Pericarditis is a swelling and irritation of the pericardium, which is a thin sac-like membrane surrounding the heart. Pericarditis may be acute or chronic. Common symptoms of this condition include a sharp stabbing chest pain which intensifies on lying down; breathlessness while reclining; low grade fever; an overall sense of weakness, fatigue or feeling sick; dry cough; and abdominal or leg swelling. In the majority of patients with pericarditis, there is no known cause for this condition. A few patients may develop this disease after a viral infection, a major heart attack or heart surgery. Trauma, inflammatory disorders like lupus and rheumatoid arthritis, and other diseases like kidney failure, tuberculosis, cancer and AIDS can also cause this condition.

Pericarditis is a swelling and irritation of the pericardium, which is a thin sac-like membrane surrounding the heart. Pericarditis may be acute or chronic. Common symptoms of this condition include a sharp stabbing chest pain which intensifies on lying down; breathlessness while reclining; low grade fever; an overall sense of weakness, fatigue or feeling sick; dry cough; and abdominal or leg swelling. In the majority of patients with pericarditis, there is no known cause for this condition. A few patients may develop this disease after a viral infection, a major heart attack or heart surgery. Trauma, inflammatory disorders like lupus and rheumatoid arthritis, and other diseases like kidney failure, tuberculosis, cancer and AIDS can also cause this condition.


There are many causes of pericarditis, but it is often a complication of a viral infection (viral pericarditis) – usually a gastrointestinal virus, or rarely the flu virus or AIDS.  It may also be caused by a bacterial infection (bacterial pericarditis), fungal infection (fungal pericarditis) or parasitic infection (parasitic pericarditis).

Certain autoimmune diseases, such as lupus, rheumatoid arthritis and scleroderma, also can cause pericarditis. Additional causes of pericarditis include injury to the chest such as after a car accident (traumatic pericarditis), other health problems such as kidney failure (uremic pericarditis), tumors, genetic diseases such as Familial Mediterranean Fever (FMF), or rarely, medications that suppress the immune system.

Pericarditis is a disorder caused by inflammation of the pericardium, which is the sac-like covering of the heart. The pericardium has an inner and outer layer with a small amount of lubricating fluid between them. Pericarditis frequently causes a characteristic chest pain that usually compels one to seek medical attention. Pericarditis may be acute or chronic. The sharp chest pain associated with acute pericarditis occurs when the pericardium rubs against the heart’s outer layer. It is usually a complication of viral infections, most commonly echovirus or coxsackie viruses. Less frequently, it can be caused by influenza or HIV infection.


The most common symptom of pericarditis is sharp, stabbing chest pain behind the breastbone or in the left side of your chest. Pericarditis occurs in up to 15% of patients who have acute myocardial infarctions. Pericarditis most often affects men aged 20-50, usually following respiratory infections. It can also occur in children, where it is most commonly caused by adenovirus or coxsackie virus. Patients who have suffered a heart attack (myocardial infarction) may develop pericarditis over subsequent days or weeks. Kidney failure caused by the buildup of certain toxins in the body also can lead to pericarditis.


Treatment of histoplasmosis depends on the complexity of the disease. Anti fungal treatments are taken to cure the complex cases of acute histoplasmosis and all cases of chronic and disseminated disorders. Mild disease generally cure without treatment & may require only symptomatic measures.

Efficacious treatments are available in the market for even the most complex forms of histoplasmosis. Amphotericin B or itraconazole may be used to treat the disease histoplasmosis. Patients with acquired immunodeficiency syndrome (AIDS) may need treatment with an anti fungal medication for there long life to prevent further attacks of histoplasmosis.

Natural treatments for Epstein Barr Syndrome include high dose nutrients like vitamin C, zinc, selenium, CoQ10, magnesium and the B complex. Herbs like echinacea, oregano, olive leaf extract and astragalus are commonly used to support the immune and lymphatic system. If the liver and spleen are affected then the herbs red root and milk thistle are traditionally used.

81 thoughts on “Lupus Causes Treatments

    1. melssat

      I know nothing about dropping hair, lymphatic cancer, or ptimal epilipsy but I do have Lupus.
      Lupus is basically an overactive immune system that attacks health parts of the body. It is a serious disease but not always a deadly disease. People with Lupus can live a decent life that is not necessarily shortened due to the disease. Hope this helps 🙂

  1. toxicfievre

    can treatment for lupus cause you to lose your memory?
    someone i knew said he had lupus and had to get a treatment that would cause him to lose 4-6 months of memory…is this possile and how.and will he remember stuff later on??

  2. Coole!

    natural treatments for lupus?
    My brother was diagnosed for lupus after a blood clog and i was wondering if there was any treatment for this in a natural way
    Also i was wondering if high doses of blood thinners could have caused his lupus?
    One more question. Is there any specialist that treats lupus?

    1. christibro40

      Hi, Im Chris, I have had Lupus since my teens, but not diagnosed until my 20’s. I am sorry there is no miricle cure, just ways to manage it through proper medical care and supplements that his doctor must approve. He needs to get a reffreal to a rhuematologist. A rhemotologist is a doctor who handles arthritic conditions, and connective tissue diseases, which Lupus is, as well as being an autoimmune disease.
      An autoimmune disease happens when the body thinks it is being attacked by outside foreign invaders. Our cells go into overdrive and start attacking our own organs, skin, blood, nervous system, and anything else in our bodies it can get to.
      There are drugs to help us with the flares (periods of disease of activity). But he needs to be on them, Left untreated, he will not have any improvment, and can become more ill. go back to his primary care doctor and get a referrel to a rhuemotologist, it can take 1-2 months for a new paiten to get in to most, since in most parts of the country there is a shortage. Even here in Los Angeles, There can be a wait of 1-2 months, and we have many Rhuemotologists available to us. If you live in a hot/ sunny climate keep him out of the sun, that can make disease activity worse. From July-Sept, I do everything early in the morning or after dark, even swim in my pool. Sunsensitivity can make us very ill. Keep his diet as perservitive free as possible at least until seeing the specialist. Like I said I do take specialized supplements, but they are tailored for me, and approved by my doctor, the help, but do not cure. You will see advertisments for miricle cures. They may do more harm than good. Don’t try them please, they may really hurt him, doing serious organ damage.

      If you need support or he does, I own a lupus/autoimmune support group on yahoo support groups, you can join to get access to our files, and get support, friendships, and knowledge and well some off topic fun. Ill also leave you several links, like some of the others did. Just don’t try anything until you get to the right doctor, and get retested, because it may be another autoimmune.

      Good Luck

    1. Anama

      It is an autoimmune disease, and to explain it here would be silly when there are literally thousands of sites dedicated to lupus. There is a search engine on yahoo! ,please try using that.
      Lupus cdc
      Lupus foundations

  3. jaz mie

    what is SLE(Systemic Lupus Erythematosus)?
    please explain to me SLE (Systemic Lupus Erythematosus) more, so i can fully understand the illness.
    i want to know about the possibility of death on teenagers who suffer SLE.
    are there teenagers who’re aware of their illness and can already predict when they’ll pass away?
    are there cases like this?
    who are the persons who’re usually having SLE?
    what are the causes?symptoms?treatments?
    do they have medications?


  4. wingsovgrace

    Have you been diagnosed with drug induced Lupus ?
    !0 years ago began having problem with elevated blood pressure. Was treated with the usually prescribed meds. Within the past ten years I have had a variety of unusual and often preplexing symptoms that the doctors couldn’t find good answers for. Lots of guesses and lots of unsuccessful treatments and increased frustration and misery until recently. The diagnosis is drug induced Lupus and it is believed to be caused by my blood pressure meds. Bingo. The symptoms have developed over the same period I’ve been on the meds. My question is: Any known effective alternatives for Blood Pressure Control? Anyone else with Lupus have bizarre skin and hair folllicle issues? Any one know a reputable doctor in Kansas City Missouri to advise on alternative treatments? Any one know of a web site to purchase alternative B/P treatments that you or someone you know have had personal experience with? Are there suggestions for a great support website for Lupus?

    1. Healing Oneself

      Hi WIngsOfGrace

      Here are some ideas to heal the issue. Also learning about detoxifying the blood by doing colon and liver cleanses will change your health forever.

      Food allergies (there is a 100 percent correlation between lupus and food allergies), rheumatoid arthritis, other connective tissue diseases, parasites, candidiasis, bowel problems, and digestive enzyme deficiencies can create symptoms that mimic or exacerbate SLE. Migraines, epilepsy, and psychoses must also be ruled out before a proper course of treatment can be decided upon.

