malaria tablets which basically means when you go in the sun you “photosynthesize” more so and react more to the sun, i.e. Burn quicker. We both would love to live abroad as we dont have any family here and we love the sun. The Sun does make the disease react apparantly, but we know noone with the same illness to talk to about it. It’s just unfair that she wouldnt be able to have her dream and I just wanted to know if anyone else has it and is OK in the sun??

    1. TINY

      I am a 52 year old woman with Lupus and I have just returned home from a 10 day vacation in sunny Florida. Did I enjoy the sun while I was down there? Absolutely ! I may have Lupus, but I am not dead!! I do apply sunscreen and am careful not to overdo. I would think that the malaria medicine you refer to is Plaquenil, or a generic of it. It is the only medication show to actually slow the process of Lupus, but is not a cure. There is no cure, but that is not any reason for someone with Lupus not to be able to enjoy life. I, too, take Plaquenil. I also take Prednisone to control the swelling and Opana for pain as well as Lyrica which has helped with the pain and sleeping problems and Cymbalta which is an anti-depressant. After years of trying to deal with pain and doctor’s who treated me like a drug addict, I finally found a doctor who listened to me and recognized the symptoms. He sent me to a doctor who ran all the tests which finally diagnosed me with Lupus. Since then, I have come to the conclusion that I could not keep trying to beat this disease by myself and without medications. I am now living each day like the next person. I know I have limitations, but I’m not dead and neither is your friend. She will need to make sure she has proper doctor treatment if she decides to live abroad, but her physician her in the states should be able to help with that, too. Your friend does not need to act like she is dead just because she has Lupus. She can enjoy life just like the next person. She may have to take precautions, but shouldn’t everyone be careful when dealing with time spent in the sun? I know you love your friend, but don’t put extra limitations on her. As the disease progresses, she will come to know her own limitations, but hopefully she won’t give up. Each day is a day the Lord gives us to enjoy and there is no reason why she should not enjoy the day. Medical break throughs happen every day. Don’t give up hope for your friend. It wasn’t that long ago when doctor’s discovered that Plaquenil slowed the progression of Lupus. Who knows, maybe tomorrow will be the day the cure is found. Until then, enjoy all the wonderful things in life!

  6. Ella Rachelle

    15 Years Old Sedrate?
    I’m not sure if I spelt it right, but I have blood screening or w/e for Sedrate levels, and they are continualy increasing, they are not yet in the 100’s but they are above normal.

    I have had upper abdominal pain after eating for a year, but more noticeably I have recently been having SEVERE SEVERE pain in my hands, shoulders, neck, hips, thighs, legs, and knees, sometimes feet…What could this mean since Sedrate indicated inflammatory diseases…

    Auto-immune disorders run in the family, Lupus, Arthritis, and fibromyalgia…

    My doctor is referring me to a rheumotologist, but what do you think this could be since I am so young…also my lymph nodes are enlarged.

    I eat healty, don’t drink or smoke, and I am at good weight.
    I’m also not sick, haven’t been fighting any communicable or infections that are known (been tested for infections)

    1. pobrecita

      I was going to suggest the diseases you listed plus possibly Lyme Disease and MS. Go to the rheumotologist and get a full blood work up. I would have them repeat the blood work two or three times too and seek a 2nd and 3rd opinion. These disorders you listed and the ones I listed have similar symptoms and the tests are not clearcut. I had a friend who was diagnosed and treated for Lupus and Lyme Disease for years before they figured out it was MS. I know you are young. My friend was only 18 at the time. Good luck to you.

  7. ★☆W.a.b.b.y✿❀

    How do you deal with my family while I’m sick?
    I’m 21 years old, I moved out of home to a different city to study and now I’m almost (3 weeks) finished my bachelor’s degree. In the past 7 months my health has deteriorated (although it wasn’t good before that). And so I’m having to move back home with my family.

    My GP doesn’t say a lot, but I’ve been referred to a Rheumatologist and an Ophthalmologist. I definitely have arthritis in my knees and fingers, but she doesn’t know which specific type of arthritis (at the moment it’s a toss up between Mixed Connective Tissue Disease, Rheumatoid Arthritis, Sjogren’s Disease or Lupus).

    My Mum stresses. She cares a lot, but she gets very upset and worries a lot. She’s stressed out enough at the moment, but when I return I feel it might get worse. The rest of my family don’t really appear interested in my health or interested in hearing about it. They think if they don’t know, it’s not happening.

    This of course stresses me out. I’ve remained relatively calm, but I just feel uneasy about it. I feel that I have to hide how I’m feeling. They never ask how I’m feeling and they just assume I’m ok.

    The worst part is I have two doctors and a pharmacist in my family!

    How do I deal with this, on top of being sick? I need their support and understanding.

  8. tatersma1

    Autoimmune diseases….please answer?
    I was recently diagnosed with Hashimotos Disease (disease of the Thyroid) which is an autoimmune disease. I also have Irritable Bowel Syndrome (also autoimmune). My family has a history of Rheumatoid Arthritis and lupus, both are autoimmune diseases as well. I am wondering if I already have two autoimmune diseases does that mean that I am likely to be diagnosed with others, especially since my family has a history of others as well. Just curious. I meet with a specialist for the Hashimotos in February. Basically I know I have to take thyroid medicine the rest of my life. Not fun, but not as bad as it could be. Any input would be great. Thanks in advance to everybody.

  9. euqor♥

    sister was diagnosed with lupus?
    hi. my sister was recently diagnosed with lupus and i just wanted to know as much as i can about it. ive tried to read up as much as i can about it as soon i found out but i guess i wanted to hear from people who have experienced family members diagnosed with the disease or who have it themselves. i want to be able to be there for her and support her in any way possible.

    thanks.
    i guess thanks for responding at least “f” but somehow it wasnt very helpful. youre welcome for your 2 pts

  10. Ella Rachelle

    Could I have Lupus?
    have many symptoms of Systemic Lupus, and AutoImmune diseases run in the female side of my family…for instance; my Mother had Fibromyalgia, my Grand Mother has Arthritis, and my Great Grandmother had Lupus (she died), and that is as far back as I can trace…I will not go into my symptoms right now, but I will say I have just about every symptom and sign, beginning almost 2 years ago (I am now 15). I orginially though I had arthritis and a gastrointestinal disease, so I have been seeing a gastrointestinal doctor who has put me through many tests, and nothing shows except some inflamation, and swollen glands/lymph nodes…she is referring me to a rheumatologist (I know I should have seen one in the first place).

    How common would it be for me to have Lupus if AutoImmune diseases run in the family, and my Great Grandmother had Lupus, and I have 75%+ symptoms and signs?

    My Sedimentation Rate (Sed-Rate) has been continuosly increasing, and I do not have food allergies.
    I have my thyroid checked out on a regular basis, because everyone in my family, and relatives has Hypo/Hyper-Thyroidism and even Hoshimoto’s except me and my Dad…I do not have thyroid problems that are known, thank you for your advice 🙂

    1. Cherokee Billie

      It’s very possible for you to have this, especially with your symptoms . Genetics play a big role in what diseases we get. With your Sed Rate increasing you have quite a battle going on with inflammation. It’s possible that you have Fibromyalgia as well.

      I’ve written an article on Fibromyalgia, which can help you learn more about how to take care of yourself. The methods in it are equal to what you would do with lupus.

  11. ceebs

    ANA Positive… Should I try to get pregnant?
    Hello,

    I’m new to this board but come here seeking advice and support because I’m scared. I found out yesterday I am ANA positive (1:80 titer) with no symptoms. My mom has advanced lupus, and family history of autoimmune.

    We were trying for our second child (after two early miscarriages) when I found out I am ANA positive with speckled pattern.

    Do you think there’s a risk of triggering full-blown lupus with a second child? Does the stress on your body during pregnancy make a predisposition trigger disease? I’d really love insight… I’m at a crossroads, and want to make sure I don’t jeopardize my health or my family in the future.

    Thank you for any insight!

    Ceebs

    1. mgunnycappo

      I would check to see if you have Antiphospholipid Syndrome or APS that often accompanies lupus. APS is the main reason for miscarriage in Lupus. Since you’ve already have a miscarriage and you have a positive ANA (although 1:80 is a very low positive), and you have a family history I would definitely get checked for APS. They should also run a complete Lupus panel on you including Anti-SM, Anti-Ro, Anti-DS-DNA. If you test positive for any of these it is extremely likely that you have Lupus. If you do not test positive you could still have Lupus.

      Pregnancy can bring on Lupus symptoms due to the hormonal changes, stress on the body and the baby itself. In some women there are reports that pregnancy sometimes quiets a Lupus flare but the former is much more prevailant.

