If you suffer from ITP Blood Disorder and are looking for ways to increase your low platelet count you will be interested to know that there are foods that are not good for your situation and super foods that can help your condition. We are what we eat and if we do better in this area are body’s have a better chance of healing.

Normal platelet count is 150,000 or more. If yours are below that but still above 40,000 you have a real good chance of improving them by eliminating food from your diet that is bad and replacing them with good foods. Yes, just by eating certain foods you can end low platelets. And the best thing is these foods, super foods, can be found in your local supermarket.

But first, out with the bad. These are the foods that can make things worse by aggravating your ITP Blood Disorder. Avoid greasy foods, mayonnaise, margarine and any other foods containing hydrogenated fats. Excess protein, sugar, processed starches and fried foods high in trans fats should also be avoided. This will take some discipline on your part but the rewards are worth the effort. Learn to read labels. The above foods will make ITP worse.

Your platelets can be oxidized by free radicals. These are abnormal oxygen molecules in the blood that are actually toxic. By correcting this imbalance you will decrease platelet destruction and your platelets will rise. Super foods rich in antioxidants are the solution to correcting this toxic environment that exist inside your body. Berries, especially blue berries because they are easily available. Where I live black berries are plentiful and would be great to use. Pomegranate is also considered a super antioxidant food.

Other powerful foods that will improve your health and help to pump up platelet counts are salads using darker greens. Also carrots, cabbage, apples, oranges and other fruits and vegetables. The key is to consume fruits and vegetables that are fresh because this is when their phytonutrients are at the highest levels. Eat daily portions (3-4) of these raw foods and at lest one large salad (two is better).

If fresh is not available, frozen is next best. In the off seasons things like blueberries can still be found in the frozen foods section of your supermarket. One cup of blueberries a day is what you should be shooting for.

Always check your platelet levels. If they are under 40,000 than you have other issues going on that diet will not correct completely. but as long as platelets are above 40,000 these foods are safe and beneficial and will increase your counts and improve your ITP Blood Disorder. Patience is the key. These changes don’t happen over night and will take a couple of months. By sticking with a better diet however results will be achieved and overall health improved. Doctors care is important and choosing a doctor that is nutritionally orientated can be a great help.

85 thoughts on “Suspected Lupus

  1. purpledents

    How would a clinical immunologist treat/diagnose SUSPECTED SLE (Lupus) compared to other specialists?

    Would it be appropriate to see a clinical immunologist, as the problem is likely autoimmune in nature? If so, how would he treat the problem and confirm the diagnosis compared to the rheumatologists and internal medicine doctor I have already seen? Would the immunologist’s approach vary considerably or slightly?


    1. Agnodice

      Immunologist do not routinely take care of people with SLE and they would approach the diagnosis of SLE the same as any other doctor. Rheumatologist are actually the doctors that take care of SLE and many other autoimmune disorders. There are guidelines with specific criteria from the American College of Rheumatology regarding the diagnosis of SLE which ALL doctors are to follow no matter what their specialty. This is mainly based on physical exam findings and blood tests. An immunologist will look for the same physical exam findings and will also check the same labs.

  2. FutureRN

    For experienced physicians: what diagnostics tests would you order if you suspected a patient had lupus??
    I’m currently completing a case study for Systemic Lupus Erythematosus and it would really help if I knew the correct tests. Please help!

    1. Linda R

      There are no definitive tests for lupus. In order to arrive at a diagnosis of lupus, one must first eliminate other disorders that can cause similar symptoms. After that, a combination of lab tests, medical history, and symptoms matched against the American College of Rheumatology’s 11 criteria for lupus and finding a match for 4, some carrying more weight than others.

      Tests for ANA, anti-double stranded DNA, sed rate, C reactive protein, ro and la, CBC, CMP, and 24 hour urine with protein excretion and creatine clearance can all provide clues.

      Dr. Sam Lim and the CDC are involved in the National Lupus Patient Registry in an attempt to find a specific, definitive biomarker for lupus.

      The link below can take you to common diagnositc tests for lupus.

    1. Jodie E


      I don’t know of any doctors in the US but would suggest that you ask the great people at the site provided below. They are from all over the world and there a heaps of Amercians on the site.

      Diagnosis can take sometime so you need all the support and help you can get. (Both of you) I have lupus and use this site all the time, it provides great support and a source of information even if your daughter does not have lupus.

      Good luck.



    Are there any companies that will donate a heated swimming pool or give a major discount for a disabled child?
    My 7 year old daughter has Down syndrome, arthritis, suspected lupus, wears hearing aids and doesn’t speak. Her arthritis is a major concern. There have been times when she has not been able to walk and she has even been hospitalized because of it. We live in Texas and go to Scottish Rite Children’s Hospital. Her therapist there said that swimming would be the best exercise for her. We live in a very small town and there are no appropriate facilities nearby where she can swim daily. I am a single mom of two. We are on a limited budget. I cannot afford a heated pool on my own. I was hoping maybe a pool builder might donate one or give us a really big discount. This would greatly improve my daughter’s quality of life. Also, she seems to be the happiest when she is swimming or playing in water. We have trusted God to provide for us and He always has. I am hoping that someone out there will see this as an opportunity to minister. We would greatly appreciate it. God bless!

  4. Heather Dickson

    Could the doctor be suspecting lupus?
    I went to the doctor because my family had told me to get checkout for Raynoyds because my hands and feet are always cold and my toes get so numb it’s like frostbite. The doctor said she was testing for a lot of things and also for lupus and took a LOT of blood samples. They told me to expect a call back within 10 days and if they dont then i should call them, but I got the bloodwork done on friday and they called back on wednesday and said my bloodwork came out “funny” and they faxed my bloodwork and my info over to the rhumatologist and told me to call and make an appt. within 2 days. Could I have lupus? The fact that she is referring me to a specialist is kind of freaking me out

    1. Barbara

      Did you have a lupus panel run? It’s really difficult to be diagnosed with Lupus-it requires a high ANA, coagulation factors, etc. with a minimum of 4 symptoms (there is a list of 11 common symptoms that doctors go off of). They may be “suspecting” lupus but you really do need to meet with your rheumatologist for further examining. Unfortunately lupus is one of the “great manipulator” diseases-it can mimic RA as well as MANY other diseases, so it is extremely difficult and time consuming to diagnose. I know this because I have it and have struggled with it for about 5 years, but still do not have the definite diagnosis of lupus even with the matching bloodwork and showing multiple symptoms. Reynauds is definitely a symptom of lupus, but you can also have it with other diseases or just by itself. It can be extremely painful to experience Reynauds. Just make sure to wear gloves when you go out into the cold and try not to spend too much time outdoors exercising, etc. during the cold months. Something else to consider with lupus is do you have a family history of it? Most researchers believe there is a genetic factor to it. Also, what other symptoms do you have that would match a lupus diagnosis? Some of the most common are a butterfly rash across your cheeks with sun exposure, painful and stiff joints, rashes on your upper arms and legs, fatigue, and an overall feeling of “being sick”. Until you are able to meet with your rheumatologist, just try not to worry about it. If you do happen to have lupus, stress will only make your flare ups worse. I wish you the best of luck!!

  5. PrincessAsh23

    I am sick with Lupus and need help! Can anyone answer my questions? I would like to find someone to talk to!?
    I have been sick afflicted with a mystery illness since I was 13. By the time I was 18, I had a heart problem, liver disease, a ruptured Gallbladder and Peritonitis (infected abdominal cavity) from which I almost died. I am now 23. For the past three years I have had skin rash, mouth sores, nausea, bad joint pain in my knees and shoulders, fevers, tremors and left-side arm/hand weakeness. In the past year I was in the ER for four bouts of Pleurisy, fluid on the heart and Pnemonia.My doctor told me I had Fibromyalgia and Lupus. Now they are suspecting MS (Multiple Sclerosis) as well. I am depressed and I can’t cry anymore. I can’t work and I am tired all the time. I take Vicodon, Percocet, Promethazine and Naprosyn. I still don’t feel well and I am suicidal. I have a good support system but I am tired of being sick. I want to feel good and be young. I want the opportunity to have children and get married. I have a wonderful fiance and he loves me. Can someone give me advice? Hope?

  6. ira jo

    I have joint pain that come and goes for two months. What you think it is?
    It is not really painful but It feels irritated. sometimes it’s not the joint but my muscle area like the calf and the arm. GP that I went to doesn’t suspect lupus because I don’ have any other symptom.
    Two months ago I have a swollen lymph nodes on my neck and now it had subside, after doing MRI doctor cleared me of cancer and now, it is the joint and muscle pain that is bothering me.Can anyone help? should i go to tcm to find out?

  7. .

