The patient named Dumitru T ,was hospitalised in the Universitary Hospital on 1992,September, 9 with Charcot Marie Syndrome or ” Cock-legs disease”.This disease started in 1990 with legs artritic pain,with diminished of strength and muscular masses,
aknee jerk reflex been agravated at cold.
During the clinical examination I found: loss of stbility, diminished power and knee jerk reflex of the right leg.
He accused ice-cold sensation at legs. The laboratory investigations indicated urinary sediment with blood cells and frequent uric acid. The electro-muscular examination-following a simple or intermediary line, indicated muscular starting at voluntary contraction with an accelerated frequency, electrical potential with small oscillation witch indicated affecting the motor nerves of the spinal marrow.
That was due to the fact that there were certain deterioration of the nerves with a feeble compensation, that is a anterior motor degeneration. A kinetotherapy reatment and electrotherapeutics were beeing used for three weeks on end. From among these methods we have used a low frequency , a magnet and the electric current . Among the allopathic drugs that I used I shall mention : cortisone and A , B, c vitamines.
The results was mediocre and with chief Dr.Sbenghe advise I tried homeopathic treatment, therfore I used Arsenicum Album in low dilutions. After 10 days the patient felt better and he was able to descend stairs, also his numbness disappeared with an increase of the muscular power.When the patient left the Universitary Hospital , he was in a good condition.The patient was kept under a strict control during one year’s time.
The same treatment had to be applied every month.
This syndrome wich generally has a bad evolution, proved to have good prognostic this time with one remedy.Therfore published in a specialised review

83 thoughts on “Lupus Disease Treatments

  1. termn8or3000

    Are there any similarities in the treatments for Crohns Disease and Lupus?
    Similar as in steroids and/or pain meds,antibiotics etc?

    1. grammadebbie50

      Yes–as they are both auto-immune diseases. Your immune system is out of whack and basically turns on you.

      Inflamation is one of the main pain sources for both conditions and steroids are used for both to reduce this.

      However, while both have common meds used in treatment the rest is done on an idividual basis upon evalution of symptoms and severity.

  2. Mercedes16_90!!

    If someone has lupus what are the treatments for this disease and my mom has huge lumps on her leg and side.?
    My mom has lupus and she has huge lumps all over her leg and she went to the emergency room this morning but all the doctors that she’s been to in South Carolina have no clue what to do and so they can’t help her and I need help because it does not help when I have Cerebral Palsy and NOW she has lupus.

    Someone please help me because I want to help my mother but I do not know how. Also she had one lump surgically removed about 2 years ago and now it’s back.

    i’m only 16 and I need help to help my mother because it hurts me to see her in so much unneeded pain and the doctors don’t know what to do and so if there’s a doctor or someone out there who specializes in the treatment of this disease please help me out. because how doctors supposed to be helpful to someone but they don’t know how to help me mother out???


    1. Rob

      Lupus is an autoimmune disease so the principal treatment is immunosuppressive medication. The severity of the disease determines what specific drugs are used. Mild lupus may be treated simply with NSAIDs and corticosteroids. More severe cases of the disease may require more drastic options such as cytotoxic agents that kill some of the cells of the immune system.

      EDIT: Examples of cytotoxic agents include azathioprine, mycophenylate mofetil, cyclophosphamide, etc.

  3. Bethany W

    why can some women control lupus and others cant?
    my mom suffered from lupus for 15 years and recently passed away last january. doctors say that lupus can be controlled through chemotherapy, she did every kind of treatment available for the disease and still could not fight it. but in other women with lupus can fight lupus with treatment why do you think some can fight it and others cant?

    1. Elvis4ever

      I think your mom did fight it – for 15 years . this is a very debilitating illness and it can be soul destroying with its multiple symptoms and the effect they can have on the mind as well as the body. I hope you can be comforted by the fact that she stayed with you so long and endured all those horrible treatments to keep her family close, it takes a lot of courage to go through chemo and I have the greatest respect for those that do it so they can have maximum time with their loved ones.
      I am sorry that you lost your mom, she is now with the angels and in no more pain. Bless you all

  4. With her head in the clouds

    What are some health conditions in which a person has to regularly inject themselves as part of treatment?
    I know diabetics do and so do people with type 3 von willebrand’s disease. I think I’ve heard people with lupus do as well.

    What others are there?
    Helena: It’s for school.

    1. ƦєdAиgєℓ

      Autoimmune Pernicious Anaemia – injecting with vitamin B12 every one to three months. However i have this condition and found sublingual B12 works effectively and in my opinion better.

  5. Roland'sMommy

    Doctors & nurses – if a patient came to you with these symptoms, what would you think?
    TMJ, depression, low *normal* body temp, chest pains, breathing issues, daily headaches – frequent migraines and tension headaches, sensitivity to light and sound, cough, diarrhea for 3 months, thyroid disease, endometriosis, PCOS, ovarian cysts, hair loss, weight gain – mostly in midsection, food sensitivity, nausea, sleeping problems, IBS, constant gas, intolerance to multivitamins, excessive sweating, burning sensation in arms, joint pain in ankles knees & hips, muscular pain in upper legs and forearms.

    I just found a family doctor and made an appointment – I’m guessing I’ll need a referral to a specialist, my endocrinologist thought I’d need to see a rheumatologist since my vitamin d levels are okay, so are my thyroid levels & my lupus test was negative. I’ve gotten the vibe from a lot of people that this may be fibromyalgia. Any other ideas? Also, what kind of treatment options are there? Any doctors out there who don’t think it’s all in your head?
    I’m not looking for some moron to tell me there’s nothing wrong with me. You have no medical background and probably haven’t even graduated from high school, so I’m not looking for YOUR advice. If you aren’t smart enough to figure out that the first few words in my question are “doctors & nurses” and that means I want answers from someone with a clue – than you’re an idiot. Go waste your time on someone else’s question.

    1. heavenlygarcia

      I am not a dr. but yes it does sound like fibromyalgia. But, since you have trouble sleeping, and the shits all the time and can’t take a multi vitamin, I really think you need to see a nutritonist. You can get really sick from not sleeping and having the shits. It depletes the vitamins in your body, causes your cells to damage easier, your anit-bodies to attack your self instead of invaders, it can bring your immune system down, there are so many things that can go wrong if you can’t sleep and have upset stomatch all the time. All of your body works together too if one thing isn’t right everything else gets throw off too it like a domino effect. If your body isn’t working efficiantly your just going to get worse and worse. A nutritionist will work with you to get your body on a path to getting stronger, you can take the drug nessicary to feel better but if you body isn’t working the way it should due to bad nutriton (or depletion of nutrients) or sleep deprivation its going to be that much harder to get to feeling better or even get better period. You need to go to the dr. and i really thing you need to get your insides back to working the way it should. It will take awhile, nutrition and vitamins are not like taking a drug that you feel the effect from in 30-40 minutes it will take a few months to finally feel the effects. One supplement or even herb may not work as well as another, kinda likek meds too. Please go to the nutritionist. I live in constant pain from endometriosis and i know how much it sucks to feel like your life is worthless because you can’t do anything fun or fufilling and i don’t think anyone should know a constant state of pain. Get better damnit.

  6. johanna h

    I have sle lupus?
    My question is. I havent been taking my meds for 1 year and havent been to the dr for followups for a year. is that bad? what could happen. i have flare ups but i also have fibromyalgia as well. I cant tell which disease is acting up and which isnt. now since not getting treatment can things inside i cant see go bad? what should i look for? i hate taking meds and its a inconvience to keep going to the dr i have enough going on in my life. let me know what i should do. this disease is soo agivating.

    1. Linda R

      It’s an inconvenience to be in the hospital for a few weeks, too. Ignore your treatment regimen and stop seeing your doctor and you can enjoy a vacation complete with IV steroids and all kinds of invasive tests. Talk about inconvenient.

      The doctor visits and lab tests can indicate serious problems before they get out of hand.

      Can things inside go bad? 50% of SLE patients get kidney disease. There are no symptoms until you are in renal failure. But lab work can pick it up. Leave lupus kidney disease untreated and you die. That is inconvenient, too.

      If the lupus attacks the bone marrow, you get pancytopenic anemia. Mine led to congestive heart failure. Inconvenient? You bet.

      Stop expecting that life will be perfect and get to the doctors. Take your meds. Lupus is not natural to have. It won’t go away because you pretend it is not there. But it can kill you if you don’t take care of it. The choice is yours.

      Best wishes.

