If you suffer from relentless facial sweating, you know how difficult it is to find a solution that not only works but is convenient enough to use on a daily basis. Sure, there are lots of natural remedies and astringents that can relieve the problem.  Sure, you can use expensive Botox injections to stifle the sweat.  These are valid alternatives.  But wouldn’t it be nice if curing your head sweating was as easy as swiping on gentle deodorant?  Now you can, with a super convenient antiperspirant called Hydrosal.

This article is going to reveal how Hydrosal Gel will put an end to your face sweating starting from day one.  It’s an easy to use topical that’s mild enough for everyday application and starts going to work in just minutes. 

If you’re anything like me then your bouts of facial sweating and blushing create a relentless cycle of perpetual perspiration.  What I mean by that is, you sweat, get embarrassed and then continue to sweat out of the embarrassment.  Even if your head sweating isn’t induced by anxiety, there’s no doubt it produces anxiety.  It’s kind of like the age old question – What came first, the chicken or the egg?

Well, what comes first when it comes to your head sweating, the anxiety or the sweat? 

A lot of facial sweating solutions out there try to resolve your problem from a psychological strategy.  These solutions think that if you can control your emotions, you won’t start spritzing from the face.

Unfortunately, that’s not a complete solution.  Yes, controlling you anxiety will mitigate some sweating that’s caused from nervousness.  However, to truly prevent the problem to begin with, you NEED to attack it from a physical standpoint.

This is where Hydrosal Gel comes into play. 

If you’re like me and your head sweating is as bad as mine was, there has probably been a point where you’ve tried applying an antiperspirant to your face.  As you probably know, this doesn’t stop the head sweating.  Clinical and Prescription antiperspirants are WAY too strong for the skin on your face.  You’re results will be a red, irritated, rashy looking appearance that won’t prevent the perspiration.  Using a gentler, stick deodorant may not give you a rash, but it too won’t do much to stop facial sweating.

Hydrosal Gel presents itself as a perfect compromise between comfort and effectiveness when it comes to cranial hyperhidrosis (excessive facial sweating).

The gel has 15% aluminum chloride; an active sweat stopping ingredient.  Additionally, it utilizes the power of salicylic acid to condition away the wetness.  Salicylic acid is a Beta Hydroxy Acid.  That means it’s oil soluble.  When you apply the gel, the salicylic acid is absorbed by the oil in your skin, conditioning away the shiny appearance.  On top of that, the aluminum chloride blocks your cranial sweat pores and prevents the perspiration.

It’s super convenient to use.  Just apply a pea sized amount in the morning after you shower.  It will air dry in a couple of minutes on the skin.  That’s it!  Totally easy and takes seconds to benefit from.

If you find that you do have some irritation, simply use less gel or space out applications over a larger number of days.  This is one of the few facial deodorants out there and it’s specifically made to address cranial hyperhidrosis.  I highly recommend you check it out.

Facial sweating isn’t easy.  You don’t have to live with it though.  There ARE treatments that get real results.  Start right now by learning the top three cures for facial sweating at my website.

Check it out here ————> http://www.Prevent-Sweating.com

Don’t live with head sweating any longer.  Solving this problem is easier than you think.  Start right now and improve your quality of life tenfold!


60 thoughts on “Lupus Head Rash

  1. Katy

    i think i have lupus, but how do i ask my doctor?
    i have an aunt with systematic lupus so i know what it is and what the symptoms are, i am sure i have it too, i have everything she has and sometimes worse than hers, ive had the discoid lupus rash since i was 12 but when i went to the dermatologist he looked at it for like a second and decided it was impatigo, i was in his office for less than a minute, even though i was in waiting room for over 2 hours which is wrong in so many ways >.< it continues to come back but everytime they just give me antibiotics and send me on my way. i went to a GP and told her i thought i had lupus and she told me not to self diagnose, i was told all my symptoms could be explained by mental and physical stress and anemia, i should relax and rest when my joints hurt. she was quite mean and it upset me, she treated me like a hypochondriac. i havent wanted to bring it up again and i dont go to the doctors with relating symptoms anymore because they flick through my history and tell me its stress again or try to make me eat more iron. i am a very laid back person and i do no physical exertion to make my joints like this either. its gotten to the point where im ill more than i am healthy and i can bearly get out of bed in the mornings. now im an adult its pathetic, but every time i go to the doctor i feel really young and insignificant again. i really need help with this as im moving out of my mums house in a few months and will be on my own,, how do i make the doctor test me for lupus without me demanding it? i need for them to come to it on their own conclusion, when i go into that little room my head goes completely blank and i turn very monosyllabic and everything i meant to say doesnt come out. ive tried to show them the malar rash but by the time i get to the appointment its gone >.< anyone have any solutions to help me??

    1. TRAVIS

      I am sorry for the experience you have had with these doctors. I am going to school now to be a doctor and it is stories like yours that helps with driving me toward this. In my opinion the doctors should have investigated this. It is their job to increase your quality of life.

      I think that you should first of all not go back to where you were treated with such poor service. If your doctor does not have time for you, well don’t make time for him. Go see someone else.

      Maybe you could write down your symptoms that you are experiencing, so that you can get all of the information to the doctor. There are tests that can be ran to determine if you have a autoimmune deficiency, and I think that they are relatively easy to do.

      Again I am sorry for your poor treatment. You know your body better than anyone else, and if you are worried that something is wrong it does not need to be discarded. If going somewhere else and you are treated this way again then I believe you should demand that you are tested. If it does not come out right when you are there then I would call for an appointment strictly to be tested for lupus.

      Your quality of life should be their number one priority. I am tired of hearing stories of doctors that dismiss their patients in this way.

      Oh yeah maybe you could take a picture of the rash too when it does come about, but really you should not have too. I’m sure your eyes are perfectly fine and you probably have a very accurate visual image of it as well.

      Anyway I hope you get help with this and think you for another story of why I want to be a doctor. I am going to go study now, so I can be an advocate for you and others.

  2. Shelly H

    can someone who has lupus give me some advice?
    for the past 5 months…i’ve had a spreading rash on my body…started on my chest (for about 3 months)…didn’t panic about that….but then it spread to my leg, shoulders and arms. I then booked an apt with a well know dermatologist practice in the area. I saw a young trainee and she told me i had ringworm…gave me 2 weeks worth of medication and asked me to get blood work done.
    this didn’t work so when i went back the 2 weeks later…another doctor met with me and said i’m sorry but you don’t have ringworm…we believe its lupus. she said we need to take a skin sample to do a biopsy and will get back to you within 10 days.
    friday willl be the 10th day…but since i’ve met with them 5 days ago….its gotten even worse…should i call up today ????
    also what is the treatment ???
    what helps to cover up the rash ??? spray tan ????
    i just need to know as much info as possible about lupus…i’ve googled of course but i want to hear from someone who has it.
    i have had hair loss….some fatigue (but maybe thats in my head )…and my wrists do ache in winter time……i’m 28 years old !! female
    i know everyone talks about the butterfly rash…i do not have this. – no rash on my face of yet.
    just the other areas i mentioned…starting to see tiny spots coming on my hands and feet.

  3. Letitia L

    How to tell the difference between butterfly rash and general red cheeks?
    Recently I have this unexplained rash on my neck and the lower part of my face, it did not itch or have any pain, it was just these red blotches, very slightly raised. I went to the doctors a couple of times and they had no idea. It is still there but less obvious now.
    But recently after having other problems, I came across a website about lupus, and looking at the rash it looks like what I have, plus quite a lot of the symptoms… Over the last few months I have not felt very well at all.

    I do have a redness across my nose and cheeks like the butterfly rash, but how can I know if this is all just in my head and actually I just have rosy cheeks, or if this actually is this rash.
    Plus I do get swelling and pain in my joints, but I am only 16.

  4. Lis

    I am scared about going to the doctors tomorrow and finding out if I have lupus disease or not? Is it bad?
    I have been so scared for these past few days that I cannot sleep. I woke up one morning to find I had an itchy rash on my chin and at work, I work near hot steamers, that irritated it and I had to be sent home. The next day, my cheeks were swollen red, I couldn’t eat properly and had to go to the doctors where he said I may have Lupus disease or some other autoimmune disease. He took a swab of my rash (and named it malar rash, or butterfly rash on the package) and I had to go in for a blood test. I get my results tomorrow.

    After reading about Lupus online, I discovered I have many of the symptoms; I am iron deficient with a low blood count, which even prevented me from donating blood. I also get blue tinged fingers and stiff swollen fingers depending on the cold and if I am stressed. I also gets aches and pains on my shoulders, arms and legs and am weak and tired half the time. Sometimes in the sun I get dizzy and faint headed. The doctor also prescribed me an antibiotics and prednisolone medication.

