Lupus One Day at a Time


The Lupus Bible

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94 Comments on Lupus Skin

  1. Connie C says:

    How can something like this discoid lupus be in the intugmentary(skin) and not be in the system ? is the skin?
    not a part of our whole and including , blood vessels, veins lymph ( the skin is a living organ too) Dr’s please ansewer this for me signed worried. Plaqnil is the Tx of choice I ve been given , but other symptoms that affect my eyes and liver also manifest.

    • Linda R says:

      Lupus is a disorder of the immune system. It affects different patients in different ways. It can also change over time in the very same patient.

      When UVA and UVB light hit the skin, they alter the DNA in the cells at the surface. Lupus patients make an antibody to this altered DNA. Normal people just wrinkle or get skin cancer over time. We get rashes. When the “allergic” reaction starts it can cause rashes all over the place.

      When antibodies label something as an invader, the immune system kicks in. If the antibodies label the wrong thing, the immune system will try to destroy whatever is labeled. The other immune cells notice the “label” and surround the target, releasing chemicals to digest it and causing the formation of huge molecules called immune complexes. The chemicals cause inflammation which causes rashes, inflammation and pain.

      The immune complexes or garbage are supposed to be processed in the spleen. Our immune “garbage” carriers are also confused and a tad bit lazy. They dump the complexes wherever they want. When the immune complexes get dumped somewhere else in the body-joints, kidneys, heart, lungs, skin, etc. They cause more pain, inflammation and damage.

      Plaquenil interrupts the process of cells surrounding the targets by changing the Ph on the surface. Plaquenil is a drug that lupus patients stay on for life if they have no bad side effects. It’s not like taking an ibuprofen and a headache going away. Plaquenil must be maintained in order to do its work.

      You do not say what your eye and liver problems are. Liver problems can be caused by many things-lupus, medications, other disease. Lupus can affect the eyes, and so can plaquenil. Very rarely, patients get what is called chloroquine retinopathy. If you get your eyes checked every six months and have a “field of vision” test you will be fine. The chances are very small that plaquenil will cause damage. If it does, the damage is very, very slow. The six month eye exam will pick it up. If you stop the drug, you stop the damage.

  2. alisiacara says:

    Lupus, can a skin sample diagnose it?How long is test to results?
    my daughter has a rash on her arm- sampled, her face and lips and in her mouth. they seem to start from exposure to the sun.
    took test yesterday-tuesday

    • Marco's girl says:

      Lupus is usually diagnosed with a blood test and the results came back to me in about one week. Unfortunately, the rash is a classic symptom after sun exposure, but it could also be nothing but a sun rash. It is very hard to diagnose Lupus, because the symptoms are so wide and varied. In order to be truly diagnosed you must have the blood test as well as several other symptoms. It is very possible to get false results on the blood test as well….which makes it that much more frustrating. I would take your doctor to a good Internist for testing. Many Rhuemetologists also have experience in diagnosing Lupus, because of the joint pain associated with it, so if you know of one, that is an idea also. My advice is to try not to worry too much, because one symptom does not mean she has Lupus. Take care and I hope things work out for you and her. Lupus is not fun.

  3. cms4907 says:

    loss of skin pigmentation due to lupus????
    is loss of skin pigmentation due to lupus

  4. HisLady says:

    Lupus Skin Disorder?
    I had an appointment with my dermatologist yesterday to discuss faint red patches on the apples of my cheeks and neck along with a problem with my hair thinning. She immediately said something about some type of lupus skin disorder and did a biopsy on my neck. I also have to go for blood work today. Does anyone know anything about this? I’ve never heard of it and I’m really nervous especially after she started questing whether I had any joint pain. My knees and feet/ankles ache constantly but I thought it was because I’ve gained alot of weight over the past year. Please offer any detailed information that you may have. Thank you.

    • Linda R says:

      Yes, it does sound like lupus. You can learn a great deal at the site below. Please do not panic. One in every 170 Americans has a form of lupus, that’s over 1.5 million people.

      Basically, lupus is autoimmune disorder where your immune system can’t tell the difference between self and invaders like germs. This autoimmune activity results in inflammation which cause pain. The majority of people have mild to moderate symptoms, but lupus must be taken seriously.

      The treatment goals are to reduce symptoms and inflammation and to prevent permanent damage.

      Until you know what it is, stay out of the sun. Sun causes lupus to flare. Lupus is characterized by periods of calm called remissions, and periods of activity called flares. At this time the cause is not completely understood and there is no cure. 9 out of 10 people with lupus are women.

  5. woman of tenacity says:

    I have Lupus and suffers with the bad skin especially in the face, Is there a particular make-up I can wear?
    I was dx about 4 years ago and approximately 2 years ago my skin started doing bad. I am very self conscious about my face and refuse to participate in weddings and pageants like I used too due to this. Is there a particular lotion, make-up, and soap I should use? Please help I would greatly appreciate it.

    • Carla says:

      Please let me know if you find something that works good…I use Loreal it covers good but still am self conscience of all the Lupus scarring I have! LUPIES -hugs- Carla

  6. Famez says:

    Does all lupus effect your skin?
    I know there are many different types of lupus,but when I research it skin rashes are discussed a lot. I was wondering if there was a type that didn’t effect your skin. If so, Which type is it? Thankyou.

    • Linda R says:

      There are four types of lupus.
      1. Neonatal lupus affects newborns of mothers who have lupus. If often clears on its own in about 6 months or so. In some cases the child may have congenital heart block which does not resolve itself.
      2. Drug induced lupus is caused by certain medications, notably those for high blood pressure or tuberculosis. It goes away when the drug is withdrawn.
      3. Cutaneous or discoid lupus affects the skin.
      4. Systemic lupus erythematosus affects the body internally (joints, organs, and/or nervous system).