      Both forms of lupus primarily strike young women (90% of cases) and young children.

      The drugs hydralazine, procainamide, and beta blockers can cause false-positive readings of SLE, and can also produce a lupus-like condition that disappears when the drugs are no longer taken. Birth control pills and environmental stresses can also exacerbate lupus symptoms.


      Natural Cures

      Diet: Eat an organic, whole foods diet. Also avoid overeating and limit your intake of dairy, beef products, and polyunsaturated oils. Also screen for food allergies and avoid all foods to which you are allergic or sensitive. Increase your intake of vegetables, especially green, yellow, and orange, and consume non-farm-raised fish several times a week.

      Herbs: Supplementation with Swedish bitters with each meal can increase hydrochloric acid production. Also drink an infusion of nettle twice a day. Other useful herbs include echinacea, goldenseal, licorice, pau d`arco, and red clover

      Hydrotherapy: Hydrotherapy is the application of water, ice, steam and hot and cold temperatures to maintain and restore health. Treatments include full body immersion, steam baths, saunas, sitz baths, colonic irrigation and the application of hot and/or cold compresses. Hydrotherapy is effective for treating a wide range of conditions and can easily be used in the home as part of a self-care program. Many Naturopathic Physicians, Physical Therapists and Day Spas use Hydrotherapy as part of treatment.

      Hyperthermia: Hyperthermia involves artificially creating fever in the body for the purpose of boosting immune function. Hyperthermia can be a highly effective method of eliminating toxins and heavy metals, as well as infectious bacteria and viruses that cannot survive in elevated body temperatures.

      *Purified water is essential for any hydrotherapy or hyperthermia treatment. Remedies for Treating Chlorinated Bath Water offers clear instructions and recommendations.

      Juice Therapy: Drink the juice of carrot, celery, flaxseed oil, black currant oil, and garlic.

      Nutritional Supplementation: Hydrochloric acid (HCL) deficiency is common in people with lupus, therefore HCL supplements with each meal is advised. Other useful nutrients include vitamin A with beta carotene, vitamin C and bioflavonoids, vitamin B complex, vitamin B5, vitamin B6, vitamin B12, calcium, magnesium, selenium, zinc, essential fatty acids, proteolytic enzymes taken away from meals, digestive enzymes taken with meals, and the amino acids L-cysteine, L-methionine, and L-cystine.

      Topical Treatment: PABA cream applied topically can help ease symptoms.

      Best of health to you

  5. vivib

    Not MS, not Lupus, then what?
    I have been seeing a neurologist due to extreme muscle and joint pain, i stumble a lot, drop things, forgetfullness. I do have fibromyalgia and have for years. I also have peripheral neuropathy ( no diabetes) I have had tests to rule out Lupus and MS (which does run in the family) Lupus is neg, not enough points or evidence for MS, ( no lesions on the brain) but does not mean i do not have it. So now he wants to do more aggressive and specific testing. What I want are some suggestions of what it might be from those who experiene this, so that i can read up on it so that I can ask questions and not look like a dope when we discuss different possible causes and treatments.

    1. vanhammer

      My wife has Fibromyalgia, chronic fatigue and chronic pain syndrome. She has all the symptoms you described. Fibromyalgia has the same symptoms as MS and lupus. That’s why it’s so hard to diagnose. There’s also RSD- reflex sympathetic disorder that is similar as far as symptoms go. I know it’s frustrating, she sees different Dr.s all the time and no one can really offer much help other than a Rheumatologist or a Pain Mgmt Dr. Good luck. Don’t give up.

  6. KevinMac

    Lupus is difficult to treat. As long as I’ve been studying it, it seems to evade answers. The reason is that it is a disease like AIDS, it destroys the body. Sometimes it attacks the brain, sometimes the kidneys, eyesight etc. The ONLY thing that can slow down this awful disease is Prednisone. Prednisone will immediately shock the system into stopping this self-destruction, depending on the dose. The adreanal glands produce approximately 7 mg of steroids that the body needs in order to help the hormones stay in balance. When the human body begins to take Prednisone, the Adrenal glands shut down, forever. There has never been a study that supports the theory that the Adrenal glands can re-start-up, once they have been shut down or driven to sleep. Therefore, the Prednisone MUST keep coming. The difficult balance is to keep the disease at bay, while keeping the body healty enough to fight the common cold. When the human body is suffering with an infection, too high a dose of Prednisone can mask the infection, making the patient believe that they feel wonderful while the truth is that their body is being invaded with infection. Your friend sounds like she has been taking Prednisone for a long time. Her doctor should be notified and he should try to adjust the amount of Prednisone as soon as possible. If your friend is “flaring,” the only thing that will immediately bring the flare into control, is massive doses of Prednisone, after which it is usually brought down by 25mg a day until she is back on a usual dose. Good Luck!

  7. Eden*

    I agree with Brian. Rumours and hearsay with a desire to hurt and dismantle someone is pernicious. And as you said once in another post, useless to defend yourself when a person’s mindset is immovable.
    I can understand the Lupus rash for obvious reasons, although it was the one thing my daughter was never afflicted with severely, now and then she did have patches of dry skin that turned red and brown and were very painful and as a result she never wore dresses or skirts in the summertime so if Michael wore a glove to try and disguise his condition why does anyone have a problem with that?
    He’s going to be judged no matter what facts come out to the contrary sadly

  8. WolfeDCool

    Inflammation of the fatty layer under the skin of the skull?
    I have LUPUS SLE and BEHCET Syndrome. I get sudden lumps all around the skull and forehead which are very painful. To the extent that I cannot rest my head on a pillow. My Dr. said it is inflmmation of the fatty layer of skin and I would like to know what next? And what excatly causes it or how to treat it, if any treatment? Thank you.

    1. Scouttster

      I would say anytime that happens – grab some Vodka and Orange juice, and have a few drinks or more.. Get drunk!
      The reason it does that is because its a bacterial infection in your system and thats where it shows itself… Alcohol kills bacteria. So, start drinking and you will be able to tame and maybe completely eliminate it from your system.

  9. sarah

    my 8yr-old sister has an autoimmune disease or maybe something else?
    im really worried about my sister. recently my mom noticed that she started to lose some of her hair, so we took her to the dermatologist and they think its some sort of autoimmune thing, and they us this stuff to put in her hair every night except the weekends and her hair is sort of starting to come back ( note that she hadnt lost all of her hair, but a noticable amount at the top near her hairline where the part is)

    im extremely worried. we are going to get blood work done on her to rule out other causes. my mom said that it could be lupus? i’m so scared, i don’t want her to be sick ): and not have a normal life

    so basically im asking if anyone knows what else could be the problem or any information on autoimmune diseases or what the chances are of her having lupus and if she does then how does treatment work and how effective the treatment is

    please and thank you

    1. tea

      Probably it’s not lupus if she is just losing her hair. She is also too young for lupus (but it’s not impossible).
      If losing hair is the only symptom, it can be fungal infection (specially if you have pets), anemia (does she eat enough meat?), hypovitaminosis (B vitamines group)or it’s autoimmune. If it’s autoimmue disease, that’s just hair problem, that in some cases can be treated, sometimes can’t. But the most important thing that, even if she loses hair, she won’t be sick in any other meaning.
      Other causes that can result with hair losing in her age are some hematological problems (she should go to blood check), some systemic infection, or just caries and, also possible, it can be that she had some big stress in her life and if she is nervous, it can result with hair losing.

      And about lupus (but I don’t think that’s it) it can be treated very successful.

      Don’t worry, everything will be just fine.

  10. Mindy

    Should I pursue legal action against this surgeon?
    In April of 2010, I had my right ovary and fallopian tube removed as well as endometrial growths on my left ovary and in the back of my uterus. In my post op visit, I was told that I had a severe case of endometriosis, that I still had growths (in other words, they were not all removed), and that my lupus would complicate my treatment. I was then recommended to take medications that are contraindicated to my condition and the medications I am currently on. Of course, I did not take those medications. I was then recommended to drink herbal teas. I was not even given pain medications.

    Months later, I was still having problems. I bled so badly at one time that I was in need of a transfusion. The surgeon refused to see me because I still had a balance from my previous surgery (a mere $150 that I was paying on and even had a written payment agreement). It was an emergency situation, so I sought a second opinion from another surgeon. It turns out I needed a hysterectomy. In the post op report after the hysterectomy, the new surgeon told me that I had extensive nerve damage and needed reconstruction and that I was by far one of the worst cases he has ever seen. He also said that this did not happen overnight and that the first surgeon should have taken care of of it. He called her negligent and a few other colorful names and actually forwarded her the pictures from the surgery. I’m also having complications recovering from my surgery because of my lupus, a condition the previous surgeon knew I had.