    I am so scared to go into the doctors tomorrow to get my results. Is Lupus life-threatening? Do you think it is possible I have it? The rash and swelling came on so suddenly, is this common in Lupus? Thanks so much.

  5. Christina

    Lupus flare and rash from sun on neck and chest pain?
    I am 15 years old (female), and without a doubt have Lupus. My doctor is slow in diagnosing, which is understandable, but he keeps telling me things are wrong with me other than Lupus, that really aren’t, he keeps giving medicine to treat my “illnesses,” and they don’t work because he’s obviously wrong. I have been on all kinds of medications for various things, except for Lupus! He is holding off on lab. tests (which is pissing me off!) and is starting to have attitude with me…I think he thinks its all in my head even though I have all symptoms, genetic history of Lupus, and even his resident is trying to speed things up because she knows I should be tested and diagnosed (I am sick and do not want to live like this any longer). I told him I am missing school because the teachers are sending me home for being too sickly to be in school, and I’m in college level courses, and the school is demanding I get a tutor. I am not going to go over all my symptoms, I do want to know 2 things…
    How can I get my doctor to speed things up and to make him understand I am seriously sick and need immediate attention?

    And more importantly…I was just outside in the sun (it’s about 75º in New York) for only 8 or more minutes trying to get my puppy’s to come inside…When I came in, as usual during a flare, I got a rash over my chest and part of my neck. A little while later I got severe chest pain, which makes it hard to take deep breaths, and strikes pain when moving (bending)…I get this chest pain randomly, but is there a connection with this pain and the sun and/or the sun rash? If so, what and what does it mean!?

    1. poetess1966

      First let me tell you I’m sorry you’re having so much trouble. It took 4 years for me to get the correct diagnosis because of the exact thing you are going through, doc’s don’t listen. I have had Lupus for 7 years. My advice is to first find another doctor, at a teaching or university hospital if possible. Second, yes it sounds like lupus. The chest pain is probably from something called costochondritis, which is a swelling or inflammation of the cartilage that connects the breastbone ( sternum) to the ribs. It is very common in lupus. Sometimes it can even seem like a heart attack it hurts so bad. The best treatment is to haet a wet wash cloth in the mircowave for 30 sec and then lay it on the breast bone. Repeat as needed. That and Tylenol often help it. For more info on Lupus contact the Lupus Society there in New York. Good Luck

  6. meggie is back!

    Do I have it or not??? 10 points for the best answer!!!!?
    I have 3 autoimmune diseases and I think I have another, it’s Lupus. One of my family members had it too. Here are te symptoms I have:

    A rash on my face
    Chest pain (minor)
    fatigue
    Head ache
    Loss of appetite
    Loss of weight

    Please help! Big reward!!!
    Oh, and I have a doctors appointment set up, but they couldn’t get me in untile May 25th.
    Yes, lots of joint pain, however it could be from other problems such as my fibromialgia.

    P.s. I’m 14, so all of y’all telling me to go to the doctor, I can’t until my mommy takes me May 25th!!!
    Thank y’all, i appeiciate your input, whatever it may be. 🙂

    1. Chris

      These symptoms could really be the signs of almost anything. However, if your family has a history of Lupus, and you have several other autoimmune diseases, then it’s a definite possibility. The best thing to do would be to go to a doctor to check if you have it.

      If these are the only symptoms you are experiencing, then you probably do not have Lupus. Do you get a photosensitive rash (one that occurs after skin exposure to direct sunlight)? Any joint pain? Make sure to tell your doctor about ANY symptoms you have been having, no matter how irrelevant they may seem.

  7. Meagan Hope

    I have all the symptoms of a systemic candida infection but my IgG IgM came back clean. What can it be?
    i am very sick and have also been diagnosed with fibromyalgia
    My symptoms are as follows:
    pain and swelling in my arms and joints of my arms and legs
    migraines
    head “pain” in the left temporal part of my head
    pressure in my head and neck
    changes in vision (mild)
    IBS – chronic diarrhea for the past 5 years
    intestinal cramps
    bloating
    gas
    acid reflux (reduced but not cured by 2 Rx meds)
    mental fogginess which gets worse at times
    geographic tongue
    sleep that is not restful ( waking frequently, and sleeping every chance I get with no improvement in tiredness)
    frequent and urgent urination
    allergic reactions to foods with a rash on my face and neck with no clear source on an elimination diet
    weight gain
    depression
    anxiety
    lack of energy
    craving for carbs and sweets

    I have been tested for:
    rheumatoid arthritis
    diverticulitis
    gluten allergy
    food and environmental allergies
    lupus

    Current medications:
    cymbalta 30 mg 2 pills qd
    lyrica 75 mg 2 pills qd
    ativan prn
    tylenol 3 prn for pain
    zypan 2 tabs with meals
    vit d 50,000 iu daily
    vit c 2000 iu twice daily
    vit b complex
    spirulina 3 tabs twice a day
    omega 3
    probiotics

  8. Meagan Hope

    I have all the symptoms of a systemic candida infection but my IgG IgM came back clean. What can it be?
    i am very sick and have also been diagnosed with fibromyalgia
    My symptoms are as follows:
    pain and swelling in my arms and joints of my arms and legs
    migraines
    head “pain” in the left temporal part of my head
    pressure in my head and neck
    changes in vision (mild)
    IBS – chronic diarrhea for the past 5 years
    intestinal cramps
    bloating
    gas
    acid reflux (reduced but not cured by 2 Rx meds)
    mental fogginess which gets worse at times
    geographic tongue
    sleep that is not restful ( waking frequently, and sleeping every chance I get with no improvement in tiredness)
    frequent and urgent urination
    allergic reactions to foods with a rash on my face and neck with no clear source on an elimination diet
    weight gain
    depression
    anxiety
    lack of energy
    craving for carbs and sweets

    I have been tested for:
    rheumatoid arthritis
    diverticulitis
    gluten allergy
    food and environmental allergies
    lupus

    Current medications:
    cymbalta 30 mg 2 pills qd
    lyrica 75 mg 2 pills qd
    ativan prn
    tylenol 3 prn for pain
    zypan 2 tabs with meals
    vit d 50,000 iu daily
    vit c 2000 iu twice daily
    vit b complex
    spirulina 3 tabs twice a day
    omega 3
    probiotics

  9. Stace!

    Does this sound like Lupus?
    Hello all!! I have been having some strange symptoms, and would really appreciate help from anyone who knows anything about them.

    Here are my symptoms…
    -Whenever my skin has been getting cold (or even chilly), my skin breaks into rashes. Any part of my skin that is cold (arms, legs, feet, etc) will get the rash. It’s a blotchy red rash with slightly raised bumps. It is very uncomfortable. Kind of an itchy/burning feeling. I’ve tried all sorts of anti itching creams, etc., but nothing works for it.
    -I’m always tired. I feel like I could sleep at any point of the day and for the entire day.
    -I’ve been getting intense headaches. It hurts from the sides of my head to the back of my head. They also make me slightly dizzy.
    -I’ve been having pain in some of my joints. Currently, I’m experiencing pain in my shoulder, wrist, elbow, and knee.
    -I’ve been finding huge bruises (softball size) all over my body and I have no idea what they are from (no big injuries).

    Do any of you know anything that would cause all of those symptoms? I would really appreciate the help. I’m trying to figure out what kind of doctor would be best to go to (dermatologist, specialist, allergist, etc.)
    Thanks!

    1. Allison

      The main symptoms to look for in lupus are:
      – Butterfly rash (butterfly-shaped rash on the face, spreading across the nose and over both cheeks)
      – Arthritis (typically seen in ankles, knees, and wrists, but can be experienced in any joint)
      – Fever (that can’t be explained by something else)
      – Extreme fatigue
      – Swollen lymph nodes (neck is the easiest place to check; if it’s very sore it’s most likely swollen)

      Now I suggest taking these steps:
      – Keep a log of all symptoms, any new ones, when they worsen, etc. Doctors will appreciate it!
      – Find a good rheumatologist and schedule an appointment. Explain your symptoms.
      – If lupus seems likely, you will be sent for an ANA blood test and urine samples testing for protein. Go ahead and look up ANA.