    Which autoantibodies are tested for in an NHS blood test?
    Stupid question, I know..

    When “Autoantibodies (ANF etc)” are tested for, specifically which autoantibodies does this refer to? Are all antinuclear antibodies included? And would anti-thrombin antibodies be tested for, as I have suspected Systemic Lupus Erythematosus?

    Thanks in advance.

  8. Cat my arab stallion kuvado

    please could someone in the medical proffesion please answer this question for me?
    i am polysymptomatic numerous illnesses i have chronic fibromyalgia,severe,anxiety,i’v had 2 cardic arrests i’m 31 i have diverculosis,zollinger ellison syndrme,gastric osophical reflux,underactive thyroid gland,adenomiosis,endometriosis,pernicious anaemia i was bed bound for months due to the pain from the fibromyalgia, so the doctor put me on several different strong drugs as tour tollerance to them is extremely high in fibromyalgia due to the excessive pain i was on fentanyl actiq lozenges at 1600mcg 8 times per day 100mg of diazepam,60mg of temazepam,zoton fast tabs,cyclizine,thyroxine,and the femedene pill taken with no breaks for the endometriosis vit b12 injections this probably seems deadly to you but i could function normally pain free on a regular basis because the doctor was getting so much stigma attatched because of it i volunteerd to drop mydosage and get off the lozenges so now i,m on 90 mg of diazepam 20 mls of oramorph/ 40mg vit b12 injections zoton fasttabs thyroxine femedene taken constantly the oramorph upsets my stomache because of the alcohol content i cant tollerate alcohol i did drop the lozenges very quickly and substituted it high doses of morphine that as you can see but it was still extremely difficult my doctor says i was pain free on the lozenges because of the anaestetic and magniesium plus the fentanyl but the fentanyl is addictive now i am reverting back to my old state and feel i’m going to be bed bound again well i know the pain is intollerable is there any other medicines for fms i have tried most anti depressants and natural remedies is there any other muscle relaxants as i have had to change doctors due to a move and the other doctor wants to take me off everything with no replacement if he does that i might aswell be dead so i’m seeking help elsewhwere i think my body kills off the tablets b4 they enter my bloodstream because of all the stomache acid or i bring them bk up is ther a medicine that contains anaestetic without the fentanyl ?also do you think there is something more sinister behind all these illness i had septaceamia and was suspected to have lupus and lymes disease but they put a question mark to this they also think i have problems with my endocrime system inc my adrenal glands please please help and try to shed some light on this as no one seems to either cant or wont help i’v asked for an advanced blood screening to break everything down my hormones all that stuff and i’m still waiting to get the bloods taken if you can help i will be sooooo grateful thanks cat
    my punctuation would be fine if i wasn’t in so much agony i feel sorry for your patients if you was doctor you would have answered truthis yoo many big words 4 u you try typing with pain at a ten punctation has nothing to do with you just dont know the answer how uncompationate are you ?
    we didn’t all go to eaton dont you treat patients who cant fill there prescription in to because maybee they was not blessed with a good family and education arrogant get go on take the mick guess there’s just no doctor clever enough to answer me?
    thanks isabelle for taking me seriusly can you believe a doctor wont answer my question coz of my punctuation i’m in agony there’s a chance i’v got bone marrow cancer too how malicious some peiple can be on here shocks me thanks again i appreisiate it cat x
    thaks for your answer angela but i’m allergic to amitriptaline also anti inflamitories fibromyalgia gives you a very high tollerance the substance p that saturates your spinal cord sends messages telling your brain your constantly in pain so it’s not just when you hurt yourself it’s constant and causes blood vessel and muscle and ligament damage i really appriesiate your anser some points i think are very true i think its getting alot worse

    1. doc

      i am a doc
      basically a neurologist i will try to answer the question
      after having gone through your history all my sympathies are with you and this is the first time i ever come across some one with such huge medical conditions i am really concerned about your health
      however after going through your prescrioption i have not any more thing to offer but have your tried gabapentin or any of its new product. secondly have u tried TENS therapy
      second injection therapy in the tender points do work and i have tried in few of patients , not to mention it work in one of my female patients like a miracle
      however i must add at the end y need to be examined by a board of doctors and then a team effort be done to help u
      my prayers with u

  9. tinow

    does the GP (UK) have to disclose immediately if there is suspected disease?
    in blood results?

    Just received a call from my health centre to repeat blood tests because ‘they were raised’ without any further information on what was raised.

    I have to go for a blood test in a months time….

    IF it were some disease like, I duno, HIV or such-like, does the GP have to tell me this is being investigated?

    BTW – the tests were for Lupus and arthritius. (9 tests were done in all – incl liver, kidney – duno what else)

    1. kid on the block

      No, the sort of tests that a GP can order are fairly general. If you had lupus or rheumatoid arthritis then the chances are that CrP and ESR would be high but these are non-specific changes. They can be raised by all sorts of things, however if you have either of the conditions you mentioned the raised values would persist. If they persist then you would probably be referred to a rheumatologist to get a definite diagnosis which might well involve all sorts of immunological blood tests which your GP wouldn’t understand. (I know, I have a sort of auto-immune problem which is being looked after by a rheumatologist and when I asked my GP to look at the immunological results she refused because she wouldn’t know what they meant and therefore couldn’t interpret the results – my rheumatologist confirmed what she said and because of that they rarely put them on the generally available net results section).

      They would only know about HIV or the like if they tested for it and if they test for it then you should have counselling first.

      So, I wouldn’t worry too much. Something was raised – probably a 1 star rise rather than a 2 or 3 star rise. 1 star means abnormal and needs checking, 2 star means really abnormal, needs action and 3 star means worryingly abnormal and should go to hospital, like now, in my health area. How do I know? My CrP and ESR stayed at 2 star abnormal for months and my GP referred me to a rheumatologist the day the first results came back. Your repeat blood test is the check, after that they will decide whether to go on monitoring, it has sorted itself or it now needs action.

  10. Kate

    What’s wrong with me?! Cancer, lupus, or arthritis?
    I have soooooo many questions, so here goes:

    I’m a 19 year old female. Since last November, I’ve had a constant dull pain in the left side of my upper back. I got an x-ray of my entire lumbar region, and it showed nothing unusual. I also get extreme headaches, intense heartburn, mucus in my stool, and extreme fatigue. I’ve gained about 30 lbs in a year. I got an endoscopy and colonoscopy to see where the mucus in my stool/ heartburn was coming from, but the doctor said my GI tract was beautiful. I’ve had 1,000 pregnancy tests, so I know I’m not pregnant.

    I’m prescribed Flexeril and Tramadol (neither of which helps at all), I take daily vitamins (which is why I’m stumped by the low vitamin d levels), and I smoke marijuana (would it cause the weird blood test results?) everyday. I was also on Accutane for about 5 months between Oct 2009 and Feb 2010.

    I just got some of my blood test results back and I have Elevated Sed Rate, Elevated C-reactive Protein (CRP), and Low Vitamin D.

    My primary care doctor suspects that I might have rheumatoid arthritis, and, she hasn’t confided in me yet, but I think she also suspects lupus.

    My main concern is cancer. Basically everyone in my family has had cancer or died from cancer. From the details I’ve given, do any of you think I could have cancer? Have you known anyone with the same symptoms who had cancer? If not, what do you think it could be?

    Any help would be appreciated.
    I know my dr. is suspecting lupus because she told my mom it’s a possibility (my dr and mom are best friends). My dad died of cancer, my mom had cancer, all of my grandmas and grandpas died of cancer, 3 of my 5 aunts died from cancer and one of them had it and survived, 3 out of 3 uncles have died from it, and 1 out of my 5 half-brothers has had it.
    I’m not on birth control pills and I’m a little overweight, but not a whole lot. I live in Florida, and I’ve been at the beach for almost all summer, so I know I haven’t had a lack of sun.
    Also, I didn’t pay for the pregnancy tests. Doctors gave them to me when I had the endo/colonoscopy, before I had x-rays, the entire time I was on Accutane, and not to mention the 6 or so times I’ve had my blood tested in the past 3 months. I’m not stupid, I know about safe sex.

    1. april

      Seems like you got a lot going on. Most drs would order an ultrasound with the pain you’re having. It would be cheaper to invest in some condoms than pay for 1000 pregnancy tests.. I had extremely low vitamin levels because I never got in the sun. Your body needs about 20 minutes of full on sunlight to get the vit d you’re lacking. High CRP is caused by infection, inflammation or being overweight…or PID. It is also elevated if you’re taking birth control pills. By Sed rate, I’m assuming you mean ESR, erythrocyte sedimentation rate? Just another test for inflammation.
      She hasn’t confided in you yet her thoughts on Lupus? Then how did you come by this knowledge? Do you know what Lupus is? If you had it or your dr suspected it, tests would’ve been run by now to verify, because lupus will kill you if left untreated. You were on accutane for quite a while…longer than most. I was on it and it can cause some wicked side effects, including bone pain.

