I have always been fascinated by Japanese culture and style and decided to put together the following suggestions.

Today’s decorating trends are all about globalization. As different cultures discover each other, they also appropriate traditional and modern elements of local interior design. Japanese influences were one the first to find their way into the multi-cultural design repertoire, and it’s easy to see why. Japanese culture is famous for its clean lines and use of natural textures, from bamboo to thin rice paper.

Bamboo wood blinds, which are also called woven wood shades, are a subtle and simple way to start off. Not only are they aesthetically pleasing and easy to use, they also offer high levels of light control and privacy. Another popular wood for Japanese window treatments is tatami, which is a thick woven read with a warm, natural texture. Both of these wood blinds can be stained to compliment an interior color scheme. Depending how far you want to take your theme, you can also look into sliding paper screen for your Japanese window treatments. These are a striking solution for covering unusually sized plate glass picture windows. Also known as shoji screens, these sliding screens offer a pleasant degree of light diffusion but do not provide complete blackout capabilities.

Though curtains are not inherently Japanese, many designers look to Japan’s traditional textile prints for inspiration. These prints, often found on kimonos and other clothing, can include everything from geometric designs to fanciful scenes of carp or eagles. These fabrics are usually employed as short hanging curtains, and can also be fashioned into caf curtains that subtly mimic the traditional hanging noren curtains found at the entrance to Japanese restaurants.

Another Japanese-style window treatment are panel track blinds, also know as sliding panels. Though not specifically Asian, panel tracks can lend to this kind of dcor readily. These window treatments are like oversized fabric vertical blinds and come in numerous colors, fabrics and textures. Panel tracks can also be used as a room divider, mimicking the Japanese sliding paper panels.

Last but not least are roman shades. Though, again, not specifically Asian or Japanese per se, the right fabric and texture choice could lend itself well to this kind of dcor. In my opinion, the best type of roman shade for this application would be the flat-style, not the hobbled or folded roman shades. Romans come in bamboo weaves, grasses and wood planks that would match well with the Japanese style of decorating.

A quick word of warning from personal experience – I have seen a few homes that have been decorated well in this style. And, kudos to those who have the vision, passion and artistic sense to pull it of; it is a bold choice, for sure. I have also, unfortunately, seen examples that did not integrate well or were taken too far. So, if you are interested in this motif, consider integrating subtle elements one step at a time and make sure you don’t have clashing decorative motifs.


38 thoughts on “Japanese Style Window Treatments

  1. mandylou

    Treatments or specailist for Lupus?
    My ex-boyfriend has SLE and is currently experiencing liver and kidney failure. Was hoping someone out there may have a name or any suggestions of a top notch specialists or maybe a new treatment. Please only serious answer to this, this is a life or death situation. He may only have 6 months to a year to let if nothing is done.

    1. tropicalladybird

      I have lupus and there is a product I take for it, but you would have to be willing to get it. At this point I would say try anything. The product is called ambrotose, it’s a glyconutrient. If you get it get as much as you can and give him a whole jar of it in one day, thats what I had to do when my lupus started to shut my body down. That was six years ago I went through it, I know it works and I hope you’ll try it. If you’re interested e-mail me and I’ll be able to get you in contact with the company so you can order it.

  2. yp_plum_new_york

    Just a rant b/c I have no one to talk to?
    I am about to turn 33 and I believe I have a perfectly valid reason for depression, so I am not looking to be talked out of it. First, the good stuff: I am finishing a PhD; have a very good, secure job in my dream field; have a beautiful apartment; and am reasonably attractive (people keep asking me if I am a model, but I think it is because I look interesting rather than because I am gorgeous and that’s fine). Now the bad stuff: my kidneys failed when I was 25 because I have lupus so I started dialysis for 5 years while I worked and began my PhD program. I had very little help; I basically did these years alone. I got a transplant when I was 30 and 8 months after the transplant, I was diagnosed with lymphoma because of the immuno-suppressant drugs I was taking for the transplant. I did chemo for 6 rounds, then while recovering I found this new job in another city. I wanted to be away from all the sickness in the old city, so I moved. It has been good but stressful. A lot of long hours and travel. I found out a few months ago that my transplant is not doing great so I signed up for a transplant list again. After doing all the tests, my oncologist says that I would have to wait 3 years before I can get a new kidney…so my name will stay on the list, but I can’t get an offer until 2011. I haven’t dating anyone since I was 29 and am starting t feel very self-conscious around my friends and family with their husbands and children. Because of the chemo, I can’t have kids (I don’t even have my period anymore, so I feel less feminine). I am starting to have a hard time hanging out with these couples with their kids because I feel worse after a day with them than I do just sitting in the house alone. I have gone back and forth with wanting to kill myself, but in the end it is pretty lame though I don’t rule it out. My stomach has been bothering me again lately and if it is cancer, I have decided not to treat it. I am going to check if refusal to treat counts as suicide. I want my mom to get my insurance and pension and 401k. If it doesn’t, then I will take the minimum treatment. That’s it. After a long weekend on the couch; I didn’t want to bother any friends because they have their families to take care of. And I don’t want to stress my mother out. Thanks for “listening.”

