According to recent studies completed in the U.S. more than 50 million Americans suffer from rhinitis.

 

Definition

Rhinitis is the medical term given to a runny or stuffy nose that won’t get better or the symptoms come back repeatedly. Rhinitis can be classified as follows;

Non-allergic (vasomotor) rhinitis

Allergic rhinitis

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Non-Allergic Rhinitis

Causes

The linings of the nose become swollen due to inflammation. The mucus glands in the nose get stimulated, causing a congested, runny nose. Many things can trigger this nasal swelling such as;

  • Environmental or occupational irritants – Dust, smog, chemical fumes, second hand smoke or strong odours such as perfumes.
  • Weather changes – Temperature or humidity changes
  • Infections – A viral infection such as the cold or flu is a common cause. This type of non-allergic rhinitis usually clears up within a few weeks but can cause lingering mucus in the throat (post nasal drip). Sometimes this type of rhinitis can become chronic, causing ongoing discoloured nasal discharges, facial pain and tenderness (sinusitis).
  • Foods and beverages – Hot or spicy food, beer, wine and other alcohol and food types can cause nasal inflammation.
  • Certain medications – Non-steroidal anti-inflammatory drugs (NSAID’s) such as aspirin and ibuprofen and high blood pressure medications such as beta blockers. Sedatives, antidepressants, oral contraceptives and drugs used to treat erectile dysfunction can also cause it.
  • Hormone changes – Changes in hormones due to pregnancy, menstruation, oral contraceptive use or a hormonal condition called hypothyroidism.
  • Stress – Emotional or physical stress.
  • Prolonged use of decongestant nasal drops or sprays – Using these for more than the recommended time (usually a few days) can cause more severe nasal congestion when the decongestant wears off, often called rebound congestion.
  • Certain health problems – A number of chronic health conditions can cause or worsen rhinitis such as asthma, lupus, cystic fibrosis etc.

 

Symptoms

The symptoms include;

  • Runny nose
  • Nasal congestion and difficulty breathing
  • Sinus/facial pain
  • Sinus/facial tenderness
  • Sinus/facial pressure,
  • Headaches
  • Pain in teeth
  • Pain in jaw
  • Pain in ears,
  • Pain through and around eyes
  • Fatigue
  • Dizziness
  • Drainage of a thick yellow or green discharge from the nose or down the back of the throat (post nasal drip)
  • Reduced sense of smell and taste
  • Cough (which may be worse at night)
  • Nausea
  • Sore throat and halitosis (bad breath).
  • Irritability
  • Sleep disorders
  • Anxiety and nervousness
  • Chronic nose bleeds
  • Perforated septum
  • Dry/crusty nasal passages
  • Rapid heart beat

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Allergic Rhinitis

Causes

Allergic rhinitis is an immune system disorder where the body over reacts to harmless substances in the environment such as pollen, dust, mold, danders and food. Allergy producing substances are called allergens.

Allergens cause the activation of a certain type of antibody known as IgE. This antibody triggers the release of certain chemicals from cells in your nose such as histamine, resulting in an extreme inflammatory response and the associated allergic rhinitis symptoms. The main causes of allergic rhinitis are as follows;

  • Hereditary (runs in the family)
  • Sex (boys have a higher risk of developing an allergy than girls)
  • Age
  • Alteration in exposure to infectious diseases during early childhood
  • Environmental pollutants
  • Allergen levels
  • Dietary changes

 

Symptoms

The symptoms include;

  • Runny nose
  • Nasal congestion
  • Sneezing
  • Nasal itching
  • Post nasal drip (mucous runs down the back of the throat)
  • Sore throat
  • Sleep disturbances and snoring
  • Loss of taste and smell
  • Poor concentration
  • Headaches

 