      Has everyone in your family had the same cancer? Have they all had it while younger? And when you say basically everyone, who does that mean??

      You’re the second person to ask a question today, that a parent was best friends with the dr…doesn’t matter either way. You are of age and your condition can not be discussed without you present or without your knowledge first and you have to give explicit consent on who gets to know what. If you’re at the beach almost every day, then to be sure, you use a sunblock, which would also prevent absorption of the rays and would not make the vit d3. Most people are actually deficient in vit d.

      In rheumatoid arthritis, the small joints of the hands, wrists, feet, and knees are typically inflamed in a symmetrical distribution (affecting both sides of the body).

      Have they included these tests for antibodies when they took your blood?
      Abnormal antibodies can be found in the blood of people with rheumatoid arthritis. An antibody called “rheumatoid factor” can be found in 80% of patients. Citrulline antibody (also referred to as anticitrulline antibody, anticyclic citrullinated peptide antibody, and anti-CCP) is present in people with rheumatoid arthritis.

      X-rays can show bony erosions typical of rheumatoid arthritis in the joints. Joint X-rays can also be helpful in monitoring the progression of disease and joint damage over time. Bone scanning, a radioactive procedure, can also be used to demonstrate the inflamed joints. MRI scanning can also be used to demonstrate joint damage.

      ■Weight loss or gain
      ■Joint pain, stiffness and swelling
      ■Butterfly-shaped rash (malar rash) on the face that covers the cheeks and bridge of the nose
      ■Skin lesions that appear or worsen with sun exposure
      ■Mouth sores
      ■Hair loss (alopecia)
      ■Fingers and toes that turn white or blue when exposed to cold or during stressful periods (Raynaud’s phenomenon)
      ■Shortness of breath
      ■Chest pain
      ■Dry eyes
      ■Easy bruising
      ■Memory loss

      I have Reynaud’s, it sucks..

  11. Jennifer H

    High Neutrophils, Low Lymphocytes, High Sed Rate?
    Normal (High end) Platelets, High Neutrophils, Low Lymphocytes (What does it mean)?.My doctor asked me to go for blood test because he suspected LUPUS.In the report everything was normal except Neutrophils(High), Lymphocytes (Low), Platelets 2 pts from being too high. Sed Rate is also high. What does it mean. Does it signify any disease. I have a test two years ago too and the same thing in it but now it is higher. Im very worried regarding this report. How can I make neutrophils,lymphocytes and platelets normal. Currently, being treated with Celebrex for stiffness, and I have Raynauds. I’m developing a sensitivity to the sun. All tests are negative for Lupus.

  12. Marcia

    Help with possible Lupus symptoms…please?
    I have the following symptoms and my primary care physician suspects early onset of lupus. Here is some of what I experience:

    episodes (lasting about a week) of fatigue, weakness, dizziness, fever (low grade during the day, spiking at night to almost 104) hives, aches, fatigue, anemia, muscles twitches through out my whole body, facial redness with warmth, chills, night sweats. My lab tests came back all crazy…most of the numbers were off. A very high Sed rate and CRP. Any help or advice?

    1. Eric

      those are are signs of having lupus. but you can’t be sure untill the doctor says. im a dude and i have lupus and have had all of those systems at one time or another. to the other person who answered its allways good to eat veg. but if you do have lupus, you want to lower you imu. system not raise it because that is whats attacing your body.

  13. WTF

    Hello, i am a 29 year old female that has suffered from joint pains and eczema for years. I have recently?
    developed neck spasms, chest pains that feel like my chest is tearing apart, rash on my face, abdominal pain, nausea, headaches and liltte red blood spots on my arms. I went to the ER about a month ago and the doctor at the ER told me that he thought i had Lupus, but my primary doctor had to order me the test. He was the 8th doctor i have seen within 6 years that had told me the same thing, however i have also been tested 5 times and they all came out negative. I still went ahead and told my primary doctor what he told me. She went ahead and ordered some blood work and it came back negative. She is saying now that i might be Fibromylagia. I am fustrated, how could 8 doctors suspect Lupus , but yet i don’t have it? what is it? help please

    1. Irene

      hi it could well be fibromyalgia ,it has a whole host of symtoms and is wide spread through your body just be glad its not lupus although fibromyalgia is bad in itself ive had it for 20 yrs each days different with it

  14. Walton

    Autoimmune Disorders? Particularly for those with medical backgrounds…?
    A loved one of mine – a female in her 20s – has an undiagnosed medical issue and I’m seeking ideas.

    We’ve been to countless doctors, many of which agree it may be some sort of autoimmune disorder, but what it is exactly has been difficult to pinpoint. It started around 2 years ago when various sores/scabs started appearing on her arms and legs. These really weren’t/aren’t as ghastly as they might sound – they were your average run-of-the-mill sore: circular in nature, ranging from around the size of a pencil eraser to 2 or 3 times that large…Initially it was thought there might have been some practical cause surrounding them, such as scraping herself accidentally in the kitchen or while asleep. But as time went on, we realized that this wasn’t the case. Some have healed, but only slowly and leaving faint scars…Others have yet to heal and new ones begin….There might be a half dozen on each leg/arm…The only other syptom is slight fatigue, as she has known she is borderline anemic since she was a teenager.

    Anyway, we’ve been to GPs, dermatoligist, allergist, and at least one other specialist. They have ran ANA blood tests, CBC blood tests, taken biopsies for cancer, tested for lupus (a suspected culprit for a while because she’s had family members with this condition), tested for autoimmune disorders,
    tested for allergies, gluten tests, and much more…

    None of this yielded anything really…We found out about some light allergies she has, but nothing significant enough to trigger this…Recently went in again and run some of the same tests over again, still awaiting test results, but not extremely hopeful since we’ve been through this before and there is supposedly a great deal of accuracy with most of these tests.

    So any ideas ? Do this sound auto-immune in nature or more like a environmental cause such as a food allergy ? If its autoimmune what might it be ? Given the duration and no other side effects might that point to anything ? None of these symptoms have greatly altered her lifestyle, she still maintains a job and attends graduate school, but its been psychologically stresful for all of us…Any help is appreciated.
    Some are in fact cystic in nature, and her mother had ovarian issues.

    1. Bco4th6th

      I don’t know whether this will help, but one of the first things I would is to start preventive treatments that will either take care of some unknown issue or rule it out.

      This sounds complicated, I know – and I apologize.

      What I mean is, around 75% of people’s health problems that aren’t inherited or injury-related are caused by unintentional dehydration – low water and salt levels. Water and salt make up about 75% of the body’s tissues (the number is just a coincidence), 85% of the brain and 94% of the blood.

      Because the medical community has convinced them that water has little or no nutritional value and is therefore unimportant, and because they warn people to cut back on salt, people are developing health problems that never existed only decades before.

      The current advice that doctors give is to “drink plenty of fluids”. But “fluids” don’t necessarily translate into “water”, and since water is unexciting, people opt for soft drinks, coffee, energy drinks and other alternatives. These drinks do not supply the body with the needed water, even though they may contain water. This is a common misconception that is fueled by the doctors’ advice (they went to medical school, so they couldn’t possibly be wrong). These drinks act like a diuretic and actually pull water out of the body at a rate of nearly 50% more than the water they’re providing.

      The body runs on water, and it won’t accept anything else (other than some natural fruit juices in small to moderate amounts).

      Click on the link below to learn the proper way to correct dehydration.

      One other thing you might consider is Oil of Wild Oregano and/or some other natural herb. Oil of Oregano kills harmful bacteria and is effective on many viruses. If this is the problem that your loved one has, this stuff should take care of it.

      The best thing is, both of these treatments (water/salt and oil of oregano) are natural and has no side effects other than improving ones health. They are completely compatible with any prescription or over-the-counter medication a person may be taking.

  15. JennyLane

    Blood test for Lupus?
    Hi there,

    I had quite a few blood tests yesterday (9 tubes, ah!) in attempt to correlate all of my symptoms with a diagnosis. Among them, I had a Lupus (which is suspected) Panel taken, as well as an Arthritis (rheumatoid is suspected) Panel.

    My main question is, how long does it generally take to get such test results back? I’m trying to be very patient (and it’s only been 1 day, ha!), but of course after feeling so bad for so long, I just want an answer. I’m 21 and I feel like I’m 90 when I try to get out of bed in the morning!

