The symptoms of lupus and its intensity are different from one case to another. It is an autoimmune disease, which occurs when the immune system abnormally releases its antinuclear antibodies and directs their attack against the organism’s own healthy tissues including, in some cases, even the DNA. The genetic material is thus altered itself by the aggressive action of the anti – DNA antibodies. This organic chaos generates extremely damaging actions on the organs, causing kidney, heart or lung diseases, conditions of the nervous system – such as brain disease, skin affection like lupus rash, erythematous lesions, or musculoskeletal system problems (osteoporosis, arthritis).

Different patients usually experience different lupus symptoms. But the one that is constantly present in many cases is rash, in one of its two existing forms: systemic and discoid. It is the first sign of lupus and also the most persistent, unlike the others that appear and disappear over and over again.

This symptom affects the areas with increased exposure to the sunlight – the most dangerous enemy of a person with lupus – such as face, neck, shoulders and scalp. It is also possible for it to affect the chest, feet, palms and back and it usually comes with lesions of the skin. On the face, lupus generates the aspect of a red, burned skin and may also extend over the tissues that surround the nose and the mouth.

The systemic lupus erythematosus can be improved by the proper treatment. It doesn’t scar the skin, unless it is exposed to sunlight for large intervals.

The second form, the discoid lupus produces extended lesions in more than one body part. This form leads to the skin exfoliation, hyper – pigmentation and generates crusts. It usually leaves scars because its damaging actions get deeper in the skin layers. Serious scaring will remain on the skin in case the rush also involves papules, crust and intense scaling. Once it attacks the scalp, alopecia occurs (the loss of hair that may be temporary or permanent).

Another type of lupus rash is the subacute cutaneous form, which can be encountered in both systemic and discoid lupus. It affects the parts with the highest degree of solar exposure and takes the form of circular, scaly patches that have increasing surfaces of extension. It doesn’t completely disappear but it enters remission. The healing process involves hypo – pigmentation, without scarring. This type of rash can be successfully kept under control by the adequate medicines.

Solar exposure should be absolutely avoided in any type of lupus rash because it will seriously worsen the condition.

88 thoughts on “Rash, A Sign Of The Autoimmune Character Of Lupus

  1. Alanarama

    whats wrong with me? hellp! i dont wanna feel this way anymore!?
    here i am,half asleep again after having a decent 8 hours kip last night.
    its the same every day, i am constantly tired to the point i can sit down for two minutes and wake up two hours later.
    i also have other symptoms wich are
    always too cold or hot
    rumbling feeling in stomach like somethings moving
    exessive sweating
    severe moodswings
    skin discolouration on hips,genitals and arm pits (vitiligo?)
    cant put on weight
    poor concentration and lack of focus, poor memory!
    irregular periods
    aching buttox and thighs (a bit like cramp)
    waterless blisters on hands feet,behind ears,back of neck-sometimes turning into a rash/dry skin-VERY ITCHY
    sore breats
    muscle pain
    heavy arms and legs
    abdominal pain
    direah/constipation alternating-funny coloured stools-or pure water stools
    heart palpitations….chest pain when i breathe in deeply
    tingling and numbness
    burning sensation on the skin
    aching/sore joints
    carpel tunnel syndrome
    raynauds syndrome
    “malar” rash
    extreme abdominal and back pain after exercise so bad it causes me to vomit and nearly pass out (feels like labour pains).

    i had been told by my previous doctor its just because i have a child and am tired….well that doesnt cause the other symtoms! my current doctor has done all the routine tests. and a celiac test wich came back negative. the only test wich came back abnormal was i had anti parietal cell antibodies. which my doctor said she cant see why only that test would come negative. i have to have some more in depth tests done but i was wondering if anyone had any ideas of what it could be?
    the only things my searches keep coming up with are
    ME (CFS)

    and none of them show up on tests so if it is one of thesse how will i ever get diagnosed? its really bugging me as most of the time i dont have enough energy to even do the housework or play with my son and it really gets me down.if and when i do have the energy and get the jobs done i then have to rest for aaages as i am so tired ache so much! please any ideas? x
    🙁 its very depressing

    1. B!nd!

      I feel your pain- I am also trying to get diagnosed for one of the above conditions. My doctor warned me that it may take years to get diagnosed, if ever. Particularly when you are looking at neurological disorders.
      None of these problems are easy to diagnose- CFS is diagnosed by ruling out every other possibility, but Lupus and MS can be diagnosed with time. I am waiting for results of blood tests which will apparently be starting indicators of Lupus (they are testing for arthritis or something). MS is diagnosed by comparative MRIs over a period of time.
      If it is CFS, then there is no treatment, and the other two can be treated but are still chronic health problems that normally get worse with time.

  2. SkyNightDreamer

    Rashes with lupus? Anyone have it?
    Ok so I know that for those who have lupus, they generally have the butterfly rash across their cheeks and nose. But I’ve also read that you can have rashes other places on your body. Well I have a million complaints I could tell you about my body and everything that’s wrong with it, but I was just wondering if anyone knew whether or not it was common to have a rash on your chest/neck with lupus? My chest/neck area always becomes red and itchy randomly. I haven’t changed any products that I use so I don’t think it any kind of allergic reaction. It actually happens alot when I have a low cut shirt on (so there’s not clothing hitting that area to rub against it..)

    Just wondering if anyone has any ideas…

    1. lawngoose

      Yeah I get rashes too and I have Lupus.

      A lot of my rashes come from being in the sun. The fact yours are appearing when you wear a lowcut top makes me wonder if it is happening on the same day that you’re outdoors in the sun too?

      Sometimes wearing sunblock helps me, usually I just try to keep my arms/legs covered if I have to be in the sun for very long.

  3. Danielle

    Does this sound like Lupus to you?
    I’m 19, and a female. It first stared with a headach almost two months ago, Then, that was followed by dizziness/vergito, and memory loss. The memory loss started over a month ago, and it’s short-term. I can’t even remembery something as simple as what all I did 2 or 3 days ago. I started noticing a rash on my elebows, and some pain in my neck. Also, I’ve started to get many canker sores.
    I started feeling extremely tired as well. I can be a bit of a hypochondriac, and sometimes the littlest things can trigger my stress… but the memory loss is really scaring me.

    I am having a MRI at the beginning of next month for the dizziness, headaches, and memory loss.

    Do you think I should ask to be tested for Lupus?

    Thank you to everyone that took the time to answer!

    1. Amanda

      The MRI may give you your answer. Lupus is a little far out, but it is possible. I’m not sure what the symptoms are, but if you’re still concerned then let your doctor know, he or she will be able to diagnose you.

  4. Nat

    Lupus.. what is it?
    I just got back from the clinic and am a slight bit worried now.
    I went in for back pains, during this he asked if I had other problems so I mentionned my reynolds. He then asked me if there’s history in my family with clots (my grandma does), if I’ve had kidney disease, I’ve had kidney infections (disease I wouldn’t know?), if I’ve had unexplained rashes.. well right there I had a rash on my neck, I had no idea, he’s the one who saw it. He asked if I had a history of psychiatric problems.. I have had severe depression along with some great insomnia in the past. He asked other things that I can’t remember anymore.. the only thing that didn’t fit, which was mainly why I came in, was if my lungs were inflamed.. What was wrong was my muscle behind the shoulder blade was inflamed hurting when I would breathe.
    Ok so, now that he’s gone through all that and only 1 out of all symptoms he’s asked don’t fit… what??
    I don’t really know what lupus is safe for what I’ve just googled..
    I know he can’t diagnose based on history alone. He asked me a series of questions that made him think it’s possible. Although, it didn’t go much farther then his questions. Now what I wanted to know was the symptoms/how to get diagnosed. Basically, where would I go for help on this. I don’t have my own doc so I’m kind of on my own.
    It had me concerned as many of the symptoms of lupus are similar to things that are happening with me. It’s not to say I have it and don’t wish to, I’m wanting to get informed.

    1. screamingfreedom

      I really do not understand from your question where lupus came into the discussion. Lupus is not diagnosed buy a doctor going over your medical history alone. Some of the things you mention can be seen in lupus patients.

      The American Rheumatism Association developed a list of symptoms used to diagnose Lupus. Research supports the idea that people who have at least four of the eleven criteria (not necessarily simultaneously) are extremely likely to have Lupus. The criteria are:

      * Butterfly rash
      * Discoid rash
      * Photosensitivity
      * Mouth ulcers
      * Arthritis
      * Inflammation of the lining of the lungs or the lining around the heart
      * Kidney damage, as noted by the presence of protein or other abnormal substances called casts in the urine
      * Seizures or psychosis
      * The presence of certain types of anemia and low counts of particular white blood cells
      * The presence of certain immune cells, anti-DNA antibodies, or a falsely positive test for syphilis
      * The presence of antinuclear antibodies.

      As to your question what is lupus.

      Lupus is an autoimmune disease. This means that a persons immune system is attacking their own body.

      Lupus is one of the more serious autoimmune disease. It can be mild with few symptoms or it can attack almost every system in the body.

      Lupus manifests as a chronic inflammatory connective tissue disease marked by skin rashes, joint pain and swelling, inflammation of the kidneys, inflammation of the fibrous tissue surrounding the heart (i.e., the pericardium), as well as other problems. Not all affected individuals display all of these problems.


  5. SouthernBelle

    How would I know if I have Lupus? What test should I ask my doctor about?
    My sister is a nurse and she thinks that I have Lupus. Somedays I have to make myself get out of bed. It is a struggle to perform normal household chores. I have had the “butterfly” rash on my face but it wasn’t that bad. I have episodes where I feel like I can do anything. When I have a flare-up I get nodules behind my ear and one in my neck. I also get a rash on my chest that itches. There is also pain in my joints when I have an episode and could sleep for days. I do not suffer from depression. I was told that it can be hard to determine if you have Lupus. If I do have it will it affect me having children in the future and could it be the cause of a previous miscarriage? Just to be clear I have been tested for EVERYTHING but Lupus.

    1. J

      I am no doctor, but sounds like you have many lupus symtoms…..take it from someone that was diagnosed in 1996. Some days are better than others, but if properly diagnosed they will be testing your blood for overproduction of white blood cells……my doctor (he was so aweseome because I went to 6 that misdiagnosed me!!) said that was really the only true test to tell if you have the disease or not. If you get diagnosed with lupus you will have to take care of yourself more and learn that you can’t do everything you used to do! (You need more rest for sure, you will learn to take naps, etc.) Good luck with your search for a good doctor.

  6. Dani L

    Hodgkins lymphoma or lupus?
    I know, I know. Go to the doctor. I have.

