Various signs and symptoms of dementia in patients include memory loss, impaired abstraction and planning, language and comprehension disturbances, poor judgement, impaired orientation ability, decreased attention and increased restlessness, lack of interest, behavioural changes and psychosis, sleep disturbances, hallucinations and so on. The loss of cognitive abilities that occurs with dementia leads to impairments in memory, reasoning, planning, and behavior. Care for a person with dementia can be difficult and complex.

Dementia usually is caused by degeneration in the cerebral cortex, the part of the brain responsible for thoughts, memories, actions and personality. Death of brain cells in this region leads to the cognitive impairment that characterizes dementia. Alzheimer’s disease or AD is the most common cause, followed by vascular or multi-infarct dementia. Vascular dementia occurs from decrease in blood flow to the brain, most commonly due to a series of small strokes (multi-infarct dementia). Other cerebrovascular causes include vasculitis from syphilis, Lyme disease, systemic lupus erythematosus, subdural hematoma, and subarachnoid hemorrhage. Because of the usually sudden nature of its cause, the symptoms of vascular dementia tend to begin more abruptly than those of Alzheimer’s dementia. Symptoms may progress stepwise with the occurrence of new strokes. Unlike AD, the incidence of vascular dementia is lower after age 75. Dementia can also occur due to many other conditions such as Parkinson’s disease, brain tumor, head trauma, hypercalcemia, vitamin deficiency, aids and so on. Delirium may occur with dementia. Dementia progresses slowly whereas delirium develops quickly and usually fluctuates in intensity.

As dementia progresses slowly, diagnosing it in its early stages can be difficult. Thus early diagnosis is important to slow the effects of dementia. A family history of either AD or cerebrovascular disease may provide clues to the cause of symptoms. Simple tests of mental function, including word recall, object naming, and number-symbol matching, are used to track changes in the person’s cognitive ability. A variety of medical tests may be necessary to determine dementia. Cerebrovascular disease, hydrocephalus, and tumors may be diagnosed with x rays, CT or MRI scans, and vascular imaging studies. Blood tests may reveal nutritional deficiencies or hormone imbalances.

Sign and Symptoms of dementia may be treated with a combination of psychotherapy, environmental modifications, and medication. Two drugs, tacrine and donepezil are commonly prescribed for AD. These drugs inhibit the breakdown of acetylcholine in the brain, prolonging its ability to conduct chemical messages between brain cells. They provide temporary improvement in cognitive functions for some patients with mild to moderate AD and help delay disease progression.

76 thoughts on “Sign And Symptoms Of Dementia

  1. freckles

    could lumps in back be a sign of lymphoma?
    My mom has these lumps in her back kind of under the skin, and she has had them for sometime now. She went to the doctor and one told her it was prob. due to her lupus and one told her it was just tissue build up. She is taking a medical assistant class and her instructor who is a RN told her that she would go have them looked at again for another opinion, because in a recent lung x ray there was some strange dark spot that appeared but no in a place where cancer is normally found, which she said lymphoma can cause strange spots like that to appear. She was being treated for a lung infection. I have read that lymphoma can cause swollen lymph nodes in the neck, groin, armpits and organs like the spleen etc. but haven’t seen anything about the actual back.
    could it be a sign of lymphoma.?

    also she has been told it could be a result of her lupus or even her rheumatoid arthritis could this be it?
    she hasn’t really had much other symptoms the only fever she has had is when she had bronchitis, and hasn’t had one since finishing her antibiotics.but i have also read that in early stages no signs may appear. she has had these lumps for years.

    my grandpa (her father) also has some disease that i don’t recall the name that causes the lumps some are also painful if that helps, my grandma has them to. they are located mostly on the back, they itch and some of them have little to no pain and some of them are quite painful.

    any incite on this would be really helpful she has a doctors appointment in the morning but I cant sleep so was hoping to get some answers.

  2. Dance-a-Holic

    I need help editing my research paper. I’m really bad at papers…..please help!?
    Well, its on lupus. I have the intro and two body paragraphs, and I still need to do the conclusion. So, I was wondering what I should change on my paper, and what I need to add..? I also have to do a powerpoint based on the paper, that should last a minimum of 5 minutes up to 15.

    The reason why I chose this topic was because my dad has lupus, and I wanted to know more about the topic. He was diagnosed with lupus when he was about fourteen years old. He still receives treatment for it by going in for blood tests and taking medication He has the most common form of lupus, Systemic Lupus Erythematosus (SLE), in which causes the antibodies to react against his own normal tissue. He has arthritis and joint problems, but nothings wrong with his internal organs. To support my dad and other lupus survivors, my family and I all go to the lupus walk in honor of remembering the people who had lupus that died. The things the audience can expect to read in this paper are the different types of lupus, the symptoms, the treatment and cures.
    Lupus is the result of an unbalanced immune system that can be destructive to any organ in the body. It can be categorized into three groups: discoid lupus Erythematosus, systemic lupus Erythematosus, and drug-induced systemic lupus Erythematosus. DLE is always limited to the skin and is identified by a rash that may appear on the face, neck, and scalp. It can evolve into the systemic form, which can affect any organ or system of the body. Systemic lupus Erythematosus is more severe than discoid lupus and can affect almost any organ or organ system of the body. No two people with SLE will have identical symptoms. Drug-induced systemic Lupus Erythematosus occurs after the use of certain prescribed drugs. It is more common in men, because the drugs are given to them more often.
    Lupus is hard to diagnose because it has a wide range of symptoms involving various parts of the body; and symptoms differ from each person. Most people develop painful joints and a rash, but lupus may also cause fatigue, depressions, and kidney problems. The treatment of lupus varies from person to person because each person has different symptoms. Most people with SLE require a regular blood test to check for lupus flares. Medication is the primary medical treatment for lupus. Presently, there are no other methods available to treat lupus because there is nothing else that can have the necessary impact on the immune system. Currently, there is no cure for lupus, but with early diagnosis and proper medical treatment it can significantly help control the disease.

    thanks. it would be much appreciated!!!!

  3. Matt

    Possible Pregnancy?
    I had intercourse with my girlfriend two weeks ago, either later that day or the next day she had her period. Now she is having cramping and nausea and the runs. I am not ready for her to be pregnant but it wouldn’t be the end of the world if she were I just wasn’t planning on it so don’t crucify me. She thinks she could be pregnant but I thought those symptoms wouldn’t show up until after her missed period, it would be less than two weeks into the conception and she would have had to ovulate at an extreme rate in order to get my sperm while it was still alive. I also used the good old pull out method which means pre ejaculation is the only way sperm could have gotten in. I think that the only sign she could see this early would be swelling of the breasts which she did not mention. She also has lupus and was out in the sun all day wednesday so that oculd be it, and she is about two weeks away from her next period so it could be early pms. To me it seems unlikely she is pregnant.
    It was not her first time. Also doctors have disagreed on whether or not she can even get pregnant, Some say it is impossible and some say it still is. She got raped at 16 and was pregnant, the abortion went bad so some doctors say she will not be able to get pregnant others say she can but not as easily.
    Yea I guess if you have a violent sex crime committed against you and you have an auto immune disease you can’t be a parent according to the last clown who answered.

    1. mgnysgtcappo

      How about being a little bit more careful. First off this girl was raped, had an abortion and also has Lupus??? Try using a condom…you’re definately not ready for parenthood.

  4. dedom19

    Is this enough reason to be checked for Lupus?
    I am in my early 20s. In June 09 I had a blister on my thumb, that became infected after going into the ocean. A red line traveled up my arm so I went to the ER and received an IV antibiotic for a possible Strep infection (Cellulitus). I was also prescribed an antibiotic to take for a week. This resolved the problem. However, immediately after being off the antibiotic I developed jock itch (yeast) which I found is common after discontinued use of an antibiotic. I treated that with cream and rid myself of it completely. About 2 weeks later I developed hives. Now I have had theses hives since August. So for about 3 months now. They are mostly on my belly, less on my chest, even less on my arms. The hives are white in color, and only the size of mosquito bites, but seem to flare up slightly and turn red the day after heavy drinking. Which I’ve done twice since their first appearance, and have observed the flare up both times. Lupus, Thyroid Disease, or is this probably just chronic hives from some other source such as alcohol, or yeast? At what point and to what extent should I address this? I’ve had no other symptoms of Lupus except for the hives which I’ve read is rare. It is just the recent strep/blood infection and hives combo I’ve had that worries me into thinking this may be worth spending the money on a lupus test.