  7. sarah

    my 8yr-old sister has an autoimmune disease or maybe something else?
    im really worried about my sister. recently my mom noticed that she started to lose some of her hair, so we took her to the dermatologist and they think its some sort of autoimmune thing, and they us this stuff to put in her hair every night except the weekends and her hair is sort of starting to come back ( note that she hadnt lost all of her hair, but a noticable amount at the top near her hairline where the part is)

    im extremely worried. we are going to get blood work done on her to rule out other causes. my mom said that it could be lupus? i’m so scared, i don’t want her to be sick ): and not have a normal life

    so basically im asking if anyone knows what else could be the problem or any information on autoimmune diseases or what the chances are of her having lupus and if she does then how does treatment work and how effective the treatment is

    please and thank you

    1. tea

      Probably it’s not lupus if she is just losing her hair. She is also too young for lupus (but it’s not impossible).
      If losing hair is the only symptom, it can be fungal infection (specially if you have pets), anemia (does she eat enough meat?), hypovitaminosis (B vitamines group)or it’s autoimmune. If it’s autoimmue disease, that’s just hair problem, that in some cases can be treated, sometimes can’t. But the most important thing that, even if she loses hair, she won’t be sick in any other meaning.
      Other causes that can result with hair losing in her age are some hematological problems (she should go to blood check), some systemic infection, or just caries and, also possible, it can be that she had some big stress in her life and if she is nervous, it can result with hair losing.

      And about lupus (but I don’t think that’s it) it can be treated very successful.

      Don’t worry, everything will be just fine.

  8. Amy Y

    Do you suffer from lupus nephritis?
    I am wondering about what treatments you were put on if you have this disease. I was diagnosed in January of this year and was put on cytoxan(chemo). While I was on chemo I never felt well and was always sick. I have recently been switched to cellcept, and I feel much better energy wise and just physically. Unfortunately my doctor wants to out me back on the cytoxan because my kidneys are still spilling large amounts of protein. Does anyone know of any other less harsher treatments compared to the chemo? Also, with the cellcept I just started taking in July 1st, should I wait it out some more to see if it actually is working?

  9. Knowing

    A question about the disease Lupus?
    I got a packet in the mail from a foundation that is trying to find a cure for Lupus. From the vague information on the information card that I got, it sounds like its a life-threatening disease. Do people with Lupus have a shorter lifespan? Or with proper treatment can you actually live long just like a person without lupus? Is this a common disease? If you’ve been tested positive for auto-immune antibodies and ANA does that mean you have Lupus?

    Sorry for all the questions…it just sounds serious and I would like to donate money to help find a cure for this…thanks!

    1. Linda R

      Dear Knowing,
      I have lupus with organ involvement and it did nearly kill me.
      Lupus can range from mild to life threatening to fatal.
      With regular medical monitoring most lupus patients can expect to live a relatively normal life span.

      Lupus is an autoimmune disease. The exact cause is not known. Researchers believe that a genetic predisposition coupled with a trigger or triggers causes lupus to develop.

      For me, it affected heart, lungs, bone marrow, and kidneys. It was pretty nasty. I will be on toxic medications for life just to try and control it.

      A positive ANA does not mean you have lupus but most lupus patients have a positive ANA. Many other conditions can cause a positive ANA.

      Lupus is more common than you might think. There are a reported 400,000 people with multiple sclerosis, 70,000 people with sickle cell and 30,000 with cystic fibrosis. If you add ALL three together and multiply that number by 3 or 4 you get the number of people with lupus. 1.5 to 2 million. That is 1 in every 170 Americans

      Lupus most often develops in women between the ages of 14 and 45. A mild to moderate case of lupus costs 3,000 to 6,000 a year to control. Most of us cannot hold a full time job and some cannot work at all. Lupus strikes women 9 times more often than men. It strikes women of color 3-4 times more often than Caucasians.

      Half of us have lupus kidney disease. Some of us have types that are untreatable. Some have clotting disorders, called antiphospholipid antibody syndrome that causes heart attacks, strokes and miscarriages. Most of us have premature hardening of the arteries.

      Yes it is a very serious disease. There have been no new medications for lupus since Eisenhower was president. Please do help us. AND click on the take action link at the site provided to encourage your federal legislators to co-sponsor the Lupus REACH amendment.

      Thank you for your help!

  10. Mark S

    How many other Men out there have Lupus, Those people with Lupus 9 out of ten are Women.?
    If nine out of ten people with the disease are women, Then what are the actual figures of Men who have the disease?
    Are there more Diastolic cases vs Sytemic in Men ?
    I would like to talk to some Men out there that have the disease and see what their symptoms are and what they use for treatments. and are they effective?

  11. MsUSA

    Lupus disease in dogs?
    My dog has been diagnosed with lupis- how can she be treated – vet says no treatment available- gave us cortison. Cannot find info on Lupis in animals

  12. mama woof

    Steroids would be the best treatment. Eventually he will have to be euthanized simply out of mercy because longterm steroid use has issues too. Some things you just can’t fix.

    One good idea would be to use a lot of homecooked meals with rice as the only grain.
    One thing I want to suggest is to avoid grains, (cow) dairy products, eggs, and anything that could tax his immune system that is so much already out of wack. Rice and lamb are the safest foods when it comes to allergies along with goat’s milk. Think of other hypoallergenic foods like goat’s milk, some veggies, few fruits (not many) etc. I would also avoid anything that could enhance an immune response like antibiotics (if possible), molds, some plants, bees…… You just want to try to protect the immune system from being so active, so keep him away from anything that will cause it to react. You already know sunlight can cause a problem.

    When all is said and done, some things cannot be fixed. Steroids are the only reliable way to suppress the immune system even though they come with their own set of problems. This dog probably doesn’t have a good life ahead of him no matter what they do for him. Sorry.

  13. momzpeachy

    What if I have Lupus?
    I have posted a few questions lately. I’m just really scared. I’m a real mess. I feel sick, have chronic pain and just ache all over. Ihave been having trouble going to the bathroom now and I just feel so swollen everywhere. I feel like the goodyear blimp! But yet in a lot of pain! I want this to stop! I’m afraid the Doctor’s have really screwed up and made things worse for me. A year ago I started having problems with pain, fatigue and headaches but all they wanted to do was prescribe migraine medicine. Now I’m so much worse and went through several course of treatments with nothing working. I am worried that I may have lupus and/or rheumatoid arthritis. Both run in my family. My cervical spine is falling a part and believed to be a cause for my neck and arm pain. I have all the signs of degenerative disc disease. Here’s the rest…my hair falls out every day…barely growing any more..I have a rash (it comes and goes) on my cheeks. It kinda looks like wind burn.Uh oh

    1. Dr. Joe?

      I’m sure your aware that your symptoms share more than a passing resemblence to lupus. The rash on the face, often caled butterfly rash is a symptom of lupus; as is the hair loss. Of course other auto-immune disorders can cause such symptoms. Lyme disease shares many similiar symptoms with lupus.

      But since you have a family history of lupus, it seems the logical assumption.

      I think you already know that this is quite likely.

  14. bml

    I have to compare turners syndrome to lupus and i need help!?
    Here is the question i have to answer:
    Compare your disease with systemic lupus erythematosus and evaluate which disease is worse and why (think about body systems affected, treatment, and prognosis)

  15. tscherma86

    autoimmune thyroid disease, fibromyalgia & polycystic ovarian syndrome…is there a connection?
    when i was 15 i was told i had PCOS because i had very irregular periods. ultrasounds were done and it was confirmed. i got pregnant, without treatment, and delivered in 06 with my son and 07 with my daughter. nothing eventful happened for a couple years and then in july of 09, my younger sister lost her 3 year battle with leukemia. when i was getting a haircut for her funeral, my hairstylist (who i have been going to since i was born) said that my hair was really thinning and i should get my thyroid checked. it wasn’t on the top of my list at that point. i started medical school in sept of 09 and was having really bad knee and joint problems. i went to a rheumatologist and she diagnosed me with fibromyalgia. she wanted to do some more blood work because there is a history of lupus in the family. i just got a call from her yesterday and she left a voicemail saying i do have an autoimmune thyroid disease (she didn’t say which one on the voicemail) i have an appointment with her monday, but i was just wondering if there could be a connection between the PCOS, fibromyalgia and autoimmune thyroid disease because i know they all are hormonal problems. anyone know??

    1. Soggycereal

      My gosh. Yes, I think you are right – I have all three too. But my thyroid disease turned into cancer. I lost my fertility at 35 due to hysterectomy for horrible cystic ovaries and endometriosis. I am on pain medication all the time for fibromyalgia. I don’t know the answer to why these are connected, but I think you are right. I think there is some hormone/immune systerm connection though.
      My endo did start me on metformin 2 months ago, and I do think it has helped me feel a little better. I definitely think you are on to something. I think you should become an endocrinologist/rheumatologist, there is alot of help needed in that field I think!

  16. TBone

    Orbital Myositis, treatments/origins?
    Anyone know of any non-sterioid (Prednisone), non-NSAID (Non-steroidal anti-inflammatory drugs, i.e. Indomethacin), non-radiation treatments for this painful condition. In other words, some alternative medicine, homeopathic remedies.

    Also, any ideas of it’s origins (Lupus, Thyroid, Inflammatory Bowel Disease, etc.).

