Pericarditis is a disorder caused by inflammation of the pericardium, which is the sac-like covering of the heart. The pericardium has an inner and outer layer with a small amount of lubricating fluid between them. Pericarditis frequently causes a characteristic chest pain that usually compels one to seek medical attention. Pericarditis may be acute or chronic. The sharp chest pain associated with acute pericarditis occurs when the pericardium rubs against the heart’s outer layer. It is usually a complication of viral infections, most commonly echovirus or coxsackie viruses. Less frequently, it can be caused by influenza or HIV infection. Infections with bacteria can lead to bacterial pericarditis (also called purulent pericarditis). Pericarditis is the name given to a variety of diseases, all of which have the major characteristics of inflammation of the pericardium and an increase in volume of the pericardial fluid. Constrictive Pericarditis is present when a fibrotic, thickened, and adherent pericardium restricts diastolic filling of the heart. It usually begins with an initial episode of acute pericarditis, which may not be detected clinically.

The most common symptom of pericarditis is sharp, stabbing chest pain behind the breastbone or in the left side of your chest. Pericarditis occurs in up to 15% of patients who have acute myocardial infarctions. Pericarditis most often affects men aged 20-50, usually following respiratory infections. It can also occur in children, where it is most commonly caused by adenovirus or coxsackie virus. Patients who have suffered a heart attack (myocardial infarction) may develop pericarditis over subsequent days or weeks. Kidney failure caused by the buildup of certain toxins in the body also can lead to pericarditis. In people who have AIDS, a number of infections, including tuberculosis, may result in pericarditis. In the early stages of pericarditis, it may be hard to tell whether your chest pain is from inflammation or from a possible heart attack. The visceral pericardium is attached to the epicardial fat and reflects back on itself to form the parietal pericardium. The pericardium normally contains as much as 50 mL of an ultrafiltrate of plasma. Pericarditis is a progressive disease which can be life-threatening if not treated in a timely manner.

Causes of Pericarditis

The common causes and risk factor’s of Pericarditis include the following:

A viral, bacterial or fungal infection.


Auto-immune diseases (such as rheumatoid arthritis, lupus, or scleroderma).


Chest trauma.

After heart surgery.

Kidney failure, or drugs.

Other diseases such as rheumatoid arthritis.

Symptoms of Pericarditis

Some sign and symptoms related to Pericarditis are as follows:

Ankle, feet and leg swelling (occasionally).

Irregular heartbeat..

Splinting of ribs (bending over or holding the chest) with breathing.


Loss of appetite.

A low-grade fever.

Shallow breathing.

Increase in heart-rate.

Treatment of Pericarditis

Here is list of the methods for treating Pericarditis:

Painkillers will ease the pain. If the pain is severe, steroid medicines may be used to reduce the inflammation.

Occasionally steroids are used for severe attacks.

Medicines, such as aspirin, ibuprofen, or other nonsteroidal anti-inflammatory drugs (NSAIDs), are commonly used to manage the pain and inflammation.

Fungal pericarditis should be treated with antifungal agents.

Sometimes pericarditis is treated in the hospital. If you need to be hospitalized, you will be given strict bed rest until your symptoms abate.

Diuretics to treat heart failure symptoms.

80 thoughts on “Lupus Causes Symptoms

  1. Stephanie McConnell

    Can birth Control trigger the symptoms of lupus?
    I am taking Birth Control and wondered if it could cause symptoms of lupus, such as fatigue, weight gain, night sweats, muscle pains, hair loss. I am 20 yrs old and i weigh 127 and am 5’8. and lupus runs in my family. i went to the doctor and they did test results i find them out thursday, but thought i asked.

    1. mandyj67

      Yes it can honey, sorry to be the bearer of bad tidings. Recently completed studies have shown women who are on birth control injections or pills (especially the higher dosage ones) have been found to have a higher incidence of Lupis, especially if it runs in the family* Since Lupis does run in your family, I would suggest that you seriously rethink your birth control method.

    1. Anama

      It is an autoimmune disease, and to explain it here would be silly when there are literally thousands of sites dedicated to lupus. There is a search engine on yahoo! ,please try using that.
      Lupus cdc
      Lupus foundations

  2. Cam's mama

    Are these Lupus symptoms?
    Hello all,
    I am trying to get ready from my appointment with the Rhuematologist. I had a positive ANA both Homogeneous and Speckled @1:320. Well I wanted to know which of my symptoms are lupus symptoms, cause not a lot of my symptoms fit the lupus symptoms mold. It all started for me with Diarrhea, I would get randomly. Now I have almost all time and for about 2 to 6 weeks at a time it will be really bad along with stomach pains. In march it got so bad the lower left part of my colon was so inflamed you could see it when I laid down. Then I got what they thought was Bell’s Palsy for no reason at but that came and went. I don’t really get rashes but I do get sun burn really easy at times but not all the time. I have also had sun poisoning twice, oh and I black if that matters. My hands and feet swell sometimes, and last summer the knuckles swelling petty bad no color just lots of pain. In April my joints start hurting, slight at first and it was on and of. Now its all the time, and sever, with weakness in my hands. I do have a vitamin D deficiency. Shortly after the joints I started feeling dizzy all the time, the kind of dizzy where it feels like your not breathing enough. Then started getting a crackling in my neck like I had pop rocks in my neck, followed by sever pressure. I also have a sore in my nose that I have had for about 2 months. Well sometime in mid July I started getting what I thought was heart burn, but nothing I took for it would make go. My chest to my throat was on fire for 3 weeks and then it just went away. I’m very fatigued. My hair is falling from the root, about a brush full a day. I can’t focus. I feel like I’m breathing baby powder and coughing doesn’t help it go away. And last but not least, I keep having these spells where my pulse rate stays around 120, and it feels like my heart and lungs are in competition for space and oh does that hurt, I even went to the ER, and they just did an EKG and sent me home feeling the same way.

    Sorry its so long but if some could please read and let me if these are symptoms of anything or if I’m crazy.

    1. banana

      No two cases of lupus are exactly alike. Signs and symptoms may come on suddenly or develop slowly, may be mild or severe, and may be temporary or permanent. Most people with lupus have mild disease characterized by episodes — called flares — when signs and symptoms get worse for a while, then improve or even disappear completely for a time.

      The signs and symptoms of lupus that you experience will depend on which body systems are affected by the disease. But, in general, lupus signs and symptoms may include:

      Weight loss or gain
      Joint pain, stiffness and swelling
      Butterfly-shaped rash (malar rash) on the face that covers the cheeks and bridge of the nose
      Skin lesions that appear or worsen with sun exposure
      Mouth sores
      Hair loss (alopecia)
      Fingers and toes that turn white or blue when exposed to cold or during stressful periods (Raynaud’s phenomenon)
      Shortness of breath
      Chest pain
      Dry eyes
      Easy bruising
      Memory loss

      When to see a doctor:
      If you develop an unexplained rash, ongoing fever, persistent aching or fatigue, see your doctor.

  3. karl j

    What r canine lupus symptoms, what is prognosis. Need to add to the Vets knowledge hopefully?
    my Boston Terrier/Shiz-tsu is at vets he is unable to locate cause of flucuating fever, some drooling, lack of appetite.White blood cell count at the bottom of the scale. All other tests (kidneys, Liver) coming back normal. Was being treated to some infection in esophogus being given anti-biotics. Would like to offer vet an alternative diagnosis

    1. Pam

      Systemic Lupus Erythematosus(SLE): is one of several diseases known as “the great imitators” because its symptoms vary so widely it often mimics or is mistaken for other illnesses, and because the symptoms come and go unpredictably. Diagnosis can be elusive, with patients sometimes suffering unexplained symptoms and untreated SLE for years. Common initial and chronic complaints are fever, malaise, joint pains, myalgias and fatigue.

