Hashimoto’s disease is a disease characterized by the immune system attacking the thyroid gland. . A family history of thyroid disorders is common, with the HLADR5 gene most strongly implicated conferring a relative risk of 3 in the UK. The person may experience symptoms of hyperthyroidism at first when the thyroid may actually produce too much thyroid hormones. It is caused by a reaction of the immune system against the thyroid gland. Hashimoto’s disease is the most common cause of hypothyroidism in the United States. Hashimoto’s disease, also known as chronic lymphocytic thyroiditis, causes inflammation of your thyroid gland that often leads to underactive thyroid (hypothyroidism). Lymphocytic thyroiditis may also occur as a self-limited condition which lasts 2-6 months, resolving spontaneously, and leaving most patients with normal thyroid function. Chronic thyroiditis or Hashimoto’s disease is a common thyroid gland disorder that can occur at any age, but it is most often seen in middle aged women. It is more prevalent in women than in men (8:1), and its incidence increases with age Blood tests of thyroid function are used to detect Hashimoto’s disease. Patients with this form of thyroiditis sometimes exhibit so few symptoms that the disease may go unnoticed for many years, but eventually it may destroy so much thyroid tissue that hypothyroidism develops.

Many people with this disease have no symptoms. Hashimoto’s Disease is often referred to as Hashimoto’s thyroiditis, autoimmune thyroiditis, lymphadenoid goiter, struma lymphomatosa, and chronic lymphocytic thyroiditis. Hashimoto’s Thyroiditis is not uncommon. Many people with Hashimoto’s thyroiditis have other endocrine disorders, such as diabetes, an underactive adrenal gland, or underactive parathyroid glands, and other autoimmune diseases, such as pernicious anemia, rheumatoid arthritis, Sjgren’s syndrome, or systemic lupus erythematosus (lupus). In many cases, Hashimoto’s thyroiditis usually results in hypothyroidism, although in its acute phase, it can cause a transient thyrotoxic state. Hashimoto’s disease progresses slowly over a number of years and causes chronic thyroid damage, leading to a drop in thyroid hormone levels in your blood. Less commonly, Hashimoto’s disease occurs with hypoparathyroidism, adrenal insufficiency, and fungal infections of the mouth and nails in a condition called type 1 polyglandular autoimmune syndrome. The thyroid gland typically becomes and the antibodies the body normally produces to protect the body and fight foreign substances such as bacteria, are found to ‘attack’ their own thyroid tissue. Treatment with synthetic thyroid hormone replacement medication usually is simple and effective. Natural treatment options also exist.

Causes of Hashimoto’s disease

The common causes and risk factor’s of Hashimoto’s disease include the following:

The exact cause of Hashimoto’s disease is unknown.

A reaction of the immune system against the thyroid gland.

If someone in your family has had thyroid disease, you may have an increased risk for Hashimoto’s disease.

Hashimoto’s thyroiditis is most common among women, particularly older women, and tends to run in families.

It may rarely be associated with other endocrine disorders caused by the immune system.

A combination of factors including heredity, and age may determine your likelihood of developing the disorder.

Hashimoto’s Thyroiditis is seen more frequently in people taking extra iodine in their diets.

Symptoms of Hashimoto’s disease

Some sign and symptoms related to Hashimoto’s disease are as follows:

Fatigue.

Enlarged neck or presence of goiter.

Small or atrophic thyroid gland.

Dry skin.

Joint stiffness.

Excessive sleepiness.

Dry, coarse hair.

Facial swelling.

Hair loss.

Heavy and irregular menses.

Hoarse voice.

An elevated blood cholesterol level.

Intolerance to cold.

Most often, people with Hashimoto’s Thyroiditis suffer from symptoms of Hypothyroidism (fatigue, lethargy, decreased metabolic rate).

Treatment of Hashimoto’s disease

Here is list of the methods for treating Hashimoto’s disease:

Iron supplements.

If Hashimoto’s disease causes thyroid hormone deficiency, you may need replacement therapy with thyroid hormone.

Antibiotics to fight infection.

Hormones to suppress or replace thyroid function.

Sucralfate, an ulcer medication.

Long-term prognosis is very good. Most people with the disease can be easily treated.

Cholestyramine (Questran), a medication used to lower blood cholesterol levels.

Replacement therapy with thyroid hormone is given if the hormone is deficient or may be given if there is evidence of mild thyroid failure.


60 thoughts on “Hashimoto’s Disease – Causes, Symptoms And Treatment Methods

  1. Mark S

    How many other Men out there have Lupus, Those people with Lupus 9 out of ten are Women.?
    If nine out of ten people with the disease are women, Then what are the actual figures of Men who have the disease?
    Are there more Diastolic cases vs Sytemic in Men ?
    I would like to talk to some Men out there that have the disease and see what their symptoms are and what they use for treatments. and are they effective?

  2. sloan7907

    Constant Non-vertigo Dizziness?
    I am a 19 year old female. I have had 3 concussions within 6 months of each other two years ago. I had had constant migraines for a year after the last concussion. I have since then received a DHE infusion treatment for the migraines. I am now pain free for a year, but a constant non-vertigo dizziness with periods of debilitating light-headiness has decided to stick around. I have been given multiple sets of blood work including lupus, lyme, B-12 deficiency, CBC, and Thyroid. Blood work revealed an extremely low iron level, for which iron supplements were given and the levels are back to normal if not slightly higher. Still the dizziness persists. I have had multiple MRI scans to find out if the dizziness and pain was from the concussions and the only thing found was a small shadow in my left frontal lobe, which was determined to be normal and to have most likely been there for years. I have had a ECG and a halter monitor which showed nothing but my heart leaning a little farther to the left, but normal and non harmful. My blood pressure is normal as are my sugar levels. If anyone has any similar symptoms and has had success in finding out the cause or seeking a treatment please let me know. I am not a sophomore in college and am transferring closer to home because of doctors appointments. My next step is acupuncture, but I am not really hopeful at this point.

    Thanks
    I have seen an ENT specialist twice as well, all is well in that department. I have seen a vestibular therapist who has not been able to shed any light on this nor give me suggestions. I have been cleared of any anxiety and panic disorders by a psychologist, who was quite confused as to why I was there at first. I have been on a plane three times since the accidents and they have not seemed to make this dizziness worse during or after. Medications have not worked.

    1. Healing Village Collective

      Hi Sloan,

      I am an acupuncturist.

      I have had a patient who experienced similar dizziness (not from an accident) and was found to be experiencing this somewhat rare disorder called, Mal de debarquement syndrome. It doesn’t typically come on from an accident. However this patient had terrible migraines before the dizziness as well. It may be worth just looking into just to see if there are any similarities.

      I wish you well and hope the acupuncture is helpful.

  3. Rachel

    Can you suffer from an under active thyroid without gaining weight?
    I haven’t been officially diagnosed with Hypothyroidism, but I have a lot of the symptoms (fatigue, sluggishness, low immunity to illness, swollen throat and carpal tunnel syndrome), however I have never really had a problem with my weight! It can fluctuate but only slightly, is it possible to suffer from Hypothryroidism without weight gain?

    I am a student and I had a load of blood tests at the end of last term, one of which said that I had something wrong with my thryoid, but I thought I would wait until I go back in September to see the doctor again rather than re-register in my hometown. Does anyone know whether it’s dangerous to go without treatment? Because I have been feeling rapidly worse in the last week or so, I’ve barely got out of bed the past two days! It was only a few months ago I developed carpal tunnel sydrome and today I woke up with a puffy face! 🙁

    Oh one more thing, my sister suffers from Systemic lupus erythematosus (which is an autoimmune disease) -is that relevant?

    Any help would be really appreciated! Thanks 🙂

    1. lucyf

      Yes it is possible. Weight gain is just one of the symptoms of an underactive thyroid, different people experience different symptoms. It may be that your metabolism is still going at a steady rate because of your young age. Do you have cold intolerance at all??