      I would discuss all of this first with a rheumatologist then with a high risk OB/GYN.

      Good luck to you.

  12. Allison

    Does anyone know of any amazing family doctors in Vancouver, B.C. who are currently accepting new patients?
    Hello, I was wondering if anyone knows of any really good doctors in or around the Vancouver, British Columbia area who are really good? I’ve seen a lot of doctors regarding my condition and none have really been able to help me with a clear diagnosis. Some doctors have diagnosed me with fibromyalgia, while others have diagnosed me with an autoimmune disease or with lupus. Most have just prescribed me with antidepressants and the pain in my muscles and joints have not gone away and I still get really bad migraine headaches as well, and I still get sleep disturbances. I’ve seen some reviews for the really good doctors but they’re all not accepting new patients anymore.

    1. ♂kuriosone

      I invite you to know my effort to send you my answer.
      I know that if it seems impossible, but your question is one of the few that leaves me speechless …
      Wow!
      Do you think it is serious, for a scientist?

  13. momzpeachy

    What if I have Lupus?
    I have posted a few questions lately. I’m just really scared. I’m a real mess. I feel sick, have chronic pain and just ache all over. Ihave been having trouble going to the bathroom now and I just feel so swollen everywhere. I feel like the goodyear blimp! But yet in a lot of pain! I want this to stop! I’m afraid the Doctor’s have really screwed up and made things worse for me. A year ago I started having problems with pain, fatigue and headaches but all they wanted to do was prescribe migraine medicine. Now I’m so much worse and went through several course of treatments with nothing working. I am worried that I may have lupus and/or rheumatoid arthritis. Both run in my family. My cervical spine is falling a part and believed to be a cause for my neck and arm pain. I have all the signs of degenerative disc disease. Here’s the rest…my hair falls out every day…barely growing any more..I have a rash (it comes and goes) on my cheeks. It kinda looks like wind burn.Uh oh

    1. Dr. Joe?

      I’m sure your aware that your symptoms share more than a passing resemblence to lupus. The rash on the face, often caled butterfly rash is a symptom of lupus; as is the hair loss. Of course other auto-immune disorders can cause such symptoms. Lyme disease shares many similiar symptoms with lupus.

      But since you have a family history of lupus, it seems the logical assumption.

      I think you already know that this is quite likely.

  14. s.g.

    Q for those knowledgeable about the body, esp. kidneys. proteinuria question?
    Two years ago I went to my primary care physician for a routine annual physical. My lab work came back abnormal. I was spilling very high amounts of protein and creatine. More tests followed and the same result was shown. I was sent to a Nephrologist.

    She was sure that I had some form of kidney disease. I was checked for the big diseases like lupus, cancers, etc. None. I held off on my kidney biopsy for several months; during that time I had frequent trips to the hospital for more blood and urine samples, all of which turned out very very high.
    I finally had a kidney biopsy. The results turned back negative for everything. She said my kidney tissue was very normal. She herself was shocked, and even had my test results ran through extra times and by different specialists, including those at the Mayo Clinic. Normal.
    However, the fact still remains to this day that I am spilling excessive amounts of protein in my urine.
    This is not normal.

    I never heard from my kidney specialist again. I was never diagnosed with anything, nor put on medicine, nor told to see anyone for checks on the matter or follow ups.

    The last time I saw my kidney specialist- when she told me I was fine she said “Well you probably had some IGA (nephropathy) brewing but stopped it by taking fish oil.” wtf???

    My questions for you are:
    -should i be worried or do something about this?
    – am i okay just because my doctor sent me on my way or was she negligent?
    -can this proteinuria cause problems in the future or develop into a disease eventually?
    – would having proteinuria itself affect daily life? because i’m always tired and i wonder if this has anything to do with it
    -any other helpful comments

    to perhaps help you answer my question better; a little health info about me:

    -5’6″. 120lbs.
    -17 at time this occured. currently 18
    -female
    -no drug use, do smoke cigarettes
    -no health history except for asthma and iron deficient anemia
    -family history includes heart disease, diabetes, high cholesterol, one case of teen leukemia, survived. other than that no other cancer, no kidney or strange diseases, no obesity.

  15. tscherma86

    autoimmune thyroid disease, fibromyalgia & polycystic ovarian syndrome…is there a connection?
    when i was 15 i was told i had PCOS because i had very irregular periods. ultrasounds were done and it was confirmed. i got pregnant, without treatment, and delivered in 06 with my son and 07 with my daughter. nothing eventful happened for a couple years and then in july of 09, my younger sister lost her 3 year battle with leukemia. when i was getting a haircut for her funeral, my hairstylist (who i have been going to since i was born) said that my hair was really thinning and i should get my thyroid checked. it wasn’t on the top of my list at that point. i started medical school in sept of 09 and was having really bad knee and joint problems. i went to a rheumatologist and she diagnosed me with fibromyalgia. she wanted to do some more blood work because there is a history of lupus in the family. i just got a call from her yesterday and she left a voicemail saying i do have an autoimmune thyroid disease (she didn’t say which one on the voicemail) i have an appointment with her monday, but i was just wondering if there could be a connection between the PCOS, fibromyalgia and autoimmune thyroid disease because i know they all are hormonal problems. anyone know??

    1. Soggycereal

      My gosh. Yes, I think you are right – I have all three too. But my thyroid disease turned into cancer. I lost my fertility at 35 due to hysterectomy for horrible cystic ovaries and endometriosis. I am on pain medication all the time for fibromyalgia. I don’t know the answer to why these are connected, but I think you are right. I think there is some hormone/immune systerm connection though.
      My endo did start me on metformin 2 months ago, and I do think it has helped me feel a little better. I definitely think you are on to something. I think you should become an endocrinologist/rheumatologist, there is alot of help needed in that field I think!

  16. ~Krissy~

    from some of ur symptoms it sound like asthma. i have asthma and usually having a hard time beathing during physical activities is a symptom and the wheezing too. maybe ask your parents to take u to the doctors to see whats wrong. if it is asthma they will give u and inhaler and that will help a lot when u get an asthma attack. i looked it up for u and ur symptoms seem to match so check it out!

  17. MMM

    Hi Lady! Did I ever suggest to you that you contact Oprah? Make sure you have a video camera and document the event…all events. Keep a running diary. Get sound bites. Send press releases out to every TV, Radio and Print outlet within a 100 mile radius. Make posters and put them on every bulletin board you can. Don’t forget, I already volunteered my studio to you! Best of luck as always.

  18. ADAM

    I Want To Go To This College BUT MY FAMILY DOES NOT WANT ME TO GO THERE!! DRAMA.?
    I want to go to a Wilmington University in Delaware. Most of my family lives in Baltimore,Maryland. Which is about 2 hours away. I live in Northern Maryland. So its about 45 minutes away.

    My mom has a diseases called Lupus. Im sure you know what it is. So my family wants her to get some help. At John Hopkins.

    She told me I should be able to go where I want to go. But my family does not want us to stay up here. There constantly on my mother about moving.

    I have my schedule and everything ready to go. But I do want to go to school in Baltimore. They will not accept no for a answer.

    They keep getting on my mom everyday all day. She told me I can go to Baltimore for help every weekend just go to the school you want. But I dont want my extended family including grandparents to ride her about me going there and her making the wrong decision.

    My uncle and aunt on my grandfathers side live in Delaware so I can move with them. But they will be on my mom about that.

    What should I do because im very stressed out.

    1. Lauren

      Why does your family interfere with your life ? You depend economically on them ? Then, become independent: that’s the only solution.

      Now, if you are economically independent and they are STILL bullying your mom, then she has to have some self respect and dignity and cut ties with them. She might even recover when she gets rid of such toxic people.

      Unfortunately, the most probably, is that she will never be able to get rid of them. She is pretty old and she probably does not have the fortitude and strength to remove herself from this toxic relationship, but you’ll have to find the strenght to do it if you don’t want to be bullied all your life, which will probably push you into self destructive habits.

      You have to overcome their control and the fear of loneliness. You will probably have to distance yourself from your mom too, if she chooses to remain under their control. That will be the most difficult.

  19. Malisha

    Can my 27 year old daughter get a kidney from someone, after being 10 years on dialysis?
    Her name is Emi, she is American from DC. She has been on a transplant list for 4 years, but in vain. Where shall we turn for life saving help. Her blood type is A+ and her underlying disease is Lupus. She has been a TV and printed media advocate for ethical virtues, family values, healthy nutrition (her studies). She is willing to donate acres of land in Europe, inherited from he grandfather, for this life saving organ. Without function in both kidneys, with 3 times a week, four hrs at time, chained to the machine for 10 best years of her youth, deprived her of knowing what happiness and freedom is. Is there someone out there to want to contact us for a life-saving gift of the most precious that God has given to us: healthy living, upon which all prosperity on earth depends?!