Treatments Available

  • Natural nasal sprays – Natural nasal sprays such as SinuSoothe are doctor recommended and contain natural ingredients which relieve inflammation, nasal congestion, sinus pain, headaches, remove airborne irritants etc. In addition it contains natural anti-histamines that relieve a runny, itchy nose and sneezing etc. SinuSoothe can be used long term, is non addictive and has no side effects.
  • Saline nasal sprays – Saline nasal sprays such as Sterimar may be useful for moisturising the nasal passages, removing airborne irritants and relieving nasal congestion. They can be either isotonic or hypertonic solutions. These can be used long term, have no side effects and are non-addictive. They are not particularly useful for reducing histamine associated with allergies.
  • Nasal irrigation – A neti pot is used to irrigate the sinuses with either an isotonic or hypertonic solution. An isotonic solution has the same salt concentration as your body. A hypertonic solution has a higher salt content and may be more useful at drawing moisture and mucous from the sinuses. This may help reduce inflammation and relieve nasal congestion. It is a good practice for keeping your sinuses clean and removing irritants. It is completely safe provided you use the correct saline solution. However it usually has to be carried out in the home environment, is not convenient and many people either find the process difficult and/or don’t like it.
  • Natural anti-histamines – Quercetin and butterbur can be just as effective as OTC anti-histamines but without their side effects. Stinging nettle can also reduce allergic reactions. Your local health food store should be able to advise you on these and others. It usually takes about 4 weeks for these to start taking effect.
  • Reducing stress levels – Stress contributes to ill health and should be minimised whenever possible. It reduces immune function and causes ‘flare ups’. Vitamin B complex assists the body during stressful times and magnesium, 5htp etc. can help to relax you. There are also plenty of other supplements that can relieve stress and help you to cope with it better. Pressure is healthy, stress is not.
  • Exercise – Exercise has been known to reduce allergy symptoms since the endorphins released during exercise act as natural painkillers. It can also improve immune function provided it is not over strenuous.
  • Natural anti-inflammatories- Since the symptoms of allergic and non-allergic rhinitis are caused by inflammation it follows that by reducing inflammation you will reduce the severity of the symptoms. Omega 3,6 &9 oils, vitamin C, turmeric and ginger are all excellent natural anti-inflammatories. There are plenty of others and your local health food store should be able to advise you on these. It usually takes about 4 weeks for these to start taking effect.
  • Pollen barriers – Pollen barriers such as special barrier gel inside the nostrils can catch pollen before it enters the nasal passages thus relieving hay fever symptoms.

 

Prevention of Hay fever

  • Keeping doors and windows closed when the pollen count is high.
  • Staying away from areas where there is more pollen such as grass parks, especially in the early morning, late afternoon and evening when the pollen count is highest.
  • Wearing wrap around sunglasses to keep pollen out of your eyes.
  • Taking a shower and washing your hair after going outside when the pollen count is high.
  • Not drying washing outside if pollen counts are high – pollen may get trapped in the fibres of clothes and bed linen.

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Prevention of Allergic Rhinitis

The only way to prevent allergic rhinitis is to avoid the allergen that causes it, so allergy testing is important to identify the exact indoor allergen that provokes the allergy.

  • House dust mite eradication can help if special attention is paid to the bedroom.
  • Synthetic duvets and pillows are better than feather fills.
  • Old mattresses harbour up to 10,000 dust mites, so use mite impermeable barrier mattress covers.
  • Wash pillow cases and covers at 60 degrees centigrade.
  • Use a vacuum cleaner fitted with a HEPA filter.
  • Choose hardwood and laminate flooring, not heavy pile carpets.
  • Discourage soft toys and clutter.
  • Regularly air the bedroom to reduce humidity.

For severe pet allergies, unfortunately it’s best to remove the pet from the home permanently. Cat allergen spreads in the air throughout the home, even if the cat is restricted to specific areas. Although short haired and female pets carry less dander on their fur, any furry pets can trigger allergies including rabbits, guinea pigs, hamsters, gerbils and mice.

For food allergies it is quite simply a case of eliminating the particular food causing the allergy from your diet.

For allergies caused by mold and/or fungus, any signs of these in your home environment should be completely removed.

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Prevention of Non-Allergic Rhinitis

You should avoid whatever triggers your rhinitis such as strong odours, tobacco smoke etc. whenever it is practical to do so.

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As with all medical conditions you should always consult your doctor before undertaking new treatments.


Lupus Bible

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75 Comments on Symptoms Of Lupus Flare Up

  1. ♥Holly Cookie Starr™♥ says:

    Does this sound like a Lupus flare up?
    My mother has lupus and for years it’s been kind of at the back of my mind that I do as well. Since having my daughter I’d say the symptoms I’ve been having since I was 15 have increased dramatically.

    This weekend I thought I was getting a cold but instead I woke up in so much pain that I could barely move. I couldn’t stand any position because my hips, pelvis and spine was in agonising pain.
    I was dizzy, and confused. My stomach hurt and I ended up throwing up. I had a very high fever. I started shaking too. I had a severe headache .. and even the glands in my throat swelled up so that my mouth ached.

    I also get random rashes or hives, I have asthma arthritis and a few other problems. I would normally think that it was a bad case of the flu but no one else has been or is sick. Another thing is I got deathly ill after the birth of my daughter – my blood pressure sky rocketed and I swelled up… when the opposite should have happened.