  5. complicatedtallblonde

    Can anyone please help me with these symptoms? (very similar to lupus)?
    rash under eyes, on arm, and on cheek (will go away with high dose steroids but always comes back right after) I have had the rash since early to mid december

    headaches (daily)

    always tired or lagging

    sore muscles and joints

    light nausea (sometimes)

    past diagnosis of anemia

    irregular periods since I was 16

    unreasonably cold hands and feet

    can never get comfortable, always too hot or too cold

    bowel problems including
    severe constipation
    blood with bowel movement
    up to 6 days with no bowel movements
    oct 31st 2009 small bowel obstruction

    weight fluxuation

    trouble concentration (brain fog)

    protein in urine and bacteria in urine

    light stomach pain (now and then)

    My mother has fibromyalgia and reinods phenomina

    I just got a lupus panal blood test back and they are negative.. where do I go now? whats next?

    1. mgunnycappo

      Your doctor isn’t curious about the protein in the urine? How much is your creatine clearance? This is an indicator of Lupus Nephritis (when Lupus attacks the kidneys). Many people with Lupus test negative for all of the blood work but still have Lupus. If you have kidney the protein in your urine, then you’ll need a kidney biopsy to check for Lupus. You have many of the symptoms of Lupus. What does your doctor think. They obviously know that Lupus can only be ruled IN with blood work not ruled OUT.

  6. Zach M

    My wife has been sick for 7 months, had her gallbladder removed, what’s wrong?
    My wife has been sick for 7 months and has had no diagnosis, other than a bad gallbladder. She didn’t fit the classic symptoms, but she had it removed in October and things haven’t changed. The surgeon believes that her continued problems are not related to the gallbladder.

    Her main symptom is chronic and constant nausea, but she also has irregular bowl movements, an orange coating on her tongue, and has occasionally woke up at night with chills, shakes and goosebumps.

    She’s had numerous blood tests ruling out HIV/AIDs, Chrones, celiac disease, Addison’s disease, colitis, H Pyl., Salmonella, Shigella, Campylobacter, Staphylococcus, Giardia, Cryptospor, C diff., Lupus, a stomach emptying test, no known allergies, and no previous health issues except for symptoms related to what we thought/think is hypoglycemia. Her liver and kidney function tests have come back normal. She even had the Mirena birth control IUD removed early on in hopes this was messing her up. The only things that have come back abnormal are an unintentional loss of almost 40 pounds, and was told she had chronic endometritis.

    Any suggestions or advice is greatly appreciated.
    Thanks for the answer – no she’s not on any medications right now.

    1. Continue

      She may have to go back 4 more work on what she had done.She needs An ERPTO to detect residue stones or damage to the duct bile, caused by the stones b-4 they were removed.Sometime the Ampulla of vatar is too tight 4 the bile to flow through & causes symptoms until it’s opened up.I hope all will go well with her.Please tell her to get checked.

  7. Wendy

    Someone with Lupus or that has fatigue please help!?
    My doctor says i may have lupus. So lately i have had more symptoms of lupus. Right now my big problem is tiredness. Even after a ten hour sleep i am still falling asleep. Even at school, doing tests, eating, i am asleep doing everything. I can barley stay awake. I have had this since about the middle of september. The last 3 Nights i have wnt to bed at 10:30PM and woke up about 10:30 AM. Even that much sleep i am falling asleep during the day. Now tonight i am about to go to bed at 9:30. I even had a nap earlier i am half asleep as i type this. I am always feeling like crying because i am so tired and feel like i am in a bad mood all the time and i don’t like this at all. What can i do about this? Tips to deal with the tiredness please? what do you do? any other tips. I cant sleep at school (well only at lunch- i rest then). I am seeing my doctor in a month. Thanks.

    1. ★☆W.a.b.b.y✿❀

      Has your doctor ordered blood tests? These are extremely helpful to rule in or out an autoimmune disease. A diagnosis of Lupus needs to be made by a rheumatologist. If your doctor believes you may have Lupus he should be referring you to a rheumatologist.

      There are other symptoms other than fatigue in people with Lupus. Do you have any rashes? joint pain? muscle pain? joint swelling? mouth/nose ulcers? kidney problems? Do your hands/feet go cold and purple? Pleurisy or pericarditis? Sun sensitivity?

      There are far, far more common explanations for fatigue than Lupus. Has your doctor tested your thyroid function? ferretin? B12? Celiac Disease panel? Glucose? Liver function test? Epstein Barr Virus? Lyme Disease? Other autoimmune diseases?

      Another possibility is depression, many young people go through depression and it can definitely cause fatigue.

      And fatigue, for some people, is just a fact of life.

      You really need to speak to your doctor again, and make sure you’re exercising. It will give you more energy.

      Good luck


  8. Scifichic92

    Is it possible I have Lupus?
    Ever since I was young i have always been sick. My mom always said I have a very weak immune system. I always had ear infections, pneumonia, I have asthma, and I was just overall never feeling well. I would always be really tired. I still am, I have to take three hour naps everyday and I still go to bed early I am just so fatigued. Also I have TMJ in my jaw and my c2 vertebra is off by a millimeter. And I am always in pain with my back, jaw, neck, ect. My feet and ankles always hurt too. I also have abdominal pain a lot. I have also had hallucinations before (I have never done drugs either) My doctor did tests and she says I have inflammation but she couldn’t tell where it was coming from. I also have an abnormal blood count. I met my birth mom a few years ago and she said her and my sister are the same way. And my sister even tested positive for Lupus a few years ago, and my birth mom was just diagnosed with Lupus too. So I was wondering if there my symptoms seem like I have it too? I don’t have any abnormal rashes though.

    1. ★☆W.a.b.b.y✿❀

      It’s definitely possible. But Lupus isn’t caused by a weak immune system, it’s caused by an overactive one.

      Your symptoms are suggestive of Lupus, but many symptoms found in Lupus aren’t specific. Two people could present with very similar symptoms, one could be diagnosed with Lupus, the other with something completely different.

      Inflammation levels are often elevated and full blood counts may be off. But these can occur in other conditions too. There are tests that doctors can do that are far more specific for Lupus. Have you had the ANA (anti-nucleic antibody) test? It’s positive in most people who have Lupus.

      Have you mentioned to your doctor that you have a family history of Lupus?

      Really you need to be seen by a rheumatologist. Rashes don’t occur in everyone with Lupus.

      I’d recommend you and your Mum write a list of your symptoms and a brief medical history. I’d recommend you both read up and learn as much as you can about Lupus. Go back to your doctor and ask for further blood tests and mention the family history of Lupus. If you don’t get any answers, find a new doctor.

      Good luck.


  9. ★☆W.a.b.b.y✿❀

    What is my arthritis up to?
    I’m in my early 20s and have arthritis, my rheumatologist is trying to work out what the cause is, at the moment she’s think Lupus, Sjogren’s or Psoriatic Arthritis. I’ve had symptoms since I was 8 years old but in the last 12 months it’s really hit hard.

    I’ve got arthritis in my toes, knees, hips, sacroiliac joints, shoulders, wrists and fingers.

    For the last month I’ve been in a flare up. I was on Prednisone but at 30mg I wasn’t noticing any benefits and not prepared to take a higher dose, so my doctor weaned me off as quickly and safely as she could. I feel just as bad as I did at 30mg, but I have a lot more swelling now.

    Anyway, for the last 10 days it’s been very strange. I had two days where all my joints were fine except my toes which were extremely swollen and I couldn’t walk. Then they settled and I had the same thing in my knees for 1 day. Then it all moved to my wrists for a couple of days and I had very little movement in my wrists. The last few days it’s been in my sacroiliac joints which is making it impossible to sit.

    Is this a normal pattern for a flare up? Usually all my joints flare at the same time.