  20. Jana

    lupus, kidney disease, anemia, diabetes?
    I recently had bloodwork done as well as a urine sample.
    I gained about 25 pounds last year in a short period of time.
    I have been very tired as well, for most of the year.
    I took depoprvera and ended up having bloodclots for 6 months (not very fun if that was my first six months of marriage)
    And have been miserable since….

    My mother has lupus, but in our family it seems to skip generations.

    things that were ‘out of range’ were:

    platelet count: 431 (when it should be between 150-400.)
    urine: cloudy.
    urine protein: >0.15 (when it should be <0.15.)
    urine keytones: >1.5 (when it should be <1.5)
    ferritin: 14 (normal range is 15-180)

    Anyone know anything about any of this?

    Please let me know, thanks so much!
    I am going to add symptoms like: night sweats, always itchy, want to pass out after lunch, go pee in the middle of the night, veeeeery tired all the time, no energy, always hungry but nothing appeals, blood clotty periods, cold feet.

    Might I also add that I have been on anti-depressants (zoloft) for about two years, (I have very unstable emotions).

    5'0
    130lbs
    20.5yrs

    Scottish, English, Irish, Norweigian, Hawaiian, Indian (like canadian aboriginal), Italian and Flemmish.
    Also, I might add I was diagnosed with anemia in grade 2. My mother said when I was 11, when I got my first period, she took me in for a blood test, and they said I was anemic then too.

    And also, when I was 16, I had a kidneystone. I never found out why, or what kind it was though...

    1. RetroBlader

      The normal range for platelet counts differs from lab to lab, and many labs use 150-450. Moreover, slightly high platelets are of no consequence. So, no need to worry about your platelets.

      Ferritin that low usually indicates low iron levels in the body, which can lead to iron-deficiency anemia. (Was your hemoglobin normal?) Due to menstrual blood loss, young women are particularly likely to have low iron levels. You can increase your iron levels by taking supplements/vitamins, or naturally through high-iron foods.

      Cloudy urine can mean many different things — one of which is small amounts of blood in the urine, which is a sign of kidney disease. Does your test report say whether your urine was positive or negative for blood?

      High urine protein is also a sign of kidney disease, but can go up temporarily after rigorous exercise or during a bladder infection. You should have your urine test repeated to make sure the urine protein returns to normal.

      Having ketones in the urine is also abnormal. While it can occasionally happen during starvation (if you fasted for a long time), it can also be a sign of diabetes mellitus (“sugar diabetes”). What does your test report say about sugar in the urine? More importantly, what was your blood sugar?

      With your recent weight gain, urine protein and urine ketones, you should definitely be screened for diabetes. If your recent blood tests didn’t include fasting blood sugars (glucose), ask your doctor to have that done.

      Finally, lupus can be extremely hard to diagnose, especially in the early stages. None of the tests you gave above is a good test for lupus (although having a low ferritin and normal/high platelets make active lupus less likely), so if you are really worried, talk to your doctor to have a blood test called ANA (anti-nuclear antibodies) done.

      Good luck!

  21. P S

    Have a relative that might have cancer need to know why tests being done?
    Ok ive got a relative 48 years of age female.

    Has very low iron levels – gets puffy easily has recently seen doctor who has ordered the following tests – feels very fatigued, probable anemia

    Full blood count, FGY test, CEA test. A CT scan, colonscopy and endoscopy. Family history of chrons disease, also lupus.

    Doctor isnt saying what could be the problem ( anything from ulcer to pollop – GP suggested that it was unlikley to be cancer) though said testing was urgent, suggested could be a GI bleed. Otherwise healthy, no blood in stool, no lumps around abdomen area but has had some minor stomach pain.

    Celiac disease is one of the blood tests indicators thats being looked at, what is the chance or thoughts on what could be im a bit worried thinking it could be colon or stomach cancer, could be something as simple as malabsortion , in the last 4 months has had glandular fevor anyone with any thoughts ?
    I should add my relative asked the doctor what the likelihood of cancer was and was told doctor would be surprised if it was cancer. Indicating that it probably was an outside chance – tests are happening next week anyway – so doctor is being level and tests being done

    From what ive read if it was more cancer concern feacel stool testing would have been done plus an MRI which at the moment hasnt been ordered. So could the be looking for something else and if something else what could that be
    In reply to the third contributor ( thankyou for the additional information) based on the information i have ( i dont think a stool sample was asked for) other elements of the blood test are testing for chrons disease and a marker for celiaic.

    If it isnt cancer what other problems would fit the general medical area that the doctor might be looking for ( ie what could be the possible disorders or other medical problems they would be lookign for) if its cancer my relative is well prepared for treatment and so forth. It would be hopefully caught in early stages) but what other conditions of a less serious nature be likley to be what dr might be looking for

    1. Denisedds

      The doctor isn’t saying, because he or she doesn’t really know what the problem is, they are not hiding anything. Your relative’s symptoms are too vague to narrow down to 2 or 3 possibilities at this point.

      You said there is no blood in her stool, but I’m not sure if the doctor actually checked her stool or if you relative hasn’t seen any blood in her stool. Often times there is blood there that cannot be seen.

      The blood test is to see if she is anemic which would indicate a GI bleed. The CEA is a tumor marker for GI cancers. The CT will probably be of her abdomen and pelvis looking for any abnormality. The colonoscopy and endoscopy will enable the doctor to see the health and any abnormalities of her lower and upper GI tract.

      These are all good, normal and appropriate tests for the symptoms your relative is presenting with. Right now they are not looking for something specific, like cancer, they are looking at everything to find the problem.

      I know when you love someone you want answers now, but it doesn’t work that way. Sometimes doctors are a little slower into all of the possibilities in someone her age. The fact that the doctor has ordered all of these tests tells me she is in very good hands. I would be comfortable with this course if she were my own relative. Best of luck to you both.

  22. Nat

    Lupus.. what is it?
    I just got back from the clinic and am a slight bit worried now.
    I went in for back pains, during this he asked if I had other problems so I mentionned my reynolds. He then asked me if there’s history in my family with clots (my grandma does), if I’ve had kidney disease, I’ve had kidney infections (disease I wouldn’t know?), if I’ve had unexplained rashes.. well right there I had a rash on my neck, I had no idea, he’s the one who saw it. He asked if I had a history of psychiatric problems.. I have had severe depression along with some great insomnia in the past. He asked other things that I can’t remember anymore.. the only thing that didn’t fit, which was mainly why I came in, was if my lungs were inflamed.. What was wrong was my muscle behind the shoulder blade was inflamed hurting when I would breathe.
    Ok so, now that he’s gone through all that and only 1 out of all symptoms he’s asked don’t fit… what??
    I don’t really know what lupus is safe for what I’ve just googled..
    Rusty:
    I know he can’t diagnose based on history alone. He asked me a series of questions that made him think it’s possible. Although, it didn’t go much farther then his questions. Now what I wanted to know was the symptoms/how to get diagnosed. Basically, where would I go for help on this. I don’t have my own doc so I’m kind of on my own.
    It had me concerned as many of the symptoms of lupus are similar to things that are happening with me. It’s not to say I have it and don’t wish to, I’m wanting to get informed.

    1. screamingfreedom

      I really do not understand from your question where lupus came into the discussion. Lupus is not diagnosed buy a doctor going over your medical history alone. Some of the things you mention can be seen in lupus patients.

      The American Rheumatism Association developed a list of symptoms used to diagnose Lupus. Research supports the idea that people who have at least four of the eleven criteria (not necessarily simultaneously) are extremely likely to have Lupus. The criteria are:

      * Butterfly rash
      * Discoid rash
      * Photosensitivity
      * Mouth ulcers
      * Arthritis
      * Inflammation of the lining of the lungs or the lining around the heart
      * Kidney damage, as noted by the presence of protein or other abnormal substances called casts in the urine
      * Seizures or psychosis
      * The presence of certain types of anemia and low counts of particular white blood cells
      * The presence of certain immune cells, anti-DNA antibodies, or a falsely positive test for syphilis
      * The presence of antinuclear antibodies.

      As to your question what is lupus.

      Lupus is an autoimmune disease. This means that a persons immune system is attacking their own body.

      Lupus is one of the more serious autoimmune disease. It can be mild with few symptoms or it can attack almost every system in the body.