      Discoid Lupus symptoms: normally starts as loss of pigment around the nose. There may be scabby sores or just scaling of the nasal tissue. The surface of the nose may change from its typical cobblestoned appearance to a smooth surface.

  4. redbeauty

    Could I have the lupus disease?
    Can lupus cause a rash on your vagina lip,ex. red circle painless nor itchy rash on one vagina lip? I have rashes on my legs that are sorta similar to the rashes of lupus on the skin. That doesn’t itch either, n i read up on it and the site showed pics and that the rashes usually doesn’t itch and the are circle n so are mine. I have a daughter and I’m hoping and praying that she doesn’t develop any symptoms like this. I cry about this all the time cause idk what’s causing this or anything and i’m scared. So can lupus cause a lesion in the vagina area too? I have had a false positive for syphilis the vdrl and the rpr was reactive, but the tp-pa was non reactive n the dr at the clinical told me i don’t have it n so did my dr. Anyway they showed me numerous things that could’ve caused the false positive and lupus was on there and whateva is wrong with me is chronic, because that was also on the paper to and so was rhu. arthritis. All serious answers please n thanks n advance. (= I’m calling someone at the lupus clinic later on today and see what they can do for me since i doesn’t have insurance. Hope they can help!
    n i don’t have herpes either… don’t have all those big nasty looking sores in my private area and that was only one time with the thing in the viginal area. N herpes ITCH… DUMB ASS… Know someone who have it.

  5. Anonymous

    I suffer from advanced rheumatoid arthritis It inflames all systems.What are symptoms of Lupus?
    I’ve had 6 joint replacements & 10 surgeries. But still suffer from flu-like digestive sys inflamation. No dairy, eggs, meat; vegan diet with herbal and other suppliments. At least I can walk, but the selfishness and cruel judgeing from biological family members and others causes me to grieve, because I love and pray for them and myself. Jesus wept a lot too. Ability to love is not about others; It’s about oneself, and God is the only witness that sees true.It is the small gestures of kindness and mercy that have the greatest meaning to someone who suffers. You don’t have to rescue them; just acknowledge them as still part of humanity. Go to others with something to share, and not with emptyness expecting others to fill you. Only you can rescue you from false identity, and still love. Purify your thoughts and heartfelt intentions. That’s what we’re here to learn. We are not our bodies. This world is only a shadow of the true world.

    1. Donna M

      There are two types of Lupus:
      Discoid lupus erythematosus (DLE)
      and Systemic lupus erythematosus (SLE)

      The only symptom of DLE is a butterfly-shaped facial rash that may spread to the forehead or the scalp.

      Symptoms of SLE include facial rash, fever, fatigue and malaise, joint and muscle pain, weight loss, hair loss, sensitivity to the sun, mouth sores, vulnerability to illness, enlarged lymph nodes, nausea, constipation or diarrhea, recurring bladder infections, and presence of lupus antibodies in the blood.

      As a side note, have you every tried Bach Flower Remedies. Edward Bach’s theories on illness might interest you, so if you can find his book Heal Thyself, you’d learn a lot.
      His research has shown that people who develop arthritis and other diseases leading to stiffness or rigidity is a reflection of the same in the person’s character or mindset.
      I’m not accusing you of anything here, please understand. I read the book a couple of weeks ago, to learn more about myself and why I’m prone to certain things. It took a couple of days to get my head around it, but it’s powerful stuff.
      Good luck, hon 🙂

  6. jaz mie

    what is SLE(Systemic Lupus Erythematosus)?
    please explain to me SLE (Systemic Lupus Erythematosus) more, so i can fully understand the illness.
    i want to know about the possibility of death on teenagers who suffer SLE.
    are there teenagers who’re aware of their illness and can already predict when they’ll pass away?
    are there cases like this?
    who are the persons who’re usually having SLE?
    what are the causes?symptoms?treatments?
    do they have medications?


  7. luffjm34

    What autoimmune disorder would cause these symptoms for so many years?
    -Extreme Fatigue
    -Never feel rested after sleep
    -Stomach problems (gas, cramps)
    -Low body temperature
    -raised SED rate/C Reactive protein

    I have tested negative for lupus, rheumatoid arthritis, Celiac’s and my thryoid number was a little off, but not out of the lab’s normal range. These symptoms have been for EIGHT YEARS.

    1. Kingfisher

      Are you on a gluten-free diet? If not, consider doing this, and after 3 or so months, get all of your blood levels tested again. Celiac tests are notorious for providing false negatives, and the symptoms of Celiac disease can disguise themselves as a number of things, including cancer.

      I tested negative as a Celiac, but after the 1st month on a strict gluten-free diet, I noticed huge changes in my state of health. It was like I had a new lease on life. By 3 months, my thyroid was normal again and I have so much more energy.

      Good luck on your quest for health.

  8. lwa519

    How long to get rid of Drug-Induced Lupus?
    I recently found out that I have Drug Induced Lupus caused by long-term use of the antibiotic Minocycline. I’ve been experiencing extreme joint pain (to the point that I can barely walk or even open and close my hands most days) as well as some other minor symptoms like low-grade fevers, stomach problems, etc.

    I stopped taking the Minocycline a week and a half ago when I found out and my doctor gave me a prescription for taking a 400mg Ibuprofen tablet in the morning and another at night.

    It was my understanding that my symptoms would get better every day and be completely gone in about a week or two, but the joint pain is just getting worse. No more fevers or stomach problems, but almost two weeks later I’m as bad as I was in the beginning. I have good and bad days, but the bad days are REALLY bad! Today I almost couldn’t get out of my bed and getting down a flight of stairs was absolute torture. The Ibuprofen just isn’t helping anymore, the pain is too much.

    Is this normal? Should my symptoms be coming and going with no real improvement two weeks after stopping the drug that caused this? I thought I was going to get better every day but it’s not happening.

    Thank you for the help!

    1. Kisses123

      The only way I know of to get rid of drug induced lupus is to completely stop taking the medication, but I am not fluent on lupus, i have only learned about it in my Immunology class… It may be possible that the drug you were taking had some serious affects on you and are causing you to be symptomatic for longer that estimated… Drug induced lupus is different for everyone depending on the severity of the disease… There may even be a chance that stopping the drug did not completely stop the lupus in its tracks… If your symptoms persist, I would suggest seeing a doctor and discussing another way to combat it or even getting something else other than ibuprofen like corticosteroids because maybe ibuprofen is not helping you… I know that when I had an allergic reaction, it lasted for a month and my doctor told me it would only persist for about 2 weeks… every day I felt worse and worse and was constantly getting esophagus spasms… the one day it went away it was like with the snap of a finger… I know that lupus is an autoimmune disease, so your body will end up attacking itself… I think now you are at the point where you need to wait it out and let your body sort out whats going on within it… Once that drug is completely out of your system, it “should” recover… Antibiotics can live within your body for weeks (even longer than the 2 weeks thats why my allergic reaction to them went on for about a month)… There have been reported cases of Drug induced lupus that have not been cured from just stopping the antibiotics, so be sure to keep an eye on it, but try not to overstress about it or you can cause your body to “believe” you have it and make you feel the symptoms even when you dont… (im guilty of doing this myself…) Sorry I am not of much help, but for now try not to worry and relax… Since it has been two weeks, that is plenty of time for you to call the doctor and state you are not getting better and decide on another plan of action… Feel Better!