    1. Atlas

      You’re right that you have many valid reasons for depression, but you also have so many reasons to be proud. One of my best friends died of Lupus at 17, so I know how difficult it can be, and yet you’ve survived it and thrived in your field and pursued a PhD. I have Hodgkin’s so I do know what it’s like to battle that disease, and I’m very scared about fertility too. (I’m 17.5 now). There are things you have no control over, and to an extent, there’s freedom in that because you cannot berate yourself for failing to reach a mark. Keep on persevering, and seek help for your depression. I’ve been battling wicked mood swings and depression since starting chemo over the summer, and it’s been really beneficial to go to therapy.

      33 is still very young. You have plenty of years ahead of you to marry and adopt, and you are not in a race with anybody else.

      I absolutely LOVE the site I’m Too Young for This, and have linked it below. It’s a support group for young adults with cancer, and they’re amazing.

      I bet more people admire you than you realize. Keep fighting.
      I admire all that you’ve accomplished.

  3. Liz R

    Lupus and the refusal of treatment.?
    Hi,
    I was diagnosed with lupus recently, though I’ve been sick for a long time.

    Since I’m “new” to having lupus, I’m not too savy. Mine makes my blood levels drop, so I’m not sure what kind that is (I know there are different types) but I know mine is considered more mild than others.

    Anyways, my doctor wants me on Plaquenil and prednisone.

    So my question is, can the severity of lupus become worse over time (not just flares) and What would happen if I refused treatment?

    1. LoneWolf

      I’m sorry to hear about your Lupus, and welcome to the club. Yes, Lupus usually becomes worse over time. Treatment is to help control the disease and to ease your discomfort and pain. I’ve been on plaquinil for about 5 years. It really helps me, you just have to have your vision checked frequently. I’ve refused steroids (prednisone) for the most part except when the disease is so bad I can’t function. Good Luck to you.

    1. Gar

      Lupus is an autoimmune disease: The body is attacked by its own immune system. In lupus, that attack may come from a kind of immune cell called a B cell.

      As the body makes new B cells, a few of them go haywire and try to attack the body. Normally, the body quickly eliminates these cells. But in lupus, they somehow survive.

      A special hormone called B-cell-activating factor — or BAFF — helps these self-attacking B cells survive. And people with lupus and some other autoimmune diseases overproduce BAFF. Eventually, these B cells build up to dangerous levels and cause lupus.

      Hiding in the Spleen
      Now a research team, including Michael Karin, PhD, of the University of California, San Diego, finds that B cells build up in a specific part of the spleen called the marginal zone. Mouse studies suggest that if the B cells can’t hide in the spleen, they can’t cause lupus.

      What lets lupus-causing B cells lurk in the spleen is a chain of chemical signals called the NF-kB pathway. You need a functional NF-kB pathway for your immune system to fight infections. But this pathway is made up of two parts: the classical NF-kB pathway and the alternative NF-kB pathway.

      In mouse experiments, Karin’s team now finds that partial disruption of just the alternative NF-kB pathway is enough to keep lupus-causing B cells from hiding in the spleen.

      “Our findings suggest that incomplete inhibition of the alternative NF-kB pathway … may be a sufficient therapeutic option for patients suffering from autoimmune disease associated with BAFF overproduction,” the researchers suggest. “Inhibition of the alternative NF-kB pathway is less likely to cause an immune deficiency, which is commonly seen after blockade of the classical NF-kB pathway.”

  4. Tmac

    My sister was just diagnosed with Lupus. We are looking for treatment options? Any suggestions that’ve worked?
    I’m trying to find treatments, medical, naturopathic, or herbal that have had positive results for others. We are new to this and don’t seem to have many answers yet. Any suggestions are appreciated. She lives in Alberta, Canada. Anyone from there that might have suggestions for that area would be greatly appreciated! Thanks so much!

    1. hiscinders

      Your sister should get her Dr’s opinion and then get a second opinion.
      It will not hurt for her to be on a diet specific to inflammation like the Zone diet.
      Steroids are given for lupus and so is a mild form of chemo. I would be careful with the chemo it kills the immune and personally I would never be treated with something like that.

      I have lupus that is complicated by valley fever. That just means I can’t really be treated unless they are certain I am going to die.
      I do my best to get adequate sleep and I eat a healthy diet. I do nothing that aggravates pain. It’s not good to live on pain meds.

  5. Gail S

    i know i already posted this question but no one answered, i have retinitis and im freaking out?
    understand what it is but it all started when i went to the eye doctor (5-7) for new glasses when he checked my eyes he said i have an inflammation of white blood cells in my eyes and sent me to a specialist in retinas my appointment (5-8) the specialist says hes surprised i don’t have pain and that i need to go to another specialist for a second (or third, whatever you want to call it) opinion and to see if i have to have treatment
    he said the treatment is steroid eye drops and that he doesn’t want to do that because of side effects like glaucoma

    then he said that to form what i have in my eyes i may have , rheumatoid arthritis , Lupus , or an autoimmune daisies 🙁

    i asked if i could go blind from it he said its possible without treatment

    he also said he doesn’t know how long iv had it

    so could someone help like explain what could happen or will happen or something and im 14 if that helps

    now im desperate any info or stories PLEASE

    1. sunnny

      see a board certified opthamalogist and or immunologist. steriod eye drops are used for a short period of time, not long enough to cause glaucoma, you might want to post this under optical health section. you should have answers by now, today is the 10th of May. Hope you feel better.