    My general practitioner thinks I’m a hypochondriac. I think I will be going to a different doctor for a second opinion, but I would like to hear some opinions. Most of these symptoms have come on in the last few weeks all together, so I’m trying to put two and two together. At first I thought I was having much worse pain from my collagen disorder, Ehlers-Danlos syndrome, but with the hair loss, I have gotten worried.
    Sorry about the novel.

    1. In 2006 I was cheated on and given mononucleosis from my boyfriend. Ever since the glands in my neck have been swollen. Lately they have gotten even more swollen and cause me discomfort in breathing, eating, drinking, and turning/moving my head.
    2. As of lately I have been losing chunks of hair. I wash my hair twice a week, as it is (was) really thick and curly. In the shower I will lose easily 5 or 6 chunks of hair, then out of the shower, brushing (nothing intense), blowdrying, etc. I lose several more chunks. This has been going on since the last 2/3 months and I am worried I’m going to run out of hair.
    3.Lately I have been breaking out in rashes on my face, arms, chest, and neck. They go away after about 10 min. They are warm to the touch and splotchy.
    4.I have been having night sweats and chills the last few weeks.
    5.I have been getting itchy several times a day. I’m not sure if it’s the weather or a symptom of something else, as where I live it is very dry and very cold.
    6.I have been extremely fatigued and don’t feel rested after 8 hours of sleep.
    7.My bones and joints are very pain, more than normal (I have a collagen disorder which gives me bad joints as it is, but it’s been much worse)
    8.My fingernails started clubbing this summer and is getting worse and worse. My toenails now, too. My toenails have also been turning blue and purple for no reason, even when I’m not cold.
    9. Sharp lower back pains, started at night a few weeks ago.
    10. I have had this weird numbness, starts in my fingertips and makes its way down my hand and to the outside of my forearms.

    Thank you.

    1. Skylark in ♥

      One of my favorite friends had Lupus, but I’m still only vaguely knowledgeable about it, and I”m unfamiliar with Ehlers-Danlos syndrome. I do know about Hodgkin’s Lymphoma because I am now in remission for it. Obviously, I can’t diagnosis you based on a Y!A question, but from what you’ve written here I don’t think you have it.

      It’s true that you do have some of the symptoms of Hodgkin’s Lymphoma, but those same symptoms could be an indication of another problem (perhaps one far more benign), so I wouldn’t become consumed with worry about the possibility that you have it. Many people with HL are asyptomatic and just go in to see their GP when they notice a lump under their arm or in another area. Since having mono puts you at a significantly higher risk of getting HL, it seems like the GP would have taken you seriously and run the necessary tests to rule it out. If he / she already did that
      and everything came back fine, I would still get a second opinion if you’re concerned, but would consider it to be unlikely. By the way, you can get mono from many sources, so it wasn’t necessarily from your boyfriend cheating. I got it at age 13 after going to two camps that summer, and it was probably due to sharing drinks with the other kids rather than the one boy I kissed. It’s transferred from saliva.

      You might want to consider seeing an endocrinologist and having your thyroid levels checked. Many people, especially teenage girls and women, have an under active thyroid (hypothyroidism), and it can cause a myriad of problems such as fatigue, dry skin, hair loss, numbness in your hands and feet, lack of mental clarity, muscle cramps, and an irregular cycle. My mom has it (and I have an overactive thyroid!) and treats it by taking one pill every morning. Supposedly Synthroid, one of the most popular medications for hypothyroidism, is in the top five most prescribed drugs in America after Prozac and Viagra. All you need is a simple blood test of your TSH levels to determine if you have a thyroid issue. PCOS and other hormonal imbalances can also cause a lot of the symptoms you described. A infection could be causing the swollen glands in your neck.

      Your stress levels, environment and diet are all relevant factors. Not getting enough calories or the proper nutrients can lead to hair loss and low blood sugar levels, which in turn can lead to night sweats. Could the clubbing be related to the collagen disorder? The rashes could be caused from stress or from an allergy. I get a few hideous eczema spots whenever I travel somewhere cold, and have learned to take much shorter showers, avoid all products with Sodium Lauryl Sulfate (a common skin irritant), and generously lather on body butter.

      Book an appointment with an endocronoglist or a neurologist to have a few more tests done and hopefully gain some answers and a peace of mind. In the meantime, make sure you get an adequate amount of sleep (oversleeping can make you tired, paradoxically), eat a healthy diet with plenty of protein, and try to get a little sunlight and exercise every day. Also consider taking a B vitamin with folic acid. Use a gentle baby shampoo on your hair then a good conditioner. Make sure your products don’t contain Sodium Lauryl Sulfates. Gently run the comb through your hair while the conditioner is in to detangle it. Never rub a towel on your head – pat it dry instead. If you’re going to use any heating tools first spray on a heat protector. Try to let your hair air dry as much as possible. If you’re really concerned about the loss you could try out Rogaine for women. I’ve never used it, but I’ve noticed it in the hair product aisles of drugstores.

      Take good care of yourself. Best wishes!

  7. momzpeachy

    What if I have Lupus?
    I have posted a few questions lately. I’m just really scared. I’m a real mess. I feel sick, have chronic pain and just ache all over. Ihave been having trouble going to the bathroom now and I just feel so swollen everywhere. I feel like the goodyear blimp! But yet in a lot of pain! I want this to stop! I’m afraid the Doctor’s have really screwed up and made things worse for me. A year ago I started having problems with pain, fatigue and headaches but all they wanted to do was prescribe migraine medicine. Now I’m so much worse and went through several course of treatments with nothing working. I am worried that I may have lupus and/or rheumatoid arthritis. Both run in my family. My cervical spine is falling a part and believed to be a cause for my neck and arm pain. I have all the signs of degenerative disc disease. Here’s the rest…my hair falls out every day…barely growing any more..I have a rash (it comes and goes) on my cheeks. It kinda looks like wind burn.Uh oh

    1. Dr. Joe?

      I’m sure your aware that your symptoms share more than a passing resemblence to lupus. The rash on the face, often caled butterfly rash is a symptom of lupus; as is the hair loss. Of course other auto-immune disorders can cause such symptoms. Lyme disease shares many similiar symptoms with lupus.

      But since you have a family history of lupus, it seems the logical assumption.

      I think you already know that this is quite likely.

  8. meyow

    Could I Have Lupus? Please Help!?
    With asking this question, I obviously know no one can give me a definitive answer on the internet. However, I am still curious.

    My symptoms started years ago, with severe pain in my neck and legs. I was diagnosed with RLS (restless leg syndrome) and kyphosis. The doctor was confused and because of my age at the time, suggested I get an MRI (she said someone my age shouldn’t be in so much pain). A year later, I started having panic attacks. I was diagnosed with anxiety, but no medication nor therapy helped. I ended up just learning how to deal with it myself. I started having paranoid thoughts about people for no reason, destroying some relationships in my life. I would not understand they were paranoid except that I was told they were. I also have the “butterfly rash” although I have always been told it was roseaca. I usually always have a low grade fever (99-100 F) and have pain in my spleen and chest (always been told it’s from anxiety). I also have dropped about 13 pounds in the last year, NOT INTENTIONALLY. I can sleep about 16 hours in a day. My desire for sleep surpasses all else.

    I am of Swedish descent. No one in my family has Lupus. My family thinks I am crazy. I think I’m not healthy… any ideas?

    1. Linda R

      Honestly, it does not sound like lupus. If you are concerned that it might be lupus, please see a rheumatologist.

      Your emotional issues can certainly impact your health. You might try two avenues to get some relief. First, a psychiatrist may be able to help you figure out if the orgin of your anxiety is biological. Medication can help tremendously. Second, a psychologist who specializes in cognitive therapy can help whether or not you are on medication. You deserve to find a solution and relief.

      Only 40 % of lupus patients get the butterfly rash. You did not mention one of the major symptoms of lupus, joint pain and inflammation. The fever is negligible as a lupus symptom. You may have a normal slightly higher temperature. Lupus fevers are higher than that.

  9. Jake

    What is wrong with me!?!?
    I am a white male, 22 years old, I am about 120 pounds, height is 5-10, I get very little exercise. my heart rate is in normal range.
    My symptoms are:
    1) groin rash,
    2) high blood pressure,
    3) joint pain, on elbow and the bottom of my foot hurts when i walk on it sometimes.
    4) 1 bloody nose(may not be relevant),
    5)swollen lymph nodes on groin neck and on a rib, the swollen ones on my groin seem to have started a couple of months ago. and they hurt on and off.

    the groin rash started about 6 months ago but recently it has seemed to spread to the opposite inner thigh.

    I tested myself for high blood pressure in 2008 at a walmart. and i had a 149 if i remember correctly, And i really haven’t changed me eating habits since then. I eat very unhealthy to be honest. Lots of sugar, lots of salt. I realize this could be the cause.
    I also am experiencing some hair loss.

    I’m not sure if all the symptoms are related. I think it might be stage 2 diabetes. or maybe some type of lupus. but I’m not sure. maybe its just a mix of high blood pressure from eating junk food. and infection from rash to explain the lymph nodes. could stress have caused some of the symptoms as well? I lost my job recently… so i don’t have health insurance. and I don’t have the money for a doctor. Please help!

  10. chloe.

    symptoms for months with no diagnosis. any ideas at all?
    for the past nine months i have had:
    – severe bouts of join pain, and possible deterioration of my joints.
    – fatigue
    – red rashes on my face an neck area
    – kidney infections and proteinuria.

    i have been tested for and do not have:
    – RA
    – lupus
    – fibromyalgia
    – lymes disease

    i’m constantly going to doctors and they can’t figure out what is going on.
    any suggestions at all on testing ideas or possible diagnosis would be greatly appreciated!!

  11. britters *

    What is causing all these symptoms?
    I have been having health problems for the last few years and I’m determined to find out what is wrong! I am an 18 year old white female who lives in new york.. if any of that makes a difference.

    Some of my symptoms include: increased fatigue, I can sleep for hours and still feel tired. For the past 3 years I have gotten a rash on my neck and chest that is not inflamed but warm and comes and goes at all sorts of times and have heat sensitivity to that area and sometimes chest pain. A few months ago I had an infection in my arm pit and was told it was cellulitis and was given an antibiotic, since then I have had frequent pain in both of my arm pits and it seems to be swollen at times. For the past 2 years or so, I produce breast milk in my left breast but I have never been pregnant, sometimes it is a clear liquid that comes out and sometimes a milky liquid. About a month ago I had to go to the emergency room because both of my breasts were swollen and it was very very painful but they sent me home without telling me an explanation to what it was and it all went away a few days later. For as long as I can remember I have had joint and muscle pain all over my body, mainly the upper back and neck. In january of 2010 I went to the hospital because my back, both lower and upper, hurt so bad that I could barely move. I had high blood pressure and slight chest pain but once again they weren’t aware of the cause so I was sent home with some tylenol. I have noticed that when I get many of these symptoms I get very emotional, either very sensitive or angered easily. Recently I have been getting twitches in my hands, mainly in the thumb area. I have noticed that my concentration isn’t as good as it used to be, I am very anxious and impatient.

