I sometimes get emails from folks who have had a positive ANA (antinuclear antibody test) from blood work or suspect that they have an autoimmune disorder which has contributed to changes in their hair including loss, shedding, thinning, and changes in color and texture. In the following article, I’ll go over some well know and not so well known autoimmune conditions that commonly contribute to hair changes or loss and tell you how they often affect the hair and scalp.

Alopecia Areata (AA): When most people think of autoimmune hair loss, AA is typically the first thing that comes to their mind. This condition is known as the reason that Princess Caroline of Monaco temporarily lost her hair. The condition most often presents itself in hair loss that is defined by bald spots that are round and patchy. Often, the hair around the patches is totally normal, but the round patchy areas are smooth and sometimes completely bald.

Another condition that goes hand in hand with AA is alopecia areata universalis. In this case, you will often have hair loss over the entire body including the whole head (often total baldness) as well as other areas like eye lashes, eyebrows, pubic hair, the beard area, the under arms, etc. Sometimes when this process is ongoing, you’ll see “exclamation point hairs.” These are hairs that are broken off and are tapered so that they are much narrower the closer you get the scalp. They flare out on the broken ends.

There is a lot of controversy over what actually causes AA. Most agree that it is autoimmune in nature, but some believe that it is aggravated by stress, allergies, or viruses. Treatment is often oral steroids, corticosteroid injections, or experimental stimulation of the scalp with herbs like rosemary and lavender.

Lupus And Hair Loss: Probably the second most common autoimmune disorder known to cause hair issues is lupus or systemic lupus erythematosus. Often folks with this condition are affected with a malar rash that can affect the scalp, and cause scarring which can lead to temporary or permanent hair loss. You can see exclamation point hairs with lupus as well.

Thyroid Issues: Graves Disease And Hashimoto’s Thyroiditis: Many people who think of thyroid issues and hair loss are aware of hypothyroidism, but many are not aware of the autoimmune thyroid issues. The first of these is graves disease where you will generally see the hair become much more fine and you’ll see more pronounced loss. The texture just becomes a lot more limp and unable to hold a style. The stands can become lighter in color also. The opposite is true with Hashimoto’s. In this instance, the hair becomes very coarse and dry, but hair loss is accelerated none the less.

Less Well Known Autoimmune Disorders That May Affect The Hair: In truth, almost any disorder that has an autoimmune component can affect the hair or cause thinning, shedding, or loss. This includes things like rheumatoid arthritis, intestinal cystitis and fibromyalgia, (although not every one agrees that these two fall into this category), celiac disease, and guillain-barre syndrome, to name only a few.

Inflammation Lessening Drugs And Hair Loss: Many of the drugs that are given for these disorders are given to reduce the inflammatory process and this actually seems to fit quite nicely with hair loss treatment, as there is almost always an inflammation component to it. However, many of the steroids often used have the unfortunate side effect of more shedding or loss, so often the patient is left wondering if it’s the disorder that is affecting their hair or the medication that is being used to treat it. It’s often prudent to focus on a healthy diet and healthy, natural ways to support a healthy scalp and reduce inflammation while stimulating healthy regrowth.

How do I know all of this? Because I lived it. Automimmune disorders were just one of the many things I had to look at to determine the reason for my hair loss. It was a long, hard, frustrating journey which all but wrecked my self esteem but I finally found something that helped quite a bit. You can read a very personal story at http://stop-hair-loss-in-women.com/


Lupus Bible

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27 Comments on Scalp Lupus Rash

  1. batgirl9923 says:

    Besides lupus, what else causes butterfly rash?
    I have the butterfly rash on my face, lesions on my arms, stomach, scalp, and legs. Tested negative for RA, ANA, and normal sed. rate.
    What else could it be???
    I also have muscle aches all over my body, and have trouble sleeping. Can’t get to sleep and then wake up several times during the night due to back and neck pain.

  2. bombayjac1993 says:

    systemic lupus. is it hard to diagnose.?
    i found out i was diabetic a year ago but for years before that my doctors kept testing me for lupus because of a rash across my nose and cheeks and discoid rash on my scalp. i have several symptoms but there was only positive lab work one time. i heard it is a very hard disease to diagnose.