    Also, anyone diagnosed with each condition, would you be will to give me some firsthand insight?

    Thank you very much!

    1. Sweet James Jones

      It mainly depends on the lab. They basically have to analyze your DNA and look for certain markers: systemic lupus erythematosis (anti-dsDNA/Smith antibodies) and rheumatoid arthritis(HLA’s-DR4 & B27). It’s usually b/w 1-2 weeks. When did your physician schedule your next appointment…thats usually an indicator of when he expects to have your results in.

      Check the links below for info about SLE and rheumatoid arthritis.

  16. Dem

    So You Suspect Systemic Lupus Erythematosus: Which Test to Perform?
    And what do negative test results tell us ( urine, phospholipids, platelets, and coombs tests) about SLE?

    Imagen this scenario..a female 21 with SLE. SLE was tested for ANA and it gave a positive titre of 1:1280, the normal titre is about 1:80.

    Further tests were positive for antibodies against double stranded DNA but negative for antibodies against phospholipid. Serum C3 was also low, but the platelet count, urine sample and coombes test were negative i.e. normal

    hope this helps
    Thanks for all the answers but I still didn’t get what I was looking for..

    i.e. the urine sample was -ve so that means that there isn’t anything wrong with the kidneys..as SLE can also cause lupus nephritis.

    BUT what about the other -ve tests? i.e phospholipids,platelets count and coombes test ..what does a negative result for this mean?

  17. Elle

    Chances of getting diabetes?
    I was diagnosed with ceoliac at the age of 4 and a half. I’m now 15. My mother has type 1 diabetes and suspected lupus. I’m tested once a month on a glucose-monitoring devise once a month as I have increased glucose levels; around 8-10 when the average is 5. I’m also very small in weight for my age and height so I have a low BMI. I have anaemia too.
    I have already spoken to Diabetes UK and they said to monitor it constantly. I have read up on research and the two are connected, though usually it’s with the diabetic patient contracting ceoliac instead of the other way round as they are both autoimmune diseases.
    As diabetes is a polygenic disease, the genes responsible could be dominant or recessive would be more difficult to ‘predict’ the disease.
    I know it’s difficult to put an exact percentage on it, but if anyone has done any other research into this subject, I would be very thankful.

    1. DaveW79

      The onset of diabetes is enhanced by a deficiency of vitamin D.

      “Vitamin D deficiency predisposes individuals to type 1 and type 2 diabetes, and receptors for its activated form-1alpha,25-dihydroxyvitamin D3-have been identified in both beta cells and immune cells. Vitamin D deficiency has been shown to impair insulin synthesis and secretion in humans and in animal models of diabetes, suggesting a role in the development of type 2 diabetes. Furthermore, epidemiological studies suggest a link between vitamin D deficiency in early life and the later onset of type 1 diabetes.”

      Doctor Mercola has an amazing web site on vitamin D.

      Celiac disease might be caused by a vitamin D deficiency.

  18. pla4me2000

    If you find that you have this condition or not. May I suggest Tahitian Noni Juice? because it can help in improving your health. the tahitian noni juice is the only product listed in the 2005 medical PDR with zero side affects. I use to have arthritis and type 2 diabetes before my doctor cleared me of both conditions. it helps improve your circulatory, immune and digestive systems. if you have any questions for me, feel free to send IM or email

  19. bittersweet84

    Scary lab results please help!?
    I need helping interpreting these results.my dr ordered them when she suspected either lupus or rheumatoid arthriris.but I have a swollen lymph node on my neck and itchiness all over my body. Also my tests came out very scary. I’m afraid it might be lymphoma. Here are my results,I just want to feel better until my drs appt next month. My ana test says “positive”but if u analize the reading it seems like a normal value…but anyway. Low rbc and low hct. Low creatinine. Very high sed rate. Very high c reactive protein. Normal c3 and c4. Please help!

  20. Anonymous

    Elevated Sed rate, all test normal?
    To make a long story short, I have had joint problems, memory, fatigue, hair loss, shortness of breath, anxiety, depression for months. I have a few auto immune diseases, and it was suspected I have Lupus. So i went through a lot of blood work, ANA was “negative” the doctor told me, iron levels normal, I had two rheumatoid arthritis test, they were normal. I am at borderline with my white blood cell count, sed rate is at 23, i’m taking 50,000 IU of vitamin D a week.. I’m wondering what that means for my sed rate and white blood cell count, since it’s slightly elevated, does that mean something? I have my follow up on Monday, I just wanted to see if anyone was or is in the same boat as me.

    I know about ANA being negative and the person could still have lupus.
    Hopefully the vitamin D deficiency is what messed with my white blood cell count?

  21. Jennifer O

    2 high d-dimer results with no blood clot?
    Hi everyone – first let me thank you for taking the time to help me, I don’t know what to do anymore.

    Okay – Family History: My father has a blood clotting disorder and is on life long anti-coagulant therapy. My aunt had lupus. Cancer runs on both sides of my family ranging from leukemia to breast cancer.

    Me –

    In July I was hospitalized with a suspected blood clot; I had racing heart, trouble breathing, and felt faint. D-Dimer was high at 4.56 but echo, ultrasound, and lung CT were normal. Sent home on a moth regimen of anti-coagulants.

    Yesterday, back in the ER for pain in my right leg and it felt as if my leg was emanating heat. Ultrasound clear but D-dimer elevated again at 3.86. Told to see hematologist. This morning I woke up and for the first 3 hours my pinky and ring finger on my right hand were numb.

    Other possible symptoms: I have been to an endocrinologist to have my thyroid checked because despite religious exercise and eating right, I gain a pound or 2 then stay at that weight and then gain some more. Plus I have a low libido and fatigue. All tests came back normal.

    I have noticed my memory is lacking these days and I can be quite irritable.

    Does anyone have any clue s to what is up with me??

    1. Agnodice

      A d-dimer is only helpful in the evaluation of a blood clot when it is negative. A positive d-dimer only means that further testing is required to evaluate for a blood clot. The d-dimer is a break down product of blood clots and many things can increase the D-Dimer. The lower extremity ultrasound and CT are more definitive test to rule out blood clots. The episode in July was likely a panic attack if all other possible causes were ruled out. I am guessing you had an EKG and your heart was monitored in the ER to rule out other conditions, such as an abnormal heart rhythm.

      Fatigue is a very general symptom that can occur with many conditions. Thyroid disease is a common cause of fatigue, but you had normal testing. Anemia and diabetes are other common causes of fatigue. Depression could lead to decreased libido and fatigue also. Hormone abnormalities like excess prolactin can also decrease the libido. Lack of sleep and anxiety could also contribute to decreased libido. Your doctor may have checked you for some of these conditions and I would suggest you also discuss this with your doctor if you have not already. Good luck.

  22. kaeylarae

    Coeliac Disease? Systematic Erythromatus Lupus?
    Ok. I have Coeliac or Celiac Disease. I was wondering if anyone out there can help me. I know in some cases SLE can be associated with this. I tick a good few of the boxes with SLE symptoms IE, Rashes that wont go away.On my arms but especially purplish spots on my legs that dont go away when pressed.Also Joint pain in bones and and swelling,depression,severe weight loss,muscle loss..Severe unknown cause of Anaemia requiring regular blood transfusions.I haven’t had a period since i was 32 as I had an Hysterectomy.I have had checks done to see if I am bleeding internally but these were negetive.Seizures and blackouts.poor memory..Just to name a few. My doctor does suspect I have SLE but I haven’t had more intensive tests done as yet. Can anyone tell me a bit more about the possible link between the 2 diseases and also as I am seeing my doctor this Friday.Should I bring the matter up again?. I hate being ill. I just want to know what is happening to me. I have been ill since I was 29 and I am now 38.I lost 7 stone (yes I was hugely overweight) but this was done without dieting.The weight has just fallen off me.I am tired all the time.I don’t sleep well due to the pain I am in and also have Scoliosis of my upper spine.Any info would be of great help.Many Thanks in advance

    1. Ginny Jin

      You definitely have an autoimmune problem. The rashes and blackouts are more suggestive of Lupus. But you can have 2 illnesses at the same time. My opinion is that you have an extremely comprised immune system caused by one of the following – environment (poor living conditions), stress, travel, bad sleep pattern, or excess use of alcohol/caffeine/soda.You no doubt have a wheat/diary intolerance. Cut those. Take magnesium for nerve function. Try pilates.

  23. Pomella

    High serum IgE, positive ANA?
    I recently just had an extensive blood test done and it will be a about a week until I get to see my doctor. I’m wondering what the results could possibly mean.

    I have Hashimoto’s (being treated, levels are fine), and everything else on my blood work was good except for high serum IgE and a positive (1:60) for nuclear ANA. My doctor had suspected lupus, I think, but since the rest of my results were good, that can’t be the case can it?