      It is relevant that your sister has SLE because different types of autoimmune disease can run in families. Certain forms of hypothyroidism can be from an autoimmune cause.

      If I were you I would go to your doctors at home. You shouldnt need to re-register, you can just sign in as a tempory patient. It doesnt sound fun being stuck in bed, and the right treatment can help you and make you feel 100% better.

      If I were you I would want to know what the thyroid results were and see that it is undereactive. It might be worth calling up the place where you had blood taken and see if they can give you any info over the phone. You GPs at home should be able to start you on thyroxine if that is what you need, and then your GPs at uni can take over the treatment. Good luck!

  4. InCalifornia

    UNUSUAL SYMPTOMS- NO RIGHT DIAGNOSIS?
    MY DAUGHTER (24 YEARS OLD NOW) HAS BEEN SUFFERING FOR 2 YEARS WITH BACK PROBLEMS, (STARTED AS A LOW BACK PAIN) THAT EVENTUALLY AFFECTED HER KNEES, LATER ON… HER RIGHT HIP, GROIN, PELVIS, NECK AND SHOULDERS…. AND NOW BOTH ARMS AND HANDS GET TINGLING AND ALSO NUMBNESS!
    I HAVE SPENT THOUSANDS OF DOLLARS IN MEDICAL BILLS…. SHE RECEIVED SPINAL DECOMPRESSION (LIKE 50 TREATMENTS) FOR A MILD ANNULAR TEAR OF THE LUMBAR SPINE AT THE LEVEL OF L4 AND L5….. THE SPINAL DECOMPRESSION WAS DONE ON A MACHINE CALLED THE DRX9000…
    SHE HAS BEEN DIAGNOSED HAVING A TILTED PELVIS, HAVING A LEG LENGTH DISCREPANCY, ETC….SHE HAS BEEN GIVEN ORTHOTICS TO WEAR, AS WELL AS A HEEL LIFT…. AND ABSOLUTELY NOTHING HAS HELPED HER…. I BELIEVE THE MILD ANNULAR TEAR IS ALREADY HEALED…… BUT SHE CONTINUES EXPERIENCING NUMBNESS AND TINGLING DOWN THE BACK OF HER THIGHS ….. “ESPECIALLY” EVERY TIME SHE TRIES TO SIT….
    SHE HASN’T BEEN ABLE TO SIT FOR OVER A YEAR NOW….WE HAVE SEEN NEUROLOGISTS, SEVERAL CHIROPRACTORS, PHYSICAL THERAPISTS, ACUPUNCTURISTS, MASSAGE THERAPISTS, DEEP TISSUE MASSAGE, ACUPRESSURE, ETC, ETC, YOU NAME IT!!!
    SHE HAS HAD MRI’S DONE ON HER NECK, PELVIS, HIPS, AS WELL AS X-RAYS…. SHE HAS BEEN CHECKED FOR SACROILIAC JOINT DYSFUNCTION, AND NOTHING LOOKS ABNORMAL.
    UP TO THIS DATE WE DON’T KNOW WHY SHE IS HAVING ALL THOSE SYMPTOMS, AND ESPECIALLY GROIN AND HIP/PELVIS PAIN… SHE HAD BLOOD TESTS DONE FOR , JUVENILE ARTHRITIS, LUPUS, LYME DISEASE, ETC, ETC….EVERYTHING COMES BACK NEGATIVE….
    SHE HASN’T HAD AN ACCIDENT OR SPORT INJURY, SHE HASN’T FALL ON HER BACK EITHER……”THIS” ALL STARTED WITH LOWER BACK PAIN THAT PROGRESSIVELY AFFECTED OTHER PARTS OF HER BODY…. MANY DOCTORS HAVE TOLD ME THAT SHE HAS A TILTED ROTATED PELVIS…. AND A LEG LENGTH DISCREPANCY… BUT YET “NOT ONE DOCTOR” HAS BEEN ABLE TO HELP HER…SHE LIVES IN CONSTANT PAIN…AND THE RIGHT SIDE OF HER BODY SEEMS TO BE MORE AFFECTED BY THIS….BEFORE ALL OF THIS SHE WAS A HEALTHY COLLEGE STUDENT WITH NO HEALTH PROBLEMS WHATSOEVER!…HER LEG LENGTH DISCREPANCY IS ONLY 1CM… NOT THAT MUCH!
    .IT’S JUST VERY STRANGE THAT A YOUNG WOMAN WOULD GET ALL OF THIS PAIN AT ONCE…..TINGLING OF BOTH ARMS AND HANDS MIMICKING CUBITAL AND CARPAL TUNNEL SYNDROME….. SHE ALSO SUFFERS FROM A STIFF NECK AT TIME…I TRULY BELIEVE THAT THIS IS A CHAIN REACTION FROM HER PELVIS BEING MISALIGNED AND PERHAPS THERE’S SOMETHING WRONG WITH HER SACROILIAC JOINT THAT NO ONE HAS BEEN ABLE TO DETECT……

    I’M IN DESPERATE NEED OF AN OPINION
    I wanted to add that she has been checked for neurological disorders and she doesn’t fit in that category, as well as Rheumatoid Arthritis… A few doctors agree that she has a rotated (anteriorly) pelvis and it could be the main reason for all of her problems, tight psoas muscles, etc…. I haven’t been able to find a doctor that truly knows how to manipulate the pelvis back into place, if that is the problem….

  5. readyforanap

    Took Minocycline for acne and got the Lupus like symptoms, blood in my feces, & painful defecation. Help?
    I have stopped the Minocycline and the Lupus joint pain is gone but the other problem remains. I also have undigested food in my feces. All this started after starting the Minocycline, Differin, and Benzaclin treatment for my face. I don’t want to have a colonoscopy if someone knows what is going on. Has anyone else had this happen and what did you have to do to treat it?

    1. Twinkle my star!

      im sorry to hear this im sure you dont have lupis but i would seriously go to the doctors i had a colonoscpy 2 weeks ago and im only 17 and been diagnosed with ulcerative colitis ulcers on my colons and i will tell you that you should not be afraid of the colonoscpy the doctors are nice and they will put you to sleep so fast you wont even no what hit you and you wake up and they told you the prcedure took 2 hours but it feels like no time has gone buy
      be strong and see a doctor if i can do it you can best wishes and good luck plus if you go through with it which you shoudl the doctors can help you instead of you being scared

  6. Dance-a-Holic

    I need help editing my research paper. I’m really bad at papers…..please help!?
    Well, its on lupus. I have the intro and two body paragraphs, and I still need to do the conclusion. So, I was wondering what I should change on my paper, and what I need to add..? I also have to do a powerpoint based on the paper, that should last a minimum of 5 minutes up to 15.

    The reason why I chose this topic was because my dad has lupus, and I wanted to know more about the topic. He was diagnosed with lupus when he was about fourteen years old. He still receives treatment for it by going in for blood tests and taking medication He has the most common form of lupus, Systemic Lupus Erythematosus (SLE), in which causes the antibodies to react against his own normal tissue. He has arthritis and joint problems, but nothings wrong with his internal organs. To support my dad and other lupus survivors, my family and I all go to the lupus walk in honor of remembering the people who had lupus that died. The things the audience can expect to read in this paper are the different types of lupus, the symptoms, the treatment and cures.
    Lupus is the result of an unbalanced immune system that can be destructive to any organ in the body. It can be categorized into three groups: discoid lupus Erythematosus, systemic lupus Erythematosus, and drug-induced systemic lupus Erythematosus. DLE is always limited to the skin and is identified by a rash that may appear on the face, neck, and scalp. It can evolve into the systemic form, which can affect any organ or system of the body. Systemic lupus Erythematosus is more severe than discoid lupus and can affect almost any organ or organ system of the body. No two people with SLE will have identical symptoms. Drug-induced systemic Lupus Erythematosus occurs after the use of certain prescribed drugs. It is more common in men, because the drugs are given to them more often.
    Lupus is hard to diagnose because it has a wide range of symptoms involving various parts of the body; and symptoms differ from each person. Most people develop painful joints and a rash, but lupus may also cause fatigue, depressions, and kidney problems. The treatment of lupus varies from person to person because each person has different symptoms. Most people with SLE require a regular blood test to check for lupus flares. Medication is the primary medical treatment for lupus. Presently, there are no other methods available to treat lupus because there is nothing else that can have the necessary impact on the immune system. Currently, there is no cure for lupus, but with early diagnosis and proper medical treatment it can significantly help control the disease.

    thanks. it would be much appreciated!!!!