  17. lolabellaquin

    Question about Methotrexate…?
    I have undifferentiated mixed connective tissue disease. I’ve tested positive for Sjogren’s syndrome a few years back, but it is not primary. That means that I either have Lupus or Rheumatoid Arthritis. I’ve been taking plaquenil for 4+ years and had some toxicity. My dose has been decreased and I started taking Methotrexate in August. I currently take 10 mg. I’ve noticed minimal (very, very minor) improvement in joint swelling. I seem to have 2-3 good days a week, but still have considerable swelling in my joints. I see my rheumatologist in 3 weeks, but I thought I would ask anyone who is taking methotrexate to see how long it took them to know it is working.
    My major complaint is fatigue. I’m exhausted and I don’t think the fatigue is worth the minimal improvement. If anyone who is currently taking this med can give me some advice, I would greatly appreciate it. Should I hang in there? I’m also doing homeopathic treatments with a doc and aqua therapy 2-3x a week.

  18. Windflower

    Hair Growth Treatments?
    I have SLE(Lupus) and I am starting to notice that my hair around the forehead and crown area is thining. I know that this can happen with this disease. I have thick hair, and I am only 30, so I would like to keep it for as long as I can, but may need some extra help in doing so. Any ideas as to what I should use?

    1. royaliscross

      the only proven hair thinning solutions that have been tested medically is ROGAINE®.
      The other way is to visit a skin specialist doctor or go to hair clinic that has a long history in treating hair loss.
      here is one:

  19. idiotbox2005

    What will happen if I skip taking my prescribed medicines for over a week?
    I have severe Lupus Nephritis since 2003. I was prescribed by my doctors strong medications that (according to them) help control further spread of the disease in my system. The trouble is, in the next four years of treatment, my medications increased from a dozen to up to 43 different pills a day that were a combination of immuno-suppressants, anti-osteoporosis, anti-cholesterol, anti-diuretic and anti-hypertension. It’s like 3/4 of them are there to counter the side effects of the prescribed suppressants. So what made me skip everything for a week now was because I began hating each one of them due to their bitterness. I’m at a loss so could anyone please tell me what to do? Your concern is highly appreciated.

    1. christibro40

      Hi, I have Lupus, and autoimmune hepatitis, like you I take strong, meds, some with very unpleasent side effects, immunosuppresents, at times Ive been on IV chemo, I take liver meds, so many. For I think one month I just totally forgot my liver meds, I felt fine in that area. plus like you I was rather tired of popping so many pills in a day. It just gets tiring and the side effects can be horrendus. well my liver was going into failure, and at the same time I got cebritis of the brain. both together landed me on IV Chemo for almost 6 months.

      If you or if you have already stopped taking your meds for the nephritis or any of the other things, your kidneys will totally shut down, and you will probablly need one of two things. Dyalisis, and or a transplant. also with Kidneys and Lupus, that really is what most lupus paitents die from if your not careful. Im going under the assumption that your on high doses of cellcept of the nephritis. Im on it right now for a flare, like you Im having some side effects, that I need to talk to my dr about. but the good news is you rebeled and only skipped 1 week. you can easily get everything back under control and start again.

      I co-own an online support group for those with Lupus and similar diseases. we all hate what we deal with. but we all have to realize we didnt ask for this, we dont deserve it, but we have it, and this is our lives, we just have to cope with the cards given to us. I think what you did is rather naturaual. I think most of the people in my group have either done it, thought of it, or held back on taking a perscribed med at some point. Just because we get angry, sad, and miss what we were. But at some point we just accept what is. But with Lupus Nephritis, you have to be super careful. and though the pills and side effects stink. to live and get the nephritis under control, you have to take the medication for nopw at the perscribed dose. we have a memeber with nephritis, and she was put on a very high dose of cell cept, but it worked, and they are now lowering her dose slowly.

      I hope this helps

  20. bartender

    I am having a very hard time dealing with my multiple health conditions. I am in widespread pain.?
    I have been diagnosed with hypothyroidism, fibromyalgia, manic depression, and lupus. I am not sure if the fibromyalgia is the lupus or if they are two separate conditions. I am very tired and in a lot of pain, all the time. I do well for myself. I have two jobs . My immediate family is wonderful. I couldn’t be more blessed. The depression makes me feel guilty, I can’t seem to accept the fact that my life is great and I feel so awful at times. Like death. I think part of me still has problems accepting depression as a real disease, even though I have sought treatment. Then there is the pain and fatigue. I just don’t know what to do. I don’t know which doctor to see. Everybody is a specialist but no one can figure out what to do with me. I am being treated for the thyroid with Synthroid and the depression with lamictal and sometimes paxil. Nothing for the pain, but I am about to go to another rhuematologist. All the pain meds make me sick and I can’t work. I am feeling helpless.

    1. minertz

      Hi there! I’m no expert at medical conditions but I do feel that you need a support group that you can talk to especially if you are feeling depressed. You should not deal with this alone. You should have someone or a group where you can always share your feelings and who will give positive boost because life is beautiful and we will only go through it once so live it to the fullest in the positive way. Don’t feel helpless because you still have all the powers in the world to make decisions to make your condition better. You say you have a wonderful family. Aren’t they a strong force to keep you fighting? Aren’t they worth all you strength to fight for? If so then keep on fighting and you will get your reward eventually. Believe and it will happen for you. If you need someone to talk to just contact me and I’ll be there.

  21. sam i am

    I need an upper partial, so I can smile and have a better chance of getting a job. What will it cost? Read on.
    I’ve lived a dental nightmare all of my life. Born with three sets of teeth, I required oral surgery three times by the age of 8yrs. Braces from age 10 to 15yrs. Retainer til I was 18. Combination of Systemic Lupus, and Hashimoto’s disease, both of which can adversely effect teeth. I’m 40 now, I’ve had 21 root canals, most of which went bad because previous insurance wouldn’t approve crowns after treatment. What I’m left with is #’s: 3, 4, 9, 11, and 15 in my upper teeth. Unemployed and broke, I don’t stand a chance of getting a job if I can’t smile during my interview. I have two children, and just under $1,000 to my name. I’m a recent single mom. I desperately need at least an upper partial, so I can go out and get a job with confidence. How much am I looking at spending? All answers are appreciated, but especially dental practices in So. Calif., because this is where I’m located, and sometimes costs vary with geographic location. Thank You.

  22. Ashley

    How likely is someone to die from lupus?
    My dad has had lupus for 2-3 years now. So far, it has affected his muscles, joints, and caused him to be tired, sensitive to sunlight, and has affected his kidneys. Because it has affected one organ, would it most likely affect others?

    Does anyone know of statistics for the death rate of this disease?

    Also any general or treatment info would be great.

    Or if you have Lupus.. It would be great to read your story.


    1. Healthy

      Sever lupus can be life threatening.

      Healthy helpful steps to prevent lupus flares include:

      * maintain a healthy diet
      * get enough rest and quiet
      * pay attention to your body
      * moderately exercise when possible
      * limit the time you spend in the sun
      * develop coping skills to help limit stress
      * learn to recognize when a flare is coming
      * slow down or stop before you get too tired
      * learn to pace yourself by spreading out work and other activities

  23. Sanjay K

    Do Homeopathy has proper medicine for SLE or any other Alternatives mediums other than Allopathy?
    Is HomeoPathy treats SLE Disease stright away. If it has what is the treatment? Is it proven and if it is proven what is the proff? Is there any alternative medicines other than Allopathy for this treatment. Here SLE Refers: Systemic lupus erythematosus disease

  24. tmang0502

    pls react on this journal… your reaction would be a great help…thanks God Bless?
    ‘Multi-target’ Immune Therapy Improves Outcomes Of Severe Lupus Nephritis
    ScienceDaily (July 7, 2008) — A new treatment using a combination of drugs targeting different parts of the immune system improves the recovery rate for patients with severe lupus involving the kidneys, according to a new report.
    “In our study, multi-target therapy is shown to be superior to traditional therapy for inducing complete remission of class V+IV lupus nephritis, with few side effects,” comments Dr. Lei-Shi Li of the Research Institute of Nephrology of Jinling Hospital, Nanjing University School of Medicine in Nanjing,China.
    The study included 40 patients with severe lupus nephritis. Lupus nephritis is inflammation of the kidneys occurring in patients with the immune system disease systemic lupus erythematosus (SLE). All patients had “class V+IV” disease, meaning widespread inflammation and decreasing function of the kidneys. “This is a severe form of lupus nephritis that is traditionally treated with a single immunosuppressant drug, but the efficacy is very poor,” says Dr. Li. “We considered that, since the impact of severe SLE on the kidney involves various parts of the immune system, it is necessary to treat the different immune targets with a combination of immunosuppressant drugs.”
    One group of patients received this “multi-target” therapy, consisting of the immunosuppressant drugs tacrolimus and mycophenolate mofetil–commonly used as anti-rejection drugs in transplant patients–plus a steroid. The other group received standard treatment with a single immunosuppressant drug (cyclophosphamide).
    The complete remission rate, with recovery of normal kidney function, was about four times higher among patients receiving the three-drug combination. “For patients receiving multi-target therapy, the complete remission rate reached 65 percent at nine months, versus only 15 percent under traditional therapy,” says Dr. Li.
    Some patients in both groups had partial remission, with some return of kidney function. Overall, 95 percent of patients in the multi-target therapy group had partial or complete remission, compared to 55 percent with single-drug therapy. The rate of most adverse effects was also lower with multi-target therapy.
    Systemic lupus erythematosus is an autoimmune disorder, in which the immune system attacks healthy organs and tissues. By reducing immune system activity, treatment with immunosuppressant drugs has improved most outcomes for patients with SLE. However, class V+IV lupus nephritis continues to be a major problem–it has a poor response to traditional treatments and can lead to permanent kidney damage. “The prognosis is very poor, so it is important for us to develop a new regimen for the treatment of this type of lupus nephritis,” says Dr. Li.
    Using a combination of drugs that affect different immune targets, multi-target therapy improves the chances of remission for patients with severe lupus nephritis. “The therapeutic effect of our multi-target therapy is apparently superior to traditional therapy for inducing complete remission of Class V+IV lupus nephritis, and also bears good tolerance under relatively lower dosages,” Dr. Li adds.
    The authors stress that their study is only preliminary. The study includes a small group of patients from a single hospital, with a relatively short follow-up time. Larger randomized trials with longer follow-up are required.

