If you or your loved one are experiencing adult bed wetting episodes, it is vital that you seek the council of a doctor straightaway. As this is not a normal situation, it means that something is physically wrong, what’s more this sort of bed wetting may not be cured over behavioral treatments. While these methods are excellent for children, adult bed wetting is typically biological in nature moreover must be dealt with accordingly.

Adult bed wetting can be caused by the autoimmune disease, Lupus Nephritis. Nonetheless, because of the nature of bed wetting, in addition even the nature of Lupus Nephritis, it is fundamental that you evaluate all possible causes of bed wetting in adults prior to jumping to any conclusions.

One thing is for sure, nevertheless: adult bed wetting is not a conventional behavior under any circumstance, in addition is an indicator that there is a problem. Whether your adult bed wetting is due to Lupus requires to undergo a lot of diagnosis. Any necessity that affects the kidney or bladder can cause bed wetting, so having this symptom does not necessarily mean you are affected by Lupus.

If your adult bed wetting is caused by Lupus, one of the only long term solutions to the problem is to utilise medications that assist to control urination. However, there are some products that you can employ to aid create your life more comfortable while you endure finished bed wetting episodes. Adult diapers built for bed wetting can prevent the require to do a lot of extra laundry, while there are likewise bed wetting alarms that may wake you up as urination begins. While it cannot remove the embarrassment of bed wetting, it can go a long way to limit the most uncomfortable aspects of bed wetting.

It is required to keep your esteem extreme if you suffer from bed wetting as an adult. Low esteem troubles can bleed out into other aspects of your life, ranging from work to family. As Lupus is a difficult disease to deal with to begin with, being able to keep yourself from depression may assist lower the consequences of bed wetting in your life.

For those who are just developing the beginning symptoms of Lupus, it is typically simply a matter of time before adult bed wetting episodes begin to occur. Consulting with your doctor is only the first step in aiding rectify the problem. option medicine furthermore hypnosis may similarly help to limit the frequency of episodes and create your life a lot simpler.


82 thoughts on “How Is Lupus Caused

  1. MaluLanix0x

    How common is it to have both psoriasis and lupus (SLE)?
    yes, i knoe they are autoimmune disorders, but how common is it to have both. Would the Lupus cause the psoriasis?

  2. toxicfievre

    can treatment for lupus cause you to lose your memory?
    someone i knew said he had lupus and had to get a treatment that would cause him to lose 4-6 months of memory…is this possile and how.and will he remember stuff later on??

  3. Zach

    How is the disease Lupus caused?
    I just found out that Lady Gaga has it and I want to know more about it. Also, what happens to you when you have Lupus? THANKS!!!

    1. Miuccia

      Well, she’s border line positive, so she doesn’t have it yet, but it is more likely that she will get it.
      It’s genetic, her Aunt died of Lupus in I think ’76. Lupus can cause skin rashes, mouth sores, I’ve heard of some women being infertile, But i don’t think that happens to every woman with lupus. Joint pain is the biggest thing. Heart palpitations, trouble, breathing and fatigue(Which Gaga has experienced and cancelled shows because of). Lupus can be as minor as discomfort and as severe as death. but with current medical advances death is unlikely. I’m not a doctor these are just things i’ve read online, Because i’m a Gaga fan

  4. Jaide

    Can hepatitis cause lupus or lupus cause hepatitis?
    I was told I have lupus by my dr and then I saw him not long ago and I said how tired I am ALL the TIME! He said that he wanted me to be tested for hepatitis A, B and C. So.. I am, but can one cause the other, or make the other worse? I have a friend that wants me to treat my lupus and possible hepatitis naturally, but I don’t know if It would work and I dk what to do. I haven’t got the test done yet, but I lost alot of weight and got sent to the dr and he said back then I might have lupus then last year I saw him later in the year again and he said I have it but then I saw him this year and he said since I’m tired all the time to get this test done, I heard if you have hep and lupus that if you try to treat the hep that it can make lupus worse. And my friend wants me to get this stuff treated naturally. :/ I jus don’t know what to do and Idk if either way is good. I’m currently not on any medicine for lupus. Ty for your help. Happy Resurection Day and HUGS :))
    Ohh.. I guess cuz my Dr. thought it was mild. O_O I have no idea. Ty for ur help though=)

    1. Linda R

      Hepatitis is inflammation of the liver. It is caused by a virus. It is contagious. Lupus is an autoimmune disease. The two are not related. When you have lupus, you do have a harder time fighting infection.

      Absolutely do not let your friend treat either disease. You are gambling with your life. Some things that are “natural” actually make lupus worse. I have to wonder why you are not on medication for lupus. With lupus, you can develop permanent organ damage and you won’t have symptoms until you are in serious trouble.

      It is not natural for your immune system to turn against your body. That’s what happens in lupus. If you are going to look at the larger picture, you should eliminate all toxins from your food, water, clothing, personal hygiene products, carpeting, paint, soaps, atmosphere, etc. You can reduce the body burden but you can’t eliminate it. Also, exercise and stress reduction are essential to managing lupus.

      It is your body and your life. Don’t be swayed by pressure from people who rarely have solid scientific evidence. Ask your friend for articles that report on double blind placebo studies with good sized popluations and that are published in peer reviewed journals. You won’t get any. You will get anecdotes about somebody who got better. But were they like you? Same age? Gender? Medical history? Combination of conditions? Same lifestyle? Same genetics?

      Remember that hemlock and arsenic are natural, and they can kill you.

  5. Pixie_Mummy

    Blood test for Lupus?
    Hi everyone

    I am 12 weeks 5 days pregnant. My mother has Lupus (SLE) and at my last appointment at the ANC , my consultant asked me to go to phlebotomy for a blood test to see if I am also carrying the disease.

    I have read a lot about Lupus to be more aware of my mum’s condition, but until today had never read anything about Lupus and pregnancy. Now I am really worried as Lupus can cause Hughes Syndrome, which causes clots to form and the baby to be starved of blood resulting in miscarriage, and because Lupus causes too many antibodies and it attacks healthy living tissue maybe there’s a chance this can also harm my baby. I am already taking junior aspirin to minimise the risk of clots occurring.

    How long do blood tests normally take to come back? I need to put my mind at ease over whether I have it or not, and is there also any Lupus patients on here that have had healthy pregnancies?
    **EDIT**

    The aspirin I am taking were prescribed by my consultant. Thanks to the people that have answered for all the information you have given me. I just didn’t feel that the hospital gave me any reasons why Lupus is considered a threat in pregnancy, and have done my own research and got a bit worried by it all I suppose.

    1. Linda R

      Lupus is not directly inherited, so you can’t be “carrying” the disease.

      There are no definitive lab tests that prove that you have lupus.

      Your blood can, and probably should, be tested for APS (Antiphospholipid Antibody Syndrome) or Hughes. Chances are good that if you have had no active lupus and no problem with blood clots in the past, you will be just fine.

      Do not take aspirin or anything else without speaking to your obstetrician first.

      Many women with lupus have successful pregnancies. I am one of them. I lead a lupus support group. Most of the women there have healthy children and even grandchildren.

      If you want to know how long it takes for the bloodwork to come back, call your doctor’s office. The length of time will depend on what tests were done and where the specimens had to be sent.

      I am 57, have systemic lupus with organ involvement, have two healthy adult sons and two healthy grandchildren. Chances are very good that you and the baby will be just fine!

    1. JagJag

      We don’t know yet was causes lupus. It is an autoimmune disease, meaning that the immune system attacks tissue that it shouldn’t attack. There are various theories about the cause of lupus and none of these have been confirmed. However there is a substantial genetic factors, and some genes are definitely linked with the lupus. The most appealing theory is that some viruses are involved as a cause, but only in the case when the person has a predisposition for such disease in genes.
      Diet isn’t involved as a cause.
      The frequency is as following:
      USA about 50 per 100,000 in northern Europe about 40 per 100,000. Females are affected about 9 times more frequently than males. People with Afro-Caribbean descent are effected in about 160 per 100,000.

  6. £££££££

    Have you noticed that ……………..?
    black and hispanic women want have the skin white?
    for example beyoncè do skin-whitening on her self,like jennifer lopez and madonna’s daughter(she’s hispanic).i saw the pictures of beyoncè and jennifer lopez when they were teens and they had the skin very dark.madonna’s daughter have the skin very dark too,but she began to lighten the skin at 12 years old.
    and now she’s only 14.
    why they want have the skin white?they’re ashamed to have the skin dark,to leave the skin with the original color? why?????
    what do you think about?
    serious answers please.

    a girl said me this in a other question:
    ”I started taking good care of my skin, since age 9 by avoiding the sun: 1. Because I don’t want to look like a farmer.
    2. Because I get too hot.
    3. I want to look like movie stars & models, they have blemish-free skins.
    4. I don’t want to look like an old prune or get moles on my neck & face like my aunts.