  7. wingsovgrace

    Have you been diagnosed with drug induced Lupus ?
    !0 years ago began having problem with elevated blood pressure. Was treated with the usually prescribed meds. Within the past ten years I have had a variety of unusual and often preplexing symptoms that the doctors couldn’t find good answers for. Lots of guesses and lots of unsuccessful treatments and increased frustration and misery until recently. The diagnosis is drug induced Lupus and it is believed to be caused by my blood pressure meds. Bingo. The symptoms have developed over the same period I’ve been on the meds. My question is: Any known effective alternatives for Blood Pressure Control? Anyone else with Lupus have bizarre skin and hair folllicle issues? Any one know a reputable doctor in Kansas City Missouri to advise on alternative treatments? Any one know of a web site to purchase alternative B/P treatments that you or someone you know have had personal experience with? Are there suggestions for a great support website for Lupus?

    1. Healing Oneself

      Hi WIngsOfGrace

      Here are some ideas to heal the issue. Also learning about detoxifying the blood by doing colon and liver cleanses will change your health forever.

      Cause
      Food allergies (there is a 100 percent correlation between lupus and food allergies), rheumatoid arthritis, other connective tissue diseases, parasites, candidiasis, bowel problems, and digestive enzyme deficiencies can create symptoms that mimic or exacerbate SLE. Migraines, epilepsy, and psychoses must also be ruled out before a proper course of treatment can be decided upon.

      Both forms of lupus primarily strike young women (90% of cases) and young children.

      The drugs hydralazine, procainamide, and beta blockers can cause false-positive readings of SLE, and can also produce a lupus-like condition that disappears when the drugs are no longer taken. Birth control pills and environmental stresses can also exacerbate lupus symptoms.

      ——————————————————————————–

      Natural Cures

      Diet: Eat an organic, whole foods diet. Also avoid overeating and limit your intake of dairy, beef products, and polyunsaturated oils. Also screen for food allergies and avoid all foods to which you are allergic or sensitive. Increase your intake of vegetables, especially green, yellow, and orange, and consume non-farm-raised fish several times a week.

      Herbs: Supplementation with Swedish bitters with each meal can increase hydrochloric acid production. Also drink an infusion of nettle twice a day. Other useful herbs include echinacea, goldenseal, licorice, pau d`arco, and red clover

      Hydrotherapy: Hydrotherapy is the application of water, ice, steam and hot and cold temperatures to maintain and restore health. Treatments include full body immersion, steam baths, saunas, sitz baths, colonic irrigation and the application of hot and/or cold compresses. Hydrotherapy is effective for treating a wide range of conditions and can easily be used in the home as part of a self-care program. Many Naturopathic Physicians, Physical Therapists and Day Spas use Hydrotherapy as part of treatment.

      Hyperthermia: Hyperthermia involves artificially creating fever in the body for the purpose of boosting immune function. Hyperthermia can be a highly effective method of eliminating toxins and heavy metals, as well as infectious bacteria and viruses that cannot survive in elevated body temperatures.

      *Purified water is essential for any hydrotherapy or hyperthermia treatment. Remedies for Treating Chlorinated Bath Water offers clear instructions and recommendations.

      Juice Therapy: Drink the juice of carrot, celery, flaxseed oil, black currant oil, and garlic.

      Nutritional Supplementation: Hydrochloric acid (HCL) deficiency is common in people with lupus, therefore HCL supplements with each meal is advised. Other useful nutrients include vitamin A with beta carotene, vitamin C and bioflavonoids, vitamin B complex, vitamin B5, vitamin B6, vitamin B12, calcium, magnesium, selenium, zinc, essential fatty acids, proteolytic enzymes taken away from meals, digestive enzymes taken with meals, and the amino acids L-cysteine, L-methionine, and L-cystine.

      Topical Treatment: PABA cream applied topically can help ease symptoms.

      Best of health to you

  8. Mia Drummond

    ok, so i have to do a speech…?
    ok so i am writing a speech on my lupus, and so far its done, but my teacher asked me if there was anyway i could make it “persuasive” and like the speech is currently on the symptoms, treatment, stats, and such on lupus, and of course my own personal feelings, but how can i make this persuasive? please help i need answers FAST!

    1. R.F.

      It sounds like you’ve written mostly about the medical factual data regarding lupus.
      The intent of a persuasive argument is to convince people of something.
      So talk about the personal affects of lupus. Since you have personal experience and if you’re willing to share about it, talk about how it has affected your life and what you have to endure because of it. If your case isn’t so bad yet, talk about how bad extreme and severe cases can get.
      Then point out that more attention and awareness needs to be given to the disease, and then press home the need for further research on better treatments and a cure.

  9. Terisa

    Can anyone diagnose me?
    My name is Terisa and I am in desperate need of help! I am 19 years old and have been very ill for almost a year now. I have seen several doctors (including specialists), had hundreds of tests, and even more medications and treatments to no avail. I am getting pretty desperate because the nature of my illness is one that restricts me to home, limits me to few activities, and most importantly, keeps me in constant pain. I am hoping that somewhere out there is my House. I am looking for a doctor looking for a challenge or someone that has struggled with illness that may have answers! I am willing to take any suggestions so if anyone has any idea of what I could have, please feel free to put in your two cents! And please don’t hold back because of how serious a diagnoses you have. I’ve been told I have all sorts of terrible diseases so I’m not shy about that. The following are my symptoms.

    *Wide spread, chronic, severe pain that is worst in the knees, hips, and back. The pain is made worse by movement, sitting, standing, exercise, walking, bending over, crouching down, and on bad days, laying down. The pain is helped by narcotic pain killers and heat but never goes away completely. A normal day my pain is between a 5 and 7 on the pain scale. With drugs, a 3 to 6 (The pain started March 2nd, 2009. At the time I was diagnosed with a bulging disc but I have since been undiagnosed. However the pain mimics that of a bulging disc if that helps.)

    *Chronic, debilitating fatigue. This is more recent than the pain.

    *Insomnia (I have always slept well before this.)

    *Hair loss

    *Cold Intolerance

    *Clotting disorder (This one is bizarre. I have never had a problem until recently when I started bleeding into a bruise (blood started to pool under the skin at bruise site) and had a nose bleed for 2 hours. Tests show that I have a problem with my clotting time and my Factor 7 is high.)

    *Severe abdominal pain (Severe abdominal spasms that bring me to my knees. I have been diagnosed with IBS but I include this as a symptom just in case.)

    *Joint stiffness and weakness.

    *Numbness, tingling, and weakness in left leg and lower back (this is why they thought I had a bulging disc.)

    *Occasional twitching and shaking

    *Extreme changes in appetite (sometimes I can’t eat and sometimes I can’t stop.)

    *Nausea

    *Headaches

    *Stomach Ulcer (this might be stress related or some bizarre manifestation or what I have, I don;t know yet.)

    *Changes in menstrual cycle even though I am on birth control and have been for 2 years.

    *Irritability, anxiety, and depression.