      Lupus manifests as a chronic inflammatory connective tissue disease marked by skin rashes, joint pain and swelling, inflammation of the kidneys, inflammation of the fibrous tissue surrounding the heart (i.e., the pericardium), as well as other problems. Not all affected individuals display all of these problems.

      Rusty

  23. Gabe

    Please help me, getting depressed, i want to be in the Military so bad, but would have to lie my way in?
    I’ve been diagnosed with Acid reflux disease. Doctors believe i may have lupus, or heart problems. I am diagnosed with major depressive disorder w/ psychosis in the past, bipolar 1 with psychosis, anxiety depersonalization

    I really want to be in the Military. I want to be honored and remembered for something good, not my failures like my diagnoses’ and disease. I want my family and friends to be proud of me, not looking down on me for having all this wrong with me.

    Its just one of my biggest dreams. I have the chance to lie and get in in less than 2 weeks. But i dont want my symptoms to come in boot camp. im torn. idk what to do. please help me.

    i’ve been once to enlist in the Marines, and need to go back on a psychological evaluation.
    and to people wondering or who might ask, I have been diagnosed by doctors and psychiatrists, and have had 2 seperate stays in psychiatric facilities.

    1. sasha

      Your family loves you, you are special and do not need to do something dangerous to prove that you are worthy..This is risking your health, and I would not advise it..

  24. Jenna B

    LITTLE SISTER DIED… JUST 14… OF LUPUS!!!?
    My little sister died of Lupus on sunday and her funeral is tomorrow… i dont know what to do with myself. Her last words to me were, “My suffering is ending, please do not cry for me! I love you!” All i seem to be thinking about are those words, her weak selfless face and concerns, and the suffering she was going through. In her last month all she did was worry about me and my family and what it will be like for us when she passed, she never felt sorry for herself or anything nothing was ever about her. I loved and still love her so so so so much!!! I want to remember the good times but it is hard. As long as i can remember this disease has put a ristriction on her life and now it has taken it! does anyone know how painful it was for her?!? I dont know what to do with myself and my whole family is a wreck! and i dont know what to do i mean why her none of us have this disease no one we know. Why her she was the smartest most talented selfless person i have ever met and now she is gone! Do any of you have the disease how hard is it for you?!?
    my sister was diagnosed at the age of 8 which is rarre for the disease so they told her then that it was going to be a fight for her life

    1. agcgartner

      No, I don’t have it but my daughter had what seemed to be some of the characteristics. She had her her 4 wisdom teeth pulled June ’04. Which led to her developing an infection, that spread to her sinesis (that gave her constant head/eye aches) Jul ’04. She was tired most of the time. Then she developed a cyst of infection in her lung Nov ’04. They operated and removed it. She was improving. She caught a nosomial germ. This triggered a relaspe. So the disease which affects 60 in a mill, first infects your sinesis, then shuts down the kidneys (she was constantly hooked up to the dialysis machine) then it attacks the liver and lungs. It basically was a disease where the body attacks it’s own self. ‘Wegen krankheit’ is the German name.
      Pain, yea lots. She was on pain killers, cortizone. Then medically induced coma so she would not feel so bad. She died Jan ’05. So much for the docs 6 mos treatment and she should be back to normal. There are no guarantees not for her, not for your sister, not for you or me.
      What you should do? Cry, remember and cry somemore. Cry with your family, cry alone. Cry till your tired and cannot cry no more.
      Then slowly you do your regular routine (even if it is in a mechanical fashion) of going through the motions. You take a bath, eat, go to school. Then when you are alone you cry some more. You try to not get “stuck” because people who get “stuck” cannot move on and become “sick”. You have to realize that as hard/hateful death is, it is so much a part of “life.” We all must at one time or another “die.” We just don’t know when, how or where. I tend to think of it mentally as, the person on the sickbed (like your sister) is there and will eventually pass. We who are in the “waiting room” while we can visit her but at the same time are free to keep ourselves occupied by reading books, watching t.v. knitting. I associated this with life by thinking either it is me in the bed waiting to die or I am in the “waiting room” waiting on my turn to be in the bed. So I keep myself occupied in the “waiting room,” while I am free to visit someone who is in the bed and until it is my turn.
      You do not mention if you are a member of a church.
      If you later can take the time and look in your phone book under “churches” and find a :Church of God in Christ.”
      See the pastor and find out from him what type of bereavment groups there might be. That way you can talk with others who share your pain through losses of their own.
      The way you are feeling, there is nothing wrong with you. It is normal to feel hurt, pain (because of the loss) and bewilderment at why this has happened. Your sister was concerned for you because she knew she would one day pass and you would react like you are doing now.
      She knew she was going to a far better place (like my daughter got her stuff in order before she went to the hospital) because God puts in each of us a 6th sense to know when “it is finished.” She knew.
      So now the pain you feel althought totally different from her;s is pain nonetheless. She bore hers, you must now be strong and bear yours.
      Time will heal if you do not remain stuck. So grieve.

  25. mudawryyy1

    very serious family/moral issue i need help. please read!?
    good day. i mean that as a greeting, not that it’s a good day. for it’s a horrible day for myself. why you ask? my mother is dying of cancer. shes my last living relative and i’m really afraid of what i’m going to do after shes gone. i’m only 17 and don’t have a job. she doesn’t have much money either, so i nothing ot live off of. at the rate i’m going, i’ll be dropping out of school one year shy of a diploma. no prom for me. no graduation ceremony. no getting to finally be an upperclassman. i’ve never known my father, as i was a product of rape. i hadn’t actually known this until around the time my mother was diagnosed. she broke down and confessed this to me, probably thinking that i had a right to know before she died. it only made things worst though. can YOU imagine being told your mother is going to by dying and leaving you all alone to fend for yourself with no money and then finding out you were never wanted, all on the same day? as you can see, i’ve had quite my share of hardships for such a young age. the reason i mostly feel bad (and the reason i’m psoting this all) is because of a event that took place just tonight. she was discharged from the hospital, since she didn’t have any way to pay the bills for treatment, and didn’t want to leave me with a dept when she died (her own words). when we were finally back at home, possibly the worst thing that could have came on tv, came on. it was an episode of House in which the patient was being treated for the wrong disease. and then House utters the line “it’s not lupus”. this was startling to hear, as it’s exatly what happened to my mother, and what the doctor said. she was diagnosed for lupus rght off the bat, and the treatment for it only made the cancer worse. and the words that amde her cry when the doctor told ehr this were “it’s not lupus”. so there in the living room, my mother broke down crying. she didn’t tell me why, but i knew. it was obvious. i tried to comfort her, but she told me to just go away, and that things would have been easier if i were just never born. and i think i’m starting to agree. if i wasn’t born, she would have had a normal college life, found a nice husband, and be able to pay for cancer treatment or insurance rather than having to support a teenager as a single mom. i lost my temper at that moment though, and slapped her. she slapped back and all of a sudden, i was fighting a dying woman. i got in one little fight and my mom got scared and said your moving with your auntie and uncle in belair. i whistled for a cab and when it came near the license plate said fresh and had a dice in the mirror. if anything i could say that this cab was rare but i thought man forget it yo home to belair. i pulled up to a house about seven or eight and i yelled to the cabbie yo holmes smells ya later. looked at my kingdom i was finally there to sit on my throan as the prince of belair.

  26. need2know

    If you visit a family member in the hospital,with I.T.P disease,can you give them infection?
    I wanted to go and visit with them.They tested negative for lupus and HIV. They have had transfusion and their spleen has to be removed because it is enlarged.
    A family member said it was best to not visit because they are at risk to catch something from visitors! But I can find any information on this!
    I don’t have flu or cold. Thanks for info.

    1. ckm1956

      Call the hospital & ask his/her nurse.

      Patients without a spleen are more susceptible to certain infections, but they are usually vaccinated against them soon after surgery.

  27. princessarah77

    Any idea why my fingers/hands swell during exercise?
    It intensifies as the activity intensifies. I’ve done some internet searches and there do not seem to be a lot of explanations out there. Auto Immune Disease is plentiful in my family..so I worry about Lupus. Any thoughts? Thanks!
    But it just started a couple months ago..and the swelling isn’t always that mild..I can’t make a fist and they hurt for awhile after.

    1. Jillusional

      I have the same thing, and as well in the heat.
      When you’re exercising, your blood is pumping harder as your heart works harder. Not only will you expand because of the heat, your veins will expand a bit more to let all that blood through. Hence the mild swelling externally as well.