    Doctors have gave me some ideas of what it may be but nothing was ever diagnosed. They suggested: anxiety disorder, lupus, thyroid disease, tumor on the pituitary gland, breast cancer, skin cancer, rheumatoid arthritis, graves disease and I think thats about it.

    Someone please help before it gets worse!!!

    1. Tuning In... TR Emeritus

      Sounds like Cryoglobulinemia.

      Symptoms vary depending on the type of cryoglobulinemia and the organs that are affected. In general, symptoms may include:

      Difficulty breathing
      Joint pain
      Muscle pain
      Raynaud’s phenomenon
      Skin death
      Skin ulceration

      And many more others as it’s is a syndrome with many possible symptoms

      The doctor will perform a physical exam. There may be signs of liver and spleen swelling. Tests for cryoglobulinemia include:

      Complete blood count (CBC)
      Complement assay — numbers will be low
      Cryoglobulin test — may show presence of cryoglobulins
      Liver function tests — may be high
      Rheumatoid factor — positive in types II and III
      Skin biopsy
      Urinalysis — may show blood in the urine if the kidneys are affected

      Other tests may include:

      Chest x-ray
      Hepatitis C test
      Nerve conduction tests, if the person has weakness in the arms or legs
      Protein electrophoresis – blood

      As there are too many complications, anxiety builds up within yourself which is why doctors may think you have anxiety disorder or as suggested by the other answer of having neuro related illness.

      This blood disorder is very difficult to be diagnosed and treated. It won’t kill you but you’ll have to take constant medication so as to contain it. Many doctors are baffled by it and seriously many don’t even know about this blood disorder.

      Please suggest to your doctors to try those tests on your blood. I have a hunch I am right.

      Take care and good luck.

  12. fancy

    Ill get right to the point.. could this be Lupus?
    I have extremely bad joint pain in my right elbow, shoulder, hip, lower back, and fingers that come and go. With just a little bit of cold for a short time I lose circulation in my hands and feet and they turn blue then white. I have a swollen lymph node on my left side of my neck that wont dissappear and its been 7 months. I have a small nickel size rash on my scalp that has been with me for about 5 years it is scaley and red and raised. I was tested for Lupus 8 years ago and it was positive, tested about a year ago and negative. My grandmother died of Lupus and it just seems to be fitting the bill. I am a little scared and very painful. Just want some ideas here.
    Thanks wiseone…. Sounds like I am not the only one who is the life of the party.

    1. P.J.

      Dear it really does sound like you have a rheumatological condition. I have Rheumatoid Arthritis. I take Remicade infusion treatments ( Like Chemotherapy through my veins) every 6-8 weeks, and other medicine for it every day. I too have the severe joint pain and wonder sometimes if mine may actually be lupus too. If it is from what I have researched the drugs my rheumatologist gives me is the same as what they would treat me with for Lupus have some scaly places too. I also have big knots on my wrist , hands, and this disease just has my whole body, spine and all. I had juvenile R.A. too. I suggest you go to the specialist to see if this is his diagnosos. They did blood work on me, it wasn’t showing, then we did a series of MRI’s and found it in several places in my body. I suggest the MRI’s. Now it shows in the blood work up too. Best of luck to you. I wouldn’t wish this pain on my worst enemy, (if I had one, LOL!) Try to get to the bottom of it before it gets you down all the way. Keep your head up like I try to do, and keep on pushing. I ride a scooter (kind of like a wheel chair) and I am only 43 years old. I still put on my make-up, jewelry (what I can still wear due to disfigurment) and look like I am fine as much as possible. I have a wonderful husband with 3 older kids 24,21,and 19 years old, and 2 grandchildren. I still force myself to cook , but sometimes I have to have assistance. I will not let this get the best of me. I hate it when people that have horrible remarks to make to us when we mention being sick and worried. These people best remember that what comes around, does go around, and I hope they are made to understand the pain! Best of wishes to you honey, I will keep you in my prayers…

  13. Letitia L

    How to tell the difference between butterfly rash and general red cheeks?
    Recently I have this unexplained rash on my neck and the lower part of my face, it did not itch or have any pain, it was just these red blotches, very slightly raised. I went to the doctors a couple of times and they had no idea. It is still there but less obvious now.
    But recently after having other problems, I came across a website about lupus, and looking at the rash it looks like what I have, plus quite a lot of the symptoms… Over the last few months I have not felt very well at all.

    I do have a redness across my nose and cheeks like the butterfly rash, but how can I know if this is all just in my head and actually I just have rosy cheeks, or if this actually is this rash.
    Plus I do get swelling and pain in my joints, but I am only 16.

  14. MaluLanix0x

    How common are these symptoms in the earlier stages of Lupus (SLE)?
    * Frequent and or blocked urination
    * Muscle spasms & weakness
    * Muscle tingling/pins & needles
    * Carpal Tunnel Syndrome
    * Loss of coordination & sensation (starting with feet and then hands)
    * Numbness/tingling in neck
    * Shakiness
    * Loss/less of sweating in hands & feet
    * Eye floaters/eye flashers & pressure and blurry spots/dimness in eyes
    *Headaches w/ some mood changes & trouble focusing

    I am 17 and a half y/o, and almost positive that I have SLE. I was just diagnosed with Raynauds. I get symmetrical joint pains & have the malar rash. My eyes and mouth get dry frequently. My grandfather had type 1 diabetes, and my aunt (on the other side of the family) has sclederma and hypothyroidsm.

    * Out of those list of symptoms the first were the eye changes and carpal tunnel w/ numbness in hands/feet. This seems to be progessing & i am verry VERY frightened. (i am going to the eye doctor tomorrow & am seeing a neurologist VERY soon.)

  15. questions_about_life

    why is my face so red, cushing’s syndrome?
    lately ive been noticing my face is extremely red around the bridge of my nose and over on to my cheeks (sort of like the redness associated with lupus. like a butterfly rash.) ive gone through a lot lately and i am under an EXTREME amount of stress. ive also have a mild eating disorder for a few months. please dont judge, i just want a medical opinion on what is going on with my face. ive also been breaking out in hives on my neck and chest area and ive had a pounding headache all week. i have chronic migraines and so i know thats not what this is, it feels like the start of a migraine but it hasnt progressed at all. help help help
    someone please help, im extremely worried
    thank you for the help so far everyone. just adding: the redness is only on the bridge of my nose and it spills over to the apples of my cheeks but right below my eyes is extremely pale. its really weird. i also feel like im burning up but i dont have a fever, i checked.
    thank you for the help so far everyone. just adding: the redness is only on the bridge of my nose and it spills over to the apples of my cheeks but right below my eyes is extremely pale. its really weird. i also feel like im burning up but i dont have a fever, i checked.

    1. cam g

      I’m pretty sure this is all stress related behavior. Drink some cold water and take a Vitamin-B complex.
      You can find B-complex in any drug store (it’s a vitamin, so its safe.)

      Just try to relax, sweetheart.

  16. Meagan Hope

    I have all the symptoms of a systemic candida infection but my IgG IgM came back clean. What can it be?
    i am very sick and have also been diagnosed with fibromyalgia
    My symptoms are as follows:
    pain and swelling in my arms and joints of my arms and legs
    head “pain” in the left temporal part of my head
    pressure in my head and neck
    changes in vision (mild)
    IBS – chronic diarrhea for the past 5 years
    intestinal cramps
    acid reflux (reduced but not cured by 2 Rx meds)
    mental fogginess which gets worse at times
    geographic tongue
    sleep that is not restful ( waking frequently, and sleeping every chance I get with no improvement in tiredness)
    frequent and urgent urination
    allergic reactions to foods with a rash on my face and neck with no clear source on an elimination diet
    weight gain
    lack of energy
    craving for carbs and sweets

    I have been tested for:
    rheumatoid arthritis
    gluten allergy
    food and environmental allergies

    Current medications:
    cymbalta 30 mg 2 pills qd
    lyrica 75 mg 2 pills qd
    ativan prn
    tylenol 3 prn for pain
    zypan 2 tabs with meals
    vit d 50,000 iu daily
    vit c 2000 iu twice daily
    vit b complex
    spirulina 3 tabs twice a day
    omega 3

  17. Chris

    “Lupus-like” symptoms with a negative ANA?
    Over these past five weeks, I have been experiencing migratory joint and muscle pain in my knees, arms, back, hips, stomach muscles, shoulder, neck, wrists and fingers. No inflammation. The joints seem to crack a lot. No fever, fatigue, rash, etc. I’ve tested negative for everything, including an ANA. The things is, there are only so many things that my symptoms qualify for but, just before these symptoms, I was quite stressed over my job. My doctor thinks it is a viral infection, that typically clears itself up after six to eight weeks. I’ve discounted so many other disorders (from symptoms and tests) but am still wary of lupus. I know that ANA results can fluctuate and that it’s possible for an ANA-positive person to test negative, from time to time, but I am wondering what the odds are of testing negative during (what would be considered) a “flare”. My doctor says I should move on from my fear of lupus, as a result of my tests, age, race, and gender. I am a twenty-one year old caucasian male (from Canada) with no family history and, from what statistics I’ve gathered, there are only about 1,000 or so adult white males, with SLE, in this country and that an estimated eighty percent of them experienced onset over the age of forty. Also, only half of SLE patients claim muscle/joint pain as an initial symptom. Combine this with my test results and you’d think I would be breathing a sigh of relief. No such luck. Am I worrying over nothing?

    1. Angela

      Your Dr. is partially right most of the time Lupus affects women, but men do become afflicted with Lupus. Where I’d have to disagree with your Dr. is that it usually takes many ANA test over several years and lots of grief and many negative test before Lupus is diagnosed. It took Dr.s 8yrs before they finally diagnosed my mom with Lupus, and after years of worrying what was wrong with her and why the Dr.’s couldn’t figure it out…It was almost a relief for her to know she was not crazy or a hypochondriac!
      I suffer from Rheumatoid arthritis since I was 12yrs old and I too have joint pain…. Acupuncture has been the key to me living pain free.

  18. betsy_51783

    Does anyone have discoid lupus and is pregnant?What are your symptoms? How do you deal with them?
    I am about 9 weeks pregnant and I cannot take my medication to help prevent the rash. Every day about 2 hours after I wake up I get a flare up on my hands, arms, legs, ankels, neck and chest and they seeming to get worse. Is this normal? I can’t get into my dermatologist for 2 weeks and none of my other doctors will touch the lupus issue. HELP!

    1. Linda R

      Call the dermatologist back and be very firm about getting in earlier. If they gatekeepers still refuse, ask to have the doctor call you that day. If that does not work, call your rheumatologist.