    I have had some testing for Lupus but it’s never been 100% proven. I’ve got a posetive and a negative test so…

    • ★☆W.a.b.b.y✿❀ says:

      It’s possible. You need to see a rheumatologist. You should be tested quite regularly because your mother has it. It sounds like something is going on and it needs to be taken seriously.

      Good luck!.

      ….

  2. ~ Mommy Of 4 ~ says:

    Lupus sufferers pls help ?
    I have had a couple of ppl ask me ” Are you sure you might not have lupus ? ” Now I am wondering if what i am sick with isn’t a lupus flare up . Here are my symptoms

    I have a sore in my nose
    Get sores on my legs that don’t heal for months and look like shaving bumps or ingrown hairs .
    very sore joints
    ears and throat are sore
    extremely tired
    bruising easily
    having some edema here and there
    sometimes feel like as if my soul is very far away yet my body is here .

    If this does represent a lupus flare up what type of doctor do i go to get tested for Lupus ?

    Also how lung is the life span of a lupus patient ?

    • cris says:

      Unfortunately, those symptoms can be from many different things. But your regular doctor can check you for lupus. Its a simple blood test. Also one of the other things to look for is a red rash on the face, that looks like a butterfly that covers the bridge of the nose and cheeks, its very common with lupus. And the life span depends on what organ involvement you have. There are things you can do to avoid flairs if it is lupus, like avoiding the sun. Also eating right and exercise can help, the better shape you are in, the better you will feel.

  3. betsy_51783 says:

    Does anyone have discoid lupus and is pregnant?What are your symptoms? How do you deal with them?
    I am about 9 weeks pregnant and I cannot take my medication to help prevent the rash. Every day about 2 hours after I wake up I get a flare up on my hands, arms, legs, ankels, neck and chest and they seeming to get worse. Is this normal? I can’t get into my dermatologist for 2 weeks and none of my other doctors will touch the lupus issue. HELP!

    • Linda R says:

      Call the dermatologist back and be very firm about getting in earlier. If they gatekeepers still refuse, ask to have the doctor call you that day. If that does not work, call your rheumatologist.

      Personally, I would look for another dermatologist ASAP. Lupus patients need to be able to see their doctors within a reasonable time when there is a problem Two weeks is not reasonable. It is most likely the receptionist who is the obstacle. Asking the doctor to call you should by pass him or her. Don’t bother telling her your whole story. You can also fax the doctor explaining your symptoms clearly and asking him or her to call you ASAP. You can also call after hours and get the doctor’s service and leave a message with them if you think your other approaches are not getting through to the doctor.

      You might also call your ob/gyn and ask if over the counter cortison cream is permissible during pregnancy. Throughout your pregnancy the doctors who treat your lupus and your obstretician should be working hand in hand. You will be the one who has to make that happen.

  4. AUTUMN M says:

    Your Lupus Experience?
    Just diagnosed with lupus (dsDNA antibody was positive) but I have to wait a few weeks before the rheumatologist can see me and my primary care doc isn’t exactly full of information. So I’m curious about your personal experience with lupus. I know everyone is different, but what has it been like for you?

    1. How long do your flare-ups last and how long do you usually go between flare-ups?
    2. What are your symptoms during flare-ups and how severe are they for you?
    3. Do you have any symptoms at all between flare-ups?
    4. Does your doctor have you on a special diet and/or exercise routine?
    5. Has your lupus affected any of your organs or other systems? Please tell me about that.
    6. Are you on meds? What has that been like for you?
    7. How do you cope and go about your life (work, family, etc.) during flare-ups?
    8. Does your lupus prevent you from doing anything?
    9. How do you deal with the poor memory/concentration and “lupus fog?” Does that improve when flare-ups are over or will they always be there?
    10. What is yor immune system like…do you get other colds, flu, etc. very easily?

    Any additional information you have about your experience would be really helpful. I know about all the informative websites, but they don’t tell me anything about a person’s personal experience with it.

    Thank you!

    • jessie says:

      Hello,

      I actually created a Yahoo! account just to answer your question. :)

      1.) My flare-up lasted about 2 months, but I have only had one. It was before and a little after I was diagnosed, which was about a year ago.

      2.) Severe pain in wrists and fingers (my lupus triggers arthritis), fatigue, head aches, nausea, and dizziness.

      3.) I did at first, but my medications are sorted out now, so I have no symptoms at the moment.

      4.) No, although exercise is recommended for lupus. It sounds crazy, but I feel so much better after a work out.

      5.) Yes; I have nephritis, arthritis, anemia, and Raynaud’s syndrome. Lupus affects everyone different, though.