    1. johnmaggie

      It’s possible you have 2 types, ie, Rhumitoid+osteoarthritis. Has the weather been very changable where you live? as sometimes bad wet weather can cause a flare-up. Would it be possible for you to get to a hot Country like Spain? If you could get into the sun, for a couple of weeks even, this would decrease the swelling + pain imensely.

  10. peatry03

    7 DAYS LATE!!! what is going ON?
    I am days late. i have been on the dot for the last 6 months with my period. NO FAIL! i dont know whats going on because i have taken five tests that were negative. i also have been really drained breasts are hurting, slight cramps but not like a period. headaches more frequently. my cervix is low soft and closed and wet slick not sticky. seems to be rising slowly. seems like pregnancy to me. any ideas. doc wont see me without positive test. i know that if i dont catch it early enough i have a miscarriage due to my health problems.i have lupus. and RA. had to be on a lot of medication with my daughter.
    on the dot as in my period is never late not the depo.
    plus im not bleeding or have symptoms of my period

    any links are helpful. is there a likelyhood to have a false negative?

    1. Army Wifey-Mommy to 3 boys

      If your doctor won’t see you without a positive, then you need a new doctor. He should know not everyone ever actually gets a positive home test. Some people have to have a blood test to get their positive. And with all your health problems, I would definitely go somewhere else. As far as the likely hood of a false negative, they are WAY more common than people think. Since your period is already a week late, I’d wait one more week and take another test. If its still negative and no period, go get a blood test done. Tell your doctor your paying for your visit, not him/her.

  11. Countess

    dieting dos and don’ts?
    I used to model, and I want to get back in shape so that I can get a few jobs to help put me through college. I’m an Early Childhood Education major. I need to tone my arms a bit, but my problem area is my rump. It’s larger than I’d like as opposed to what I used to have. What makes this more difficult is that I am having some health issues at the moment. I’m currently being screened for both Lupus and Anemia (the symptoms for both are similar) and the amount of physical activity I can do is limited. I wear corsets to shape my torso. I love sushi and I have a weakness for carbs. Any tips on toning and tightening my physique? I don’t have a whole lot to lose. The main issue is toning, but I need a way that is less strenuous. I’m 5’6 and weigh 116lbs. I know it sounds like I am thin, but it shows more on me because I have a petite frame. I can’t get a job in the shape I am in.

    1. Linguini

      Exercise more than diet! Your BMI is 18.7, and anything below 18.5 is underweight!!! Do some weight exercises, but don’t strain yourself. Best of luck!

  12. Taylor L

    What does lupus do to the different organs of the body, and what would the symptoms include.?
    One of the characters in a story I am writing is dieing of lupus in the early 1940’s. Her character is suppose to have had flares of the disease for years and years, but the disease is becoming more and more serious until a point where she is so weak she can barely walk. Is that far-fetched?

    1. Linda R

      I attended a funeral for a member of my lupus support group. She was 36 and died of a stroke. She had antiphospholipid antibody syndrome that often occurs with lupus.

      Half of us will have kidney disease. There is a woman with lupus in my apartment complex whose kidneys have totally failed. The doctors have stated that she would most likely not survive a transplant. She is on dialysis 3 times a week. The lupus nephritis will ultimately kill her.

      I know a man whose wife died from lupus when it attacked her liver.

      A young woman I know died of lupus kidney disease while waiting for her third transplant.

      I nearly died from lupus in 2003. I had bone marrow failure, pancytopenic anemia, pericarditis (very common in lupus), pleurisy and pleural effusions (also very common), and beginning renal failure.

      As recently as 20 years ago, a diagnosis of lupus was considered a death sentence.

      The meds we take to try and control the lupus have some nasty side effects. I know two lupus patients who have had avascular necrosis of the hips from high doses of steroids. Both women have had both hips replaced. One was only 22 at the time. Many of the immunosuppressive drugs we take for the more serious cases predispose us to cancer because they suppress tumor necrosis factor.

      90-95% of lupus patients have joint pain and inflammation. At my worst, I could not even stand to shower.

      PS My lupus is well controlled now through a combination of medications, regular medical monitoring, and a very proactive approach to managing the disease.

      PPS I think your character is dying not dieing. And her character is “supposed” not “suppose” to have had flares. You might want to consider having someone proof read your story before you submit it anywhere.

  13. NOOOOOOOOObama!

    I am very late (2+) weeks but I don’t think I am pregnant?
    I’m not puking (like I usually do the second I get pregnant) and I don’t have any other pregnancy symptoms. I have lupus and that can cause early menopause. This is the 4th time this year this has happened. If it was early menopause how would I know?

    1. hello

      If it was early menopause your doctor could tell you by doing a hormone test. But as far as the pregnancy thing, any mother will tell you every pregnancy is different. Just because you had morning sickness with the others doesn’t mean you will with each child. Take a pregnancy test.

  14. Jimmy1575

    Unexplained Symptoms and no diagnosis?
    My mother is having a terrible time getting to the bottom of her medical issue. Any good solid information is welcomed.

    She states:

    I have been diagnosed with Hashimotos Thyroiditis and Low Vitamin D.
    Although my labs show that I am in the early stages of the disease and there is no evidence that I have been affected by the disease (in the form of hypothyroidism) I have all the symptoms one could imagine.

    I have had every lab test I can think of and an ultrasound that showed goiters on my thyroid. Biopsy showed no cancer.

    I have had TSH, Free T4, T3, am still waiting on results for Free T3. I have had a full range of hormone test. I cannot think of anything I have not had that might tell me something, but then, I am not the doctor.

    I have been tested for Celiac Disease, Pernicious Anemia, Lupus low calcium and everything comes out negative, everything.

    I have strange symptoms that don’t seem to fit hypothyroidism, exactly, but could fit low T3 or low Dopamine. They are: poor balance, tingling in face, lips, and hands. In addition to the typical ones for hypothyroidism. I also am experiencing rather extreme jolts as I sleep, as if I am having a seizure and strange sensations in my legs, mostly left leg.

    So far, my doctors have no explanation. My endocrinologist agreed to put me on a very low dose of thyroid replacement. My neurologist thinks I would be helped with antidepressants. I have had one MRI to rule out MS and am having another to rule out further diagnosis of MS and may have a spinal tap to rule out any odd infections of the brain. I have symptoms of Parkinson’s, or rather, low dopamine.

    So, my next Dr. visit is with a Rheumatologist. I have also seen an alternative Dr. and am awaiting test results. He said it looked like MS and also thyroid issues. He feels, like me, that we are just missing one important piece of information. We are both hoping it is the Free T3.

    Any suggestions?

    1. Zambiti

      I’ve given you a star hoping my Alternative Medicine friends will see this. This is not an area I’m familiar with, but I know some of my friends are! If you post this question in the Alternative Medicine section, you might get some relevant answers.

      Hope your mom finds the answers.

      Oh, if you post in Alt Med, add any other medications she may be on to the question. It was actually medication issues when my mom was trying to sort through her issues. Once she dropped them, she did better. She also did better removing all fluoride and triclosan (antibacterial soaps, etc) from her life. She too was suffering from thyroid related issues, but had others like blood sugar problems in the mix. The fluoride and triclosan were things she needed to remove to get to the bottom of the thyroid issues.

  15. Jeanie

    Can lupus cause your period to get wacky?
    I come from a family with 2 generations of SLE, my mother and my grandmother were diagnosed when they were about my age.

    In regards to the “wacky” period, let me preface this by saying that I used to be able to set a clock by my cycle — every 28 days.

    Two cycles ago my period was 4 days early.
    My last cycle was a week late.
    My period is now a little over 2 weeks late, with multiple (6) negative home pregnancy tests.

    Has anyone with Lupus ever had an experience where you missed/had a late period when you started to get symptom of Lupus? I also have noticed my joints hurting more in the past few months, and I seem to be more tired. Both of which I know are symptoms.

    I know I need to see a doctor, but it would be nice to know if someone else has had a similar experience.