  6. metallicasteph

    How can I start running again?
    When I was younger, I was very fit. I ran every day and I was in great shape. Then I started hurting all over, and packed on the pounds. I’ve recently been diagnosed with Lupus (SLE) and for the first time in about 7 years, thanks to a healthy dose of chemo, I was able to run without too much pain. I got medical clearance from my rheumatologist, and he’s thrilled that the treatments are working.

    Are there any tips/suggestions that I should consider? Remember, I haven’t been able to run for at least 7 years without being in excruciating pain, so all of this is relatively new to me. Anything will be helpful. Thanks in advance!

    1. Butterfingers

      my mother has lupis as well and its that same with her only she don’t run. never has. my suggestion from what she did is to first take a hot bath and then start walking. from a walk move into a jogg slowly and then speed up until your in a run. but if you feel pain coming on slow down or stop. take it nice and slow. when your done, relax.

      i feel for you. i know how hard it is watching my mother as i grew up suffer. take care. 🙂

  7. J R

    In New York, can you receive SSI and Public Assistance? Which do you apply for first? Better to leave one out?
    Public Assistance here in New York seems to be very restrictive, and goes overboard in trying to “get people off the rolls”. According to my mother who went through the process, she was wheelchair bound, so the worker didn’t believe her at the end of the review, and at the the street corner held her up and just dropped her. My mom came back horrified and bruised, and everyone had to lift her up, and they still made her attend a mandatory meeting in manhattan after that that wasn’t handicapped accessible, where she had to leave her chair downstairs and embarrassingly crawl several flights of steps on hands and one knee (the other bandaged from surgery) until her joits swelled up and she started to pass out while an ambulance was called, No one bothered to tell her that they were supposed to come to the house as a homebound case. Outside a woman with breast cancer on chemo, and a woman dying with lupus with months to live facing eviction were all turned down because they were also “completely healthy” Once my mom qualified for a housebound case, the agency filed a fake recertification with false information on it and threatened to have her arrested with fraud until we contacted every government official we could about the fact that we tape every official conversation and sent all documents certified returned receipt CC to other officials as well. But this is the lengths they go to get people off the rolls, so……

    Ive been disabled for 2 years and housebound, but was so scared of the process that I haven’t applied, but I need the money, I am absolutely horrified at the lengths they now go to get people off of welfare, even with medical proof from their OWN doctors of disability, even making up fake fraud cases and threatening arrest (thank God we record everything and keep records), but that is so much work., But when approved the benefits do come quicker.

    SSI on the other hand Ive heard isn’t so abusive but they say here the hospital social worker where i was for awhile when i couldnt eat food) that EVERYONE here is denied the first time and will only get benefits if they appeal to the last level, which can take years, but once you get SSI, Public Assistance leaves you alone with the harassment because its now federal money.

    Being so sick, It will be hard to record eveyone, and have a nurse send everything certified return receipt and keep piles of records just to prove my “compliance”

    Should I just apply for SSI and then PA (Public Assistance) right after, or the other way around, or do one and wait then the other? Im just not ready for the government’s abuse, but I really need money, and my savings is now getting empty. It is so corrupt, and I can’t just fight everyone, because i’m physically exhausted already, I don’t know if I can even handle either “process”

    I really appreciate any advice from anyone.

    Note: For those that hate people on “welfare” before this, don’t bother, you never know you future health, I worked several jobs, even hard labor moving coquina rocks by riverbeds, and for the National Parks Service, Printing Press, Office Assistant, Phone Technical Assistance, you name it. about 2 points from valedictorian, and a 3.8 university average..I didn’t still have enough credits for SSDI, and was too young. Lost ALOT of weight, could barely eat, balanced between a wheelchair and cane, and my muscles stopped working for a while, treatments also had effects on metabolism fats etc, and my hands are often so dry they are solid, and touching paper is painful, Someone else has to open my mail for me.

    *So what do I do? I never needed assistance, but I’m scared of being bullied, and don’t want to get sicker, what is the easiest way to get assistance, SSI, or Public Assistance. (I also think I read that if you apply for one here you must eventually apply for the other in a certain amount of days, and then i think Public assistance takes your SSI money from you anyway to pay their expenses.

    Anyone familiar with these systems please help, I cant handle their abuse. Its already almost killing my mother the way they treat her. And I wonder if thats their goal. I dont want my health to suffer anymore than it does.

    *What do I do?

    1. bumblebee

      Wow this is shocking to hear, absolutely awful and heartwrenching. You gals need to move out of NYC and move to a rural part of NY. I am in Rochester and have never been treated like that. I suffer from depression/bipolar and I get cash assistance each month from welfare. Thanks to the good Lord I was approved for ssi after almost 3 years. The way that you are being treated is horrible, cant believe it. Sometimes the Lord is trying to tell you something. That something could be for you to relocate. No american citizen should be afraid to ask for help, especially when illegals gets it so easily.