    Should I pursue legal action, or would I be wasting my time? I’m not lawsuit happy at all. I work in the medical profession, and I am well aware of what the consequences of malpractice suits are. However, I used up all of my vacation time during the first surgery, had to have a second surgery when it could have been taken care of the first time around and now have NO income for an entire month, and it also caused me a lot of unnecessary pain and suffering (visits to the ER, blood transfusions, lupus flare ups, missed wages, pain, etc).
    Also, I did sign a consent the first time around that I wanted a hysterectomy if there were overwhelming endometrial growths present, which there were. When I awoke from the anesthesia, I found she had not honored my wishes. I asked her why, and she told me she felt I was “too young for a hysterectomy”.
    I sought my second opinion with a surgeon out of the area. I traveled two hours away because he was highly recommended.

    1. MasterOfUniverse

      You could if you can get the second doctor to agree to testify. Without that, even with medical reports, there would be little chance of success in that the hospital has lawyers on staff specifically to win lawsuits and protect the hospital and doctors. Most doctors will not be willing to testify against another doctor, especially locally, due to the doctor relationship with other medical professionals in the area. I would file a complaint with the Medical Review Board though.

  11. angl2839

    Is anyone here on Cytoxan for Lupus?
    Will this medicine definitely cause hair loss? Also what other side effects are you experiencing while undergoing this treatment? I have talked to the doctor about it, I just wanted to know from someone’s personal point of view I guess. Thanks!

    1. msduckca

      I have been taking Cytoxan now for about 6 months and have not lost any hair. Taking this drug scared me too but to date I personally have NOT experienced any noticeable side effects and I am currentlly coming off of it.
      Good luck to you!

  12. mamak2327

    Anyone know this type of arthritis?
    I was diagnosed with arthritis about a year and a half ago by a chiropractor, but he didn’t tell me what type of arthritis I have. It is in my back and neck, specifically T 4-6 and I can’t remember exactly where in my back. Because my husband has been out of work due to injury and he was carrying the health insurance, I have been without treatment (other than OTC meds) for the last 18 months. I’m trying to research homeopathic and natural treatments, but until I know what type of arthritis I have, I’m at a stand still. Does anyone else have arthritis in their back and neck and know what kind that is? I know I need to go to the rheumetologist as it is getting worse and worse, but I just can’t right now, there’s not stretch in my budget. I really need some relief! I was told it was caused by undiagnosed, untreated scoliosis and some because of hereditary issued (my maternal grandmother has Lupus and maternal great-grandmother had RA). I currently stretch when I can, my husband (trained paramedic) give me adjustments and I take BC Powder. I’m in my mid-20’s and am sick of the pain and fatigue and the numerous ways it is affecting/complicating my life…..any suggestions would be great!
    I have had a set of comprehensive x-rays-done by the Chiropractor-It wasn’t a guess, he actually showed me the arthritis shadowing on the x-rays

    1. My Kid's Mom

      Since you’re been researching homeopathic and natural treatments, I’ll share a bit about homeopathy in the context of your health concern.

      Despite myriad manifestations of arthritis, important to a homeopath is the person who has arthritis, rather than the “diagnosis.”

      While some health problems at appropriate for self-help care, you won’t be able to find a remedy to help your problem long-term. Ideally, you need to be under the “constitutional” care of a homeopath. Emotional stress plays a big part in the appearance and healing of physical symptoms.

      Even if conventionally considered arthritis (which literally means inflammation of a joint), and despite what your x-rays reveal, I’ve seen homeopathy resolve the pain and inflammation and prevent similar problems from getting worse. I’ve also seen problems considered “irreversible” improve. The homeopath has many “symptoms” (that we don’t think of as symptoms) available to find the homeopathic remedy that will stimulate your cure.

  13. Mrs. Duck

    Did Marijuana help your medical condition?
    I have chronic medical issues, including degenerative changes in my spine which can sometimes cause extreme pain. The doctors think I have Lupus (my dad has it, as do a few of my aunts.) Besides the chronic pain, I suffer from bouts of severe nausea, this can cause me to lose ten pounds in just a week or two. I always put the weight back on, but I get so sick and weak during those periods of time.

    I would like to make it clear that I am not looking for an excuse to smoke marijuana. I actually never have. A few people I know with similiar medical conditions of mine have taken it upon themselves to self medicate and have had amazing results, including a decrease in pain, and nausea. The only way I would ever consider using Marijuana woudl be if it was either legalized, or prescribed medically.

    The main point of this question is to see if anyone has had any positive or negative experience with Marijuana as a medical treatment. (It interests me as a biology student as well.) I would assume that smoking marijuana would be ill advised in someone with inflammation issues of the lungs.

    1. 10242

      Yes, I suffer from horrible migraines from time to time and also have a terrible muscle spasm in my back, both of which have been alleviated by the use of marijuana.

  14. Brittany B

    Lupus? Weak legs? Please respond respcetfully?
    My doctor thinks I may have lupus. Does anyone know people who have this? Is it hard to deal with? What are some treatments? My doctor said I may need therapy and leg braces cause my legs are too weak.

    1. Penny

      Your doctor thinks you have lupus–I would not worry about it until your doctor confirms you have this issue. There are many test which are taken to provide a doctor with the proper diagnoses–not just one blood test–many–you should be seeing a rhumatoligist–or a doctor who specializes in lupus and other auto-immune illnesses.
      I have had lupus since I was 13 y/o–and I’m now 52.

  15. NOOOOOOOOObama!

    My dad’s dog- a very emotional question about euthanasia?
    My dad’s dog is 13. She has been very sick with serious digestive problems. Her medicine is very expensive and isn’t completely effective as the dog still has many episodes of bloody diarhea. The vet has tried everything and my dad has gotten a 2nd opinion with the same recommendations for treatment.

    The dog also has arthritis, which is hard to treat because the medicines complicate the situation with her digestion. She limps and is in obvious pain, even whining frequently.

    My dad hasn’t chosed to put her to sleep because he thinks she is still happy, wagging her tail and playing with her toys and occasionally chasing a rabbit or two (even then these playful episodes cause her pain levels to increase).

    I have lupus, so I know about living with pain and I wouldn’t want someone to kill me just because I have pain that doesn’t go away.

    But what about this situation? what would you do and why?
    Terrier Lady- Oh my! Now I am crying how sad and sweet! I have a dear little bichon-poo and can’t even stand to think of that day.

    1. Foolish Pleasure Hates STUPID

      Since it is your father’s dog, I’d just wait for him to come to the conclusion that the dog’s quality of life is not so good, and take it upon himself to have her euthanized. Arthritis comes and goes with the weather, some what, and as the weather gets warmer and dryer she may feel a lot better from that. As for the digestive problems, if he’s willing to deal with them, so be it. He sounds intelligent enough to deal with the whole business. He will know when the time is right.

  16. momzpeachy

    What if I have Lupus?
    I have posted a few questions lately. I’m just really scared. I’m a real mess. I feel sick, have chronic pain and just ache all over. Ihave been having trouble going to the bathroom now and I just feel so swollen everywhere. I feel like the goodyear blimp! But yet in a lot of pain! I want this to stop! I’m afraid the Doctor’s have really screwed up and made things worse for me. A year ago I started having problems with pain, fatigue and headaches but all they wanted to do was prescribe migraine medicine. Now I’m so much worse and went through several course of treatments with nothing working. I am worried that I may have lupus and/or rheumatoid arthritis. Both run in my family. My cervical spine is falling a part and believed to be a cause for my neck and arm pain. I have all the signs of degenerative disc disease. Here’s the rest…my hair falls out every day…barely growing any more..I have a rash (it comes and goes) on my cheeks. It kinda looks like wind burn.Uh oh

    1. Dr. Joe?

      I’m sure your aware that your symptoms share more than a passing resemblence to lupus. The rash on the face, often caled butterfly rash is a symptom of lupus; as is the hair loss. Of course other auto-immune disorders can cause such symptoms. Lyme disease shares many similiar symptoms with lupus.

      But since you have a family history of lupus, it seems the logical assumption.

      I think you already know that this is quite likely.

  17. sante

    I am so afraid to take plaquenil for lupus treatment! any natural cure?
    Does anyone has an experience with plaquenil? or some one knows a natural way to cure lupus? I am currently taking oil fish, cellfood and recovery( for joint pain) and multi-vitamins.

    I am 30 yrs and was diagnose 8 months ago, no internal organs involves and the only symptoms are fatigue and joints pain.