  9. Me

    does pheochromocytoma cause hairloss? (have other symptoms. doctors or nurses PLEASE answer!)?
    doctors or nurses, please take a look at this and tell me if you think it might be possible that i have a pheochromocytoma. i know it’s rare however…

    at around 17 i had an xray done because i started getting bad joint pains. they saw a mass on my adrenal glad, but never investigated it. then i developed inappropriate sinus tachycardia. i was given atenolol, and developed the very rare symptoms of lupus. i was on that for 5 years and was told by doctors that my lupus symptoms were all in my head and that i was crazy. i went off the atenolol and all the symptoms went away. i was diagnosed with drug induced lupus.(this is apparently genetic. my grandma got it from beta blockers too) For the latter 3 of the 5 years, my hair began to fall out by the masses. The first 2 years on the atenolol, it did not fall out at all.

    i’ve been off the atenolol for almost a year and my hair is STILL falling out by the masses. most of my lupus symptoms are gone. occasionally i’ll get tingling in my hands and feet, or joint pain. once a month maybe. the tingling in my hands and feet has become more frequent in the last month or two. once every 1 or 2 weeks, i’ll have it happen on and off for a day or 2. since i’ve been off the beta blockers for almost a year, i’ve had the inappropriate sinus tachycardia for a year. i have all the symptoms of it, and an electrocardiologist confirmed it today with an EKG and listening to my heart. He also gave me an event monitor and said to come back in 3 months. He said surgery won’t help me, and medicine won’t help much, but gave me a calcium channel blocker to help.

    My question is this…being that my hair is still falling out and we can’t find any apparent reason, i have tachycardia (although my mother and grandmother had it too. not sure what type), fatigue(probably from the tachycardia, i dont know) and the tingling in my hands and feet STILL, even a year after the lupus is supposed to be gone…could this all be caused by a pheochromocytoma? should i have that mass on my adrenal gland checked out to make sure that’s not what it is?

    i believe the xray had said it was 2 centimeters big. that’s small, but i think on your adrenal gland, that’s sort of big..

  10. animegirl

    Can surgery cause lupus symptoms to syddenly appear?
    In December I had a surgery to drain the periardial effusion around my heart. I wasn’t really in any pain and I had enery. After surgery I started to hurt everywhere and my eyes became super dry and I started seeing floaters and my ANA went to 1:160 and I am tired all the time but I dont sleep….what is going on? I dont think I definitely have lupus but I do believe surgery aggravated something. I also had a UTI shortly after which I never had in my life.
    I am on naproxen, colchicine, iron, and protonix.

  11. Letitia L

    Could I be suffering from lupus or is this just a result of my eating disorder?
    I am in recovery from the eating disorder, and have been eating a healthy diet for the past couple of months. I used to sometimes go a few days with no food or drink, even longer with no food but still drinking, plus for about 5 months I was eating around 350 calories a day and lost 60 pounds, then more recently I would have vomited up to 10 or even sometimes 15 times per day.

    A few months ago I got a weird rash on my neck that did not itch and was not painful, it has mostly gone now but still gets worse in sunlight, and it looks like the one of the rashes associated with lupus.
    I get a lot of mouth ulcers, even though I have not vomited a lot in the last 3 months, I often get one after the other, and sometimes small clusters of 3 or four in the same spot.
    I am very sensitive to the sun and it causes my cheeks and the bridge of my nose to go very red, like the butterly rash.
    I suffer from Rayaud’s phenomenon, when I am cold my fingers go really pale, then blue, then purple, then bright red.
    I have gastrointestinal issues such as nausea, abdominal pain and diarrhea.
    My eyes often feel dry.
    I get pain in my joints and muscles.
    I get a lot of really painful headaches.
    I have episodes of psychosis.
    I have major depression.
    Also I get really bad fatigue.

    I am 16 years old by the way…

    I have found these to all be symptoms of lupus, but I suppose most of them really could just be as a result of my eating disorder…
    How am I supposed to tell?

  12. Christina

    Do my symptoms relate with hypermobility?
    I am 15 years old. I have been sick for two years. I miss a lot of school with medical permission. Lupus runs in family, and rheum. thought I might have it. I have not been tested by any bloodwork except my elevated sed. rate. I was just diagnosed with hyper mobility syndrome and patellofemoral syndrome (chondromalacia patella).

    My symptoms include, ofcourse, pain in joints and bones…length of arm, leg, feet, toes, hands, fingers, wrist, elbow, shoulders, everything except hips.

    I have gastritis and erosion, but biopsies show nothing.

    I am immune to most medicines, unknown cause.

    My symptoms of illness include: fevers, frequent illness, headaches and migraines, crushing pain in chest, pain in chest, pain in ribcages with trouble moving and breathing, scoliosis, shocks in spine with make my legs collapse and I fall, shooting pains in stomach and chest to brain, fatigue, always sleeping, rashes, in sun get rashes on chest and neck. And more personal/serious ones.
    Oh, I also get frequent sore throats, nose bleeds (in 2006, 1-2 per day)=anemia, nasal sores, and vomitting.

    I am going back to school in a week. I was prescribed physical therapy and an anti inflamatory. I want to make sure my medicine will work (Meloxin or something?), beacuse I missed too much school on medical excuses, and I can’t do it this year. I want to know if I got the right diagnosis ? And if you have these symptoms too with HMS?

    1. familyguy

      hmmm…you sure do have a lot of conditions..
      I think rather than physical therapy, which will only address soft tissue issues, chiropractor rehab may be more beneficial for you. Especially if you can find a chiropractic neurologist. They are hard to find…but I think even regular chiropractic care can be more of benefit…

  13. bill b

    Is it common to gain substantial weight if you have lupus (ELS)?
    I have a preliminary diagnosis of lupus (ELS) and I am wondering if it causes weight gain as one of the side effects? I am aware of most of the symptoms but unsure about the weight gain.

    1. LuckyLady

      Lupus is one of the strangest things in the world. The medical literature says wt. loss is common – especially BEFORE the steroids. But there as many different symptoms of SLE as there are people who have it. It affects no two people in identical ways. If you are not doing anything external to cause the weight gain, it could be the SLE. Lupus can screw up any of your functions, including pituitary function or thyroid – which could affect weight.

      Let me give you this insight, just in case you do have to go on steroids: They make it difficult to lose weight. they make you look like you’ve gotten fat, but it might just be the swelling that goes along with high dose. Keep eating a healthy balanced diet, within your restrictions, and when the dosage goes down, so will the swelling.

      At first, I would go ahead and eat whatever – like “it didn’t matter, I’m fat anyway”, then later would have to lose the extra wt. Over the years I have learned to keep doing the right thing and let the side effects come and go. My wt has stabilized now.

      Good Luck – I really mean it.

  14. angl2839

    Can Lupus cause Multiple Sclerosis?
    Just wondering if that is possible. I was diagnosed with Lupus about a year ago, and I am having alot of symptoms like eye pain, muscle weakness, confusion, dizziness, etc. which are seen in MS patients so I was just wondering what someone else thought. Thanks!

    1. christibro40

      well you can have both but it is rare. however, Lupus can attack the central nervous system, mine does, and I have a lot of MS features, the differance is in MS the mylan sheath gets destroyed in your brain and spine, in Lupus it does not. however, the eye pain, confusion, dizziiness, weakneess falling are features of both. Ive been tested for MS 3 times, during my course with Lupus, but its not there. So they consider my Lupus mainly Central Nervous System Involved. which includes seizures, migranes, and all mentioned above, and falls.