      6.) It was hell at first! I was on a very high dosage of steroids, but now it is a lot lower. I take Prednisone, Cellcept, Omeprazole, Hydroxychlor, a multivitamin, and a Calcium supplement. The side affects were bad at first, but that was only because they had me on a high dose to stabalise me.

      7.) I have an IEP for school if needed. Family is supportive. :)

      8.) It affected my fine motor skills before I was on medication. Now, it doesn’t affect me much.

      9.) (haven’t experienced that)

      10.) Stay away from sick people. My immune system has been ok for the most part, but when you do get sick, it’s 10 X worse than normal.

      Additional info:

      A good mental attitude is key. Surround yourselves with loved ones, and don’t let yourself feel down! Get involved with the Lupus Foundation. Good luck!

  5. momzpeachy says:

    need some help understanding MS? How often are the flare ups and how does it get diagnosed?
    I had an MRI done early February due to neck and arm pain. That was of the brain and showed no lesions. Since that MRI ..I had a major flare of pain all over and all kinds of symptoms that go along with MS. My vision got blurry and nlood pressure raised. I was a real mess. I was told by the neurologist that since that MRI was negative there is no chance I have MS. I had those symptoms for a few weeks and now I am better. It’s really weird how it all went away. Except for the vision part…I still have blurry and distorted vision. Flourescent light drives me nuts!

    I am quite concerned as to whether the neurologist could be wrong. I was also told it could possibly be lupus but all the blood work came back negative.

    I’m wondering if some of you might be able to help me and guide me in a direction. I am seeing a rheumatologist tomorrow but not sure that’s the right doctor to see. What other tests need to be done and who orders them?

  6. l37esposito says:

    Lupus? Recreational drugs/ drinking okay?
    I was diagnosed w/ SLE last year… Recently I’ve noticed that my symptoms have been flaring up.
    I’ve seen online that Marijuana use can help with the pain symptoms, but I’m unsure if usage could actually cause these flareups. I’ve noticed that after a night of drinking, etc. my SLE symptoms have seemed worse.
    I am just wondering if anyone has seen any Medical research regarding this? Either way would be apreciated. Thanks!

    • FYIIM1KO says:

      What drugs are recreational?If you have lupus I wouldn’t mess around with drinking or any kind of drugs,aren’t you tired enough?I think trying to take the best care of yourself possible,eating right,getting plenty of rest,taking a little walk when your up to it,will far outweigh the benefits you may get from using marijuana.You yourself said that after a night of drinking etc that your SLE symptoms seemed worse.I don’t know what kind of pain your in but personally Marijuana has done nothing for me except made me stupid , extremely paranoid,ravenously hungry and tired,but every ones different,it may be just the opposite for you.Try to do what is most suitable for your body and your mind,in turn you will have some peace of mind.

  7. Christina says:

    Lupus flare and rash from sun on neck and chest pain?
    I am 15 years old (female), and without a doubt have Lupus. My doctor is slow in diagnosing, which is understandable, but he keeps telling me things are wrong with me other than Lupus, that really aren’t, he keeps giving medicine to treat my “illnesses,” and they don’t work because he’s obviously wrong. I have been on all kinds of medications for various things, except for Lupus! He is holding off on lab. tests (which is pissing me off!) and is starting to have attitude with me…I think he thinks its all in my head even though I have all symptoms, genetic history of Lupus, and even his resident is trying to speed things up because she knows I should be tested and diagnosed (I am sick and do not want to live like this any longer). I told him I am missing school because the teachers are sending me home for being too sickly to be in school, and I’m in college level courses, and the school is demanding I get a tutor. I am not going to go over all my symptoms, I do want to know 2 things…
    How can I get my doctor to speed things up and to make him understand I am seriously sick and need immediate attention?

    And more importantly…I was just outside in the sun (it’s about 75º in New York) for only 8 or more minutes trying to get my puppy’s to come inside…When I came in, as usual during a flare, I got a rash over my chest and part of my neck. A little while later I got severe chest pain, which makes it hard to take deep breaths, and strikes pain when moving (bending)…I get this chest pain randomly, but is there a connection with this pain and the sun and/or the sun rash? If so, what and what does it mean!?