      Some people who have cutaneous lupus develop systemic lupus. Some people who have systemic lupus develop cutaneous lupus.

  7. donnamoore81 says:

    What is skin lupus?

    • ♥ ☆ StarLiteGrl~98☼1 ☆ ♥ says:

      Lupus is a chronic, autoimmune disease which causes inflammation of various parts of the body, especially the skin, joints, blood and kidneys.

      There are three types of lupus: discoid, systemic, and drug-induced.

      The cause(s) of lupus is unknown, but environmental and genetic factors are involved.

  8. Anonymous says:

    Does anyone know any natural remedies for LUPUS and itchy skin.?
    I am 51 years of age and have taken antihistimines for the body itch for years. I was told that there is no care for this ailment. Right now the only symptoms appearing are skin rashes. The butterfly one, face, checks and above eyebrow. And I have this awful rash on my forearms. It is black and circular in appearance, the circles are small and can become raised. I Apply triamcinolone cream at least once a day to the rashes and it has improved. My bowl movements have changed in the last year and break up very easy in the toliet water. I take fiber for this. Any suggestions? Can you advise of herbal remedies or otherwise that work? I do not have health insurance so I am unable to get any test done by allopathic doctors or reg. doctors. The rashes had got so bad that I went to the emergency room and the doctor informed me that it looked very much like Lupus. Any advice would be appreciated. Thank you

    • Linda R says:

      Sounds like discoid lupus, and possible systemic involvement but I am not a doctor and there is not really enough information.

      Lupus, if left untreated, can be fatal. I would find a way to see a doctor.

      There is no cure for lupus, herbal or otherwise. The treatment goals are to minimize symptoms and prevent permanent damage.

      Some lupus lesions can turn into cancer if they are not treated.

      In the short term, use hydrocortisone creams, stay out of the sun, adopt a very healthy diet, and use stress management techniques. Sun and stress are MAJOR contributors to lupus flares.

      The thing about ice, and powder, and Jergen’s lotion is a bunch of huey. The problem with lupus is that the immune system attacks the self. No amount of Jergen’s can change that. Hydrocortisone is actually a topical immunosuppressant. You may need to take pills to do that for you.

  9. Taryn says:

    can lupus change your skin color?
    the disease Lupus

  10. Candiss says:

    I recently was diagnosed with lupus,a connective muscle disease and a skin disease.i am behind on my rent.?
    I have a 7 year old daughter.I have no one else to help or support me.I have family,but we don’t speak.I have worked since I was 13 years old.This is very hard for me right now.Im not used to this situation yet.Im used to being able to get my child whatever she wants without a question,and paying all my bills.

    • littlemizpimp says:

      prayer always works! no matter what the situation, just ask God to help you and lead and show you what the right thing is to do. another thing you can do on top of praying is maybe asking for some government aid, i know, its not what anyone ever wants to do, but sometimes, you just have to set pride aside and take what you can. i rather our taxpayers money go to someone like you in need, than to some jacka** who just sits around all day doing nothing and picks up a big government check at the end of every week to buy beer and drugs. you are in my prayers! good luck!

  11. Christie says:

    I have Lupus of the skin….Can someone help?
    I was diagonsed with Lupus of the skin or DSL. I have flares about every other month. These flares last about a month. My doctor has not put me on any medicine, he said to learnt o deal with the pain, and when it gets really bad to take sme advil! Does anyone else suffer from this kind of Lupus and if so what did your doctor do for you?

    • Amara says:

      You definitely need to see a different doctor. No doctor should tell a patient to “deal with the pain” when there are treatment options to help. My aunt has Lupus of the skin, and her doctor prescribed topical corticosteroids for her. It was also recommended that she always wear sunscreen and limit exposure to sunlight. You need to see a different doctor who can and is willing to help you.

  12. vishal p says:

    acute cutaneous lupus erythematosus is a skin desease how to protect ?

  13. Charity Jones says:

    Why do people keep making fun of Michael Jackson skin color? He had vitiligo, and Lupus.?
    It’s easy for some ignorant people to make fun of others. walk a mile in their shoes and then comment.

    • Shauna says:

      Because its easier to judge something you don’t understand and many people to this day do not understand MJ. For all those people saying He wanted to be white because of all the surgery, why not say that about every single black person in hollywood who’s had just as much plastic surgery or more than MJ. Even MJ’s brothers and sisters shared the same surgeon to get get nose jobs. If you look at the way the Jackson kids were raised and paid attention to the fact Joseph would always call them ugly its no wonder they all got surgery especially MJ as I think he was extremelly sensitive and wanted to look perfect, no one said he was trying to look white during thriller which is when he got his lips reduced and I believe he should have stopped getting nose jobs cuz it was perfect there.. He then went on to get a cleft in his chin during Bad and then his vitiligo really started speading and therefore he used full body make up and most likely had some de pigmentation to even out his skin which of course over the years due to his stress levels appeared completelly albino. Which of course did not help because his face already lost all of his african american features making it easier for people to correlate his face with his skin whereas if MJ never got vitiligo they would never say he tried to look white. Its a shame because Vitiligo is an emotionally devastating disease which really screws up your self esteem and MJ was running low on that already… In addition people always complain about his hair being straight, but if you do a little research you will find that he had a bald patch due to the Pepsi burn so he always had hair extensions and later on wore wigs as he began to lose alot of hair due to lupus and stress I also think he lost some of the hair on his eyelashes and eyebrows which would explain the fake eyelashes and tattooed eyebrows, hair line and of couse due to the pigment loss in his lips the tattooed lip liner.