    1. mgnysgtcappo

      I love it when people come in here and try to sell their so called homeopathic remedies. Every scientific study has proven beyond a resonable doubt that they don’t work yet still they are able to get people to buy their snake oil. Sorry, had to get that off my chest from the last answer.

      The actual cause of Lupus isn’t truly understood. Most doctors feel that genetics as well as environmental factors play a role in Lupus. There have been numerous studies but none are definitive. Lupus is an auto immune disease wherein the body’s immune system attacks both unhealthy and healthy cells. This causes inflammation and swelling in the joints as well as kidney, heart, lung, brain, skin, liver disease as well. Lupus is a systemic disease, meaning that it can attack any system of the body. Each Lupus patient can have a myriad of symptoms and different levels of involvement. Some have relative mild symptoms while others become life threatening. Lupus Nephritis (where lupus has attacked the kidneys) is prevailant in 50% of Lupus patients. Again the severity of Lupus Nepritis depends on several factors. Some people only have mild kidney problems while others need dialysis and transplant. The same is true for all other systems of the body. Fatigue is also a major symptom of Lupus. People with Lupus report having times of extreme fatigue where they can’t even get out of bed. Additionally, depression can also be a major symptom.

      Treatments for Lupus include steroid therapy either oral (Prednisone) or intravenous (methotrexate pulse). Plaquenil (antimalirial) is also still used although it’s use is antiquated. Cellcept (antirejection medication) is used to lower the immuno response keeping the immune system from attacking healthy cells. (Myfortic is the newest oral medication on the market, it is basically time released Cellcept which can help with any gasterointestinal issues from taking Cellcept).

      The most recent thearpy utilized in severe organ involved Lupus is Rituxan, an IV chemothearpy which iradicates B Cells and calms the immunoresponse.

      I hope this has been helpful

  15. sondra w

    hello i have sle(lupus)for 5 yrs now, do my sypmtoms mean my lupus is active?
    I am the typical story, I suffered for one year with doctors disbelief that something was wrong even after the rash broke out covering almost my entire body, it wasnt until I ended up in the ER for two weeks when I finally got the definete answers to my elements. I have SLE,discoud lupus, now lupus nepritis and so on. Now my first indication that something was wrong with me was joint pain(i thought carpool tunnel), but the pain eventually spread everywhere and then the fatigue, and then swollen joints and raynuads syndrome,so of course then fibromayglia. When I left the hospital I wasn’t as fatigued but the pain never went away nor the joint swelling, just a differnet joint everyday,so for five yrs I’v been on oxycotin and percocet to live a more pain managed life, but sometimes my symptoms get even worse( how could they?) they do basically my joint pain becomes every joint, the pain medicnes stop working, I cant walk without a walker or I walk very slow and painfully, so I tell my doctor as always andwe run more labs, platlets at 60K,but not low enough for her to be concerned shes waitin for mor test results, she says that although I have these sypmtoms including a lovely rash, that my lupus may not be active. Please anyone is this BS or what? Can you have what is obviously a flare and it not be your lupus causing it? right now i am on imuran and plaqnil and i was on predinose for 4 years straight and finally said no more because it wasnt controlling these elments, she wants to but me back on it to bring my platlets up, but i know once i go off they go down again, I have been on every medicatio for sle and none have changed anything, I have had rituxan injects no chnage so last year we tried it again and i had an allergic reaction. She doesnt want to try cytoxan because she says it doesnt help with swollen joints fatigue or pain, does any one know or have any idea? please give me your suggestions, thank you and sorry for the spelling my hands hurt and keep missing the letters.
    i’m sorry i forgot to mention , i’ve tried cellcept for two years no help sp they took me off, methotrayate for did not help either, we did the rituxamab once it did nothing so we tried it again a year later and i had a severe allergic reaction so no more of that. I am on 200mg plaqnil 2 times a day and imuran3x a day, i also do accupuncture thru kaiser but only for two months now and start biofeed back next week. I have been on permanant disability Social security since i got lupus in 2003(it took 18 months),I’m 34 this happened when i was 27-28. All your answers have been great, if my doctor would try the cytoxan i would be more than willing she doesnt think it will help with the joint pain and swelling or the fatique, I just had an Mri for the headaches today so maybe that will show them something.

  16. angelinaismywifey

    can a lupus rash come and go?
    like its under the skin….. looks and feels more like a circulation problem…. i have all other symptoms of lupus and this rash that wont stay long enough to show my dr! its worse at night and sometimes causes stroke like symptoms….i feel like im going crazy cuz other people cant see it like i can…..
    -weight loss,malabsorbtion
    -raynauds syndrome
    -swollen lymph glandsEVERYWHERE
    -thickened skin-feet&hands(poss associated scleroderma?)
    -pale skin&hyperpigmentation
    -swollen extremities, joints(stiff neck, knees,ankles,clavicles,,coccyx
    -slow healing wounds
    -dry mouth&skin
    -mucus in stools&blood
    -inflamed painfull veins that buldge&get hot to touch sometimes bringing hives
    -weird scar type bumps on face & back
    -chest pain&shortness of breath
    -blanching blood vessel dots
    -dry scaly skin that beaks&wont heal
    -hairloss ETC!!!
    and when the veins in my neck budge& throb sometimes i get dizzy&lethargic like w/ sudden sever headache and weakness—feels like a mini stroke!

    thanks for your help drs seem lost-bloodwrk normal,tested neg for R.A., LYME, STD’S,CELIAC,PARASITES, PLUS alot of general cbc marker tests—seems im in perfect health lol

    1. elpi

      There are definitive blood tests for lupus. Don’t diagnose yourself,.
      I have had it for years (SLE), and haven’t had any major organ involvement. Everybody is different.
      See a rheumatologist and remember, stress will cause what you are experiencing, a flare-up.

  17. christyk

    What causes persistent diarrhea not related to travel or flu like symptoms,stress or medication?
    I am not currently on any medication, but have a history of lupus.

  18. poobear

    Does anyone out there know anyone with Lupus?
    My Mom has been diagnosed with Lupus 10 years ago and I have seen her go through many horrible symptoms. Her lupus has caused her to have diabetese & hypo thyroid desiese. The scariest of these sympyoms are her parinoia. She has now turned on me, thinking that I am capable of all kinds of horrible things. She is trying to poison my kids against me & my husband. She has caused me great disstress & heartache. Should I cut off all ties with her from me & my kids. Please understand that this has gone on for some time now & I’m just tired. The Docs had her on Halodol before, but she doesnt want to be labled as paranoid so she quit taking those meds. Any helpful advice needed.

    1. bubba1pup

      Lupus doesn’t cause all those symptoms.
      Lupus is where the body attacks it’s self and you have organ problems like kidney disease and organ infections and skin problems and you can’t go out in the sun without being covered.
      Lupus is a non contagious, chronic inflammatory condition with reddened skin patches, lupus cause the body to make auto antibodies which attack the skin and other organs.
      Sounds like your mum has something else not lupus, take her to a different doctor.

  19. Mary

    Can Lupus affect the brain and be confused for MS?
    I was diagnosed with Lupus and now they are seeing Dysmyelination in my MRI, and I have symptoms that can be seen in both Lupus and MS. But I never read anything about Lupus affecting the brain and causing dysmyelination….was I not diagnosed right?