    No matter, I still got Discoid Lupus (Google it), caused from the sun. It took 12 years for them to fade. Tried all kinds of lotions that were prescribed to me, and none of them worked. More & more now I protect myself and I take my wide brim hat everywhere I go, or use an umbrella. In Asia, they use umbrella all the time. Here in the States, people started to catch on, and I see people walking w/umbrella, they are used on the beach, and they sell patio umbrellas. It was invented for a reason and also to protect us from getting skin cancer. Gene Simmons of KISS, have moles on his face & neck, now you see him under an umbrella with Shannon, during an outdoor event. Mario Lopez won’t even go out in the sun to do a photo shoot for a tanning commercial, look how good his skin looks”
    i would like to have SERIOUS answer,psychological answers.
    and i repeat that the people that i have mentioned,the original color of their skin is dark

  7. agonisticstudent

    Lupus and Sudden appearence of rash – cause for concern?
    I am a 20 year old female diagnosed with SLE (Lupus) and woke up this morning with rash over most of my body which is also spreading. It has not affected my arms or hands so far and has leveled off now but is still spreading onto my face. The rush does not itch at all, but my face feels slightly sore/wound and my ears are quite red and hot. I do however not have a proper fever only a very slightly elevated temperature. I have not eaten anything noone else ate (and no one else has any problems) or worn any new cloth/new body cream/new perfume or anything which might easily cause a reaction.
    How likely is this to be caused by my lupus? Is this serious reason for concern or probably a rather benign symptom? Would it likely to be an isolated incident or rather a new symptom which might occur a lot from now on? What are the potential treatements and how long would it take for the rash to wear of?

    Many thanks to anyone

    1. Linda R

      It could be lupus. Even those of us with SLE get weird rashes.

      Lupus patients often feel feverish or actually run fevers for periods of time.

      When in doubt always call your rheumy. When people have acute medical issues like a broken leg or strep throat, they follow doctors orders and that’s it. When you have a chronic illness like lupus, you and your doctor become partners in your lifelong health care. Give the rheumatologist a call.

  8. Gabe

    How can i help my dear friend who’s going down a very bad path in life that will kill her?
    I care a hell of a lot about my ex girlfriend. We broke up because we argued a lot but i still like her as much as i did. I hadnt talked to her in a few months and we recently began talking again. She is paralyzed from a severe form of lupus that has nearly killed her multiple times and so is very fragile yet she tells me she doesnt care if she lives anymroe and wishes she’d die.

    She’s picked up her ex boyfriend from the past and started smoking pot with him and abusing her pills she gets for her migraine headaches from her disease. Her boyfriends even asking her to do cocaine with him and all this crap and she told me she wants to try it, drop out of college, and just have a baby with someone.

    She’s not like that though! and it kills me knowing she is like this. i talked to her for a long time yesterday trying to reason with her about what she’s doing to herself and how dangerous it is especially with having such a severe form of lupus that can cause her death at any moment. I dont want her to die. She almost died in my arms once before and to think of that happening kills me. I want to get her help but i dont know how :(.

    1. White Bird

      You are all ready helping her by being the who cares how her life can be With out being sad for her sickness helps her to be open with you treat her like any one else be forward on what you need to say and let her know you love her that is all you can do cause she will try things any way and you have to stand tall for her cause she has someone else pulling the strings and showing her disrespect that is all she needs now is for YOU to be the tough one!! It wont be easy for you but you say you care then you take her for how she will be and be there when she falls and that she will!! Stay in her life keep showing her you love and friend ship if you turn a blind eye to it all she will die before ger time and you have to keep letting her know you dont approve and tell her always that you love her she will get it. I had a friend who was dieing of cancer and decided to smoke crack every day, I hated the people who did those things with her, She did her thing for a while and I was there in the back ground letting her know how much I hated it and one day she finally got so sick of it all and told me she quit and wanted to life a better life before she died and it was because she saw the hurt on the faces of the people that truley love her. It is easy for us who do not have a sickness to see the bad but sickness gives that special pereon a diffrent point of view for a while any way, You can say they feel sorry for there selfs and dont want to under stand a life in pain and who are we to say we truley know how it feels each day all you can do is be there, It will take a toll on you be ready for that honey and I feel for you but PLEASE stand by her She needs you she just doesnt know it yet. Be strong and I pray for you for all the tough love you will be giving and I will Thank You for all you are about to do.Honey I just want to say this you are only human and your heart can take only so much hurt please do not forget your self!!!

  9. lwa519

    How long to get rid of Drug-Induced Lupus?
    I recently found out that I have Drug Induced Lupus caused by long-term use of the antibiotic Minocycline. I’ve been experiencing extreme joint pain (to the point that I can barely walk or even open and close my hands most days) as well as some other minor symptoms like low-grade fevers, stomach problems, etc.

    I stopped taking the Minocycline a week and a half ago when I found out and my doctor gave me a prescription for taking a 400mg Ibuprofen tablet in the morning and another at night.

    It was my understanding that my symptoms would get better every day and be completely gone in about a week or two, but the joint pain is just getting worse. No more fevers or stomach problems, but almost two weeks later I’m as bad as I was in the beginning. I have good and bad days, but the bad days are REALLY bad! Today I almost couldn’t get out of my bed and getting down a flight of stairs was absolute torture. The Ibuprofen just isn’t helping anymore, the pain is too much.

    Is this normal? Should my symptoms be coming and going with no real improvement two weeks after stopping the drug that caused this? I thought I was going to get better every day but it’s not happening.

    Thank you for the help!

    1. Kisses123

      The only way I know of to get rid of drug induced lupus is to completely stop taking the medication, but I am not fluent on lupus, i have only learned about it in my Immunology class… It may be possible that the drug you were taking had some serious affects on you and are causing you to be symptomatic for longer that estimated… Drug induced lupus is different for everyone depending on the severity of the disease… There may even be a chance that stopping the drug did not completely stop the lupus in its tracks… If your symptoms persist, I would suggest seeing a doctor and discussing another way to combat it or even getting something else other than ibuprofen like corticosteroids because maybe ibuprofen is not helping you… I know that when I had an allergic reaction, it lasted for a month and my doctor told me it would only persist for about 2 weeks… every day I felt worse and worse and was constantly getting esophagus spasms… the one day it went away it was like with the snap of a finger… I know that lupus is an autoimmune disease, so your body will end up attacking itself… I think now you are at the point where you need to wait it out and let your body sort out whats going on within it… Once that drug is completely out of your system, it “should” recover… Antibiotics can live within your body for weeks (even longer than the 2 weeks thats why my allergic reaction to them went on for about a month)… There have been reported cases of Drug induced lupus that have not been cured from just stopping the antibiotics, so be sure to keep an eye on it, but try not to overstress about it or you can cause your body to “believe” you have it and make you feel the symptoms even when you dont… (im guilty of doing this myself…) Sorry I am not of much help, but for now try not to worry and relax… Since it has been two weeks, that is plenty of time for you to call the doctor and state you are not getting better and decide on another plan of action… Feel Better!

    1. Rita V

      Laur, Lupus is a auto- immune disease its like your body is allergic to itself, when you have infection your white cells usually go and attack the infection but in lupus the white cells attack the normal cells thinking their bad cells so it attacks the normal organs like liver, kidney heart just about any organ in your body, it is really weird I have known I had since 1990, everyday is a battle one day it may start out ok then out of the blue both knees will become all inflamed and swollen. The disease is hard to diagnosis because it mimics other diseases llike arthritis’s and other diseases. If you would like more info go to web md and find loads of info. Good Luck Rita V

  10. Mycho

    Lupus as cause of Michael’s death?
    I researched Lupus and i got this result:
    Heart and circulatory system. Lupus may cause inflammation of the tissue surrounding the heart (pericarditis; pronounced per-i-kar-DIE-tiss) or of the heart itself (myocarditis; pronounced my-o-kar-DIE-tiss). When this happens, various heart problems may develop, such as an irregular heartbeat (arrhythmia; pronounced uh-RITH-mee-uh), heart failure, and even sudden death. Blood clots often form in the blood vessels. These blood clots can break loose and cause a stroke (see stroke entry) or other complications.