      Personally, I would look for another dermatologist ASAP. Lupus patients need to be able to see their doctors within a reasonable time when there is a problem Two weeks is not reasonable. It is most likely the receptionist who is the obstacle. Asking the doctor to call you should by pass him or her. Don’t bother telling her your whole story. You can also fax the doctor explaining your symptoms clearly and asking him or her to call you ASAP. You can also call after hours and get the doctor’s service and leave a message with them if you think your other approaches are not getting through to the doctor.

      You might also call your ob/gyn and ask if over the counter cortison cream is permissible during pregnancy. Throughout your pregnancy the doctors who treat your lupus and your obstretician should be working hand in hand. You will be the one who has to make that happen.

  19. Cam's mama

    Are these Lupus symptoms?
    Hello all,
    I am trying to get ready from my appointment with the Rhuematologist. I had a positive ANA both Homogeneous and Speckled @1:320. Well I wanted to know which of my symptoms are lupus symptoms, cause not a lot of my symptoms fit the lupus symptoms mold. It all started for me with Diarrhea, I would get randomly. Now I have almost all time and for about 2 to 6 weeks at a time it will be really bad along with stomach pains. In march it got so bad the lower left part of my colon was so inflamed you could see it when I laid down. Then I got what they thought was Bell’s Palsy for no reason at but that came and went. I don’t really get rashes but I do get sun burn really easy at times but not all the time. I have also had sun poisoning twice, oh and I black if that matters. My hands and feet swell sometimes, and last summer the knuckles swelling petty bad no color just lots of pain. In April my joints start hurting, slight at first and it was on and of. Now its all the time, and sever, with weakness in my hands. I do have a vitamin D deficiency. Shortly after the joints I started feeling dizzy all the time, the kind of dizzy where it feels like your not breathing enough. Then started getting a crackling in my neck like I had pop rocks in my neck, followed by sever pressure. I also have a sore in my nose that I have had for about 2 months. Well sometime in mid July I started getting what I thought was heart burn, but nothing I took for it would make go. My chest to my throat was on fire for 3 weeks and then it just went away. I’m very fatigued. My hair is falling from the root, about a brush full a day. I can’t focus. I feel like I’m breathing baby powder and coughing doesn’t help it go away. And last but not least, I keep having these spells where my pulse rate stays around 120, and it feels like my heart and lungs are in competition for space and oh does that hurt, I even went to the ER, and they just did an EKG and sent me home feeling the same way.

    Sorry its so long but if some could please read and let me if these are symptoms of anything or if I’m crazy.

    1. banana

      No two cases of lupus are exactly alike. Signs and symptoms may come on suddenly or develop slowly, may be mild or severe, and may be temporary or permanent. Most people with lupus have mild disease characterized by episodes — called flares — when signs and symptoms get worse for a while, then improve or even disappear completely for a time.

      The signs and symptoms of lupus that you experience will depend on which body systems are affected by the disease. But, in general, lupus signs and symptoms may include:

      Weight loss or gain
      Joint pain, stiffness and swelling
      Butterfly-shaped rash (malar rash) on the face that covers the cheeks and bridge of the nose
      Skin lesions that appear or worsen with sun exposure
      Mouth sores
      Hair loss (alopecia)
      Fingers and toes that turn white or blue when exposed to cold or during stressful periods (Raynaud’s phenomenon)
      Shortness of breath
      Chest pain
      Dry eyes
      Easy bruising
      Memory loss

      When to see a doctor:
      If you develop an unexplained rash, ongoing fever, persistent aching or fatigue, see your doctor.

  20. Elise

    How accurate is the diagnosis of Lupus from the results of a skin biopsy?
    I developed a rash three weeks ago. It began as one scabbed-over little hole in my thigh. Then it spread all over my stomach, eventually to my arms, and neck. They start as little red hard bumps, then kind of look like a pimple, but you cant pop it, then they become little indents of scabs in my skin for weeks. I have been extermely emotional lately, crying very easily and generally feeling depressed. I have also skipped my a few periods (and Im sure Im not pregnant) The doctor performed a skin biopsy on one of the bumps. He mentioned he was looking for excema, but i don’t know if that has anything to do with the type of skin biopsy or test he ordered. The results came back as lupus, however i don’t have the butterfly rash or joint pain that are symptoms of lupus. My skin rash symptoms are not sun related, since the rash began in areas of my body that never see the sun. I also dont have a family history of lupus. How accurate are the results of a skin biopsy? Could this be lyme disease?

  21. WHITT9636

    What do my symptoms sound like?
    Around 3 weeks ago I had a rash/possible tick bite appear on my right upper thigh (I live in the country so ticks are nothing new). A few days after that my joints started aching, especially in my knees, wrists and ankles. I went to see my doctor that week and she wanted to wait a few days to see if the rash turned into a “bulls eye” rash, thinking I possibly had Lyme Disease. That friday my left calf suddenly swelled up to twice the size of my right, was hard as a rock, and had a radiating numbness/tingling sensation in my left leg. I called my doctor and she had me come in right away, she thought it might be a blood clot so i was then sent to the hospital for an ultrasound of left leg. No blood clot was found. Along with the swelling, my feet have been unusually cold and have been turning blue/purple.

    Additionally, for the past 8+ years I have been battling with a persistently swollen lymph node in my neck. I’ve met with a surgeon, and he has talked about Hodgkins Lymphoma, but stated that usually with Hodgkins you will have a chain of swollen nodes, not just one massively swollen one. But said he wants to keep an eye on it, and need be biopsy/surgery is an option.

    My primary doctor reffered me to another doc. for a 2nd opinion this week, my new doc. doesnt believe its lymes. These are the tests she is running right now.
    -Parvo Virus B19
    -Juvenulle Rheumatoid Arthritis

    If anyone has any suggestions I would greatly appreciate it.
    My mother thinks I should have an MRI done to make sure there is no blood clot that was undected by the ultrasound.

    BTW: 20yr Female, Wisconsin

    1. The V

      Hello neighbor I’m also in WI

      First of all there are several test for Lyme disease and most Dr’s do not know about all of them. I watch Discovery Health Channel a lot and have seen several cases where ppl were misdiagnosed after their Dr missed that they did have Lyme disease after they ran tests on them and said they didn’t have it. Some of these ppl suffered for years before finally someone figured it out. Once you are that sick it can take up to a year or more after treatment to feel better. Please do not wait until you are this ill.

      See if you can get a Dr to treat you for it anyway or find out about all the tests they can run. I am not a Dr so I don’t know the names but if I remember correctly there are 5 different tests for it now. Not all Lymes disease gets a rash.

      Please read the links below and do more research.

      Get well soon!

  22. Letitia L

    Could I be suffering from lupus or is this just a result of my eating disorder?
    I am in recovery from the eating disorder, and have been eating a healthy diet for the past couple of months. I used to sometimes go a few days with no food or drink, even longer with no food but still drinking, plus for about 5 months I was eating around 350 calories a day and lost 60 pounds, then more recently I would have vomited up to 10 or even sometimes 15 times per day.

    A few months ago I got a weird rash on my neck that did not itch and was not painful, it has mostly gone now but still gets worse in sunlight, and it looks like the one of the rashes associated with lupus.
    I get a lot of mouth ulcers, even though I have not vomited a lot in the last 3 months, I often get one after the other, and sometimes small clusters of 3 or four in the same spot.
    I am very sensitive to the sun and it causes my cheeks and the bridge of my nose to go very red, like the butterly rash.
    I suffer from Rayaud’s phenomenon, when I am cold my fingers go really pale, then blue, then purple, then bright red.
    I have gastrointestinal issues such as nausea, abdominal pain and diarrhea.
    My eyes often feel dry.
    I get pain in my joints and muscles.
    I get a lot of really painful headaches.
    I have episodes of psychosis.
    I have major depression.
    Also I get really bad fatigue.

    I am 16 years old by the way…

    I have found these to all be symptoms of lupus, but I suppose most of them really could just be as a result of my eating disorder…
    How am I supposed to tell?

  23. Dance-a-Holic

    I need help editing my research paper. I’m really bad at papers…..please help!?
    Well, its on lupus. I have the intro and two body paragraphs, and I still need to do the conclusion. So, I was wondering what I should change on my paper, and what I need to add..? I also have to do a powerpoint based on the paper, that should last a minimum of 5 minutes up to 15.

    The reason why I chose this topic was because my dad has lupus, and I wanted to know more about the topic. He was diagnosed with lupus when he was about fourteen years old. He still receives treatment for it by going in for blood tests and taking medication He has the most common form of lupus, Systemic Lupus Erythematosus (SLE), in which causes the antibodies to react against his own normal tissue. He has arthritis and joint problems, but nothings wrong with his internal organs. To support my dad and other lupus survivors, my family and I all go to the lupus walk in honor of remembering the people who had lupus that died. The things the audience can expect to read in this paper are the different types of lupus, the symptoms, the treatment and cures.
    Lupus is the result of an unbalanced immune system that can be destructive to any organ in the body. It can be categorized into three groups: discoid lupus Erythematosus, systemic lupus Erythematosus, and drug-induced systemic lupus Erythematosus. DLE is always limited to the skin and is identified by a rash that may appear on the face, neck, and scalp. It can evolve into the systemic form, which can affect any organ or system of the body. Systemic lupus Erythematosus is more severe than discoid lupus and can affect almost any organ or organ system of the body. No two people with SLE will have identical symptoms. Drug-induced systemic Lupus Erythematosus occurs after the use of certain prescribed drugs. It is more common in men, because the drugs are given to them more often.
    Lupus is hard to diagnose because it has a wide range of symptoms involving various parts of the body; and symptoms differ from each person. Most people develop painful joints and a rash, but lupus may also cause fatigue, depressions, and kidney problems. The treatment of lupus varies from person to person because each person has different symptoms. Most people with SLE require a regular blood test to check for lupus flares. Medication is the primary medical treatment for lupus. Presently, there are no other methods available to treat lupus because there is nothing else that can have the necessary impact on the immune system. Currently, there is no cure for lupus, but with early diagnosis and proper medical treatment it can significantly help control the disease.

    thanks. it would be much appreciated!!!!

  24. Jayne is the Best

    Do my symptoms sound like lupus or other autoimmune diseases?
    Im being tested for autoimmune diseases and a few of my friends with lupus feel that i may have it. Im just going to list my symptoms.