  3. fancy says:

    Ill get right to the point.. could this be Lupus?
    I have extremely bad joint pain in my right elbow, shoulder, hip, lower back, and fingers that come and go. With just a little bit of cold for a short time I lose circulation in my hands and feet and they turn blue then white. I have a swollen lymph node on my left side of my neck that wont dissappear and its been 7 months. I have a small nickel size rash on my scalp that has been with me for about 5 years it is scaley and red and raised. I was tested for Lupus 8 years ago and it was positive, tested about a year ago and negative. My grandmother died of Lupus and it just seems to be fitting the bill. I am a little scared and very painful. Just want some ideas here.
    Thanks wiseone…. Sounds like I am not the only one who is the life of the party.

    • P.J. says:

      Dear it really does sound like you have a rheumatological condition. I have Rheumatoid Arthritis. I take Remicade infusion treatments ( Like Chemotherapy through my veins) every 6-8 weeks, and other medicine for it every day. I too have the severe joint pain and wonder sometimes if mine may actually be lupus too. If it is from what I have researched the drugs my rheumatologist gives me is the same as what they would treat me with for Lupus have some scaly places too. I also have big knots on my wrist , hands, and this disease just has my whole body, spine and all. I had juvenile R.A. too. I suggest you go to the specialist to see if this is his diagnosos. They did blood work on me, it wasn’t showing, then we did a series of MRI’s and found it in several places in my body. I suggest the MRI’s. Now it shows in the blood work up too. Best of luck to you. I wouldn’t wish this pain on my worst enemy, (if I had one, LOL!) Try to get to the bottom of it before it gets you down all the way. Keep your head up like I try to do, and keep on pushing. I ride a scooter (kind of like a wheel chair) and I am only 43 years old. I still put on my make-up, jewelry (what I can still wear due to disfigurment) and look like I am fine as much as possible. I have a wonderful husband with 3 older kids 24,21,and 19 years old, and 2 grandchildren. I still force myself to cook , but sometimes I have to have assistance. I will not let this get the best of me. I hate it when people that have horrible remarks to make to us when we mention being sick and worried. These people best remember that what comes around, does go around, and I hope they are made to understand the pain! Best of wishes to you honey, I will keep you in my prayers…

  4. Jill says:

    could my symptoms equal lupus?
    I am a 20 year old white female. I have had a very sever scaly rash on my scalp belly and legs for almost 3 years now. Around the time it first showed up I had a doctor tell me it was psoriosis but no medication has ever made it go away. I have a rosy colored painless redness that goes across my cheeks and nose. I always have ulcars in my mouth and never really think anything of it. Ever since I was little I have had terrible kidney infections and have been hospitalized twice for them. I am always sleepy and never feel like I am fully rested. I am nervous that this is all sounding like lupus symptoms. could anyone give me any feedback before i go to a physician?

  5. Desperately Seeking Answers says:

    What is wrong with me? Chronic pain, High Sed rate & High Platelet Count. PLEASE HELP!!!?
    Hello out there! I am desperately seeking answers. I am a 40 year old female who was diagnosed with Fibromyalgia back in 1998. Back then my symptoms were chronic back spasms with all tests normal. Over the years my symptoms have continued to gradually increase. 5 years ago I was put on Zoloft and that was my miracle drug since it helped me to manage my pain and function once again.

    Recently (over the last 2 years) my pain has intensified accompanied by other symptoms. Currently I do not have insurance and being in this desperate state I ventured off to a nearby clinic. I begged them to do a Lupus test but instead they did a CBC and wanted to put off on Thyroid. My CBC came back normal however my platelet count is 475H. After pleading with them, a lupus test was done but it was negative (8.8) however my sed rate is abnormal at 36H.
    Here is a list of my current symptoms:
    Tired, Sleepy & Lack of energy
    Migraine Headaches (almost daily)
    Eye sensitivity to light
    Constant achy flu like cramping of muscles in back, hands, feet, back, and legs.
    Stiffness in Body
    Occasional numbness in my arms, hands, fingers legs & feet
    Occasional sharp stabbing pain in my fingers down to the bone
    Pain in Hip bones (both sides)
    Foggy Memory / Hard to focus
    Frequent Low grade fever of 99.1- 99.9
    Outbreak / Rash (Look like DLE lesions) on scalp and recently arms, legs & buttocks.
    Spotty Hair Loss (alopecia)
    Canker sores
    Recent Incontinence issues