  25. Meka G

    My cousin is incarcerated at the Mississippi State Penitentiary in Sunflower County. He’s in for a non-violent?
    My cousin is incarcerated at the Mississippi State Penitentiary in Sunflower County. He’s in for a non-violent crime (false pretense). He’s being denied of medical treatment. He has a skin disease call Lupus. As of now, his condition has gotten worst. He’s running a fever over 100, sores in his mouth, and head is bleeding with sores. He has written three letters requesting to see a dermotostgist and has been denied. Do we have a case?

    1. Jon

      It depends to which type of case you are referring.

      They prison has an obligation to treat a patient for health problems. Especially with the severity of the condition (the fever and bleeding sores), I question the fact that he is being denied treatment.

      I would contact your state’s Bureau of Prisons (or whoever Mississippi’s governing body for prisons would be) and express your concerns.

      If you are looking to file a civil suit against the state, you really need to contact a lawyer in your state. They will be the best to speak with, and many will do a consultation with you for no/minimal costs; or, depending on your cousin’s income and financial resources, look for a pro bono legal agency. They will provide legal assistance for free/minimal costs.

      If your cousin decides to file suit against the state, he needs to document everything (and I mean everything). Dates/Times/Correction Officers’ names/requests/treatments/medications received. In a civil suit, a lot more burden will be placed upon him then if this were a criminal trial.

      But like I said, contact a local attorney for the best advice.

      Hope this helps & good luck!


    What are treatment options for lupus?
    also, what are long term effects of the disease? are there any ways to prevent the occurrence?

    1. Linda R

      The treatment goals in lupus are to reduce symptoms and prevent permanent damage. This is accomplished through the use of non-steroidal anti-inflammatory drugs, immunosuppressive medications, biologics and chemotherapy. The specific medications depend on what body parts are affected by the lupus and the severity of the autoimmune activity.

      If a patient is a good self manager, is compliant with the treatment regimen, and is proactive about overall health a lupus patient can generally expect to live a normal life span. However, every drug we take has some toxic side effect. There has not been a new drug approved by the FDA specifically for the treatment of lupus since November 20, 1958!

      Long term effects depend on what organs are affected and how severly. What is know for certain is that lupus patients have double the risk of cardiovascular events brought on by atherosclerosis (hardening of the arteries).

      Since the cause of lupus is not understood, there is no known way to prevent it.

      Lupus is not contagious. Lupus is not sexually transmitted. Lupus is not HIV/AIDS. Lupus is not cancer.

  27. Lady Prism

    People diagnosed with Lupus… need help and info!?
    I do not wish to write a paper about all the details and symptoms, so I’ll just summarize, then ask my question.

    Over the last 5 years, I have had symptoms of EXTREME fatigue, joint pain, canker sores, mild hair loss, etc. I am also anemic (which no amount of iron or B vitamins changes in the slightest). In this time, I have also had a false positive Syphilis test, and chronic kidney stones (3 in 7 years).

    In August of 08, I developed a cough that STILL has not gone away. I have been to TONS of doctors and been diagnosed with pneumonia, asthma, bronchitis, allergies, etc, and put on more antibiotics than I care to think of… all the antibiotic treatments actually made me feel worse.

    I also developed a sudden, strange rash on my leg after being out in the sun for a couple days… which also has not gone away. And more recently, I have a light butterfly rash on my face.

    Last month, I finally found a doctor that said “Wow… 8 of the 11 symptoms of Lupus… let’s get you tested.” I was x-rayed to check for Pleurisy (in the lung tissue), and put through about 10 blood tests (also checking for lyme disease, just in case).

    Even after the false positive Syphilis, and the anemia, I tested negative on the ANA test. Kind of. I tested higher than normal, but apparently too low to make a full diagnosis of Lupus.

    What does this mean exactly? Is there such a thing as borderline Lupus? And I know there are a few other diseases that mimic Lupus… but what are they? I know that Fibromyalgia is one of the “mimic” diseases, but would that also account for the blood disorders that I DO have and the rashes?

    I do have another appointment with my doctor in a couple weeks, and I also know that making a Lupus diagnosis can sometimes take a while… but has anyone had the negative ANA issue and still been diagnosed with SLE? And what was your experience… anything I should ask my doctor to look for on the next visit?

    Oh, they did also check my thyroid… everything normal there.

    And should I mention, also, that my symptoms began during pregnancy and have gotten progressively worse? This has been going for about 5 years… and just now I’ve screamed loud enough that I am being taken seriously.

    1. Constance

      Unfortunately it may take years to DX Lupus. I had all of the symptoms you do and saw a Rheumatologist for about 5 years before my ANA was positive. In the 5 years I also had a pos. Scleroderma and Sjogrens. All along my doctor said that probably I would develop Lupus buy it was a wait and see. Keep a diary of your symptoms and continue to see your doctor. Hope this helps.

  28. blah

    Lyme disease- muscle weakness!!! who else?
    hi, i’m 13 years old and the past 8 months i have been very sick. It started out in the beginning of the summer with all the symptoms of mono(never tested positive}…. few weeks pass and i started to feel a little better but i noticed that if i walked long distances my arm would start feeling really weak and painful. Slowly my my arm started hurting more often then my leg started. I have been tested for everything under the sun
    lumbar puncture
    blood tests{lupus, thyroid, auto immune diseases, lyme ect.}
    nerve studies
    infectious disease
    vascular surgeons
    my nerves and muscles simply didn’t work and every time I asked why they didn’t think it was lyme they simple said ITS NOT LYME
    3 hospital stays
    in the mean time i couldn’t walk or use my arm at all. It was extremely painful
    a week ago I went to a doctor specialized in lyme who tested me for ALL the lyme tests because my others doctors only tested me for 2 kinds……..and started an antibiotic treatment
    i can wiggle my thumb
    soooo….has anyone had these types of symptoms from lyme disease????????

  29. blueiis

    Best climate to live in for dermatomyositis/autoimmune disease?
    I was diagnosed with dermatomyositis (like lupus) when I lived in wisconsin. None of the treatments have worked for me but I was eventually able to keep it under control with watching my exposure to sun and heat. Now I live in Texas with all its humidity and can’t remember having this much pain. I can hide from the sun but I think its the heat and humidity that are killing me. We now have the option of relocating to Denver, Colorado for my husband’s job. We’ll make the move if it will improve my condition. Will moving to Colorado help me???

    1. Amy K

      I was diagnosed with JDM 24 years ago at the age of 15.I’ve lived in Arkansas my whole life so I can’t say if one climate is better than another but for me the summer months are my worst!! I like to say I hibernate during the summer. I was also told that I would flair around the time of the year when I was diagnosed, which happens to be July & August.But I really belive it’s the heat & humidity that gets me. I don’t know if this helps but I would love to move to Colorado! Best Wishes!

  30. InCalifornia


    I wanted to add that she has been checked for neurological disorders and she doesn’t fit in that category, as well as Rheumatoid Arthritis… A few doctors agree that she has a rotated (anteriorly) pelvis and it could be the main reason for all of her problems, tight psoas muscles, etc…. I haven’t been able to find a doctor that truly knows how to manipulate the pelvis back into place, if that is the problem….

  31. clcalifornia

    I might have lupus. anyone with some words of wisdom or ways to treat it? Life expectancy?
    Finally a doctor is getting close to finding out what is wrong with me. My liver is bad and it isn’t the kind of liver disease from drinking and or drugs. They say that my body might be destroying my liver. I have already lost other organs in my body to inflammation disease processes. I am so tired of being sick. I am feeling I am at the end of my life. Any input? Treatments? Encouragements?
    Help I want to feel better!

    1. Maria

      Lupus is very treatable. My grandmother was diagnosed with it years and years ago, my mother and my aunt both have it and lead very normal lives. What organs have you lost that you are still here and coherent? That seems weird to me. I don’t see any decent doctor missing a diagnosis of an auto-immune disorder in a patient that has inflammation internally with no known cause. This doesn’t sound right to me.