      Remember, lupus is difficult to diagnose, because it is so broad. Different doctors may have different opinions. Remember to get ALL the facts, and in my opinion, it is smart to get MULTIPLE professional opinions. GOOD LUCK (:

  10. bornonwednesday

    What could be wrong with me?
    I have sharp stinging pains sometimes in my head and limbs and extremities. I’ve been very forgetful, I can’t hold a thought for more than a few seconds. I sometimes have a hard time thinking of the word for something simple. I’ve also been stuttering and slurring my speech. I occasionally have this feeling of pressure in my head. I’ll also feel randomly lightheaded and nauseated. I have trouble sleeping, and I will be extremely tired even after sleeping. I’ll have flashes of being extremely cold or hot, my vision is sometimes blurry, and random rashes. A few years ago I was told I could have lupus , but that came out negative. Are these symptoms of lupus or something serious. Unfortunately I don’t have a health plan where I can just go to the doctor’s

  11. The Mommy Delivered

    pain in brain? nose bleeds??? help?
    I believe my husband may be dying and we wont know whats wrong until the autopsy

    ——————————————————————————–

    If anyone has any ideas PLEASE help??

    basics: 45 yr old male, no health problems, heart and lungs in excellent shape…former drinker..smokes 1 pack per day….no history of drugs no current drug use. no medications…140 lbs, 5’5″.

    family medical history:
    aneurysms, high blood pressure, cardiovascular disease, cancer, lupus, arthritis.

    personal medical history:
    presented with headaches 5 yrs ago. when the headaches would come, the blood pressure would go up. diagnosed with migraines. had allergies or severe side effects to all migraine meds. Pain meds dont even touch the pain. 2 yrs into it, the doctor put him on blood pressure meds, which did n othing to control the blood pressure. two years after that, he was taken off of blood pressure meds.
    In the last 6 months symptoms have become worse.

    recent medical findings:
    CT scan done one month ago showed nothing abnormal. CT scan done last week showed mild generalized brain atrophy higher than expected for man his age.
    blood work showed low immunoglobulin G QN.

    Chief Complaints and symptoms at this time:

    weakness (he can not work for the past 5 weeks)
    fatigue
    constant headache (pain comes from deep in head..unlike a headache or migraine)
    a feeling that brain is smaller than head and every turn causes it to bounce against skull causing severe pain
    aversion to noise
    elevated BP with headaches
    most recent, he has developed nose bleeds
    and
    a fungal skin rash that continues to grow in spite of lotrimin cream.

    Help please…I honestly feel like something is bad wrong, but I just dont seem to be able to have any info to share with doctors that would help them to look deeper into this…

    thank you in advance

  12. The Mommy Delivered

    brain atrophy?????…………………………?
    I believe my husband may be dying and we wont know whats wrong until the autopsy

    ————————————–…

    If anyone has any ideas PLEASE help??

    basics: 45 yr old male, no health problems, heart and lungs in excellent shape…former drinker..smokes 1 pack per day….no history of drugs no current drug use. no medications…140 lbs, 5’5″.

    family medical history:
    aneurysms, high blood pressure, cardiovascular disease, cancer, lupus, arthritis.

    personal medical history:
    presented with headaches 5 yrs ago. when the headaches would come, the blood pressure would go up. diagnosed with migraines. had allergies or severe side effects to all migraine meds. Pain meds dont even touch the pain. 2 yrs into it, the doctor put him on blood pressure meds, which did n othing to control the blood pressure. two years after that, he was taken off of blood pressure meds.
    In the last 6 months symptoms have become worse.

    recent medical findings:
    CT scan done one month ago showed nothing abnormal. CT scan done last week showed mild generalized brain atrophy higher than expected for man his age.
    blood work showed low immunoglobulin G QN.

    Chief Complaints and symptoms at this time:

    weakness (he can not work for the past 5 weeks)
    fatigue
    constant headache (pain comes from deep in head..unlike a headache or migraine)
    a feeling that brain is smaller than head and every turn causes it to bounce against skull causing severe pain
    aversion to noise
    elevated BP with headaches
    most recent, he has developed nose bleeds
    and
    a fungal skin rash that continues to grow in spite of lotrimin cream.

    Help please…I honestly feel like something is bad wrong, but I just dont seem to be able to have any info to share with doctors that would help them to look deeper into this…

    thank you in advance
    ZAM: thats the problem..he quit drinking 6 yrs ago…the brain CT a MONTH ago showed normal…in ONE months time, his brain shrunk.

    1. Alex

      Alcohol abuse and smoking seems caused most of the brain injury.
      People often underestimate the magnitude of problem and therefore surprised when damages accumulate.
      Sorry!

  13. The One

    Positive ANA, Lupus or something else?
    For a few years i have had many symptoms, was diagnosed with Diabetes and Celiac Disease (an autoimmune disorder) and I have symptoms such as bone/joint pain, tiredness, fatigue, back/neck/shoulder pain, headaches in the back of the head, anxiety, depression, a facial rash that seems to worsen with sun exposure, heat and sun sensitivity and I had a few Lupus tests about two years ago that came back negative.

    These symptoms and many others seem to come and go, such as the neck pain it will come and go in intervals of few weeks. Now I had a ANA test done two weeks ago because my rheumatologist was concerned that Lupus is still a possibility. I had to go get my results on Tuesday but from a different doctor, a general practitioner and seemed to not know anything about medicine.

    She told me all my tests were negative and i did not believe it, so I asked her if she was sure so she sowed me the results on the computer screen and I saw several positive or “high” tests. One of them was ANA, it was possitive, so i asked her what that meant and she said ‘its nothing, its a nonspecific test, dont worry about it”… is this true? should I not worry about it? and if it is so not important, why did my rheumatologist order it in the first place?

    Can you have only ANA test positive and no other antibody for lupus and still have Lupus?

    1. mgunnycappo

      Let me actually answer your question. An ANA test is a non specific test that shows the existence of an auto immune disease. It isn’t specific for Lupus. That being said, there are other tests for Lupus that can rule Lupus IN but not OUT.

      An Anti-DS-DNA, Anti-RO, Anti-SM are all tests that will help in a Lupus diagnosis. About 30% of people with Lupus will test positive for these tests. If you do test positive then you have Lupus. If you test negative you can still have Lupus.

      With your symptoms it sounds very much like Lupus. I would get copies of all your lab work and research it on the web. Then go to your doctor with specific questions about each positive result. Talk to them about your symptoms and ask what they think it is. Don’t take, “I don’t know” for an answer. If they say this then tell them to find out.

      Unfortuately, there are a lot of doctors out there who are uneducated about Lupus. Many of them just pass you on to someone else or worse yet, explain your symptoms away. You’ll have to be a thorn in their sides until you obtain your diagnosis. Whether or not you have Lupus, you need to be an advocate for your own health care. Good Luck to you!

  14. fw

    I think I have lupus?
    Wondering if I might have lupus. Few reasons this came to mind.

    Scratched my head, and found blood under my nail. Ended up I had some bumpy scabs, and of course I googled it. One of the things that came up was lupus, which has crossed my mind in the past at other times. I am 23, and when I was in college I developed one winter an odd rash that has small spots on my legs. I attributed this to being out in the cold, as I almost always have a rash on the least protected areas (such as legs only covered by jeans). The nurse said she didn’t know what the spots were, and said it looked like my immune system malfunctioned. I was prescribed a drug to basically restart my immune system, and my rash/random spots went away, and I haven’t seen them since. A year or so later I was woken up nightly with severe charlie horses, and that lasted for about a month. Then they went away quickly.

    Recently, I find myself walking and every so often (once a week to sometimes very often- few times a week) I find my knees or ankles have extreme unprovoked pain. I have to sit down or sometimes walk through it, and eventually it goes away into nothing. And I have started to have pain every time I am washing dishes. Maybe I am holding the dish too firmly, but it doesn’t seem right.

    Please give me some feedback as to what this might (or might not be).

  15. fw

    I think I might have lupus?
    Wondering if I might have lupus. Few reasons this came to mind.

    Scratched my head, and found blood under my nail. Ended up I had some bumpy scabs, and of course I googled it. One of the things that came up was lupus, which has crossed my mind in the past at other times. I am 23, and when I was in college I developed one winter an odd rash that has small spots on my legs. I attributed this to being out in the cold, as I almost always have a rash on the least protected areas (such as legs only covered by jeans). The nurse said she didn’t know what the spots were, and said it looked like my immune system malfunctioned. I was prescribed a drug to basically restart my immune system, and my rash/random spots went away, and I haven’t seen them since. A year or so later I was woken up nightly with severe charlie horses, and that lasted for about a month. Then they went away quickly. Recently, I find myself walking and every so often (once a week to sometimes very often- few times a week) I find my knees or ankles have extreme unprovoked pain. I have to sit down or sometimes walk through it, and eventually it goes away into nothing. And I have started to have pain every time I am washing dishes. Maybe I am holding the dish too firmly, but it doesn’t seem right.

    Please give me some feedback as to what this might (or might not be).
    Googled, and found this:

    “Cutaneous (or skin) lupus, which usually affects only the skin and is characterized by a rash on the scalp, legs, or arms. The rash has sharply defined patches and can be raised from the skin.”