  6. Eden* says:

    I agree with Brian. Rumours and hearsay with a desire to hurt and dismantle someone is pernicious. And as you said once in another post, useless to defend yourself when a person’s mindset is immovable.
    I can understand the Lupus rash for obvious reasons, although it was the one thing my daughter was never afflicted with severely, now and then she did have patches of dry skin that turned red and brown and were very painful and as a result she never wore dresses or skirts in the summertime so if Michael wore a glove to try and disguise his condition why does anyone have a problem with that?
    He’s going to be judged no matter what facts come out to the contrary sadly

  7. Lulin the Nephilim says:

    Peculiar symptoms..? What’s wrong with me?
    If you are not in the medical field or studying medicine or have not experienced these symptoms as well, then please don’t give your input. If you know someone that has had these symptoms, that is acceptable, I am willing to hear anyones opinion except from those that have no idea what they are talking about or have something nasty to say.
    I have a long list of symptoms; I am not a hypochondriac; I don’t have insurance so I can’t see a doctor about it right now.
    I have nearly all the symptoms of Lupus and Cushings Disease, but my previous doctor last year dismissed my concerns and diagnosed me with Poly cystic Ovarian Disease, Fibromyalgia, and Hepatitis B. My PCOS diagnoses was just him saying he’s sure I have that because of some symptoms. I had blood work and my ovaries came back just fine, yet I was still diagnosed with PCOS anyway.
    Ok, symptoms: Daily fatigue, awful back and shoulder pain, upper body obesity, a rounded face, increased fat around the neck, and relatively slender arms and legs,bruises easily, and heals poorly., never developed breasts, no period for over a year (I’m 25), thinning hair on scalp, but hirotism (excessive body hair), stomach discomfort, urine smells very strong of ammonia without signs that it’s a UTI. Dark circles under my eyes, excessive thirst, bright red cheeks, diagnosed with osteoperosis I’m 25!!! skin problems including frequent acne around my chin (I never had acne as a teen), Depression & Anxiety, Keratosis Pilaris on my upper arms (the excess production of keratin, creates a goose-bump appearance), boils and bumps on butt, now a rash on my butt! I know I sound disgusting, but please don’t make me feel worse than I already do about myself. Please help me out if you are familiar with these problems… I’m sure I have other problems that I’m not contributing to the list, so if you want to ask if I have other symptoms, please ask and I will answer asap.
    Thank you both for your responses, however – I have already been tested numerous times for thyroid problems and they function very well. As for diabeties, my fasting glycemia level is 79-80, so I’m nowhere near diabeties, I’m closer to hypoglycemia, but not that either. As for meningitus, I was also tested for that a while ago and that was negative. I have Hep B. so that could explain a liver problem, since Hep B eats at your liver when in flare. I was told to keep an eye on a stomach rash or soreness around the liver, which I don’t have. So I’m not concerned about a liver problem right now. Anyone else have any ideas?
    My BMI is high, it’s 27. I am just below obesity, which really sucks. I used to be very thin and active – age 20/21 I was 80lbs lighter and much more active. Over 5 years I have gained 80lbs and pain has overwhelmed me to the point where I am not as active. I play with my son and I am a postal worker – so I get mild/moderate exercise, but at the end of the day, I’m wiped out and in pain. For osteo – I consume a lot of Vit D and normally take supplements. Lupus, I was unaware of the plastics! I am constantly drinking from plastic bottles and cans without washing. I only run my fruits & veggies under a cold tap for maybe 30 seconds before consuming… so I guess that’s bad. Steroids, I can’t recall ever taking any – but it’s possible.

  8. carol says:

    Is there a doctor in Chicago or Southwest Suburbs who can help me?
    Terribly ill for 33 months with burning rashes, blotches and burning skin without them. The blotches never go away, the rashes do somewhat with hydrocortisone cream, but always come back on my arms, legs, abdomen, back of thighs, and butt. Sometimes my eyes feel like someone is sticking needles in them, and they have been red for 33 months and burning and itching. Muscle spasms, muscle twitching, burning in mouth, and bad taste. Blurred vision occasionaly, nausea, severe with occasional vomiting, dizzy. Can hardly eat or even drink much so constanly dehydrated.
    Also a feeling as if someone put ice cubes on my ears and scalp. My mouth, hands, feet and ears turn so red, I almost look purple. abdominal cramps so bad I want to die, no diarrhea. Terrible fatigue, I imagine from not eating and sleeping. Only the gastroenterologist (diagnosed with hiatal hernia, ulcer, colitis, diverticulosis, liver cysts, ovarian cyst – found during a cat scan, endoscopic, and colonoscopy) and the allergist (who said no allergy, histamine level low, no lupus or thyroid or adrenal disease,- the other doctors, and many emergency visits ended up with the same thing-
    antihistamines, steroids, tranquilizers, and antidepressants that didn’t work, and a few almost killed me. I am in agony, the pain is on a scale off 1-10 anywhere from a 3-8, most of the time 7-8.
    I am constantly in the shower for the burning, probably psychological that it works, I don’t know what to do. I do have darvocet for pain, not worth taking for mild, take it for moderate pain, knock myself out with sleeping pills for the severe. I can many days barely make it to the bathroom, so I am alone with no human contact, and rarely even get to Church, which I love dearly, or spend time with my grandchildren who are my life. The other day I could not even sit in the park for more than 15 minutes watching them. If someone can help me. The doctors, took my insurance, copays, and did nothing more than repeat blood tests that were already taken 15 times, then they send a bill for copays. I am in a living hell. Of course I am agitated, right now my scalp felt like someone stabbed me with a knife. have to get off. Please, someone help me, carol m
    Also, sometimes my whole body shakes, and my thinking is ubelievably foggy. I am in front of a fan 24 hours a day.
    While I appreciate everyone trying to answer my question, I think the point has been missed; no sarcasm intended. The answer was comparable to yes there are medcines in the pharmacy. That will do me no good. I need to know if anyone knows a specific doctor who actually listens to their patients, takes tests, and really tries to find out what is wrong, The doctors I saw, gave me pills, and told me to see a shrink. In the meantime I am getting worse. Not long ago, I was in so much pain, I was standing in the middle of my bedroom, couldn’t sit, or touch anything, the pain was so bad. , crying. had just been to the emergency room two days before. They did nothing and I had to pay cabfare home. If anyone goes to or knows such a doctor I would appreciate knowing their name. thank you. I knock myself out all day or night cause I cannot take the pain, etc. anymore. Of course I get immune to the pills, as I am now, I have not slept since I don’t know when. I can’t see straight.

  9. ●ᵒ•Curly•ᵒ● says:

    Can psoriasis be associated/misdiagnosed for lupus? I am going to see a doctor; I just want some feedback.?
    Since about high school, I have developed a lot of symptoms/complications including scalp psoriasis, femoral patella syndrome, depression, anxiety, and carpel tunnel syndrome. I have actually been diagnosed with these by doctors.
    About over a month ago, I developed a viral infection that I just can’t shake (it’s finally letting up after 5 or 6 weeks). Then I started noticing little round rashes on my face and having little seizures that last about 1 second (but they happen within minutes of each other for about 5 minutes). Someone suggested to me that I may have lupus due to the vast amount of symptoms that have popped up in about a 5 year span. It would explain my joint pain, fatigue, and complication of beating a virus.
    However, I have heard that some of the symptoms of psoriasis coincide with lupus. Does anyone know about this? Does it seem more like lupus?
    The info I have gotten so far sounds great! Thank you so much! I will definetly be seeing some doctors!

    Keep the answers coming! <3

    • Natural Healer says:

      Hi Cutie Pie

      THe rash on your face is abit concerning with all the other issues you have. Lets start the healing process.

      Here are a few ideas to heal the issue.

      Cause
      Although most rashes are not symptoms of a serious health problem, they can be signs of allergies, liver and gallbladder problems, lupus, bleeding disorders, nutritional deficiencies, and autoimmune diseases.

      Rashes can also be due to the elimination of toxic wastes through the skin, or of an active immune reaction to an invading organism. Suppression of such a rash can lead to chronic disease states. Rather than try to suppress the rash, in such cases watchful waiting may be more advisable.

      Caution: If your rash becomes chronic, forms a “butterfly” shape over your cheeks, or is accompanied by high fever and joint pains, seek immediate medical attention to rule out more serious illnesses.

      ——————————…

      Natural Cures

      Diet: Screen for and eliminate any foods to which you are allergic or sensitive. Eat an organic, whole foods diet, with plenty of green leafy vegetables and yellow vegetables such as carrots, pumpkin, sweet potatoes, and winter squash. Also drink plenty of pure, filtered water (gallon a day), and avoid all processed foods and chemical food additives.

      Flower Essences: Rescue Remedy Cream® applied topically to the affected areas.

      Herbs: The following herbal remedies can speed healing: A tincture of equal parts burdock root and gentian root, the fresh juice of coriander, and/or aloe vera juice or gel.