  32. popstarbria

    Does any one else have Crohn’s Disease?
    I’m 13 years old and I have Crohn’s Disease along with R.S.D. and also Juvenile Arthritis. I could possibly have lupus. I’ve finally figured out how to control most of the Crohn’s Disease flare-ups with natural remedies but my other problems are full fledged still! RSD, Reflex Sympathetic Dystrophy, will literally make my legs turn blue, cause me to lose any feeling in my legs and arms and I cannot use my legs sometimes when the flare-ups are really bad! Juvenile Arthritis is something else I could possibly have. No doctor has confirmed it, yet and I’ve had to travel out of town to see rheumotoligists before because the ones in my town didn’t know what to do with my conditions!!!

    When I was 6, I was diagnosed with Crohn’s Disease. Now keep in mind that this was after coming to the hospital about twice a week for about 4 years because my Crohn’s flare-ups were so bad! My mom is a redhead, I like to call her hothead!, and thankfully she won’t take no for an answer!! She was extremely persistent in trying to find the cause in my horrible stomach pain even though almost every time we went to the doctor, they would tell her I was just fine! This was all before I was diagnosed. Eventually, she found a doctor that somewhat understood what we were going through (mainly her at the time, because I was very young) and tried all the possible treatments that could help ease the disease. Even today, there is no cure for Crohn’s Disease!! At 6, the doctor that helped us diagnosed me with Crohn’s Disease and put me through a series of medications including some that children aren’t allowed to take. I took Methotrexate for a long period of time and cannot think of the other medications right now. I now have to wear glasses because of the medicines I took and my family and I are pretty sure that the medications I took caused my other conditions. We’re pretty much certain that the medicines cause my RSD.

    Reflex Sympathetic Dystrophy (RSD) is an illness that causes the lower and upper extremities to turn a bluish color and causes the extremities to become numb. When I first had a flare-up, it was when I was 11 and my parents thought it was a blood clot. So did the doctors. We went through a series of tests that day because I had to go to the hospital. I was admitted for a week and during that time, I had to get an epidural!!! Yes, that thing pregnant women get! I had to get it because my legs were hurting so bad they had to numb them! We’re still not sure if what I have is RSD, but it’s all we got for now!

    I know this is long and sorry but I only gave you two of my illnesses! lol If any one else has any thing I have, please give me tips on how to control it! Anything will help!!Thank you!!!

    1. Loz

      Hi there. I don’t have Crohne’s Disease, but I’m 25 and I’ve had Complex Regional Pain Syndrome (the correct name for RSD) since I was 14. It started in my right knee following a minor operation, but it now affects almost my whole body and ahs put me in a wheelchair because of some of its secondary effects that no amount of physio or medication has been able to counteract. I’ve never heard of medications causing CRPS/RSD – it’s almost always initiated by some sort of injury or other trauma.

      I wish that I could tell you how to control it – I’ve been through pretty much every recognised treatment with no real success. I guess that my only advice for what it’s worth is to take each day as it comes and to recognise that you are going to have bad days. Don’t give up by any means, but know your limits and boundaries, and know when it is time to say ‘okay’ I’ve had enough and when it is okay to push yourself that little bit harder.

      If I can help in any way, please feel free to email me.

  33. Kristy Elkins

    Fibromyalgia symptoms and treatments?
    I havent been diagnosed with fibromylagia yet, and am half afraid to tell my doctor thats what I think I have. Shell probably tell me im nuts, plus I read that theres no real test to say…Yes you have it. But after accidentally stumbling across an ad for Lyrica, and it listed some symptoms of fibromyalgia, I thought to do some research on the subject. Ive been back and fourth to the doctor…goodness like 15 times in the last 2 years! Initially just complaining about extreme fatigue, troubles falling asleep, and not being able to stay asleep once I fell asleep. Then it stemmed into joint pain complaints. I did find out I had lyme disease, so my doctor thought thats what the problem was. Well I took the meds, got re tested and the lyme is cured. This is over a year ago now…but my symptoms are worse. Been back again a few times since then, and she just said theres nothing wrong with me, im just depressed. She tried giving me sleeping pills, which just made me more groggy so I stopped taking them. Then she gave me some off brand stress management med… not quite a depression med, which didnt help. After doing reaserch on fibromyalgia, im SURE thats what I have. Besides the extreme tiredness, and lack of ability to stay asleep, I have horrible muscle and joint aches. I wake up and feel like ive excersised for hours the day before! Im stiff and find it painful to move. What really got me though, is I have pain in all the places ive read online that affect people with fibromyalgia the most. The neck, hips, shoulders, and knees. Thats where most of my pain is. I have frequent headaches, and the other thing that really sold me was the IBS thats linnked with fibromylagia. Ive always had bad cramps and gas like I have to go to the bathroom realllly bad even when I dont have to go, and my bowel movements have always been strange, going alot some days, not going for a day or two at other times. Ive always wondered why until I read about IBS. I know fibromyalgia can mimic lupus and other conditions, but my doctor did test me for lupus and a few others and they were all negative. I also read that fibromyalgia can come about after very traumatic times, and it seems like mine started about 2 1/2 years ago. And ALOT has happened to me in that time. My sister was murdered 3 years ago, my mom died 2 years ago, my brother had a cancer scare shortly after our mom died. So thats another reason I suspect fibromyalgia. So does it really sound like I have fibromyalgia? And what can I do to help it? I cant live with this tiredness anymore! I dont even care about the pain as much as I do about constantly being tired and fatigued!

    1. JMITW

      its possible you have fms

      but its also possible you have a post lymes syndroome
      lymes can cause permanant symtpoms if not treated early enough

      it could also justbe the lack of sleep

      a better sleep med is trazadone–its an antidepressant, but only taken at a smaller dose

      .much safer than traditional sleeping pills

      most docs dont know what fms is and use it as a general label for pain

      they will say the pain of lymes is fms..that is not true..fms is its own specific neuro condition

  34. Vinny Stovin

    I was recently diagnosed with Lupus. Does any1 know what this is? Is it a death sentence?
    Hi this is Vinny. I am 19 I was hospitalized 3 weeks ago with a metallic taste in my mouth. The docs had me p’iss in a cup and found traces of blood. And then came the fever oh good old fever. I was rambling on about nothing and felt like I was freezing (ironic?). But after a few weeks of having things jammed in my rectum and even more things jammed in my rectum they determined i had something called SLE. I looked it up and I found out basically my body is allergic to itself. I’m very worried because I have a kind that attacks kidneys. I am very concerned because the treatment i’m given may not be able to stop the progression. Is this a death sentence? Because I feel okay now very sore though. I hear lots of stories of ppl dying from this disease. I’m worried that it will cause full out kidney failure. Which yes is very very fatal.

  35. angelinaismywifey

    My LYMPH NODES are extremely palpable (for years) i have lost TOO MUCH WEIGHT, what is wrong?
    Hello….if anyone would like to try to DIAGNOSE ME, I’d be SO GRATEFUL AT THIS POINT!
    ….. i’m 30 year old female, with a 10 year old son and had a thoracic fore gut tumor(benign) removed from my chest @ 15, a good portion of which was attached to my lungs, aorta,esophagus, Trachea.
    To Date- no known complications or regrowth.
    109 lbs
    hypothyroid, on synthroid
    Had IUD recently placed in cervix
    amphetamine salts,celexa, lorazapam for depression/fatigue and ADD
    CURRANTLY AND THIS PAST YEAR: Generalized Swollen lymph glands(some firm and hard in groin area. Also where my hairline is in the back of my neck behind my ear i guess, and a few large ones up the side of my neck aligned with my shoulder), Re currant low Grade Fever(no higher than 101 w/out infection),Itchy Skin, Memory Loss,Hair loss, Acne,Bowel Changes,On and Off fatigue, mucus in my stool(for one year at least.More mucus than actual stool on average! SORRY TO BE SO GRAPHIC! Lower Back Pain, DULL ACHING PAIN on the inside of my knees,stiff neck,ankle pain after being on my feet for more than an hour.Also extremely dry; mouth,skin,hair,eyes,&nostrils, dizziness upon standing, sweats,wounds heal slowly, weird painless swelling above my butt where my dimples are(no dr has been able to guess why/what this swelling might be),diarrhea and constipation, tenderness above my belly button, hyper pigmentation on abdomen, arms and feet, anxiety, blood pressure has steadily increased throughout all of my many dr’s visits this past yr.
    ADDED RECENT SYMPTOMS:Kidney pain, visible blood in urine: for 2 months now! it was bright red and then less visible for awhile and now dark brown like tea and extremely strong smelling, hardening and bloating of abdomen, extreme fatigue, productive cough, chest pain, neck pain,easily exhausted, unexplainable bruises, muscle spasms and bulging type pain JUST under my rib on both sides separately, weird stabbing pain on my left groin area near my larger lymph glands that makes my tendon look swollen, thrush, protein in urine, HI albumin in urine, repetitive rbc in urine, BUT NO INFECTION!! (multiple negative cultures), kidney stone shows on CT in an area that is expected to be asymptomatic and may not even pass. BUT I DO HAVE difficulty urinating and cramping JUST PRESCRIBED CIPRO FOR A SECOND TREATMENT. (not sure exactly why since culture is consistantly negative)