  28. Elise

    How accurate is the diagnosis of Lupus from the results of a skin biopsy?
    I developed a rash three weeks ago. It began as one scabbed-over little hole in my thigh. Then it spread all over my stomach, eventually to my arms, and neck. They start as little red hard bumps, then kind of look like a pimple, but you cant pop it, then they become little indents of scabs in my skin for weeks. I have been extermely emotional lately, crying very easily and generally feeling depressed. I have also skipped my a few periods (and Im sure Im not pregnant) The doctor performed a skin biopsy on one of the bumps. He mentioned he was looking for excema, but i don’t know if that has anything to do with the type of skin biopsy or test he ordered. The results came back as lupus, however i don’t have the butterfly rash or joint pain that are symptoms of lupus. My skin rash symptoms are not sun related, since the rash began in areas of my body that never see the sun. I also dont have a family history of lupus. How accurate are the results of a skin biopsy? Could this be lyme disease?

  29. sweet_thang0792

    Rheumatoid Arthritis/Lupus? Whats wrong?
    Hello. I am a 28 year old female and have a few questions and appreciate any response. I have been having numbness in my legs particulary from the back of my knee/leg down thru my toes where it is tingly, numb, and throbbing pain that will last all day off and on. Somtimes, I can be walking and my legs go numb to where i cant move and have to stand still till i can walk again or drag myself to something to lean on. They did a EMG and it came back normal, so then they did bloodwork and said that my Sed Rate was 47 and Rhunmatoid Factor was 10 and i have a appt schedlued for Rhuemotologist. They did a MRi of my back and it shows there is loss of signal in the L4 and L5, T11-T12 and T12-L1, also buldging discs, disc protrusion and multi-level degenerative disc disease. I get sick a lot and was in hospital in april with symptoms of meningitus, but wasnt (I had meningutius 2007 so i know the symptoms) they never knew the cause, i get sick a lot, always feel tired. I have nausea and frequent migraines. Doc asked if anyone in the family has had Lupus. Does these symptoms/diagnoses mean there is something wrong, and if so what? Does it sound like it could be Lopus? Your help is greatly appeciated.

    1. Jo

      Some of your symptoms do sound like they could be lupus or another rheumatological problem. Hopefully, the specialisit can tell you something. Lupus is a disorder that has many different types. Some are nuisances. Others are a big problems. The way I understand it, while there might be some hereditary tendancy towards lupus, it isn’t one of those things that you will necessarily have a family history for.

      There is a possibility that you could have a neurological problem that they haven’t discovered yet. Normal EMGs can come back on some people who have neurological problems. In addition, neurological problems are some of the most difficult problems to diagnose.

      Unfortunately, you are in the age group where lupus is more likely to occur. On the other hand, your varied symptoms might suggest that you have more than one condition causing your problems. This could make it difficult diagnose.

      Your rheumatologist will have more answers for you than anyone here. See what he has to say. Ask him questions. Listen to his answers.

  30. Afhr4

    I am a 32 year old, up until recently, generally healthy female. Took a trip in Feb. to AZ and came back with?
    a cough.Then had some teeth pulled. They put me on amoxicilian,a steroid and pain killers. Then everything started falling a part. By day 3 on the meds I began to have swelling in my whole body. Day 4, I was like a round ball.Gained almost 20 pounds in water weight.So swollen the skin under my feet were cracking and bleeding.I began having extreme pain in the right side of my jaw.Went to the E.R,after calling the dentist he said I might be having an allergic reaction to meds. Never had a problem with penicillin before. The hospital kept me for 3 days. I.V. antibiotics and steroids.Tested my blood for everything from Lyme disease to Lupus to rheumatoid arthritis. They said I was now allergic to penicilan.All blood work came back normal. Extremely high white count though. Said I had some sort of infection.They sent me home with a months worth of Doxycyline and more pain meds. Went to reg. doc. they did more blood work came up empty,except for slight anemia,always had that though. Then I began with a weeks worth of prednisone,still on the Doxycyline, pain meds and sleeping pills. Still hadn’t slept through the night for about two weeks. Now begining to get extreme fatigue,then developed night sweats and chills and more swelling and alot of pain. Went back to the doc for more blood work,still all normal. Then developed a painful red bumpy rash ONLY on chest and started coughing up blood.Not alot just dime sized every couple of days. Then getting dizzy and seeing white blurry spots sometimes. They sent me to the specilist,he came up with Valley Fever. Went for that blood work and cultures and also diabetic blood work. Now 2 weeks later the cultures haven’t grown anything, all the blood work has come back normal and have had 2 more trips to the E.R, with all those symptoms and having chest pains,numbness and tingles in my left side of body only. Also having moments of forgetfullness. Everytime I have been to the E.R they did chest x-rays and blood work all kept telling me it was normal. Now on my last visit to the E.R they said I have pnuemonia.Last two chest x-rays were three days part. The first one they said was clear. They are sending me to a Pullminary doctor. Except for having mono in high school and a severe case of pnuemonia 2 years ago(hospitilized for a week) I have never been sick.I have not had fevers or weight loss. Though my appetite has decreased I am still gaining weight. I am only 5’2″ and almost pushing 190 pounds. NOT normal for me. I am not pregnant,had four children then had my tubes tied. I do smoke but am trying to quit. Down to less a pack a day. Can anyone PLEASE PLEASE give me some ides. The doctors have told me they don’t know what is wrong and only treating the symptoms and not the PROBLEM. I have a family history of Lupus,diabetes,heart disease. It all runs rampant through both my parents sides,,them included.
    Let me clear up any confusion. The first specialist I saw stopped all the steroids. As of right now I am taking only Naproxen for the joint swelling and pain killers. He is the one that thought I had this Valley Fever. But the cultures have come negative. They keep dumping me from Doc. to Doc. because of all my tests comming back negative. No one seems to know what is wrong. They are trying to handle only the sypmtoms and not the underlying problem. One says now I have pneumonia. I am not sure about that though. I had it two years ago and it isn’t anything like that.

    1. Jenn

      Could any of the medication throw off your test results for lupus? I think maybe some of you symptoms are a result of the lack of sleep or allergic reaction to the medications. Which is also throwing the doctors off. Can you think of anything you might have done/eaten that would have put you at risk of getting something while out there. What symptoms do you still have since you’ve been back, why did you have your teeth pulled. I would seek a second opinion, or fourth. I wouldn’t stop any medication unless your doctor tells you otherwise.

  31. Objet_Trouve

    Quitting smoking with a patch, just hit week 3…should I be having asthma and vomiting problems?
    I started at 19, I’m 24. It’s been three weeks with nicoderm cq patch, step 1. I used to smoke 1-2 packs a day, depending on stress level. I was diagnosed as having severe asthma growing up (doctor said I had the lung capacity of someone with emphysema), and it actually went away around the same time as when I started smoking. Now it’s back.

    I’m also vomiting every time I change the patch, but it goes away within a few hours. During that time I get badly susceptible to motion sickness.

    I also have had (since quitting) severe insomnia, severe mood instability (I’m on lithium for bipolar disorder, and on risperdal and cogentin to help me with PTSD, I was doing very well until now), dizziness, nasal drip/sinus congestion and (my favorite) poor blood circulation, only in my arms (the only place I didn’t gain weight when I managed to put on 60 pounds in four months without changing my diet and exercise routine two years ago).

    Also, I’m out of shape and just finished physical therapy (doctors are unable currently to diagnose a problem with severe leg and back pains and rapid weight gain, I’m on vicodin for the pain, it appears to be hormones, and the doctor says I have all the symptoms of an auto immune disease, like lupus, which runs in my family but all my tests have been coming back normal).

    Hooray for me. Have fun kids. Also, I can’t see a doctor again until late July. Public health care just isn’t that effective when it’s on a small scale.

    And no, I haven’t cheated. Not even a drag. I have the will of a tiger when given enough of a reason to give a damn (my fiance and I are marrying in December and he wants kids in the next couple years) and enough hope that it will help me achieve my goals (I’m pretty sure not smoking helps with pregnancy).

    1. the gurl in socks

      Good for you for quitting smoking! Yes- you should decrease the nicoderm dosage. The nausea and vomiting are likely a result of too much nicotine. If you’re already at the lowest level of the patch, substitute with a low-level gum or something. I’ve quit while using the patch before- it’s really not necessary to stay on it as long as the directions indicate.

      As for the other health issues- I wish you luck. They’re tricky ones: even tougher without regular medical supervision.

      Fortunately, you’ve got a strong will. You can kick this. Even if you decide to go cold turkey and take the withdrawl full-speed… it’ll be over after three days. After that- it’ll just be a matter of resisting the temptation to start again.

      Another possibility- once you see a doctor again- see whether Chantix, Welbutrin or Lexapro can help. Dunno how they might interact with the BPD, but worth checking into.