    Couldn’t that have been a major factor in MJ’s death??? Why’s everyone stressing out over drugs being the reason…
    n that whole IV n him being put to sleep previously n no one knowing how… did u all forget he went through surgery a lot in his life?? Ofcourse he’s felt what its like to be put to sleep.

  11. Mycho

    Lupus as cause of MJ’s Death?
    Many of us are mourning Michael Jacksons passing, I beign one of them felt annoyed with all the assumptions made by the media concerning his death and how they are making him seem like an instable perscription drug abuser.
    Sources claimed that he suffered from Lupus. I researched Lupus and i got this result:
    Heart and circulatory system. Lupus may cause inflammation of the tissue surrounding the heart (pericarditis; pronounced per-i-kar-DIE-tiss) or of the heart itself (myocarditis; pronounced my-o-kar-DIE-tiss). When this happens, various heart problems may develop, such as an irregular heartbeat (arrhythmia; pronounced uh-RITH-mee-uh), heart failure, and even sudden death. Blood clots often form in the blood vessels. These blood clots can break loose and cause a stroke (see stroke entry) or other complications.

    Couldn’t that have been a major factor in MJ’s death??? Why’s everyone stressing out over drugs being the reason…
    n that whole IV n him being put to sleep previously n no one knowing how… did u all forget he went through surgery a lot in his life?? Ofcourse he’s felt what its like to be put to sleep.

  12. Hmmpphhhh

    I caused my Lupus?
    A woman I know that had Lupus ten years ago said she mentally made her white blood cells fight her Lupus and that’s how she went into remission. She had Lupus for just over two years. Now she gets an occasional mouth sore and achy joints.

    This woman said I caused my Lupus and that all Lupus is the same just in different degrees of how it affects you. I have Lupus nephritis (of the kidneys) and when not on medication I have antibodies detected via blood tests (Complement 3 and 4) that are attacking my kidneys. Without medication I would die. I have the typical really bad joint pain to the point of not being able to walk at night or move my hands. I have sharp kidney pains that stab me once in a while and really scare me. I am doing all right though.

    Did I cause my Lupus? Did I make this happen? This woman says I did. She is crazy?

    1. rhetorica

      Dude, she’s crazy. I wouldn’t even talk to her, unless you do so to be amused. No need for that kind of hysterical negativity in your life.

  13. celeste_808

    My sister has lupus, a few years back she slipped into a coma for two weeks, she got better, but now she’s?
    feeling weird again. She has a had migrane for the past month. This is how it starts. First she gets the chills, then a fever of 104, then a migrane that lasts forever. The dr’s keep pumping medicine into her and I want them to STOP already. They have her on Vicodin and predezone. She also has insomnia due to the predezone. Any ideas as to what else it might be other than lupus causing this nightnare?

  14. sondra w

    hello i have sle(lupus)for 5 yrs now, do my sypmtoms mean my lupus is active?
    I am the typical story, I suffered for one year with doctors disbelief that something was wrong even after the rash broke out covering almost my entire body, it wasnt until I ended up in the ER for two weeks when I finally got the definete answers to my elements. I have SLE,discoud lupus, now lupus nepritis and so on. Now my first indication that something was wrong with me was joint pain(i thought carpool tunnel), but the pain eventually spread everywhere and then the fatigue, and then swollen joints and raynuads syndrome,so of course then fibromayglia. When I left the hospital I wasn’t as fatigued but the pain never went away nor the joint swelling, just a differnet joint everyday,so for five yrs I’v been on oxycotin and percocet to live a more pain managed life, but sometimes my symptoms get even worse( how could they?) they do basically my joint pain becomes every joint, the pain medicnes stop working, I cant walk without a walker or I walk very slow and painfully, so I tell my doctor as always andwe run more labs, platlets at 60K,but not low enough for her to be concerned shes waitin for mor test results, she says that although I have these sypmtoms including a lovely rash, that my lupus may not be active. Please anyone is this BS or what? Can you have what is obviously a flare and it not be your lupus causing it? right now i am on imuran and plaqnil and i was on predinose for 4 years straight and finally said no more because it wasnt controlling these elments, she wants to but me back on it to bring my platlets up, but i know once i go off they go down again, I have been on every medicatio for sle and none have changed anything, I have had rituxan injects no chnage so last year we tried it again and i had an allergic reaction. She doesnt want to try cytoxan because she says it doesnt help with swollen joints fatigue or pain, does any one know or have any idea? please give me your suggestions, thank you and sorry for the spelling my hands hurt and keep missing the letters.
    i’m sorry i forgot to mention , i’ve tried cellcept for two years no help sp they took me off, methotrayate for did not help either, we did the rituxamab once it did nothing so we tried it again a year later and i had a severe allergic reaction so no more of that. I am on 200mg plaqnil 2 times a day and imuran3x a day, i also do accupuncture thru kaiser but only for two months now and start biofeed back next week. I have been on permanant disability Social security since i got lupus in 2003(it took 18 months),I’m 34 this happened when i was 27-28. All your answers have been great, if my doctor would try the cytoxan i would be more than willing she doesnt think it will help with the joint pain and swelling or the fatique, I just had an Mri for the headaches today so maybe that will show them something.

  15. sondra w

    I have Sle and suffer from chronic pain any suggestions on how to live a normal life?
    How to live a normal life when your pain is different everyday.
    I am the typical story, I suffered for one year with doctors disbelief that something was wrong with me even after the rash broke out covering almost my entire body, it wasnt until I ended up in the ER for two weeks when I finally got the definete answers to my elements. I have SLE,discoud lupus, now lupus nepritis and so on. Now my first indication that something was wrong with me was joint pain(i thought carpool tunnel), but the pain eventually spread everywhere and then the fatigue, and then swollen joints and raynuads syndrome,so of course then fibromayglia. When I left the hospital I wasn’t as fatigued but the pain never went away nor the joint swelling, just a differnet joint everyday,so for five yrs I’v been on oxycotin and percocet to live a more pain managed life, but sometimes my symptoms get even worse( how could they?) they do basically my joint pain becomes every joint, the pain medicnes stop working, I cant walk without a walker or I walk very slow and painfully, so I tell my doctor as always andwe run more labs, platlets at 60K,but not low enough for her to be concerned shes waitin for mor test results, she says that although I have these sypmtoms including a lovely rash, that my lupus may not be active. Please anyone is this BS or what? Can you have what is obviously a flare and it not be your lupus causing it? right now i am on imuran and plaqnil and i was on predinose for 4 years straight and finally said no more because it wasnt controlling these elments, she wants to but me back on it to bring my platlets up, but i know once i go off they go down again, I have been on every medicatio for sle and none have changed anything, I have had rituxan injects no chnage so last year we tried it again and i had an allergic reaction. She doesnt want to try cytoxan because she says it doesnt help with swollen joints fatigue or pain, does any one know or have any idea? please give me your suggestions, thank you and sorry for the spelling my hands hurt and keep missing the letters.

    1. gillianprowe

      I have Rheumatoid Arthritis and some elements of Lupus, test positive for Lupus. However after many years of BS as you correctly say I went to another Country to get out of the BS. The Rheumatologist I saw their suggested I try Evening Primrose Oil, but I will be on it for LIFE and if I stop taking it, will have to start again. It takes about six weeks to kick in, but if I stop for one day, then I am back where I started. I did not I stuck with it and am still here to tell the tale. Evening Primrose Oil is a natural anti-inflammatory and it helps regulate the hormones, which seems to have been the problem. Now 50 I am Menopausal and my health is a lot better than it was in my 30’s, my only wish I had know about evening primrose oil back then. Best of Luck

  16. Nunya

    Does this sound like Crohn’s Desease to you?
    When I was 15, I had a colonoscopy because I was having stomach pain, and some blood in my stool. They never found anything… and eventually after the procedure, everything was back to normal.

    It’s four years later, and I’ve started having blood and mucus in my stool. They are going to perform another one to see what the problem is.

    How possible is it that something such as Crohn’s Desease, or something of that nature could develope? My doctor had said that it’s unlikely that I would have anything seriously wrong with me because of my age.. and the short amount of time. I’m a little worried that it coule be something such as Lupus that is causing all of these other problems. What do you think?

    Some other symptoms have been:

    Headaches
    Joint pain
    Sore throat
    Dizziness
    Short-term memory loss
    Tired all the time.

    Thanks.