    Please help if you have experience plaquenil as treatment or someone else. I am afraid of side effects ( affects lung, kidney, bones , eye etc.) it help now but causes you trouble later on.

    I am going to see my rhumatologist tomorrow but I haven’t decided yet if i am going to start the treatment.


  18. sante

    I am so afraid to take plaquenil for lupus treatment! any natural cure?
    Does anyone has an experience with plaquenil? or some one knows a natural way to cure lupus? I am currently taking oil fish, cellfood and recovery( for joint pain) and multi-vitamins.

    I am 30 yrs and was diagnose 8 months ago, no internal organs involves and the only symptoms are fatigue and joints pain.

    Please help if you have experience plaquenil as treatment or someone else. I am afraid of side effects ( affects lung, kidney, bones , eye etc.) it help now but causes you trouble later on.

    I am going to see my rhumatologist tomorrow but I haven’t decided yet if i am going to start the treatment.


    1. Science Geek

      You do realize what lupus is right?

      Listen, I know you’re scared. Anybody would be with that diagnosis. But the drugs are safe. The side-effects are minimal. Not taking the drugs and pretending that there is a natural cure is dangerous. You need to understand that the drug was prescribed because it was proven effective in the treatment of lupus. There are side-effects with any drug, even natural ones. What you need to do is weigh the potential benefits of taking the drug versus the potential consequences of side effects and of not taking the drug. Lupus is a highly treatable disease but there is no cure for it. The treatments are proven to be effective and safe as long as you follow the doctors orders.

  19. kenbfos

    How do I deal with lupus with out taking drugs?
    I have had lupus for three years, but I just started get treatment from a lupus specialist at Magee womens hospital. I take a small dose blood pressure medication. But my doctor wants me to take plaqunil and prednesone. But those drugs have so many side affects and I hear so many bad things about how they help one thing but then something else breaks down, Then you are on this cycle of adding on medicine after medicine. I want to live, but I don’t want to lose my eyesight, have liver problems, or other complication caused by these medicines. I know their has to be a way of life change, or natural medicine that will help and have less or no side affects. I lived three years without medicine or help. But I do notice that I had more flares lately. I need to make a decision, I recieved my plaqunil in the mail a week ago, i need to decide if I am going to take or find something else that help to present to my doctor at my next appointment. I want to live but not taking alot of medicine

  20. rocky

    Yes I was Wondering If anyone Has Lupus And knows Any Info about it?
    I tested posstive for Lupus Twice was wondering about treatments and how it affects your way of life and the pain it causes

    1. Vidra

      Well depending on how severe u have it it could be mild and able to live a normal life or severe and it could be very debilitating. Lupus is like a roller coaster. Some days will be good and some will be bad. Just strap in and hold on. It can cause different kinds of pain. The most common is joint pain. Again anywhere from mild to severe. Good luck!

  21. bluechromz

    Hey my friend needs help for her hair, any products or anything seen on t.v. plz help her out…?
    My friend needs help for her hair. She has this thing called Lupus and i think thats the thing causing her hair to fall. Ya’ll know of anything that might help her out. some kind of treatment or somethig seen on t.v.
    I’d be very gratefull to ya’ll.

    1. Kendra K

      I bet she has really thick hair. Tell her to change hair products. I use redken and it works great. dont use anything you see on the tv cuz half the time they dont work

  22. scarletxvi

    Question About Chronic Anaemia.?
    Does anyone have any ideas of what might cause chronic anemia? I have hypothyroidism and am on hormone replacement therapy. I have been under treatment sporadically for anemia since I was about 7, and I’m 35 now. It seems like I become anemic every time I stop taking iron supplements. It’s as if my body lacks the ability to store iron. Could my history of anemia be related to my current situation? My doctor is sending me for an ultra sound to see if the cause could be fibroids, but I’m doubtful because I’ve had this since before I began menstruating. I also doubt it is dietary, because I eat red meat 7 days a week. I’ve been tested for just about everything from lupus to pernicious anemia, and nothing has turned up. I’ve tried researching articles, but there isn’t anything on childhood anemia that doesn’t eventually clear up. The only time I’m not anemic is when I’ve taken high doses of iron supplements, but this only helps for a month or two, then I’m anemic again.

  23. Ashley

    How likely is someone to die from lupus?
    My dad has had lupus for 2-3 years now. So far, it has affected his muscles, joints, and caused him to be tired, sensitive to sunlight, and has affected his kidneys. Because it has affected one organ, would it most likely affect others?

    Does anyone know of statistics for the death rate of this disease?

    Also any general or treatment info would be great.

    Or if you have Lupus.. It would be great to read your story.


    1. Healthy

      Sever lupus can be life threatening.

      Healthy helpful steps to prevent lupus flares include:

      * maintain a healthy diet
      * get enough rest and quiet
      * pay attention to your body
      * moderately exercise when possible
      * limit the time you spend in the sun
      * develop coping skills to help limit stress
      * learn to recognize when a flare is coming
      * slow down or stop before you get too tired
      * learn to pace yourself by spreading out work and other activities

    1. mlk_maid

      Lupus attacks your organs. Usually a butterfly rash across the nose and cheeks is a common first sign. There are treatments for arthritic that help with inflammation, also chemotherapy in small doses (pill form) help slow it down. I don’t believe there is a specific test to diagnose it. It is usually diagnosed on symptoms. Prognosis depends on the severity of it. A lot of people live a normal life with it.

  24. elisabeth m

    progesterone? could i have too much?
    i have incessant, non stop periods and my gyno cant figure out why! i was doing some reading and thought maybe i could have a hormone imbalance involving too much progesterone. i am 23 and am way too young to be this sick of my life.
    my biggest concern besides the nonstop bleeding is the horrible fatigue! my every waking moment is unbearable sleepiness.
    yes, i have been tested, negatively, for everything from lupus, rh ara, thyroid, numerous clear ultrasounds, ect.
    i read that progesterone causes sedation, which would precisly describe how tired i am.
    could this be possible and could anyone tell me more, and about treatments that could end the bleeding pain and fatigue if it is too much progesterone
    by the way, i have never been anemic.
    where is doctor house when you need him.

    1. hiddendark69

      Anything is possible. Hormonal imbalance can be difficult to accurately detect. The usual signs of too much progesterone is feeling down or letharged, weight gain/loss and sensitivity to the breasts (like when you get your period – more or less how you feel before).

      If you are on the pill have a look at the dosage between the estrogen and progesterone and that will tell you if one is higher. The estrogen is generally two weeks after your period and the progesterone is two weeks before.

      Otherwise, if you’re not, I would suggest seeing a naturopath as there are some excellent estrogen based herbs to help, if this is the case. Either way they may pick up something the doctor can’t.

  25. PrincessNoritzya;

    am i a bad mommy?.?
    i feel like a bad mother my 1 year old is with my sister in law in LA because my sister in law was my babysitter than she left to LA because she is getting treatment done for her lupus so i send her with her she has been gone for a week came back this weekend than left again for another week and when i saw her this weekend from not seeing her she hardly reconized me?. it broke my heart when i saw her and carried her than she strated to cry cause she wanted my sister in law. so am i a bad mom?.

    dont judge me please.
    the only reason i send her is because my sister in law wanted her to go. my sister lives over here with me its not like she lives in la. and its not that easy i dont trust anyone but her and im the oldest in my family and my mom works. my sister offerd.

    and to you yea i might be pregnant again.
    okay so dont talk so rude.

    1. muahhhh

      despite what anyone in here says you are not a bad mother, they must not have kids and does not know how hard it can get !!! some people only come in here hiding behind the damn computer judgeing people when their probly no good therselves. we dont know what your situation is you could be depressed or etc. in time she will start to recognize you as her mom again!!!!!

  26. Dani J

    Anyone have any information about LUPUS?
    I was told this morning that I have lupus, that the form of Lupus i have is in my blood vessels and causing hives. I believe this one means that It is attacking my organs as well. Everyone keeps telling me how sorry they are but when you on meds doesnt it like make lupus dormant or something? can anyone tell me anything else about this? Is it curable? Does the treatment make it dormant, or just make life a little easier?

  27. SCC

    For those of you who are opposed to nationalized healthcare?
    Some of the comments sound like people think that anyone without healthcare coverage simply is not willing to pay for it.

    However, what about families who cannot find full time jobs and have to work 2-3 part time jobs to support their families in high unemployment areas

    What about employees who work for temp agencies and cannot get health insurance, or the coverage available will pay out no more than what you pay in premiums (or even less).