      Homeopathy: Useful homeopathic remedies include Belladonna, Sulfur, Graphites, and Calc carb.

      Juice Therapy: Drink fresh squeezed vegetable juices on a daily basis, especially carrot, beet, radish, and garlic juice.

      Nutritional Supplementation: The following nutrients can be helpful to speed healing: vitamin A and vitamin E (both orally and applied topically over the affected areas), vitamin C, essential fatty acids (EFAs), flaxseed oil, and amma linolenic acid (GLA). In addition, add half a teaspoon of baking soda to water and drink every fifteen minutes. Do this three times, and then every two to three hours for two to three days or until the reaction subsides.

      Alternative Professional Care
      If your symptoms persist despite the above measures, seek the help of a qualified health professional. The following professional care therapies have all been shown to be useful for treating rashes: Acupuncture, Ayurveda, Detoxification Therapy, Naturopathic Medicine, Orthomolecular Medicine, Osteopathy, Oxygen Therapy (Hydrogen Peroxide), and Traditional Chinese Medicine.

      Best of health to you

  10. Kimberly F says:

    Do I have Lupus? Should I get it checked out?
    I have looked up the symptoms of this illness and while I have many of them I’m not sure if it’s worth getting checked out. I have skin rashes, not on my face usually, but on my arms and legs. I have mild to extreme fatigue even if I am only walking, and I wouldn’t consider myself out of shape, being a normally active girl. Hair loss in an even spread around my scalp is also a problem. While its not visual noticeable, I can tell my hair is nowhere near as thick as it use to be, and handfuls of hair come out for 3 or 4 days straight off and on. I often feel depressed or nervous. Generally I just feel weak, like I have no energy.

    • patricia c says:

      you sure have a lot of symptoms , first go to your Dr. get all this stuff answered so you know for sure.then you get some counseling.good luck ,and don’t look up any more symptoms or diagnoses.

  11. Phaylen says:

    Have you Had a reactivation of Epstein Barr?
    5 years ago i suffered one of the worst cases of mononucleosis my Doctor had ever seen. Swollen neck/lymph nodes, terribly sore throat that required ice packs, chills and high fever. I was better in about a month and resumed normal activities.

    1 month ago (October 24th) I started feeling a pulling in my neck, like a tight muscle, over time this grew into a full on stiff neck with swollen lymph nodes from behind my ears to the back of my head to my collar bone. hey are palpable under the skin in places, soft, movable, but definitely swollen and my neck feels tight in the muscles. I went to the doctor and he said I had an ear infection and put me on Amoxicillan.

    A week and a half later I was no better and went to the ER and they told me i had a virus, sending me home with Augmentin, claiming I should let it run it’s course.
    I went to the internet for research and while I don’t believe i had mono again because reactivation of it is so very rare, plus, I don’t have a fever or a sore throat- just these swollen nodes and pain in my neck. I went back to the doctor and asked to be tested for Epstein Barr Virus.

    I got a call the following week and the nurse said “You Labs are back and consistent with reactivated Mono. Get lots of rest.” I had questions such as why it would reactivate with fewer symptoms, and how long i could expect these swollen nodes and neck pain to remain since it had already been a month… they didn’t have the time for me.

    My EBV test reads as follows

    Clinical Situation IgG-VCA EBNA EA IgM-VCA
    ————————————————————————————
    No past infection – – – -
    Acute Infection + – + +
    Convalescent Phase + + +/- +/-
    Past Infection + + – -
    Chronic of reactivated
    Infection + + – -

    My epstein Barr Panel showed two High Counts.
    EBV (VCA) Ab, IgG 936
    EBV Nuclear Ab, IgG 243

    Now, given that it is rare for people to get mono twice, and if they do it is usually WITHOUT symptoms or due to a suppressed immunity (Like Lupus or Arthritis) I went searching further for answers.

    Because i have had a small rash on my chest at the center of my breastbone that is occasionally itchy, as well as what had been diagnosed as dermatitis around my scalp and upper back- My symptoms seem to correlate with the dreaded word no one wants to hear: Lymphoma. It also seem EBV has a direct link to some Lymphomas.

    I called back my doctor and demanded a referral to an ENT and a CT scan of my neck- I’ve had chest X-rays previously due to a light persistent cough and they are normal.

    I’d like to ask Anyone who suffers from long term EBV effects if they experience swollen nodes and stiff neck for more than a month years after initial mono infection. Am i putting the car before the horse or being logical here. The concept of cancer frightens me to death, though there is no Lymphoma in my family.