    • poetess1966 says:

      First let me tell you I’m sorry you’re having so much trouble. It took 4 years for me to get the correct diagnosis because of the exact thing you are going through, doc’s don’t listen. I have had Lupus for 7 years. My advice is to first find another doctor, at a teaching or university hospital if possible. Second, yes it sounds like lupus. The chest pain is probably from something called costochondritis, which is a swelling or inflammation of the cartilage that connects the breastbone ( sternum) to the ribs. It is very common in lupus. Sometimes it can even seem like a heart attack it hurts so bad. The best treatment is to haet a wet wash cloth in the mircowave for 30 sec and then lay it on the breast bone. Repeat as needed. That and Tylenol often help it. For more info on Lupus contact the Lupus Society there in New York. Good Luck

  8. neha 1 says:

    Would anyone like to share their experiences about Lupus as it can affect any of us?
    Lupus or SLE is an autoimmune disease which affect millions of people around the globe. People have got different approaches when the symptoms flare up. It brings fatigue, pain, rashes or discomfort. Would be good to hear from sufferers

    • Jim D says:

      Not only can Lupus cause the more common symptoms mentioned, but it also causes the body to turn on itself. When my wife was diagnosed with Lupus at 23 yrs old, it attacked her kidneys and turned 70% of them to scar tissue. Prednisone was used to treat it and that caused AVN, osteoperosis, osteoarthritis and a whole bunch of other stuff.

      Now, at the age of 34, my wife has recently spent 2 weeks in ICU after the Lupus attacked her brain and sent her entire body chemistry out of whack. This condition is referred to as Lupus Cerebritis, or CNS Vasculitis. In her case, due to all of the complications connected to it, is was nearly fatal for her.

      As doctors know little about it, when compared to other more common conditions, it makes Lupus more difficult to diagnose and treat. There is still much research and experimentation ongoing relating to Lupus.

      Just my 2 cents for you…

  9. Dana says:

    Need to know what to discuss with new doctor, no insurance.?
    Over the past 4 years I’ve been having “flare ups”. I lost my insurance shortly after they started, so I couldn’t make much headway with the doctors. They told me it was probably autoimmune, based on the symptoms and a slightly elevated SED rate. I’m seeing a new doctor, but can’t afford to be tested for everything, so I’m trying to narrow it down.

    Tremors, spasms, shakes in my hand, legs, and sometimes it feels like my whole body is shaking.

    Muscle weakness, hard to walk or hold things.

    Stiffness and/or tightness in my neck, make it feel like my head is to heavy to hold up.

    Fatigue, sometimes “fuzzy head”.

    Shedding hair. Not huge amounts. (maybe connected, maybe not)

    Joint pain in back, fingers, neck. Extremely swollen knuckles in one hand.

    Losing muscle tone in left calf.

    Occasional shortness of breath, or palpitations)

    All symptoms come and go, but are getting worse and lasting longer.

    Any ideas or suggestions are appreciated. TIA.

    (A few things the docs have mentioned, but I couldn’t get tested for were Thyroid problems, Multiple Sclerosis, Lupus)
    I also tend to get sick more than normal. Just little things like colds and sinus infections. I have one about once a month whether I’m having a ‘flare up” or not.

    • Baby_girl says:

      I have what they call CISO MS so this means that I have had one clinically isolated incident of Multiple Sclerosis. Yes indeed I would take a list of all your symptoms and see what he can come up with. Their are many programs to help pay for testing at the hospitals that do the tests. I have no insurance either and I am insurance suicide…they wouldn’t touch me if they could!! All I can tell you is to take all your symptoms and lists of current meds and past meds (and say why you no longer take those meds). See what he can come up with too help you. Good luck sweety!

  10. TeriR says:

    Glad this helped you, but please don’t make the mistake of thinking it’s the answer for everyone with a chronic illness. Many of them are genetic and have nothing to do with food allergies.

  11. BabyThespy says:

    How do I explain to my family and friends that I need to use a wheelchair?
    I am 23 years old and have been diagnosed with fibromyalgia for 2 years but have been living with it for 12 years. The doctors are also suspicious of the possibility that I may have lupus, MS, or a number of similar conditions. My flare ups have been getting progressively more severe lately and have been having increases in the duration as well. Normally, with a flare up, I can get by with just using a cane or my forearm crutches. Unfortunately, my most recent flares have been so severe that it is next to impossible to get around even with the crutches. Because of this fact, I have decided to purchase a wheelchair to improve my quality of life. I am extremely excited to get it b/c it will help me in so many ways. The problem really lies with my mother. I have been living with her for the last year and a half since I had no where to go when I left my abusive ex-husband. She sees me in pain, but she doesn’t really understand it. When I am unable to wash the dishes or mop the floor or what-not b/c of the pain/exhaustion/weakness/dizziness/trembling/twitching, she will proceed to yell at me and call me “worthless” and “useless” and “good for nothing” and “lazy” and it really hurts. I am concerned that with my decision to get the chair, she will be extremely negative about it as well. As for my friends, they know that I go through these flares that can last from a day or 2 up to several months. However, they can’t really grasp how intense the symptoms are b/c I typically hide them from them as best I can.