      In addition just to let people know Lupus is an incredibly painful condition to live with it is incurable but treatable.

      Why MJ was on pain killers? Why was he an insomniac? Why didn’t he eat much? Why the plastic surgery?

      Performing since age 5 + Lupus + Dancers feet + Artheritis + Chronic back pain + Depression + Vitiligo depigmentation therapies + Plastic surgeries + Exhaustion + Dehydration + Chronic Inflammed lungs + Reoccuring Migranes + Immence Stress + Extortion + False Accusations + Low Self Esteem + 2nd and 3rd Degree Burns + Being Dubbed a Gay, Self Hating, Peodophilic Freak = RIP MJ

  14. Sunshine says:

    Anybody with skin lupus?
    I would like to hear from anyone who knows a natural cure for skin lupus.

    • grandma18 says:

      I have skin lupus (discoid Lupus) and there isn’t really a cure for it. Stay out of the sun or wear sun screen year round and a hat. I go to a dermatologist who gives me different creams when I get the small raised sores on my arms. He also put me on a medicine call plaquenel which is a malaria medicine but it seems to help. I have to have a thorough eye check due to the fact it could cause blindness. I have been on it for a year now and no problems. Good luck finding a natural cure. If you do I would definitely be interested.

  15. phinetic says:

    What are my chances of inheriting lupus form my mom?
    My mom only has the skin lupus, and not the kind that infects internal structures. I am also male (which I understand lessens your risk?). My father has no autoimmune diseases. I do have a few autoimmune disease however, which include hypothyroidism, and a small area of psoriasis on my leg.

    Are there other autoimmune disease I should be concerned about down the road? I’m turning 24 in a few months, and again I am also male.

    • ParzLou says:

      Although anyone can get lupus, most estimates show that 9 out of 10 people who contract lupus are women. With it also being 3 times more likely to be found in African American women than white women

  16. sporad01 says:

    Malar Sun Face Skin Rash – Not Lupus ?!?
    For most of my young life, i’m now 23 female, i have had a sun rash that a doctor has recently said is the malar rash that is associated with Lupus. My mother also has severe rheumatoid arthritis, I had a lab testing done last week, ana test, that showed negative for Lupus. I have this skin sun rash that develops on my checks & across the bridge of my nose, whenever i’m out in the sun, it stays for about a week, before fading out. It’s not itchy-has no bumps, no pain, etc. Just is a very red-burnt look. I have also been experiencing chronic headaches, i have an appointment made with a dermatologist soon to determine what else the cause might be, is it possible to test negative for lupus & still have it?, what other testing may be done? what other possible solution to my sun rash is there? Thank You.

    • christibro40 says:

      Hi, Im sorry yor going through this. I am going to explain a few things. First Lupus is what is called an autoimmune disease, where our own healthy cells think somthing is wrong go into overdrive and start attcking our own cells. Next, there are several types of Lupus, the two I willl cover are Discoid (which only attacks the skin), the other is SLE (Systemic Lupus/entire body). For a diagnosis of SLE there are 11 critera that needs to be met. I will list them at the end. however most dr’s have not gotten that for some reason. they tend to just look at the blood work and look at the blood markers for antibodies, mainly somthing called ANA. The fact is healthy people can have a positive ANA all the time, and not be ill at all, and people with Lupus may have a positive ANA sometimes (I do sometiems) or never. But to doctors, that seems to be the end all, escpecially early on, and during the first couple of visits. A malar rash, just dosent happen to healthy people. Only if they dont sunscreen that area and they do sunscreen the rest of their face. It has been documented that 5-10% may never have the positive blood work. another 20% will have it occasionally, and it can change on a day to day basis. So while you where negative that day, you can be positive another. The critera and mindset most doctors still use is from a critera used and created in 1982 over 20 years ago, before you were born.
      Also Migranes run heavily in Lupus and other autoimmune paitents, and can fall under the Central Nervous System critera. A dermatologist, may want to biopsy that area of your face. a good one, will be able to take little skin, and leave little scarring. It sounds like you meet the photosensitivity part of Lupus as well. so thats three. You need to see a Rhumotologist, and they need to observe you over months. a diagnosis can take months or even a year. You need to get a good history of your health. write it down, to present to a doctor, you may not know what is relevant. I personally went through 4 rhuemotologists until I found 1 that actually listened took a life history (not all problems have to occur at the same time. As for a solution you should avoid the sun, or wear a 30 or more sun screen. and avoid the sun from noon to 4 pm. I have some issues with the sun, and have a pool. I try not to swim during those hours. I am going to provide you a list of the Lupus diagnostic critera, see if any of it applies to you, if it does now, or in the past, make sure you tell your dr. also your Blood test can change at anytime. Mine change all the time, depending of how active my Lupus is.
      Diagnostic critera from Yahoo health :
      Diagnostic criteria for lupus
      The following criteria are used to distinguish lupus (systemic lupus erythematosus, or SLE) from other autoimmune and rheumatic diseases.