    Also, is there any conncetion between the ANA results and IgE levels? I don’t have allergies (that I know of – maybe mildly reactive to pollen?) and am pretty sure there aren’t parasites crawling around inside me.
    Hi, Anti-DS DNA wasn’t ordered. The only thing I saw next to the ANA test was an observation stating that the result could have a POSSIBLE connection with Sjogren’s, SLE and neonatal lupus. I didn’t know there could be a connection with Hashimoto’s.

    1. Iain C

      I can understand why you’ve taken to googling and asking on here as often lab results only tell you what the results were and leave all the explaining to the doctor. Problem is lots of patients get the results long before they see the doctor.

      Evidently you’ve had an autoantibody screen because your doctor suspected lupus. The most sensitive autoantibody for lupus, and probably the most specific one, is anti double-stranded DNA (antiDS DNA) which I’m assuming was negative? Negative doesn’t necessarily mean you don’t have systemic lupus erythromatosus. Antinuclear antibody is also another marker of autoimmune disease. The problem is it’s only 50% sensitive and less than that in terms of specificity. Meaning it may show up negative if you don’t have anything and wouldn’t narrow down what you had too much even if you had it. ANA is also raised in 5% of the normal population (approximately). Half of the time this raise is inconsequential.

      The fact that you’ve already been diagnosed with hashimoto’s thyroiditis may well be enough to explain ANA being raised on it’s own (1/3 of patients with hashimotos have raised ANA anyway and this is a likely explanation).

      As for IgE this is harder to pin down. It may well be something completely unrelated. Perhaps your body has been dealing with a minor fungal infection so minor that you’ve not noticed it? perhaps you have some subclinical (aka asymptomatic) allergy. It’s difficult to answer more accurately without all of the test results, however suffice it to say I wouldn’t worry too much.

      Positive ANA is probably just hashimotos – and is high in quite a number of normal individuals. It is, however, also a consistent (although far from diagnostic on it’s own) finding with lupus.

      Don’t lose any sleep over this and wait for your doctor to discuss it with you in more detail.

      To sumerise then: Don’t get alarmed. Neither finding is a cause for it. These tests need to be interpreted in the context of your history to best use their results.

      I hope that puts your mind at rest some!

      Edited to add:

      Around 10% of patients with any form of autoimmune thyroid disease and a positive ANA will have Sojgren’s syndrome. Put another way 90% of those with autoimmune thyroid disease and a positive ANA don’t have sojgren’s syndrome. Again it’s consistent but very far from proof. Do you have problems with dry eyes and mouth? and excessively dry skin? These are some of the main symptoms of sojgren’s. If not the diagnosis becomes less likely. Also did you have rheumatoid factor measured? In 90% of sojgren’s sufferers this will be positive. (some sources actually say nearly 100% of sojgren’s sufferers….but it’s also positive in around 4.5% of the normal population so on it’s own means nothing). Perhaps you can now see why this needs to be considered in the context of your full history as many of the antibodies we’re talking about mean little on their own. (even Anti dsDNA is positive in a wide variety of conditions).

      Anyway I’d relax about this, only when considering the full history will these results be useful. Don’t lose sleep over this.

  24. Daisyhill

    Today I heard a woman calling her child and his name was?
    Lupus! He was about 8…and she said “Lupus! Come here now!” I could’t believe it…it’s a blinking disease! Lupus is a disease of the immune system…she was kind of like a rock chick…and I suspect that she took Lupus as the original meaning…Wolf….but did no one say to her…er..you cant call him that it’s a disease! It’s like calling your kid Laryngitis….or Gout!

    1. Due April 2, 2011

      Just because it means more than one thing doesn’t make it wrong. It’s a latin word, though it is odd it’s not that bad because it has multiple meanings.

      You took it as the disease probably just because you don’t like the name or think she shouldn’t have named her child such; someone who likes the sound of the name would associate it with “Wolf”.

  25. paulszone2000

    My wife is suffering with joint pain.It shifts from one joint to the other. I suspect she may have Lupus.?
    Her elder sister is also found to be Lupus positive.She is now suffering from kidney failure. Since it is a rare disease, it is very difficult to find information about. What are the chances of my wife to be Lupys positive? What should I do?

    1. RY

      It could be lupus or arthritis,it is best to take her to a doctor as soon as possible. While there is no cure for either, both can be controlled and she can have a good life if treated in time. My sister had lupus and lived for 30 years with it, the lupus is not what she died of. Good luck.

  26. gentle understanding

    Hematoma on back of my hand? What?
    I am aware of my health deteriorating within the past two months. I’ve moved my family from west to east coast, not a very satisfying marriage situation, and no work for me. Last night, I was doing my usual hour-long walk and felt an ache in my left hand. After I was finished, the back of my hand had a hematoma that spread like a bad blood draw. What is going on with my body? I have Hashimoto’s thyroiditis, and suspect maybe Lupus. I only feel “good” when I’m drinking wine, which I do nightly, sometimes a bottle of good red. I feel crappy. What in the world would make my hand bleed under the skin? I wonder if my liver is suffering from stress. I didn’t hit my hand on anything. Thanks for listening. I’m feeling way down. Any words of wisdom, knowledge, advice and encouragement I would so gratefully appreciate. I am sad and lonely.


      Hi Mia

      Very gutsy for you to expose your weakness’ for us to comment on. I Think you have a lot of power inside of you waiting to come out. You are stuck on negative aspects on your life and need to take control and focus on the positive (just one thing). The mind and body will follow you once you do that. Obviously before you can help anyone else in life, must learn to help yourself.

      Health should be the most important thing in people’s life today, but it’s usually 3rd or 4th place for people. You need to educate yourself on nutrition (cannot stress that enough), drink a gallon of distilled water a day (to refresh your body and pull out toxins), and detoxify the body with a colon and liver cleanse. The cleanse will pull the toxins out of the blood, so new blood can come in and start healing the internal body structure.

      Here are some more ideas to help the healing process. Also, click on my name and you can email me any questions you have or some other ideas to get you well.

      Diet: Eat an organic, whole foods diet, emphasizing foods that are naturally high in iodine such as fish, kelp, vegetables, and root vegetables (such as potatoes). Also, increase your daily consumption of foods rich in vitamin B complex, such as whole grains and raw nuts and seeds, and foods rich in vitamin A, such as dark green and yellow vegetables. But avoid foods that slow down production of thyroid hormone, such as cabbage, Brussels sprouts, mustard greens, broccoli, turnips, kale, spinach, peaches, and pears.

      Herbs: Mild cases of hypothyroidism can be helped by herbal bitters such as gentian or mugwort, while constipation due to low thyroid function can be improved by yellowdock, butternut, or cascara sagrada. St. John`s wort can also be helpful.

      Homeopathy: Calc carb. in a dose of 1M once a day is very useful for treating hypothyroidism and improving overall thyroid function.

      For your hand use a combination of cayanne pepper and ginger raw or in tea to help the circulation. Fresh blood cannot get in the hand normally and that is why you have the issue. You can also use a strategy called Hydrotherapy for your hand. Place it in very cold water for a minute and then in hot (as you can take) for a minute and do this rotation 7 times. Continue until the circulation gets better each day.

      Make sure you get a massage or see a reiki healer to take away your emotional pain (energy blocks) to relieve a lot of these issues as well.

      Best of health to you

  27. sekhmet179

    First time patient going to see a thyroidologist?
    I was wondering what sorts of examinations will be done when Systemic lupus erythomatosus is suspected (Please be specific if you can)

    will the doctor do test especifically for that and/or do a general check up of the endocrine system?

  28. Dragonfly :)

    SOMEONE please help, ive been to 6 different doctors, and no one knows the problemm?
    ok, please help me, has any one had these symptoms before? because im so tired of suffering. I have the symptoms of a fever sometimes. I get hot flashe, and sometimes im cold, in the morning my face swells to the point where it hurts, and my lip as well, its aweful. i get major migranes for hours at a time, to the poin where i cry. my nose is constantly stuffed, and i get to caughing where as my throught feels like someone is scaraping it with a razor. im constantly suffering from loss of breath. I hvae been to 6 different doctors, each taking blood samples, but in the end no one knows the problem! i swear if i have another needle in me ill die. one doctor suspects Lupus (if thats how you spell it). It copies other symptoms of viruses. But no one knows for sure. If you have suffered through this, and know the cure and the cause, PLEASE SHARE IT WITH ME…my friend thinks it was cause through and infection traveling through the air, which i cought through my eyes…?? can this happen?