  32. Chris[Curtsy]Fingers

    What is this sharp pain my my chest and shoulder?
    I have a sharp pain over my left lung in the lower left side back, my heart, and goes into my left inside shoulder. It lasted for a few hours, and the pain got pretty intense to the point it was taking my breath away. It got worse when I took a breath, laughed, or coughed. and then I went to sleep and woke up and it hasn’t hurt in about two weeks. I don’t smoke, drink, do any drugs. I havn’t had any injury’s, or had any trauma. But since its went away, I havn’t seen a Dr.

    Lupus and breast cancer runs in my family. So does heart disease. But If I had one of those wouldn’t I still have the symptoms?

    1. cowboydoc

      A sharp pain in the upper left quadrant of the chest radiating around the back, I would really worry about an angina or a heart attack. I think I would want to see a doctor and get an EKG, especially after I had four heart attacks like this.

  33. sm729

    What can I do to get rid of numb hands/arms?
    For about 2 weeks now, the pinkie and ring finger on both hands and a bit of my hands/arms have been numb. I’ve been to the ER but they told me there was nothing they could do. I’m really fusterated not knowing what is up, so I thought i’d ask yahoo answers to get some ideas.

    I think its worth mentioning that I have t1 Diabetes, but I hear Neuropathy starts strictly in the feet first, but my feet are completely fine.

    The ER doc said it probably was not carpal tunnel (even though I use the computer alot) because the numbness was in the wrong part of my hands.

    I should also mention that computer usage does make it worse, I can’t feel hot or cold very well, it tingles just like your legs do if you’ve been sitting down cross legged and stand up. There is slight pain from time to time and I have never had any pain in my neck (i’ve heard you can have this problem if you have neck pain problems). Thats all I’ve got.

    Any idea?

    one more thing, I have a history of auto immune diseases in my family (especially lupus) if that helps any.

  34. LoveMe!

    If you have LUPUS or know about the disease please read?
    Im a 17 year old African American female, I DO NOT have anemia, I dont have a butterfly rash, I dont have fatigue, but I have this weird feeling in my knees and. Its NOT a pain its like a ache and its off and on. I could probally ignore it if I wasan’t so focused on every time I feel a ache. No one in my family has lupus. Could mild knee aches be the beginning signs of lupus? I dont have any other symptoms.

    1. revolutionary_point

      I have lupus, was diagnosed 5 yrs ago. the symptoms may vary. Sounds more like you may have R.A. Your best bet is to get your blood checked. Your dr can tell by your ANA levels.

  35. JoJo

    I am nauseous every night?
    Tonight is the worst. Sat in front of the toilet for 15minutes waiting and trying to throw up.

    For the past three weeks I have been nauseous only in the evenings. I am on birth control; been on my birth control for almost a year and never had this problem. I took a pregnancy test two weeks ago and it came out negative. It happens either before I eat (which causes me to not eat much) and then most of the time around 8- 10pm.

    The only major diseases in my family is Diabetes and Lupus, those are rare

  36. AspiringAsh

    Odd stomach/bowel symptoms for about a year or two now?
    The symptoms include: rectal bleeding (I’m fairly confident it is caused by an anal fissure), mostly constipation with occasional diarrhea, pain in my lower to mid abdomen, nausea occasionally, weight loss of nearly 20 pounds (5′ 3″, went from 153 or so to 128 in about 8 months), and severe stomach sensitivity to stress/anxiety.

    I know I should probably see a doctor, but I’m afraid that I’m merely going to be told that all the tests are normal and that I’m overreacting to a couple of odd symptoms.

    I tend to also have horrible symptoms for awhile, with alternating periods of feeling wonderful.

    Any doctors that have a clue or guess to what could be bothering me?

    (Health conditions that run in my family: lupus, Crohn’s disease, diabetes)

    Thanks for taking the time to help!

    1. Anonymous

      *(Health conditions that run in my family: lupus, Crohn’s disease, diabetes)*

      Ditto in my family, and I have the SAME symptoms you are having. My doctor says it’s just anxiety over family ills, and that it’s not anything harmful or life threatening.

      You could talk to your doctor anyway and get some blood tests done just to be sure everything is ok. Even the most simplest of symptoms can be early signs of something more serious.

  37. Cynthia

    18 year old with fatigue,weakness,hair loss, and mouth sores.?
    for about 2 and a half weeks now ive been feeling like i have the
    flu. tired, very achy and extremely weak. recently ive also began
    developing alot of hair loss as well as mouth sores. i have never
    had a very good immune system but i am usually quite healthy. i
    am an 18 year old female and i have a family history of many
    cancers, diabetes, as well as heart disease and autoimmune
    disorders. i am very worried about lupus being a possibilty because that is a main disease in my family. any thoughts would be helpful! even websites where i may be able to actually get answers.

  38. Matthew Neifert

    What autoimmune disorder do I have?
    When I was 11, I presented with Autoimmune hemolytic anemia. About 5 years later, I developed ITP (which I self-diagnosed before going to the doctor). Both were extreme cases (Less than 10% HTC, and 2,000 platelet count.) Both were also cured with prednisone, though the latter took a gram or more per dose (It was only a temporary fix at first. Then it just sort of disappeared on its own.) IVIg had no effect at all on my thrombocytopenia.

    The results for SLE testing changed. Certain tests were positive, then later negative, and vise versa. Ultimately it was deemed inconclusive, and considered negative when my symptoms cleared up.

    I know online opinions aren’t a replacement for an actual diagnosis, but I don’t want to waste my time if it’s nothing more than a cured case of Evans Syndrome. I did have a few bouts of anemia between the two events, but they were diagnosed as dietary deficiencies.

    No history of lupus or any rheumatological disease in my family. Drug-free, aside from OTC meds, and occasional amoxiclav for my recurring infections (common ear infections, long-term undiagnosed sinus infection, and occasional URIs.) Post ITP, I’m an occasional marijuana and Excedrin user for my migraines, which have gotten slowly worse since I turned 14.

    The AIHA was spontaneous, but the ITP occurred while I was getting less than two hours of sleep per night, and self-medicating with diphenhydramine to get those few hours. I was extremely depressed for months, and shortly after my depression cleared up, the disease hit. (I was in a really bad relationship, but then I met someone who actually made me happy.)

    I’m 17 now, and I’ve been completely healthy for a year, come this May. It’s a lot of reading, I know. I’m sorry, but information is important, I think. I’m studying to become a doctor, and science has always interested me, so please don’t dumb down your answers. Either, I’ll understand, or I’ll learn something new. 🙂

    Thanks for your time.
    @sunnny: The prednisone wasn’t given until well after the testing was completed, so the tests weren’t influenced by it. The sinus infection seems to have stemmed from my ear infections, which are bacterial. Both were treated well with antibiotics, but keep recurring, even when I take every last pill. My doctors have never much trusted me with information, which disappoints me, because I’d much prefer knowing what’s happening. I had rheumatologists, nephrologists, hematologists, dieticians, oncologists, and peds all working my case, but I left with the original diagnosis I proposed. My primary physician is a pediatrician, because she has yet to direct me to a GP (doesn’t want to lose business, I guess).
    Does that help at all?
    @Linda R: I don’t see why anyone without medical knowledge would click on a question titled “What is my autoimmune disorder?”
    I’m not asking for a diagnosis, only for ideas. I wouldn’t hold an answerer responsible for a misdiagnosis. Especially since I wouldn’t accept any diagnosis before researching it.

  39. davidsilva86

    How Can I Help Someone with lupus?
    Hello i just met a girl over the internet i’ve talking to her for about a month she is a great person,and i can say that i’m falling for her, but just recently after not talking to her because she was in the hospital for about a week she told me she has lupus,it made me angry that someone i thought it was in excellent health could have such disease she is only 24 yrs old. But that doesn’t scare me i actually feel like i want to know her more and help her cope with this disease, she does not have friends or much family that can give her that emotional support.
    and i just want to know how can i help her? and for her not to feel bad and push me away. any books i can read that explains how to approach and deal with someone with lupus?

    please help. i want to make her know that she can have a much better life than what she is projecting her self.