    This describes (and the pics looked) like how my legs and arms did when I was in the cold. When warmed up though, they eventually went away.

    The rash I was in the doctors office for was just little blotches, at their largest they were the size of abt a pencil eraser.

  16. meow!

    i match symptoms for lupus but ANA is negative?
    Here are my symptoms

    Joint pain/ joint cracking
    muscle pain and weakness
    occasional butterfly rash
    nausea in the morning/vomiting sometimes during attacks
    tingling and cold fingers
    fatigue
    hair loss
    memory problems
    shaky hands/ sometimes unable to write and hold pen
    insomnia and leg jerks in sleep
    pain in chest and inability to breathe during attacks
    head feels hot sometimes

    I had four attacks –> June, August, October, and December of this year.

    My ANA came back negative and my doctor says it’s not lupus or any other autoimmune. What should I do now?

    1. ShiLovely

      I started having lupus-like symptoms when I was about 14 when I was 15 my family doctor ran blood tests to check my ANA and it came back negative. It took four more years before I finally had a positive ANA and ultimately a positive lupus diagnosis. Autoimmune disorders are tricky to diagnose. Try and hang in there and keep reporting back to your doctor any new symptoms and if you feel like you are not getting any help with your current doctor–Find a new one! I saw a couple dozen doctors before I finally found on that was able to really treat me. Good luck and hang in there!

  17. sunshine_punk

    is this story of mine at all good?! :D?
    Intro.
    I never really had it all you could say. Most kids worried about wearing their brand named clothes, having amazing cars, and having the perfect boyfriend/girlfriend. Personally all i worried about something much bigger. All I want to do is live.
    My life was going great until i hit 14. My parents were constantly fighting, for reason i still don’t know. They were at each other throats. So much, I thought eventually the neighbors would call the police. I had to be like a mom to my sister Lilly, 12 (who was also my best friend), even though she was only 2 years younger then me, since my mom would blame us for all the arguing.
    One morning after 2 agonizing years of hell my dad walked out on us. My mother became depressed. She saw a shrink 2 times a week and hardly got out of bed. and that put an enormous amount of pressure on me.. More then was already set on me. The pain of my dad leaving was pretty awful. After he left, a new burden began to show its ugly face.
    Oh i guess i never really introduced myself properly. My name is Kailey. I’m now 16 years old, and im dying.

    Chapter 1

    “Breathe in and out deeply,” the nurse Sally said as she held a cold stethoscope to my chest. I did as I was told and answered a text message from Mona at the same time.

    “Come over tonight? My mom’s out, and we can cook something strange! bring Lilly along!” -Mona.

    “Yeah sounds great! I have to ask my mom first of course. But you know her. So I will probably be there. What time?” I replied quickly, and put away my phone as the doctor walked in.

    “Hello, Kailey. How are you today?” Dr. Highman asked.
    “Same old. Same old. I havent been having as much axiety attacks lately.” I said checking my phone seeing if the was a new text yet.
    “So, the pills are working then huh?”
    “Yup,” i hiccuped. “Excuse me, but its not a thrill having to add another pill to my daily million of them.” i said sarcastically.
    “I understand, but having Lupus, is a differicult disease to control.” He said while writing something down on his clipboard.
    Lupus is the common name for systemic lupus erythematosus, also called SLE. Common symptoms include feeling very tired and having joint pain or swelling (arthritis), a fever, and a skin rash. Over time, some people with lupus have problems with the heart, lungs, kidneys, blood cells, or nervous system. I have it really bad in my nervous system, my joints, and my lungs and heart. Not to mention, my shortness in breath and how im tired often, and get feverish every once and a while. I guess having it since i was 4 has something to do with all the symtoms.
    I nodded my head in agreement.
    “So hows your mother doing? I noticed she isnt here,” he looked up at the empty chair next to the examination table, “again,” then at me.
    I looked away from his gaze and answered, “Well she doing fine i guess, still doesnt get out much. but im making sue she eats properly and takesher meds. Don;t worry about it doc.” I smiled and looked up at him again.
    “Well that good. dont forget, her appointment is…”
    I cut him off, “Next week on tuesday, I know. I know.” I rolled my eyes, upset that i was 16 already and now had to drive her everywhere.
    He nodded, “Ok. Well, miss. Kailey, you seem to be just fine, just keep up everything your doing. and here are your medication refills.” He scribbled on a peice of paper and handed it to me.
    I looked at it and just slowly nodded.
    “See you next time.” He walked out of the room.
    I sat in the room for a while. I felt my pocket vibrate and took out my phone.

    “hmm, around 5? you guys can spend the night too, if you want.” -Mona.

    “Yeah ok sounds good. just got out of the doctors right now. heading home.” Send.

    I got off the table and walked out of the room. I was heading out the doctores office, but then turned into the restroom. i set my phone on the sink and unzipped my pants and sat down. i didnt even have to go. My eyes felt droopy. I got back up and zipped my pants back up, put my phone in my pocket and turnined on the sink. I washed my hands then rinsed my face. I looked at myself in the mirror for a while. My auburn hair next to my ears were wet from wetting my face. My hazel eyes were bloodshot from my lack of sleep last night. I rinsed my face once more, dried it off and walked out of the restroom.
    I opened the door to my old beat up mustang, and sat down.

    “Oh? how’d it go?” -Mona.

    “Ya know.. The same.” Send.

    “Nothing wrong?” -Mona.

    “Nope everythings A-OK. Well for me anyway. haha” Send.

    “Thats good. =] Are you nervous about starting junior year?” -Mona.

    I started the car and pulled out. I drove just down the road then stopped at a gas station for some snacks.
    I walked in the door and swear everyone stopped and looked at me. But I’m probably just paranoid. i walked around and grabbed a bag of hot fries, a 2 liter coke, a bag of chocolates, and some macrowaveable ravioli’s. Yum, what a lunch.
    I paid

  18. Phaylen

    Have you Had a reactivation of Epstein Barr?
    5 years ago i suffered one of the worst cases of mononucleosis my Doctor had ever seen. Swollen neck/lymph nodes, terribly sore throat that required ice packs, chills and high fever. I was better in about a month and resumed normal activities.

    1 month ago (October 24th) I started feeling a pulling in my neck, like a tight muscle, over time this grew into a full on stiff neck with swollen lymph nodes from behind my ears to the back of my head to my collar bone. hey are palpable under the skin in places, soft, movable, but definitely swollen and my neck feels tight in the muscles. I went to the doctor and he said I had an ear infection and put me on Amoxicillan.

    A week and a half later I was no better and went to the ER and they told me i had a virus, sending me home with Augmentin, claiming I should let it run it’s course.
    I went to the internet for research and while I don’t believe i had mono again because reactivation of it is so very rare, plus, I don’t have a fever or a sore throat- just these swollen nodes and pain in my neck. I went back to the doctor and asked to be tested for Epstein Barr Virus.

    I got a call the following week and the nurse said “You Labs are back and consistent with reactivated Mono. Get lots of rest.” I had questions such as why it would reactivate with fewer symptoms, and how long i could expect these swollen nodes and neck pain to remain since it had already been a month… they didn’t have the time for me.

    My EBV test reads as follows

    Clinical Situation IgG-VCA EBNA EA IgM-VCA
    ————————————————————————————
    No past infection – – – –
    Acute Infection + – + +
    Convalescent Phase + + +/- +/-
    Past Infection + + – –
    Chronic of reactivated
    Infection + + – –

    My epstein Barr Panel showed two High Counts.
    EBV (VCA) Ab, IgG 936
    EBV Nuclear Ab, IgG 243

    Now, given that it is rare for people to get mono twice, and if they do it is usually WITHOUT symptoms or due to a suppressed immunity (Like Lupus or Arthritis) I went searching further for answers.

    Because i have had a small rash on my chest at the center of my breastbone that is occasionally itchy, as well as what had been diagnosed as dermatitis around my scalp and upper back- My symptoms seem to correlate with the dreaded word no one wants to hear: Lymphoma. It also seem EBV has a direct link to some Lymphomas.

    I called back my doctor and demanded a referral to an ENT and a CT scan of my neck- I’ve had chest X-rays previously due to a light persistent cough and they are normal.

    I’d like to ask Anyone who suffers from long term EBV effects if they experience swollen nodes and stiff neck for more than a month years after initial mono infection. Am i putting the car before the horse or being logical here. The concept of cancer frightens me to death, though there is no Lymphoma in my family.

    Do you EBV sufferers feel the same way? Do you have chronic swollen nodes and a stiff neck for more than 4 weeks at a time without other traditional mono symptoms?