  8. Lea Wade

    I NEED SOMEONE/ANYONE’S HELP…?
    Hey My Name is Lea. I’m 17 going to be 18 on April 12th. I’ve never done this before and I hate to complain but way past desperate… I was recently diagnosed with a disease called Systemic Lupus Erythematosus or (SLE). It’s an autoimmune disease, where your immune system attacks itself and eventually kills your organs one by one. I have already lost all my long curly blonde hair, which for a 17 year old girl is horrifying. I am now on treatment 3, I’ve tried Plaquenil, which 95% of patients respond but of course I’m the 5% who didn’t respond in a positive way.The SLE scale goes from 0-10, 0=in remission, and 10 equals horrible flare up. before i started the first treatment I was a 6 on the SLE scale, 1 month after my Plaquenil treatmeant I went from a 6 to a 12! Which is off the scale, which is FREAKING horrible. Then my second treatment was Methotrexate A.K.A. Chemotheropy. That still didn’t work so they upped the dose on the Chemotheropy. I’m still on this Chemotheropy treatment but it’s only getting worse, I am now immune to 8-9 antibiotics. I was so excited to hear about this new SLE treatment “Benlysta”. Benlysta has a huge succsess rate! I couldn’t stop crying I was so happy, but then I found out it costs $35,000 a year, because SLE is a life long disease that means $35,000 a year for the rest of my life (if I could afford it, let alone the first treatment/year.) I’ve wanted to become an Interior Designer ever since I was 9 years old. I’m a junior/senior in highschool. I’m in between both grades because I had to leave public highschool and become homeschooled because my immune system isn’t working so I get sick to easily. But some good new is I got accecpted into the the ART INSTITUTE OF CALIFORNIA the college I’ve wanted since I was about 12 years old haha. So it’s either college or possibly this new treatment. Basically, a short fufilled life with an amazing education for Interior Design, or a long life that’s unfufilled with no college education, which kills me to be so harsh but that’s my reality. I can’t stand the thought of choosing, so does anyone how I can raise money to pay for college & treatment so I can have a LONG & FUFILLED life? Please Help me…

    Thank You for taking the time to hear me complain :/

    Lea Wade
    I haven’t been able to hold down the Chemotheropy pills so now I’m injecting myself every thursday… I need to raise money for this treatment so any ideas will be greatly appreciated… All I can do is pray for my savior to save me from my own body. I know God has a plan for me, but I hate this large part of his plan. But i trust the Lord and all the faith I have left in me is going to my Lord because I have all my trust in him…<3

  9. Tanya

    YAZ YAZ YAZ!!!!!. HATE IT WON’T EVER GO BACK!?
    Well Let me start off by saying I was on Yazmine for 2 years and a half and then decided to stop because i got really ill and I was under a treatment. After 8 months finding out that I didn’t have lupus and being on 6 different pills for no reason including steriods! I hadn’t had my period for like 6 months so i went to the clinic to ask to get back on BC and they told me i should try YAZ! THE BIGGEST MISTAKE IN MY LIFE! I’m going on 2 months about to finish and than the lord i’m getting off THIS not only did i gain like 10 pounds less than 2 months but i know what it takes to keep fit and controling what you eat YAZ DIDN’T HELP AT ALL ! cramping and the bloating and also period not starting after you start a new pack !!! But everyone is different all i know is that i will never TRY A DIFFERENT BC METHOD AGAIN!

  10. mamabunny

    Is it wrong for me to feel hurt by my friend?
    Last year my when I had my baby I called my best friend from the hospital and told her that I was unexpectedly scheduled for a c-section the next morning. She told me that she would come to the hospital around noon the next day. She never showed.
    I didn’t hear from her for weeks after that and I never called her because I was really busy with the new baby, not to mention that I was struggling to figure out what I could have done to upset her that she would just leave me hanging on the day that I had my baby.
    Months later I finally got the courage to call her and it turns out that a few weeks before I had the baby she found out that her oldest daughter had lupus. She said that she had completely fallen apart after that and was so sad and depressed that she didn’t want to tell anyone because it was hard for her to even talk about it.
    Of course then I understood why she never came to visit me or call me and we talked a couple of times after that, but then she stopped responding to my calls again.
    The last time we spoke she told me that her daughter was doing much, much better and that she had responded well to her treatments and was going back to school. Soon after that I invited her family to my other son;s birthday party and they never responded and never showed. I have sent her cards inviting them to visit and asking if we could go visit them (we live 40 miles away from each other) but have never gotten a response back.
    She also stopped communicating with my teenage daughter who is her Goddaughter. She would always call her on her birthday and she missed the last two years.
    The thing is, I completely sympathize wih her and I don’t blame her for getting depressed and I understand how serious her daughter’s illness is. I have also suffered from severe depression so I know how dibilitating it can be. I’m also prepared to accept if she tells me she just doesn’t want to be friends anymore, but honestly, I’m very hurt that she never cared to see my baby.
    Now, if she doesn’t want to be friends, then it makes sense that that is why she has never even asked anything about him. To me, the friendship is worth saving and I can forgive her for anything. But I feel guilty because I do harbor some resentment. I do understand the seriousness of her daughter’s illness but that is why I feel so guilty for feeling angry. Am I completely out of line for feeling this way?