  16. Confused>.<

    Is this many disease in a teen normal?
    Im a 16 year old girl and i have been perfectly healthy and active all my life, until about a month ago. I suddenly became fatigued, sore, nauseated, and i put on quite a bit of weight (About 20 pounds) even though there was no change in my activity level or diet. So finally I went to the doctors and got quite a bit of blood work done, and since then I have been diagnosed with Hypothyroidism, Juvenile Rheumatoid Arthritis (also known as JRA), and Lupus. Now I do have a history of Rheumatoid Arthritis and Lupus in my family, though they all developed it in there late 30’s-early 40’s. Now what I dont get is how all these symptoms and diseases appeared so suddenly, for none of this showed up in my blood work last year. I guess what im asking is if its normal for a healthy teen such as myself to be diagnosed with so many things so quickly?

  17. momzpeachy

    need some help understanding MS? How often are the flare ups and how does it get diagnosed?
    I had an MRI done early February due to neck and arm pain. That was of the brain and showed no lesions. Since that MRI ..I had a major flare of pain all over and all kinds of symptoms that go along with MS. My vision got blurry and nlood pressure raised. I was a real mess. I was told by the neurologist that since that MRI was negative there is no chance I have MS. I had those symptoms for a few weeks and now I am better. It’s really weird how it all went away. Except for the vision part…I still have blurry and distorted vision. Flourescent light drives me nuts!

    I am quite concerned as to whether the neurologist could be wrong. I was also told it could possibly be lupus but all the blood work came back negative.

    I’m wondering if some of you might be able to help me and guide me in a direction. I am seeing a rheumatologist tomorrow but not sure that’s the right doctor to see. What other tests need to be done and who orders them?

  18. Crisen H

    Possible Lupus?
    Is lupus a slow progression or does it rapidly develop? I think I may have lupus. After researching, I’ve come to realize that I have several of the symptoms, some I’ve had for years and others developed recently.I’m 25 Symptoms are: Knee pains; started in my early teens,had x-rays but they showed nothing.In the past few years they’ve started giving out and tingling like they’re going to sleep. Next: migraines; started in my later teens, Dr. said they were stress related. I’m tired alot, I get the recommended 7-8 hrs of sleep most nights but I’m still tired. Then there is depression/anxiety:Started having mild anxiety attacks and mild depression in my late teens, again Dr. said it was stress. I also have been getting knots on my legs when I stand for more than 10-20 mins. The knots don’t hurt. This spring I was out in the sun and developed a rash on my exposed skin.First it felt like razor burn, then it became itchy.Never happened before. None on my face however.Normal signs of lupus?
    About the skin rash, it was definitely not a sunburn, I’ve had plenty of those. It was small red bumps. My mother has the same reaction to the sun/tanning bed but her’s is everytime she’s in the sun. Her doctor told her it was just an unexplained reaction to sun rays. Any other suggestions on what the rash could be?

    1. hello

      Well, those are all the symptoms that I had for APS a sister of Lupus that was dismissed by doctors for years! Migraines were TIAs. Geez, I knew my vision cutting out in one eye wasn’t right.

      I suggest you see a rheumatologist and get tested for both Lupus and APS.

      I am now on Coumadin, Aspirin and Plaquenil and guess what most of my problems including the so called “depression” is gone. Listen to what your body is telling you.

      ETA following your comments: Polymorpic Light Eruptions? Sounds like it is time to see a dermatologist. But tanning beds are high in UV that set off Lupus rashes. Start taking pictures of them for your doctor. And stay out of the tanning bed.

  19. pmlyates29

    Does anyone have experience with side effects of TNF blockers?
    This may get a little lengthy and I will apologize now. I have had Crohn’s disease for over 15 years now and have been had active disease for about 5 years now. I have been on both Remicade and now Cimzia in order to try and keep the disease at bay. I switched to Cimzia early this year because my veins were trashed from the Remicade. I was doing well on it. However in the last year, I have been having a lot of issues. Thankfully not with my Crohn’s. That seems to be somewhat controlled. It started with pain in the lower lung area when I took a deep breath. We have done the testing, X-Ray, CT scan and they have seen nothing. Now it has progressed on to more things. My T7 in my spine just “broke” a couple months ago. I was not in an accident, I was not doing anything for it to break. I just started having pain and it kept getting worse and worse in the weeks leading up to the “break”. That has healed but I continue to have problems. I now am having pain in my upper chest when breathing. I have headaches every day, I could sleep 15-16 hours out of every day if I were allowed. (This might be the depression rearing it’s ugly head) I am constantly exhausted, and getting more and more depressed about the situation. My regular doctor has said “I’m sorry, but I’m not sure that there is anything more I can do for you” which makes me feel like a hypocrondriac. However, I know that I’m not imagining these things.

    Okay, I will get to my question. My concern is all the nasty diseases that the TNF blockers can cause. MS, Lupus, heart failure, lymphoma, etc, etc. Has anyone had these things come up while taking a TNF blocker? If so, what were your symptoms? I have an appointment with my GI doc on Monday and would like to be as educated as possible when I walk in there and insist that we keep trying until we find what it is. I am having a hard time day to day and can’t keep living this way. Anyones comments would be helpful. Thanks for listening and helping!!

    1. Frank

      You “broke” your T7 and then it just healed? If you broke your T7, you should show this to your doctor.

      Many of the diseases related to Crohn’s can cause bone thinning and fatigue.

      You should see a rheumatologist. They have a lot of experience with TNF inhibitors and Crohn’s. GI docs can have varying experience with TNF inhibitors.

      Nothing of what you describe sounds like MS, lupus, lymphoma, or heart failure. Many of them are caused by the diseases that people take TNF inhibitors to treat, so it has been hard to get a good estimate of what the real risk is from the drug.

  20. wHo DaT gIrL*

    Could I have lupus? Please read.?
    well, I’m 15 in 9th grade and ever since i was in second grade i’v always been sick a lot but not really with a specific thing just “not feeling well”. This year, it got a loooot worse.

    The symptoms I experienced this year (school year) were all GI related in the beggining (September to early December). I had a lot of bad abdominal problems. You name it, I get it. In December i got into the pediactric GI dr because there is not one around where I live so I had to travel.

    The things that were already ruled out were celiac diseas, galbladder disease, liver disease, colon cancer, colitis, pancreatitis, ulcers, parasites. I had an endoscopy and colonoscopy in feb and the dr said my insides looked “pink and perfect” and diagnosed me with overproduction of acid and irritable bowel syndrome.

    Lately, ever since December or January I would get body aches in my arms and legs and headaches but they’d come and go. Nothing I paid special attention to. At the end of feb I went to the eye dr and was diagnosed with baaaad dry eyes. I use artificial tears and they have helped.

    I am also ALWAYS thirsty! I don’t eat fried foods or salty foods and I haven’t eaten much today but tonight i have had the woooorst problem with thirst! I have drinken a bottle of root beer that didn’t help so i drank a bottle of water that didn’t help so I drank a bottle of vitamin water that didn’t help so I drank 2 glasses of juice and ice cubes and NOTHING is quenching my thirst! IT’S TERRIBLE!!

    For about a week i’v been getting the body aches more severe and also pains in both my legs under my knees and the same type of pain in my left wrist, and in the fingers on my right hand and a tingling in my tongue and sometimes feel numb in my hands and legs and bones. Could this be MS or lupus? I know with MS sometimes u get abdominal symptoms.

    1. Anonymous

      This could be a Lupus episode. The symptoms that hints that you may have lupus are your body aches and headaches. Also your dry eyes. If you develop any rashes then I would consider asking your doctor ASAP or soon. They don’t know what causes lupus but they think it genetic so see if close relatives have lupus or the same symptoms as you and women are more likely to have lupus, doctors believe it’s because of certain hormones. So being 15 you may not notice t but hormones of all kinds are flying around in you so It would make sense.
      You show less symptoms for MS but it is still a threat seeing how MS and Lupus are similar in ways. They both attack healthy cells I believe it’s called autoimmune.
      I would bring this up with you doctor next time so you don’t develop worse problems cause it might effect you forever.

  21. Kehaulani from Hawaii

    I’ve just been told that I might have SLE or Lupus in the early stages what should I do?
    I’ve seen a rheumatologist and he said that I’m ANA positive undiagnosed. How can that be? My PCP said that I have all the symptoms of SLE or Lupus. I don’t want to be left in the dark and then get hit hard later. I really need to know for sure so I can start making the right life changes. Should I get a second oppion from another Rheumatologist?