    Many tests HAVE BEEN DONE: …..All Basics(CB C’s, liver, etc panels) + Lyme Disease,Hep(B,C etc), ANA,Sed Rate,R.F.,AIDS, Celiac Disease,Fecal Bacterial+Viral cultures,Lupus,Syphilis, Gonorrhea, Chlamydiae,Anemia, scleroderma, h. pylori, bladder cancer,
    P.C.P. says: hematologist &will do allergy & routine testing upon insurance ok
    E.N.T(ear,Nose&throat) says: inflammation or irritation down deep in my throat(but i smoke so…)
    GASTROENTROLOGIST says: gastritis, hemorrhoids,IBS, lymphoid aggragates in non lymph areas
    UROLOGIST says: extreme gross & microscopic unexplained hematuria, referral to hematologist(concerned about enlarged lymph’s in groin and unexplained hematuria———says kidney stone most likely not causing this amount of rbc,did FISH URINE TEST…NO CALL SO I’M GUESSING ALL CLEAR ON RESULTS)
    HEMATOLOGIST says: i’m thin so nodes are more palpable s we should wait. does not believe biopsy is neccessary at this point
    RHUEHEMATOLOGIST says: no signs autoimmune, non arthritic/ lupus like disease
    GYNOGYNECOLOGIST says: no infection, no discharge see urologist…
    DERMOTOLOGIST says: see rhuemotologist! lol, biopsied pigmented marks(inconclusive-possibe allergic reaction)

    i am waiting on results of a chest CT from HEMATOLOGIST because he heard alot in my lungs and another aids test(that’ll be 4 tests in the last yr(all negative)

    but i can’t remember everything! lol any EDUCATED ADVICE would be appreciated
    THANK YOU!!!! i feel so helpless when i am sooo tired or weak….. i just want a solution!

    1. PoisonTrees

      See what the CT results are. If you get no answers there, I would go to a different hematologist and insist on a biopsy. If you can’t get answers switch to a hospital that specializes in diagnostics.

  36. Terisa

    Can anyone diagnose me?
    My name is Terisa and I am in desperate need of help! I am 19 years old and have been very ill for almost a year now. I have seen several doctors (including specialists), had hundreds of tests, and even more medications and treatments to no avail. I am getting pretty desperate because the nature of my illness is one that restricts me to home, limits me to few activities, and most importantly, keeps me in constant pain. I am hoping that somewhere out there is my House. I am looking for a doctor looking for a challenge or someone that has struggled with illness that may have answers! I am willing to take any suggestions so if anyone has any idea of what I could have, please feel free to put in your two cents! And please don’t hold back because of how serious a diagnoses you have. I’ve been told I have all sorts of terrible diseases so I’m not shy about that. The following are my symptoms.

    *Wide spread, chronic, severe pain that is worst in the knees, hips, and back. The pain is made worse by movement, sitting, standing, exercise, walking, bending over, crouching down, and on bad days, laying down. The pain is helped by narcotic pain killers and heat but never goes away completely. A normal day my pain is between a 5 and 7 on the pain scale. With drugs, a 3 to 6 (The pain started March 2nd, 2009. At the time I was diagnosed with a bulging disc but I have since been undiagnosed. However the pain mimics that of a bulging disc if that helps.)

    *Chronic, debilitating fatigue. This is more recent than the pain.

    *Insomnia (I have always slept well before this.)

    *Hair loss

    *Cold Intolerance

    *Clotting disorder (This one is bizarre. I have never had a problem until recently when I started bleeding into a bruise (blood started to pool under the skin at bruise site) and had a nose bleed for 2 hours. Tests show that I have a problem with my clotting time and my Factor 7 is high.)

    *Severe abdominal pain (Severe abdominal spasms that bring me to my knees. I have been diagnosed with IBS but I include this as a symptom just in case.)

    *Joint stiffness and weakness.

    *Numbness, tingling, and weakness in left leg and lower back (this is why they thought I had a bulging disc.)

    *Occasional twitching and shaking

    *Extreme changes in appetite (sometimes I can’t eat and sometimes I can’t stop.)



    *Stomach Ulcer (this might be stress related or some bizarre manifestation or what I have, I don;t know yet.)

    *Changes in menstrual cycle even though I am on birth control and have been for 2 years.

    *Irritability, anxiety, and depression.

    Now here is the really bizarre part. I have been tested for and do not have: Hypothyroidism, Leukemia, Lupus, Rheumatoid Arthritis, A factor 7 disease, pregnancy, or anemia. This is where I stump everyone. I test negative for everything! So this is where I need help. If anyone has an idea of 1) What else I could possible have or 2) how it is possible that I could have the above mentioned things and test negative.

    Well thanks for your time and help. I really appreciate anything anyone can offer me!

    Thanks again.

    1. Rockford

      I’ll just throw some ideas out there

      -Severe abdominal pain, diahrea and hair loss can be from adrenal insufficiency.

      -Irritability, extreme increases in hunger and insomia and body wide pain can be from increase in cortisol levels like in cushings syndrome which doesn’t really match but I thought I would mention it.

      -depression and insomia is understandable if you are in pain and can’t get a deep night sleep. I’m in chronic pain a sleep study showed I woke up 9 times every hour without knowing it. Hypothyroid also causes insominia but you were checked for that.

      -Discomfort in the stomach when bending over can be from a hiatal hernia.

      Pain in the joints and body, numbness and tingling can be from Oedema (swelling) which may not be obvious. Some girls get Idiopathic Cyclic Edema.

      Low vitamin C can cause fatigue, extreme joint pain and bleeding. Low vitamin D can cause body pain and fatigue.

      Cold intolerance can be from not eating enough calories, cold agglutnin disease, infection, etc. I would also look up Hughes Syndrome which is closely related to Lupus (although it doesn’t fit with your nose bleeds). You can also have low iron body stores without being anemic.

      I would look up Reiters Snydrome if you have joint pain and were sexually active. I would get off the birth control to see if the joint pain is a drug reaction.

      I gave you one link for a rare blood cancer that causes bleeding

      I hope I don’t send you on a wild goose chase since I have no medical background. It’s best to remember back when the first symptoms started and what was it. Don’t get side tracked with new symptoms that are a result of medication. I hope you find a answer without having to dig too much.

  37. Tracy

    How do I find a reputable doctor of TCM/any of this sound familiar?
    Western medicine has completely failed me. I deal with chronic pain, fatigue, muscle cramps, brain fog, etc., that is pretty constant but with a clear cyclical component.

    It is, according to all available tests, physicals, and evaluations of other kinds, NOT fibromyalgia, chronic fatigue syndrome, stress, depression, MS, lupus, rheumatoid arthritis, celiac disease, or any other of myriad disorders Western doctors are halfway familiar with.

    I’m not a hypochondriac or an attention seeker, and this issue is really affecting my quality of life.

    MY best guess is myofascial pain, but I’m not sure. I definitely have the ropey knots of trigger points, but pressing them brings relief in a “good pain” kind of way, not discomfort. The knots can never be worked out with massage, though. I don’t have any tender points in the traditional sense.

    For awhile I really wanted a diagnosis, something to validate what I was going through and open up treatment options. Now I really just want it to stop.

    So what kind of title should I look for beside the name of a practitioner? I want someone highly trained in several forms of alternative medicine, not just an acupuncturist or herbalist.
    Interesting, Dave. I suppose it’s the lack of a centralized accrediting system I was wondering about – is there, in fact, no such agency at all, or is there one agency more widely respected than others? It’s hard to imagine that there is no body widely recognized as the authority, even though there clearly are charlatans out there. If there is one widely respected body, I’d like to know which agency that is.

    I’m not sure how one would use the placebo effect knowing what it is. Once you know something is a placebo, haven’t you effectively guaranteed its ineffectiveness? As an analogy, you can’t undo a disbelief in Santa Clause.
    Interesting, Dave. I suppose it’s the lack of a centralized accrediting system I was wondering about – is there, in fact, no such agency at all, or is there one agency more widely respected than others? It’s hard to imagine that there is no body widely recognized as the authority, even though there clearly are charlatans out there. If there is one widely respected body, I’d like to know which agency that is.

    I’m not sure how one would use the placebo effect knowing what it is. Once you know something is a placebo, haven’t you effectively guaranteed its ineffectiveness? As an analogy, you can’t undo a disbelief in Santa Clause.
    Edit: Just wanted to let you know I didn’t give the thumbs down. I appreciate any thoughtful answers and never thumbs down real responses.
    Sorry, Gary Y., didn’t mean to offend. I thought it would be clear from the context that “in this instance” was implied, though it was not written. And yes, in this instance, Western medicine HAS completely failed me. Doctors have been all too happy to order bloodwork and then shake their heads and shrug when it comes back negative. I had a neurologist tell me that I couldn’t POSSIBLY have MS because I had a negative brain MRI – so I asked about spinal lesions, and asked why the MS Society said five percent of MS patients showed no brain lesions. His response? He said, “The MS Society lies,” and went on to say checking for spinal lesions would be a possibility if I’d had vertigo. My response? “Vertigo is on the list of my symptoms I just handed you!”