      A person with 4 of these 11 conditions can be diagnosed with lupus; 3 symptoms suggest that lupus is probably present, and 2 raise the possibility of lupus. Symptoms may be present all at once or appear in succession over a period of time. 1

      Butterfly (malar) rash on cheeks
      Rash on face, arms, neck, torso (discoid rash)
      Skin rashes that result from exposure to sunlight or ultraviolet light (photosensitivity)
      Mouth or nasal ulcers, usually painless
      Joint swelling, stiffness, pain involving two or more joints (arthritis)
      Inflammation of the membranes surrounding the lungs (pleuritis) or heart (pericarditis). This inflammation is called serositis.
      Abnormalities in urine, such as increased protein or clumps of red blood cells or kidney cells, called cell casts, in the urine
      Nervous system problems, such as seizures or psychosis, without known cause
      Problems with the blood, such as reduced numbers of red blood cells (anemia), platelets, or white blood cells
      Positive antinuclear antibody (ANA) test
      Signs of increased autoimmunity (antibodies against normal tissue), as shown by laboratory tests
      References

      I have had Lupus since my teens but was not officially diagnosed until my late 20′s, Im now almost 40. I also am a researcher, and own a Lupus and autoimmune support group
      Good Luck
      Chris

  17. pjtraveldeals says:

    Earlier someone asked a question about lupus. Would someone know about how lupus effects the skin?
    Specifically, lupus forces the skin to over activate causing lesions that take a long time to heal and leave very dark scarring. Any remedies out there for healing and lightening dark areas on the skin?

  18. credlec says:

    Will hydroquinone have an adverse effect on lupus patients?
    I am african-american. I have lupus and my skin is darkening due to a butterfly rash. Is it a bad idea to use hydroquinone to lighten the skin?

    • eskie lover says:

      I sure wouldn’t since the FDA is proposing a ban on it and Japan and Europe have already banned it. I understand the frustration of the butterfly rash, my skin turns beat red across my nose and cheeks and in between my eyes. But, try using a gentler method like Aveeno’s skin soothing lotion. After using it for a few days, it makes the rash less noticeable and will probably make your skin appear less dark. I wouldn’t use the hydroquinone because it can cause other problems that are more serious than the skin darkening you are already dealing with. Check out the posting on medicinenet.com for more information.

  19. dream d says:

    Can someone with lupus (the skin form) get facial waxing?

    also, i was wondering if medication taken will prevent from facial waxing.

    • M H S says:

      That’s going to really depend on your symptoms. I have a male friend with lupus, and he has no problem shaving as long as he isn’t broken out. (He gets the face rash.) I have a female friend who has lupus, she doesn’t get the rash per se, but she’s allergic to almost everything, and doesn’t go to salons because she is allergic to almost everything they use. If you don’t know, go to the salon, ask them to put a little bit of the wax they use on your jaw, just a little, and pull it off the way they usually do. Then wait 24-36 hours and see if any irritation develops. A certain amount of irritation is normal for most people with waxing, but from a little patch test you should be able to see if it will be too much for you. Good luck!

  20. WENDY D says:

    wondering if anyone has a idea about getting rid of white spots on the skin?
    I have been told i have lupus and sjogren’s syndrome. I have a dark tan and now I have white spots where the lupus has killed my skin pigments, I guess. I been to alot of doctors but nothing done to the skin as of yet. It is hard going out people stare at ya all the time. Just wish it would go away. I take a pill called Hydroxychlor the doctor said it MITE make the skin better. Well Mite is not what i’m looking for. Wondering if anyone has a idea to help me…??
    I have white spots that will not tan…

    • lovelessgeeky85 says:

      if by white spots you mean its just normal pale skin patches u can get a skin peel from the doctor it’ll help even out your skin tone.. my mom had brown patches on her skin and the doctor gave her a perscription for a chemical peel

  21. dirtysnookums says:

    Does anyone know the symptoms of Lupus, does the skin become very irritated?
    I was told I may have Lupus, MS, or Arthritis, after my ANA test returned positive

    • brenda4ever says:

      Red rash or color change
      Painful or swollen joints
      Unexplained fever
      Chest pain with deep breathing
      Unusual hair loss
      Pale or purple fingers or toes
      Sensitivity to sun
      Other

  22. jenhicks87 says:

    I have been getting red patches of skin… lupus?
    I recently asked a question about lupus. I know you can get rashes. but I have been getting red patches of skin that are dry and have a scab over them. but there has been no trauma to the skin. I still haven’t gotten my results back from my arthritis blood tests. I think when I go back to the doctor I will ask if I can get the blood tests that show symptoms of lupus. ( I know there is no specific test for lupus) but anyway, the red patches of skin with scabs (flaky, peeling skin) does this happen with lupus?

    • christibro40 says:

      Jen, In all my years with Lupus, I have almost every rash imaginable, to sun exposed skin and non exposed skin. Yours sounds almost eczama like. which in and of itself is an autoimmune disease, and I spent half my childhood walking around with. so yes, rashes of all types, fall into the Lupus critera.

      I do think avoiding any sun is a good idea, Also they may want to biopsy that area, and other areas where you may have open sores or a butterfly rash (along bridge of nose along to cheecks.

      As far as blood tests to show symptims of lupus, they can check to see if you are anemic, have any changes in red or white blood counts, platelets, and a few other things. Those red patches of skin, I get even when I have a band aid put on…

      so go figure.

      But there are so many strange things that can happen, but for each new thing that happens write it down, photograph it, if its visible. You never kno, it may go towards the diagnostic critera and you dont even know it yet. But I will post it so you do know, lol. here is the Lupus diagnostic critera.
      Best wishes
      Chris

      Diagnostic criteria for lupus
      Provided by:
      Last Updated: June 29, 2004
      Diagnostic criteria for lupus
      The following criteria are used to distinguish lupus (systemic lupus erythematosus, or SLE) from other autoimmune and rheumatic diseases.