  29. idiotbox2005

    Are “flares” highly likely to return when someone with an illness skip, then restarts his medications?
    Twice I skipped and restarted my prescribed maintenance medications in the past but now that I’m taking them all in for real has made my daily life somewhat tiring than usual. I have Lupus Nephritis and have had this similar feeling before. That was when I wasn’t seeing doctors yet. I really suspect them as “flares” because of the fatigue, heartburn, dizziness, nausea and heavy feelings combined together. My wife also commented that I looked thin and haggard, although I don’t see any difference from how I was two weeks back, save what I feel right now. What do other Lupus patients online think? Your feedback is most appreciated. Thanks!

    1. popeyes_belle

      I also have Lupus Nephritis and recently had to do without meds for about a week. Now I am having a flare with swollen ankles and an infection. Not to mention blood pressure that was 205/95..Whoo-ee! I’m going to see my nephrologist later today, and I plan on asking her if the flare is due to not having my meds for that period of time. I have been taking Plaquinil, Lisinopril, a water pill, and sometimes antidepressants for well over 7 years. I feel like the lack of meds is what is causing this problem, so I went to the e.r. to make sure all was ok. Well, its not. But, I will try to let you know what the doc says when I get back. Please go see your doctor, as nephritis requires routine maintenence to make sure your kidneys are the best they can be. You should probably be going every 3 months for adequate health care.

  30. sekhmet179

    SLE and/or TB?
    I have an ANA titer 1:320 speckled and anti-SSA/RO strong positive and a red slightly raised and sore TB skin Tests (not sure if its positive/border line positive/negative-will be getting a call later though) of about 18mm/1.5cm

    I have all the symptoms and test results but not enough time to call what I have Systemic Lupus Erythematosus although it is suspected but some of the symptoms do overlap with tuberculosis so can What I have just be TB or can it be Lupus with Tuberculosis

    Is it a combination of the two or is it really TB?

    I also Have a rheumatoid factor of 36 (don’t really know what this means-so if you do help!), normal is anything under 20 and a`slightly raised erythrocyte sed rate

    All other test Anti-dsDNA,Sm,La, etc came back negative

    1. Dynamite

      You have a dysfunctional immune system. You may have an autoimmune condition yet to be given diagnostic label. It may change with time and it is causing a false positive PPD and rheumatoid factor positivity
      YOU do not have TB
      Keep a chronologic profile of your history and summary of lab tests for the rest of your life

  31. jerry w

    What would you do if you suspected your spouse is cheating online?
    My husband and I have been married five years. We met online. I have been getting messages from a females name and when i respond they dont answer.
    He has been very mean to me, yelling, and just rude. And the other day he blurted out to my son( From another marriage)
    if you dont do what i say im going to take your little sister and leave your mom.
    Let me add I have lupus…I am not very well.
    So how can i prove he is cheating? will a cheater eventually mess up? he has changed all of his screen names and i keep get these messages from his old one. i dont see how he has time to cheat but something isnt right. help please. all you cheaters tell me how you got caught

    1. verdugo

      All you cheaters tell me how you got caught? LOL. I’ll give you an advise. Take that computer and take it to a spy office, they can bring back all messages and make a record of it. It will help you out on court for a divorce if that’s what you are looking for. Just say hey, the computer has a virus, let me take it to my friend he is a computer tech. There is a lot of spy places. They have software that can bring back all of those visited websites. and the whole nine yards

  32. deva s

    Are my food changes really making me sick (in constant pain and aching)?
    Ever since I’ve stopped eating mostly fruits and veggies, and started eating more sandwiches and salty foods (because they are cheaper), I’ve been noticing that my body hurts almost all the time now. I also have been having more frequent and looser stools and look like I am bloated or pregnant. I am still young, but it seems like places that shouldn’t ache are, and I am feeling sluggish. Is my dietary behaviour to blame or is it just that I’ve hit the 30s? I have a history of car accidents and a hormonal problem too, but it seems that the pains I have are much more than before and include my fingers and toes. I also had symptoms as a teen and have been diagnosed with IBS. I have suspected fibromyalgia, osteoarthritis, RA, Celiac disease, and lupus. It seems that when I was eating healthier previously that I felt better than I do now for at least half the month.
    And here’s another big question: Can unhealthy food choices make a normal healthy and athletic person feel this bad almost all the time?

  33. Kaoru

    Ehlers-Danlos Syndrome?
    In March of 07 I was diagnosed with EDS when RA was suspected. Before this I was diagnosed by someone I can’t even remember with Fibromyalgia after negative tests for Lupus. (Why is it always a jump to “you have a syndrome” when an initial test for something comes up negative?) Also, I couldn’t tell you what type I have, the doctor didn’t specify if it’s classic or hypermobility.

    What I don’t understand is: isn’t EDS supposed to be hereditary? No one I know in my family has this or symptoms similar to mine (except apparently my paternal great-grandma had RA, which seems like a pretty big long shot). How is it that I could have EDS?

    (Did Arizona once again provide me with a cruddy doctor?)

    1. Individual

      There are different types of EDS-some are autosomal Dominant-which means you only need 1 bad gene to get it-

      others are autosomal Recessive-which means your ancesters coudl have carried 1 defective gene for generations, but not have had the disease-

      you need BOTH of your genes to be mutated to EDS to actually have teh disease if it is teh recessive type. –one from each parent——

      both your parents would have a normal gene and 1 mutated gene and there were be only a 25% chance the offspring would have teh disease-

      25% chance both good genes
      50% chances-1 good gene (dominant), 1 bad gene
      25% chance 2 bad genes=disease

  34. doormat

    lupus medication? is it effective?
    I’m a 30 yo male. I go to see the doc in a few days and am pretty sure i have lupus. i had a positive ana test and the malar rash to match. I’m very active and suspect i have had this for years . I was just wondering what medications they are giving people these days. Some of the things the disease causes i think i can deal with. I do notice low energy and fatigue developing and was wondering if they have any thing that helps this. i also notice concentration problems and was wondering the same.

    1. Jeff

      If you have Lupus, you can be put on a wide array of medicines to try to help. Prednisolone which will help with the rash and alleviate some inflammation, NSAIDS, pain relievers, antimalarial drugs, anti rheumatoid arthritis meds and pain patches may help. B-12 shots may give you more energy. You may want to try some arthritis vitamins as well. A rheumatologist will help to determine which meds will help. Be prepared for trial and error, but, at some point you will get to feeling better. Not trying to discourage you but not all medicines help, so don’t give up hope. If you haven’t already, have a complete autoimmune titer panel done. Good luck.

  35. The Link

    What could be causing this issue with my wife?
    Me and my wife have, for a long time, had a healthy sexual relationship. In fact, she has often times had a higher sex drive than me!

    Recently, however, she has been experiencing a multitude of health problems. She has lupus, and I have suspected that many of the issues of pain and other symptoms she has been experiencing throughout her body have been due to a flair up of lupus. However, she has also been experiencing some sexual difficulties as well. Occasionally, intercourse has been painful, especially if we are using a condom, although there have been many times where it has not been, and one time recently where it was painful in one position, and not so in another we tried a short time later. But very recently, she has also stopped lubricating naturally- she has become very dry even when very aroused. Just 6 months ago none of these things were issues.

    My wife’s sex drive seems unaffected except for anxiety over experiencing pain during intercourse. She is as unhappy as I am that this has become a barrier in the sexual aspect of our relationship.

    But more than that, I am concerned for her overall health. I have prodded and prodded her to go see doctors about this, but due to our financial situation and lack of health insurance she has been dragging her heels. She keeps “toughing it out” and often won’t proactively tell me when she isn’t feeling well.

    I will keep prodding her, but I was hoping someone with some knowledge might be able to tell me some possibilities of what we might be dealing with. Maybe it’s just the lupus, which is serious in itself, or maybe its something else entirely. I know that no one could (and no responsible person would attempt to) make a diagnosis of a disease in a forum like this, but I am no gynocologist, and I am trying to get any lead or fish for any information that could help.

    Some other information that might be relevant:
    – She is NOT taking any contraceptives, either oral or otherwise.
    – She was recently on some antibiotics for a dental infection, for which she also recieved two root canals, but these problems began well before she began taking the antibiotics, and I don’t believe the dryness began until after she stopped taking them.
    – Other than the above, she is not taking and has not taken any medication for quite some time.
    – Just in case it’s relevant, she has severe obstructive sleep apnea.

    And please spare the “she needs to see a doctor” line, as I already know this, and am trying with everything I have to get her to act on it.