    1. pobrecita

      It is possible. There are certain diseases out there that are often misdiagnosed for one another…MS, Lupus, Lyme Disease. People I know with these diseases were tested over and over and diagnosed and misdiagnosed…an endless cycle. Ask for repeat blood tests, even though the tests are not definitive, something could have changed to give you a clearer answer. Ask for the tests to be repeated often.

  20. in COGNITO *

    does methotrexate cause fertility issues or other complications after molar pregnancy?
    It’s been 5 years since and I’ve had a daughter and adopted a son.

    does methotrexate cause fertility issues or other complications

    Also I’ve developed Lupus like symptoms (joint pain, photosensitivity, pos ANA, Nephritis, mouth sores)
    Can this be caused by a molar pregnancy ot metotrexate?

    1. sokokl

      The Lupus type symptoms could be coming from the Methotrexate, but I would recommend getting in touch with your rheumatologist as well to see what they say, and also I would recommend checking with your pharmacist and OB/GYN to see what they say about the potential for infertility with this medication.

  21. Becca

    Does anyone with Lupus suffer from hip pain?
    This question is about my 10 year old son.
    He has had extreme hip pain for almost a year and it has now spread into his lower back. He does have a positive ANA test but all others were negative including those for arthritis.
    I have had him to many specialists and they keep saying it is an auto immune problem but can not pinpoint what it is. They think Lupus may be possible cause of his symptoms and family history of it.
    Does anyone with Lupus suffer pain in the hips and back?

    1. Tattoo Steveo

      I’m being diagnosed with dermatomyositis and I have hip pain where I can’t even walk across my campus. I’m only 20, and I can barely lift my arms anymore. A positive ANA could be dermatomyositis and it could be because his muscles are getting weak around those areas. Try to see if his arms are weak and hard to hold small things up like a coffee mug. If he gets tired quickly it could be muscle weakness. If you want to check the beginning of the long road starts at a blood test to check your creatinine kinase levels. Definitely look into what I say because there is Juvenile Dermatomyositis. It affects kids exactly that age. Shoot me an email through here I can help out with questions. Good luck

  22. Anonymous

    Can someone thoroughly explain lupus symptoms?
    My doctor said I could have an autoimmune disease. I think most of the symptoms are in my head. They said this because they couldn’t find out what’s causing my chest pain and shortness of breath. maybe 3 days later, I started getting severe back pains, and minor pains in my arms and legs. I also don’t understand what they mean by fatigue. I’m tired some times but most of the time I’m up joking and laughing. My back pains are fine in the morning but starts to occur as it gets closer to night. I really need help because it’s driving me crazy doing research and just thinking about it. Plus I won’t know my lab results until 2 weeks from now

    1. Linda R

      First, autoimmune diseases often come in overlap, meaning it you have one you probably have more than one.

      With lupus, symptoms vary widely from patient to patient. 90-95% of us have joint pain and inflammation at some point. Many have pain when they take a deep breath. Most of us have times of extreme fatigue which means you are so tired you can barely take care of yourself. There are others, but they are not the most common.

      Your symptoms could be caused by a variety of different diseases or conditions. Lupus is not easy to diagnose. There is no single labtest for it. Work with your doctor until you find out what is causing you to feel so bad. Don’t give up. It may take some time.

  23. J

    Is cracking skin tissue on the feet a possible symptom of lupus? what could cause this?
    I don’t really wanna freak out, and I don’t think my mom has lupus (of course I have no way of knowing now), but she was stating that the skin tissue on the bottom of her feet was cracking and breaking, creating almost what are cuts all over her feet. She said she is concerned that if this is apparent in other tissue she may have lupus. What could cause something like this sort of reaction to skin tissue? Is cracking skin tissue a symptom of lupus? She has degenerative disc disease if that information is good for evaluation.

    1. architeuthis666

      Where on earth did she get the idea cracked feet could be caused by lupus? Cracked heels and feet are a very common problem–she just needs to see a good podiatrist. Symptoms of lupus are things like swelling, arthritis-like symptoms, fever and rashes, and fatigue.

  24. Jeanie P

    Can lupus cause your period to get wacky?
    I come from a family with 2 generations of SLE, my mother and my grandmother were diagnosed when they were about my age.

    In regards to the “wacky” period, let me preface this by saying that I used to be able to set a clock by my cycle — every 28 days.

    Two cycles ago my period was 4 days early.
    My last cycle was a week late.
    My period is now a little over 2 weeks late, with multiple (6) negative home pregnancy tests.

    Has anyone with Lupus ever had an experience where you missed/had a late period when you started to get symptom of Lupus? I also have noticed my joints hurting more in the past few months, and I seem to be more tired. Both of which I know are symptoms.

    I know I need to see a doctor, but it would be nice to know if someone else has had a similar experience.

  25. marie

    Can lupus cause Estrogen levels to rise?
    I have been worried about lupus for the last couple of months as my grandmother has it. I have not been tested or diagnosed yet, but have a couple of symptoms such as raynaud’s phenomenon and rosacea, among other things.

    For the past couple of weeks, I have felt like my estrogen levels are rising… my breasts seem to be a little bigger and sore, my skin looks better (not really complaining :D), I have been moody… basically I feel like I did when I was taking birth control over a year ago. I am NOT PREGNANT, and I am 20.

    Basically, could lupus cause an explained rise in estrogen? What could?? I am starting to get worried!

    1. Annie

      Results from studies are mixed on the effect that the hormone estrogen has on a woman’s risk of lupus or of having lupus flares. For example, while most women do not have symptom flares during pregnancy, when a woman has a high level of estrogen, a few women do have flares during pregnancy. And although most women develop lupus when they are age 15 to 45, when estrogen levels are higher, a number of women develop lupus after menopause, when estrogen levels are low.

      Hormone replacement therapy (HRT) and birth control pills (oral contraceptives) do not appear to affect a woman’s risk of lupus. Birth control pills also do not appear to increase the chance of symptom flares in women with moderate lupus that is inactive or under control.3

      Some research suggests smoking may increase the risk of getting lupus.

  26. sweet_thang0792

    Rheumatoid Arthritis/Lupus? Whats wrong?
    Hello. I am a 28 year old female and have a few questions and appreciate any response. I have been having numbness in my legs particulary from the back of my knee/leg down thru my toes where it is tingly, numb, and throbbing pain that will last all day off and on. Somtimes, I can be walking and my legs go numb to where i cant move and have to stand still till i can walk again or drag myself to something to lean on. They did a EMG and it came back normal, so then they did bloodwork and said that my Sed Rate was 47 and Rhunmatoid Factor was 10 and i have a appt schedlued for Rhuemotologist. They did a MRi of my back and it shows there is loss of signal in the L4 and L5, T11-T12 and T12-L1, also buldging discs, disc protrusion and multi-level degenerative disc disease. I get sick a lot and was in hospital in april with symptoms of meningitus, but wasnt (I had meningutius 2007 so i know the symptoms) they never knew the cause, i get sick a lot, always feel tired. I have nausea and frequent migraines. Doc asked if anyone in the family has had Lupus. Does these symptoms/diagnoses mean there is something wrong, and if so what? Does it sound like it could be Lopus? Your help is greatly appeciated.

    1. Jo

      Some of your symptoms do sound like they could be lupus or another rheumatological problem. Hopefully, the specialisit can tell you something. Lupus is a disorder that has many different types. Some are nuisances. Others are a big problems. The way I understand it, while there might be some hereditary tendancy towards lupus, it isn’t one of those things that you will necessarily have a family history for.