    How can I explain to my mother that I need the chair without her being negative about it?

    How can I explain to my friends that I need the chair and get them to be supportive and to not be uncomfortable about it?

  12. BabyThespy says:

    How do I explain to my family and friends that I need to use a wheelchair?
    I am 23 years old and have been diagnosed with fibromyalgia for 2 years but have been living with it for 12 years. The doctors are also suspicious of the possibility that I may have lupus, MS, or a number of similar conditions. My flare ups have been getting progressively more severe lately and have been having increases in the duration as well. Normally, with a flare up, I can get by with just using a cane or my forearm crutches. Unfortunately, my most recent flares have been so severe that it is next to impossible to get around even with the crutches. Because of this fact, I have decided to purchase a wheelchair to improve my quality of life. I am extremely excited to get it b/c it will help me in so many ways. The problem really lies with my mother. I have been living with her for the last year and a half since I had no where to go when I left my abusive ex-husband. She sees me in pain, but she doesn’t really understand it. When I am unable to wash the dishes or mop the floor or what-not b/c of the pain/exhaustion/weakness/dizziness/tremb… she will proceed to yell at me and call me “worthless” and “useless” and “good for nothing” and “lazy” and it really hurts. I am concerned that with my decision to get the chair, she will be extremely negative about it as well. As for my friends, they know that I go through these flares that can last from a day or 2 up to several months. However, they can’t really grasp how intense the symptoms are b/c I typically hide them from them as best I can.

    How can I explain to my mother that I need the chair without her being negative about it?

    How can I explain to my friends that I need the chair and get them to be supportive and to not be uncomfortable about it?

    • Chris says:

      If your mother is that negative even without the wheelchair, it’s unlikely that you’ll be able to get her to have a positive response to that either, or to anything else for that matter. There is some chance that if you get her to go along with you to a doctor, preferably whatever specialist you work with to treat the symptoms of your condition, the doctor can explain the severity of the flare ups in a way that she will understand and believe. Sometimes people are predisposed to assume someone is exaggerating, but are willing to trust a professional who delivers essentially the same information.

      As for your friends, some of them will probably be uncomfortable about it at first, and others might not. But hopefully all will at least be supportive, so if they act strange for a while, forgive them. They’ll probably be awkwardly deciding whether to offer to help you with certain things or not. Offering implies that they believe you need help, which they’ll think could offend you if you really don’t, but not offering when you really do need help would be rude, so it’s going to be a little awkward at first until they learn what to help with and what not to. Once they know that, things should pretty much get back to normal.

      Best of luck to you, and I hope the wheelchair is a big help in improving your quality of life during flare ups.

  13. BabyThespy says:

    How do I explain to my family and friends that I need to use a wheelchair?
    I am 23 years old and have been diagnosed with fibromyalgia for 2 years but have been living with it for 12 years. The doctors are also suspicious of the possibility that I may have lupus, MS, or a number of similar conditions. My flare ups have been getting progressively more severe lately and have been having increases in the duration as well. Normally, with a flare up, I can get by with just using a cane or my forearm crutches. Unfortunately, my most recent flares have been so severe that it is next to impossible to get around even with the crutches. Because of this fact, I have decided to purchase a wheelchair to improve my quality of life. I am extremely excited to get it b/c it will help me in so many ways. The problem really lies with my mother. I have been living with her for the last year and a half since I had no where to go when I left my abusive ex-husband. She sees me in pain, but she doesn’t really understand it. When I am unable to wash the dishes or mop the floor or what-not b/c of the pain/exhaustion/weakness/dizziness/tremb… she will proceed to yell at me and call me “worthless” and “useless” and “good for nothing” and “lazy” and it really hurts. I am concerned that with my decision to get the chair, she will be extremely negative about it as well. As for my friends, they know that I go through these flares that can last from a day or 2 up to several months. However, they can’t really grasp how intense the symptoms are b/c I typically hide them from them as best I can.

    How can I explain to my mother that I need the chair without her being negative about it?

    How can I explain to my friends that I need the chair and get them to be supportive and to not be uncomfortable about it?

    • JMITW says:

      1st of all, if your doc suspects lupus, ms or something else they need to be ruled or…or taken into consideration before you are diagnosed with FMS.