  17. jody b

    lupus went from 1.4 to 1.6 so how bad is this?
    Doc said i had lupus in 2003 I take a lot of meds was in pain went to him and he checked me for the levels of lupus which came back as 1.6 so his nurse says. I have been on morphine for years due to another reason. How do they scale lupus and what really causes it? I can’t find on the web any grafts of progress of lupus or charting nor scales to find out just where I stand with this. Have to go to specialist yet. what is the life span of someone with lupus? I don’t get rashes and etc. Mine is joint pain and swelling

    1. hello

      I have Lupus and APS and have never hear that scale other than in an INR. Either way numbers will go up and down as disease waxes and wanes. But the numbers do not necceasarily tell the whole story.

      You need to be followed by a rheumatologist. I certainly hope they have you on Plaquenil.

      Despite the symptoms of lupus and the potential side-effects of treatment, people with lupus can maintain a high quality of life overall. One key to managing lupus is to understand the disease and its impact. Learning to recognize the warning signs of a flare can help the patient take steps to ward it off or reduce its intensity. Many people with lupus experience increased fatigue, pain, a rash, fever, abdominal discomfort, headache, or dizziness just before a flare. Developing strategies to prevent flares can also be helpful, such as learning to recognize your warning signals and maintaining good communication with your doctor.

      It is also important for people with lupus to receive regular health care, instead of seeking help only when symptoms worsen. Results from a medical exam and laboratory work on a regular basis allows the doctor to note any changes and to identify and treat flares early. The treatment plan, which is tailored to the individual’s specific needs and circumstances, can be adjusted accordingly. If new symptoms are identified early, treatments may be more effective. Other concerns also can be addressed at regular checkups. The doctor can provide guidance about such issues as the use of sunscreens, stress reduction, and the importance of structured exercise and rest, as well as birth control and family planning. Because people with lupus can be more susceptible to infections, the doctor may recommend yearly influenza vaccinations or pneumococcal vaccinations for some patients.

      Women with lupus should receive regular preventive health care, such as gynecological and breast examinations. Men with lupus should have the prostate-specific antigen (PSA) test. Both men and women need to have their blood pressure and cholesterol checked on a regular basis. If a person is taking corticosteroids or antimalarial medications, an eye exam should be done at least yearly to screen for and treat eye problems.

      Learning to recognize the warning signs of a flare can help the patient take steps to ward it off or reduce its intensity.

      Staying healthy requires extra effort and care for people with lupus, so it becomes especially important to develop strategies for maintaining wellness. Wellness involves close attention to the body, mind, and spirit. One of the primary goals of wellness for people with lupus is coping with the stress of having a chronic disorder. Effective stress management varies from person to person. Some approaches that may help include exercise, relaxation techniques such as meditation, and setting priorities for spending time and energy.

      Developing and maintaining a good support system is also important. A support system may include family, friends, medical professionals, community organizations, and support groups. Participating in a support group can provide emotional help, boost self-esteem and morale, and help develop or improve coping skills.

      Warning Signs of a Flare

      -Increased fatigue
      -Pain
      -Rash
      -Fever
      -Abdominal discomfort
      -Headache
      -Dizziness

      Preventing a Flare

      -Learn to recognize your warning signals
      -Maintain good communication with your doctor

      Learning more about lupus may also help. Studies have shown that patients who are well-informed and participate actively in their own care experience less pain, make fewer visits to the doctor, build self-confidence, and remain more active.

      Tips for Working With Your Doctor

      -Seek a health care provider who is familiar with SLE and who will listen to and address your concerns.
      -Provide complete, accurate medical information.
      -Make a list of your questions and concerns in advance.
      -Be honest and share your point of view with the health care provider.
      -Ask for clarification or further explanation if you need it.
      -Talk to other members of the health care team, such as nurses, therapists, or pharmacists.
      -Do not hesitate to discuss sensitive subjects (for example, birth control, intimacy) with your doctor.
      -Discuss any treatment changes with your doctor before making them.

  18. Ghost

    Is healing for the spiritual man or physical man?
    I ask this question because recently four months ago I became attacked in my body with swelling in my hands, feet, knees, and shoulders. At the time I didn’t know what was taking place, I just thought that maybe I had done too much that may have caused the swelling. I would go to church limping and asking for prayer. The church members and leaders did pray for me, but this thing was not going anywhere. the swelling was getting worst by the day. Finally I decide to go to the doctor to find out what was the cause of the swelling. I was given x-rays of the hands to see if the swelling was caused by lupus or rheumatoid arthritis. Tests came back revealing rheumatoid arthritis. I’m thinking how did I get this, I’m not old. I find out that rheumatoid arthritis is not an old age disease, because there are children and babies born with RA, but it is caused when the immune system becomes attacked by its own antibodies that were supposed to protect against viruses and disease but becomes confused thinking that the healthy cells are the enemy cells, and they attack because the cells look alike. Anyway, I took this information back to the church thinking I was doing a good thing, but instead I was made to feel like I had sinned in which this was the reason for the sickness. My question, is healing for the spritit man that whatever is taking place in the physical man will not effect us because our spiritual man has been strenghtened. Everyone has prayed, but yet this thing has not gone anywhere.

    1. Amy

      Find a new church. RA is not caused by sin or anything that you supposedly did. As you say, small children whao are supposedly sinless have this disease. Germs do not discriminate or prejudge you.

      Healing is for both the spiritual and physical aspects. Real healing effects a transformation. Prayers my not always work on diseases like RA. Get medical tratment.

  19. LuLuBelle

    How to begin excercise routine?HELP!!?
    I really need some advice on how to begin SLOWLY with a new excercise routine that I can stick to. I need something that I can build up to, and do at home, since I am a working mom, and the only time I get to myself is after 9pm (if Im lucky).

    I have quit smoking and begun a new medication in the last year that has helped me pack on SO much weight I feel like it will be impossible to lose it but I can’t stand to look at myself some days.

    I only drink coffee, tea and water, and one glass of milk/day;
    I crave salty snacks but hardly ever eat sugary things.

    I have Lupus, which causes chronic fatigue and painful joints,
    bad back, and depression(meds for this added the weight on)

    I have never had weight issues before, and when I had my child I was able to lose all the weight myself plus some, just by doing the same stuff i do now:(

    If anyone can help me with specific plan I would REALLY appreciate it!!!

    1. jackass3585

      try this, its based on the US Armys training excercises, do 10 pushups, 10 situps, and 10 flutter kicks (raising legs about 6 inches off ground and do small kicks with your legs straight, about 5 per raise) a day, and at least once a week, try to walk a mile, gradually increase it as it gets easier, eat a balanced diet, drink alot more milk though, try to cut out the coffee, tea may be ok, green tea is great though, the stuff in its good for you.

  20. kenbfos

    How do I deal with lupus with out taking drugs?
    I have had lupus for three years, but I just started get treatment from a lupus specialist at Magee womens hospital. I take a small dose blood pressure medication. But my doctor wants me to take plaqunil and prednesone. But those drugs have so many side affects and I hear so many bad things about how they help one thing but then something else breaks down, Then you are on this cycle of adding on medicine after medicine. I want to live, but I don’t want to lose my eyesight, have liver problems, or other complication caused by these medicines. I know their has to be a way of life change, or natural medicine that will help and have less or no side affects. I lived three years without medicine or help. But I do notice that I had more flares lately. I need to make a decision, I recieved my plaqunil in the mail a week ago, i need to decide if I am going to take or find something else that help to present to my doctor at my next appointment. I want to live but not taking alot of medicine

  21. Peggy G

    What causes someone to develop Lupus…?
    and how likely is it that two people, who have worked side by side for a decade, were diagnosed with this disease within a week of each other? Should I be worried working in the same environment? I’m fairly sure it isn’t contagious, but can something in the environment you work in daily cause it over a long periods of time?

    1. Linda R

      Lupus is definitely NOT contagious.

      Researchers believe that some people have a genetic predisposition to develop lupus. It is not exactly hereditary, just that there is a slightly higher chance that you will develop it if you have very close relatives with autoimmune disorders.

      First a person has some genetic make up that means they COULD develop lupus.

      Then there has to be a trigger. The most common triggers are certain viruses, high and prolonged levels of stress or trauma, sunlight, certain drugs (birth control pills and some blood pressure meds). Two people could be in indentical circumstances but only the one who is genetically predisposed would develop lupus.

      There have been investigations into environmental factors. Nothing has been proven as far as I know. If you are exposed to a lot of chemicals, that could be problematic.