      A person with 4 of these 11 conditions can be diagnosed with lupus; 3 symptoms suggest that lupus is probably present, and 2 raise the possibility of lupus. Symptoms may be present all at once or appear in succession over a period of time. 1

      Butterfly (malar) rash on cheeks
      Rash on face, arms, neck, torso (discoid rash)
      Skin rashes that result from exposure to sunlight or ultraviolet light (photosensitivity)
      Mouth or nasal ulcers, usually painless
      Joint swelling, stiffness, pain involving two or more joints (arthritis)
      Inflammation of the membranes surrounding the lungs (pleuritis) or heart (pericarditis). This inflammation is called serositis.
      Abnormalities in urine, such as increased protein or clumps of red blood cells or kidney cells, called cell casts, in the urine
      Nervous system problems, such as seizures or psychosis, without known cause
      Problems with the blood, such as reduced numbers of red blood cells (anemia), platelets, or white blood cells
      Positive antinuclear antibody (ANA) test
      Signs of increased autoimmunity (antibodies against normal tissue), as shown by laboratory tests

  23. EvArtD says:

    Lupus & Dry skin?? >>>>?
    Can having Lupus affect dry skin? Can it make it worse?

    I’ve used all sorts of creams, lotions, pedi’s, exfoliants, soaks etc. But my feet never seem to stay moisturized. My hands either. Any tips out there?

    • Kelli M says:

      Yes it can. Try taking the coolest shower you can, hot water dries out the skin. Also try a good moisturizing bath wash, and maybe the bath lotion. I also use Johnson&Johnson’s lotion for adults.
      I would also ask your doctor for any ideas.

  24. chrisandvic@sbcglobal.net says:

    can lupus leave you with scare on your skin?
    i heard that is why the singer seal has facial scares. is this true?

    • grace says:

      Yes Lupus can definitely leave your skin scarred. It is an autoimmune disease where the body has a had time differentiating between foreign substances and it’s own tissue. The body then creates antibodies, the things that fight off Boeotia and viruses in our body, against itself.

  25. Kay says:

    Lupus skin condition?
    well my mom has lupus, terribly, on her back, arms, and neck. Will it ever go away? sometimes it worries me. its this itchy bumps. of course she has meds but they dont do anything.

    ughh can someone tell me any curing things or if they had it and there fine

    • christibro40 says:

      Hi, Im Chris, I have the SLE form of Lupus, not discoid Lupus, but several years ago I had a horrible out brak on my skin, it just spread all over my body, and much of it became infected, raised red patches that bled. at some point so bad I ended up in a hospital on IV antibiotics for two weeks until they got the infection, and spreding of the sores under control. I havent had that bad of a skin outbreak since, though I may get smaller ones ocassionally.

      I am so sorry about your mom, its hard to have and terrible to see. Has she seen a dermatologist or a rhuemotologist? My rhuemotologist, just put me on plaquinil, because I was having some skin issues again, because of the CA heat and sun, and it seemd to slow it down a bit, and at times I will use a perscription or over the counter hydro cortison cream, and that helps.

      I do think you both need to find out if there is any kind of infection going on along with the primary sking issue. I did.
      Or an allergic reaction, because they do have bynedryl cream. a person in my yahoo support group had horrid rash, tried that, and it is helping, but with that, I wold try a very small patch test first.

      Just like SLE, discoid Lupus can be quite distressing, and if possible bring her to a dermatologist.

      A question. are you in a very hot and or humid place? It can be making the rash worse.

      Like I said I had somthing similar years ago, it turned out the rash got infected and needed IV antibiotics for 2 weeks, I think she may need to find out if that is the case as well.

      my best
      Chris

  26. sharon l says:

    i have skin lupus im a black female what can i do to get rid of the dark spots on my face. its the butterfly?

    • Linda R says:

      First have your rheumatologist and dermatologist work together.

      Second, avoid the sun as much as you possibly can. Use a high SPF sunblock that stops UVA and UVB rays. The new Neutrogena one is nice and not all greasy like the old ones. It has helioplex. Wear hats.

      Then call a Mary Kay rep who knows about black skin or go to the cosmetics counter of a high end department store and tell them your problem. I have lupus and work with lupus patients. The right make up artist can do the most amazing things. And they are willing to do it for you for free the first time, wanting to sell you their stuff of course, but you can try out different things.

      I wish you all the best. My lupus is systemic with organ involvement and I often wonder what they look like these days.

  27. Michael R says:

    If i had lupus the rash would ‘nt go away with skin lotion(moisturizer) would it and i would have more symptom
    dont people with lupus have more than one symptom? i sometimes have a sore elbow,but my job involves heavy lifting repetetive all day and i have a history of tendenittis.I dont have a fever,i’am not fatiuged ,but i do suffer from anxitey

    • candace b says:

      You are quite focused on lupus. Everyone is different, so if you had lupus, you may not have the same ailments as another person.

  28. Michael R says:

    A rash that goes away with skin moistuirizer could’nt be lupus could it?!?
    I get a rash on the sides of my nose and it goes away with skin moistuizer, my freind said it’s lupus but i dont think it would go away without a scrept med?

    • impurrfect10 says:

      You probably just have dry skin. The rash from lupus does not go away from applying lotion. You would also have a lot more symptomsn if you had lupus. It’s a serious disease.

  29. TuyoMio.com says:

    Prednisolone controls Lupus… but side effects destroying her skin elasticity causing deep depression. SOS!?
    My friend has Arthritis + Lupus, LES. She takes Prednisolone, which causes side effects as moonface she already has.