    What about those families who must remain at home to care for family members requiring around the clock care.

    What about low income families who make too much money to qualify for Medicaid, yet they are still barely above the federal poverty guidelines?

    What about those who are unemployed and cannot afford the COBRA premiums (even with the stimulus plan), or worse yet, cannot qualify for COBRA.

    What about those people who have health conditions that prevent them from working full time.

    What about those people who require medications in order to function on a job (issues such as chronic depression, bipolar disorder, diabetes, lupus, MS) or cannot handle any type of a full time job due to medical or mental issues?

    Do you sincerely feel that all of these people should just continue to go without treatment. Do you also realize that unpaid medical expenses are causing problems for medical practitioners in maintaining practices.

    Do I understand that you don’t care?

    1. Mv

      Unfortunatley yes – look at their pathetic responses – these are ignorant people who care nothing about anyone other than themselves and their money.

  28. kcksmom

    Is it possible to get an appointment with pain management without needing a direct referral from…?
    anyone other than a rheumatologist?

    I’ve got signs of an autoimmune disorder that has been causing me pain nearly everyday of the past year.. My doctor’s office keeps passing me around and I’m just as frustrated as they are trying to see what is wrong with me. My insurance gave me numbers to three pain management (anestesia / nerve block / or medicine giving docs) to help with what my family practitioner (whom has actually just been my childrens’ doctors mainly for the past year after he helped with the baby stuff) wanted to just call “fibromyalgia” because I’ve tried everything from lyrica, tramadal, cymbalta, etc… I even the past 3 weeks have been trying to handle my daily pain with no medication and have progressively gotten worse, I wake up with my legs cramped, back contortioned into the letter “c” and my feet throwing up gang signs… I have apparently not been able to handle this and over the phone they prescribed a sleeping pill and muscle relaxer as I was getting NO sleep due to this progressive pain. Then I get a call that the blood tests they took show signs of RA or Lupus. high sed rate, crp, etc. SO… I do not want to go back to my regular doctor who had done nothing but try to throw me under the fibromyalgia rug (which i DO believe exists ~ my sis and mother and 2 very dear friends have) because they don’t know how to make me stop hurting. (I’m also very vit. D deficient I’ve been on a prescription dose 11 weeks in a row daily and re-draw showed that there was NO change in my vit. d levels at all, no increase, something is eating my vitamin D, lol) Whatever this blood test showed most recently got my rheumatology apt. moved three weeks closer than it was (hard appt to get into, I guess) and now I get to see them on the 7th and I technically have no one to give the results to… ?

    Now, the insurance company gave me numbers of diff types of pain mgmt companies and I’m wondering if I can just forward the Rhm. reports to them? or do I have to pay some other person in the middle? is a pain management doctor even a doctor that helps with diagnosis and ongoing treatment that would be other than a specialist?

    i’m so lost.

    1. peanut

      Call the numbers and find out. Most places require a referral from your primary care doctor. The pain management doctor is able to diagnose your condition and advise the type of treatments that could help you. No need to go to another doctor unless they recommend surgery.

  29. Vinny Stovin

    I was recently diagnosed with Lupus. Does any1 know what this is? Is it a death sentence?
    Hi this is Vinny. I am 19 I was hospitalized 3 weeks ago with a metallic taste in my mouth. The docs had me p’iss in a cup and found traces of blood. And then came the fever oh good old fever. I was rambling on about nothing and felt like I was freezing (ironic?). But after a few weeks of having things jammed in my rectum and even more things jammed in my rectum they determined i had something called SLE. I looked it up and I found out basically my body is allergic to itself. I’m very worried because I have a kind that attacks kidneys. I am very concerned because the treatment i’m given may not be able to stop the progression. Is this a death sentence? Because I feel okay now very sore though. I hear lots of stories of ppl dying from this disease. I’m worried that it will cause full out kidney failure. Which yes is very very fatal.

  30. popstarbria

    Does any one else have Crohn’s Disease?
    I’m 13 years old and I have Crohn’s Disease along with R.S.D. and also Juvenile Arthritis. I could possibly have lupus. I’ve finally figured out how to control most of the Crohn’s Disease flare-ups with natural remedies but my other problems are full fledged still! RSD, Reflex Sympathetic Dystrophy, will literally make my legs turn blue, cause me to lose any feeling in my legs and arms and I cannot use my legs sometimes when the flare-ups are really bad! Juvenile Arthritis is something else I could possibly have. No doctor has confirmed it, yet and I’ve had to travel out of town to see rheumotoligists before because the ones in my town didn’t know what to do with my conditions!!!

    When I was 6, I was diagnosed with Crohn’s Disease. Now keep in mind that this was after coming to the hospital about twice a week for about 4 years because my Crohn’s flare-ups were so bad! My mom is a redhead, I like to call her hothead!, and thankfully she won’t take no for an answer!! She was extremely persistent in trying to find the cause in my horrible stomach pain even though almost every time we went to the doctor, they would tell her I was just fine! This was all before I was diagnosed. Eventually, she found a doctor that somewhat understood what we were going through (mainly her at the time, because I was very young) and tried all the possible treatments that could help ease the disease. Even today, there is no cure for Crohn’s Disease!! At 6, the doctor that helped us diagnosed me with Crohn’s Disease and put me through a series of medications including some that children aren’t allowed to take. I took Methotrexate for a long period of time and cannot think of the other medications right now. I now have to wear glasses because of the medicines I took and my family and I are pretty sure that the medications I took caused my other conditions. We’re pretty much certain that the medicines cause my RSD.

    Reflex Sympathetic Dystrophy (RSD) is an illness that causes the lower and upper extremities to turn a bluish color and causes the extremities to become numb. When I first had a flare-up, it was when I was 11 and my parents thought it was a blood clot. So did the doctors. We went through a series of tests that day because I had to go to the hospital. I was admitted for a week and during that time, I had to get an epidural!!! Yes, that thing pregnant women get! I had to get it because my legs were hurting so bad they had to numb them! We’re still not sure if what I have is RSD, but it’s all we got for now!

    I know this is long and sorry but I only gave you two of my illnesses! lol If any one else has any thing I have, please give me tips on how to control it! Anything will help!!Thank you!!!

    1. Loz

      Hi there. I don’t have Crohne’s Disease, but I’m 25 and I’ve had Complex Regional Pain Syndrome (the correct name for RSD) since I was 14. It started in my right knee following a minor operation, but it now affects almost my whole body and ahs put me in a wheelchair because of some of its secondary effects that no amount of physio or medication has been able to counteract. I’ve never heard of medications causing CRPS/RSD – it’s almost always initiated by some sort of injury or other trauma.

      I wish that I could tell you how to control it – I’ve been through pretty much every recognised treatment with no real success. I guess that my only advice for what it’s worth is to take each day as it comes and to recognise that you are going to have bad days. Don’t give up by any means, but know your limits and boundaries, and know when it is time to say ‘okay’ I’ve had enough and when it is okay to push yourself that little bit harder.

      If I can help in any way, please feel free to email me.

  31. angelinaismywifey

    My LYMPH NODES are extremely palpable (for years) i have lost TOO MUCH WEIGHT, what is wrong?
    Hello….if anyone would like to try to DIAGNOSE ME, I’d be SO GRATEFUL AT THIS POINT!
    ….. i’m 30 year old female, with a 10 year old son and had a thoracic fore gut tumor(benign) removed from my chest @ 15, a good portion of which was attached to my lungs, aorta,esophagus, Trachea.
    To Date- no known complications or regrowth.
    109 lbs
    hypothyroid, on synthroid
    Had IUD recently placed in cervix
    amphetamine salts,celexa, lorazapam for depression/fatigue and ADD
    CURRANTLY AND THIS PAST YEAR: Generalized Swollen lymph glands(some firm and hard in groin area. Also where my hairline is in the back of my neck behind my ear i guess, and a few large ones up the side of my neck aligned with my shoulder), Re currant low Grade Fever(no higher than 101 w/out infection),Itchy Skin, Memory Loss,Hair loss, Acne,Bowel Changes,On and Off fatigue, mucus in my stool(for one year at least.More mucus than actual stool on average! SORRY TO BE SO GRAPHIC! Lower Back Pain, DULL ACHING PAIN on the inside of my knees,stiff neck,ankle pain after being on my feet for more than an hour.Also extremely dry; mouth,skin,hair,eyes,&nostrils, dizziness upon standing, sweats,wounds heal slowly, weird painless swelling above my butt where my dimples are(no dr has been able to guess why/what this swelling might be),diarrhea and constipation, tenderness above my belly button, hyper pigmentation on abdomen, arms and feet, anxiety, blood pressure has steadily increased throughout all of my many dr’s visits this past yr.
    ADDED RECENT SYMPTOMS:Kidney pain, visible blood in urine: for 2 months now! it was bright red and then less visible for awhile and now dark brown like tea and extremely strong smelling, hardening and bloating of abdomen, extreme fatigue, productive cough, chest pain, neck pain,easily exhausted, unexplainable bruises, muscle spasms and bulging type pain JUST under my rib on both sides separately, weird stabbing pain on my left groin area near my larger lymph glands that makes my tendon look swollen, thrush, protein in urine, HI albumin in urine, repetitive rbc in urine, BUT NO INFECTION!! (multiple negative cultures), kidney stone shows on CT in an area that is expected to be asymptomatic and may not even pass. BUT I DO HAVE difficulty urinating and cramping JUST PRESCRIBED CIPRO FOR A SECOND TREATMENT. (not sure exactly why since culture is consistantly negative)