    1. doctorwhobfs

      I would go to get a second opinion if possible, as lupus does not have a clear positive or negative one test. But then, if this comes back positive start aggressive treatment early. In the 1950s the 5 year survival rate (out of 100 diagnosed people, the number of people still alive due to lupus) was only 50. Now it is around 94-96 out of 100). This is due not only to better treatments, earlier diagnosis, but also more aggressive diagnosis. You need to be proactive, and take charge of your health. I know in my case I’ve avoided a lot of future health issues by doing so. Good luck!

  22. Countess

    Dieting dos and don’ts?
    I used to model, and I want to get back in shape so that I can get a few jobs to help put me through college. I’m an Early Childhood Education major. I need to tone my arms a bit, but my problem area is my rump. It’s larger than I’d like as opposed to what I used to have. What makes this more difficult is that I am having some health issues at the moment. I’m currently being screened for both Lupus and Anemia (the symptoms for both are similar) and the amount of physical activity I can do is limited. I wear corsets to shape my torso. I love sushi and I have a weakness for carbs. Any tips on toning and tightening my physique? I don’t have a whole lot to lose. The main issue is toning, but I need a way that is less strenuous. I’m 5’6 and weigh 116lbs. I know it sounds like I am thin, but it shows more on me because I have a petite frame. I can’t get a job in the shape I am in.

    Note: I asked this last night around midnight and should have known better, as I only got 7 answers.
    I am wearing a size 3 pant right now and it is a bit snug. I want to get back into my size 1 pants. Size 1 makes up most of my clothing and I would hate to have to throw them away. How can I get back into those pants and how fast?

    1. Jami S

      You may want to wait until you get your test results back, but in the mean time you can work on your weaknesses.

      When you have sushi try to eat only half the rice and more of the fish. If you are a carb lover, switch to whole grain pasta and bread, brown rice instead of white, sweet potato, instead of white, splenda instead of sugar.

      Also how is your water intake? Try to get a gallon a day. How often are you eating? Try to eat at least 5 small meals a day. How about your protein? You need to have some lean protein with each meal. Less carbs before you go to sleep.

      Please feel free to contact me if you have any more questions.

  23. dawn shortarse

    is reocurrent miscarriages one of the symptoms of lupus my gran had it and i seem to have other symptoms
    as well as the miscarriages iwas tested for lupus i think during all the numerous tests of all my misscarriages but that was a few year ago nsince then i have had other symptoms at the time the doctor found there was no reason why i couldnt have a baby at the age of 41 still not had any luck carrying been trying since the age of 23 now cant conceive ging through early menopause

    1. common sense

      hi dawn, were you ever tested for any blood clotting disorders like V-Leider, Protein C or Protein S deficiency, MTHFR genetic mutation, etc.? these are causes of miscarriage as well. A few folks I knew were tested by a hemotologist & they had one of these blood clotting disorders . They were then put on a type of blood thinner so they could try to conceive w/success. Also, as for starting menopause, you can still become pregnant until your cycle stops completely.

      I have a blood clotting disorder that was dxed after I had my stroke 3 yrs. ago. I miscarried 8 yrs. before that not knowing my correct dx and figured it was just something that wasn’t meant to be. Then my hemotologist tested me & got the correct dx but informed me that I just couldn’t have kids due to bleeding out 2x on coumadin, my meds, other health issues, and the fact that I had 3 DVTs in the past 14 yrs. as well.

      If you look into finding a NFP practitioner, she can assist you in conceiving. It’s something as easy as taking 1 T of cough syrup to increase your cervical mucus which is needed in order to conceive.

      My husband and I have been using it to avoid pregnancy for 10 1/2 yrs. due to my health problems and it does work. It can also be used to achieve a baby, monitor your pre menopausal symptoms, as well as any other female proplems w/o it causing serious side effects like a DVT, PE, stroke, or death. It won’t interfere w/medicationss, it’s easy to learn, easy to use, and a lot cheaper than hormonal contraception.

      I hope that you are able to start your family soon. Good luck.

  24. Wendy

    Someone with Lupus or that has fatigue/tiredness please help!?
    My doctor says i may have lupus. So lately i have had more symptoms of lupus. Right now my big problem is tiredness. Even after a ten hour sleep i am still falling asleep. Even at school, doing tests, eating, i am asleep doing everything. I can barley stay awake. I have had this since about the middle of september. The last 3 Nights i have wnt to bed at 10:30PM and woke up about 10:30 AM. Even that much sleep i am falling asleep during the day. Now tonight i am about to go to bed at 9:30. I even had a nap earlier i am half asleep as i type this. I am always feeling like crying because i am so tired and feel like i am in a bad mood all the time and i don’t like this at all. What can i do about this? Tips to deal with the tiredness please? what do you do? any other tips. I cant sleep at school (well only at lunch- i rest then). I am seeing my doctor in a month. Thanks.
    I am 17 by the way.

    1. ★☆W.a.b.b.y✿❀

      Has your doctor ordered blood tests? These are extremely helpful to rule in or out an autoimmune disease. A diagnosis of Lupus needs to be made by a rheumatologist. If your doctor believes you may have Lupus he should be referring you to a rheumatologist.

      There are other symptoms other than fatigue in people with Lupus. Do you have any rashes? joint pain? muscle pain? joint swelling? mouth/nose ulcers? kidney problems? Do your hands/feet go cold and purple? Pleurisy or pericarditis? Sun sensitivity?

      There are far, far more common explanations for fatigue than Lupus. Has your doctor tested your thyroid function? ferretin? B12? Celiac Disease panel? Glucose? Liver function test? Epstein Barr Virus? Lyme Disease? Other autoimmune diseases?

      Another possibility is depression, many young people go through depression and it can definitely cause fatigue.

      And fatigue, for some people, is just a fact of life.

      You really need to speak to your doctor again, and make sure you’re exercising. It will give you more energy.

      Good luck


  25. PinkRaindeers

    Lupus, Narcolepsy, MS? What should I look for?
    30 y/o 5’2″ 115. mixed raced female.

    So 3 years ago around this time I developed bloodshot eyes (no other eye symptoms, no pain either) it lasted for weeks. shortly after that I started to lose movement to my right fingers, then my hand, then within a week my right leg and right arm. I had absolutely no feeling, and never any pain. My arm was like Jello. I was hospitalized for a week. The docs poked with needles and I didn’t feel a thing. I received an MRI the docs found nothing. I was told that they found elevated levels of something (don’t remember) that may indicate Lupus. They also said it could be very early signs of MS.

    Here I am with Bloodshot eyes again expecting the worst. Here are also some other things I can’t make sense of.

    * I’ve been having sleep paralysis (ongoing since 16 yo) I thought it was ghosts, so I didn’t get a referral to a sleep specialist till now.
    * I am always tired, since I was born. I love sleep more than I will every love anyone or money. I can sleep straight through an entire weekend or party.
    * I have a very weak stomach. Almost everything gives me loose stools.
    *I’m constantly confused, disoriented, lightheaded.
    *At times I seem to lose my balance, especially when I’m not looking at the ground, as if I have to focus on my feet and tell it where to go.

    Can you all help me piece this puzzle together? What tests should I take?
    THanks for your answers. I have to add that although I am concerned and curious I have not freaked out about the situation. When I was hospitalized and had lifeless limbs, surprisingly, I didn’t worry at all. Even now, I’m not going crazy over it (most people would) I’m just pissed because I will look like crap this 4th of July. I am more concerned about my loved ones finding out. I haven’t told anyone and when I was hospitalized I told my family I went on a vacation.