    -Random low grade fevers
    -Peeling of the skin in my mouth
    – Body aches/joint pain to the point of not being able to do daily tasks
    – Abdomin tender to the touch
    – 4 urinary tract infections in 10 months
    -8 sinus/resperatory infections in 10 months
    – Cold sore (which i got into a cut on my neck, getting herpes into my bloodstream and made me extreamly sick)
    – Extreame fatiuge
    -Renauds phenominon (purple fingernails/toenails)
    – A few Small Egsma like patches on my arms and legs
    – Ocassional flushness, but not a “butterfly rash”

    I also have endometriosis. I am 19. Im a little bit overweight( been on crutches for 5 years, hard to work out the past year because of the fatiuge). But i have normal blood pressure, normal cholesterol, im not anemic and my hormones are on a normal level.

    Im not asking you all to diagnose me or anything’ I just want to know if i should prepare myself for a diagnosis or lupus or some other autoimmune disease.

    i hope i dont sound stupid, im sorry

  25. Frodo Baggins

    Rubella or mononucleosis? How do I tell?
    Posted earlier abut whether I might have mono, but in addition to chills, low-grade fever, swollen glands, aching and exhaustion, episodic nausea, etc., I’ve come down with headache plus a small rash on the back of my neck, as well as itching there and on my face and upper back, though we can’t see a rash there so far.

    I know mono, rubella, and generic viral exanthems can cause rash. I was immunized via MMR with booster but took tough immunosuppresion hits since 1988. . .Hodgkin’s, chemo/rads, SLE (systemic lupus), etc. What might I have? (Yes, I’ve a dr appt slated for Mon.)

    1. Maria

      Mono can present with a rash. It usually comes on early in the course of the disease and is maculopapular, faint and usually fades quickly (much faster than the other symptoms) I would wonder where you contracted mono. If you have been on immunosuppresents I’m certain that you are careful about who you are in contact with and wouldn’t be around someone who is showing symptoms of mono. The odds of catching mono from someone that you haven’t had close contact with are low, even with the therapies that you are on. I would suggest that your best bet is the doctor as there are so many different things that fit what you are describing here. Just wait until Monday or if it becomes to much to deal with visit the ER. Good luck and I hope you get to the bottom of it soon.

  26. Christina

    Do my symptoms relate with hypermobility?
    I am 15 years old. I have been sick for two years. I miss a lot of school with medical permission. Lupus runs in family, and rheum. thought I might have it. I have not been tested by any bloodwork except my elevated sed. rate. I was just diagnosed with hyper mobility syndrome and patellofemoral syndrome (chondromalacia patella).

    My symptoms include, ofcourse, pain in joints and bones…length of arm, leg, feet, toes, hands, fingers, wrist, elbow, shoulders, everything except hips.

    I have gastritis and erosion, but biopsies show nothing.

    I am immune to most medicines, unknown cause.

    My symptoms of illness include: fevers, frequent illness, headaches and migraines, crushing pain in chest, pain in chest, pain in ribcages with trouble moving and breathing, scoliosis, shocks in spine with make my legs collapse and I fall, shooting pains in stomach and chest to brain, fatigue, always sleeping, rashes, in sun get rashes on chest and neck. And more personal/serious ones.
    Oh, I also get frequent sore throats, nose bleeds (in 2006, 1-2 per day)=anemia, nasal sores, and vomitting.

    I am going back to school in a week. I was prescribed physical therapy and an anti inflamatory. I want to make sure my medicine will work (Meloxin or something?), beacuse I missed too much school on medical excuses, and I can’t do it this year. I want to know if I got the right diagnosis ? And if you have these symptoms too with HMS?

    1. familyguy

      hmmm…you sure do have a lot of conditions..
      I think rather than physical therapy, which will only address soft tissue issues, chiropractor rehab may be more beneficial for you. Especially if you can find a chiropractic neurologist. They are hard to find…but I think even regular chiropractic care can be more of benefit…

  27. Phaylen

    Have you Had a reactivation of Epstein Barr?
    5 years ago i suffered one of the worst cases of mononucleosis my Doctor had ever seen. Swollen neck/lymph nodes, terribly sore throat that required ice packs, chills and high fever. I was better in about a month and resumed normal activities.

    1 month ago (October 24th) I started feeling a pulling in my neck, like a tight muscle, over time this grew into a full on stiff neck with swollen lymph nodes from behind my ears to the back of my head to my collar bone. hey are palpable under the skin in places, soft, movable, but definitely swollen and my neck feels tight in the muscles. I went to the doctor and he said I had an ear infection and put me on Amoxicillan.

    A week and a half later I was no better and went to the ER and they told me i had a virus, sending me home with Augmentin, claiming I should let it run it’s course.
    I went to the internet for research and while I don’t believe i had mono again because reactivation of it is so very rare, plus, I don’t have a fever or a sore throat- just these swollen nodes and pain in my neck. I went back to the doctor and asked to be tested for Epstein Barr Virus.

    I got a call the following week and the nurse said “You Labs are back and consistent with reactivated Mono. Get lots of rest.” I had questions such as why it would reactivate with fewer symptoms, and how long i could expect these swollen nodes and neck pain to remain since it had already been a month… they didn’t have the time for me.

    My EBV test reads as follows

    Clinical Situation IgG-VCA EBNA EA IgM-VCA
    No past infection – – – –
    Acute Infection + – + +
    Convalescent Phase + + +/- +/-
    Past Infection + + – –
    Chronic of reactivated
    Infection + + – –

    My epstein Barr Panel showed two High Counts.
    EBV (VCA) Ab, IgG 936
    EBV Nuclear Ab, IgG 243

    Now, given that it is rare for people to get mono twice, and if they do it is usually WITHOUT symptoms or due to a suppressed immunity (Like Lupus or Arthritis) I went searching further for answers.

    Because i have had a small rash on my chest at the center of my breastbone that is occasionally itchy, as well as what had been diagnosed as dermatitis around my scalp and upper back- My symptoms seem to correlate with the dreaded word no one wants to hear: Lymphoma. It also seem EBV has a direct link to some Lymphomas.

    I called back my doctor and demanded a referral to an ENT and a CT scan of my neck- I’ve had chest X-rays previously due to a light persistent cough and they are normal.

    I’d like to ask Anyone who suffers from long term EBV effects if they experience swollen nodes and stiff neck for more than a month years after initial mono infection. Am i putting the car before the horse or being logical here. The concept of cancer frightens me to death, though there is no Lymphoma in my family.

    Do you EBV sufferers feel the same way? Do you have chronic swollen nodes and a stiff neck for more than 4 weeks at a time without other traditional mono symptoms?

    1. Doctor J

      Hi Phaylen. I am NOT an expert in Epstein Barr infections. However, I have a substantial interest in the role nutrition plays in the functioning of the immune system – which can play a significant role in controlling Epstein Barr infections and risk for various cancers.

      What I am offering here is merely conjecture – an educated hypothesis. There is very little specific scientific research in the area of Epstein Barr virus infections and nutritional status. What research is available suggests the following possibilities:

      1) Vitamin D deficiency is very common (an epidemic) and its effects on the immune system can impair the system’s ability to fight viral infections such as Epstein Barr virus (EBV). Have your doctors tested your blood levels of 25-hydroxyvitamin D? This is the proper test for Vitamin D status. You want a number in the “high-normal” range to be healthy.

      2) Zinc status is a major player in immune system health. Low zinc intakes from normal diets are very common. Even marginally inadequate intakes of zinc can impair immune function and limit the immune system’s ability to contain a viral infection. Again, have your doctors tested your zinc status? Have they measured ANYTHING about your overall nutritional status?

      Below are a few links to scientific papers that support the comments I have made here.

      Best wishes and good luck.

      I have added a couple of additional papers on zinc. They are fairly technical but, they provide a solid scientific basis for the potential relationship between your zinc status, immune function, and risk of viral infection and cancer.

  28. Alicia

    Am I Hypothyroid??
    Well, I am a 29yo female who is just miserable. I have gained 25 pounds in 6weeks, have facial swelling, my face and ears get really hot, low grade temp, weak legs, full abdomen. My doc has done testing for lupus, sjogrens, and cushings. She also tested my thyroid. She sd it was normal. my TSH was 0.79. and my free T4 was 0.81. she did not run T3 or antibodies. Also, my adrenal gland test was just the suppression test only. my cortisol was 1.0 with the suppression pill night b4. I am miserable. My doc left on vacation and wants to wait and see me in 2 weeks! She has given me no relief. I had it today and went to ER. He did chest xray, ECG, TSH, CBC. You know what he told me? You need a smarter doc than an ER doc……what???? as i was changing gown, i noticed i had start of a rash. pink red pinpoints. also, on my chin and neck are little whitish hard bumps all crammed together. HELPPPPP!!!!

    1. handguns_heartache

      Get a second opinion, preferably from an endocrinologist. I have Cushing’s and it took a while to actually diagnose me because my levels were not as elevated as they should be, but low and behold, I do have it. Because it is such a rare disease, the diagnosis is not something that is easily and quickly reached. Be persistant.

  29. j

    what could be wrong with me?
    i have been having skin rashes,a rash on my cheeks and nose, an awful looking mottled rash at both ankles,a red rash on the inside of both elbows,my hair is falling out and i have joint and muscle pain all over my body.everything fever.extreme fatigue.tingling and numbness in hands,fingers and feet and toes.doc ran tests for rheumatoid arthritis, was 20,said no,lupus ana was 1:160 doc said that is negative also.lyme test negative. neuro said severe carpal tunnel in right hand,though no idea how i got that as i am stay at home mom.mri tests say i have alot of disc damage from two herniated disca and spinal stenosis and degenerative disc disease and a focal kyphosis all in my neck(cervical spine) though the only symptom i have there is a stiff and sore neck every once in a while.doc says it is arthritis of the spine.what kind of arthritis affects the entire body and attacks the spine if not rheumatoid? the rashes if not lupus? i am miserable and confused!
    also forgot to mention that i have been seeing black dots in my field of vision for over a year now.
    also a blood test called sed rate that measures for inflammation was very high.also a vitamin d deficiency.

  30. K_Seeks4Answers

    Pain in Right Arm Muscle, Shoulder,upper neck and Rash?
    This is driving me crazy almost every year I get these same symptoms, and the doc. has not made a correct diagnosis yet. Anyone know someone with similar symptoms? This is how it starts as I see it now, Sinus type infection, arm pain around the muscle area, feels like the circulation is being cut off. Pain in base of skull on right side, and shoulder pain. Then the rash starts on the right arm around the arm pit, always starts there. Then the left side arm pit, then the lower thighs. Any ideas what this is?
    I know its not Lupus.

    1. Stephanie

      how is your liver? you might need a pcr test to see if you may suffer from hepatitis c (or b). do not rely on alt and ast in a normal test…sometimes alt and ast levels appear normal and you can still have hepatitis!

  31. Michael B.

    Unexplained medical problems?
    I am a 22 year old male. I have always been a little overweight since I was a child. I have a history of asthma and depression, but other than that I have always been relatively healthy. In the last few years I have noticed some changes going on. Some things have been happening that have really concerned me in one way or another. I usually attribute it to anxiety and choose to ignore it. Let me start from the beginning.