    Do you EBV sufferers feel the same way? Do you have chronic swollen nodes and a stiff neck for more than 4 weeks at a time without other traditional mono symptoms?

    • Doctor J says:

      Hi Phaylen. I am NOT an expert in Epstein Barr infections. However, I have a substantial interest in the role nutrition plays in the functioning of the immune system – which can play a significant role in controlling Epstein Barr infections and risk for various cancers.

      What I am offering here is merely conjecture – an educated hypothesis. There is very little specific scientific research in the area of Epstein Barr virus infections and nutritional status. What research is available suggests the following possibilities:

      1) Vitamin D deficiency is very common (an epidemic) and its effects on the immune system can impair the system’s ability to fight viral infections such as Epstein Barr virus (EBV). Have your doctors tested your blood levels of 25-hydroxyvitamin D? This is the proper test for Vitamin D status. You want a number in the “high-normal” range to be healthy.

      2) Zinc status is a major player in immune system health. Low zinc intakes from normal diets are very common. Even marginally inadequate intakes of zinc can impair immune function and limit the immune system’s ability to contain a viral infection. Again, have your doctors tested your zinc status? Have they measured ANYTHING about your overall nutritional status?

      Below are a few links to scientific papers that support the comments I have made here.

      Best wishes and good luck.

      I have added a couple of additional papers on zinc. They are fairly technical but, they provide a solid scientific basis for the potential relationship between your zinc status, immune function, and risk of viral infection and cancer.

  12. devilishly curious64 says:

    I am concerned that I may heave lupus and never really paid much attention?
    I am 45 years old and for 1 year I have developed some symptoms that have lead me to believe I may have Lupus. I have been feeling very tired, but it has increased severely, hair loss to where i can run my fingers at me scalp and hair falls off, eyes very dry and burning hot, low grade fevers of 100.0 oral, feeling cold to point I sometimes feel I am freezing even while it’s hot, unexplainable heart palpitations, sometimes a slight wheeze, joints hurting, fingers at hands turn white to purple to blue and look like dried prunes, sometimes an stabbing pain at heart which may last for 4-5 seconds, back hurting a lot, weakness in hands,red blotches on face when coming from outside cold to a warm enviroment, itching then a rash, headaches, dizzyness. have done some tests at my doctors office. ANA was a 4, retested 3 months later and itwas ran as ANACHOICE (Choice screen)
    results being POSITIVE,DNA antibody is 1, PTT-LA SCREEN wa 42 high. So what could this be?

  13. CalaLilly says:

    Does Anyone with SLE Lupus & Discoid Lupus or have TENS or Steven Johnson Syndrom Have advice?
    I have been living with 2 types of Lupus SLE & Discoid for 13yrs. I recently have had an external rash for about 4 months now & was hospitalized for it in March from the severity of the pain & scabbing issues. 3 Dr.”s are saying its Stevens Johnson Syndrome others are saying could be TENS. My Rheumo Dr. doesn’t know & 1 Dermo Dr. said it’s my SLE Lupus. They discharged me just to keep an apt with a Dermatologist that took me 3 weeks to get into. I couldn’t take the pain or burning & suffering from this rash (as I have chronic pain & Fibromyalga on top of other Auto Immune Diseases) on every inch of my body, ears, mouth, nose, eye lids, scalp, loss of hair, bottom of feet throbbing & blistering, palms of hands, arms & finger tips & nail beds. I went to Dermo & because my insurance doesn’t pay much he wouldn’t even look at me, said it was the SLE Lupus, Told him Infectious Disease Dr. & other attending Dr.’s need him to do a skin scrape & skin Biopsy & he wouldn’t even listen to me or acknowledge me. Just said its your Lupus let your Rheumotologist deal with it. This was in March. The scabbing went away but now with my anxiety & any stress it’s causing the Rash to come back in full force leaving me in extreme pain, on 80mg Prednisone daily until I can see a new Dermatologist to get this Biopsy done. They thought it may have been caused by an allergic reaction to one of my Medications, but have not been diagnosed yet. I am back @ square 1 waiting for apt but I cant take the pain & skin feeling it’s on fire & the scabbing. Can Anyone help me with this? Blood work showed that my ANA was 1/1,280 any advice?
    I am waiting on Healthcare Authorization to see new Dermotologist but feel I am going to end up back in the ER before I get the Authorization to go. I have about 4 different DR”S waiting on this Biopsy and cant get the proper treatment until the get results back.