  26. Aditi

    EBV positive how long to recovery?
    I suffered from a b12 and vitamin D deficiency
    with severe muscle ache joint ache ,and low energy
    Now that all my levels where good my pain would still not go,
    Doctor did some Blood work again RA,ANA,LUPUS,LIME
    with MRI’s
    The only thing which came out was EBV active positive
    I had a severe Flu attack in april 2009 and had one again in August 2009,When i got tested.
    Dr says that explains the muscle pain,joint aches,tingling in the head,headaches(like migraines),muslce spasms,and twitches and fatigue
    Burning extremeties..
    Does EBV cause all these above symptoms..Has any one had these
    How long will it take to recover…
    Will I get CFS or something i am scared…
    My dr says its to early to say that…as the road to recovery for EBV is anywhere from 1 month to 6 months and now that i has suffered all these deficiencys my immunity is low and needs to be build up!
    Pls answer thanks in advance

  27. Jill The Oddity

    Why can’t my doctors figure out what’s wrong?
    For the past 8 months I’ve been suffering from a vast amount of symptoms that just get worse every day. No one knows whats wrong, and nothing helps. It’s ruining my life! I can’t even make it through a school day anymore, so I had to drop my favorite course and now I have to leave early every day under doctor’s orders. Sure, it sounds nice, but it’s not, its horrible. I haven’t gone out with friends in months and I’m in pain all the time. My family thinks I’m insane and wants to send me to a mental institute. Literally. They think I have Munchhausen’s or something. I’ve been to 3 doctors,not including a sleep specialist, a psychiatrist, a cardiologist, and a neurologist. They all admit somethings wrong, and it’s autoimmune. They just don’t know what. This is a living hell. Ive gone from straight A’s and leading in the school’s plays to dropping out of my classes and staying in bed all day. I’m 15, and I’m missing out on my whole life. Im going to a Reumatologist next week, and im being tested for epilepsy.

    The diseases they’ve ruled out are:
    Diabetes, Multiple Sclerosis, Mono, Leukemia, A few other cancers, Celiac disease, my MRI was normal, my routine blood samples are normal, and i think a few other things.

    my symptoms:
    constant extremely painful migraines
    sensitivity to sound and visual auras.
    Extreme fatigue, falling asleep. I sleep 10-14 hours a day.
    weird twitching, like shocks, but not painful, just super annoying.
    constantly ill, basically NO immune system
    bone and joint pain in upper extremities, pain when reaching up
    spinal pain
    staring spells, where im like half dreaming and not paying any attention to anything around me.
    mild cataplexy
    low fever
    constant feeling of extreme sickness
    and the sleep doctor says i have narcolepsy.

    …A lot of other things as well. Especially odd things. (if you ask, answers will be in the additional details)

    The things i think it sounds most like are
    lupus and polymyosistis.

    If you have ANY ideas that would cover all of the symptoms, PLEASE let me know. I can’t take it anymore, and I want to just get on with my life. Please help me out
    the thing is, i dont think epilepsy causes extreme fatigue, and theyre going to check me for fibromyalgia, but does that cause excessive twitching and fevers, cataplexy (slight paralysis )?

    1. ★☆W.a.b.b.y✿❀

      I wish that lady above would stop ranting on about vitamin D deficiencies.. I do not think this what you’ve got and I don’t think the doctors do either. It sounds much more serious.

      I thought Lupus first as well. It sounds like your symptoms suck big time! I’m sort of in the same boat. I was diagnosed with Fibromyalgia, but my GP thinks that’s unlikely and more likely rheumatoid arthritis. I’m only 21 and have been sick since I was 11 with a lot of the same symptoms as you.

      It sounds complex whatever it is. Just don’t stop until you find what’s wrong. And in the mean time, just do what you can to make you feel better. If they try a medication and it makes you feel worse, then stop. I’ve learned that it doesn’t really matter about the long run if you can’t make it through the day.

      If you want to talk, my email is open on my profile. I check it regularly. =]

  28. ★☆W.a.b.b.y✿❀

    Sun sensitivity and rashes?
    I’m in my early 20s and have arthritis in almost every joint. My rheumatologist isn’t quite sure that’s going on yet, but I’m being treated for an autoimmune connective tissue disease. They’re saying Lupus, Sjogren’s or Psoriatic Arthritis.

    I have a whole range of symptoms, but in the past few weeks I’ve been noticing I’m really sensitive to the sun. I’ve developed solar urticaria, bruise like rashes and after 10 minutes in the sun today I threw up, had a severe migraine and felt dizzy. And it always seems to flare up my arthritis and fatigue

    It’s coming into summer where I live and I feel horrible about the fact I’m going to have to spend my whole summer inside. This stupid condition has already taken away so much from me and now this…

    Is there anything I can do? Any suggestions?


  29. Anonymous

    questions about lupus / ANA please anwser if you can?

    my first ANA in oct. was 1:160 also liver functions came up abnormal like sgot/ast 134 sgot/alt 219

    and they reran the test less than a month later and came back 1:80 rhemy said it was neg ( the paper said low positive/borderline ) (also ran sed rate crp and came neg)

    i been having a lot of symptoms ranging from full body joint and muscle pain (entire body )
    insomnia fatiuge sleep paralysis
    forget fullness/daze
    itchy all over no rash
    dry eyes/mouth
    urinating a lot
    restless legs
    mouth /nose bumps/sores
    anxiety depression irritability
    possible butterly rash very light (could be somthing else )
    and more symptoms

    they’ve been going on for about 4 months could this be early signs ?

    could this still be lupus or maybe another autoimmune problem even though rhemy doesn’t think i have it ? can ANA fluctuate like that ?

  30. KGcutie

    Joint pain, and weakness in early 20’s?
    Overall, i have had pains for years… i used to shrug it off, now my health is getting progressively worse. I have a baby and a two year old, and i find myself unable to play with them. I am 21, 5 feet 2 and 150 lbs. I am looking for a new doctor, because my last one did didly when finding the source for issues. i need someone to give opinions on this… I know i had arthritis in my jaw… but as for my body not sure…

    my symptoms include:
    Pain in fingers, unable to open things
    burning sensation in knees, and ankles
    knees locking up

    my mom has arthritis, fibromyalgia,
    aunt has lupus…

    1. ★☆W.a.b.b.y✿❀

      It’s impossible for us to tell you what’s going on. Your symptoms could be so many different things and it’s not possible for us to know.

      Have you had any blood tests done? What have they tested? Have any of them come back abnormal? Have you been tested for deficiencies?

      Many conditions have tests that help diagnose them.

      It sounds like you need to be evaluated by a rheumatologist though. They specialise in these conditions and will be able to make an accurate diagnosis.

      Good luck.


  31. Mrs. Duck

    Can a person develop “asian flush” also known as “alcohol flush” in their early twenties?
    I drank as a teenager with nothing more than the usual hangover effect. I would process alcohol rather quickly, getting hungover within a few hours of drinking rather than just the next morning. Around 20 years old it was discovered that I was having seizures, and it was believed alcohol could be contributing. Then, about a year ago, when I was 22, I realized that even ONE drink would immediately leave me sick.

    I get flushed, with my ears and cheeks turning red. My heart starts to palpitate, and I immediately have such severe dizziness that I have to sit down. My head hurts to. Within 15-20 minutes I’m running to the bathroom because of the runs, and nauseated for hours (sometimes dry heaving or actually vomiting.)

    Obviously I’ve decided not to drink, and actually did stop for a year. Saturday night I was having a hard time, and did one shot with my friends. The above chain reaction immediately occured, and I ended up at home on my couch feeling like I was dying.

    The doctors think I have Lupus, so I don’t drink, or ever intend on drinking again, I’m just wondering what could cause such a crazy array of symptoms in someone who never had problems with alcohol consumption before. (Minus one bleeding ulcer in college.)

  32. MaluLanix0x

    How common are these symptoms in the earlier stages of Lupus (SLE)?
    symptoms get worse at the end of the day.
    * Frequent and or blocked urination
    * Muscle spasms & weakness
    * Muscle tingling/pins & needles
    * Carpal Tunnel Syndrome
    * Loss of coordination & sensation (starting with feet and then hands)
    * Numbness/tingling in neck
    * Shakiness
    * Loss/less of sweating in hands & feet
    * Eye floaters/eye flashers & pressure and blurry spots/dimness in eyes
    *Headaches w/ some mood changes & trouble focusing

    I am 17 and a half y/o, and almost positive that I have SLE. I was just diagnosed with Raynauds. I get symmetrical joint pains & have the malar rash. My eyes and mouth get dry frequently. My grandfather had type 1 diabetes, and my aunt (on the other side of the family) has sclederma and hypothyroidsm.