    Now here is the really bizarre part. I have been tested for and do not have: Hypothyroidism, Leukemia, Lupus, Rheumatoid Arthritis, A factor 7 disease, pregnancy, or anemia. This is where I stump everyone. I test negative for everything! So this is where I need help. If anyone has an idea of 1) What else I could possible have or 2) how it is possible that I could have the above mentioned things and test negative.

    Well thanks for your time and help. I really appreciate anything anyone can offer me!

    Thanks again.

    1. Rockford

      I’ll just throw some ideas out there

      -Severe abdominal pain, diahrea and hair loss can be from adrenal insufficiency.

      -Irritability, extreme increases in hunger and insomia and body wide pain can be from increase in cortisol levels like in cushings syndrome which doesn’t really match but I thought I would mention it.

      -depression and insomia is understandable if you are in pain and can’t get a deep night sleep. I’m in chronic pain a sleep study showed I woke up 9 times every hour without knowing it. Hypothyroid also causes insominia but you were checked for that.

      -Discomfort in the stomach when bending over can be from a hiatal hernia.

      Pain in the joints and body, numbness and tingling can be from Oedema (swelling) which may not be obvious. Some girls get Idiopathic Cyclic Edema.

      Low vitamin C can cause fatigue, extreme joint pain and bleeding. Low vitamin D can cause body pain and fatigue.

      Cold intolerance can be from not eating enough calories, cold agglutnin disease, infection, etc. I would also look up Hughes Syndrome which is closely related to Lupus (although it doesn’t fit with your nose bleeds). You can also have low iron body stores without being anemic.

      I would look up Reiters Snydrome if you have joint pain and were sexually active. I would get off the birth control to see if the joint pain is a drug reaction.

      I gave you one link for a rare blood cancer that causes bleeding

      I hope I don’t send you on a wild goose chase since I have no medical background. It’s best to remember back when the first symptoms started and what was it. Don’t get side tracked with new symptoms that are a result of medication. I hope you find a answer without having to dig too much.

  10. peace_love_granola

    Buprenorphine/Suboxone and “Lupus” symptoms?
    I’ve been taking Suboxone (drug treatment for opiate addiction) at a very small dose (3-5mg per day) for about 2 months now. In those 2 months, I’ve developed Lupus symptoms, and have tested positive for Lupus. Is there any way that the Lupus could be induced i.e: created by the Suboxone?
    Or… has anyone experienced sore muscles, lose of balance or twitching of muscles because of the Suboxone? … thanks!

    1. quijibored

      No connection according to all the articles in PubMed. If you are a woman then the timing is probably a coincidence and you might really be developing lupus. Of course there are always exceptions and drug induced lupus is a very rare possibility but you might be one of those rare cases of drug induced lupus. Only way to find out for sure is to go off the buprenorphine and see if the lupus symptoms resolve. good luck because lupus sucks

  11. dede

    How serious is Lupus during pregnancy?
    My daughter had preclampsia with her first pregnancy. She is approximately 9 wks. along and is showing signs of the condition already. Last week her doctor told her that current symptoms she is having all point to the possibility of Lupus. He ran some test, and said depending on the test results may decide to hospitalize her for a few days for further testing and begin a treatment plan. I am terribly worried for my daughter and her unborn baby. Just wondered if anyone out their has experienced somewhat the same, and looking for some feedback. Thank you in advance.

    1. Faerie

      Don’t worry. Lupus rarely affects the baby of a woman who has it, but it isn’t nice at all for the mother. Often women contract Lupus whilst pregnant or after they’ve had a baby, as Lupus is often triggered by this. I once knew a woman who had her Lupus at its very worse after she had her first baby. I’ve known 2 women with it, and the second one was so exhausted she spent most of a year in a wheelchair. But Lupus is rarely fatal nowadays, and it’s not disfiguring. They usually use steroids to treat it. (I’m not talking about illegal drugs, I’m talking about medical drugs that have nothing to do with muscle building). Lupus can range in severity. Your daughter’s baby will be fine.

      I’m not going to guarantee you that everything, including the baby, will be ship-shape and fine and dandy, but it is VERY likely. I know the woman above gave you some bad news about premature or ill babies, but the truth is, the two women I know have had 2 or more babies, all completely normal and healthy. Seriously. Not trying to make you feel better. Have a little faith, dear:) Good luck xxx

  12. Roland'sMommy

    Doctors & nurses – if a patient came to you with these symptoms, what would you think?
    TMJ, depression, low *normal* body temp, chest pains, breathing issues, daily headaches – frequent migraines and tension headaches, sensitivity to light and sound, cough, diarrhea for 3 months, thyroid disease, endometriosis, PCOS, ovarian cysts, hair loss, weight gain – mostly in midsection, food sensitivity, nausea, sleeping problems, IBS, constant gas, intolerance to multivitamins, excessive sweating, burning sensation in arms, joint pain in ankles knees & hips, muscular pain in upper legs and forearms.

    I just found a family doctor and made an appointment – I’m guessing I’ll need a referral to a specialist, my endocrinologist thought I’d need to see a rheumatologist since my vitamin d levels are okay, so are my thyroid levels & my lupus test was negative. I’ve gotten the vibe from a lot of people that this may be fibromyalgia. Any other ideas? Also, what kind of treatment options are there? Any doctors out there who don’t think it’s all in your head?
    I’m not looking for some moron to tell me there’s nothing wrong with me. You have no medical background and probably haven’t even graduated from high school, so I’m not looking for YOUR advice. If you aren’t smart enough to figure out that the first few words in my question are “doctors & nurses” and that means I want answers from someone with a clue – than you’re an idiot. Go waste your time on someone else’s question.

    1. heavenlygarcia

      I am not a dr. but yes it does sound like fibromyalgia. But, since you have trouble sleeping, and the shits all the time and can’t take a multi vitamin, I really think you need to see a nutritonist. You can get really sick from not sleeping and having the shits. It depletes the vitamins in your body, causes your cells to damage easier, your anit-bodies to attack your self instead of invaders, it can bring your immune system down, there are so many things that can go wrong if you can’t sleep and have upset stomatch all the time. All of your body works together too if one thing isn’t right everything else gets throw off too it like a domino effect. If your body isn’t working efficiantly your just going to get worse and worse. A nutritionist will work with you to get your body on a path to getting stronger, you can take the drug nessicary to feel better but if you body isn’t working the way it should due to bad nutriton (or depletion of nutrients) or sleep deprivation its going to be that much harder to get to feeling better or even get better period. You need to go to the dr. and i really thing you need to get your insides back to working the way it should. It will take awhile, nutrition and vitamins are not like taking a drug that you feel the effect from in 30-40 minutes it will take a few months to finally feel the effects. One supplement or even herb may not work as well as another, kinda likek meds too. Please go to the nutritionist. I live in constant pain from endometriosis and i know how much it sucks to feel like your life is worthless because you can’t do anything fun or fufilling and i don’t think anyone should know a constant state of pain. Get better damnit.

  13. blah

    Lyme disease- muscle weakness!!! who else?
    hi, i’m 13 years old and the past 8 months i have been very sick. It started out in the beginning of the summer with all the symptoms of mono(never tested positive}…. few weeks pass and i started to feel a little better but i noticed that if i walked long distances my arm would start feeling really weak and painful. Slowly my my arm started hurting more often then my leg started. I have been tested for everything under the sun
    MRI’s
    lumbar puncture
    blood tests{lupus, thyroid, auto immune diseases, lyme ect.}
    nerve studies
    neurologists
    infectious disease
    vascular surgeons
    neurosurgeons
    my nerves and muscles simply didn’t work and every time I asked why they didn’t think it was lyme they simple said ITS NOT LYME
    3 hospital stays
    in the mean time i couldn’t walk or use my arm at all. It was extremely painful
    a week ago I went to a doctor specialized in lyme who tested me for ALL the lyme tests because my others doctors only tested me for 2 kinds……..and started an antibiotic treatment
    i can wiggle my thumb
    soooo….has anyone had these types of symptoms from lyme disease????????