  14. MaluLanix0x says:

    Does anybody know anybody with Autoimmune Hepatitis? Does it sound like I could have it?
    Last year I had Mono (Epstein Barr), and I noticed that my skin was turning yellowish and very, very itchy. Not to sound too graphic or anything, but my stools turned grey, and at other times completely white! I found out that I am a Celiac and have many, many antibodies against my thyroid (I have both Hashimotos and Graves). Its very likely that I have a mild Lupus and Sjogren’s (when I went to the doctor, she said I have a malar rash, photosensitivity, and some wierd rashes on my joints. When I went to the dentist, they had to keep the sprayer thing in my mouth the entire time!). My maternal aunt has Scleroderma and my paternal grandfather was type I diabetic. My problem right now is that I often feel VERY itchy, get wierd rashes & scalp problems, my skin turns yellowish, and lately it feels like a weight dropped in between my ribs. Once again, (not to be gross or whatever), my stools are turning lighter (and looks like nothing is being absorbed, sometimes). Recently my vitamin D levels came back low, and I had JUST been in Florida and was taking supplements. My bun creat ration was low as well. My legs, face, and stomach periodically swell up, and I feel confused and spacy often (was partially thyroid related). A year ago, my rheumatologist checked my liver enzymes & said they were fine, but I have to go back to her again! Does this sound like autoimmune hepatits though, is it hard to diagnose?

    • Linda R says:

      Go to your rheumatologist as soon as possible. Autoimmunity is not something to be fooled with or guessed about. As for your BUN, you need to have your urine checked for protein excretion and cellular casts. When autoimmune diseases are untreated, they can kill you. Stop fooling around on yahoo and get to the doctor.

  15. Becky says:

    Hives that spread head to foot?
    In the past week, I have had 2 episodes of hives. The reaction starts the same, itching on the neck and scalp which eventually yields bumps, sunburn-like redness, swelling of the face and ears, and ear throbbing. The rash continues to spread down my body, literally moving down my chest and back, then to my arms and legs. Within about 30 minutes, I go from noticing a little itching to having hives all over my body. The reaction lasted about 5 hours each time after benadryl. The first episode I went to my dermatologist and was diagnosed with scombroid poisioning (food poisoning from fish). However, upon having the reaction again, my dermatologist thinks this was misdiagnosed and that I am having an allergic or autoimmune reaction. No known allergies, but I do have ulcerative colitis, crohn’s, and history of lupus in my immediate family.
    Has anyone experienced hives that move so quickly and in such a systematic way?

  16. MaluLanix0x says:

    Does anybody know anybody with Autoimmune Hepatitis? Does it sound like I could have it?
    Last year I had Mono (Epstein Barr), and I noticed that my skin was turning yellowish and very, very itchy. Not to sound too graphic or anything, but my stools turned grey, and at other times completely white! I found out that I am a Celiac and have many, many antibodies against my thyroid (I have both Hashimotos and Graves). My doctor just told me that it appears I am in the begining stages of Lupus and Sjogren’s. My maternal aunt has Scleroderma and my paternal grandfather was type I diabetic. My problem right now is that I often feel VERY itchy, get wierd rashes & scalp problems, my skin turns yellowish, and lately it feels like a weight dropped in between my ribs. Other times I look so pale, my mother pointed it out to me. My GI doctor told me that I have slow digestion (usually called gasteroparesis). My family and friends have been commenting on how I am randomly loosing weight, even though I feel like I eat so much (other times I just get so full so easily & feel nauseous). Once again, (not to be gross or whatever), my stools are turning lighter (and looks like nothing is being absorbed, sometimes). Recently my vitamin D levels came back low, and I had JUST been in Florida and was taking supplements. My bun creat ration was low as well. My legs, face, and stomach periodically swell up, and I feel confused and spacy often (was partially thyroid related). A year ago, my rheumatologist checked my liver enzymes. I rescently went to a new rhem & he took over 40 blood sampes & a urine sample! Does this sound like autoimmune hepatits though, is it hard to diagnose?
    after eating, I often have sqeezing pain in my back and pain in my lower sides under my back ribcage. I told my mom this & she says it sounds like a gall-bladder issue. I am NOT overweight, pregnant & not even 20 years old!