    * Out of those list of symptoms the first were the eye changes and carpal tunnel w/ numbness in hands/feet. This seems to be progessing & i am verry VERY frightened. (i am going to the eye doctor tomorrow & am seeing a neurologist VERY soon.)

    1. Linda R

      1. Lupus is a remitting/flaring disease. It is not progressive. If left untreated ti can damage organs and that IS progressive.
      2. Your symptoms in general do not match lupus. There are about 100 autoimmune diseases and your family history of them makes you more likely to develop one of these disease.
      3. Muscle and nerve issues could be polymiositis or transverse myolitis.
      4. Urination issues you describe are not consistent with lupus.
      5. Rash could also be rosacea.
      6. Dry eyes and mouth would be Sjogren’s.
      7. Raynaud’s can occur with or without lupus.
      8. Lupus symptoms are usually worse in the morning and improve through the day.
      9. Rheumatoid arthritic could be the source of joint pain.

      Your job in all of this is to keep a symptom journal and accurately report what is going on with your body. Your job is not to diagnose yourself or second guess the doctor. Information is good, but let the doctor do the diagnosing. I work with lupus patients and I have lupus. I also work with rheumatologists. One thing I can tell you for certain, is that if you go to the doctor and suggest that you have lupus, you will turn the doctor off, not be taken seriously, and not get the help you need.

      In your symptom journal keep a record of:
      When it happened
      How long it lasted
      What makes it worse
      What makes it better
      How frequently do you have this symptom
      How much does the symptom interfere with basic activities of daily living?

      Before you see the doc, make a nice short summary.

  33. Sarah Mae Ann R

    critique my personal statement please ! ?
    Constant joint pains, purple hands, and on going fatigue plagued my junior year. I thought I was just tired from being up late at night studying and waking up early in the morning to make it to Leadership. Not to mention work on weekends. After multiple blood tests, I found out I was wrong, that my symptoms were not normal. The doctor said it was Lupus. There was no cure just a medication that made me sick to my stomach. My mom told me not to stress out about school or work. But the truth is nothing will make my illness go away. Where did it all begin? Where do I go from here?

    It all began with my parents’ separation. My parents have had an on and off long distance relationship, while my dad is in Italy and my mother and I are in California. The language barrier between my father and I kept us further apart than the ocean between us. Fed up with our separation my father’s phone calls became less frequent, and eventually I lost contact with him. I felt angry and abandoned. Suddenly, not long after my father’s disappearance my mother announced her move to a new house with her new boyfriend. My mother expected me to live with a stranger. Confusion and disappointment filled my angry heart and I tried my best to avoid her. To her I was a rebellious, stubborn daughter so she sent me to my grandmother’s house. A living situation that was supposed to last a few weeks slowly turned into a few years. I was an inconvenience to my mother and felt like a burden to my grandmother. I felt so alone and insignificant. However, instead of immersing myself in negativity, I found fulfillment in school and work. Yearning for acceptance, I was hoping that I would make them proud but as time went by, I realized I got so much more.

    So I took advantage of every opportunity that came my way, and when I began high school I knew it was a start for me to do something big. I ran for class president during my freshmen year and won! I felt a boost of self confidence and I no longer felt insignificant. Doors were beginning to open, and as I looked back at my hardships I knew that my decisions in high school would determine my future’s stability. Something I was not accustomed to yet desire the most. So with this new feeling of confidence sparked ambition, and I believed that I could do something, I could be someone. I felt invincible. I felt like Superwoman.

    Later feeling a greater sense of maturity I decided to move in with my mother and her boyfriend my junior year. I truly believed that my accomplishments would bring us closer together. I had so much to offer and I just wanted her to be proud. On the contrary, moving in with them was not what I expected. My hard work was overshadowed by her long hours at work and piling bills. Life with my mother remained difficult. The stress of my mother and her boyfriend’s constant bickering created a bitter environment that I tried to avoid by burying myself in school and work.

    However, I unknowingly put too much weight on my shoulders. I was so involved with everything that everyone needed me in some way or another, and with my Superwomen mentality it was hard for me to say no. There was just so much that needed to get done and all I wanted to do was save the day.

    Now in my senior year and I am faced with life long obstacle. Looks like Superwomen has found her kryptonite. However, I refuse to give up. I understand that I have to make many changes in my life, and I am learning to slow down but that does not mean I’m going to leave all of my hard work behind. My new situation has only given me greater hunger for success. It has inspired me to work harder than ever to prove to the world that despite my illness I am somebody. I will be successful. I will make my family proud. I will remain Superman.

    1. atnib

      whats the prompt? and in the end you mean, you will remain superwoman. if its for UC, remember that its two essays are 1000 words, not each. and good luck, it was an awesome essay.

      make sure you follow prompt, you can have henry thoreau write it, but if it does not follow prompt its useless

  34. ceebs

    ANA Positive… Should I try to get pregnant?

    I’m new to this board but come here seeking advice and support because I’m scared. I found out yesterday I am ANA positive (1:80 titer) with no symptoms. My mom has advanced lupus, and family history of autoimmune.

    We were trying for our second child (after two early miscarriages) when I found out I am ANA positive with speckled pattern.

    Do you think there’s a risk of triggering full-blown lupus with a second child? Does the stress on your body during pregnancy make a predisposition trigger disease? I’d really love insight… I’m at a crossroads, and want to make sure I don’t jeopardize my health or my family in the future.

    Thank you for any insight!


    1. mgunnycappo

      I would check to see if you have Antiphospholipid Syndrome or APS that often accompanies lupus. APS is the main reason for miscarriage in Lupus. Since you’ve already have a miscarriage and you have a positive ANA (although 1:80 is a very low positive), and you have a family history I would definitely get checked for APS. They should also run a complete Lupus panel on you including Anti-SM, Anti-Ro, Anti-DS-DNA. If you test positive for any of these it is extremely likely that you have Lupus. If you do not test positive you could still have Lupus.

      Pregnancy can bring on Lupus symptoms due to the hormonal changes, stress on the body and the baby itself. In some women there are reports that pregnancy sometimes quiets a Lupus flare but the former is much more prevailant.

      I would discuss all of this first with a rheumatologist then with a high risk OB/GYN.

      Good luck to you.

  35. TD Euwaite™

    One more, then Elysabeth and I have to argue all day. For those keeping score, E 1 TD 0, but it’s early….?
    by TD Euwaite

    I need a new malady
    complex symptoms
    difficult to diagnose,
    like Lupus or Crohns

    I’m bored with my
    simple sickness,
    common cold,
    an illness unworthy of charity

    I want physical suffering,
    not some nut-case crap
    that any ninny can have.
    I want Johns Hopkins
    and the Mayo to scratch their heads…

    I can make fun of being sick because I am…I just don’t act like it. I’ve lived one day at a time since 1996.

  36. Maggie

    Help with Fibromyalgia!!!!!!!!!?
    I have been dealing with this for about 6 years. It seems to be getting worse. I am only 29 and I feel horrible. I was told I had Lupus in my early 20s but now they are saying Fibromyalgia. My mom passed away in January at age 46 with an autoimmune disease. She was diagnosed as having Lupus in her early 20s also, but the last year she was alive they decided it was not Lupus. She had same symptoms as me but the later part they were worse. She remained active(Ballroom dance lessons, golf) She pushed herself hard to be active and not give in to the disease. She woke up one day and thought she had bronchitis. Tgree days later on oxyegen and died a little over a year later on high dosages of oxygen. They said that whatever autoimmune disease she had attacked her lungs. The doctors told me that I should not worry about the same thing happening to me. All I know is it is not normal to feel this way. Pain and faigue is bad right now. Any suggestions. I am so frustrad. HELP
    I am so tired of always having something wrong. My husband has got to be frustrated too. I try to hide as much from him as I can. I also have 2 kids 2 and 6 and I want to be healthy for them.