  14. Jay guy

    Being Sick And My Hair?
    I was sick from 17 to 22 and my hair got thin around age 19 ontop better hasn’t ever thickened back up ontop not that I’m a lot better?

    Could this be from one of the extreme treatments I was on different steriods and verius unpopular medications like remicade and sevral other ones relating to my condition?

    They never found out what it was,crohns, lupus I had extreme symptoms of both but im better now so its werid.

    Do you think this will keep me from dating unless the person already knows me and my past health issues?

    1. One Ho

      There are several hair supplements available in the market. I have taken one called Hair Push and it has worked wonders – my hair grew thicker and had more volume. If you can find something with Vitamin E as part of the ingredient, then you are on the right track.

      Don’t worry. There are girls who are completely head over heels with bald men!

      ;p

  15. Kristy Elkins

    Fibromyalgia symptoms and treatments?
    I havent been diagnosed with fibromylagia yet, and am half afraid to tell my doctor thats what I think I have. Shell probably tell me im nuts, plus I read that theres no real test to say…Yes you have it. But after accidentally stumbling across an ad for Lyrica, and it listed some symptoms of fibromyalgia, I thought to do some research on the subject. Ive been back and fourth to the doctor…goodness like 15 times in the last 2 years! Initially just complaining about extreme fatigue, troubles falling asleep, and not being able to stay asleep once I fell asleep. Then it stemmed into joint pain complaints. I did find out I had lyme disease, so my doctor thought thats what the problem was. Well I took the meds, got re tested and the lyme is cured. This is over a year ago now…but my symptoms are worse. Been back again a few times since then, and she just said theres nothing wrong with me, im just depressed. She tried giving me sleeping pills, which just made me more groggy so I stopped taking them. Then she gave me some off brand stress management med… not quite a depression med, which didnt help. After doing reaserch on fibromyalgia, im SURE thats what I have. Besides the extreme tiredness, and lack of ability to stay asleep, I have horrible muscle and joint aches. I wake up and feel like ive excersised for hours the day before! Im stiff and find it painful to move. What really got me though, is I have pain in all the places ive read online that affect people with fibromyalgia the most. The neck, hips, shoulders, and knees. Thats where most of my pain is. I have frequent headaches, and the other thing that really sold me was the IBS thats linnked with fibromylagia. Ive always had bad cramps and gas like I have to go to the bathroom realllly bad even when I dont have to go, and my bowel movements have always been strange, going alot some days, not going for a day or two at other times. Ive always wondered why until I read about IBS. I know fibromyalgia can mimic lupus and other conditions, but my doctor did test me for lupus and a few others and they were all negative. I also read that fibromyalgia can come about after very traumatic times, and it seems like mine started about 2 1/2 years ago. And ALOT has happened to me in that time. My sister was murdered 3 years ago, my mom died 2 years ago, my brother had a cancer scare shortly after our mom died. So thats another reason I suspect fibromyalgia. So does it really sound like I have fibromyalgia? And what can I do to help it? I cant live with this tiredness anymore! I dont even care about the pain as much as I do about constantly being tired and fatigued!

    1. JMITW

      its possible you have fms

      but its also possible you have a post lymes syndroome
      lymes can cause permanant symtpoms if not treated early enough

      it could also justbe the lack of sleep

      a better sleep med is trazadone–its an antidepressant, but only taken at night.in a smaller dose

      .much safer than traditional sleeping pills

      most docs dont know what fms is and use it as a general label for pain

      they will say the pain of lymes is fms..that is not true..fms is its own specific neuro condition

  16. Cap10

    What are the symptoms and avalible treatments for Lupus?
    Any information, good links for information, or suggestions would be greatly appreciated. It is for a good friend of mine who recently diagnose and is understandably frightened.

  17. Kenny

    What causes a person to be sensitive to barometric joint pain?
    I am a 25 year old female and have had varying degrees of joint pain that coincides with barometric pressure changes—either from humidity and summer storms or when it gets extremely cold. I am wondering if this a normal reaction in a healthy young adult or if I could be showing symptoms of arthritis. I have always had joint pain, though when I have seen the doctor, it was always dismissed as growing pains. I feel it most in my knees and hips, but also in my tail bone. The pain varies from barely noticeable to a dull, throbbing, aching pain that is so uncomfortable I often cannot sleep. Again, no doctor has ever taken this seriously.

    I have a medical history of having several related autoimmune disorders though through some experimental medical treatments I have gone through, and they most likely will not come up again.

    I was on a heavy dosage of steroids for two years (100mg of prednisone) during my other treatment, and I noticed that the symptoms have increased since then. I have heard that long-term steroid use can affect bone and joint health, but not sure if that is true. I also had an ANA test while I was being treated for my other disorders that was slightly positive, but at the time, my condition was so critical that I did not ask if a weak ANA test could mean that I possibly have lupus or RA.

    I know that the internet isn’t a way to get a medical diagnosis, but I am interested in hearing from people that who have barometric joint pain, are in the medical field, have joint pain from steroid use, or have RA or lupus. Also, any advice on alleviating the discomfort??

  18. Cap10

    What are the symptoms and avalible treatments for Lupus?
    Any information, links to information, experience or suggests are welcome. They are for a close friend of mine who was recently diagnose with Lupus and is understandably a little frightened.

  19. lwa519

    Is this prednisone withdrawal or an unrelated infection?
    I’ve been on prednisone for drug-induced lupus for a couple months and have been tapering off for the last few weeks. I started at 20mg and went down 5mg every 1-2 weeks and now I’m at 7.5mg. I’ve been on 7.5mg for exactly one week now, but for the last 3-4 days I’ve been waking up every morning with low-grade fevers (about 99.6 degrees) and body aches. The body aches I experienced with every other lowering of my dosage, but the fever has never happened before. It goes away as the day goes on.

    I did some research and this looked to me like prednisone withdrawal symptoms. I called my doctor and he said I probably have some other unrelated infection. I think he’s wrong, but I’m on vacation and don’t have easy access to medical treatment.

    What does this sound like?

  20. sante

    I am so afraid to take plaquenil for lupus treatment! any natural cure?
    Does anyone has an experience with plaquenil? or some one knows a natural way to cure lupus? I am currently taking oil fish, cellfood and recovery( for joint pain) and multi-vitamins.

    I am 30 yrs and was diagnose 8 months ago, no internal organs involves and the only symptoms are fatigue and joints pain.

    Please help if you have experience plaquenil as treatment or someone else. I am afraid of side effects ( affects lung, kidney, bones , eye etc.) it help now but causes you trouble later on.

    I am going to see my rhumatologist tomorrow but I haven’t decided yet if i am going to start the treatment.

    thanks

  21. SANDJOY54

    Can anyone with Lupus tell me how long it took to get diagnosed with it?
    I have been going and getting tested now for months, and one time I am positive and the next negative for Lupus. It is frustrating because the symptoms are still there, and I constantly have to give blood for one abnormal lab after another, but no one has yet to confirm anything. And because they can’t confirm anything I can’t get any form of treatment. I am very frustrated.

    1. AbLM

      I don’t have it myself, but my mum does. She had lots of symptoms for a long time, they got worse and eventually she was diagnosed with it. All you can do is make sure the doctor treats you for the symptoms and make them aware that waiting around to be treated for Lupus itself is frustrating you. There was lots of blood tests with my mum too, but if you have it, you’ll be told. Just do what you can to ease symptoms right now until that time comes. I hope all goes well

    1. mlk_maid

      Lupus attacks your organs. Usually a butterfly rash across the nose and cheeks is a common first sign. There are treatments for arthritic that help with inflammation, also chemotherapy in small doses (pill form) help slow it down. I don’t believe there is a specific test to diagnose it. It is usually diagnosed on symptoms. Prognosis depends on the severity of it. A lot of people live a normal life with it.