    1. Doctor J

      Hi Phaylen. I am NOT an expert in Epstein Barr infections. However, I have a substantial interest in the role nutrition plays in the functioning of the immune system – which can play a significant role in controlling Epstein Barr infections and risk for various cancers.

      What I am offering here is merely conjecture – an educated hypothesis. There is very little specific scientific research in the area of Epstein Barr virus infections and nutritional status. What research is available suggests the following possibilities:

      1) Vitamin D deficiency is very common (an epidemic) and its effects on the immune system can impair the system’s ability to fight viral infections such as Epstein Barr virus (EBV). Have your doctors tested your blood levels of 25-hydroxyvitamin D? This is the proper test for Vitamin D status. You want a number in the “high-normal” range to be healthy.

      2) Zinc status is a major player in immune system health. Low zinc intakes from normal diets are very common. Even marginally inadequate intakes of zinc can impair immune function and limit the immune system’s ability to contain a viral infection. Again, have your doctors tested your zinc status? Have they measured ANYTHING about your overall nutritional status?

      Below are a few links to scientific papers that support the comments I have made here.

      Best wishes and good luck.

      I have added a couple of additional papers on zinc. They are fairly technical but, they provide a solid scientific basis for the potential relationship between your zinc status, immune function, and risk of viral infection and cancer.

  19. Olivia

    serious ANXIETY/PANIC disorder. Im 14. HELPP
    I’ve been stressing out a lot this year.

    Which caused me to believe that i had ‘scabies’ when I woke up one morning to feel as if tiny bugs were crawling all over me. I thought i was gonna go insane. I kept “self-diagnosing’ myself with one infection after another, after another. This happened for about a month. After i started to feel more calm due to like tree oil baths, creams, etc. the crawling sensations stopped. I noticed that anytime i felt irritated, annoyed, mad, sad, stressed i start to feel a little bit of crawling/tingly sensations and pinpricks, chills, goosebumps, rashes, and trouble breathing. Even people yelling or even my own thoughts gives me those feelings for no reason.

    I also get very light headed, dizzy and lose my train of thought very easily now. AND 3 people in my family do have LUPUS (all females: my 2 aunts and my cousins).

    I’ve been starting to freak out about every single thing lately. (ex: what are all these lines on my palms?!? how come it looks like this?!)

    I’m not a person for meds. I just want to know how i can control this. I also suffer from agoraphobia as well.
    and paresthesia.

    1. bobby0512

      I used to feel the same way. Please take this into consideration. It worked for me, although I am not you.

      I had overwhelming anxiety. It turned out to be my use of Splenda. Yup Splenda. How could something that taste so good, be so bad?

      I like to say sucralose, not Splenda, because that is what Splenda is. And it is in a lot of stuff. Sadly, the package doesn’t have to say Splenda or diet to have sucralose in it. You have to read labels. So, you might be using it and don’t even know it!

      Sucralose is poison. It ruined five years of my life. I had a laundry list of medical problems while taking it, including overwhelming anxiety, depression, mood swings, insomnia, gastrointestinal issues and more.

      Go ahead, google: anxiety splenda or anxiety sucralose or insomnia splenda or insomnia sucralose

      The slogan, “Made from sugar…” is very misleading. Splenda might be made from sugar, but it is far from sugar. The resulting chemical is an organochloride (chlorocarbon). Organochlorides are typically poisons.

      carbon monoxide – made from oxygen so its like a breath of fresh air

  20. Sassy Stasia

    Confused about Fibromyalgia & Lupus?
    Ok, here’s the whole story. I had Acute Lymphocytic Leukemia when I was 4 until I was 7. I recovered, had two kids yada yada. Ive been suffering from pain in my joints, both my arms going numb all the time, slight hair loss, sharp shooting pains in my head, ringing ears, rash on my face, swollen hands and feet, TMJ, “blood inflammation, light sensitivity and severe migraines more than 3-4 times a week regardless of the circumstance. I went to TWO different docs so far. A Rheumatologist and a regular MD. One said he thinks its Fibromyalgia (and I know what that is because i did a TON of research) and the other says i have “inflammation in my blood” and some other symptoms “not like” that of Fibromyalgia. He said Lupus and/or Rheumatoid Arthritis could be to blame but Im so confused as to how they are going to diagnose me properly without just sending me out with a “general pain disorder” Im 22 years old, this isn’t normal. I lead a pretty healthy lifestyle and Im not overweight so “general pain” just doesn’t make sense to me. I know you’re not docotrs but Im just looking for some advice maybe from people who have one of the two and what they think my outcome will be. I know its kind of difficult to answer but any help would be greatly appretiated. Thanks so much!

    1. victoria05202000

      Well, autoimmune diseases can overlap and the symptoms for many are the same. It is tough to diagnose and it is VERY possible you have both. I was diagnosed with Lupus and Sjogrens Syndrome 4 years ago and recently within the last year the doctors “think” it is just Sjogren’ s Syndrome. It is hard because Sjogren’s mimics Lupus, rheumatoid arthritis, MS, chronic fatigue syndrome, etc.

      I know it is very frustrating when your doctors don’t even know for sure. Have you tried a university hospital? I have found that they are on top of everything and seem to be the best of the best because they are teaching future doctors, surgeons, and specialists.

  21. Carly H

    Lupus and working full time.?
    Hi there. I am currently in the process of being tested for Lupus. I have a lot of the symptoms (muscle/ joint ache and swelling, headaches, depression, low blood platelets, chest and back pain, extreme lethargy. Irritability etc. And blood test came back weak positive) but no rash. I have been researching Lupus on the net trying to get my head around it all. One question I have yet to find the answer to is: Is someone with Lupus able to work full time? I have debts and normal everyday living to pay for and the thought of not being able to earn a wage is really freaking me out. Any help on this would be much appreciated. Thanks in advance.

    1. victoria05202000

      Yes you can work full time, Lupus can affect people differently. Some have very mild symptoms and others have it where it is impossible to work. It is a tricky disease and no two people are alike.

  22. Anonymous

    DOCTORS PLEASE HELP! I have EBV and my dr. said I will most likely develope Lupus> What should I be expecting?
    I am a 14 year old girl and I have Epstein-Barr Virus and I was told that I will probably develope lupus. Many symptoms I have had are — a red rash that is on my cheeks and nose and it is always on my face just its not always bright red but I can see the outline if i look really close. Here are some other symptoms I have had since July if I remeber correctly. For starters I have the hardest time remebering things, depression, really hard time consintrating, 2 periods of where it hurts when I take deep breaths or move my head, I can’t sit criss-cross anymore because it hurts my knee’s, I have several swollen lymphnodes that come and go except the one behind my ear that never changes, I have musle weekness i think because I can’t even hold a book out to someone for more than 2 seconds before my hands and arms start shaking. Also, my hands and feet are always cold but my legs are always really warm and lets just say you can feel the heat off my legs through my pants. Also sometimes I have just plain out muscle aches that move from my leg to my arm and so on. I think my parents think I am faking it because I never have a fever. I don’t want to tell my doctor either cause he might think im faking. Really need some advise or something I feel so helpless and down. Does this sound like I have just convinced my self that its lupus or is it just in my head. Please answer with something useful and you will get some free easy points. I would wait until im 18 to go and talk to my doctor but it is so frustrating not being able to consintrate in school and its so hard to read because I forget things so easily. Also, track is going to be starting soon and I don’t know how I am going to handle this with sports and school work plus being so tired. Please realize that all my symptoms don’t come at once and they aren’t an everyday thing its on and off. Thanks for the help 🙂

    1. Suzan K

      As lupus does not really have any consistent or real treatment in conventional medicine, I hope you will not get it. If you think the cause was that Epstein-Barr Virus, why not to fight against it?
      –Have always fresh air in your house
      –Be on a kidney diet, avoiding too much salt and proteins
      –eat a lot of raw garlic with food
      –Often use vit C to strengthen your natural immunity
      –Eat a lot of fruit, avoid sugars, artificial sugars like aspartame splenda are worse, and avoid high fructose corn syrup.
      –Avoid all kinds of flu shots or other shots which can affect your immune system, as lupus is an immuno allergic disease.

  23. Sassy Stasia

    I think I might have Lupus?
    Ok, so Im definitly NOT a hypocondriach just to throw it out there. Ive suffered from severe widespread pain since I was oh Id say, 13 and I am fatigued to the point of falling asleep driving, Pain in my chest, and sharp stabbing pains in my head andl lots of other things. Im a two time leukemia survivor so it is very possible to have an immune deficiancy. I lied to my doctor about the rash on my face because I was able to cover it with makeup and he didnt notice it. They did a blood test and said the results were “somewhat normal” WTF. Please advise. I know I definitly need to consult another doctor just to be safe.
    The rash is not very raised, but I notice when ever im not wearing makeup its there. Its on my cheeks and spreads across my nose. It doesnt really hurt or anything. Im going to a rheumatologist on the 26th so im going to write a list of all these things and give it to the doc. Thanks everyone!