      There is a possibility that you could have a neurological problem that they haven’t discovered yet. Normal EMGs can come back on some people who have neurological problems. In addition, neurological problems are some of the most difficult problems to diagnose.

      Unfortunately, you are in the age group where lupus is more likely to occur. On the other hand, your varied symptoms might suggest that you have more than one condition causing your problems. This could make it difficult diagnose.

      Your rheumatologist will have more answers for you than anyone here. See what he has to say. Ask him questions. Listen to his answers.

  27. Anonymous

    DOCTORS PLEASE HELP! I have EBV and my dr. said I will most likely develope Lupus> What should I be expecting?
    I am a 14 year old girl and I have Epstein-Barr Virus and I was told that I will probably develope lupus. Many symptoms I have had are — a red rash that is on my cheeks and nose and it is always on my face just its not always bright red but I can see the outline if i look really close. Here are some other symptoms I have had since July if I remeber correctly. For starters I have the hardest time remebering things, depression, really hard time consintrating, 2 periods of where it hurts when I take deep breaths or move my head, I can’t sit criss-cross anymore because it hurts my knee’s, I have several swollen lymphnodes that come and go except the one behind my ear that never changes, I have musle weekness i think because I can’t even hold a book out to someone for more than 2 seconds before my hands and arms start shaking. Also, my hands and feet are always cold but my legs are always really warm and lets just say you can feel the heat off my legs through my pants. Also sometimes I have just plain out muscle aches that move from my leg to my arm and so on. I think my parents think I am faking it because I never have a fever. I don’t want to tell my doctor either cause he might think im faking. Really need some advise or something I feel so helpless and down. Does this sound like I have just convinced my self that its lupus or is it just in my head. Please answer with something useful and you will get some free easy points. I would wait until im 18 to go and talk to my doctor but it is so frustrating not being able to consintrate in school and its so hard to read because I forget things so easily. Also, track is going to be starting soon and I don’t know how I am going to handle this with sports and school work plus being so tired. Please realize that all my symptoms don’t come at once and they aren’t an everyday thing its on and off. Thanks for the help 🙂

    1. Suzan K

      As lupus does not really have any consistent or real treatment in conventional medicine, I hope you will not get it. If you think the cause was that Epstein-Barr Virus, why not to fight against it?
      –Have always fresh air in your house
      –Be on a kidney diet, avoiding too much salt and proteins
      –eat a lot of raw garlic with food
      –Often use vit C to strengthen your natural immunity
      –Eat a lot of fruit, avoid sugars, artificial sugars like aspartame splenda are worse, and avoid high fructose corn syrup.
      –Avoid all kinds of flu shots or other shots which can affect your immune system, as lupus is an immuno allergic disease.

  28. bmhubs

    I have these mysterious symptoms, do these ring a bell with anyone??? can really use some advice…?
    Does anyone know what might cause these symptoms?
    So in september of last year I became ill, I was tired all the time, i couldn’t sleep at night at all, in the morning after maybe 3 hours of sleep I would wake up and my body felt stiff. This was a common occurrence since august and then at the end of september I had what we are calling episodes where I took a nap and when I woke up I was dizzy (felt like the room was spinning), I couldn’t stand up without losing balance and I couldn’t speak. I knew what I wanted to say but I couldn’t get the words to come out and when I did I would stutter, also my legs and wrist and hands would go numb and tingle and sometimes just throb in pain. After going to neurology and being admitted to the hospital to have several test done the doctors came up with nothing.
    Recently I have been having new symptoms, my hair is falling out, and I have been having short headaches where I get sharp pains in my head for a few minutes, and I get these painful sensations in the back of neck right at my hair line that feels like pressure… I would really like to know other peoples thoughts on this because the doctors have no clue. They were thinking MS, or Lupus but the lupus test came back negative and the only effective test for MS is a spinal tap and they won’t do it. I have a doctors appointment Jan 9th and I would like some ideas to throw out to the doctors.

  29. Anonymous

    Does anyone have lupus?
    Hi, I’ve had lupus for almost five years now. It’s been in remission for four years, but the past few days it’s been flaring up again and I’m scared and I’m stressed and I’m nervous. I blame myself. For a month there I convinced myself, partially that I didn’t need meds, that I was cured. I even considered that I was mis-diagnosed and it wasn’t lupus, cause I hadn’t had any symptoms for so long.

    It was nice to feel normal. To not have to take handfuls of pills every day. It was nice to have extra money, my health insurance doesn’t really help with anything anymore.

    I just want it all to go away, I want to be normal. I don’t want to have to worry about this shit.

    I’m scared that I won’t be able to have kids. I’m scared to even think about trying. Cause even if I am able to have kids, my children could be born with lupus or could be born in pain as a symptom of neo-natal lupus. I’m scared to pass this on.

    Anyways, I’ve never met anyone else with lupus or anything similar. I don’t like talking about this stuff with anyone I know because I don’t want to worry them or make them feel bad for me. So I was just wondering if anything knows what I’m going through, and can relate-at all. I’m having a hard time right now.


  30. Jayne

    Are these the symptoms of mild or severe Lupus?
    it doesn’t all attack me at once, but they vary from time to time. I always feel these symptoms can be attributed to something else…
    I have already been diagnosed with SLE but I havent gone to my rheumatologist for 1/2 year now. I am also not taking any meds at this time. I dont have any rashes so I was wondering if I should just rest and take it easy, after all, the doc will probably prescribe prednisone and send me home.

    memory loss —–I am just plain forgetful and always have been though
    headaches———don’t everyone get them from time to time?
    fatigue—————I am in college, so stress?
    dizziness/lightheaded————-i guess can be from stress, lack of sleep?
    vertigo (nausea)———————-happens sometimes
    eye infections—————————- (eyelids swollen, but i think it was caused by dirty fingers) happened 4 times in 5 months
    mouth sores/ulcers—————-happening just now
    hair loss—————————I have thin hair, since HS
    loss of appetite—————–on and off, could be due to relationships+ school
    memory loss—–sometimes i want something and go to another room to get it, and then come back empty handed. but it will take me a while to realize i forgot something.

    1. ParzLou

      Hi Jayne.
      As you have already been diagnosed with SLE I am sure you know that your rheumatologist can best answer this …. however of the many issues you describe I can tell you that the hair loss and fatigue are common signs for lupus . The rest of your ailments could have any of a plethora of causes not necessarily attributed to your lupus itself but could be an underlying factor . I would schedule an appointment with your rheumatologist for a better idea of what may or may not be causing your ailments and what there relevance to your lupus could be…

      take care

  31. dancegal109

    Could this possibly be lupus?
    I am 18 years old and have been experiencing A LOT of joint pain, to the point where I can barely stand up or move it hurts so bad. For an 18 year old I don’t feel like this is normal. I also have very cold hands and feet, am tired ALL the time, shortness of breath, dry eyes, anxiety, easy bruising, and very mild hair loss. I have visited doctors and had blood tests ran, but none that would show this as a possible cause. I have looked up my symptoms and lupus keeps coming up as the top possibility.
    What would I ask my doctor to test for (since there is no ‘lupus test’)?
    Do you think this could possibly be lupus?

    I am just looking for an answer, this pain has been constant and worsening, and I am a dance major so it is really impacting my life.

    Any relevant response would be GREATLY appreciated!