    Far too many people seem to go into medicine with no curiosity, and that’s not the field you should go into if you’re not curious.

    I’m not picking on doctors – far too many people in EVERY field are incompetent, my own included.

  38. Flos

    Cure for HIV and AIDs?
    I had a theory. radiation and other effects on the immune system, possibly treatment for autoimmune disease should be able to cure HIV.

    if HIV infects and reproduces using the T-Cells, then filtering out these cells for a duration of time while keeping them in a sterile environment should also filter out the HIV and kill it off by depriving it.

    Afterwards, the immune systems can be restored by whatever means they use post lupus treatment.

    is any of this feasible?

  39. Lea Wade

    Please Read!!! I Need Your Help.?
    Hey My Name is Lea. I’m 17 going to be 18 on April 12th. I’ve never done this before and I hate to complain but way past desperate… I was recently diagnosed with a disease called Systemic Lupus Erythematosus or (SLE). It’s an autoimmune disease, where your immune system attacks itself and eventually kills your organs one by one. I have already lost all my long curly blonde hair, which for a 17 year old girl is horrifying. I am now on treatment 3, I’ve tried Plaquenil, which 95% of patients respond but of course I’m the 5% who didn’t respond in a positive way.The SLE scale goes from 0-10, 0=in remission, and 10 equals horrible flare up. before i started the first treatment I was a 6 on the SLE scale, 1 month after my Plaquenil treatmeant I went from a 6 to a 12! Which is off the scale, which is FREAKING horrible. Then my second treatment was Methotrexate A.K.A. Chemotheropy. That still didn’t work so they upped the dose on the Chemotheropy. I’m still on this Chemotheropy treatment but it’s only getting worse, I am now immune to 8-9 antibiotics. I was so excited to hear about this new SLE treatment “Benlysta”. Benlysta has a huge succsess rate! I couldn’t stop crying I was so happy, but then I found out it costs $35,000 a year, because SLE is a life long disease that means $35,000 a year for the rest of my life (if I could afford it, let alone the first treatment/year.) I’ve wanted to become an Interior Designer ever since I was 9 years old. I’m a junior/senior in highschool. I’m in between both grades because I had to leave public highschool and become homeschooled because my immune system isn’t working so I get sick to easily. But some good new is I got accecpted into the the ART INSTITUTE OF CALIFORNIA the college I’ve wanted since I was about 12 years old haha. So it’s either college or possibly this new treatment. Basically, a short fufilled life with an amazing education for Interior Design, or a long life that’s unfufilled with no college education, which kills me to be so harsh but that’s my reality. I can’t stand the thought of choosing, so does anyone how I can raise money to pay for college & treatment so I can have a LONG & FUFILLED life? Please Help me…I haven’t been able to hold down the Chemotheropy pills so now I’m injecting myself every thursday… I need to raise money for this treatment so any ideas will be greatly appreciated… All I can do is pray for my savior to save me from my own body. I know God has a plan for me, but I hate this large part of his plan. But i trust the Lord and all the faith I have left in me is going to my Lord because I have all my trust in him…<3

    Thank You for taking the time to hear me complain :/

    Lea Wade

    1. gorshi

      Get your story out. You deserve both, college and treatment. Go to charities. Church. Talk to your college. Your community. Your high school. Your parents’ work. Your friends’ parents’ work.
      Set up an account (you need a lawyer and accountant for this) so people can donate.

      Don’t give up.

  40. Lea Wade

    Hey My Name is Lea. I’m 17 going to be 18 on April 12th. I’ve never done this before and I hate to complain but way past desperate… I was recently diagnosed with a disease called Systemic Lupus Erythematosus or (SLE). It’s an autoimmune disease, where your immune system attacks itself and eventually kills your organs one by one. I have already lost all my long curly blonde hair, which for a 17 year old girl is horrifying. I am now on treatment 3, I’ve tried Plaquenil, which 95% of patients respond but of course I’m the 5% who didn’t respond in a positive way.The SLE scale goes from 0-10, 0=in remission, and 10 equals horrible flare up. before i started the first treatment I was a 6 on the SLE scale, 1 month after my Plaquenil treatmeant I went from a 6 to a 12! Which is off the scale, which is FREAKING horrible. Then my second treatment was Methotrexate A.K.A. Chemotheropy. That still didn’t work so they upped the dose on the Chemotheropy. I’m still on this Chemotheropy treatment but it’s only getting worse, I am now immune to 8-9 antibiotics. I was so excited to hear about this new SLE treatment “Benlysta”. Benlysta has a huge succsess rate! I couldn’t stop crying I was so happy, but then I found out it costs $35,000 a year, because SLE is a life long disease that means $35,000 a year for the rest of my life (if I could afford it, let alone the first treatment/year.) I’ve wanted to become an Interior Designer ever since I was 9 years old. I’m a junior/senior in highschool. I’m in between both grades because I had to leave public highschool and become homeschooled because my immune system isn’t working so I get sick to easily. But some good new is I got accecpted into the the ART INSTITUTE OF CALIFORNIA the college I’ve wanted since I was about 12 years old haha. So it’s either college or possibly this new treatment. Basically, a short fufilled life with an amazing education for Interior Design, or a long life that’s unfufilled with no college education, which kills me to be so harsh but that’s my reality. I can’t stand the thought of choosing, so does anyone how I can raise money to pay for college & treatment so I can have a LONG & FUFILLED life? Please Help me…

    Thank You for taking the time to hear me complain :/

    Lea Wade
    I haven’t been able to hold down the Chemotheropy pills so now I’m injecting myself every thursday… I need to raise money for this treatment so any ideas will be greatly appreciated… All I can do is pray for my savior to save me from my own body. I know God has a plan for me, but I hate this large part of his plan. But i trust the Lord and all the faith I have left in me is going to my Lord because I have all my trust in him…<3

  41. cortlin.harrison

    is this a good research project please be honest?
    Cortlin Harrison Science 10-12
    Mrs. Cooney/ Mrs. Barends ELA 21-23
    May 19, 2009
    Antiphospholipid Syndrome

    Antiphospholipid Syndrome is a disorder in which the body recognizes certain normal components of blood and/or cell membranes as foreign substances and produces antibodies against them. This disorder is non-infectious which means that this disorder can’t be passed from person to person by contact. Pregnant women are more prone to get this disorder than anyone else, and African Americans, and Hispanics but like other disorders anyone can get Antiphospholipid Syndrome

    The symptoms and characteristics of this disorder are not hard to spot. Some symptoms of the disorder are veins or arteries of the arms or legs may cause pain, numbness, tingling in the feet. Arteries of the heart may cause chest pain or heart attack, the individual with this disorder may have heart murmur. In pregnant women with Antiphospholipid Syndrome, miscarriage can occur prior to 20 week of gestation, while pre-eclampsia is reported to occur after that time. Blood vessels of the skin – may cause painful bruises (purpura) or a condition called livedo reticularis. Blood vessels of the brain – if a clot cuts off blood supply to a part of the brain, this causes a stroke. An individual with APS may also experience migraine headaches or seizures.

    There is no cure and there is no way to avoid getting this disorder. There are many treatments for this disorder. But the most successful treatment is anticoagulant therapy. This is usually successful in preventing further blood clots. This disorder can severely damage the body in many different ways because good cells attack other good cells and that causes chaos through the body. And when a weak or strong pathogen enters the body it can be deadly.

    Some other information about Antiphospholipid Syndrome is, 1-5% of the world population is known to have this disorder, and 40-50% of patients with lupus also have APS. One third of strokes occurring in younger people (under the age of 50) are due to Antiphospholipid Syndrome. One third of patients with Antiphospholipid Syndrome are said to have lupus, and or Raynaud disease. APS is more common in young to middle-aged adults; however, it also manifests in children and elderly people. Disease onset has been reported in children as young as 8 months.

    This disorder is very rare and not very deadly but this disorder can still affect your way of life, the way you think, and can make you dizzy and other things. My mom has this disorder and sometimes it’s hard to get around and such, but you can still fight back by eating a healthy diet and seeing a special doctor called a Rheumatologist, this doctor specializes in these types of rare disorders.

  42. Recently diagnosed

    Lupus and grave’s Disease ?
    I was recently diagnosed with Lupus and Graves Disease. What I dont understand is how can I have Grave’s disease if I had a partial thyroid removal almost 10 years ago. Is this normal? I have been really feeling sick off and on for the last 3 months with the usual symptons of Lupus. Im really scared and don’t know what to expect. I just started treatment but I was told it will take 3-6 months to take effect. Does anyone have any suggestions. I feel so helpless and tired all the time.

  43. Citizen

    Brain Problem, Worried HELP?
    I am 24 years old and have started masters in civil engineering. I have no neurological problem and I have never had treatment related to neurology. I am a normal guy.