    Many tests HAVE BEEN DONE: …..All Basics(CB C’s, liver, etc panels) + Lyme Disease,Hep(B,C etc), ANA,Sed Rate,R.F.,AIDS, Celiac Disease,Fecal Bacterial+Viral cultures,Lupus,Syphilis, Gonorrhea, Chlamydiae,Anemia, scleroderma, h. pylori, bladder cancer,
    P.C.P. says: hematologist &will do allergy & routine testing upon insurance ok
    E.N.T(ear,Nose&throat) says: inflammation or irritation down deep in my throat(but i smoke so…)
    GASTROENTROLOGIST says: gastritis, hemorrhoids,IBS, lymphoid aggragates in non lymph areas
    UROLOGIST says: extreme gross & microscopic unexplained hematuria, referral to hematologist(concerned about enlarged lymph’s in groin and unexplained hematuria———says kidney stone most likely not causing this amount of rbc,did FISH URINE TEST…NO CALL SO I’M GUESSING ALL CLEAR ON RESULTS)
    HEMATOLOGIST says: i’m thin so nodes are more palpable s we should wait. does not believe biopsy is neccessary at this point
    RHUEHEMATOLOGIST says: no signs autoimmune, non arthritic/ lupus like disease
    GYNOGYNECOLOGIST says: no infection, no discharge see urologist…
    DERMOTOLOGIST says: see rhuemotologist! lol, biopsied pigmented marks(inconclusive-possibe allergic reaction)

    i am waiting on results of a chest CT from HEMATOLOGIST because he heard alot in my lungs and another aids test(that’ll be 4 tests in the last yr(all negative)

    but i can’t remember everything! lol any EDUCATED ADVICE would be appreciated
    THANK YOU!!!! i feel so helpless when i am sooo tired or weak….. i just want a solution!

    1. PoisonTrees

      See what the CT results are. If you get no answers there, I would go to a different hematologist and insist on a biopsy. If you can’t get answers switch to a hospital that specializes in diagnostics.

  32. Marla

    To sufferers of immune disorders: How can I treat myself for possible lupus/rheumatoid arthritis? (detailed)?
    Allergic to dust/grass as a child, but allergy-free from age 13 until recently (I’m now in my late 20’s).

    Hep C

    Early 20’s: diagnosed with Hep C (untraced source). I was suddenly cured after 1 mo. My doctor said my own body got rid of it, which is rare for hep C patients.

    Several months later I noticed when I’d lay on my left side, there’s a tingly, tender sensation. There’s no pain and I got used to it so I’m just living with it.


    8 mos ago: sudden onset of stiffness/jammed feeling on both wrists (overnight). Always had weak/inflamed knees since 4 yrs back, would disappear with regular exercise.

    Got Sick

    Late last year I had flue more than a month. I was diagnosed with bronchitis, was on antibiotics and was cured right away.

    I started lightly working out again and just a month later I WAS SICK AGAIN! I was down for only 3 days though compared to the last time. Coughed 1 month. I was on stronger antibiotics and cured. I also saw an allergy doctor and was diagnosed with sinusitis and now on corticosteroids.


    My ANA blood test turned out POSITIVE. My doctor ordered a 2nd test for next month. She said it’s an indication of possible lupus or rheumatoid arthritis.

    Extra info:

    Never been overweight my whole life.
    Ethnicity: Asian.
    My other “illnesses” recently diagnosed: costochondritis.
    Always had: severe dandruff, on and off but worse now; dandruff-related facial rash, only shows up on the same spots – left cheek near nose, between eyebrows.
    Falling hair is worse now.

    I’m a copywriter for more than 3 yrs. I admit my posture is VERY bad, often sitting or lying on my stomach on the bed (probably caused the costochondritis). Was diagnosed 4 yrs ago with borderline anemia (mother is anemic). Prescribed iron supplements but I stopped cos of side effects which is diarrhea.

    THIS IS MY DILEMMA: I was thinking of eating healthier and exercising again. But wouldn’t raising the immune system make things even worse? I just hate the idea of being on immune-suppressing drugs, considering my now sensitive liver. I would be more open to “natural” treatments. How do I go about this?

  33. Kenny

    What causes a person to be sensitive to barometric joint pain?
    I am a 25 year old female and have had varying degrees of joint pain that coincides with barometric pressure changes—either from humidity and summer storms or when it gets extremely cold. I am wondering if this a normal reaction in a healthy young adult or if I could be showing symptoms of arthritis. I have always had joint pain, though when I have seen the doctor, it was always dismissed as growing pains. I feel it most in my knees and hips, but also in my tail bone. The pain varies from barely noticeable to a dull, throbbing, aching pain that is so uncomfortable I often cannot sleep. Again, no doctor has ever taken this seriously.

    I have a medical history of having several related autoimmune disorders though through some experimental medical treatments I have gone through, and they most likely will not come up again.

    I was on a heavy dosage of steroids for two years (100mg of prednisone) during my other treatment, and I noticed that the symptoms have increased since then. I have heard that long-term steroid use can affect bone and joint health, but not sure if that is true. I also had an ANA test while I was being treated for my other disorders that was slightly positive, but at the time, my condition was so critical that I did not ask if a weak ANA test could mean that I possibly have lupus or RA.

    I know that the internet isn’t a way to get a medical diagnosis, but I am interested in hearing from people that who have barometric joint pain, are in the medical field, have joint pain from steroid use, or have RA or lupus. Also, any advice on alleviating the discomfort??

  34. A

    I think my friend has munchhausen’s syndrome?
    A friend of mine is always posting on her FB about how sick she is. once, she posted “i feel so sick, yet some people don’t care 🙁 ” from what she has told me, assuming she is telling the truth… She has the birth control rods in her arm. yet, she has a blood clotting disorder (factor V) . her risk of pregnancy is low, since by her and her bf’s own admittance, they BARELY have sex (once every 6-10 months) So, since she has had the rods in, she has had one lung clot and A lot of problems with her “inr levels”. idk what what means..but yet she “asked the docs to remove them” and they said no because the risk of her becoming pregnant is more of a risk than her clots…. which is BS. . and her old BC pill caused a blood clot in her leg. and blood clots are a risk for bc’s even for people thatdon’tt have a clotting disorder… she also seems to have a bunch of rare-ish diseases that seem too many for one person..

    Ok, she has:
    Asthma (so do i, and it seems whenever i get sick and i mention it to her, she miraculously has an attack and has to do a neb treatment.)TM-JD (so do i. i actually didn’t know she had it until i found out i have to get surgery to correct mine this year.. yet i have known her for 2 years.)
    Depression and anxiety (so do i)
    Factor V (she miraculously got the call from her “doctor” when i was there and after she hung up, she started crying, posted of FB immediately and called, literally, 20 people.)
    Obesity (over 300)
    Lactose intolerance

    Whenever i try to talk to her about whats going on with me, she seems uninterested in what i am saying. alot of “uh huh, yeah, ok’s” but when i ask her about herself, she lights up my message screen.

    Ever since she has been going to school, she has been getting sick, but not enough that she has to leave school, or her assignments arent done.. for asthma alone, she is in and out of the ER like crazy. when i was still working, i hadda take 2 weeks off when i was sick, hospitalized and afterwards just from the common cold, then had to quit cuz i wasnt getting better… soo, i dont see how she claims her asthma is worse, yet hasnt been hospitalized in all the time i have known her.