    About 3 or 4 years ago I noticed some odd rashes on my skin. Brown in color, oddly shaped, but it was a consistent shape. it sometimes got lighter or darker but now it has almost disappeared. A few weeks ago I noticed some similar patches around my neck and shoulder area. I figured it was odd so I did what most other people do when they have a medical question but are too broke to go see a doctor… Web MD! I know reading that stuff will give you a panic attack just thinking about what you could have but hey, it was something. After checking some symptoms I googled some images of skin rashes hoping to match up what I had with someone else who had been diagnosed with something. I came across something that looked very similar, and it told me it was a lupus rash. I did some research and found out more about it but I figured the skin rash part of it was nothing to worry about and people just lived with it. However some new symptoms have me wondering.

    Last winter was horrible for me. I don’t know what I caught but it really knocked me on my butt for about three days. I had a severe fever and fatigue, but after 3 days of rest I felt better. Unfortunately somehow I ended up with an extreme case of Bronchitis which aggravated my asthma symptoms. I started taking my asthma medication again (I had stopped for the last 5 years because I never had anymore symptoms since I was a kid) and on some nights when I felt I couldn’t breathe I also took an albuterol nebulizer and my symptoms started to improve. One day I was at my fiance’s house and some things started to happen. On top of my allergies to her cats I kept coughing because of this bronchitis I couldn’t shake. I started having chest pains which freaked me out so I drove myself to the local Emergency Room. The diagnosis was Allergy induced asthma, and bronchitis with bronchospasms. I was prescribed a steroid (prednisone) to open up my airways and sure enough I got better. However one thing I notice now is that I sometimes feel like I don’t get enough air, like I can’t breathe in deep enough. It seems to happen more when I eat a lot so I have been avoiding eating as well. This really concerns me.

    I was not feeling well last night and I was searching online as usual for an answer. Out of the possible causes list of my symptoms (of about 50 different causes), up popped that name again. Lupus. Sigh.

    So I did some more searching to lupus related to some of my symptoms. These result alarmed me. I read a few personal accounts where people who had tested positive for lupus were experiencing very similar symptoms to what I have been feeling. One story was of a 10 year old girl who DIED from complications to lupus and MRSA. That scared the crap out of me. My fiance is pregnant and due later this year so I really want to make sure I am around for a long time to take care of her and my child. I just started a new job and another thing that alarmed me was when I had a drug test the report said they found trace amounts of protein in my urine. Hmm. Did some searching and the cause of that was also associated with symptoms of lupus. I am away from home for 4 weeks out of the month as an over the road truck driver and I have little time to be messing around with doctor’s appointments. Do I sound crazy or do I have reason to be concerned?

  32. The One

    Positive ANA, Lupus or something else?
    For a few years i have had many symptoms, was diagnosed with Diabetes and Celiac Disease (an autoimmune disorder) and I have symptoms such as bone/joint pain, tiredness, fatigue, back/neck/shoulder pain, headaches in the back of the head, anxiety, depression, a facial rash that seems to worsen with sun exposure, heat and sun sensitivity and I had a few Lupus tests about two years ago that came back negative.

    These symptoms and many others seem to come and go, such as the neck pain it will come and go in intervals of few weeks. Now I had a ANA test done two weeks ago because my rheumatologist was concerned that Lupus is still a possibility. I had to go get my results on Tuesday but from a different doctor, a general practitioner and seemed to not know anything about medicine.

    She told me all my tests were negative and i did not believe it, so I asked her if she was sure so she sowed me the results on the computer screen and I saw several positive or “high” tests. One of them was ANA, it was possitive, so i asked her what that meant and she said ‘its nothing, its a nonspecific test, dont worry about it”… is this true? should I not worry about it? and if it is so not important, why did my rheumatologist order it in the first place?

    Can you have only ANA test positive and no other antibody for lupus and still have Lupus?

    1. mgunnycappo

      Let me actually answer your question. An ANA test is a non specific test that shows the existence of an auto immune disease. It isn’t specific for Lupus. That being said, there are other tests for Lupus that can rule Lupus IN but not OUT.

      An Anti-DS-DNA, Anti-RO, Anti-SM are all tests that will help in a Lupus diagnosis. About 30% of people with Lupus will test positive for these tests. If you do test positive then you have Lupus. If you test negative you can still have Lupus.

      With your symptoms it sounds very much like Lupus. I would get copies of all your lab work and research it on the web. Then go to your doctor with specific questions about each positive result. Talk to them about your symptoms and ask what they think it is. Don’t take, “I don’t know” for an answer. If they say this then tell them to find out.

      Unfortuately, there are a lot of doctors out there who are uneducated about Lupus. Many of them just pass you on to someone else or worse yet, explain your symptoms away. You’ll have to be a thorn in their sides until you obtain your diagnosis. Whether or not you have Lupus, you need to be an advocate for your own health care. Good Luck to you!

  33. Brittany

    what is this pimple/bug bite like rash that wont go away?
    i woke up on saturday and i noticed a weird patch of something, like dry skin maybe, in an oval shape, right under my bra line on my side. throughout the day i noticed i was getting a bit of a rash on my stomach. it was like little red bug bites or pimples. but it wasn’t TOO bad, and it was only on my stomach, so i thought nothing of it and ignored it. the next day the rash had worsened, and it was on my back now, too. but it wasnt itchy at all. until today. this is the 4th day ive had the rash, and its now on my stomach, back, sides, chest, and back of neck. its gotten worse and worse, and now its starting to become really itchy. ive also notcied that in water, it seems to worsten a lot. when i take a bath or shower they seem to spread. does anyone have any idea of what this could be? ive looked at things such as rosacia, shingles, lupus, chicken pox…etc. i dont think its any of those. but…please help?

    1. Hush

      It could be all sorts of different things, from chicken pox to a virus to poison oak, and it’s just not possible to diagnose over the Internet. Your best bet is to go to the doctor so you can get treatment, relief from the itching, and prevent infection. In the meantime, you can try calomine lotion or an oatmeal bath to help reduce the itching.

  34. L to the N

    Do I have and autoImmune problem? I have increasing fatigue and joint pain. but neg lupus and rheumatoid tests?
    I am 40 yrs old and over the past year or so have increasing severe fatigue, pain and aching in my back, neck, hips and shoulders. I now have about 10 “good” days out of each month. I also have been sick a lot, have had reoccurring shingles. I get hives out in the sun and burn in only a few minutes. And I get weird rashes on my body -usually down my back or my upper neck and chest area. I have low thyroid (but levels are in control with low dose of med) and occasional anemia. I am a healthy weight, healthy diet, and very active but now if I push myself too much with activity I get extremely nauseated. Rheumatoid and Lupus tests came back negative but my Igg (?) was low. Also a few weak positives. My doctor is trying to get me referred to a rheumatologist or immunologist but it has been months going through the hoops with poor medical insurance provider and still trying. Maybe a change in my diet could help if I knew what was wrong? I’m becoming more frustrated by the day.I have 4 months of nursing school left and have got to get better to make it through and finish! Any ideas whats wrong with me? Any thoughts or suggestions would be appreciated.

    1. sailor

      I am going to suggest two types of things that you may be eating that may be causing you problems.

      The first is gluten containing foods if you have developed celiac disease or a gluten intolerance. You can get tested for celiac disease by continuing to eat gluten found in wheat, rye and barley until you get tested with blood work and an endoscopy. Even if the tests are negative, go gluten free for 3 months to see if you have nonceliac gluten intolerance.

      The second type of foods are called nightshades which are tomatoes, potatoes, peppers, eggplant and a few others. They can cause joint pain and in some people, cause rashes, hives and other problems. You would have to quit eating them and see what happens.

      I see what you said about insurance providers so if you want an answer without testing, then you just go on a gluten free diet and see if you get better. After that go nightshade free if the problems persist.

      If the problems persist after the diet attempts, then you may need to see a team at a research hospital about the possibility of vasculitits or another autoimmune disease.

  35. House, almost MD

    I don’t really see any appreciable rash on your face in any of those photos. If you think you might be getting lupus, go get the blood tests for it to make sure you are not in the early stages. Based on what you have said so far, I am confident that you do not meet the diagnostic criteria for lupus. However, it is definitely something you should keep an eye on and if you have other bothersome symptoms you should go to the doctor and get tested for lupus since you have a family history.

  36. Cindy

    I know diagnosing someone with Lupus isn’t easy, but could I have it, or was it just an infection?
    Back in November, during the school day, I was sitting in class and my knees had a not-so-comfortable sensation. They were hot to the touch and they felt like they were burning. Naturally, I started rubbing them, and it soothed them temporarily. In this class, I couldn’t get up for an hour and a half, and when the class was over, I stood up and I had the worst pain ever in my knees. It was difficult to walk for the rest of the day. At the end of the school day, I noticed that my fingers and the palms of my hands were swollen. When I got home and showed my mom, we decided to go up to the ER at Children’s Hospital.

    After arrival, 30 minutes later, I started to develop a red, elevated, blotchy rash on my forearms. Soon after that, all of my joints began to swell. When I got up to walk to the bathroom, it was like having balloons for feet. I told the nurses and they soon came in to do a couple tests. After taking 4 tubes of blood (after spilling my blood all over the floor) and a cup of urine from me, they quickly, and oddly, came back and said they found nothing wrong. They gave me a prescription for benadryl and ibuprofen and sent me home after being there for 5 hours.

    When I got home, I did my regular routine of washing my face at night, and I noticed that I had another blotchy, red rash across the bridge of my nose and my cheeks. I thought it was odd, and so did my family, but I just took my benadryl and went to sleep.

    I woke up the next morning at 5 am, and it was as if all of my joints were locked and swollen — I couldn’t move at all, unless I wanted to experience a simulation of someone bashing my joints with a baseball bat. I had never experienced pain like this at all. After almost falling down the stairs (dumb on my part) and crying for an hour, my mom drove me to the same emergency room. The nurse gave me some ibuprofen (800mg) and came back a few minutes later. The pain didn’t subside a bit. The doctor finally came in, asked me about everything prior to then, and told my mom and I told to hold on. He called the rheumatology department and he told us to go down there immediately.

    We drove downtown and got in to the emergency appointment. Two doctors came in and looked at me and tried to get me to do some things. I couldn’t lift my arms up over my head, I couldn’t make the ‘OK’ symbol, and it took me longer than usual to walk up and down the hall. They prescribed me prednisone to take for a couple weeks, took 5 tubes of blood to do some tests, and I went home. I couldn’t go to school for a few days.