      It is likely that your coworkers had lupus for a long time. Most lupus patients go years before they get a correct diagnosis. The difference now is that more doctors are becoming informed about the symptoms of lupus, how to diagnose and treat it.

      Did you know that more than three times as many people have lupus than have multiple sclerosis, sickle cell, and cystic fibrosis COMBINED?

      You can be a good friend to your coworkers by not letting lupus get in the way of your relationship. They will be frightened and isolated enough without you seeming to avoid them. Learn about lupus at the link below. Encourage them to learn about it to.

      Write your senators and representative in Congress asking them to support the Lupus REACH amendments. The funding requested in that bill is equal to 8 minutes of the war in Iraq. There are 1.5 or more Americans with a form of lupus. There is a link on the website where you can write.

  22. J.J.

    I have Lupus, diabetes, hypothyroidism. How can someone sit at a desk and decide whether you are disabled?
    I also have a growth hormone imbalance caused by the sterroids I had to take for Lupus. All of the tissue between my joints is deteriorated, I can barely walk most days, I’m on anti-depressants,
    all of my muscles hurt and because of my “education” they say
    that I can hold down a full time job! What kind of country are we living in????!!!

    1. Natural Healer

      Hi JJ

      I feel for your pain and work situation, but I think you would agree you need to take some action toward your health. The body is giving you all the signs to fix the unbalance in your life. You have to be grateful for what you have and not focus on what you dont have in life. What you think about is what you get in life. If you focus on paying off debt you get more debt. If you focus on prosperity then you’ll attract more money. likewise for health. The more you talk about your bad health you are feeding negative energy toward it.

      I would like to give you a plan to help fix your health and here are some bullet points to start with.

      1. Drink a gallon of water a day (must flush out the toxins)
      2. Eat raw organic vegetables for 10 days
      3. do a colon and liver cleanse to help remove waste and filter the blood with new cells
      4. Find a stress release outlet

      Click on my name and email me for more details.

      Best of health to you

  23. Mom

    Lawsuit against the drug Minocyline?
    Ten years ago my dermatologist prescribed me Minocycline for my acne (I was 15). A year or so later I developed ‘Drug induced lupus erythematosis’ because of the drug Minocycline. It was horrible. I spent the last two years of high school in chronic pain. I couldn’t shower or use the rest room alone… It was just horrific… After months of doctor visits and gallons of blood (not really, but it seemed like it) being drawn they realized what was wrong and I stopped taking the pill (minocycline) and recovered almost as good as new. Other than joint stiffness now and then.

    Just recently (within the last year) my husband and I encountered several failed pregnancies. The underlining cause was drug induced lupus because of the prescription, Minocycline. The lupus causes my blood to clot, which kills the fetus.

    My question is this… How do I create a law-suit against the prescription company?
    The blood clotting is the result of antiphospholipid syndrome, which I have because of the lupus. I should have mentioned that before.

    On the reasearch I have done (which is limited to googles search engene) I have read of others contracting lupus as a result of the drug, but nothing about lost pregnancies. I need to do more digging…

    But as far as my doctor just giving me some random cause for my lost pregnancies, this is SOOO not the case. I have had 3 different doctors say “yes you do have antiphospholipids in your blood” and with blood thinners you may be able to carry a pregnancy to term. Which has happend (I am now 8 months along)

    I really appreciate your advice!!!!!

    1. Windy

      That is a tough question. The drug may have helped millions of people, but say four out of them had terrible effects. In your case, you developed drug induced lupus. You can go under the drug manufacturer’s web site to see if they may have had a class action suit against them. You can also go under the FDA’s web site and check out if there were problems with Minocycline. Good Luck.

  24. orngpgsrk02

    Lupus-chronic fevers-how high is too high?
    Im 15 and was recently diagnosed with lupus. I am in a flare and for the past 3 days my fever has ranged from 101-102.3. I know that chronic fevers are a part of the disease for me but i am unsure of how long i should let a fever go untreated and i dont know how high is too high. I know the fever is caused by lupus but should I go to the hospital or just wait it out.. I guess if you could, the questions i want answered are How high is too high of a fever, and when should i do something about the fever (hospital, urgent care, etc…) thank you.. please answer seriously.

  25. treefrog

    I have lupus. A water pill caused me to have less pain. How?!?
    I have lupus (SLE).

    At a recent dr.’s appt, my b/p was high. I felt that I was retaining a lot of water and said so. My doctor prescribed a water pill and I noticed a huge difference.

    My joints and back do not hurt nearly so much. How can this be?

    Also, should I be worried about my kidney function? Or can excess inflammation account for the increased water…because I have been having a flare with lots of skin irritation. (Hives all over)

    I appreciate any information…

    Thanks!

    1. mgnysgtcappo

      As mentioned above a diuretic (usually lasix) will help take the swelling out of your joints and take away some of the pain. Water retention could mean a bunch of things from kidney problems to heart problems. Think of your body as one big circulation pump…if water is standing still then something isn’t pumping it around properly. This could be a temporary issue (caused by medications like prednisone) or a more serious issue like renal insufficiency.

      I would make sure to talk with the doctor to find out exactly his reasonings for the diuretic. Also, as Linda said, when was the last time you had a 24 hr urine collection test? This should be a pretty standard (at least once a year for those with undiagnosed renal issues) fare for someone with SLE.

      BTW, who prescribed these meds, a specialist or a GP? A nephrologist (kidney doctor) may be warranted just to check your kidneys for damage.

      Good Luck to you!

  26. TraiNWreck

    Can someone explain to me what lupus is? what causes it? and how it’s treated?
    I looked it up but I still don’t really understand. I’m looking for a simple yet an informative answer.
    i don’t know anyone with it, i’m just curious…can i get a real answer please?

  27. nevergone41102

    Lupus and ED?
    my boyfriend of 1yr. has lupus and has had problems staying hard during intercourse. if i am giving oral or if he is masturbating he can stay hard and cum. but not if he is inside of me.

    I know that some medications that are taken for lupus can uncommonly cause ED. any suggestions on how we can fix this without more medication. he takes a lot already and cant afford/doesnt want to be on anymore than needed.

    only serious answers please, thank you.

    1. mgnysgtcappo

      I don’t belive that your boyfriends ED is related to the medications that he’s taking or to his Lupus. If this were the case he would have difficulty with an erection when masterbating or with oral sex. This seems to be much more of a psychological issue. It is important to realize that Lupus patients are under an immense amount of stress just dealing with this debilitating disease. Additionally he may be having arthritis pain in his joints caused by his Lupus and this pain could be exaggerated when he is engaged in intercourse. I would try to be very understanding and let him know that it’s really ok that you’re here for him. If his problems persist, I would suggest just talking with a doctor to find out what he thinks. Good luck to you both (make sure he’s keeping on top of his Lupus)

  28. Michelle O

    Designer kids?
    How do you feel about genetically engineered babies?
    Do you know that in addition to scientists being able to withdraw a gene which may cause diabetes, lupus, etc., from an embryo, they may be able to withdraw the “gay” gene from an embryo also since it’s believed we are born this way?
    If this is so, what do you think about the above question and how it would affect or potentially eradicate gays from the future, leaving us, just a part of history?

    1. Kith D

      Well actually the idea of withdrawing the gene to prevent homosexuality would assume they could actually find a singe gene, which I doubt we ever will.

      What the real “cure” seems to be heading towards is various hormonal baths while the baby is in the womb, followed by some very careful upbringing. Currently this scares the living out of me, not because they are going to do away with the dreaded homosexual, but because we really don’t know enough about the effects of strong hormone cocktails in-vitro. We might literally end up creating the first generation of Eloi or worse Morlocks and we’d not know for 20+ years while these “children” grew up. For those 20+ years we’d never stop the process, then we’d probably need another 10 before we got around to officially banning it, then another 20 to get rid of the last back ally clinic, it could easily take a hundred years to stop, imagine a hundred years of troubled adolescents all because of the fear they may be gay .

      I don’t think humans have proved wise enough to mess with such things, especially in wide use.

  29. Ashley

    How likely is someone to die from lupus?
    My dad has had lupus for 2-3 years now. So far, it has affected his muscles, joints, and caused him to be tired, sensitive to sunlight, and has affected his kidneys. Because it has affected one organ, would it most likely affect others?

    Does anyone know of statistics for the death rate of this disease?

    Also any general or treatment info would be great.

    Or if you have Lupus.. It would be great to read your story.

    Thanks,
    Ashley

    1. Healthy

      Sever lupus can be life threatening.