    1. mgunnycappo

      Lupus means you have an over active immune system not a deficient one. Are you sure this isn’t related to your leukemia? What blood tests have you had done? Unfortunately, blood work can only rule Lupus in, not out. You can still have Lupus even with negative blood work. Some of the symptoms you have sound ‘lupus-like’, but since you’ve had two bouts of cancer I would look there first.

      If this isn’t the problem then I would consult a rheumatologist, a doctor who specializes in the treatment of Lupus. As far as the rash goes…you say it’s on your face but what kind of rash is it. Also, how old are you?

      EDIT: Your rash does sound like a typical malar rash (butterfly rash) associated with Lupus. Make sure the doctor does a full Lupus blood panel. Good Luck to you!

  24. Jamie

    can anyone help me with ideas of what these symptoms could be from?
    I have a friend who has different types of symtoms. She has stomach pains, head aches, confusions.. she says things and doesnt know why. She complains of feeling like shes been hit in the head with a bat. She is dizzy and feels disoriented. She has weight loss, fatigue, and a weird rash.. she describes it as red lines… she thinks shes bleeding under the skin. She has also had discoloration of her toes and knees.. complaining that they turned purpley blue when she was cold. She is also completley consumed with her symptoms.. and refuses to talk about anything else. She does not go out.. she only sits around and feels depressed because she believes she is dying. Her ANA count is a 1280. She said she was tested for lupus and it was ruled out. Do you have any idea what this could be

    1. moselkin

      Her ANA count strongly suggests an autoimmune disease. There are many under that category but Lupus is just one of them. Her discoloration of her extremities is classic for Reynaud’s syndrome, a common phenomenon in autoimmune diseases such as Lupus and scleroderma, and many other vasculitis conditions. A vasculitis sounds likely, and many overlap making it difficult to poinpoint a specific diagnosis sometimes. But it is real and don’t doubt her symptoms unless she is for sure making it up; how would you know? Depression and worry is common in these conditions especially in a condition that hasn’t been diagnosed. Also, ANA is typically not reported as a straight number but rather a ratio. Your friend needs to see a Rheumatologist.

  25. Asia ♥

    Please help me figure out what is wrong with me… Could it be Lupus?
    I’m trying to figure out what I have. My doctor is terrible and doesn’t believe anything I say. All he does when I ask for a test is say “You don’t need that test.” He thinks everything is all in my head for some reason but it’s not. I’ve been feeling ill for about 4 years now.

    My symptoms are:

    On and off loss of appetite and nausea.
    Extreme fatigue.
    Dizziness (Once it felt like the whole room was spinning – it was terrifying.)
    Sensitivity to light (Camera flashes make me feel nauseous.)
    Weakness (It’s hard to hold on to things etc.)
    My toes turn purple on and off (They look like Zombie toes….)
    My cuts don’t heal well and almost always leave a scar, even small cuts.
    Hair loss (Alopecia areata)
    Pale skin
    Anxiety (I shake alot when I’m nervous)
    Shortness of breath
    Change of eye sight (I can’t focus on things as quickly and the back of my eyes feel strained)

    I just found it weird that Lupus symptoms include the purple toes and hair loss…no other disease has both of them together…

    and I have 2 autoimmune disorders, so I’m thinking it must be an autoimmune disease I have

    The only thing is I don’t have joint pain…my knee’s do hurt sometimes but not enough to bother me. And I’ve never had the common “Butterfly rash” that some people with Lupus have.

    Everyone thinks its Diabetes but I’ve been checked for that.

    Could I have Lupus without the pain?

    1. Luv2smile

      I honestly can’t tell you what you have because I am not a doctor, however I am a mother. I would go to another doctor till you get answers. 🙂

  26. LoveMe!

    does this sound like lupus? should i go see a doctor?
    Ok plz help! I’m 17 and I’m a severe hypochondriac, I was looking up the symptoms to lupus and before then I never had any pain but my thighs ache but I can make it go away when I focus on something else, I don’t have any joint pains, fatigue, rashes or anything like that, but the pain in my thighs is very mild. My mom said I’m making it up in my head because before I was soo true I had glaucoma,enlarged heart,anuersym, brain tumor, cancer, and I’ve been through every test to show I didn’t have any of those and then as soon as I found out it was in my head I felt fine. Could this be the beginning signs of lupus? Please help!

  27. 27 Yr Old Married Guy

    Crohns, Celiac, Lupus, Hypothyroidism????? Help!?
    I started to have mental fogginess issued back in 2004, and remember having a general feeling of not feeling well. I can’t really remember exactly what it was like back then though. By the time 2006 came along, my issues had progressed pretty rapidly. I…

    – Had mental clarity issues.
    – I would get up to go to the grocery store and get in the car and realized I had forgotten where I was going.
    – I would bruise easily. I had diarrhea.
    My stomach was extremely bloated.
    I could barely carry on a conversation.

    After a few failed attempts at the doctors, I DIAGNOSED MYSELF with Celiac’s disease. Immediately, I went on a gluten free diet. After 6 months of being gluten free, I did notice improvement in some areas. But I never got to feeling 100%. Not even 60%.

    So I continued my research…

    About a year ago, I truly thought I was dying. I had…

    It feels as if all my stomach organs are swollen along with my head
    I feel like I have a fever, and my skin is hot to the touch (but no actual fever)
    Severe mental fogginess
    Underarm sweating
    Diarrhea
    Severe grogginess when waking
    Severe bloating
    Bruisings
    Pressure headaches (get migraines on occasions with blurred vision, I think unrelated)
    Swollen and puffy eyes
    Got sick easily
    Cold hands and feet
    Shiver in cold weather
    Fatigue
    Major skin issues. Pustuals on the hands and feet, rashes, etc. However I was able to get that at bay with very very mild soap.

    I knew at this point, I had to make a change. I cut everything out of my diet and slowly reintroduced things. At the end of this test, the only thing I could eat (at not perfect at that) was fruits, veggies, millet bread, sunflower butter (peanut butter substitute). I stuck to that diet for about 6 months and really better but dropped to 140 pounds. I went from a 1 out of 10 to a 6. But then started noticing that I was lacking nutrients and was getting other symptoms for not being balanced nutritionally. I have added a few things back in with a major herbal supplement system that I have created to help assist.

    Right now my diet is this…

    Food:
    Fruits
    Veggies
    Millet bread
    Sunflower butter

    Supplements:
    Garden of Life meal shake with probiotics and enzymes
    Activated Charcoal (Draw out poisons)
    Aloe Juice (Digestion)
    Basil (Digestion)
    Cayenne (Immune Booster)
    Cilantro (Detox)
    Cinnamon (Anti-Inflammatory)
    Coconut (Anti-Viral, Anti-Bacterial)
    Flax Oil (Anti-Inflammatory)
    Garlic (Anti-Viral, Anti-Bacterial, Anti-Fungal)
    Ginger (Anti-Inflammatory)
    Ginko (Blood Flow)
    Ginsing (Digestion)
    Lime (Anti-Biotic)
    Mushroom (Cancer inhibitor)
    Peppermint (Digestion)
    Rosemary (Blood Flow)
    Tumeric (Anti-Inflammatory, Cancer Fighter)
    Lemon Water

    I have seen certain improvements with my herbal remedy, but nothing too major.
    I thought way back that it was celiac’s. Deleting gluten from my diet helped, but did not fix the problem. My current research makes me feel like it is either Crohn’s or something similar, or Hepatitis C. I have read that the two can be confused. I have recently been tested through a private company for Hep C and it came back Negative. What confuses me is that I do not have stomach pain like most Crohn’s patients do. However, I am pretty sure I have an ulcer. I do have a sharp pain in my stomach that comes and goes at times. And the biggest issue for me is mental clarity and this swelling fever I deal with. I can deal with irregular bowel movements, but the way I feel is unacceptable. I have a copy of blood work I had done a year ago when I was feeling my worst, and I noticed that they didn’t test for Hypothyroidism? Do these symptoms sound like this could possibly be a culprit? Lupus?

    I am probably the healthiest person you know. I don’t drink, I don’t smoke, all of my diet is natural organic from the earth foods, herbs and minerals. I should not fee the way that I do.

    Please help!