  11. Lea Wade

    Please Read!!! I Need Your Help.?
    Hey My Name is Lea. I’m 17 going to be 18 on April 12th. I’ve never done this before and I hate to complain but way past desperate… I was recently diagnosed with a disease called Systemic Lupus Erythematosus or (SLE). It’s an autoimmune disease, where your immune system attacks itself and eventually kills your organs one by one. I have already lost all my long curly blonde hair, which for a 17 year old girl is horrifying. I am now on treatment 3, I’ve tried Plaquenil, which 95% of patients respond but of course I’m the 5% who didn’t respond in a positive way.The SLE scale goes from 0-10, 0=in remission, and 10 equals horrible flare up. before i started the first treatment I was a 6 on the SLE scale, 1 month after my Plaquenil treatmeant I went from a 6 to a 12! Which is off the scale, which is FREAKING horrible. Then my second treatment was Methotrexate A.K.A. Chemotheropy. That still didn’t work so they upped the dose on the Chemotheropy. I’m still on this Chemotheropy treatment but it’s only getting worse, I am now immune to 8-9 antibiotics. I was so excited to hear about this new SLE treatment “Benlysta”. Benlysta has a huge succsess rate! I couldn’t stop crying I was so happy, but then I found out it costs $35,000 a year, because SLE is a life long disease that means $35,000 a year for the rest of my life (if I could afford it, let alone the first treatment/year.) I’ve wanted to become an Interior Designer ever since I was 9 years old. I’m a junior/senior in highschool. I’m in between both grades because I had to leave public highschool and become homeschooled because my immune system isn’t working so I get sick to easily. But some good new is I got accecpted into the the ART INSTITUTE OF CALIFORNIA the college I’ve wanted since I was about 12 years old haha. So it’s either college or possibly this new treatment. Basically, a short fufilled life with an amazing education for Interior Design, or a long life that’s unfufilled with no college education, which kills me to be so harsh but that’s my reality. I can’t stand the thought of choosing, so does anyone how I can raise money to pay for college & treatment so I can have a LONG & FUFILLED life? Please Help me…I haven’t been able to hold down the Chemotheropy pills so now I’m injecting myself every thursday… I need to raise money for this treatment so any ideas will be greatly appreciated… All I can do is pray for my savior to save me from my own body. I know God has a plan for me, but I hate this large part of his plan. But i trust the Lord and all the faith I have left in me is going to my Lord because I have all my trust in him…<3

    Thank You for taking the time to hear me complain :/

    Lea Wade

    1. gorshi

      Get your story out. You deserve both, college and treatment. Go to charities. Church. Talk to your college. Your community. Your high school. Your parents’ work. Your friends’ parents’ work.
      Set up an account (you need a lawyer and accountant for this) so people can donate.

      Don’t give up.

  12. tmang0502

    pls react on this journal… your reaction would be a great help…thanks God Bless?
    ‘Multi-target’ Immune Therapy Improves Outcomes Of Severe Lupus Nephritis
    ScienceDaily (July 7, 2008) — A new treatment using a combination of drugs targeting different parts of the immune system improves the recovery rate for patients with severe lupus involving the kidneys, according to a new report.
    “In our study, multi-target therapy is shown to be superior to traditional therapy for inducing complete remission of class V+IV lupus nephritis, with few side effects,” comments Dr. Lei-Shi Li of the Research Institute of Nephrology of Jinling Hospital, Nanjing University School of Medicine in Nanjing,China.
    The study included 40 patients with severe lupus nephritis. Lupus nephritis is inflammation of the kidneys occurring in patients with the immune system disease systemic lupus erythematosus (SLE). All patients had “class V+IV” disease, meaning widespread inflammation and decreasing function of the kidneys. “This is a severe form of lupus nephritis that is traditionally treated with a single immunosuppressant drug, but the efficacy is very poor,” says Dr. Li. “We considered that, since the impact of severe SLE on the kidney involves various parts of the immune system, it is necessary to treat the different immune targets with a combination of immunosuppressant drugs.”
    One group of patients received this “multi-target” therapy, consisting of the immunosuppressant drugs tacrolimus and mycophenolate mofetil–commonly used as anti-rejection drugs in transplant patients–plus a steroid. The other group received standard treatment with a single immunosuppressant drug (cyclophosphamide).
    The complete remission rate, with recovery of normal kidney function, was about four times higher among patients receiving the three-drug combination. “For patients receiving multi-target therapy, the complete remission rate reached 65 percent at nine months, versus only 15 percent under traditional therapy,” says Dr. Li.
    Some patients in both groups had partial remission, with some return of kidney function. Overall, 95 percent of patients in the multi-target therapy group had partial or complete remission, compared to 55 percent with single-drug therapy. The rate of most adverse effects was also lower with multi-target therapy.
    Systemic lupus erythematosus is an autoimmune disorder, in which the immune system attacks healthy organs and tissues. By reducing immune system activity, treatment with immunosuppressant drugs has improved most outcomes for patients with SLE. However, class V+IV lupus nephritis continues to be a major problem–it has a poor response to traditional treatments and can lead to permanent kidney damage. “The prognosis is very poor, so it is important for us to develop a new regimen for the treatment of this type of lupus nephritis,” says Dr. Li.
    Using a combination of drugs that affect different immune targets, multi-target therapy improves the chances of remission for patients with severe lupus nephritis. “The therapeutic effect of our multi-target therapy is apparently superior to traditional therapy for inducing complete remission of Class V+IV lupus nephritis, and also bears good tolerance under relatively lower dosages,” Dr. Li adds.
    The authors stress that their study is only preliminary. The study includes a small group of patients from a single hospital, with a relatively short follow-up time. Larger randomized trials with longer follow-up are required.