    Ok, now, her cousin in one of my closest friends and she and alot of the family also have been suspicious that she has munchhausen’s…
    What do i do? Do i ask her directly or her doctor or what? It worries me, cuz now she wants to get into the medical field and i dont want it to turn “by proxy” type if she has it…

    here’s just a few of her latest fb stats most recent first

    nebulizer broke last night… GREAT… Sleeping the rest of my life away
    Doctors are stupid
    Rgh (one of our hospital’s initials)
    going up to RGH emergency… will update when i get there. on call is thinking about admitting me
    I’m gonna attempt to do some homework after this neb
    doing a neb and enjoying my heated blanket
    coughing my lungs out and watching iCarly
    just got home… outta breath… ugh
    coughing up a lung…. ugh… doing a neb….
    going back to sleep in a min after this neb
    just checking fb then laying down with da window open and the heated blanket…. love it…. might do a neb before i lay down
    home…. another asthma attack

    all of those were posted since thursday morning. its now sunday night.

  35. LuLuBelle

    Cystic Acne treatment?
    I have only recently begun to have terrible acne, and the doc did say that there is some cystic acne. I cant see a dermatologist as there are none available at all in my area, and my GP told me he wont prescribe anything till fall because of the reactions of these meds to the sun. He did recommend an over the counter product, but after one month it began to irritate my skin to the point it was burning. So–the acne is worsening and it HURTS. Isnt there something I can do or use? I have really, really sensitive skin.

    I am SO sick of this. I also have Lupus, but I am pretty sure that has nothing to do with it other than causing a severe reaction to a combination of sun and medications….Please help if you can….but please don’t say proactive solution…..thanks.
    I really appreciate everyones help!
    Please remember I cant go to a dermatologist; there just ISN’T one around here, trust me I have been trying for ever:(

    The OTC product I was using was PanOxyl.

    I also cannot any drugs that can cause reactions with the sun, as I already have Lupus which causes me to get hives and sunburn even before any meds:(
    Well, found something that works very well for me, immediately! I am using Dove Sensitive Essentials face wash with Dove Day Lotion SPF, then at night I wash with Dove, then put on Aloe Gel, then use Garnier “A” spot treatment or crest toothpaste, and I cannot believe how well its working!!!

    1. berkeleygirl

      Here are some REALLY good, and very inexpensive ways to treat most acne at home. Try each method (unless you’re allergic to the ingredients) until you find one that works best for you. Good luck =) BTW, I know some of these may sound bizarre but try them…what have you got to lose other than the acne!!

      1. Put toothpaste on your acne before going to bed. (Make sure it is paste not gel). It should reduce the swelling of acne noticeably.

      2. Dab egg whites on your acne and leave on for 20 minutes or overnight. It’s supposed to pull the infection out of the blemish.

      3. Wash acne infected areas twice a day with warm salt water. This reduces oils in the skin and helps to dry the acne up without further agitation.

      4. Use ice on acne before going to bed. This works best on pimples that have not yet formed a head. It reduces swelling and helps to prevent scarring.

      5. Wash and dab acne with cotton balls that have been soaked in vinegar. Let dry; do not wash off immediately.

      6. Place strawberries leaves over your acne and the alkalinity will help to reduce the swelling.

  36. cortlin.harrison

    is this a good research project please be honest?
    Cortlin Harrison Science 10-12
    Mrs. Cooney/ Mrs. Barends ELA 21-23
    May 19, 2009
    Antiphospholipid Syndrome

    Antiphospholipid Syndrome is a disorder in which the body recognizes certain normal components of blood and/or cell membranes as foreign substances and produces antibodies against them. This disorder is non-infectious which means that this disorder can’t be passed from person to person by contact. Pregnant women are more prone to get this disorder than anyone else, and African Americans, and Hispanics but like other disorders anyone can get Antiphospholipid Syndrome

    The symptoms and characteristics of this disorder are not hard to spot. Some symptoms of the disorder are veins or arteries of the arms or legs may cause pain, numbness, tingling in the feet. Arteries of the heart may cause chest pain or heart attack, the individual with this disorder may have heart murmur. In pregnant women with Antiphospholipid Syndrome, miscarriage can occur prior to 20 week of gestation, while pre-eclampsia is reported to occur after that time. Blood vessels of the skin – may cause painful bruises (purpura) or a condition called livedo reticularis. Blood vessels of the brain – if a clot cuts off blood supply to a part of the brain, this causes a stroke. An individual with APS may also experience migraine headaches or seizures.

    There is no cure and there is no way to avoid getting this disorder. There are many treatments for this disorder. But the most successful treatment is anticoagulant therapy. This is usually successful in preventing further blood clots. This disorder can severely damage the body in many different ways because good cells attack other good cells and that causes chaos through the body. And when a weak or strong pathogen enters the body it can be deadly.

    Some other information about Antiphospholipid Syndrome is, 1-5% of the world population is known to have this disorder, and 40-50% of patients with lupus also have APS. One third of strokes occurring in younger people (under the age of 50) are due to Antiphospholipid Syndrome. One third of patients with Antiphospholipid Syndrome are said to have lupus, and or Raynaud disease. APS is more common in young to middle-aged adults; however, it also manifests in children and elderly people. Disease onset has been reported in children as young as 8 months.

    This disorder is very rare and not very deadly but this disorder can still affect your way of life, the way you think, and can make you dizzy and other things. My mom has this disorder and sometimes it’s hard to get around and such, but you can still fight back by eating a healthy diet and seeing a special doctor called a Rheumatologist, this doctor specializes in these types of rare disorders.

  37. crazymom

    Has anyone gotten disability due to Lupus and did you have to get attny involved?
    I’ve been suffering for three years now. I had to quit my job in Spring of ’08 because of it. Lupus has been systematically attacking my organs since. I was even bed ridden for the better part of this year. I do have doctor’s and am getting some treatment(w/out ins. it’s difficult).I applied to SSDisability and was just denied becuase I’m not dead . I can not get a job-tried I’m always too sick to funtion and have been in ER six times in 5 months already. Will getting atty help my cause?

    1. Linda R

      Yes an attorney makes a big difference, the right attorney. Call around and see if there are some in your area who are experienced with lupus disability cases. The attorney should prove that you have lupus based on serology (lab tests) and the doctor’s diagnosis. Then the attorney must demonstrate disability under the different rules for your body parts that are involved. That might mean disability because of joint/muscle problems and then proving it under another section for heart, or whatever.

      I have been in the system since September 2003. I got two denials on paper, one after an administrative law judge hearing, and then it took 3 years for them to decide whether or not to entertain my appeal. After that, I had to file a law suit in Federal court. Then last month the case was sent back to the administrative law judge for reconsideration. They lost the tape from the first hearing so I have to go through the whole thing all over again. I did have a lawyer from my long term disability insurance provider, but he did not do the things I just described.

      Almost everyone is rejected the first time. File the appeal immediately.

  38. sante

    Was I misdiagnose? lupus or weak immune system?
    8 months ago while I was pregnant, I was diagnose with lupus. But the only symptoms that I am experiencing is joints pain and fatique some times. My doctor said that all of my organs are fine, I do not have a butterfly face neither skin problem. I wonder if the diagnosis was wrong.

    Does a weak immune system can cause thoses symptoms? I refuse to go on hormones treatments and trying to work on strenghtening my immune system first and hopefully reverse the condition.

    your experience and advise are welcome

    1. reifguy

      lupus is many stages ,and there is discoid and systemic lupus ,the immune system isnt weak in lupus its reacting in a way damaging the body and causing problems and inflammations ,if your diagnosis wasnt correct or u doubt it ,get a second opinion from a rheumatologist ,diagnosing lupus isnt easy in early stages and once diagnosed many go through remissions and relapse ,

  39. martinpullingteam

    Any information regarding lateral epicondylitis (tennis elbow) treatments?
    I have been suffering from “tennis elbow” in my right elbow (I am right handed) for the past 14 months. I also have lupus and my rheumatologist has been treating me at my routine visits for the elbow as well. He gave me hand outs of exercises & stretches to do which I have done faithfully and prescribed Mobic for inflammation. He has also done cortisone injections on 3 different occasions. The first injection provided excellent relief for 6 months. The next injection lasted 4 1/2 months and this last one never did provide any relief at all. He didn’t want to do anymore injections, referred me to physical therapy, and scheduled an appt. with an orthopaedic dr.

    I have been going to physical therapy 3 times a week for the past month. They are doing ultrasound for 10 mins, then stretches, tendon excercises, iontophoresis for 25 mins, then ice for 10 mins.

    After therapy the pain is about 50% better that day but by the next day it is back just as before.

    I have noticed progressive weakness in my right arm and hand over the past year from me not being able to use it like before. It is extremely painful, tender, and lifting only the slightest of weight sends the pain radiating down to my hand.