  22. Lady Prism

    People diagnosed with Lupus… need help and info!?
    I do not wish to write a paper about all the details and symptoms, so I’ll just summarize, then ask my question.

    Over the last 5 years, I have had symptoms of EXTREME fatigue, joint pain, canker sores, mild hair loss, etc. I am also anemic (which no amount of iron or B vitamins changes in the slightest). In this time, I have also had a false positive Syphilis test, and chronic kidney stones (3 in 7 years).

    In August of 08, I developed a cough that STILL has not gone away. I have been to TONS of doctors and been diagnosed with pneumonia, asthma, bronchitis, allergies, etc, and put on more antibiotics than I care to think of… all the antibiotic treatments actually made me feel worse.

    I also developed a sudden, strange rash on my leg after being out in the sun for a couple days… which also has not gone away. And more recently, I have a light butterfly rash on my face.

    Last month, I finally found a doctor that said “Wow… 8 of the 11 symptoms of Lupus… let’s get you tested.” I was x-rayed to check for Pleurisy (in the lung tissue), and put through about 10 blood tests (also checking for lyme disease, just in case).

    Even after the false positive Syphilis, and the anemia, I tested negative on the ANA test. Kind of. I tested higher than normal, but apparently too low to make a full diagnosis of Lupus.

    What does this mean exactly? Is there such a thing as borderline Lupus? And I know there are a few other diseases that mimic Lupus… but what are they? I know that Fibromyalgia is one of the “mimic” diseases, but would that also account for the blood disorders that I DO have and the rashes?

    I do have another appointment with my doctor in a couple weeks, and I also know that making a Lupus diagnosis can sometimes take a while… but has anyone had the negative ANA issue and still been diagnosed with SLE? And what was your experience… anything I should ask my doctor to look for on the next visit?

    Thanks!
    Oh, they did also check my thyroid… everything normal there.

    And should I mention, also, that my symptoms began during pregnancy and have gotten progressively worse? This has been going for about 5 years… and just now I’ve screamed loud enough that I am being taken seriously.

    1. Constance

      Unfortunately it may take years to DX Lupus. I had all of the symptoms you do and saw a Rheumatologist for about 5 years before my ANA was positive. In the 5 years I also had a pos. Scleroderma and Sjogrens. All along my doctor said that probably I would develop Lupus buy it was a wait and see. Keep a diary of your symptoms and continue to see your doctor. Hope this helps.

  23. Meggin

    Whats wrong with me?????? HELP!?
    I’m a 20 year old female & I’ve been dealing with a chronic low grade fever for over a year now. It comes and goes, usually around 99.3-100, though in a great while it gets higher and I’m tired all the time.
    Last year I was dealing with (what I though to be) sinusitis. I was having burning headaches, low grade fever, fatigue, congestion, weird smells, & pain behind my left eye. Blood tests showed my white blood cell count was elevated. I was referred to an ENT who did a CT scan (turned out normal) and looked up my nose into my sinuses and said that everything looked normal. I was then told to get my eyes looked at, that trip reveled a slightly elevated eye pressure and blind spots.
    After a trip back to my nurse practitioner I was referred to a Neurologist. He told me he thought it was Paroxysmal Hemicrania and prescribed me with Indomethocin. That med helped for a little while but the the stabbing headaches came back so they upped my dose, which helped for about a week. I had a follow up with my NP who did more tests (west nile, lymphoma, lukemia, lupus, hiv, hep c, strep, among other infections I can’t even remember.. way too many tests) but they all came back normal. She then referred me to a Cardiologist after discussion of a prior pin sided hole in my heart (from 2002), a GI (from history of IBS), as well as a Hematologist (after another blood test showed my white blood cell count had risen some more).
    In between all these dr visits I had my teeth checked and had to get a cap redone because it was decaying inside.

    I then went to Hematologist and Cardiologist, both ran tests, all came back normal. The GI said my stomach pain and tenderness was probably caused by the Indomethacin, which may have caused problems with my stomach acid and possibly an ulcer, for the headaches and suggested a lower dosage (which the Neurologist said was a bad idea).

    My NP told me to call her with all info after I had seen all the specialists, she then suggested I see a Infectious Disease Specialist… I have yet to go because at this point I was just totally fed up with getting no answers, going from dr to dr, and feeling completely miserable all the time. So I stopped going back to the dr and stopped taking all my meds, in hopes that I would possibly feel better. ( I thought that I was just making things worse by loading up up on medication). After about a week of stopping my meds my stabbing headaches were a lot less. I’m assuming this is because I got my tooth fixed and stopped taking that Indomethacin (I’m pretty sure that just made my headaches worse). Other then that everything is pretty much still the same.
    I’m having fevers almost every day, & after a few hours they break and I get really sweaty. I have occasional stabbing headaches (left side of forehead and behind my left eye. I still have the burning feeling in my forehead and nose when I breath, as well as BRIGHT GREEN BOOGERS! <

    1. QuiteNewHere

      All the symptoms you have mentioned are general and my first guesses were chronic infection due to dental caries and the more difficult to diagnose CML.
      I had a friend whose son developed some of these symptoms and when the dentist dealt with it and put him on an antiiotic regimen, it resolved very quickly.

    1. Anama

      It is an autoimmune disease, and to explain it here would be silly when there are literally thousands of sites dedicated to lupus. There is a search engine on yahoo! ,please try using that.
      Suggestions:
      Lupus cdc
      Lupus foundations

  24. sante

    I am so afraid to take plaquenil for lupus treatment! any natural cure?
    Does anyone has an experience with plaquenil? or some one knows a natural way to cure lupus? I am currently taking oil fish, cellfood and recovery( for joint pain) and multi-vitamins.

    I am 30 yrs and was diagnose 8 months ago, no internal organs involves and the only symptoms are fatigue and joints pain.

    Please help if you have experience plaquenil as treatment or someone else. I am afraid of side effects ( affects lung, kidney, bones , eye etc.) it help now but causes you trouble later on.

    I am going to see my rhumatologist tomorrow but I haven’t decided yet if i am going to start the treatment.

    thanks

    1. Science Geek

      You do realize what lupus is right?

      Listen, I know you’re scared. Anybody would be with that diagnosis. But the drugs are safe. The side-effects are minimal. Not taking the drugs and pretending that there is a natural cure is dangerous. You need to understand that the drug was prescribed because it was proven effective in the treatment of lupus. There are side-effects with any drug, even natural ones. What you need to do is weigh the potential benefits of taking the drug versus the potential consequences of side effects and of not taking the drug. Lupus is a highly treatable disease but there is no cure for it. The treatments are proven to be effective and safe as long as you follow the doctors orders.

  25. Jewel

    What are the differences between Lupus, MS, and Fibromyalgia?
    I’ve been seeing the doctor lately to try to get a diagnosis finally for problems I’ve been having for over five years…everything from muscle tensing and spasming to shooting pain and sensitive skin.

    I had a blood test today that will determine if it might be Lupus, and I have an MRI coming up soon that will determine if it might be MS. The doctor says that fibromyalgia is a ‘rule-it-out’ diagnosis, that if nothing else fits, it’s fibro.

    What are the differences between these three disorders in symptoms, effects on daily life (I already know that whatever I have it effects me a LOT, making it difficult for me to do anything on some days but take some Vicodin and lay in bed), and treatment plans…also, what are the long-term prognosises for these disorders? Do any of them have a cure, or a management plan that relieves all symptoms?

    I am happy that I am finally getting all the testing done to get a diagnosis finally so we can begin treating the problems, but I am concerned…I have heard a lot about fibro (my sister-in-law has fibro, and my father had fibro), and a little about MS…neither seems good at all, and I don’t think either have a cure or total management of symptoms? I don’t know anything about Lupus, however.