  40. j

    help! lupus and no one believes me.?
    i have just been diagnosed with lupus.my husband,mother and sister do not believe me.my mom says i am a lying piece of shit and she can not stand me.my sister says the only illness i have is mental. my husband says that i am making it all up for attention and that i forced the doctors to give me 21 prescriptions a day and that i like to take all the toxic meds with nasty side effects.most days i am so sick i just cant get out of bed.my husband says i am just being lazy and dont want to do housework.i have somehow managed to keep up with 2 kids,6 pets and a large house despite how sick i am.my husband is cruel and lazy. i am in tremendous joint pain all day.the pain of hearing my mom and sis call me a liar and the pain of my own mom calling me a piece of shit are enough,then add in my own husband.i can not work because of this disease and so i have no friends,no family and no one at all to talk to.i have never felt so all alone and terrified in my life.my husband comes home from his 8 hour a day job,eats the dinner i cooked and sleeps away the evening on the couch while i continue with dishes,kids,pets laundry and all the other chores i allready have been doing since 4 am.i am exhausted and lonely and terrified and sick of all the meds, and hospitals and doctors.i am just sick of liveing. i ask myself,what for?

  41. bab3luvinu4ever

    Endocrine case study   The Case of the Sweaty Salesman?
    Endocrine case study
     
    The Case of the Sweaty Salesman

    Chief Complaint: In a routine physical exam Michael, a thirty year old salesman complains of excessive sweating, intolerance to heat, irritability, shortened attention span, difficulty in sleeping, weight loss with increased appetite.   He does not smoke, practices safe sex, has no family history of cardiovascular disease. He has a family history for autoimmune diseases. His father suffers from idiopathic thrombocytopenia, his mother has been diagnosed with rheumatoid arthritis and his oldest sister was recently diagnosed with systemic lupus erythematosus.

    Physical findings: (1) 15 lb weight loss since last physical; (2) tachycardia with slight hyperthension; (3) protruding eyeballs (exothalmic); (3) some degree of alopecia and palmar erythema; (4) palpitation of the neck revealed the presence of goiter.

    Based on the physical findings his doctor did some blood tests and sent him to an endocrinologist. The endocrinologist diagnosed _____________ , and suggested several treatment options. These included treatment with chemicals (propylthiouracil and methimazole) that decrease the production of thyroid hormones by the thyroid gland, or radioisotopic destruction of the thyroid gland by the use of 131I, or surgical removal of the thyroid gland. After considering all the options, especially the possible effects of radiation on sperm development, Michael chose surgery. Following successful surgery, Michael was prescribed synthetic thyroid hormone to ensure that his body was receiving adequate thyroid hormone and told to return within 2 months for a follow-up evaluation of circulating thyroid hormone concentrations. He was also cautioned to carefully monitor his calcium intake.
     

     

     

    Blood test results:

    • Free T4: 20  mcg/dL (normal range: 4.8 to 10.4 ug/dl).
    • TSH: 1.5 mIU/L (normal range: 0.3 – 3.0 mIU/L)
    • Calcium: 15 mg/dL (normal range: 8.5 – 10.2 mg/dL)
    • Positive for thyroid autoantibodies.
     

     

     

     

     
    This is the question please help

     

    1. What is your diagnosis?
     
     
    2. Define the bold terms in the text.  
     
    3. Why is the T4 levels elevated?  
     
    4. Thyroid hormones exert their effects on cells in a manner similar to steroid hormones; describe the mechanism of action of thyroid hormones.
     
    5. Why would an imbalance in thyroid hormones have such widespread effects on the body?  
     
    6. Why was goiter observed in Michael’s case?  
     
    7. Why would calcium homeostasis be impaired in response to removal of the thyroid gland?
     
    8. Why is 131[I] used to specifically destroy the thyroid gland and have minimal effects on other cells and tissues in the body?  
     
    9. Given that Michael and his wife may want to have more children, why was 131[I]  treatment ruled out

  42. blahblahblah

    Does this sound like lupus?
    let me start with i am sick with doctors , & that’s why im posting on here , yes i am going to see another doctor yet again soon , but i just want a fresh perspective on this ! im a 15 year old girl , im a little underweight , and i admit im not the healthiest eater , i eat a lot , but not always healthy , but i do have tons of fruit ! to make a long story short this is what has happened to me in the past
    * i used to have stomach issues , they did tons of testing and found nothing (5th grade)
    * i had something with my heart that came back inconclusive (4th Grade)
    * i had a neck kind of twitch , they ruled it out as stress (3rd grade)
    * i have always been very prone to infections
    * not sure if this is related , but i have always had messed up fingers , my mom does too , the bones grew crookedly & the joints are messed up in them too
    * my knees are also ‘odd’ i have sort of a slight odd walk , they don’t straiten out when i walk

    CURRENTLY
    * i have just been diagnosed with iritus (an inflammatory disease in the irus of the eye , i have it from an unknown cause – which is common)
    * i often get lower back pain , not to bad , just annoying
    * my spleen area also sometimes hurts , not super bad or anything , i was at the doctor for it before , they took xrays , (you can see a lump where it hurt , but they were looking at my kidneys?)
    *i always seem to have a cough , not always a bad one , but it seems like its always there
    * my knees also feel stiff sometimes , not to severely though
    * my hands & feet have always been odd colored , when im cold they usually turn kind of a purply color
    * i always have a strong heart beat , i can feel it , and if i hold still i often can see it through my shirt
    * im almost always light headed when i stand up or move to quickly (where everything goes black)

    i have had many conditions in my family , my uncle has most types of skin cancer , my grandpa passed away from lymphoma , my grandma and uncle have a heart condition , my second cousin has lupus . Those arent all the conditions i have in my family , just the ones i could think of off the top of my head ! I did have a few doctors bring up the idea of me having lupus , but never tested me for it because they are usually concerned about testing me for something else at the time . sorry about this being long , for all i know im just an unlucky person with all this , but i would just really like to be healthy ! thanks for all your inputs on this !

    1. ★☆W.a.b.b.y✿❀

      It’s possible. But no one here can tell you for sure. It sounds like something is going on and you shouldn’t have to put up with these symptoms.

      Talk to your doctor and tell her/him that you NEED to see a rheumatologist. They specialize in Lupus and other rheumatic connective tissue diseases. They can run the blood tests and look at your symptoms.

      Good luck.

      ….

  43. musicgirlie44

    Unfortunate Family….help?
    My aunt was diagnosed with Lupus about 3 years ago. In the past year my uncle found out that he has a serious disease where his brain is swelling too large for his skull. The pain is getting near unbearable becasue the swelling causes HORRIBLE headaches, as you can imagine. He can not drive or work because he gets dizzy. He was bedbound for a long time, but now can sit at the computer for about 5 minutes before irritating his headache even worse. He had three brain surgeries when he was a baby, so doing surgery would be life threatening and way too dangerous. A spinal tap was discussed but was ruled out for health reasons as well. Our family is kinda stuck and would like to provide this part of our family with comfort and possibly some suggestions or help…any ideas???

    Thank you and prayers are appreciated for the Hawk family!

    1. bethy4jesus

      More information would be needed to give any suggestions. Is your uncle on hospice care for pain relief since it does not sound like they are doing any aggressive care. Do you live close to them? Email me if you would like… I certainly will pray to God for his comfort, for wisdom in his care, and to put His loving arms around them both. God bless you for caring.

      † On-call Prayer Warrior †

  44. benraze2001

    For people with Lupus, is there any way to counter the effects of sunlight exposure other than sunscreen?
    I have only recently been advised that I may be suffering from a connective tissue disease. Upon doing some research it appears that the most appropriate diagnosis is Lupus. I have an appointment with a rheumatologist in a few days, but I was wondering if anyone with Lupus has any tips for coping.

    I turn 28 in a few days, I’m married and have three children under the age of 4. After even a half hour in direct sunlight, I will wake up the next morning with a debilitating migraine that takes 5 excedrin migraine and about 16-20 hours to get rid of. I want to be able to take my family to the pool, water park, Disney, etc. without them having to accommodate for my issues. (I also recently bought season tickets for the Jaguars and I’ll be darned if I’m gonna miss a game ^_^ ).

    Anything I have to do in terms of treatment, drugs, etc. I’ve got no problem with if it only effects me, but the things that affect my family or my ability to interact with them are what hurts the most. Any suggestions or personal experiences are greatly appreciated.