      FMS is not a label for general pain or the pain from MS or lupus..

      it is a specific neuro disease

      the fact that they still suspect these other conditions indicates you were not properly diagnosed..

      i can’t even use crutches because they hurt my arms too much…

      also, look up LYME LITERATE MD

      whatever the reason for the need..just get it–you don’t owe them an explanation…..

      my parents weren’t supportive of me–i just did what i needed to do for myself

      most docs in the US will not take the time to talk about your problem with your mother….they don’t get paid to do that

  14. BabyThespy says:

    How do I explain to my family and friends that I need to use a wheelchair?
    I am 23 years old and have been diagnosed with fibromyalgia for 2 years but have been living with it for 12 years. The doctors are also suspicious of the possibility that I may have lupus, MS, or a number of similar conditions. My flare ups have been getting progressively more severe lately and have been having increases in the duration as well. Normally, with a flare up, I can get by with just using a cane or my forearm crutches. Unfortunately, my most recent flares have been so severe that it is next to impossible to get around even with the crutches. Because of this fact, I have decided to purchase a wheelchair to improve my quality of life. I am extremely excited to get it b/c it will help me in so many ways. The problem really lies with my mother. I have been living with her for the last year and a half since I had no where to go when I left my abusive ex-husband. She sees me in pain, but she doesn’t really understand it. When I am unable to wash the dishes or mop the floor or what-not b/c of the pain/exhaustion/weakness/dizziness/tremb… she will proceed to yell at me and call me “worthless” and “useless” and “good for nothing” and “lazy” and it really hurts. I am concerned that with my decision to get the chair, she will be extremely negative about it as well. As for my friends, they know that I go through these flares that can last from a day or 2 up to several months. However, they can’t really grasp how intense the symptoms are b/c I typically hide them from them as best I can.

    How can I explain to my mother that I need the chair without her being negative about it?

    How can I explain to my friends that I need the chair and get them to be supportive and to not be uncomfortable about it?

  15. BabyThespy says:

    How do I explain to my family and friends that I need to use a wheelchair?
    I am 23 years old and have been diagnosed with fibromyalgia for 2 years but have been living with it for 12 years. The doctors are also suspicious of the possibility that I may have lupus, MS, or a number of similar conditions. My flare ups have been getting progressively more severe lately and have been having increases in the duration as well. Normally, with a flare up, I can get by with just using a cane or my forearm crutches. Unfortunately, my most recent flares have been so severe that it is next to impossible to get around even with the crutches. Because of this fact, I have decided to purchase a wheelchair to improve my quality of life. I am extremely excited to get it b/c it will help me in so many ways. The problem really lies with my mother. I have been living with her for the last year and a half since I had no where to go when I left my abusive ex-husband. She sees me in pain, but she doesn’t really understand it. When I am unable to wash the dishes or mop the floor or what-not b/c of the pain/exhaustion/weakness/dizziness/tremb… she will proceed to yell at me and call me “worthless” and “useless” and “good for nothing” and “lazy” and it really hurts. I am concerned that with my decision to get the chair, she will be extremely negative about it as well. As for my friends, they know that I go through these flares that can last from a day or 2 up to several months. However, they can’t really grasp how intense the symptoms are b/c I typically hide them from them as best I can.

    How can I explain to my mother that I need the chair without her being negative about it?

    How can I explain to my friends that I need the chair and get them to be supportive and to not be uncomfortable about it?

  16. natalia g says:

    Do you have Lupus? Is red flare ups around your eyes (itchy) a symptom?
    Thanks

    PS Eye doctors are baffled as every ointment they have tried did not work

    A DR is in the process of testing my ANA

    Thanks!

    • Jazzy says:

      yes i have lupus I have had puffy around the eyes i am black so its not red anytime anything itches or swells use benadryl it might knock you out and make you sleep 2 hours but it well control the swelling. good luck with your lupus i know its rough

  17. Lisa says:

    Wondering about my daughters health…?
    Over the years she has had weird symptoms. She has alot of moments where she dont feel well but then sometimes has these big flare ups. This is the second time in 3 years she had a big flare up. The symptoms she has starts out as stomach issues like gastritis where she is getting sick and going the bathroom. Then she ends up getting leg and arm pain and cramps, along with a bad headache, lower pelvic/stomach pain where she feels like she has a UTI, and feels short of breath at times. She has had multiple test and can not figure out what is going on. Recently she even went to the ER and they have dont CT Scans of the chest and stomach, chest xray, bloodwork, hida scan, and urine test. Everything comes back fine. She thought she might of had a stomach infection, but she took antibiotics and has those weird symptoms but the stomach sickness and going the bathroom is gone. She still feel nausous at times. She also has been tested for some auto immune dieases. Tested for Lupus, RA, Thyroid, etc. The headache she gets is pressure in the ears she said where it also feels like pressure in the throat chest area. What does it sound like she might have?? Could it be something like Fibromyalgia, or Anxiety and Stress or Depression. I am just concerned and would like to know what you feel it could be?? Thank You.