  13. li

    Is Benlysta avaliable in Australia? Does Benlysta work well with the treatment of Lupus?
    i’ve only just found out about Benlysta for the treatment of Systemic Lupus Erythemotosis. does anyone know if its avaliable in australia? and how well does it work? what does it feel like if it does work? if you can share any information or experiences with the new drug that would be really great…

    thank u

  14. carol h

    info on new treatments for lupus…?
    i’ve had discoid lupus for almost 30 years. i have it primarily on my face now and it’s painful and it bothers me alot. plus it looks awful, like i’ve been in a fire. i took plaquenil for years and it didn’t help, just gave me liver problems. doesn anyone know of any new treatments? if so please help.

    1. A Healthier You

      I don’t know if it’s a “new” treatment, but natural progesterone is working wonders for people with auto-immune disorders, including lupus.

      The onset of autoimmune disorders occurs most often in middle-aged women – the time of life when estrogen dominance becomes common. Recent studies have shown that women who use HRT containing estrogen (estradiol) are more likely to get lupus. Birth control pills also cause autoimmune diseases by causing the body to form antibodies to its own hormones.

      It’s well known that autoimmune diseases like rheumatoid arthritis and multiple sclerosis (MS) often go into remission during pregnancy (when our body manufactures high levels of progesterone and estriol), only to return in force after child-birth.

      Correcting estrogen dominance by blocking estradiol estrogen action using estriol in conjunction with progesterone can lead to a gradual improvement.

      Other hormones may also be at play with auto-immune disorders: estrogen, cortisol, DHEA, and progesterone should all be considered.

  15. Cam =o]

    Serious Questions about MS Multiple Sclerosis?
    This is a pretty bold question, but I want to know, do people die FROM MS?
    If you’re diagnosed with MS, is there a way to overcome the symptoms to where you can live a normal life again, or is it just treatments of the symptoms? What has or can be done with this illness?
    What do those treatments involve?
    I’ve known several people with MS but all have such different symptoms, why is that? (No one I know with MS that I can ask these questions.)

    I’ve been dealing with chronic pain disorders, specifically Fibromyalgia for over 20 years & have been tested for MS & Lupus before, but the tests were negative. My new doctor though, a neurologist, wants to do more thorough testing & suspects MS, so I’d like to know personal experiences & answers please. I don’t have the energy or even the time to look over printed material or website information, at least not right now, please don’t just give me links, I’d really like personal answers & viewpoints, please from those who have MS or know someone that does & can give me honest responses.

    Thank you so much for any responses to my questions!

    1. pcheesewhiz

      Hi Cam! I have had MS for 20 years. People do not die from MS. MS is not a fatal disease. Any death related to MS is due to complications from the disease and not the disease itself. Why is MS not fatal? It doesn’t attack the major organs.

      Most of us with MS do live relatively normal lives. About 15% of us become very disabled because we have a very progressive form of the disease (Primary Progressive MS). But the majority of us get a form of the disease that is called relapsing/remitting which means that the symptoms come and go. I have this form of the disease.

      In the twenty years that I have had this disease, I’ve worked on my masters degree, changed careers, bought and sold a few houses, and moved around the country. And for about six months out of those twenty years I either had difficulty walking, talking, seeing, concentrating, or remembering. When I tell people that I have multiple sclerosis, they don’t believe me.

      Most of the time that I am experiencing symptoms, they are the type of symptom other people cannot see. As an example, every so once in a while I have difficulty with taste. As an example last week everything I ate tasted bitter. And for about a week last year I couldn’t taste anything. Most of the symptoms I get are not visible to the world. Seven years ago, I had difficulty walking. I bought a cane and used it for a month or two. then that difficulty went away. The cane sat out in my garage for seven years. Last week my legs felt week. I went out in the garage and dug out the cane and used it when I went shopping. It is now back in the garage again.

      As I age, my condition may change. Somewhere around 50% of us with relapsing/remitting MS may find that out our disease becomes what is called Secondary Progressive MS. When and if this happens, I will get many more flare ups and I will not repair in between those flare ups. IF I have trouble walking, there is a chance that I will continue to have trouble walking. I might never be able to put that cane back in the garage. People have the potential to develop secondary progressive MS after decades and decades and decades of living with the disease.

      There are four major pharmaceuticals that can lessen the number of flare ups or stop the progression of MS. Three of them are what are called interferon drugs. They are Rebif, Betaseron and Avonex. They must be injected into the muscle and they are mild forms of chemotherapy. The other drug is called Copaxone and is injected just underneath the skin. A fourth interferon just came out which can be injected just underneath the skin also. Sorry, I cannot remember the name. There are tons of meds to treat the various symptoms.

      Why does everyone describe the disease so differently and have different symptoms? Because when you have MS your immune system which is supposed to fight off germs and bacteria
      decides to attack your central nervous system. The immune system starts to break down the myelin which is the protective coating on the nerve bundles. As a consequence the communication between the body and brain is disrupted. Nobody knows how the immune system decides what nerve bundle to attack. It is an entirely random event. No doctor can ever predict what it will do to any individual patient. In some patients, the disase may attack the optic nerve bundle in one of the eyes and render that particular eye blind for a period of time. Or the immune system may pick on the nerve bundles that are necessary for cognition and interrupt clear logical thinking. Or the immune system could decide to attack the nerve bundles that are involved in the motor skills such as grasping with the hands rendering a person unable to hold a pencil or type on a keyboard.

      That is it in a nutshell. There is no cure for this disease and the cause is unknown. We do know that the disease is highly unpredictable. Take good care!