  28. Becky

    Hives that spread head to foot?
    In the past week, I have had 2 episodes of hives. The reaction starts the same, itching on the neck and scalp which eventually yields bumps, sunburn-like redness, swelling of the face and ears, and ear throbbing. The rash continues to spread down my body, literally moving down my chest and back, then to my arms and legs. Within about 30 minutes, I go from noticing a little itching to having hives all over my body. The reaction lasted about 5 hours each time after benadryl. The first episode I went to my dermatologist and was diagnosed with scombroid poisioning (food poisoning from fish). However, upon having the reaction again, my dermatologist thinks this was misdiagnosed and that I am having an allergic or autoimmune reaction. No known allergies, but I do have ulcerative colitis, crohn’s, and history of lupus in my immediate family.
    Has anyone experienced hives that move so quickly and in such a systematic way?

  29. Dani L

    Hodgkins lymphoma or lupus?
    I know, I know. Go to the doctor. I have.

    My general practitioner thinks I’m a hypochondriac. I think I will be going to a different doctor for a second opinion, but I would like to hear some opinions. Most of these symptoms have come on in the last few weeks all together, so I’m trying to put two and two together. At first I thought I was having much worse pain from my collagen disorder, Ehlers-Danlos syndrome, but with the hair loss, I have gotten worried.
    Sorry about the novel.

    1. In 2006 I was cheated on and given mononucleosis from my boyfriend. Ever since the glands in my neck have been swollen. Lately they have gotten even more swollen and cause me discomfort in breathing, eating, drinking, and turning/moving my head.
    2. As of lately I have been losing chunks of hair. I wash my hair twice a week, as it is (was) really thick and curly. In the shower I will lose easily 5 or 6 chunks of hair, then out of the shower, brushing (nothing intense), blowdrying, etc. I lose several more chunks. This has been going on since the last 2/3 months and I am worried I’m going to run out of hair.
    3.Lately I have been breaking out in rashes on my face, arms, chest, and neck. They go away after about 10 min. They are warm to the touch and splotchy.
    4.I have been having night sweats and chills the last few weeks.
    5.I have been getting itchy several times a day. I’m not sure if it’s the weather or a symptom of something else, as where I live it is very dry and very cold.
    6.I have been extremely fatigued and don’t feel rested after 8 hours of sleep.
    7.My bones and joints are very pain, more than normal (I have a collagen disorder which gives me bad joints as it is, but it’s been much worse)
    8.My fingernails started clubbing this summer and is getting worse and worse. My toenails now, too. My toenails have also been turning blue and purple for no reason, even when I’m not cold.
    9. Sharp lower back pains, started at night a few weeks ago.
    10. I have had this weird numbness, starts in my fingertips and makes its way down my hand and to the outside of my forearms.

    Thank you.

    1. Skylark

      One of my favorite friends had Lupus, but I’m still only vaguely knowledgeable about it, and I”m unfamiliar with Ehlers-Danlos syndrome. I do know about Hodgkin’s Lymphoma because I am now in remission for it. Obviously, I can’t diagnosis you based on a Y!A question, but from what you’ve written here I don’t think you have it.

      It’s true that you do have some of the symptoms of Hodgkin’s Lymphoma, but those same symptoms could be an indication of another problem (perhaps one far more benign), so I wouldn’t become consumed with worry about the possibility that you have it. Many people with HL are asyptomatic and just go in to see their GP when they notice a lump under their arm or in another area. Since having mono puts you at a significantly higher risk of getting HL, it seems like the GP would have taken you seriously and run the necessary tests to rule it out. If he / she already did that
      and everything came back fine, I would still get a second opinion if you’re concerned, but would consider it to be unlikely. By the way, you can get mono from many sources, so it wasn’t necessarily from your boyfriend cheating. I got it at age 13 after going to two camps that summer, and it was probably due to sharing drinks with the other kids rather than the one boy I kissed. It’s transferred from saliva.

      You might want to consider seeing an endocrinologist and having your thyroid levels checked. Many people, especially teenage girls and women, have an under active thyroid (hypothyroidism), and it can cause a myriad of problems such as fatigue, dry skin, hair loss, numbness in your hands and feet, lack of mental clarity, muscle cramps, and an irregular cycle. My mom has it (and I have an overactive thyroid!) and treats it by taking one pill every morning. Supposedly Synthroid, one of the most popular medications for hypothyroidism, is in the top five most prescribed drugs in America after Prozac and Viagra. All you need is a simple blood test of your TSH levels to determine if you have a thyroid issue. PCOS and other hormonal imbalances can also cause a lot of the symptoms you described. A infection could be causing the swollen glands in your neck.

      Your stress levels, environment and diet are all relevant factors. Not getting enough calories or the proper nutrients can lead to hair loss and low blood sugar levels, which in turn can lead to night sweats. Could the clubbing be related to the collagen disorder? The rashes could be caused from stress or from an allergy. I get a few hideous eczema spots whenever I travel somewhere cold, and have learned to take much shorter showers, avoid all products with Sodium Lauryl Sulfate (a common skin irritant), and generously lather on body butter.

      Book an appointment with an endocronoglist or a neurologist to have a few more tests done and hopefully gain some answers and a peace of mind. In the meantime, make sure you get an adequate amount of sleep (oversleeping can make you tired, paradoxically), eat a healthy diet with plenty of protein, and try to get a little sunlight and exercise every day. Also consider taking a B vitamin with folic acid. Use a gentle baby shampoo on your hair then a good conditioner. Make sure your products don’t contain Sodium Lauryl Sulfates. Gently run the comb through your hair while the conditioner is in to detangle it. Never rub a towel on your head – pat it dry instead. If you’re going to use any heating tools first spray on a heat protector. Try to let your hair air dry as much as possible. If you’re really concerned about the loss you could try out Rogaine for women. I’ve never used it, but I’ve noticed it in the hair product aisles of drugstores.

      Take good care of yourself. Best wishes!

  30. Laurel

    Symptoms for 7 months, no diagnosis. Excessive hair loss, muscle pain, swollen nodes.?
    Hello!

    I`m a 19 year old female who`s been experiencing a series of symptoms for the past 7 months that doctors have been unable to diagnose.

    Firstly, my hair has been falling out and as you can imagine, this has been very emotionally stressful. Since about 7 months ago, I`ve lost more then 75% of hair from all over my head. The hair loss is not patchy, but has been thinning all over. I used to have long, extremely thick and beautiful hair, and now its almost gone. The hair loss is not localized to my head as I’ve even noticed that the hair on my legs and in my pubic area have barely been growing back after shaving. I did see a dermatologist and he said that I must have an underlying autoiumme disease that’s causing the hair loss. He suspects lupus or a related disease, but as of yet, blood tests have shown no irregularities.

    Since around the same time my hair has been falling out, Ive noticed that the lymph nodes in my neck have been swollen. Sometimes they are red and sensitive (especially after drinking alcohol or smoking) but usually they’re painless. I’ve also been experiencing a lot of joint/muscle pain and stiffness. Some days it gets really bad and I can barely move, even typing/writing is difficult because the muscles in my hands are so stiff. I feel like every muscle and joint in my body is inflamed. I’m only 19 and I’m having as hard of a time moving around as my 55 year old mother with MS.

    Lastly, (and I’m not sure if this is related at all) my skin has been really dry and especially itchy. I’m not sure if I’ve noticed any rashes, but I have noticed some redness (light red spots) randomly on my skin.

    My family doctor did a thorough blood analysis and everything came back normal. There is no sign of vitamin deficiency, my thyriod was normal, no diabetes, my blood cell count was normal, kidney/liver function was normal, and I’m clean for STD’s/STI’s. I really don’t know where to go from here and im terrified that if I don’t find out whats wrong, I’m going to go bald.

    Does anyone know what these symptoms indicate? Any advice as to what I should get tested for/where I should go from here would be great.

    Thank you in advance for the help!

    1. Moped Mama

      my endocrinolgist , said i had sluggish thyroid normal levels, my VIT D was dangerously low my vit b 12 was low i have hypo thyroid symptoms normal thyroid I HAVE goitors never knew it until i choked and had ENT do a nasal scope, so follow my advice my endocrinologist put me on synthyroid , 37.5 mcg works for me VIT D and VIt B 12 also AVOID wheat products you could be celiac syndrome try eatting oatmeal rice potatoes NO wheat pasta buy rice and corn pasta drink V* 8 splash change your diet

  31. Kimberly

    What is my diagnosis? Please help.?
    About a month and a half ago I went to my Gyn because I was having unbearable head-aches and extreme amounts of hair loss, it was the first time I’ve seen her and she wasn’t too understanding or concerned, but she ran tons, (21 test tubes) of blood work on me. I have also had 3 previous miscarriages. As time progressed I began having bad muscle and joint pains, night sweats and fever, I’ve been so moody I can barely tolerate myself, and I just feel completely disoriented from my body. My blood work came back, and I had a positive ANA test. My doctor sent me to an Oncologist who specializes in Hematology. He diagnosed me with an auto-immune disease and wanted to chalk it up to Lupus. He also ran an MRI to see if I had a possible brain turmor. My MRI came back bad because I have braces and they weren’t able to see anything. I went to the Diagnostic Clinic in Houston this week and I have started seeing a new doctor. He is running more extensive blood work on me but I am so confused what is going on with my health.