    Now she developed heavy acne in her neck. To makes things worse, her legs, arms, shoulders and stomach are loosing their skin elasticity, since her collagen is altered. Common movements produce pain, and on top, her skin looks so thin and unflexible, that you think it will tear at any second.

    You can see superficial damage on her tommy as if she had given birth to 3 babies at once. Not exaggerating. Her legs and shoulders got scares and bruises. Her depression grows and we are so scared.

    Doctors are treating the Lupus, but dont see any importance on the described side effects, since thats the drugs effect. But I believe ANY woman needs to feel good about herself, and each time people stare wierdly at her, i feel like I’ m being whipped.
    If this conditions had some medication or treatment, she’d be able to go back to normal life, work and friends. SOS!

    • KevinMac says:

      Lupus is difficult to treat. As long as I’ve been studying it, it seems to evade answers. The reason is that it is a disease like AIDS, it destroys the body. Sometimes it attacks the brain, sometimes the kidneys, eyesight etc. The ONLY thing that can slow down this awful disease is Prednisone. Prednisone will immediately shock the system into stopping this self-destruction, depending on the dose. The adreanal glands produce approximately 7 mg of steroids that the body needs in order to help the hormones stay in balance. When the human body begins to take Prednisone, the Adrenal glands shut down, forever. There has never been a study that supports the theory that the Adrenal glands can re-start-up, once they have been shut down or driven to sleep. Therefore, the Prednisone MUST keep coming. The difficult balance is to keep the disease at bay, while keeping the body healty enough to fight the common cold. When the human body is suffering with an infection, too high a dose of Prednisone can mask the infection, making the patient believe that they feel wonderful while the truth is that their body is being invaded with infection. Your friend sounds like she has been taking Prednisone for a long time. Her doctor should be notified and he should try to adjust the amount of Prednisone as soon as possible. If your friend is “flaring,” the only thing that will immediately bring the flare into control, is massive doses of Prednisone, after which it is usually brought down by 25mg a day until she is back on a usual dose. Good Luck!

  30. Jennifer @---'--,---- says:

    Does anyone know how to care for a dog with Skin discoid lupus?
    I have a dog, name CiCi who was diagnosted with Sking discoid lupus, her liver and kidneys are doing good.. Has anyone ever had this condition and what did they use to control it? Right now she has it on her nose and is on cordasteroids till it heals.

    • licht says:

      Sorry to hear that. The vet thought my GSD had it, but turned out to be allergies.

      http://www.azmira.com Under products, and topicals “Rejuva Spray.” This might be helpful in the event of future breakouts, also Vitamin E can help control the disease, any dog should have added vitamin E to their diet everyday. This is a REALLY good site, I use a lot of products from Azmira. Vitamin C may help as well, considering it is an anti-everything bacteria and viral.

  31. angeldevoid71 says:

    I have Lupus and was wondering if anyone had any suggestions on helping dry skin?
    I have been living with Lupus for about a year now and have episodes where my face gets very dry, flaky and sometimes itchy (butterfly rash). The skin around my eyes and my eyelids get very dry. The skin turns a deep shade red/purple and sometimes is painful to the touch. I also get dry patches on my forehead and chin. Does anyone have non prescription remedies to make my episodes subside easier?

    • Karl says:

      This is something that you really must talk with
      your doctor about. Its important that he or she
      know this. It may be a side effect of medication
      you are now taking. And furthermore, before you self
      medicate, you need to find out it it will interact in a
      negative way with your current medications.

  32. J says:

    Is cracking skin tissue on the feet a possible symptom of lupus? what could cause this?
    I don’t really wanna freak out, and I don’t think my mom has lupus (of course I have no way of knowing now), but she was stating that the skin tissue on the bottom of her feet was cracking and breaking, creating almost what are cuts all over her feet. She said she is concerned that if this is apparent in other tissue she may have lupus. What could cause something like this sort of reaction to skin tissue? Is cracking skin tissue a symptom of lupus? She has degenerative disc disease if that information is good for evaluation.

    • architeuthis666 says:

      Where on earth did she get the idea cracked feet could be caused by lupus? Cracked heels and feet are a very common problem–she just needs to see a good podiatrist. Symptoms of lupus are things like swelling, arthritis-like symptoms, fever and rashes, and fatigue.

  33. Elise says:

    How accurate is the diagnosis of Lupus from the results of a skin biopsy?
    I developed a rash three weeks ago. It began as one scabbed-over little hole in my thigh. Then it spread all over my stomach, eventually to my arms, and neck. They start as little red hard bumps, then kind of look like a pimple, but you cant pop it, then they become little indents of scabs in my skin for weeks. I have been extermely emotional lately, crying very easily and generally feeling depressed. I have also skipped my a few periods (and Im sure Im not pregnant) The doctor performed a skin biopsy on one of the bumps. He mentioned he was looking for excema, but i don’t know if that has anything to do with the type of skin biopsy or test he ordered. The results came back as lupus, however i don’t have the butterfly rash or joint pain that are symptoms of lupus. My skin rash symptoms are not sun related, since the rash began in areas of my body that never see the sun. I also dont have a family history of lupus. How accurate are the results of a skin biopsy? Could this be lyme disease?

  34. Eona says:

    Why does google images only show the most severe/extreme pics of skin diseases?
    I am talking mainly about Rosacea and Lupus (the skin rash symptoms). I don’t find this particularly useful or helpful in trying to gain a broader insight into these conditions. It doesn’t represent the varying degrees of severity of these conditions for which there are many. Does anyone else agree?