    The following appointment, they updated me on the tests they did. I came up positive for the ANA test (1/160) and I tested positive for the mono test, but they said they weren’t too sure on that one. They had said that it could most likely be Lupus, but they needed more time (“We’re not going to rule Lupus in, but we’re not going to rule it out, either” is what they said). 10 minutes later, I was attempting physical therapy, which they didn’t tell me about prior to the appointment, and while I was in the middle of my PT, two social workers came in and asked me too many questions about my personal life. After that, I was scheduled for yet another appointment and I went home, still swollen, blotchy, and in pain.

    The following appointment, they did a follow-up. I was wearing a pearl necklace that day, and when I took it off, it felt like it weighed 20 pounds around my neck and my chest was sore. I was improving, but not back to my 100% self. They started to ask me questions about how school was going and if I was keeping my grades up. Then they recommended me to see a therapist, which was odd. After the appointment, I did my physical therapy. They gave me heat-molded inserts to put in my shoes and some exercises to do at home, then they sent me on my way.

    Two weeks after the appointment, after getting back to normal, they took more blood and urine from me and ran the same tests. Two weeks after, they called and said that it was just a minor infection that just came and went. They didn’t tell me about my blood tests, but they told me that they found protein in my urine. But they said that was normal. Odd, but I’m not a doctor. They told me that if I ever have any other problems, I can call directly to their office. I then received papers in the mail from the state saying I had polyarthritis.

    Months after, I still experience joint pain and swelling, not so much on the rashes. It’s not as extreme as what happened to begin with, but it’s still bothersome. Sometimes I wake up in the middle of the night nauseated, and sometimes when I walk, I feel dizzy. I get painful headaches at least 4 times a week and at least twice a week, I have a tingling feeling on top my head, same as when your foot falls asleep. They keep telling me to take ibuprofen.

    What should I do? Sorry for being so lengthy!

    1. Linda R

      I would get a second opinion. Arthritis means swolled joint. Polyarthritis means many swollen joints. A positive ANA could be lupus, or possible rheumatoid arthritis which is sometimes called juvenile (young person) idiopathic (they don’t know the cause) arthritis (swollen joints).

      It is absolutely NOT normal to have protein in your urine. If you have that, it means there is inflammation in the kidneys. 40% of people with lupus develop nephritis (kidney inflammation).

      See another doctor.

  37. Jake

    Can you Diagnose me?!?
    I am a white male, 22 years old, I am about 120 pounds, height is 5-10, I get very little exercise. my heart rate is in normal range.
    My symptoms are:
    1) groin rash,
    2) high blood pressure,
    3) joint pain, on elbow and the bottom of my foot hurts when i walk on it sometimes.
    4) 1 bloody nose(may not be relevant),
    5)swollen lymph nodes on groin neck and on a rib, the swollen ones on my groin seem to have started a couple of months ago. and they hurt on and off.

    the groin rash started about 6 months ago but recently it has seemed to spread to the opposite inner thigh.

    I tested myself for high blood pressure in 2008 at a walmart. and i had a 149 if i remember correctly, And i really haven’t changed me eating habits since then. I eat very unhealthy to be honest. Lots of sugar, lots of salt. I realize this could be the cause.
    I also am experiencing some hair loss.

    I’m not sure if all the symptoms are related. I think it might be stage 2 diabetes. or maybe some type of lupus. but I’m not sure. maybe its just a mix of high blood pressure from eating junk food. and infection from rash to explain the lymph nodes. could stress have caused some of the symptoms as well? I lost my job recently… so i don’t have health insurance. and I don’t have the money for a doctor. Please help!

    1. ScottAz

      stress can cause some of the symptoms.

      you didn’t mention your sexual history and that could be very relevant to the rash and the swollen nodes.

      Lupus is also an option.

      Nobody here could ever diagnose you. Go to the free health clinic in your county, call the local government and ask where it is.

  38. Kayla Nevermind

    Oh god… Do I have lupus?
    Hi I am 14, female.
    Ever since I was little I have been dealing with a lot of health issues and I’ve always wandered if they all tied together but never found anything. Well I just came across a web page talking about lupus and I have about 16 of the symptoms they listed. I have always gotten this rash thing on my nose and cheek bones and it gets really bad in the sun. Also, when I was in the sun a lot I would get very fatigue and dizzy and sick to my stomach. My doctor said that he thinks I’m allergic to the sun and to just try to keep out of the sun. I’ve also always been very fatigue and I got tested for thyroid often because of the severity of that. My joints have always been really messed up. I get a general discomfort often. I just don’t feel good and I can’t quite say why. I get muscle aches that keep me up through the night and force me to tears. I get swollen glands in my neck often. I get nausea and have heart burn way more often then normal. My hair is really thin and I loose it a lot. I have been getting nose bleeds out of nowhere since I was 8 and they are bad. I get numb and tingley almost constantly. I have a few little red spots on my skin. I have weir light patches on my skin. My vision is a little off but nothing to the point where I need glasses. I have difficulty swallowing and I feel like there is a lump in my throat. The past few months I have gotten extremely intense stomach pains that come and go and I am getting an ultra sound on monday for that. Does this all sound like lupus? Should I tell my mother that I think I have lupus and then go to the doctor? Thank you.
    Also my lungs have been messed up since I was about 8
    Also I started cutting myself and thinking weird thoughts and just kinda being insane when I was 8. I am in therapy now and I don’t cut myself but I am still kinda messed up in the head.

  39. lorr1941

    Can Lupus get up and leave your body——–permanately?
    was diagnose with Lupus—-Aug.29/84——–and given one year to live. The DR ordered home care and everything else that went with it for me……… Since I have moved———and not one DR will acknowledge that I have Lupus…………I have alot of unneccessary pain———-stiffness, inflammation(when on antibiotic—I don’t have any pain while using it) get a rash across cheeks about every 10 years——-got one 4 years ago went to emergency and there DR told me it was Shingles————-from having chicken pox when I was younger(not one person in my family—–brothers,sisters, including myself)remember me having chicken pox———–have been asthmatic all my life—-and had measles—-mumps——nothing else–so why don’t DR acknowledge what the patient tells them as alot of us do know what we are talking about……….my feet hurt really bad and now lately was hospitalized for severe pain from neck down to bottom of feet and blood splurting out of anus——

    1. Linda R

      You still have the symptoms that can go along with lupus EXCEPT the blood from the anus. Get medical attention for that NOW!

      The same patient with the same symptoms may present themselves to 2 doctors and one would come to the diagnosis of lupus and the other would not. Many doctors are not familiar enough with lupus to make a diagnosis.

      Get copies of ALL your medical records and bring them with you to your next appointment and also make an appointment with a good rheumatologist.

      Lupus does not leave your body, although it may be quiet for a while. Lupus IS your body. Lupus occurs when your own immune system attacks YOU.

  40. Christina

    Lupus flare and rash from sun on neck and chest pain?
    I am 15 years old (female), and without a doubt have Lupus. My doctor is slow in diagnosing, which is understandable, but he keeps telling me things are wrong with me other than Lupus, that really aren’t, he keeps giving medicine to treat my “illnesses,” and they don’t work because he’s obviously wrong. I have been on all kinds of medications for various things, except for Lupus! He is holding off on lab. tests (which is pissing me off!) and is starting to have attitude with me…I think he thinks its all in my head even though I have all symptoms, genetic history of Lupus, and even his resident is trying to speed things up because she knows I should be tested and diagnosed (I am sick and do not want to live like this any longer). I told him I am missing school because the teachers are sending me home for being too sickly to be in school, and I’m in college level courses, and the school is demanding I get a tutor. I am not going to go over all my symptoms, I do want to know 2 things…
    How can I get my doctor to speed things up and to make him understand I am seriously sick and need immediate attention?

    And more importantly…I was just outside in the sun (it’s about 75º in New York) for only 8 or more minutes trying to get my puppy’s to come inside…When I came in, as usual during a flare, I got a rash over my chest and part of my neck. A little while later I got severe chest pain, which makes it hard to take deep breaths, and strikes pain when moving (bending)…I get this chest pain randomly, but is there a connection with this pain and the sun and/or the sun rash? If so, what and what does it mean!?

    1. poetess1966

      First let me tell you I’m sorry you’re having so much trouble. It took 4 years for me to get the correct diagnosis because of the exact thing you are going through, doc’s don’t listen. I have had Lupus for 7 years. My advice is to first find another doctor, at a teaching or university hospital if possible. Second, yes it sounds like lupus. The chest pain is probably from something called costochondritis, which is a swelling or inflammation of the cartilage that connects the breastbone ( sternum) to the ribs. It is very common in lupus. Sometimes it can even seem like a heart attack it hurts so bad. The best treatment is to haet a wet wash cloth in the mircowave for 30 sec and then lay it on the breast bone. Repeat as needed. That and Tylenol often help it. For more info on Lupus contact the Lupus Society there in New York. Good Luck

  41. Jayne

    Lupus? Or something else? Input appreciated!?
    So, my doctor suggested once that I be tested for lupus (at my next doctor’s visit, which, unfortunately, are quite intermittent because of the large volume of people who see this doctor). I’ve been trying get diagnosed with SOMETHING for nearly 4 years now, and now he’s pretty sure it’s autoimmune, and he suggested lupus.

    So, desperate for an answer, I’ve been doing some research, and some of my symptoms match up. Such as:

    -Joint pain (though I don’t really notice if they’re swollen) — in my hips, knees, elbows, wrists, back/neck
    -Sun-sensitive — does this mean getting sunburned REALLY easily? Because I do, though I’m not sure that’s what that means.
    -Extreme fatigue the vast majority of the time
    -Weight gain I’ve been struggling with for years
    -Anxiety – particularly social anxiety and stress-related anxiety
    -Butterfly rash – it’s not really a long-lasting rash, so much as I get flushed really easily and it looks like a butterfly rash
    -Shortness of breath

    Other symptoms not covered by lupus (so far as I’ve found):
    -General and often nausea (never vomiting)
    -Digestive problems
    -Salt craving — I’ve seen that this can be Addison’s disease, another one he mentioned.
    -Appetite fluctuations – generally, I’m usually hungry every 3-4 hours, but sometimes I’ll be ravenous for days on end, and no matter how much I eat, I am never full. Likewise, sometimes to look at food makes me nauseous and I can’t eat at all.
    -Irregular blood sugar levels — I often wake up with high blood sugar, and it often dips down quite low during the day, even after I’ve eaten

    This is all very confusing and frustrating that I can’t see my doctor more often than every 4-6 months. I guess the main question is: is lupus a possibility? But any opinions or input is much appreciated.