      Healthy helpful steps to prevent lupus flares include:

      * maintain a healthy diet
      * get enough rest and quiet
      * pay attention to your body
      * moderately exercise when possible
      * limit the time you spend in the sun
      * develop coping skills to help limit stress
      * learn to recognize when a flare is coming
      * slow down or stop before you get too tired
      * learn to pace yourself by spreading out work and other activities

  30. Jess

    Lupus and Death?
    I know that patients with Lupus can live a very normal and long life, having Lupus under control with medication.

    I also know that Lupus is a disease that can affect the body in such a way that can cause death.

    My questions are:

    What is the most comun cause of death on a Lupus patient?

    When a patient’s Lupus has being mostly dormant, how usual is it to flare suddenly and cause extreme damage that would lead to death?

    What has being your experience?

    Thank you very much to everyone!
    😀

    1. Linda R

      Death as a result of lupus comes from infection (we don’g fight it well and the immunosuppressive drugs we take don’t help), kidney disease (half of us have kidney involvement), and cardiovascular events (we have premature atherosclerosis as a result of inflammation and some have clotting disorders).

      If a lupus patient flares and seeks medical attention promptly the flare is not that likely to lead to death, but keep in mind that lupus is very unpredictable.

      I have SLE with major organ involvement. Before I was diagnosed, a flare nearly killed me. I am monitored frequently (lots of labs every three months) and seek medical attention promptly at the first signs of infection.

  31. Caroline O

    How is it that doxycycline (or any tetracycline) can both cause and treat Lupus?
    Some websites say that doxycycline can lead to drug-induced lupus, while others say that the drug can be used in TREATING lupus. Can someone clarify this? Thanks.

    1. SZO

      It can cause SLE and it should not be given to patients with SLE where it could exacerbate or worsen the said condition. Therefore, it cannot be used to treat lupus.

      Antibiotics, such as tetracycline, are often used for a given time frame to be able to work its best. Unfortunately, some people think that it would be better to take it for an extended period of time to make sure that it does its work completely. This is a misconception since the body has a way of getting immune to antibiotics. When this happens, it can produce adverse results instead of helping the body out such as growth of other organisms, and inducing other conditions to arise.

  32. cinders

    Is it possible that Michael Jackson didn’t die of drugs but from lupus? that’s what I’m hearing now…?
    The rumors are rampant about the drug use, but with all that they’re saying about him, how could his health have held up. I researched info on Lupus and Vitiligo and they go together and do great bodily harm. The Lupus can actually cause a heart attack in a fairly young person, in their 40s or 50s.

    1. spongebob

      Lot of people with lupus do die from complications. Lupus could have caused his heart to get inflamed and cause heart attack.
      We don’t know whether he had lupus for sure or not. It could have been a rumor about him like lot of other rumors.

      No one is talking about lupus. Everyone is talking about his drug use. We will know the truth when his toxicology reports come back.

  33. Emily B

    Pulse of numbness/tingling throughout my body?
    OK, I am a 20 yr old female. I was diagnosed with Systemic Lupus this past April, but apparently I’ve had it for 6 years now. For the past year I have been experiencing intermittent pulsations of numbness/tingling throughout my body. It comes on every few weeks and lasts anywhere from 3-5 days, nonstop. It’s about an average of 2 pulses a second. It mostly occurs when I move or change direction. I know it is SOMEHOW linked to my antidepressant, Pristiq. Every time I miss a dose, or stop taking it for a medical test, the pulses come back, usually about 12 hours after the missed dose, but this last time it took 3 days to start happening. They start out faintly and get worse and stronger as time passes. When they happen I have trouble walking, talking, anything. I can’t feel where my limbs are because I lose feeling during the pulses. I was actually drinking a glass of water once and the pulse came and I couldn’t feel the cold water in my mouth anymore. The numbness only lasts when the shocks are occuring, as I stated about 2 a second. You can imagine how difficult this has made my life. I went to work today and ran into customers all day! I try to go through my everyday tasks but they’re so much more difficult when the pulses come.

    I went to the doctor and they did a VNG on me. I have a vertical nystagmus of the eyes, but I do not have vertigo. I even went to physical therapy because they thought it was vertigo but I never got dizzy with the shocks when I was there, they said I was wasting my time doing physical therapy. I now have an appointment with my cardiologist tomorrow (I also have mitral valve prolapse) to see if maybe my heart is the problem. I am getting an Auditory Brainstem Analysis later this week (MRI of my ear canals and the surrounding brain tissue) and I have been told by my doctor I also need to schedule an appointment with a neurologist.

    I just want to get this over with and fix whatever’s wrong. I already went through all the doctor stuff THIS YEAR! I had to fly to Pittsburgh to the Lupus Center to find out if I had Lupus. I am open to any thoughts anyone has as to what the heck this could be. They said I had a mild cause of lupus. I am taking 200mg of plaquenil a day, no steriods. I also take Yasmin, and 50 mg of Prisitq. I have stopped taking the Prisitq for the last 4 days to make sure this isn’t some weird addiction thing. So far the pulsations are still going strong. I looked up SSRI Discontinuation Syndrome, but that sounds like it’s just the effects of depression after you discontinue the SSRI, plus vomiting and chills. I don’t have that. Honestly I haven’t even felt depressed since I stopped the medication. I haven’t felt nauseous, but I always cold (I’m about 115 lbs.)

    Here’s my medical history:
    My aunt has Lupus, and another aunt has Multiple Sclerosis. My cousin has Epstein Barr. I had a hermangioma under my eyes when I was younger which rarely acts up now. I used to have high cholesterol that was induced by acutane (acne medication) but that was about 4 years ago. I had to take Lipitor for about a year. During that time I also had issues with high triglycerides, but that has since been resolved. About a year and a half ago I had issues with low blood sugar and that was fixed by just eating often. I developed a tic in my shoulder around 3 years ago because of Zoloft. I discontinued with medication and still have the tic a few times a week (it was about 60 times a day). When that was an issue I had a EEG done which showed a few abnormal results but nothing to be worried about because abnormal firings of the brain was normal in adolescents. I discovered I had mitral valve prolapse one day when I was about to fall asleep and my heart started racing and my left arms started hurting. I do have regurgitation but it’s very little. Along with Lupus I also have Raynaud’s Phenomenon which causes my feet to turn purple in normal temperature rooms. I have had an MRI with and without contrast, they said there were no brain lesions because of the lupus. I have been on numerous antidepressants for the past 6 years.

    I don’t know if the Pristiq is what has been causing these horrible sensations or it has been acting as the TREATMENT for something else I didn’t even know was wrong, so when I stopped taking the treatment, the problem came back. I know some of you must be thinking, ‘hello, they’re gone when you take your meds just keep taking them!’ but I can’t do that, I don’t know if the meds are causing this and hurting me or not. Maybe if I keep taking the Pristiq the symptoms will just keep getting worse when I have to stop taking it and maybe even hurt my body more.

    I need help! I was planning to move out of my mother’s house to go away to college next semester and I’ve had to put off my plans for another day because I’m not well enough to live on my own! I’m still stuck at my community college! These health issues are building up and slowly destroying what little life I h