    1. D S

      Hi – I have Fibro too. I’ve had it for as long as I can remember, but I’ve had the diagnosis for over 10 years – I am 35. If your Mom died from an autoimmune disease, you should be checked for Lupus again. One of the good things about Fibro is that it can’t kill us. It is not degenerative in any way… Have you looked into any support groups? I used one for a while and it really helped me. It’s certainly a VERY difficult disease to deal with because it’s invisible to others, they can’t see our pain and fatigue. Like your Mom, I do my best to be active and I find that helps a lot too. Since I started taking Pilates and exercising fairly regularly, the pain has reduced some – it’s not easy though, because as you know, one you have a flair it’s almost impossible to move much less exercise. Here’s what I suggest:
      See another doctor, preferably a Rheumatologist to be re-tested for Lupus.
      Try a support group
      Slowly build activity into your days
      I also would talk to your husband and kids about what you can and can’t do. Sometimes it’s hard, but after talking with a lot of my family, they are starting to understand that some days I can’t do what everyone else does. Luckily I have a very supportive husband.

      We do have a national association as well – I’m putting two links in here for you. Good luck.

  37. Marcia

    Help with possible Lupus symptoms…please?
    I have the following symptoms and my primary care physician suspects early onset of lupus. Here is some of what I experience:

    episodes (lasting about a week) of fatigue, weakness, dizziness, fever (low grade during the day, spiking at night to almost 104) hives, aches, fatigue, anemia, muscles twitches through out my whole body, facial redness with warmth, chills, night sweats. My lab tests came back all crazy…most of the numbers were off. A very high Sed rate and CRP. Any help or advice?

    1. Eric

      those are are signs of having lupus. but you can’t be sure untill the doctor says. im a dude and i have lupus and have had all of those systems at one time or another. to the other person who answered its allways good to eat veg. but if you do have lupus, you want to lower you imu. system not raise it because that is whats attacing your body.

  38. dramablueztitan

    Lupus/ANA tests?
    I had positive ANA tests as a teenager, and the doctor blew them off as being related to my early onset hypothyroidism. Now I have the butterfly rash, chronic fatigue, I’m sick at least half of the year, and no one seems to have any answers. Does anyone have lupus? If so, how were you diagnosed? How was it distinguished when all of my symptoms seem so ambiguous?

    1. STACIE K

      My daughter’s ANA has been positive for several months. She has arthritis, fatigues easily and has a weakened immune system. You need to see a rheumatologist. She will be able to make a definitive diagnosis. Good luck with this. Getting a diagnosis for my daughter has been difficult because she is only seven years old and also has Down syndrome. It has been an uphill battle, but I can already see signs of improvement. God bless.

  39. anthill0303

    I dont believe I have lupus?
    Around ausgust of 07, I notice I had a swollen lymph node in my neck and within the next two months or so, I had a severe sore throat where I couldnt swallow anything at all or move my neck, had fever, chills and couldnt sleep at all at night. Then eventually I became better. Then in december, I got the flu like symptoms again and had a lost of apetite for about 2 weeks and lost weight. Towards the end of that month is when I began to have joint pain as my only problem. Went to the doctor was tested for just about everything which all came back negative. Went to the rhematologist just last week had a postivie ANA, he claims just because I had aching joints and lost weight before and a postive ANA. Could it be that or something else? All the research Ive done about lupus says nothing about the early symptoms ive dealt with.

    1. Linda R

      95% of lupus patients will have aching or swollen joints at some point in time.

      Getting the “flu” and not being able to get well is a classic lupus symptom. So are fevers.

      When you have lupus, one of the things that occurs is that your body makes cytokines. Cytokines are what make you feel crappy when you have the flu. But we make them when we don’t have the flu, and that is part of what causes the symptoms. Weight loss is another symptom. Read more below.

  40. Melony Gestis

    Could I be pregnant, are these early symptoms?
    I cant be put on the pill, I have lupus and that could cause me to die! so dont call me a “B” if you dont know the situation!
    I am 19 and My fiance is 21. We have sex on a normal basis. We always use a condom. I had my last period July 13th and it normally lasts about 7days. Normally the week im going to start my period I can tell that it is coming within the next couple days. But its about time for me to start, and it doesn’t feel like it is coming. The reason I think I could be pregnant is because my breast are really sore and my nipples are sensitive. I have weird little abdominal pains randomly. I have been pooing a lot lately. and i just feel different. Could I be pregnant? We always use a condom and he even pulls out. What are the chances?
    Thanks for any answers.

    1. Chelsea

      I can normally tell when I am about to start my period too. Just wait and see if your period comes. If it hasn’t come by the 15th, I would get a HPT. Some of the symptoms do sound like early pregnancy. but you never know, so just wait it out and see. I know its hard to wait.
      Good luck with everything!(:

  41. purplecocktail2005

    29 yr. old with arthritis symptoms help!?
    iam a 29 yr. old female and had my fourth child last sept. a month or two after he was born my back and hip pain that i have had off and on for a few years got worse to the point of hurting 24/7. within a few weeks my ankles starting hurting then up to my wrists and fingers. the pain is constant and it is in my joints only. iam waiting to have xrays and more tests. i have had some blood work and the only thing that was abnormal was a high c reactive protien (CRP) of 36.3 and a low mean platlett volume (MPV) of 7. but my rh and other tests for arthritis and lyme, lupus ect. were neg. did anyone have these symptoms early on and it turned out to be arthritis? iam very confused and in alot of pain, i could realy use some advise.

  42. Akiun

    What’s wrong with me? Doctor doesn’t know. Anyone with medical knowledge help?
    I am a 19 year old female, 5′ 11″, 224lbs.

    Medications I’m on:
    0.250 mg/0.035(?) Sprintec a day(for birth control) (Been on them for over 4 months)
    300MG Lamotrigine a day(Mood stabilizer for Bipolar Disorder) (Been on them for over 6 months)
    300MG Seroquel(Anti-Psychotic for Bipolar Disorder) (Been on them for about 3 months)
    50MCG Levothyroxin(for Hypothyroidism) (Been on them for over 2 years)

    Main symptoms:
    Easy bruising/Thin blood (Doctor says I have low platelets, but she doesn’t think it’s causing it.)
    Hair loss (it’s the worst part, I have bald spots along my hairline)

    Minor symptoms/possibly related:
    Mouth sores (like little infections that won’t go away.)
    I sleep more than most people, on average 11 hours a night, lately 9 hours a night, but it makes me tired throughout the day.

    Tests already performed by my doctor:
    Lamotrigine levels, Normal
    Hepatic Function Panel, Normal
    CBC With Diff, Normal
    Dehydroepiandrosterone Sulfate, Normal
    Thyroid Stimulating Hormone, Normal
    EBV Early Antigen IgG, Normal
    EBV Anti VCA IgM, Normal
    EBV Anti VCA IgG, NOT Normal
    EBV Nuclear IgG Screen, NOT Normal
    Testosterone, Female/Children, Normal
    (So, I have had Mononucleosis, but I guess the tests say I don’t have it currently.)

    I’m kind of curious about Lupus, but I don’t know if the tests already checked for that? I don’t know much about this medical stuff, I just mainly want to stop going bald. So does anyone know what could be causing this? Should I have my Doctor do more tests? If so, which tests?
    Hey, doesn’t hurt to ask. Maybe some one on hear is a doctor or something?

  43. Kaytee

    If you have lupus (SLE), can you describe your early symptoms?
    I have not seen a doctor about it yet and my husband thinks I am crazy, but here are several things I have been noticing about myself.

    1) A rash on my face. For a couple of years I’ve had this circular-elongated rash (1.5 inches in diameter) on my left cheek. It was not very noticeable. Lately it became more red (several times people asked whether I scratched my face or sunburned), and I noticed a similar patern spreading to my other cheek. Can the SLE butterfly rash develop in this manner? Can it spread or does it develop on both sides simultaneously?

    2) Also for several years I have been having mild dull pain in kidney area. Can it be a symptom of an early SLE? Or is kidney pain a late complication in all SLE cases?

    3) Also I am tired often, but I wouldn’t say chronically fatigued.

    Having all this in mind, can I have early symptoms of SLE? Did SLE manifest in this way to anybody here?

    1. bobe

      I think to be diagnosed with Lupus you need to have multiple symptoms going on because with just a couple of symptoms that could easily cover many other different causes. The kidney thing doesn’t sound like Lupus but the distinct facial rashes could be an early sign. There is a blood test but if you are in the very early stages of Lupus nothing may show up initially. I would go see a Dermatologist for your face rashes first.

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