    I am so tired all the time, my body aches constantly, and I can’t get rid of my headache. My short term memory feels like it has gone away, my nervous system is just a reck. I don’t have any skin rashes, or weight loss. I don’t know what could possibly be going on with my body. Any help would be great.

    1. fstmny4

      Lupus can be pretty nasty, and it sounds like your in that category. Its an autoimmune disease, meaning it causes the body to fight against itself. It has no specific target, but joint pains, and kidney problems are some of the main signs. I have known people who have had their lungs attacked, heart, colon etc. there are drugs available that can make most of the symptoms be alleviated. But you can never be rid of lupus, and you will have attacks from time to time. good luck.

  32. Mrs. Duck

    What could be causing such bad cold sweats?
    I thought I was simply having night terrors, possibly related to having PTSD, but now I’m wondering if something else is going on. Whereas I used to wake up once or twice a month sort of sweaty, and fearful, these cold sweats are a lot more intense. I’ve woken up every night for the last week absolutely drenched in sweat. The past few nights I’ve actually woken up at least two or three times, and I’ve actually had to change pajamas and wipe off with a towel in water, I’m literally that soaked with sweat. I’m not waking up fearful or anything either, just dizzy, cold, and drenched.

    Now it’s happening during the day! I was in class today and I started feeling freezing. Next thing I know sweat is dripping down my back, my face, my legs. I got really light headed, and felt extremely weak. I’m going to see a doctor tomorrow, but I’m just at a loss for what could be causing this! I do have an autoimmune condition as well (possibly Lupus) and I ran out of my immune suppressing medication about a week ago. Usually without it I experience an increase in fatigue, joint pain, and skin rashes. I’m on a low dose, though, so I don’t really see how these fits of freezing sweats could be related.

    Any feedback would be appreciated!

    1. mom-mom

      It’s good to hear your seeing your doctor soon. Do you have any coughing or shortness of breath, any arm, neck, jaw or chest pain? Or anything like indigestion or abdominal pain? If you do, be sure and mention it to your doctor. Just a few things that cause night sweats – tuberculosis, cardiac irregularities, thyroid problems, and especially hormonal changes if you happen to be at that age.

      /
      If you do, be sure you mention

  33. roo

    I’m 16 and have lupus…?
    I’m sure I’ll be diagnosed when I go in on monday when they get the latest blood test results in. I’ve been having a wide range of symptoms for a long time…sickness similar to the flu, arthritis like pain, head aches, fatigue, low white blood cell/platelet counts, malar, and now the erythramatosis skin rash.
    I’m glad to finally know what’s been ravaging my body and it has opened my eyes to how important every moment here on earth is. For me, this life is important in the sense that it is preparing me for the next; and I’m glad for this disease I most likely have in the sense that it has inspired me to move with a greater swiftness, to do my duty as part of the Body of Christ on earth.
    God Bless You All!
    As you can see, I didn’t really put a question…So, say what you would like…Surprise me! I’d love to just hear from some living, breathing people.

    love love love,
    R.

  34. mkay.xo

    Work went to my mothers head. (urgent)?
    this past week I broke out with the butterfly rash associates with lupus. Anytime I’m sick I always get sent to my grandmas and she makes her take a personal day. Well I’ve been out for 2 days and just relaxing but tomorrow I have a very early doctor appointment and my grandma was the one who ended up setting it up because my mom says it takes away from her children at school. She called me and told me that her kids were far to important for her to take a personal day for me tomorrow find someone else. my grandma got off but she’s a 4th grade teacher… of 20 kids. I’m her kid… and they are far more important were her words. this is happened before but it really has set In now… it hurts being told children who are not hers have more meaning then her dying 17 year old..

    1. babe

      They are not her children it is a job she gets paid for they have parents she is not to them anyway .She has sick days and personal days that she can use.

  35. Sarah

    Could I possibly have Lupus Disease? Please Help!?
    I am 13 year old female.
    I already have Diabetes and Celiac Disease , which are both autoimmune disorders. As well as nerofibromitosis, a neurological disorder.
    I have been having recurrent head pains as well as an odd red rash on my cheeks.
    I am a little fatigued and have had some leg pain.
    I realize I should see a doctor, however I am going in December, and am concerned that i may need an earlier appointment.
    Thanks in advanced!
    m y toes and feet also turn purplish too. its very strange. Not just when i stand for too long but all the time.
    sorry one more thing i have the butterfly rash most of the time but sometimes it better than others.

    1. Linda R

      Thne purple business is probably Raynaud’s syndrome.
      The butterfly rash and rosacea are easy to confuse with one another. A doc can help there. Some of us never get the butterfly rash. (Like me.)
      Joint pain and inflammation affects 90-95% of all lupus patients.

      The type of doctor who diagnoses and treats lupus is a rheumatologist. Unless you have dramatic symptoms, you should be fine waiting a month to see a doc. If you have chest pains, never fool around with that.

  36. gracesgirl

    Dr’s and Nurses Please give advice on what specialist my daughter should see?
    Back in February, my 16 y/o daughter became ill with what we thought was the flu, then began thinking mono. All tests came back negative; both quick tests and regular blood tests. The symptoms persisted for three full weeks, then subsided, would come back for a week, subside and so on.
    We thought we were in the clear but she started up again a few days ago and had to go back to the doctor today. He is puzzled, I am puzzled and I need some idea of what type of specialist she should see. At first he said a Rheumatologist…I told him that I will go wherever he feels we need to go but please consider that if you go to a specialist like that, they will look only for that one thing (he was saying possible JRA)…but now that I think about it, I wonder if he was THINKING more along the lines of lupus and just didn’t want to say that in front of her. Her lab work was coming back at first showing something viral, then he did a follow up with ANA & Sed rate, etc. She was not having a flare up at that time and all came back ok.
    Here are a list of her symptoms….
    Fatigue (she is an athlete and can’t even play sports right now, some days she can barely get out of bed)
    Headaches
    Sore throat
    Joint pain
    She does have a “butterfly rash”..sort of..it’s more of a flushing on her cheeks–not raised at all –but only during flare up
    RBC’s in her urine

    She is on Adderall for ADD (which should hype her up but she is STILL fatigued).
    So, need to know two things
    1. What type of specialist should I take her to?
    2. Can ANA & Sed rate change if the dx is lupus and she is having a flare up of symptoms?

    I am at the end of my rope here. If I just knew what I was dealing with, I could deal with it…it’s the not knowing.

    Oh…btw….in December, she suffered a pretty bad concussion. Had CT scan of her head which came back fine, no bleed. I have no idea if that could have any bearing on her present condition or if it’s just an unlucky coincidence. At that time, she was fine, she fell from about 2-3 feet in the air onto her head, neck and shoulder. She seemed ok at first but the athletic director wanted me to get her checked out. By the time we got to the doctor, she couldn’t remember anything and stayed confused for several days.

    Thanks so much for any advice!!

  37. Joyce C

    what should my niece-in-law should do?
    my niece has psoriasis and shes had it since she was 23 and now she is 43. she has two small children and does not work. she lives with me her aunt and mother-in-law. well the problem is she started getting this rash that just took of over night got really bad and she went to one hospital and they said it was just her psoriasis’s was acting up and she knew that was wrong. so she went home and had to go back the following morning because it got worse. this rash was on her hands, feet, in her mouth and painful. the other hospital took one look at her and said it could be lupus we need to admit you or you could go home and get worse and eventually die if not taken care of. well they put her in hooked her up to iv’s took blood and said they where going to take a skin biopsy. well the docs said the next day that they still don’t know what it is and since she has no insurance and no money it would be best if she just left. this hospital used to be the county hospital and everyone went there that had no way to pay. over the years they changed their policy but now both hospital has to give a patient reasonable care no matter what the circumstances. she asked well can she get some of the medication that they had her on to go home with and they asked why you could not afford it. she asked about medicaid and said she didn’t qualify. they said that her lupus test would be in tomorrow maybe and she could get the results at the health clinic and sent her out the door. i just think that the hospital did her wrong and how could they send her out the door when she is still sick with this rash that goes from the top of her head to het toes and is so painful she can barely walk. i would just like someone elses opinion. thank you

    1. Laurennn

      I dont have any information about the rash or anything. And I dont really know what the laws are like over there. But in England, all health care is free, and it is against the law to treat anybody like this. Maybe you should research about the laws put into place for situations like this

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