  34. shebb

    NEED HELP BAD- mom’s addicted to games?
    mom’s addicted to computer games. she has add, lupus, epilepsy, and restless leg. her friend-also addicted and shows her new games and all and they both play this game. i’ll call her friend sue for privacy. so mom&sue asked to use my laptop.. (that day i had JUST gotten laptop- it was my moms old one & it crashed) so that sue could install the game crap on it & they could play SIDE by SIDE. i said ‘idk..its finally working and dad said not to download stuff. i need it for school..i dont wanna take the risk of it crashing permanantely..sorry) (its an expensive laptop). mom said she understands- but then sue says im spoiled and controlling and that she’d never let her kids say that. and btw- i said it in a super nice way; i didnt want them to get mad. but i understand how my mom is sick a lot cause of lupus, but if she can play games she can have a convo w/me. i’m sick of trying to talk to her & her not listening and just saying something to shut me up. all she does is LITERATELY (not exxaterating) sleep,eat,play games, and smoke. she stays up all night, sleeps in late, and does that all day. ive tried doing things w/ family but nothing happens. i feel like its my RESPONSIBILITY to do things like plan recipes and games and convo ideas and places to go (we NEVER go ANYWHERE. NOWHERE. home all day)…but they dont care. we do nothing. dad works all day long-18 hours. i made a family magazine w/ tons of ideas and put so much work into it and no one really cared and it hurt my feelings. earlier i said to her that i wanted her to get off of it and she said fine. so we put on a show to watch..she doesnt watch it, does one load of laundry, then goes to the game. shes playing it now. everytime i mention the game she gets really mad or shell first laugh and say ‘haha i know i know’ and i’ll tell her i’m SERIOUS, and she says to calm down and leave her alone. i dont know what to do! i REALLY need help. whenever shes awake she plays games! shes also addicted to facebook applications and facebook. ALL THIS TIME shes wasting she could be spending time w/me. she says her friend sue doesnt have her priorities straight but she doesnt either! im trying so hard i just want the family to be happy and do things together. ive tried talking over and over. its getting out of hand and i cant stop crying over it. please help me! PLEASEE.
    are you SERIOUS!? i care because i can’t TALK to my mom! it’s my mom and i have honest, serious issues. i’m on the verge of depression and i need her really bad but she’s too into these games! they keep trying to get me involved and all;
    EXCUSE ME!? i don’t even play games! ITS NOT EVEN WOW! its this one game. i’m not doing this for ME- i’m doing this for the FAMILY. i didn’t want a bunch of people to come on here and tell me i’m spoiled for being concerned about my mom! i’m scared she’s depressed and the family is always stressed and mad. i can’t GO to libraries because i’m at home! my dad said not to put stuff on the laptop anyways. i can’t believe how rude these people are on here!
    and NO shes not single! I CANT BELIEVE THIS! you didn’t even read the whole thing- i talked about my dad working 18 hrs a day.
    and its not HER LAPTOP. it’s mine. she bought tons of new ones. but i am not taking one word of this post seriously- all you do is go on questions and post mean answers. i’m reporting you. this is crazy.
    thanks for the answer- but i can’t make her go places :/ i’ve tried that. like i’ll say mom, lets go get something to eat.. or just something to do w/ her..but she says “NOOOOOOOO….” and won’t. she won’t get up from bed.i have to beg her. we all make our own breakfastes and all cause she stays in bed andplays games.
    i can’t get sue out of the picture though :/ sue is her BEST friend- like very CLOSE. sue is almost a second mom to me too. theres really nothing i can do :/
    sue’s KIDS though- they are addicted too. they play video games all day long. they are young. 5,8,and 13. and the 13 year old doesn’t like me.

    1. pragmatism_rules

      Your mom is a computer game addict and this isn’t your fault. Hide your laptop AND tell your dad what is going on. He needs to intervene and help you now. Good luck!

  35. shebb

    I’m desperate for help- My mom is very addicted?
    mom’s addicted to computer games. she has add, lupus, epilepsy, and restless leg. her friend-also addicted and shows her new games and all and they both play this game. i’ll call her friend “sue” for privacy. so mom&sue asked to use my laptop.. (that day i had JUST gotten laptop- it was my moms old one from years ago & it crashed) so that sue could install the game crap on it & they could play SIDE by SIDE. i said ‘idk..its finally working and dad said not to download stuff. i need it for school..i dont wanna take the risk of it crashing permanantely..im really sorry) (its an expensive laptop). mom said she understands- but then sue says im spoiled and controlling and that she’d never let her kids say that. and btw- i said it in a super nice way; i didnt want them to get mad. but i understand how my mom is sick a lot cause of lupus, but if she can play games she can have a convo w/ me about anything. like just ANYTHING. i crave my mom’s attention and i don’t think thats good? she doesn’t give me any attention and i’m not spoiled about it; but im scared shes depressed.i’m sick of trying to talk to her & her not listening and just saying something to shut me up. all she does is LITERATELY (not exxaterating) sleep,eat,play games, and smoke. she stays up all night, sleeps in late, and does that all day. ive tried doing things w/ family but nothing happens. i feel like its my RESPONSIBILITY to do things like plan recipes and games and convo ideas and places to go (we NEVER go ANYWHERE. NOWHERE. home all day)…but they dont care. we do nothing. dad works all day long-18 hours. i made a family magazine w/ tons of ideas and put so much work into it and no one really cared and it hurt my feelings. earlier i said to her that i wanted her to get off of it and she said fine. so we put on a show to watch..she doesnt watch it, does one load of laundry, then goes to the game. shes playing it now. everytime i mention the game she gets really mad or shell first laugh and say ‘haha i know i know’ and i’ll tell her i’m SERIOUS, and she says to calm down and leave her alone. i dont know what to do! i REALLY need help. whenever shes awake she plays games! shes also addicted to facebook applications and facebook. ALL THIS TIME shes wasting she could be spending time w/me. she says her friend sue doesnt have her priorities straight but she doesnt either! im trying so hard i just want the family to be happy and do things together. ive tried talking over and over. its getting out of hand and i cant stop crying over it. please help me! PLEASEE.
    i’m homeschooled. i can’t talk to her-it’s so hard cause she SCREAMS at me.
    also- i’ll add that they stole my laptop while i was sleeping and downloaded it on it anyways. i know i don’t have control over them- but dad said not to!! and its my new laptop. i just woke up and it was gone and then went downstairs and they are playing on it!

    1. Paraiba Blue

      Try talking to a counselor or teacher at school, some states listen to kid’s problems and take them seriously. I’m sure it affects your schoolwork.

  36. embaressed:(

    dark spots on my vagina? HELP IM SCARED?
    Well im really worried about my vaginal area. I have these darks spots on my labia..they don’t itch or anything. they don’t affect me at all they are just there. they are dark brown, they’re not raised or anything. just flat dark spots everywhere. like moles or freckles…and then on the clitoris or right outside of it and entrance of the urethral opening..i have like A white stuff. its not discharge it looks kinda like rash like area. like i said nothing hurts or itches i don’t have irregular discharge or anything..but my vagina always seems to have an odor. i don’t know what it could be. i have had it for a while now, i don’t see how it could be any kind of STD because i have had sexual intercourse and my partner has not gotten anything
    , he has no such symptoms or anything. im scared. I have lupus so i thought my lupus may have caused it or something. Im too embaressed to go to my gynecologist because im afraid or what she’ll think of me, or that she’s going to tell me it is an STD.A My vagina seems to be very wrinkly and loose, my lips seem to be very stretchy and kind of hang. HELP!!

  37. average cabbage

    could an abusive childhood cause lupus/autoimmune diseases?
    I’m 17 and have lupus. I’ve been told that excessive stress can cause it. I know Michael Jackson had lupus and had an exceptionally stressful childhood. I was physically abused as a child so could it have contributed? My family doesn’t have a history of autoimmune diseases so I don’t know how I got it.

  38. Dani J

    has anyone had acupuncture?
    I have a needle phobia, but I have severe pain in my legs caused by lupus. I have been seeking alternative ways of relieving pain with out being drugged up all the damn time. Does it hurt? Where do I get it? how much does it cost? any information is greatly appreciated

  39. Galavanting Gal

    Lawsuit against the drug Minocycline?
    Someone Named “Mom” wrote the following post 3 years ago. I am trying to find her and find out what happened because the exact same thing has now happened to me…

    Lawsuit against the drug Minocyline?
    Ten years ago my dermatologist prescribed me Minocycline for my acne (I was 15). A year or so later I developed ‘Drug induced lupus erythematosis’ because of the drug Minocycline. It was horrible. I spent the last two years of high school in chronic pain. I couldn’t shower or use the rest room alone… It was just horrific… After months of doctor visits and gallons of blood (not really, but it seemed like it) being drawn they realized what was wrong and I stopped taking the pill (minocycline) and recovered almost as good as new. Other than joint stiffness now and then.

    Just recently (within the last year) my husband and I encountered several failed pregnancies. The underlining cause was drug induced lupus because of the prescription, Minocycline. The lupus causes my blood to clot, which kills the fetus.

    My question is this… How do I create a law-suit against the prescription company?
    3 years ago Report Abuse Additional Details
    The blood clotting is the result of antiphospholipid syndrome, which I have because of the lupus. I should have mentioned that before.

    On the reasearch I have done (which is limited to googles search engene) I have read of others contracting lupus as a result of the drug, but nothing about lost pregnancies. I need to do more digging…

    But as far as my doctor just giving me some random cause for my lost pregnancies, this is SOOO not the case. I have had 3 different doctors say “yes you do have antiphospholipids in your blood” and with blood thinners you may be able to carry a pregnancy to term. Which has happend (I am now 8 months along)

    I really appreciate your advice!!!!!