    Thank you for any answers in advance, and God bless.
    Other relevant information I forgot to add:
    – Neither of us have noticed any unusual vaginal discharge from her.
    -The pain she experiences during intercourse comes in two forms, as best I can tell from how she talks. One type is where her vagina feels irritated, but she also seems to experience a pain like as pushing against a bruise on the skin would feel, but deep inside her and only during intercourse. Neither of these occur all the time.
    My wife is 22, and she was diagnosed with lupus about 3 years ago.
    I do not know what type of lupis she has, and I don’t think she does either. She kinda ran from the diagnosis instead of doing something about it. She doesn’t like doctors, hence part of my difficulty getting her to go to one.

  36. c

    Mysterious joint/bone problems…some advice?
    joint/bone pain occasional- jaw, fingers, wrists
    everyday pain(level varies)- hips, elbows, back, ribs, ankles, and knees
    They can simply ache or other times they are creaky, sometimes I can’t move them at all without UNBEARABLE pain.
    5-6 times a day a joint will “lock up” and be immobile for awhile, then it pops loudly and painfully.
    Something on my body is popping at all times when I’m moving.
    Walking through the grocery store is torture. When I walk down the stairs my knees shake and I’m afraid I’ll fall.
    Also, sometimes I have muscle pain. Mostly in my arms and thighs.

    My Rheumatologist suspected ankylosing spondylitis at first but I don’t have the genetic marker, that doesn’t rule out the possibility, just makes it super unlikely.
    I’ve been tested for inflammation and my levels are fine. I’ve also been tested for rheumatoid arthritis, lupus, lymes disease.
    I have had numerous X-rays on all my joints, I probably have my own filing cabinet at this point.
    I was just hoping that someone, somewhere, has these same problems and might be able to help me because it seems no one I’ve seen can pinpoint this and give me a diagnosis.

    Thank you.

    PS I’m on NSAIDS and taking glucosamine and chondroitin, not helping in the slightest.
    Had to add this after some answers, this has been years this has been happening and I have a well balanced diet…

    1. dipps

      it sure does sound like ankylosing spondylitis, but i agree that if you don’t have HLaB27, it is pretty unlikely. any Hx of urinary tract infection? or conjunctivitis? consider myasthenia gravis (particularly if you look like you are drunk when you walk) or myositis (particularly if you can raise hands above your head (hang washing). otherwise, report your C reative protein and your ESR for more info.

  37. Laurel

    Symptoms for 7 months, no diagnosis. Excessive hair loss, muscle pain, swollen nodes.?

    I`m a 19 year old female who`s been experiencing a series of symptoms for the past 7 months that doctors have been unable to diagnose.

    Firstly, my hair has been falling out and as you can imagine, this has been very emotionally stressful. Since about 7 months ago, I`ve lost more then 75% of hair from all over my head. The hair loss is not patchy, but has been thinning all over. I used to have long, extremely thick and beautiful hair, and now its almost gone. The hair loss is not localized to my head as I’ve even noticed that the hair on my legs and in my pubic area have barely been growing back after shaving. I did see a dermatologist and he said that I must have an underlying autoiumme disease that’s causing the hair loss. He suspects lupus or a related disease, but as of yet, blood tests have shown no irregularities.

    Since around the same time my hair has been falling out, Ive noticed that the lymph nodes in my neck have been swollen. Sometimes they are red and sensitive (especially after drinking alcohol or smoking) but usually they’re painless. I’ve also been experiencing a lot of joint/muscle pain and stiffness. Some days it gets really bad and I can barely move, even typing/writing is difficult because the muscles in my hands are so stiff. I feel like every muscle and joint in my body is inflamed. I’m only 19 and I’m having as hard of a time moving around as my 55 year old mother with MS.

    Lastly, (and I’m not sure if this is related at all) my skin has been really dry and especially itchy. I’m not sure if I’ve noticed any rashes, but I have noticed some redness (light red spots) randomly on my skin.

    My family doctor did a thorough blood analysis and everything came back normal. There is no sign of vitamin deficiency, my thyriod was normal, no diabetes, my blood cell count was normal, kidney/liver function was normal, and I’m clean for STD’s/STI’s. I really don’t know where to go from here and im terrified that if I don’t find out whats wrong, I’m going to go bald.

    Does anyone know what these symptoms indicate? Any advice as to what I should get tested for/where I should go from here would be great.

    Thank you in advance for the help!

    1. Moped Mama

      my endocrinolgist , said i had sluggish thyroid normal levels, my VIT D was dangerously low my vit b 12 was low i have hypo thyroid symptoms normal thyroid I HAVE goitors never knew it until i choked and had ENT do a nasal scope, so follow my advice my endocrinologist put me on synthyroid , 37.5 mcg works for me VIT D and VIt B 12 also AVOID wheat products you could be celiac syndrome try eatting oatmeal rice potatoes NO wheat pasta buy rice and corn pasta drink V* 8 splash change your diet

  38. Pinky

    What diet/excercise program should I do while bedbound from surgery?
    I had sinus surgery last Tuesday. Today I was scheduled to see the surgeon to get the splints removed…..but unfortunately I ended up in the ER first this morning because of bleeding (they have always suspected I had hemophilia, but also said I have a lupus gene).
    Anywho, so now they are saying I have to be bedbound for even longer- 2 more weeks. That makes for 3 weeks bedbound, which isn’t very fun for a 19 year old girl over the summer break : (
    I LOVE to workout and eat right, because it makes me feel fit and happy. So having to sit all day makes me depressed, bored, and feeling weak.
    How many calories/what should I eat? And what excercises can I do in bed? (that won’t cause my nose to bleed). I’m 5’8″ and 120.

  39. blue angel

    ANA 1:640 and no further action from the doctor?
    Last year i have problem with my lung, and when my doctor knew that my mother & younger sister have a lupus and my older sister has a RA, she asked me to test my blood for ANA which result negative.

    Last month i have problem with my stomach, he suspected that i have a kidney problem. But once he knew my family history he asked me to do some ANA test. ( i move to other town, so it was not with the same doctor). This time the results are positive, I have high ANA (1:640). So he suspected that i have some auto-immune disease but it is still not clear what is it. But the only thing he told me to do is to come back in a year and half to do the test again.

    is this normal? shouldn’t i take other test and do something else beside waiting for 1,5 years?

  40. Joel S

    15 and tested positive for lupus?
    went to the doc a few weeks ago for a physical and pain in my back (suspect it from cracking it and such, went away since) and they took a bunch of blood tests at the lab at least like 8 or 9 tubes of blood, everything came back okay, except my doc said that i tested positive for lupus, he believes its a false positive, asked if anybody in my family had it. My dad is adopted from birth so we dont know his side, but no one on my mothers side has it, but i know some people that have lupus have rashes and such and my brother whom is 24 has a rash all over his body, i dont think its lupus though, he developed it around 18 but doctors said it was something you’d develop as a infant and it would go away, so i dont think i have any connection to that but, what could make me test positive for lupus? From what i know my family is very healthy except my fathers thyroid problem but other then that no other health issues.

    1. ★☆W.a.b.b.y✿❀

      As the other answerer said, there’s 11 criteria for Lupus and you must have 4. So a positive blood test is just one requirement. You need at least three more.

      It doesn’t matter if there’s Lupus in your family. The only thing that runs in family is Celiac Disease. I have Celiac Disease, but I also have an autoimmune inflammatory arthritis (my dr says either Lupus, RA or both.. I’m waiting to find out). No one in my family has Lupus and my great-grandad had osteoarthritis, but that’s irrelevant (it’s not autoimmune). If it’s in your family, you’re more likely to have it, but it doesn’t mean you don’t have it just because no one in your family has it.

      Your brother could have Lupus. If you have any symptoms, you should speak to a Rheumatologist.


  41. bittersweet84

    Can someone help me interpret these results?
    I just got my results for the ANA test (my dr suspects lupus or some other auotimmune disease) but these results seem confusing to me.they used the EIA ELISA screen including hep 2 ana.(that’s what the paper says) it says interprerations 0.83 od ratio negative <0.90, positive >1.09 ,equivocal 0.90-1.09(retest). Then it saya in big bold letters: positive results confirmed by ANA colorzyme hep 2 cells. I know it clearly states its positive,but the numbers don’t make senae to me. I searches onlibe and the results format are totally dif than mine so I can’t compare. Please help. Is it really positive?

  42. Marla

    As a female in her 20’s, what can I do about this bald spot?
    To briefly explain, I had all kinds of physical problems that was bothering me for months which prompted me to see my doctor. After past assessments and test results (positive for ANA), my doctor suspected I may have lupus, but must take a 2nd test to confirm (lupus or rheumatoid arthritis). I still have to take the 2nd test this week since I had to wait abt. a month to take one.