    1. RightPet

      Hi – the three conditions are quite different in their underlying disease processes, but do produce some overlapping symptoms.

      Multiple Sclerosis (MS) is an auto-immune disease of the central nervous system (CNS). In Multiple Sclerosis, inflammation of nervous tissue causes the loss of myelin, a fatty material which acts as a sort of protective insulation for the nerve fibers in the brain and spinal cord. There are 5 basic types of MS and some of the more common symptoms include: fatigue, heat sensitivity, pain, spasticity (muscle cramps and spasms), cognitive problems, depression, balance and coordination problems and bowel & bladder symptoms. Symptoms will vary depending on the course of the illness, and according to the type of MS the individual has.

      Like MS, Lupus is also considered to be an autoimmune disease. For reasons that are not yet clear, in autoimmune diseases the immune system loses its ability to tell the difference between foreign substances (antigens) and its own cells and tissues. The immune system then makes antibodies directed against the “self.” These antibodies, called “auto-antibodies,” react with the “self” antigens to form immune complexes. The immune complexes build up in the tissues and can cause inflammation, injury to tissues, and pain. In contrast to some other autoimmune diseases, lupus can affect many parts of the body, including the joints, skin, kidneys, heart, lungs, blood vessels, and brain. Although people with the disease may have many different symptoms, some of the most common ones include extreme fatigue, painful or swollen joints (arthritis), unexplained fever, skin rashes, and kidney problems. For some people, lupus is a mild disease affecting only a few organs. For others, it may cause serious and even life-threatening problems.

      Fibromyalgia Syndrome (FMS; FM) is a common and chronic disorder characterized by widespread muscle pain, fatigue, and multiple tender points. Current thinking is that FMS probably begins with a genetic predisposition, and is triggered by exposure to a number of possible stressors – including physical injury or emotional trauma, childbirth, medical operations, viruses, bacteria such as mycoplasma, chronic allergies or chemical toxins. Pain is the most common Fibromyalgia symptom and is necessary for an official diagnosis. According to the American College of Rheumatology diagnostic guidelines, Fibromyalgia is characterized by widespread pain of three months duration or more and pain in 11 of 18 “tender points”. A tender point is a pressure point that, when pressed, feels sore. There are 18 defined tender, or pressure, points on various parts of the body, from the elbows down to the knees.

      As your doctor has explained, there are lab tests for MS and Lupus, but not for FMS. But a tender point exam with a doctor who is knowledgeable about FMS, along with your medical history of fatigue and pain, could quickly determine if FMS is what you are experiencing.

      Treatments for the 3 conditions are very different. The gold-standard treatments for MS are the 3 interferon meds, Copaxone and now a new med called Tysabri. Lupus has had fewer treatment innovations it seems – and Prednisone (a steroid), Plaquenil (an anti-malarial med), and some chemotherapy meds are the ones most commonly prescribed. FMS now has a couple of FDA approved meds – Cymbalta (Duloxetine), and antidepressant which helps with pain and fatigue, and Lyrica (Pregabalin), an anticonvulsant which helps with both symptoms too.

      Good luck in the diagnostic process – this can be so frustrating!

  26. Toaster o' Death

    Are the medical terms used in House M.D. real?
    The terms that gregory house uses in the movie… are they real?

    like adavan and epinephrine for seizures, and vicodin for pain, all the other diagnostics and symptoms, are they really used like they were in actual situations?

    or do they rely on the fact that viewers have absolutely no clue about what they are talking and doing over there. they say things like sarcoidosis, lupus and other diseases… are they really associated to the symptoms that they find? and the treatments as well, with interferon and plasma(something)???

  27. angelinaismywifey

    My LYMPH NODES are extremely palpable (for years) i have lost TOO MUCH WEIGHT, what is wrong?
    Hello….if anyone would like to try to DIAGNOSE ME, I’d be SO GRATEFUL AT THIS POINT!
    ….. i’m 30 year old female, with a 10 year old son and had a thoracic fore gut tumor(benign) removed from my chest @ 15, a good portion of which was attached to my lungs, aorta,esophagus, Trachea.
    To Date- no known complications or regrowth.
    109 lbs
    5’3″
    hypothyroid, on synthroid
    Had IUD recently placed in cervix
    amphetamine salts,celexa, lorazapam for depression/fatigue and ADD
    MY SYMPTOMS:
    CURRANTLY AND THIS PAST YEAR: Generalized Swollen lymph glands(some firm and hard in groin area. Also where my hairline is in the back of my neck behind my ear i guess, and a few large ones up the side of my neck aligned with my shoulder), Re currant low Grade Fever(no higher than 101 w/out infection),Itchy Skin, Memory Loss,Hair loss, Acne,Bowel Changes,On and Off fatigue, mucus in my stool(for one year at least.More mucus than actual stool on average! SORRY TO BE SO GRAPHIC! Lower Back Pain, DULL ACHING PAIN on the inside of my knees,stiff neck,ankle pain after being on my feet for more than an hour.Also extremely dry; mouth,skin,hair,eyes,&nostrils, dizziness upon standing, sweats,wounds heal slowly, weird painless swelling above my butt where my dimples are(no dr has been able to guess why/what this swelling might be),diarrhea and constipation, tenderness above my belly button, hyper pigmentation on abdomen, arms and feet, anxiety, blood pressure has steadily increased throughout all of my many dr’s visits this past yr.
    ADDED RECENT SYMPTOMS:Kidney pain, visible blood in urine: for 2 months now! it was bright red and then less visible for awhile and now dark brown like tea and extremely strong smelling, hardening and bloating of abdomen, extreme fatigue, productive cough, chest pain, neck pain,easily exhausted, unexplainable bruises, muscle spasms and bulging type pain JUST under my rib on both sides separately, weird stabbing pain on my left groin area near my larger lymph glands that makes my tendon look swollen, thrush, protein in urine, HI albumin in urine, repetitive rbc in urine, BUT NO INFECTION!! (multiple negative cultures), kidney stone shows on CT in an area that is expected to be asymptomatic and may not even pass. BUT I DO HAVE difficulty urinating and cramping JUST PRESCRIBED CIPRO FOR A SECOND TREATMENT. (not sure exactly why since culture is consistantly negative)

    Many tests HAVE BEEN DONE: …..All Basics(CB C’s, liver, etc panels) + Lyme Disease,Hep(B,C etc), ANA,Sed Rate,R.F.,AIDS, Celiac Disease,Fecal Bacterial+Viral cultures,Lupus,Syphilis, Gonorrhea, Chlamydiae,Anemia, scleroderma, h. pylori, bladder cancer,
    P.C.P. says: hematologist &will do allergy & routine testing upon insurance ok
    E.N.T(ear,Nose&throat) says: inflammation or irritation down deep in my throat(but i smoke so…)
    GASTROENTROLOGIST says: gastritis, hemorrhoids,IBS, lymphoid aggragates in non lymph areas
    UROLOGIST says: extreme gross & microscopic unexplained hematuria, referral to hematologist(concerned about enlarged lymph’s in groin and unexplained hematuria———says kidney stone most likely not causing this amount of rbc,did FISH URINE TEST…NO CALL SO I’M GUESSING ALL CLEAR ON RESULTS)
    HEMATOLOGIST says: i’m thin so nodes are more palpable s we should wait. does not believe biopsy is neccessary at this point
    RHUEHEMATOLOGIST says: no signs autoimmune, non arthritic/ lupus like disease
    GYNOGYNECOLOGIST says: no infection, no discharge see urologist…
    DERMOTOLOGIST says: see rhuemotologist! lol, biopsied pigmented marks(inconclusive-possibe allergic reaction)

    i am waiting on results of a chest CT from HEMATOLOGIST because he heard alot in my lungs and another aids test(that’ll be 4 tests in the last yr(all negative)

    I’M SURE THERE IS MORE INFO I”M NOT OFFERRING
    but i can’t remember everything! lol any EDUCATED ADVICE would be appreciated
    THANK YOU!!!! i feel so helpless when i am sooo tired or weak….. i just want a solution!
    PLEASE HELP!