  45. samantha

    been very ill- could i have lupus?
    for the last year ive been really sick. ive had numerous test done and been put on a hole mess load of medications. but nothing seems to help and im just getting worse. im in constant pain and cant hardly eat. my entire stomach hurts and my food doesnt digest and i have no bowel movements. it hurts to empty my bladder and my lower back feels like its breaking. mostly i get pains under my ribs and on my sides. but i also get shooting pains every where at different times.

    well ive been doing a lot of research on my own because my doctors cant seem to find out whats wrong with me. and i came across lupus. all i know about it now is its an auto- immune disease and it can affect your organs and make you lose function of them. so i wondering if i could have it. i dont have a history of any gastric problems in my family except acid reflex but ive been tested for that.

    what are the symptoms of lupus? how do you test for lupus? how do you treat lupus?

    i just what to know as much as possible about lupus or any other illness that can cause my symptoms. if any one could give me some information i would really appreciate it!

    thank you

    -sam

  46. Jewels

    Lupus has severely affected my life as well and as a nurse i am upset to know that its not as well known as other helath problems, I have found that Lupus Research Institute donations are one hundred percent to research for a cure because their board pays their salaries so no donation money is used for administration costs. I found this uplifiting, also lupus foundation of america is great to help anyone who is interested in raising money for lupus research get started. My sister contacted them and they sent her a box of educationakl material, bracelets to give out or sale, ideas for fundraisers envelopes to mail donations in etc. they also answered all her questions about lupus and fundraising in a very kind and fast manner. You can sign up on their website to be informed of all bills going to washington that would help fund lupus research so that you can contact your representative and congressmen to vote for it.

  47. Confused>.<

    Is this many disease in a teen normal?
    Im a 16 year old girl and i have been perfectly healthy and active all my life, until about a month ago. I suddenly became fatigued, sore, nauseated, and i put on quite a bit of weight (About 20 pounds) even though there was no change in my activity level or diet. So finally I went to the doctors and got quite a bit of blood work done, and since then I have been diagnosed with Hypothyroidism, Juvenile Rheumatoid Arthritis (also known as JRA), and Lupus. Now I do have a history of Rheumatoid Arthritis and Lupus in my family, though they all developed it in there late 30’s-early 40’s. Now what I dont get is how all these symptoms and diseases appeared so suddenly, for none of this showed up in my blood work last year. I guess what im asking is if its normal for a healthy teen such as myself to be diagnosed with so many things so quickly?

  48. P S

    Is it cancer or something else – many tests?
    Ok ive got a relative 48 years of age female.

    Has very low iron levels – gets puffy easily has recently seen doctor who has ordered the following tests – feels very fatigued, probable anemia

    Full blood count, FGY test, CEA test. A CT scan, colonscopy and endoscopy. Family history of chrons disease, also lupus.

    Doctor isnt saying what could be the problem ( anything from ulcer to pollop – GP suggested that it was unlikley to be cancer) though said testing was urgent, suggested could be a GI bleed. Otherwise healthy, no blood in stool, no lumps around abdomen area but has had some minor stomach pain.

    Celiac disease is one of the blood tests indicators thats being looked at, what is the chance or thoughts on what could be im a bit worried thinking it could be colon or stomach cancer, could be something as simple as malabsortion , in the last 4 months has had glandular fevor anyone with any thoughts ?

    * 17 hours ago
    * – 1 week left to answer.

    Additional Details

    17 hours ago
    I should add my relative asked the doctor what the likelihood of cancer was and was told doctor would be surprised if it was cancer. Indicating that it probably was an outside chance – tests are happening next week anyway – so doctor is being level and tests being done

    From what ive read if it was more cancer concern feacel stool testing would have been done plus an MRI which at the moment hasnt been ordered. So could the be looking for something else and if something else what could that be

    16 hours ago
    In reply to the third contributor ( thankyou for the additional information) based on the information i have ( i dont think a stool sample was asked for) other elements of the blood test are testing for chrons disease and a marker for celiaic.

    If it isnt cancer what other problems would fit the general medical area that the doctor might be looking for ( ie what could be the possible disorders or other medical problems they would be lookign for) if its cancer my relative is well prepared for treatment and so forth. It would be hopefully caught in early stages) but what other conditions of a less serious nature be likley to be what dr might be looking for
    In reply to kateyn i live with this relative and its definetly not a eating disorder. She is off work and im pretty well around her all the time. There were confirmed low iron levels a few years ago was put down to respiratory issues those cleared up but there has been a recurrence of low iron levels ( plus folate levels) b12 levels were ok. This woman who is 48 eats quite a bit its more the absorption thats the issue, the real issue is whats causing the low iron absorption

    Thanks for youre contribution anyway, eating disorders are a serious concern but in this case no its not the focus

    1. Daisee

      My guess is iron deficiency anemia…. because she has low folate level and she had the same symptoms previously.

      Abdominal pain is also a symptom of iron deficiency anemia.

      The cause can be blood loss through the gastrointestinal tract caused by colon cancer, hookworms, hemorrhoids, anal fissures, irritable bowel syndrome, aspirin-induced bleeding, blood clotting disorders, or diverticulosis.

      I really doubt that is caused by colon cancer. I think by now she would have more symptoms like bowel changes, vomiting, lack of apetite, vomiting, bloating and feeling full.

      Plus…if they were looking for colon cancer, they would have ordered the colonoscopy but not the endoscopy.

      Iron deficiency anemia has a good prognosis. Let’s see how good I am at diagnosing over the internet….LOL

      Best of luck.

  49. Dance-a-Holic

    I need help editing my research paper. I’m really bad at papers…..please help!?
    Well, its on lupus. I have the intro and two body paragraphs, and I still need to do the conclusion. So, I was wondering what I should change on my paper, and what I need to add..? I also have to do a powerpoint based on the paper, that should last a minimum of 5 minutes up to 15.

    The reason why I chose this topic was because my dad has lupus, and I wanted to know more about the topic. He was diagnosed with lupus when he was about fourteen years old. He still receives treatment for it by going in for blood tests and taking medication He has the most common form of lupus, Systemic Lupus Erythematosus (SLE), in which causes the antibodies to react against his own normal tissue. He has arthritis and joint problems, but nothings wrong with his internal organs. To support my dad and other lupus survivors, my family and I all go to the lupus walk in honor of remembering the people who had lupus that died. The things the audience can expect to read in this paper are the different types of lupus, the symptoms, the treatment and cures.
    Lupus is the result of an unbalanced immune system that can be destructive to any organ in the body. It can be categorized into three groups: discoid lupus Erythematosus, systemic lupus Erythematosus, and drug-induced systemic lupus Erythematosus. DLE is always limited to the skin and is identified by a rash that may appear on the face, neck, and scalp. It can evolve into the systemic form, which can affect any organ or system of the body. Systemic lupus Erythematosus is more severe than discoid lupus and can affect almost any organ or organ system of the body. No two people with SLE will have identical symptoms. Drug-induced systemic Lupus Erythematosus occurs after the use of certain prescribed drugs. It is more common in men, because the drugs are given to them more often.
    Lupus is hard to diagnose because it has a wide range of symptoms involving various parts of the body; and symptoms differ from each person. Most people develop painful joints and a rash, but lupus may also cause fatigue, depressions, and kidney problems. The treatment of lupus varies from person to person because each person has different symptoms. Most people with SLE require a regular blood test to check for lupus flares. Medication is the primary medical treatment for lupus. Presently, there are no other methods available to treat lupus because there is nothing else that can have the necessary impact on the immune system. Currently, there is no cure for lupus, but with early diagnosis and proper medical treatment it can significantly help control the disease.

    thanks. it would be much appreciated!!!!

  50. Moriah D

    What are the chances a military spouse with lupus would get cleared for joining their husband in South Korea?
    My husband is stationed in South Korea and has recently been asked if he would like to extend his tour to get command sponsorship for his family. From what he has been told, they are trying to get everyone stationed there for longer periods of time like the other Army bases located in Europe. In other words, they are trying to make it a regular duty station. I have to enroll in the Exceptional Family Member Program because I have recently been diagnosed with Systemic Lupus Erythematosos. Then, from the medical records and physical I provide them, they will decide whether I qualify for placement overseas. I have not had any major complications with the disease, but I am on prednisone and plaquenil. My husband is really excited about the possiblilty of being together again and I would like to know as much as I can about the process and the probabilty of me being able to go. My husband was not placed at an army base in the states before he was shipped to Korea. He went to Korea right out of AIT. Basically, I am wanting information on the EFMP screening process and any additional thoughts that may be relevant. Any milspouses that have been in my situation, your advice and input will be greatly appreciated. Thank you for any ideas you can contribute. Happy Holidays to All!!! Thank you, again.

    1. Linda R

      I never have understood the rhyme or reason of the military, but I would get a letter from your rheumy and any other docs basically saying that your lupus is well controlled and that you have no major complications.

      I have SLE with multiple organ involvement, but am in remission now. What I have learned is that you should write the letter for the doctor, then let him or her edit it as they see fit. Doctors are busy and the easier you make it on them the more successful you are likely to be.

      Good luck to you. You might want to check and see that plaquenil will be available to you there or that you have a way to get it. Prednisone should be no problem.

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