    • victor 7707 says:

      I agree, I think they want you to know the worst case scenerio,,but it doesn’t help with what you want..

  35. DemiVsGod says:

    can someone help me understand systemic lupus?
    One of my friends was diagnosed with systemic lupus. her skin is one huge rash and her hair is falling out.

    what is lupus and what is the general outcome?

  36. Amanda says:

    Are severe muscle pain and itchy skin a symptom of lupus?

    • ★☆W.a.b.b.y✿❀ says:

      Yes, but it’s also a symptom of many other things. You need to speak to a doctor about this.

      ….

  37. Torsten says:

    Does a CFL light bulb’s UV radiation trigger auto-immune & skin disorder flare-ups?
    I read an article that claimed a Canadian doctor did not recommend these CFL light bulbs, particularly for UV sensitive individuals, such as people with lupus or some skin disorders.

    Is this true? If so, what is the best alternative to these bulbs?

    • Linda R says:

      Yes it can cause flare ups. You can use old fashioned incandescent bulbs, at least as long as they are still available.

  38. wingsovgrace says:

    Have you been diagnosed with drug induced Lupus ?
    !0 years ago began having problem with elevated blood pressure. Was treated with the usually prescribed meds. Within the past ten years I have had a variety of unusual and often preplexing symptoms that the doctors couldn’t find good answers for. Lots of guesses and lots of unsuccessful treatments and increased frustration and misery until recently. The diagnosis is drug induced Lupus and it is believed to be caused by my blood pressure meds. Bingo. The symptoms have developed over the same period I’ve been on the meds. My question is: Any known effective alternatives for Blood Pressure Control? Anyone else with Lupus have bizarre skin and hair folllicle issues? Any one know a reputable doctor in Kansas City Missouri to advise on alternative treatments? Any one know of a web site to purchase alternative B/P treatments that you or someone you know have had personal experience with? Are there suggestions for a great support website for Lupus?

    • Healing Oneself says:

      Hi WIngsOfGrace

      Here are some ideas to heal the issue. Also learning about detoxifying the blood by doing colon and liver cleanses will change your health forever.

      Cause
      Food allergies (there is a 100 percent correlation between lupus and food allergies), rheumatoid arthritis, other connective tissue diseases, parasites, candidiasis, bowel problems, and digestive enzyme deficiencies can create symptoms that mimic or exacerbate SLE. Migraines, epilepsy, and psychoses must also be ruled out before a proper course of treatment can be decided upon.

      Both forms of lupus primarily strike young women (90% of cases) and young children.

      The drugs hydralazine, procainamide, and beta blockers can cause false-positive readings of SLE, and can also produce a lupus-like condition that disappears when the drugs are no longer taken. Birth control pills and environmental stresses can also exacerbate lupus symptoms.

      ——————————————————————————–

      Natural Cures

      Diet: Eat an organic, whole foods diet. Also avoid overeating and limit your intake of dairy, beef products, and polyunsaturated oils. Also screen for food allergies and avoid all foods to which you are allergic or sensitive. Increase your intake of vegetables, especially green, yellow, and orange, and consume non-farm-raised fish several times a week.

      Herbs: Supplementation with Swedish bitters with each meal can increase hydrochloric acid production. Also drink an infusion of nettle twice a day. Other useful herbs include echinacea, goldenseal, licorice, pau d`arco, and red clover

      Hydrotherapy: Hydrotherapy is the application of water, ice, steam and hot and cold temperatures to maintain and restore health. Treatments include full body immersion, steam baths, saunas, sitz baths, colonic irrigation and the application of hot and/or cold compresses. Hydrotherapy is effective for treating a wide range of conditions and can easily be used in the home as part of a self-care program. Many Naturopathic Physicians, Physical Therapists and Day Spas use Hydrotherapy as part of treatment.

      Hyperthermia: Hyperthermia involves artificially creating fever in the body for the purpose of boosting immune function. Hyperthermia can be a highly effective method of eliminating toxins and heavy metals, as well as infectious bacteria and viruses that cannot survive in elevated body temperatures.

      *Purified water is essential for any hydrotherapy or hyperthermia treatment. Remedies for Treating Chlorinated Bath Water offers clear instructions and recommendations.

      Juice Therapy: Drink the juice of carrot, celery, flaxseed oil, black currant oil, and garlic.

      Nutritional Supplementation: Hydrochloric acid (HCL) deficiency is common in people with lupus, therefore HCL supplements with each meal is advised. Other useful nutrients include vitamin A with beta carotene, vitamin C and bioflavonoids, vitamin B complex, vitamin B5, vitamin B6, vitamin B12, calcium, magnesium, selenium, zinc, essential fatty acids, proteolytic enzymes taken away from meals, digestive enzymes taken with meals, and the amino acids L-cysteine, L-methionine, and L-cystine.

      Topical Treatment: PABA cream applied topically can help ease symptoms.

      Best of health to you

  39. Richard R says:

    Can wearing wool garments trigger a skin rash in lupus?

  40. icantwait48 says:

    What is lupus and how does one get lupus?
    My annoying ex-boyfriend and I got into a huge argument over what lupus really is. My dad, a physician for very sick adults, told me that lupus could be anything because it disguises itself as other diseases. My ex told me, his source being a doctor, that lupus was a skin disease and that it starts out as a skin disease. Any medical information?

  41. W U says:

    Semi-permanent thick make-up to cover skin disorders like Discoid lupus?

  42. Anonymous says:

    Do all people who have lupus have skin trouble?