  16. SazzyC

    Face rash on cheeks everyday! Allergy or lupus?
    hey there. I’ve always been blessed to have really good clear skin but for the past few months i’ve noticed a rapid change and now I seem to have this permanent pink rash high on cheeks (down from eyes and sometimes over bridge of the nose) it looks irritatated and dry but i’ve done nothing, used nothing new, use gentle washes, mostly just water now. My diet’s rich in fruit & fish . I don’t know if i have an allergy or not but my chest has also been hurting me on and off, a swollen feeling. I had a bad infection 2months ago and was givien penicilin, so i may be allergic to it, but before the treatment i had to go to casualty as my chest was so sore but docs found nothing apart from my toe infection, so that’s why i’m thinking lupus as my aunt has it.. but i’ve been off them 2months now. Apart from that, i feel in general good health, just tired and achey sometimes any help appreciated! as this rash is driving me insane! 🙁

    1. Donna B.

      That’s a very good assessment but only occurs with discoid lupus.It only will involve the skin The second type is SLE, systemic lupus erythematosus, and can involve many systems in the body. You need to see a Rheumatologist for a correct diagnosis. Take care, Donna

  17. Laney

    I have lupus and I need a new Bay Area rheumatologist stat!?
    About Me
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    I need to find a good Bay Area rheumatologist is good!?

    I have Systemic Lupus and have been seeing a rheumatologist for quite a while without much improvement in my condition. All my doctor does is pump me full of pills. I have been doing my own research lately and have found that there are many other things that could both cause and treat lupus and my doctor hasn’t checked me for any of them. For example, food allergies.
    I would really like to find a good doctor in the SF bay area, preferably the east bay who really works to make you feel better, one who will bring different treatments up to me rather than the other way around. Does anyone know where to find any of these good rheumatologists?

    1. den

      I have lupus since 2 years and I take 2 drugs to help me. Prednisone and Imuran…My condition has improved: I have no more rash on my body and my appetite is back…

  18. Flor Rosa

    Our Daughters Suicide -How Do You Move On?
    Recently, our 43 year old daughter committed suicide (shot herself in the head w/357 magnum). This has left us completely and untterley devastated. How does one handle this? My husband has seemed to throw himself into his extracurricular activities, biking, swimming, walking, etc. I am having a more difficult time just getting up out of the bed some days and the crying just won’t stop!

    We are here in Michigan to take custody of grandchildren (3) of them, 9, 10 and 11. She was widowed so there is no father in the picture. I know that we need to be strong for the grandchildren but it seems as if I just don’t have the energy. My physician (in Texas) has been made aware of the situation and has suggested seeing a Mental Health/Grief-Counselor of sorts. I don’t see how they can help especially if one has never walked in the others’ shoes, how can they truly understand what I am going through. Parents are not supposed to bury children, it most definitely should be the other way around. Furthermore, my child took her precious life over a situation that was “temporary” and solvable at best.

    Our daughter was a wonderful, beautiful, bright, entertaining, kind-hearted (yes, I am biased!) 43 year old young woman. Had seemingly done everything right (in society’s view). Went to college, had her Associate, Bachelors and was 6-classes from obtaining her Masters Degree. Married, (recently widowed) and had 3 adoring children. Approximately 15 years ago, she was diagnosed with Rheumatoid Arthritis. It was not discovered until later that she really didn’t have RA but had Lupus Erythematosus and Fibromyalgia. 2-years ago she also underwent treatment for a malignant Tumor in her lower Intestines. She made it through with flying colors. In 2005 she had to stop working, which really brought her down and we (parents) began assisting her financially and otherwise. For the last few years, she had been being seen by a CNP (Certified Nurse Practitioner) to which, she was not very satisfied with. Additionally, she also had a Rheumatologist (she really liked) and in the last 3 months had been trying out a new physician. Our last conversation was that she was going to “drop” the CNP and remain with the new physician as well as continue on with her Rheumatologist. Well, this is were the nightmare begins. Because she was obtaining precscriptions (including her narcotic Tylenol #4) from all three physicians. She received a certified letter from the primary stating that she was being released and they suggested that she find a new physician within 30-days. Oh, they would continue to treat her but only for things deemed “medically necessary”. In my opinion, the letter was extremely friendly considering the circumstances. Basically telling her in laymans terms that they no longer wanted to treat her due to 1. Patient/Provider Communication Breakdown 2. Narcotics Abuse 3. Obtaining Narcotics from multiple providers (3). Now this was completely one-sided. Her side of the story was not asked or included in anyway possible. Where was the CNP moral obligation to my daughter if she felt that something was wrong?

    To sum it up, after receiving this letter, she became so despondent that no amount of talking, hand-holding, etc., could calm her down. She had made it up in her mind that she was definitely going to jail. Michigan (among other states) has this new (I don’t know how new) MAPS System (Michigan Automated Prescription System) that basically accounts for the number of narcotics being dispensed. Sort of a tracking system. Now, there is no law (that I know of) in “Doctor Shopping” and my husband and I found out that the system is not mandated because not all Healthcare Providers use it (Physicians, Pharmacists, etc.). And, for the ones that use it and if your name happens to come up, then the state (of Michigan) informs the prescribing primary physician.