    My younger brother, when he was 10 years old, had been diagnosied with epilepsy for 3 years and after he stopped walking and after 1 year he expired ( 7 Feb 2009 ). The doctors in the end said he had CIDP and sepsis. I was reading alot about epilepsy and autoimmune diseases like Lupus, MS, etc. I am an engineer but due to my younger brother situation I was interested to know what was going on with him. Anyways.


    As I know about these neurological problems(brain disorders) I am worried for the last ONE week as I am getting some kind of feeling in the right side of my brain. I am not going to describe the feeling as I am not been able to describe it. Clue is this that it is like some kind of irritation or maybe some electric discharge and my head bends right side at back for one second as that feeling in the brain is for one second. Moreover, I even observed that this feeling when sometimes comes, my both arms shakes for only one second.

    I asked one of my friend and he said it is normal as he also gets that sudden tremble for one second…wht is it called?

    I am a normal guy. But I am worried. I have been worried too much for the passed 5 months as I missed my brother but I am ok now.

    I remember I used to get these types of feeling/irritation(i seriously dont know wht this is) even when I Was 7 years old. They come like after one month. I never gave them importance.

    Even while I was in my lecture class, everyone was busy in lecture I get this shake in my body as if its cold.

    I am worried. I am going to see a neurologist ASAP.

    Please Comment

    Engineer Waqas

    1. TweetyBird

      Possibly you could be experiencing seizure activity but you’d have to be evaluated for this and I’m glad you’re seeing a neurologist. I’m skeptical as to whether this electric sensation and arm tremors are “normal” as your friend says. I rather doubt it. Hard as it may be, try not worry for now.

  44. Toaster o' Death

    Are the medical terms used in House M.D. real?
    The terms that gregory house uses in the movie… are they real?

    like adavan and epinephrine for seizures, and vicodin for pain, all the other diagnostics and symptoms, are they really used like they were in actual situations?

    or do they rely on the fact that viewers have absolutely no clue about what they are talking and doing over there. they say things like sarcoidosis, lupus and other diseases… are they really associated to the symptoms that they find? and the treatments as well, with interferon and plasma(something)???

  45. benraze2001

    For people with Lupus, is there any way to counter the effects of sunlight exposure other than sunscreen?
    I have only recently been advised that I may be suffering from a connective tissue disease. Upon doing some research it appears that the most appropriate diagnosis is Lupus. I have an appointment with a rheumatologist in a few days, but I was wondering if anyone with Lupus has any tips for coping.

    I turn 28 in a few days, I’m married and have three children under the age of 4. After even a half hour in direct sunlight, I will wake up the next morning with a debilitating migraine that takes 5 excedrin migraine and about 16-20 hours to get rid of. I want to be able to take my family to the pool, water park, Disney, etc. without them having to accommodate for my issues. (I also recently bought season tickets for the Jaguars and I’ll be darned if I’m gonna miss a game ^_^ ).

    Anything I have to do in terms of treatment, drugs, etc. I’ve got no problem with if it only effects me, but the things that affect my family or my ability to interact with them are what hurts the most. Any suggestions or personal experiences are greatly appreciated.

    1. Anama

      It is an autoimmune disease, and to explain it here would be silly when there are literally thousands of sites dedicated to lupus. There is a search engine on yahoo! ,please try using that.
      Lupus cdc
      Lupus foundations


    The day my world fell apart, My mother was recently diagnosed with SLE Lupus.?
    I did not know much about Lupus until I started doing the research, im scared because im not sure what to expect. She complains of joint pains and its started to affect her breathing, she is very closey monitored.

    Please if anybody has or had Lupus what are the long term effects and could I possibly generate the disease.

    Are there any herbal treatments thats anybody has used and its helped, very much appreciated.

    Thank you all

  47. P S

    Is it cancer or something else – many tests?
    Ok ive got a relative 48 years of age female.

    Has very low iron levels – gets puffy easily has recently seen doctor who has ordered the following tests – feels very fatigued, probable anemia

    Full blood count, FGY test, CEA test. A CT scan, colonscopy and endoscopy. Family history of chrons disease, also lupus.

    Doctor isnt saying what could be the problem ( anything from ulcer to pollop – GP suggested that it was unlikley to be cancer) though said testing was urgent, suggested could be a GI bleed. Otherwise healthy, no blood in stool, no lumps around abdomen area but has had some minor stomach pain.

    Celiac disease is one of the blood tests indicators thats being looked at, what is the chance or thoughts on what could be im a bit worried thinking it could be colon or stomach cancer, could be something as simple as malabsortion , in the last 4 months has had glandular fevor anyone with any thoughts ?

    * 17 hours ago
    * – 1 week left to answer.

    Additional Details

    17 hours ago
    I should add my relative asked the doctor what the likelihood of cancer was and was told doctor would be surprised if it was cancer. Indicating that it probably was an outside chance – tests are happening next week anyway – so doctor is being level and tests being done

    From what ive read if it was more cancer concern feacel stool testing would have been done plus an MRI which at the moment hasnt been ordered. So could the be looking for something else and if something else what could that be

    16 hours ago
    In reply to the third contributor ( thankyou for the additional information) based on the information i have ( i dont think a stool sample was asked for) other elements of the blood test are testing for chrons disease and a marker for celiaic.

    If it isnt cancer what other problems would fit the general medical area that the doctor might be looking for ( ie what could be the possible disorders or other medical problems they would be lookign for) if its cancer my relative is well prepared for treatment and so forth. It would be hopefully caught in early stages) but what other conditions of a less serious nature be likley to be what dr might be looking for
    In reply to kateyn i live with this relative and its definetly not a eating disorder. She is off work and im pretty well around her all the time. There were confirmed low iron levels a few years ago was put down to respiratory issues those cleared up but there has been a recurrence of low iron levels ( plus folate levels) b12 levels were ok. This woman who is 48 eats quite a bit its more the absorption thats the issue, the real issue is whats causing the low iron absorption

    Thanks for youre contribution anyway, eating disorders are a serious concern but in this case no its not the focus

    1. Daisee

      My guess is iron deficiency anemia…. because she has low folate level and she had the same symptoms previously.

      Abdominal pain is also a symptom of iron deficiency anemia.

      The cause can be blood loss through the gastrointestinal tract caused by colon cancer, hookworms, hemorrhoids, anal fissures, irritable bowel syndrome, aspirin-induced bleeding, blood clotting disorders, or diverticulosis.

      I really doubt that is caused by colon cancer. I think by now she would have more symptoms like bowel changes, vomiting, lack of apetite, vomiting, bloating and feeling full.

      Plus…if they were looking for colon cancer, they would have ordered the colonoscopy but not the endoscopy.

      Iron deficiency anemia has a good prognosis. Let’s see how good I am at diagnosing over the internet….LOL

      Best of luck.

  48. Dance-a-Holic

    I need help editing my research paper. I’m really bad at papers…..please help!?
    Well, its on lupus. I have the intro and two body paragraphs, and I still need to do the conclusion. So, I was wondering what I should change on my paper, and what I need to add..? I also have to do a powerpoint based on the paper, that should last a minimum of 5 minutes up to 15.

    The reason why I chose this topic was because my dad has lupus, and I wanted to know more about the topic. He was diagnosed with lupus when he was about fourteen years old. He still receives treatment for it by going in for blood tests and taking medication He has the most common form of lupus, Systemic Lupus Erythematosus (SLE), in which causes the antibodies to react against his own normal tissue. He has arthritis and joint problems, but nothings wrong with his internal organs. To support my dad and other lupus survivors, my family and I all go to the lupus walk in honor of remembering the people who had lupus that died. The things the audience can expect to read in this paper are the different types of lupus, the symptoms, the treatment and cures.
    Lupus is the result of an unbalanced immune system that can be destructive to any organ in the body. It can be categorized into three groups: discoid lupus Erythematosus, systemic lupus Erythematosus, and drug-induced systemic lupus Erythematosus. DLE is always limited to the skin and is identified by a rash that may appear on the face, neck, and scalp. It can evolve into the systemic form, which can affect any organ or system of the body. Systemic lupus Erythematosus is more severe than discoid lupus and can affect almost any organ or organ system of the body. No two people with SLE will have identical symptoms. Drug-induced systemic Lupus Erythematosus occurs after the use of certain prescribed drugs. It is more common in men, because the drugs are given to them more often.
    Lupus is hard to diagnose because it has a wide range of symptoms involving various parts of the body; and symptoms differ from each person. Most people develop painful joints and a rash, but lupus may also cause fatigue, depressions, and kidney problems. The treatment of lupus varies from person to person because each person has different symptoms. Most people with SLE require a regular blood test to check for lupus flares. Medication is the primary medical treatment for lupus. Presently, there are no other methods available to treat lupus because there is nothing else that can have the necessary impact on the immune system. Currently, there is no cure for lupus, but with early diagnosis and proper medical treatment it can significantly help control the disease.

    thanks. it would be much appreciated!!!!

Leave a Reply

Your email address will not be published. Required fields are marked *