    –18 year old female, active, healthy diet
    –Have been test for Celiac, and though I was told it was negative, I have a strong feeling I should be retested, because I have several of those symptoms, as well

  42. melina

    I think i have lupus disease but my Rheumatologist will not confirm it…?
    My Ana test was positive 1/1280+.I have red rashes all over my face,neck,shoulders,chest.This happens on a daily bases and it is very intence.It appears usually when i am feeling stressed or because of photosensitivity( sunlight) and goes away after one hour or so.I have pain in my joins,but this also goes away with aspirin.The rashes bother me the most, i’m always trying to wear clothes,so other people cannot see. My Rheumatologist says it looks like lupus,but the evidence is not enough for him to give me medicin,since all the other tests came out negative( Anti-Cardiolipin, Anti-DNA ,Anti-Ro/SS-A ,Anti-Sm antibodies) .I did not ask for a second opinion. It has been two years now.I still feel fatigue,have headaches,rashes…Is this all from stress and due to sensitivity of my skin?Should I repeat the test and ask for a second opinion?

    1. ellimnist

      From personal experience, the ANA is the most common test for lupus, but since all the others came out negative which also usually come out positive it may be something else. It takes a long time for diagnosis of Lupus, took like two years to figure out what i had. You may have HSP which is extremely rare but they thought i had it, similarities to lupus except it goes away after a certain time period. Get a second opinion. Definitely get a second opinion you will most likely get medication, Prednisone, a steroid and Plaquniel (spelled wrong) an immunosuppresent. stops the pain.

  43. angelinaismywifey

    dry skin, odd scarring bumps on face, neck, back and raynauds syndrome…..what could this be!?
    scaly hands and thickened skin on hands and feet
    swelling of any possible joint
    circulation problems and changes
    abnormal amounts of grey hairs all of a sudden
    weight loss
    gastrointestinal problems
    itchy skin!

    etc! i cant get a diagnosis i wanna say its lupus but w/ a rash that is noticable to everyone else …

  44. wot_tha

    Where does FibroMyalgia stop & Lupus Start? Is this condition ‘manageable’? Will I be able to return to work?
    After spending heaps of time, effort and money on specialists, I have been diagnosed with Fibro Myalgia, Raynauds Phenomenon together with a “side serving of SLE”.
    I find this diagnosis .. vague to say the least.
    I am taking Plaquinil, and pain killers.
    I have been unable to work for 3 months due to hot flushes, varying degrees of pain, chronic tiredness, crazy skin rashes etc ect.
    I have not had a period for 5 years (which is not such a bad thing! )
    yet, all the blood tests and ultrasounds reveal that I am not menopausal.
    Some mornings I can barely walk – my feet feel like they have been burnt, and they ache (like an elephant has stepped on them)
    When I move my shoulders they sound like rice bubbles – Snap, Crackle & Pop! They hurt like all fury as well.
    If my shoulders are not hurting then it’s my lower back, if it’s not my lower back, then it’s under my rib cage …. yarda yarda yarda!
    I have the memory span of a goldfish – which the teenage kids think is wonderful (they get away with lots)
    I regularly sleep 16 hours out of 24.
    I do not have a butterfly shaped rash on my face, it is on my neck. If I spend any time in the sun – regardless of hat, shirt or sunscreen – I come up in itchy, burning welts.
    Since I was 12 years old … After showering, swimming, perspiring, or sudden temperature change – I break out in an itchy hive type rash (great look for a teenage girl) for which I take antihistamines.

  45. WTF

    Hello, i am a 29 year old female that has suffered from joint pains and eczema for years. I have recently?
    developed neck spasms, chest pains that feel like my chest is tearing apart, rash on my face, abdominal pain, nausea, headaches and liltte red blood spots on my arms. I went to the ER about a month ago and the doctor at the ER told me that he thought i had Lupus, but my primary doctor had to order me the test. He was the 8th doctor i have seen within 6 years that had told me the same thing, however i have also been tested 5 times and they all came out negative. I still went ahead and told my primary doctor what he told me. She went ahead and ordered some blood work and it came back negative. She is saying now that i might be Fibromylagia. I am fustrated, how could 8 doctors suspect Lupus , but yet i don’t have it? what is it? help please

    1. Irene

      hi it could well be fibromyalgia ,it has a whole host of symtoms and is wide spread through your body just be glad its not lupus although fibromyalgia is bad in itself ive had it for 20 yrs each days different with it

  46. willow07

    I am experiencing pins and needles sensation in right arm mainly at elbow down?
    the forearm and into the hand. My thumb and forefinger is affected the most. I am also getting redness and itching near the elbow area, but on the forearm and sometimes I get a rash near thumb and finger.
    I had an EMG and NCV done. Doc thinks it is not carpal tunnel, This has been going on for a few months. I do have herniated discs in neck but can it cause a rash? I have to be tested for Rheumatoid factor and lupus. Any ideas what this is?

    1. FlowersYes

      Pins and needles are often a sign of something affecting a nerve. The rash could be connected in that if a blood supply is limited to that area, the tissues aren’t getting proper nourishment. Something could be pinching an area where there are nerves and blood supply. It could also be other things and your doc is doing the tests believed to be necessary to help find the cause.

      Best of luck with this as I know it’s troublesome when you don’t know what’s going on.

  47. Roze

    Need help, what is this thing on my neck?
    I have lupus and i have SLE associated with it, just recently, i got a cut on my earlobe.i had a sudden outbreak of weird rashy and scaly and bumpy things on my neck. then last night, it spread to my lower neck, side of face, and a little behind my ear. I was wondering if this was just a rash associated with SLE or what, please helpp!

    1. Someones' Mom

      Systemic Lupus Erythematosus (SLE)? Might want to check in with the doc who is treating your Lupus who can best advise you, as Lupus is pretty specific as is erythema. Self diagnosis is never a good idea using the internet.

  48. Jake

    I need a diagnosis please!?
    I am a white male, 22 years old, I am about 120 pounds, height is 5-10, I get very little exercise. my heart rate is in normal range.
    My symptoms are:
    1) groin rash,
    2) high blood pressure,
    3) joint pain, on elbow and the bottom of my foot hurts when i walk on it sometimes.
    4) 1 bloody nose(may not be relevant),
    5)swollen lymph nodes on groin neck and on a rib, the swollen ones on my groin seem to have started a couple of months ago. and they hurt on and off.

    the groin rash started about 6 months ago but recently it has seemed to spread to the opposite inner thigh.

    I tested myself for high blood pressure in 2008 at a walmart. and i had a 149 if i remember correctly, And i really haven’t changed me eating habits since then. I eat very unhealthy to be honest. Lots of sugar, lots of salt. I realize this could be the cause.
    I also am experiencing some hair loss.

    I’m not sure if all the symptoms are related. I think it might be stage 2 diabetes. or maybe some type of lupus. but I’m not sure. maybe its just a mix of high blood pressure from eating junk food. and infection from rash to explain the lymph nodes. could stress have caused some of the symptoms as well? I lost my job recently… so i don’t have health insurance. and I don’t have the money for a doctor. Please help!

    1. mrs g4

      You are (drumroll)…
      A Hypochondriac.

      In-store BP machines are notoriously inaccurate, your rash is likely a dermatitis from the laundry soap used, the joint pain is common to every human of every age, bloody nose means dry winter is here, and the lymph nodes are from a minor infection.

      There’s nothing wrong with you. Stop reading about illnesses, and your “symptoms” will disappear.

  49. Pseudo Nym

    Can the ER diagnose Lupus?
    A little back story- I have several symptoms of lupus. Excessive tiredness, joint pain, painful skin rashes that come and go, mouth ulcers, all that stuff. My physician doesn’t seem to take me seriously when I say I don’t feel well, or that antihistamines and itch creams do not help my rashes. My fingers do not turn blue when cold, but the nail beds do. So far the skin rashes have been mild. It’ll start with a few bumps somewhere and by a few days later I have several small patches of itchy, painful rash that take a week or two to resolve. The worst case I’ve dealt with, until now, was during a trip to the beach. I thought maybe I was sensitive to something new I encountered on my trip and again allergy meds and creams did nothing. It wasn’t until I started reading about Lupus that I found out about photosensitivity and rashes caused by sun exposure. That incident took 3 weeks to fully resolve.

    Starting two weeks ago I started getting tired, almost zombie like. I was very groggy, couldn’t think straight, and my hands HURT. The only comfortable position I could keep my hands in were balled in a loose fist, extending the fingers was painful. That eased up a bit, but body aches soon kicked in, and are worst first thing in the morning. On Saturday I noticed a weird spot on my upper thigh that looked like rug burn under the skin. Nothing raised, no sores, pain or itching involved. By last night I had a couple of bumps surface and that was it before bed. When I awoke this morning my thighs burned. I had an intense rash down the front and inner parts of both thighs. The rash bumps thinned out but still continued to my calfs. I also have patches of bumps on the nape of my neck, my shoulder, my ribs and I have non-raised red spots on the back of my hands and underside of my right arm.

    I am tired of my doctor’s lack of understanding of the issue. I went in last week for the pain and fatigue and he wanted to test my thyroid and other basic blood levels. All was normal except for my vitamin D, which I take a daily supplement for already so I found it odd that it was low. More research has revealed that lupus patients often struggle with low vitamin D. I’m afraid that if I go to my doctor that he’ll try to brush this off as a basic rash and send me home with another cream that will do nothing for me. If I go the ER will they be able to do anything? I want to be seen with the rash in full force, so waiting for an opening at a new physician’s office won’t do. I don’t want to waste a trip to the ER if they’re just going to tell me to see my primary doctor.

    Advice please!

    1. 2blest2Bstrest

      Better than waiting for a rash……. From the sound of it, you very much need to have the thyroid testing … TSH and Antibodies (make sure BOTH!) All of this can be from thyroid disease.


  50. Jake

    What illness do I have?
    I am a white male, 22 years old, I am about 120 pounds, height is 5-10, I get very little exercise. my heart rate is in normal range.
    My symptoms are:
    1) groin rash,
    2) high blood pressure,
    3) joint pain, on elbow and the bottom of my foot hurts when i walk on it sometimes.
    4) 1 bloody nose(may not be relevant),
    5)swollen lymph nodes on groin neck and on a rib, the swollen ones on my groin seem to have started a couple of months ago. and they hurt on and off.

    the groin rash started about 6 months ago but recently it has seemed to spread to the opposite inner thigh.

    I tested myself for high blood pressure in 2008 at a walmart. and i had a 149 if i remember correctly, And i really haven’t changed me eating habits since then. I eat very unhealthy to be honest. Lots of sugar, lots of salt. I realize this could be the cause.
    I also am experiencing some hair loss.

    I’m not sure if all the symptoms are related. I think it might be stage 2 diabetes. or maybe some type of lupus. but I’m not sure. maybe its just a mix of high blood pressure from eating junk food. and infection from rash to explain the lymph nodes. could stress have caused some of the symptoms as well? I lost my job recently… so i don’t have health insurance. and I don’t have the money for a doctor. Please help!

Leave a Reply

Your email address will not be published. Required fields are marked *