  43. tilly says:

    people who have lupus, when they get skin discoloration in the toes, is the discoloration white?
    i heard is one of the symptoms, are the toes always pale white and cold during a flare up? can someone who experienced the symptom decribe…? : ) thanks

    • Tracy L says:

      I was diagnosed with lupus 6 years ago and I usually have a paleness in my skin and my nail beds are usually white. However with iron supplements the colour usually returns. This can also be caused from the fact that I’m anaemic as well

  44. barbeve@sbcglobal.net says:

    Lupus or what have had skin rash and now wrists are swollen going crazy with it?
    Have been to 2 dermatolgists they don’t know what it is. Have an appointment with rheumatogist next month.. Please help am going crazy with itching and joint pain

    • Emily♥ says:

      your rashes can get really bad because I have Lupus and my rashes started out little but then they started to get really big and bad. & Yes when you have lupus you do have joint pain because the same thing happens to me. I hope you feel better, & sorry for the small advice, I only had lupus for 9months and I am 11 years old. & dont worry you will be okay, but if your rashes do get worst you would probally have to be hospitalized for like a week or it depends how bad they get. Feel better =)

  45. Lynne says:

    Does anyone else have Skin Lupus?
    I was diagnosed with Skin Lupus about a year ago. I was just wondering if anyone else here has this. I would like to find people to talk with about the various treatments and options they have tried. Basically, I am tired of feeling alone in this.

  46. xoMariska_fearless4lifexo says:

    Can skin lupus become internal lupus?
    My mom asked me that the other day. She has skin lupus. Thanks
    She gets open sores and they sting before they turn into scabs. Sometimes they may leave a scar

    • mgnysgtcappo says:

      adbz you haven’t been in the health care field long if you haven’t heard of discoid lupus…skin lupus…(I’m responding to the first answer to this question).

      Discoid Lupus can develop into Systemic Lupus but you are only at a slightly higher risk then the general population of developing SLE. Most people with discoid lupus do not develop Systemic Lupus.

      Good Luck!

  47. CareBear says:

    Lupus. I need to know if Cutaneous Lupus (which effects the skin) can kill you.?
    I need to know if Cutaneous Lupus (which effects the skin) can kill you. What are the chances of it turning to semetic(?) lupus which effects the orgens

    • Linda R says:

      Cutaneous lupus will not kill you. Some people with cutaneous lupus will go on to develop systemic lupus, some will not. The most important thing you can do is adopt a healthy diet and lifestyle, and minimize stress. Avoid sick people and use hand sanitizer. The Epstein Barr virus is a known systemic lupus trigger. Even if you do develop systemic lupus, most cases are mild to moderate. Not everyone with systemic lupus has organ involvement.

  48. IneedAnswers says:

    my dad was diagnosed with lupus on his nose. should i be worried? ?
    Is lupus on the nose common? I have read stuff about Discoid lupus erythematosus, which is skin lupus, but on the nose? is it life threatning? what type of test should he ask for?

    Thanks

  49. somebody_0001 says:

    What chemicals did Michael Jackson’s doctor give him to even out his skin?
    I was watching ET, and Michael Jackson’s doctor said that he had lupus, which makes the skin be light or something. So, so that he won’t look like “a leopard” he lightened his skin. What did he use to do that?

    • jamesm519 says:

      Lupus is what he had in one of his lungs. The skin disease was Vitiligo. They make a chemical peel to lighten the area around it, so its not so noticeable. Some say he did it everywhere, but???

  50. Jesse says:

    What does lupus do to your skin?

    • SH says:

      Sorry to hear that you have Lupus, I live with Systematic Lupus and Rheumatoid Arthritis myself. What we have is very serious, but with a good Doctor or
      Rheumatologists we can still live a somewhat normal life. I am working full time again as a food clerk, but I have to admit that I have to take a few days off at times, like now, from pain and or fatigue. But I don’t miss months at a time like I use to since I am now on medication.

      Yes, Lupus affects the skin (discoid lupus) any autoimmune disease can effect your skin. Right now I have an appointment to have some hive looking rash on the back of my hands lanced and diagnosed for what they believe it is from my Lupus, but they want to cut a little of the hive off to make sure.

      You can read about Lupus in a lot of different web sites, but if you have a new symptom you need to talk it over with your Doctor. I even had all the signs of TB last year, but it turned out to be an allergic reaction to one of the medicines. If I do have an itchy hive flare up I use cortisone cream to help. Right now it is only on the back of my hands, last fall I had 98% of my body covered in itchy hive blisters.

      What is lupus? What are the types of lupus?
      Lupus is an autoimmune disease characterized by acute and chronic inflammation of various tissues of the body. Autoimmune diseases are illnesses that occur when the body’s tissues are attacked by its own immune system. The immune system is a complex system within the body that is designed to fight infectious agents, such as bacteria and other foreign microbes. One of the ways that the immune system fights infections is by producing antibodies that bind to the microbes. People with lupus produce abnormal antibodies in their blood that target tissues within their own body rather than foreign infectious agents. Because the antibodies and accompanying cells of inflammation can affect tissues anywhere in the body, lupus has the potential to affect a variety of areas. Sometimes lupus can cause disease of the skin, heart, lungs, kidneys, joints, and/or nervous system. When only the skin is involved, the condition is called lupus dermatitis or cutaneous lupus erythematosus. A form of lupus dermatitis that can be isolated to the skin, without internal disease, is called discoid lupus. When internal organs are involved, the condition is referred to as systemic lupus erythematosus (SLE).

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