  32. wingsovgrace

    Have you been diagnosed with drug induced Lupus ?
    !0 years ago began having problem with elevated blood pressure. Was treated with the usually prescribed meds. Within the past ten years I have had a variety of unusual and often preplexing symptoms that the doctors couldn’t find good answers for. Lots of guesses and lots of unsuccessful treatments and increased frustration and misery until recently. The diagnosis is drug induced Lupus and it is believed to be caused by my blood pressure meds. Bingo. The symptoms have developed over the same period I’ve been on the meds. My question is: Any known effective alternatives for Blood Pressure Control? Anyone else with Lupus have bizarre skin and hair folllicle issues? Any one know a reputable doctor in Kansas City Missouri to advise on alternative treatments? Any one know of a web site to purchase alternative B/P treatments that you or someone you know have had personal experience with? Are there suggestions for a great support website for Lupus?

    1. Healing Oneself

      Hi WIngsOfGrace

      Here are some ideas to heal the issue. Also learning about detoxifying the blood by doing colon and liver cleanses will change your health forever.

      Food allergies (there is a 100 percent correlation between lupus and food allergies), rheumatoid arthritis, other connective tissue diseases, parasites, candidiasis, bowel problems, and digestive enzyme deficiencies can create symptoms that mimic or exacerbate SLE. Migraines, epilepsy, and psychoses must also be ruled out before a proper course of treatment can be decided upon.

      Both forms of lupus primarily strike young women (90% of cases) and young children.

      The drugs hydralazine, procainamide, and beta blockers can cause false-positive readings of SLE, and can also produce a lupus-like condition that disappears when the drugs are no longer taken. Birth control pills and environmental stresses can also exacerbate lupus symptoms.


      Natural Cures

      Diet: Eat an organic, whole foods diet. Also avoid overeating and limit your intake of dairy, beef products, and polyunsaturated oils. Also screen for food allergies and avoid all foods to which you are allergic or sensitive. Increase your intake of vegetables, especially green, yellow, and orange, and consume non-farm-raised fish several times a week.

      Herbs: Supplementation with Swedish bitters with each meal can increase hydrochloric acid production. Also drink an infusion of nettle twice a day. Other useful herbs include echinacea, goldenseal, licorice, pau d`arco, and red clover

      Hydrotherapy: Hydrotherapy is the application of water, ice, steam and hot and cold temperatures to maintain and restore health. Treatments include full body immersion, steam baths, saunas, sitz baths, colonic irrigation and the application of hot and/or cold compresses. Hydrotherapy is effective for treating a wide range of conditions and can easily be used in the home as part of a self-care program. Many Naturopathic Physicians, Physical Therapists and Day Spas use Hydrotherapy as part of treatment.

      Hyperthermia: Hyperthermia involves artificially creating fever in the body for the purpose of boosting immune function. Hyperthermia can be a highly effective method of eliminating toxins and heavy metals, as well as infectious bacteria and viruses that cannot survive in elevated body temperatures.

      *Purified water is essential for any hydrotherapy or hyperthermia treatment. Remedies for Treating Chlorinated Bath Water offers clear instructions and recommendations.

      Juice Therapy: Drink the juice of carrot, celery, flaxseed oil, black currant oil, and garlic.

      Nutritional Supplementation: Hydrochloric acid (HCL) deficiency is common in people with lupus, therefore HCL supplements with each meal is advised. Other useful nutrients include vitamin A with beta carotene, vitamin C and bioflavonoids, vitamin B complex, vitamin B5, vitamin B6, vitamin B12, calcium, magnesium, selenium, zinc, essential fatty acids, proteolytic enzymes taken away from meals, digestive enzymes taken with meals, and the amino acids L-cysteine, L-methionine, and L-cystine.

      Topical Treatment: PABA cream applied topically can help ease symptoms.

      Best of health to you

  33. mrs.sexyone

    what is lupus?
    Defining Lupus

    A chronic, inflammatory, connective tissue disease that can affect the joints and many organs, including the skin, heart, lungs, kidneys, and nervous system. It can cause many different symptoms; however, not everyone with lupus has all of the symptoms. Also called systemic lupus erythematosus (SLE

    1. christibro40

      I think you answered your own question. I have Lupus and have had it for a long time. The only thing you didnt put is that it is an autoimmune disease where our own cells attack each other because they become hyperactive, and do not know they are attacking their own healthy cells. So Dr’s use immunosuppresents, chemotherapy, and prednisone, to suppress the immune system, in hopes of quieting a flare or pushing it down into remmison,

  34. Hope C

    Why do so many people resist the idea that food causes illness?
    If you tell someone to try a natural, organic diet free of preservatives and chemicals, they resist it, but will pop a pill of even more toxic stuff? I was in seriously poor shape two years ago with a multitude of problems, including lupus, rheumatoid arthritis, hidradenitis and thyroid problems. When I stopped eating processed food, and eliminated wheat, soy and eggs from my diet, the symptoms cleared up. I wonder why many people don’t realize the toxins that are in commercial meats, milk and processed food? All you have to do is read the label to see how bad it is!
    I enjoy a lovely diet of fresh, organic veggies, rice pastas, fruits, fish, seafood, rice, quinoa, millet, flax, nuts, seeds, berries, etc. I dont feel deprived at all. Its the toxic artificially enhanced stuff that I am refering to. My diet is much more enjoyable and :”comforting” to me now, and my 12 year old is thriving on it!

    1. Jadis

      AMEN!! If you can’t pronounce it, you probably shouldn’t be eating it.

      As to why people resist it, it’s a heck of a lot easier to pop a frozen dinner in the microwave than to cook from scratch….I used to feel that way, until we started eating cleanly….WOW. Food actually has TASTE! What a concept!

      Excellent post! Wish I could give you 10 points for it!

  35. kevin

    Do you think im having a lupus flare? i have many symptoms?
    Im a 17 yr old male and i was diagnosed with lupus about 3 years ago..since my diagnosis i haven’t really had any problems with the disease. For the past two weeks ive had severe loss of appetite, nausau, dizziness and some random joint pains. Ive only vomited two times in these last few weeks but the nausau and dizziness is really bothering me. I can’t tell if the appetite loss is what is causing the other symptoms, because i only eat occasionally because i dont feel good when i do eat. I am trying to make an appointment with my doctor now, but if anyone has any good imformation please let me know. Greatly appreciated.

  36. sante

    Was I misdiagnose? lupus or weak immune system?
    8 months ago while I was pregnant, I was diagnose with lupus. But the only symptoms that I am experiencing is joints pain and fatique some times. My doctor said that all of my organs are fine, I do not have a butterfly face neither skin problem. I wonder if the diagnosis was wrong.

    Does a weak immune system can cause thoses symptoms? I refuse to go on hormones treatments and trying to work on strenghtening my immune system first and hopefully reverse the condition.

    your experience and advise are welcome

    1. reifguy

      lupus is many stages ,and there is discoid and systemic lupus ,the immune system isnt weak in lupus its reacting in a way damaging the body and causing problems and inflammations ,if your diagnosis wasnt correct or u doubt it ,get a second opinion from a rheumatologist ,diagnosing lupus isnt easy in early stages and once diagnosed many go through remissions and relapse ,

  37. fish3r23

    worried i might have lupus?
    i have the butterfly rash on my face but no other symptom of lupus.
    is there any other causes for this rash?