    1. Gracie

      I was prescribed Minocin as a teenager for acne, my liver failed, I received no compensation, but I’m in the UK. It is only by the grace of God that I’m even alive to tell the tale. I’m sorry you’ve had such a bad time.

      Firstly, you need to find a specialist lawyer, they will listen to your case and there will be ‘buzz words’ key things they are looking for to assess whether or not you have a case. If they think you may have a case, they will as their own doctors to look you over and check your medical history, if they too believe that you have a case then the lawyers will take it from there.

      A class action, is when they look for others in a similar position to yourself in order to strengthen the case, if there is such a case then you need to see if you can add your name to the list.

      I would say though, that a law suit is very long winded and stressful, and if you have a young baby that is the last thing you need, not to mention stress makes lupus much worse, so maybe that is something you should consider?

      Good luck, I wish you all the best for the future and your new baby.

  40. Mis I

    Lupus and memory loss?
    Does any one know of lupus and how it can cause memory loss? If you do, do you know of how this can be prevented? Is there any changes in diet that might help? Any help would be greatly appriciated.

    1. Linda R

      Lupus can affect memory and cognition in general. But it is not only the lupus.

      If there is inflammation in the brain, lupus cerebritis, your memory will be affected.

      If you have central nervous system involvement your memory will be affected.

      If you are anemic, and lupus often causes anemia, you will have memory problems.

      Prednisone can alter your moods, and not for the better. It can make one agitated and aggressive. That will get in the way of memory.

      Depression that often accompanies life with lupus affects memory. So does loss of sleep, common in lupus patients.

      Worry and anxiety that go along with lupus can cause memory problems.

      You are not crazy, you are sick.

      There is no specific diet for your memory. For lupus, it is a good idea to eat a diet high in fiber and low in fat. Avoid processed and fast foods. Eat foods as close to their natural state as possible. Eat low on the food chain (lots of fruits and vegetables). Avoid preservatives and additives.

      Try journaling for about 20 minutes every day to deal with the psychosocial issues that accompany lupus.

      Best wishes.

      P.S. Be EXTREMELY careful about supplements. Some will interact with your lupus meds. Some will aggravate lupus. Make sure your rheumatologist know EVERYTHING that you are taking.

  41. Da Queen

    How Can I help my husbands (ED). Besides Viagra Etc.. Serious answers only please!?
    My husband and I have been married only almost 8 years and he has lupus, it has caused many medical problems(including the ed).I am only 26 years old and we had a great sex up until 2 years ago and his doctors say he medically capableble to have sex. We have not made love in 2 years and it is wearing me out. I am a christian and do not believe in alternative methods to satisfy myself. Additionally, he can get it up (so to speak) but it looses it’s hardness after a while. He says he’s very attracted to me still but nothing happens. Sorry to be so grafic. please answer seriously I need help!!!

    1. travisme32

      Try going to “GNC OR WALGREEN” and purchasing a pill called “HORNY GOAT WEED” have your husband start taking that pill and let see what happen. “GOD BLESS”

  42. SouthernBelle

    How would I know if I have Lupus? What test should I ask my doctor about?
    My sister is a nurse and she thinks that I have Lupus. Somedays I have to make myself get out of bed. It is a struggle to perform normal household chores. I have had the “butterfly” rash on my face but it wasn’t that bad. I have episodes where I feel like I can do anything. When I have a flare-up I get nodules behind my ear and one in my neck. I also get a rash on my chest that itches. There is also pain in my joints when I have an episode and could sleep for days. I do not suffer from depression. I was told that it can be hard to determine if you have Lupus. If I do have it will it affect me having children in the future and could it be the cause of a previous miscarriage? Just to be clear I have been tested for EVERYTHING but Lupus.

    1. J

      I am no doctor, but sounds like you have many lupus symtoms…..take it from someone that was diagnosed in 1996. Some days are better than others, but if properly diagnosed they will be testing your blood for overproduction of white blood cells……my doctor (he was so aweseome because I went to 6 that misdiagnosed me!!) said that was really the only true test to tell if you have the disease or not. If you get diagnosed with lupus you will have to take care of yourself more and learn that you can’t do everything you used to do! (You need more rest for sure, you will learn to take naps, etc.) Good luck with your search for a good doctor.

  43. Asia ♥

    How do I get tested for EVERY type of allergy?
    My doctor sucks and won’t test for anything unless it’s nessecary
    example… i have alopecia areata and the main cause is lupus..
    he would not test for it because i dont have all of the symptoms…

    i want to get tested for allergies..
    but im worried he wont test for anything or everything
    what do i do? do i go to him still? and how do they do it….

    1. whatever

      I went to an allergist/immunoligist . They did skin prick tests on my back to test for common allergens like trees, grass, cats, salmon, wheat, dairy, etc. Then they did a more extensive blood test that covered so many more items like apples, oranges, blueberrys, etc. I also had my hair tested for metals and contaminates. There were so many tests, even my spit was tested.

      Usually regular family Dr’s dont test for allergies. Insurance doesnt always cover testing

      The bottom line is if you have a health concern and you think your Dr isnt giving it enough consideration. It is up to you to find a Dr. who will. This is your life…

  44. Mia Drummond

    ive been sick and i have my 3rd chemo treatment this wed?
    Okay so i have been sick with the flu, including everything from terrible sick stomach, lack of appetite, cough, stuffed nose, diarrea (sorry if TMI), i vomited once yesterday, and ive been sleeping 15-16 hours each day.
    Anyway i also couldnt take my medication (lupus) yesterday cause my stomach was so upset.
    And i ave my 3rd chemo treatment this wed.
    How will being sick affect the treatment?
    Also i can barely take my pills, i get a terrible sick stomach, what can i do to help with that?

    1. ELLY B

      Don’t you have a helpline you could phone? You need to see your consultant/nurse practitioner as normal before your treatment and he/she will decide. Most of those symptoms could be chemo side-effects anyway.

  45. doll face

    How do i go about getting help with being exposed to mold in the work place?
    Ok so i have been working at a place where there has been mold for going on 3 years, and recently they decided to remodel the bathrooms where the mold was when they did this the company did not try to protect us from exposure with plastic drapes or anything. so when they did this i ingested mold spores apparently. i never had any symptoms before now well i was put on steroids and anti fungals for 2 weeks. apparently there was two types of mold stachybotrys 11.5 spores and penicillium 10 spores all by my desk.(a total of 365 spores all together with good and bad?) the company finally got it together when i missed a week of work and got the proper people to handle the mold the levels are now down to 2-0 spores (but still by my desk.) i worked for a week and felt fine but the past 2 days i have felt like shit i went back to the doctor to just get more anti fungals i really feel helpless and don’t no what to do in this situation can someone who has been through this please help me………. I love my job but can’t continue to be sick another woman here has been out for 3 weeks and is very ill and 2 other women was put on the same meds as me. oh and the only reason i got the results to the mold levels is because i was also was tested for lupus and got a positive reading and its does not run in my family i seen that mold can in some cases cause lupus or false readings and i bugged my boss until he finally gave in and gave them to me but he told me he could be fired if corporate found out about him even talking to me about it. something shady is gong on and i need help.

  46. jerry w

    How would i know if i have a ovarian cyst? Have not had a cycle for?
    7 months and I am wondering if having lupus anticogulant would be the cause of some it, I have had four children. Lost the fourth one last year due to finding out i have a blood problem.

    1. pretzypie

      Symptoms of ovarian cysts can include:

      * Pelvic pain – constant, dull aching
      * Pain with intercourse or pelvic pain during movement
      * Pain during bowel movements
      * Pelvic pain shortly after beginning or ending a menstrual period
      * Abnormal uterine bleeding (change from normal menstrual pattern)
      * Longer than usual menstrual cycle
      * Shorter than usual menstrual cycle
      * Absent menstruation
      * Irregular menstruation
      * Abdominal bloating or swelling

      Often no symptoms are noted and ovarian cysts are found only be routine examinations. Usually birth control pills may be prescribed to help establish normal cycles and decrease the development of functional ovarian cysts.

      Simple ovarian cysts that are larger than 5-10 centimetres and complex ovarian cysts that persist should and will usually be surgically removed via laparoscopy (minimal invasive surgery).

      I would recommend that if you think you have an ovarian cyst that you consult with your doctor/gyno about this and ask them to answer any questions or concerns you may have.

      I have suffered from many bilateral ovarian cysts over the past 10 years and have surgery 2 times to have them removed (it wasn’t anything too serious).

      I hope this helps to answer your question. Good luck 🙂

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