    • Jus Tme says:

      Sounds like a few things are going on. Jaundice being one of them. Jaundice occurs because of the liver not functioning properly. There could be a whole slew of issues that cause the jaundice such as hepatitis or alcoholism. I’m not saying that is what is happening to you but lets not rule anything out. Have you told your doctor everything that is going on? Write a list of every symptom and give it to your doctor. If he ignores your symptoms, inform him that you will seek medical advice elsewhere. Doctors work for YOU! Dont allow them be complacent!

  17. VV15 says:

    Do you think I may have lupus?
    I went researching about lupus, just for “fun”, and I noticed that I had some symptoms. This is the symptom list on a website about lupus, and a description of what I feel in front:

    Red rash or color change on the face, often in the shape of a butterfly across the nose and cheeks: This is what worries me the most. I go to the beach everyday, and when I come home I often get what seems to be blushing above my eyes, like when a guy gets drunk.

    Painful or swollen joints: I have had joint pain for some while, but only on one knee. It’s a mild pain that comes at random times, regardless of what activity i’m doing.

    Unexplained fever: No fever at all

    Chest pain with deep breathing: No

    Swollen glands: No
    Extreme fatigue (feeling tired all the time): I can’t say I feel tired all the time. It’s more like laziness, if you know what I mean.

    Unusual hair loss (mainly on the scalp): No

    Pale or purple fingers or toes from cold or stress: No

    Sensitivity to the sun: As I said in the first place I have clear skin and when i’m at the beach I tend to get burned.

    Low blood count: Don’t know, but I had one 4 years ago and everything was fine.

    Depression, trouble thinking, and/or memory problems: Also worries me because I have hypochondria, as for memory issues I seem to forget very recent thoughts like 10 or 20 seconds ago.

    I also have some sinus inflammation, and my face gets hot at night when i’m home.

    • emtd65 says:

      I do have Lupus and it is a very serious condition. It is very difficult to diagnoses and many people wait years for a diagnoses. If everyone were diagnosed by looking in a text book it would be great, but instead we go through years of tests and criticism from many specialists, some of whom tell us it is all in our heads. There is no one test to diagnose Lupus and all lupus patients present differently and suffer differently as well respond differently to treatment. Some live long productive lives others are not so lucky. Unless you truly believe you have a condition, be careful with what you read for fun and always consult a doctor. It is also good to go armed with proof as you have done – always stay a step ahead.

  18. Dance-a-Holic says:

    I need help editing my research paper. I’m really bad at papers…..please help!?
    Well, its on lupus. I have the intro and two body paragraphs, and I still need to do the conclusion. So, I was wondering what I should change on my paper, and what I need to add..? I also have to do a powerpoint based on the paper, that should last a minimum of 5 minutes up to 15.

    The reason why I chose this topic was because my dad has lupus, and I wanted to know more about the topic. He was diagnosed with lupus when he was about fourteen years old. He still receives treatment for it by going in for blood tests and taking medication He has the most common form of lupus, Systemic Lupus Erythematosus (SLE), in which causes the antibodies to react against his own normal tissue. He has arthritis and joint problems, but nothings wrong with his internal organs. To support my dad and other lupus survivors, my family and I all go to the lupus walk in honor of remembering the people who had lupus that died. The things the audience can expect to read in this paper are the different types of lupus, the symptoms, the treatment and cures.
    Lupus is the result of an unbalanced immune system that can be destructive to any organ in the body. It can be categorized into three groups: discoid lupus Erythematosus, systemic lupus Erythematosus, and drug-induced systemic lupus Erythematosus. DLE is always limited to the skin and is identified by a rash that may appear on the face, neck, and scalp. It can evolve into the systemic form, which can affect any organ or system of the body. Systemic lupus Erythematosus is more severe than discoid lupus and can affect almost any organ or organ system of the body. No two people with SLE will have identical symptoms. Drug-induced systemic Lupus Erythematosus occurs after the use of certain prescribed drugs. It is more common in men, because the drugs are given to them more often.
    Lupus is hard to diagnose because it has a wide range of symptoms involving various parts of the body; and symptoms differ from each person. Most people develop painful joints and a rash, but lupus may also cause fatigue, depressions, and kidney problems. The treatment of lupus varies from person to person because each person has different symptoms. Most people with SLE require a regular blood test to check for lupus flares. Medication is the primary medical treatment for lupus. Presently, there are no other methods available to treat lupus because there is nothing else that can have the necessary impact on the immune system. Currently, there is no cure for lupus, but with early diagnosis and proper medical treatment it can significantly help control the disease.

    thanks. it would be much appreciated!!!!

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