    1. PoisonTrees

      See what the CT results are. If you get no answers there, I would go to a different hematologist and insist on a biopsy. If you can’t get answers switch to a hospital that specializes in diagnostics.

  28. Thermal Mercury

    Lupus – ways to combat it?
    My Mum has had Lupus for a while, basically her neck is always flared up, her asthma is made worse by it, it generally makes her feel weak, plus she has mild arthritis which doesn’t help. She has also had hair loss, all of these things seem like Lupus induced problems.

    She lost weight, 3 stone, and there was very little difference (though shes always been a bit overweight) So what ways can these symptoms be fought off? Shes only in her thirty’s but her illness makes her as weak as someone in her seventies or beyond.

    She has hair treatment to stop her hair loss, it’s expensive but it does the job…at the moment at least. But we think the hair loss might not have been lupus as it happened after a shock to the head.

    If anyone knows genuinely how she can be helped it would put us at ease, she is far from crippled but her arthritis is gradually progressing and the Lupus is still as evident as ever, so eventually she may be….

    1. Eric

      i have found that working out and cardio exercise such as running helped me… i decrease my medicaions and haven’t felt better. i could bairly walk out the hospital, now i run a mile and a half everyday and lift weight every other day. i take 3 pills less then i did a year ago.

  29. cortlin.harrison

    is this a good research project please be honest?
    Cortlin Harrison Science 10-12
    Mrs. Cooney/ Mrs. Barends ELA 21-23
    May 19, 2009
    Antiphospholipid Syndrome

    Antiphospholipid Syndrome is a disorder in which the body recognizes certain normal components of blood and/or cell membranes as foreign substances and produces antibodies against them. This disorder is non-infectious which means that this disorder can’t be passed from person to person by contact. Pregnant women are more prone to get this disorder than anyone else, and African Americans, and Hispanics but like other disorders anyone can get Antiphospholipid Syndrome

    The symptoms and characteristics of this disorder are not hard to spot. Some symptoms of the disorder are veins or arteries of the arms or legs may cause pain, numbness, tingling in the feet. Arteries of the heart may cause chest pain or heart attack, the individual with this disorder may have heart murmur. In pregnant women with Antiphospholipid Syndrome, miscarriage can occur prior to 20 week of gestation, while pre-eclampsia is reported to occur after that time. Blood vessels of the skin – may cause painful bruises (purpura) or a condition called livedo reticularis. Blood vessels of the brain – if a clot cuts off blood supply to a part of the brain, this causes a stroke. An individual with APS may also experience migraine headaches or seizures.

    There is no cure and there is no way to avoid getting this disorder. There are many treatments for this disorder. But the most successful treatment is anticoagulant therapy. This is usually successful in preventing further blood clots. This disorder can severely damage the body in many different ways because good cells attack other good cells and that causes chaos through the body. And when a weak or strong pathogen enters the body it can be deadly.

    Some other information about Antiphospholipid Syndrome is, 1-5% of the world population is known to have this disorder, and 40-50% of patients with lupus also have APS. One third of strokes occurring in younger people (under the age of 50) are due to Antiphospholipid Syndrome. One third of patients with Antiphospholipid Syndrome are said to have lupus, and or Raynaud disease. APS is more common in young to middle-aged adults; however, it also manifests in children and elderly people. Disease onset has been reported in children as young as 8 months.

    This disorder is very rare and not very deadly but this disorder can still affect your way of life, the way you think, and can make you dizzy and other things. My mom has this disorder and sometimes it’s hard to get around and such, but you can still fight back by eating a healthy diet and seeing a special doctor called a Rheumatologist, this doctor specializes in these types of rare disorders.

  30. jaz mie

    what is SLE(Systemic Lupus Erythematosus)?
    please explain to me SLE (Systemic Lupus Erythematosus) more, so i can fully understand the illness.
    i want to know about the possibility of death on teenagers who suffer SLE.
    are there teenagers who’re aware of their illness and can already predict when they’ll pass away?
    are there cases like this?
    who are the persons who’re usually having SLE?
    what are the causes?symptoms?treatments?
    do they have medications?

    thanks!

    1. unny

      Systemic lupus erythematosus , often abbreviated to SLE or lupus, is a chronic systemic autoimmune disease (or autoimmune connective tissue disease) that can affect any part of the body. As occurs in other autoimmune diseases, the immune system attacks the body’s cells and tissue, resulting in inflammation and tissue damage.

      SLE most often harms the heart, joints, skin, lungs, blood vessels, liver, kidneys, and nervous system. The course of the disease is unpredictable, with periods of illness (called flares) alternating with remissions. The disease occurs nine times more often in women than in men, especially women in child-bearing years ages 15 to 35, and is more common in those of non-European descent.

      Treatment

      SLE is treatable through addressing its symptoms, mainly with cyclophosphamide, corticosteroids and immunosuppressants; there is currently no cure. SLE can be fatal, although with recent medical advances, fatalities are becoming increasingly rare. Survival for people with SLE in the United States, Canada, and Europe is approximately 95% at five years, 90% at 10 years, and 78% at 20 years.

      Symptoms

      SLE is one of several diseases known as “the great imitators” because it often mimics or is mistaken for other illnesses.[7] SLE is a classical item in differential diagnosis,[3] because SLE symptoms vary widely and come and go unpredictably. Diagnosis can thus be elusive, with some people suffering unexplained symptoms of untreated SLE for years.

      Common initial and chronic complaints include fever, malaise, joint pains, myalgias, fatigue, and temporary loss of cognitive abilities. Because they are so often seen with other diseases, these signs and symptoms are not part of the diagnostic criteria for SLE.

      Causes

      There is no one specific cause of SLE. There are, however, a number of environmental triggers and a number of genetic susceptibilities

  31. sante

    Was I misdiagnose? lupus or weak immune system?
    8 months ago while I was pregnant, I was diagnose with lupus. But the only symptoms that I am experiencing is joints pain and fatique some times. My doctor said that all of my organs are fine, I do not have a butterfly face neither skin problem. I wonder if the diagnosis was wrong.

    Does a weak immune system can cause thoses symptoms? I refuse to go on hormones treatments and trying to work on strenghtening my immune system first and hopefully reverse the condition.

    your experience and advise are welcome

    1. reifguy

      lupus is many stages ,and there is discoid and systemic lupus ,the immune system isnt weak in lupus its reacting in a way damaging the body and causing problems and inflammations ,if your diagnosis wasnt correct or u doubt it ,get a second opinion from a rheumatologist ,diagnosing lupus isnt easy in early stages and once diagnosed many go through remissions and relapse ,

  32. screamingfreedom

    I agree with the above. See your doctor. Lupus can only be diagnosed by a doctor not a discussion group. Whether it is lupus or some thing else you want to catch it early.

    Most of your symptoms are not consistent with lupus. To be diagnosed with lupus you need to match at least 4 of the symptoms.
    * Butterfly rash
    * Discoid rash
    * Photosensitivity
    * Mouth ulcers
    * Arthritis
    * Inflammation of the lining of the lungs or the lining around the heart
    * Kidney damage, as noted by the presence of protein or other abnormal substances called casts in the urine
    * Seizures or psychosis
    * The presence of certain types of anemia and low counts of particular white blood cells
    * The presence of certain immune cells, anti-DNA antibodies, or a falsely positive test for syphilis
    * The presence of antinuclear antibodies.

    From your list I see 2 that match.

    Any way you should not feel the way you do, so you need to see your doctor and find out what is going on.

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