  38. samantha

    been very ill- could i have lupus?
    for the last year ive been really sick. ive had numerous test done and been put on a hole mess load of medications. but nothing seems to help and im just getting worse. im in constant pain and cant hardly eat. my entire stomach hurts and my food doesnt digest and i have no bowel movements. it hurts to empty my bladder and my lower back feels like its breaking. mostly i get pains under my ribs and on my sides. but i also get shooting pains every where at different times.

    well ive been doing a lot of research on my own because my doctors cant seem to find out whats wrong with me. and i came across lupus. all i know about it now is its an auto- immune disease and it can affect your organs and make you lose function of them. so i wondering if i could have it. i dont have a history of any gastric problems in my family except acid reflex but ive been tested for that.

    what are the symptoms of lupus? how do you test for lupus? how do you treat lupus?

    i just what to know as much as possible about lupus or any other illness that can cause my symptoms. if any one could give me some information i would really appreciate it!

    thank you


  39. Ern

    Ive had lupus symptoms for 4 months..?
    Im 21 and had my third child 4 months ago. About a week and a half after she was born i began developing what i though were allergies-stucfy/runny nose all day and night and headaches. About a week after that I began getting these bumps on my eye lash lines. I thoufht they were styles-they would last a week causing watery eyes, red eyes, itching, pain and slme times inability to epen eyes because the light hurt too bad. This remained along with the “allergies”. When one stye left another one came… though the severity of began to decrease. Teh the extreme fatigue began to I can sleep 10 hours a night and still fall asleep just sitting at the table writing and i nap twice a day (very understanding husband just watches the kids and helps with housework). This was immediately followed by bad knee joint pain and hair loss.. i cant wear my hair down anymore because hair ends up in food, all over my clothes, all over my things ect… and to top it all off ive been getting headaches daily. Not severe but constant and i never got head aches before. I am also getting bruises up and down my legs and arms-either from slight toughing or i dont know the origin. Could thos be lupus? I dont have insurance right now nor a lot of money tp go see a specialist with. How is lupus diagnosed?

  40. theemandee

    52 and diagnosed with Lupus but are all her symptoms caused by the lupus?
    My mom has been in and out of the hospital over the last few months and recently has been put on 24-7 watch at the hospital near me because of Lupus.

    A few days ago she felt fine.. they have her on steroids for lupus and she was doing great. Then they did surgery to remove fluid from around her heart that the steroids didn’t get.. and she’s not herself anymore. She doesn’t remember who we are and sometimes doesn’t remember where she is. It’s like talking to an 80 year old with dementia or alzheimers. It’s really, really scary to see her like this.

    Has anyone seen confusion and memory loss in Lupus? She gets over agitated very easily and thinks every noise is something significant. Her heart rate has been jumping up to 205-209 so they have her on medication to try and keep it down. Is this just because of the late diagnosis of Lupus? She only had 3 out of 4 of the criteria before and they wouldn’t treat her but now she has the criteria and is finally being treated.

    Will she come out of this? Will she be herself again?

    1. matador 89

      In Lupus, the immune system attacks healthy cells and tissues by mistake. This can damage the joints, skin, blood vessels and organs. There are many kinds of lupus. The most common type, systemic lupus erythematosus, affects many parts of the body. Discoid lupus causes a rash that doesn’t go away. Subacute cutaneous lupus causes sores after being out in the sun. Another type can be caused by medication. Neonatal lupus, which is rare, affects newborns. Anyone can get lupus, but women are most at risk. Lupus is also more common in African American, Hispanic, Asian and Native American women. The cause of lupus is not known. Unfortunately, you have described one of the possible symptoms of Lupus. Symptoms of lupus can range from mild to severe and may come and go over time. Other symptoms of lupus include chest pain, hair loss, anaemia (a decrease in red blood cells), mouth ulcers, and pale or purple fingers and toes from cold and stress. Some people also experience headaches, dizziness, depression, confusion, or seizures. New symptoms may continue to appear years after the initial diagnosis, and different symptoms can occur at different times. The idea that lupus is generally a fatal disease is a big misconception. In fact, the prognosis of lupus is much better today than ever before. It is true that medical science has not yet developed a method for curing lupus. And some people do die from the disease. However, people with non-organ threatening aspects of lupus can look forward to a normal lifespan. The course of the disease is characterised by periods of remission when the person is free from symptoms and by periods of flare-up when the symptoms return or are not under control.


      It is extremely important to obtain an accurate diagnosis before trying to find a cure. Many diseases and conditions share common symptoms.

      The information provided here should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions.

      Hope this helps
      matador 89

  41. MJ H

    Do you know someone with Systemic Lupus?
    Lupus is an auto-immune disease that causes inflammation throughout the body. Your own immune system attacks your internal organs such as kidneys, liver, heart, lungs, and central nervous system. It also attacks your joints causing arthritis like pain. Other symptoms include butterfly shaped rash covering the cheeks and nose, hair loss, extreme fatigue, anemia or blood clotting issues, pleurisy, and ulceration in the nose and mouth.

  42. Liz

    What physical symptoms can flea bites cause?
    Ive been having knee/leg pain also arm pain. Basically joint pain. I seen a rhematologist today and my doctor took arthritis tests, lupus, and some others, all negative. He noticed flea bites that i have from about two months ago. Their everywhere! Tons! He said that infections from other people or animals can cause these symptoms, and that they go away in about 6 weeks. Has anyone else ever had this? Or heard about it? This is new to me. I hope that’s all it is. I don’t want arthritis!


  43. Jenell

    Will Discoid Lupus give you symptoms?
    For years I have suffered from extreme fatigue, constant headaches, anxiety, depression, constantly being sick. I found out last week that I have discoid lupus via skin biopsy. Could this be the cause of my troubles? I got blood take to test for SLE and I don’t have that.

    Thank you!
    will discoid then only affect the skin?

  44. •Megan*Nicole•

    Anyone have any information on Lupus? (Very Important)?
    Like who normally gets it.. Causes.. Symptoms..
    People have said they thought I might have it, and I’m scared because I know nothing about it.
    When I was having problems with my ankle a Orthopedic doctor even said I could possibly have Lupus

  45. J.prettygirl.rock

    Diabetes? Lupus? MS? What’s causing all of these symptoms and pain? Started with a simple hairline fracture?
    I hairline fractured my Left arm Radius about 3 weeks ago. At first I thought it was a sprain or bruise so I didn’t have it looked at immediately. My hand had been tingling and feeling numb and as the pain increased my fingers got colder and started turning blue, so I went to the dr. They confirmed it was a hairline fracture, it was affecting vascularity and had injured the radial nerve. I have developed wrist and finger “drop” (Radial Nerve Palsy) since the injury, but I have also been having a lot of other symptoms appear. I have peripheral neuropathy in my other extremities and I’ve been very sensitive to heat and cold. My hands will get ice cold and discolored for no reason. I’ve been having very dry, cracking, peeling and flaking skin, especially on my hands, feet and face. I don’t know if it’s fluid retention or just swelling but from the waist down there is excessive swelling and is painful in my feet and ankles. And over the last 3 days black spots have been popping up all over my chest, torso, back and arms with only a few on my face or legs. They look like black pimples under the surface or moles almost, they seem to have a “root” and only retract back into the skin when squeezed. What could be causing all of this?? I know nerve damage takes time to heal but this feels like more than just nerve damage. And i can’t find any other skin conditions that look like what I have. Any help, ideas, suggestions are very appreciated!

    1. Voelven

      It doesn’t sound like MS, and I am not familiar enough with the symptoms of diabetes or lupus to give you a proper answer there, but you need to go for another doctor check-up right away and make sure you inform the doctor about all your new symptoms.

      All the best to you.

  46. Dancer Girl :)

    General information on Lupus; including symptoms.?
    My doctor told me my joint problems could be caused by Lupus. I just want some general information on Lupus.

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