    So just a few minutes ago I was on my laptop and just happened to feel the back of my head. Strangely enough I felt that part of my scalp was somewhat numb, rubbery and smooth. Feeling that alone gave me the chills, so I decided to take a picture of it straight away.

    When I looked into my camera, I was shocked to find I had a bald spot the size of a penny near the top of my head. When I zoomed in, I noticed there are some very short stubs of hair but abt. 50% of that bald spot had nothing growing on it.

    It might help to know that I’ve suffered from quite bad dandruff since I was 12, but I could actually control it and can still control it. Luckily the spot cannot be seen at all since the top of my head is very much full of hair and that covers it. It’s only visible when I move hair out of the way with my fingers.

    I’m wondering… will my hair ever grow back, particularly if the bald spot is caused by systemic lupus? What can I do about it? Should I start taking folic acid or hair/nails supplements? I’m so depressed abt. this, please help me…thank you…

  43. babooshka

    Sed rate number?
    I was recently tested because of suspected lupus… the tests came back in the normal range, but everything, including the sed rate was pushing the limits of normal. i.e. the range for normal sed is 0-20 right? and mine was 19. does this means it is on the rise and i should be re-tested soon?

    1. marrsal

      Sed rate of 19 mm/hr is not significant. The diagnosis of lupus is not based on a single value of a single test. The decision on repeating that and other tests will depend on your symptoms.

  44. Charlotte Evers

    Possible symptoms of Leukemia or Lupus?
    My friend has small bruises on the middle of her back for no reason that appear often. She has very severe Celiac’s disease, and she is 13 years old. She is very drowsy with no energy, and has nausea and vomits a lot lately. I don’t know if this is related at all but her gums and the inside of her mouth bleed when she’s not even eating or anything, just for no reason. She was looked at by a friends mom who is a doctor, and she suspects that this could be Leukemia. She also had a herniated disc in her back recently which is now pretty much fixed, but could that be the reason for her bruises? My friend has an appointment at the doctors office to have her spine looked at and get blood drawn and tested. She also loses weight without trying and has excessive sweating and random tiny reddish spots from her stomach all the way down her hip. She is only 93 pounds and is losing a lot of weight for some reason. Is this Leukemia??? What are some other symptoms of Leukemia? What else could this be? Thanks for reading and please answer with anything you know, even if its just a guess!


    About ten minutes after I eat (anymore than a few bites) I get ice cold & then pass out asleep. Any ideas?
    I have had severe constipation for many years (a motility problem) as well. I also have been told I have an undiagnosed auto-immune disorder (Lupus, MS, etc.). I have heard of a condition called GAVE or Watermelon Stomach and suspect it sometimes. It doesn’t matter what I eat and it happens without fail if I eat more than a few bites. It is uncontrollable and seems to creep over me right after I get chilled. I call it brain fog. When I wake up from this I feel awful and sick to my stomach. I’ve tested my blood sugar on a home meter at the onset of the “fog” and it’s fine. Anyone else experience this? It sure is life-altering. Can’t eat until the kids are in bed and if I just don’t eat I end up with blood pressure so low I start to pass out. Help?!

    1. MsElainious

      The only one that will be able to diagnose or help you is a professional.
      I have lupus (auto-immune disorder) and I do understand what you’re saying with the chills and brain fog, but I don’t experience any of those symptoms just after eating.
      You could also be experiencing a hormonal problem or perhaps you’re on a medication that’s not agreeing with you.
      In any case, what you’re experiencing is not normal.
      My best advice, make an appointment with your regular physician and have him/her refer you to a specialist.
      I wish you the best *

  46. the_asian

    Any one want to give a shot at a diagnosis?
    My symptoms started suddenly with just myoclonus and a hand tremor last year March and the list has slowly been growing since then. They now include:

    Spinal myoclonus in the abdominal area that gets when I’m lying down
    Tremor in the right hand that sometimes spreads up my arm and in to my shoulders and left arm and hand
    Bad headaches
    Memory disturbances
    Speech difficulties, written and oral
    Fasciculations in my legs
    Vision disturbences – blurred vision that goes away if I keep my eyes closed for a few seconds or if I blink a couple of times and I also sometimes see these spots

    My first neurologist ran all sorts of tests which included blood tests (some of them were iron and magnesium levels; thyroid, kidney and liver function; ANA), MRI scans, EEG, EMG and a lumbar puncture and everything was normal. We tried to keep the myoclonus under control with sodium valproate at first which worked pretty well until I was taking a dose that my body couldn’t handle and I ended up with what was suspected valproate toxicity (I say suspected because the levels were actually still within the normal range) Clobazam and clonazepam had no effect whatsoever. Levetiracetam worked to a certain extent when taken with sodium valproate. My neurologist was completely baffled by me so she sent me to a more senior neurologist who now has me on sodium valproate and lamotrigine, which is also only working to a certain extent. The new neurologist mentioned things like lupus, lyme disease and lafora disease but he said we can’t make a definite diagnosis yet because he would like to have me under “observation” for a while.

    I was just wondering if anyone else had something else to add to the pot of possibilities or if anyone could tell me which one of the diseases is more likely. I’ve done quite a bit of research and nothing really jumps out at me

  47. Dena

    What happens if you have lupus?
    hi my mom was just tested for lupus and the dr. strongly suspects she has it. what should we expect? what are the symptoms or problems that she will face?

  48. angelancrowder

    i need help i tested pos. on my ana 12 profile it came back positive 1:40 speckled cardiolipin igm 18.6?
    i have been feeling ill for quite awhile, i was dx with fibromyalgia about 2 years ago, the drs. knew i had some form of auto immune disorder but havent aggressivly searched for anything, recently had a bone scan done and shown that in shoulders, elbows wrists, knees, there was evidence of degeneritive arothopy, my pain mgt. dr. advised me to go to a rheumy. i got in with in 1 week, this should of been my first clue, the dr spent less then 10 mins with me , but did order blood work, on my ana 12 profile it came back positive, speckled, and the titerwas 1:40 my complement c4 was 15. my cardiolipin was18.6 anti-ds dna ab by farr was 2.8, anion gap 19.0 and rdw was 15.9and my crp was 11.4, my question is i have suspected that i have had lupus for awhile, i have all the classic symptoms, but my first visit with the rheumy, he automaticly without haveing any previous history said i dont think you have lupus or rheumotoid arthritis, and without seeing blood work, does anyone have any answer

    1. christibro40

      Hi, Im Chris I have Lupus with Central nervous system involvment, co-own a lupus/autoimmune yahoo support goup, and do a lot of research for the group, thus have some of the books that Rhumatologiat use. Your ANA of 1:40 speckled is similar to mine, however, it will usually be smooth, or coarse. Yours is of an atypical pattern for Lupus, which they may not be able to interpret yet.

      with the C4, there are severeal c’s: C3, C4.C1 q, and subsets. With a C4 it does show disease activity, so does a positive CRP. However, everything seems so borderline, it may take them a bit to figure out exactly where the disease is going, and exactly which disease you have.

      With your ANA that low (a low Positive) and the other positive, they do know you have a connective tissue disease. It seems the only one they CAN rule out is Rhuematoid Arthritis.

      When they test ANA, They are testing for Sjogren’s, Mixed connective Disease, Sjogren’s, scleradoma and others. So like for the rest of us, with blood work done. It is kind of a waiting game. while the doctors decide what to do and test you for, because not all these disease’s take the same medications. Also, many feel like and mimic Lupus at first, but as time passes, they change and feel like and do what their diseases do. so you will have more testing done. The full diagnostic time, can be 6 months. Also, many of the symptoms overlap, at any given time. But there is active autoimmune activity going on.

      My educated guess, and that is what it is, from all my years of research, and people in my group, is Mixed connected Tissue disease at this point, which mimics anything early in it’s disease progression, and can turn into anything.

  49. .

    Is the cognitive dysfunction that results from Systemic Lupus Erythematosus generally permanent?
    According to research findings from Dr. Betty Diamond (Columbia University), the anti-double-stranded DNA antibodies, which are able to permeate the blood-brain barrier in some patients, attack glutamate-rich nerve cells in the cerebral cortex of the brain by acting on N-methyl-D-aspartate (NMDA) receptors. A medication which can block these receptors is being investigated, with claims that cognitive dysfunction could be prevented or even reversed, but what effects would that have on synaptic plasticity and memory function?

    Apologies if any of the above is nonsensical, as I feel like my head is full of broken glass ATM. I’m a 16-year-old female being tested for much suspected SLE. I wasn’t at all bothered by the physical pains, but further cognitive decline would be the most horrible prognosis imaginable. I haven’t been able to find much literature on the topic, especially concerning younger patients, so if anyone can point me in the right direction it would be much appreciated.

    Thanks for your thoughts.

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