    Now, please don’t get me wrong, I do not condone or support her actions. What I do support is that she was doing the right thing in finding another physician that would basically listen to her. She had all of the tell-tale signs each time she went in to see her CNP of being in extreme pain. The only pain meds that she had ever been on was Tylenol #3 and in the past 2-years she was moved up to Tylenol #4. She had never requested anything over that (I am in receipt of her medical records). They had given her everything else under the sun, Neurontin, Soma, Flexerill, etc., for which, she maybe only took them 2-3 times because she didn’t like how they made her feel. My husband and I take such defense because what is a patient to do?

    Because my husband and I have had fairly great health our entire lives, we have never walked in her shoes or the shoes of anyone else. However, despite being hurt and upset at what occurred, it’s almost as if some have to pay the price of many. I am aware of prescription abuse, fraud, etc., but not everyone fall

    1. Grillparzer

      I’m sorry for your loss, I really am. Fortunately my kids are good, but I lost my sister, the sibling I was closest to, very suddenly. She was beautiful too and one of my closest friends. Both of my parents had a great deal of difficulty dealing with it. They didn’t seek professionally counseling, although I recommended it to them strongly as I do for you and your husband. Your right in saying the counselors may have never walked in your shoes, but it helps to talk to others about how we feel. It is after all why you posted your question in the first place. There are a number of ways we humans deal with our internal pains, talking about it is one of the best ways. Keeping yourself busy like your husband is doing is another way, but it only works as long as we’re busy. When we stop what ever we are using as a distraction, the pain comes back. A counselor is not going to judge you, your husband, or your daughter. Anything you say to the counselor will be confidential. They won’t take sides, that’s not their job. Their job is to help you and your husband deal with your loss and nothing else. They will recommend strategies in how to deal with the pain of the loss and will make recommendations as to the best ways to deal with your children. Don’t forget, you and your husband aren’t the only ones who lost somebody. They’re at ages where instead of even trying to talk about their pain and anger, they will act it out. It will not be an easy thing for the two of you to handle without help. What you are going through is not going to be easy, but with time and help, it will get easier. Add me to your contacts in your profile if you want. Drop me an email if there is anything I can do. Good luck and my best wishes for you!

  19. Mindy

    Should I pursue legal action against this surgeon?
    In April of 2010, I had my right ovary and fallopian tube removed as well as endometrial growths on my left ovary and in the back of my uterus. In my post op visit, I was told that I had a severe case of endometriosis, that I still had growths (in other words, they were not all removed), and that my lupus would complicate my treatment. I was then recommended to take medications that are contraindicated to my condition and the medications I am currently on. Of course, I did not take those medications. I was then recommended to drink herbal teas. I was not even given pain medications.

    Months later, I was still having problems. I bled so badly at one time that I was in need of a transfusion. The surgeon refused to see me because I still had a balance from my previous surgery (a mere $150 that I was paying on and even had a written payment agreement). It was an emergency situation, so I sought a second opinion from another surgeon. It turns out I needed a hysterectomy. In the post op report after the hysterectomy, the new surgeon told me that I had extensive nerve damage and needed reconstruction and that I was by far one of the worst cases he has ever seen. He also said that this did not happen overnight and that the first surgeon should have taken care of of it. He called her negligent and a few other colorful names and actually forwarded her the pictures from the surgery. I’m also having complications recovering from my surgery because of my lupus, a condition the previous surgeon knew I had.

    Should I pursue legal action, or would I be wasting my time? I’m not lawsuit happy at all. I work in the medical profession, and I am well aware of what the consequences of malpractice suits are. However, I used up all of my vacation time during the first surgery, had to have a second surgery when it could have been taken care of the first time around and now have NO income for an entire month, and it also caused me a lot of unnecessary pain and suffering (visits to the ER, blood transfusions, lupus flare ups, missed wages, pain, etc).
    Also, I did sign a consent the first time around that I wanted a hysterectomy if there were overwhelming endometrial growths present, which there were. When I awoke from the anesthesia, I found she had not honored my wishes. I asked her why, and she told me she felt I was “too young for a hysterectomy”.
    I sought my second opinion with a surgeon out of the area. I traveled two hours away because he was highly recommended.

    1. MasterOfUniverse

      You could if you can get the second doctor to agree to testify. Without that, even with medical reports, there would be little chance of success in that the hospital has lawyers on staff specifically to win lawsuits and protect the hospital and doctors. Most doctors will not be willing to testify against another doctor, especially locally, due to the doctor relationship with other medical professionals in the area. I would file a complaint with the Medical Review Board though.

  20. Gail S

    I know i already posted this question, i have retinitis and im freaking out?PLEASE HELPPP?
    I understand what it is but it all started when i went to the eye doctor (5-7) for new glasses when he checked my eyes he said i have an inflammation of white blood cells in my eyes and sent me to a specialist in retinas my appointment (5-8) the specialist says hes surprised i don’t have pain and that i need to go to another specialist for a second (or third, whatever you want to call it) opinion and to see if i have to have treatment
    he said the treatment is steroid eye drops and that he doesn’t want to do that because of side effects like glaucoma

    then he said that to form what i have in my eyes i may have , rheumatoid arthritis , Lupus , or an autoimmune daisies 🙁

    i asked if i could go blind from it he said its possible without treatment

    he also said he doesn’t know how long iv had it

    so could someone help like explain what could happen or will happen or something and im 14 if that helps

    now im desperate any info or stories PLEASE

    1. ignoramus

      Go see an ophthalmologist who is a retinal specialist. See if you can get a referral to a very good one to diagnose and if necessary treat this problem.

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