    I am a stay at home mom and do not participate in sports. Of course they say to stop doing the activity that is causing the injury. I don’t do any repetitive type activites they I am aware of (other than normal housework, etc).

    My appt. with the ortho dr. is in 2 more weeks and I was just wondering what anyone with experience with this problem think my next step would be.

    The handouts that I have list: 1. Rest, 2. Ice, 3. Anti Inflammatories, 4. Physical Therapy, 5. Cortisone Injections, 6. As final resort: Surgery.

    I was hoping to avoid the surgery but I’m afraid we have already tried every other treatment without results.

    I didn’t know how long the problem would need to persist before surgery would be considered.

    Also, for anyone that has had surgery : was it beneficial and provide relief and also how long of a recovery period is required, and how difficult was the recovery.

    Thank you in advance for any info.

  40. Laney

    I have lupus and I need a new Bay Area rheumatologist stat!?
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    I need to find a good Bay Area rheumatologist is good!?

    I have Systemic Lupus and have been seeing a rheumatologist for quite a while without much improvement in my condition. All my doctor does is pump me full of pills. I have been doing my own research lately and have found that there are many other things that could both cause and treat lupus and my doctor hasn’t checked me for any of them. For example, food allergies.
    I would really like to find a good doctor in the SF bay area, preferably the east bay who really works to make you feel better, one who will bring different treatments up to me rather than the other way around. Does anyone know where to find any of these good rheumatologists?

    1. den

      I have lupus since 2 years and I take 2 drugs to help me. Prednisone and Imuran…My condition has improved: I have no more rash on my body and my appetite is back…

  41. CKDgirl

    Should I continue taking karate if I have lupus?
    My doctors recently called me and said after looking at my blood tests, there is a 95% chance I have lupus. This explains everything that has been going on with me the past few years. I’ve been overweight for the majority of my life (I’m 16) but I have an extremely active lifestyle. In 2007-08, I started to experience knee pain, which I thought was arthritis (runs in the family). I have been having extremely painful migraines since late 2008. Now this past October, I have been having excruciating back pain, with no known cause.

    To go on with my question, I have been taking karate for 5-1/2 years and I don’t want to stop. But the pain is too extreme to even go to school sometimes. If the doctors are right and I do have lupus, what are the chances of me continuing karate? Also, what are the treatments that doctors can provide for this medical condition?

  42. Dr. Maggie (Psychologist)

    Will non-cancerous thyroid nodules ever dissipate on their own?
    I have nodules that have grown on a very small thyroid that has been irradicated years ago. I have been on the same thyroid dosage for over twenty-five years and then my blood levels kept showing low tsh, for no change in taking meds or health. Then the blood levels would go back to normal after awhile. Then after a few years nodules began growing on ny thyroid gland. They are not cancerous; however, what could be causing these changes to occur? What kinds of tests or ideas do you have for these changes? Could it be from a problem in another Gland, or is my immune system running amuk again. One quick note: I have a Auto-immune disorder, called Lupus. Could Lupus be causing the problems within the thyroid? Can the immune system affect endocrine system? What kinds of tests or treatments do you recommend?

    Dr. Maggie

    1. superficialblonde

      I have SLE also. I had a Pituitary tumor. Have you had your checked? A pituitary tumor can cause you thyroid to mess up. My tumor on my thyroid grew and when they did the ultrasound and biopsy, it came back questionable -if it was cancerous or not. They took mine out. I have had my brain tumor and my thyroid and thyroid tumor removed but my TSH levels are still HIGH…. I see an Endocrinologist for that and my Rhumitologist for the Lupus. If you dont have an Endocrinologist, I would go to one or have your doctor order a MRI of your brain to be sure you dont have something going on up there thats making the throid so what its doing…
      I guess you know how rotten it fells to feel bad all of the time!!! I get so tired of having something wrong with me. Along with the SLE, they said I have Fibromyalgia and Chronic Fatigue. The Lupus can cause any thing that is made up of connective tissue to have problems. I keep pluerisy of the lugs and my kidneys are also full of kidney stones. And Bot is it hard to keep the weight off!!!!
      I hope my info helps you….

  43. Mia Drummond

    ive been sick and i have my 3rd chemo treatment this wed?
    Okay so i have been sick with the flu, including everything from terrible sick stomach, lack of appetite, cough, stuffed nose, diarrea (sorry if TMI), i vomited once yesterday, and ive been sleeping 15-16 hours each day.
    Anyway i also couldnt take my medication (lupus) yesterday cause my stomach was so upset.
    And i ave my 3rd chemo treatment this wed.
    How will being sick affect the treatment?
    Also i can barely take my pills, i get a terrible sick stomach, what can i do to help with that?

    1. ELLY B

      Don’t you have a helpline you could phone? You need to see your consultant/nurse practitioner as normal before your treatment and he/she will decide. Most of those symptoms could be chemo side-effects anyway.

  44. Anonymous

    Will I ever be thin again?
    Okay, so I am 13 years old, and I have lupus of the brain, which also cause lesions to develop on my brain. I am on tons of medication, as well as I am being treated with chemotherapy once a month (jan will be my third treatment and im supposed to have either 5 or 7). Im puffy and overweight from all of the meds and chemo, but thankfully, I am weaning down on prednisone (corticosteroid) 10mg every four weeks or so, today I just cut back from 50mg to 40mg.
    I have been on pred since june 2010 at 30mg, then this past sepember i went shooting up to 60mg.
    Anyway, as I sid I am weaning off the pred, and hopefully I’ll be done my chemo at 5 treatments rather than 7.
    But, I am a teenaged girl, and Im fat and ugly, so you can imagine my biggest concern is of my weight, and the way I look.
    At what dose of prednisone will I start to lose my puffiness, and lose the weight.
    Also I will never be fully off prednisone either.
    And will I be THIN for my Grade 8 Graduation (June 2011) ?
    Inspiring and motivational answers only please!
    to AngryBunny,
    if you had nothing inspiring or motivational to say, then why did you say anything at all.

    1. Aragorn

      Dear young lady,
      Your first order of business is to get yourself healthy. Of course you will be slim again. The side effects of many of those powerful medications may be unpleasant, but they will pass completely as you no longer need them and stop using them. There will be time for you to do all of that, but your health must come first.
      I know it sucks that you’re dealing with this at your age, but it will pass. You’ll have time to be beautiful on the outside as well as inside. Try to be patient with your self and your treatment.

  45. Dance-a-Holic

    I need help editing my research paper. I’m really bad at papers…..please help!?
    Well, its on lupus. I have the intro and two body paragraphs, and I still need to do the conclusion. So, I was wondering what I should change on my paper, and what I need to add..? I also have to do a powerpoint based on the paper, that should last a minimum of 5 minutes up to 15.

    The reason why I chose this topic was because my dad has lupus, and I wanted to know more about the topic. He was diagnosed with lupus when he was about fourteen years old. He still receives treatment for it by going in for blood tests and taking medication He has the most common form of lupus, Systemic Lupus Erythematosus (SLE), in which causes the antibodies to react against his own normal tissue. He has arthritis and joint problems, but nothings wrong with his internal organs. To support my dad and other lupus survivors, my family and I all go to the lupus walk in honor of remembering the people who had lupus that died. The things the audience can expect to read in this paper are the different types of lupus, the symptoms, the treatment and cures.
    Lupus is the result of an unbalanced immune system that can be destructive to any organ in the body. It can be categorized into three groups: discoid lupus Erythematosus, systemic lupus Erythematosus, and drug-induced systemic lupus Erythematosus. DLE is always limited to the skin and is identified by a rash that may appear on the face, neck, and scalp. It can evolve into the systemic form, which can affect any organ or system of the body. Systemic lupus Erythematosus is more severe than discoid lupus and can affect almost any organ or organ system of the body. No two people with SLE will have identical symptoms. Drug-induced systemic Lupus Erythematosus occurs after the use of certain prescribed drugs. It is more common in men, because the drugs are given to them more often.
    Lupus is hard to diagnose because it has a wide range of symptoms involving various parts of the body; and symptoms differ from each person. Most people develop painful joints and a rash, but lupus may also cause fatigue, depressions, and kidney problems. The treatment of lupus varies from person to person because each person has different symptoms. Most people with SLE require a regular blood test to check for lupus flares. Medication is the primary medical treatment for lupus. Presently, there are no other methods available to treat lupus because there is nothing else that can have the necessary impact on the immune system. Currently, there is no cure for lupus, but with early diagnosis and proper medical treatment it can significantly help control the disease.

    thanks. it would be much appreciated!!!!

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