    • sunnny says:

      Simple allergies can cause fatigue/pains. Any joint pains , fever or rash. any IgG and subclasses done? if IgE or eosinophils elevated, allergy or parasite causes.
      Maybe needs dicyclomine Rx for stomach pains.
      Has CRP, C reactive protein levels been done, what about ESR levels or cortisol levels? Get her records. check box for “continuity of care”, then you don’t get charged. You need to do this anyway. Can’t rely on MD’s anymore. Unless you get a good one that’s interested in pursuing her sx. What about ANA levels? She could have sinus symptoms. Maybe even asthma? Methacholine challenge test/spirometry will determine this.

  18. sondra w says:

    hello i have sle(lupus)for 5 yrs now, do my sypmtoms mean my lupus is active?
    I am the typical story, I suffered for one year with doctors disbelief that something was wrong even after the rash broke out covering almost my entire body, it wasnt until I ended up in the ER for two weeks when I finally got the definete answers to my elements. I have SLE,discoud lupus, now lupus nepritis and so on. Now my first indication that something was wrong with me was joint pain(i thought carpool tunnel), but the pain eventually spread everywhere and then the fatigue, and then swollen joints and raynuads syndrome,so of course then fibromayglia. When I left the hospital I wasn’t as fatigued but the pain never went away nor the joint swelling, just a differnet joint everyday,so for five yrs I’v been on oxycotin and percocet to live a more pain managed life, but sometimes my symptoms get even worse( how could they?) they do basically my joint pain becomes every joint, the pain medicnes stop working, I cant walk without a walker or I walk very slow and painfully, so I tell my doctor as always andwe run more labs, platlets at 60K,but not low enough for her to be concerned shes waitin for mor test results, she says that although I have these sypmtoms including a lovely rash, that my lupus may not be active. Please anyone is this BS or what? Can you have what is obviously a flare and it not be your lupus causing it? right now i am on imuran and plaqnil and i was on predinose for 4 years straight and finally said no more because it wasnt controlling these elments, she wants to but me back on it to bring my platlets up, but i know once i go off they go down again, I have been on every medicatio for sle and none have changed anything, I have had rituxan injects no chnage so last year we tried it again and i had an allergic reaction. She doesnt want to try cytoxan because she says it doesnt help with swollen joints fatigue or pain, does any one know or have any idea? please give me your suggestions, thank you and sorry for the spelling my hands hurt and keep missing the letters.
    i’m sorry i forgot to mention , i’ve tried cellcept for two years no help sp they took me off, methotrayate for did not help either, we did the rituxamab once it did nothing so we tried it again a year later and i had a severe allergic reaction so no more of that. I am on 200mg plaqnil 2 times a day and imuran3x a day, i also do accupuncture thru kaiser but only for two months now and start biofeed back next week. I have been on permanant disability Social security since i got lupus in 2003(it took 18 months),I’m 34 this happened when i was 27-28. All your answers have been great, if my doctor would try the cytoxan i would be more than willing she doesnt think it will help with the joint pain and swelling or the fatique, I just had an Mri for the headaches today so maybe that will show them something.

  19. Lisa says:

    what could be wrong with my daughter?
    Your Question
    Wondering about my daughters health…?
    Over the years she has had weird symptoms. She has alot of moments where she dont feel well but then sometimes has these big flare ups. This is the second time in 3 years she had a big flare up. The symptoms she has starts out as stomach issues like gastritis where she is getting sick and going the bathroom. Then she ends up getting leg and arm pain and cramps, along with a bad headache, lower pelvic/stomach pain where she feels like she has a UTI, and feels short of breath at times. She has had multiple test and can not figure out what is going on. Recently she even went to the ER and they have dont CT Scans of the chest and stomach, chest xray, bloodwork, hida scan, and urine test. Everything comes back fine. She thought she might of had a stomach infection, but she took antibiotics and has those weird symptoms but the stomach sickness and going the bathroom is gone. She still feel nausous at times. She also has been tested for some auto immune dieases. Tested for Lupus, RA, Thyroid, etc. The headache she gets is pressure in the ears she said where it also feels like pressure in the throat chest area. What does it sound like she might have?? Could it be something like Fibromyalgia, or Anxiety and Stress or Depression. I am just concerned and would like to know what you feel it could be?? Thank You.

    • Shanna says:

      My mom went through kind of the the same thing and they did all of the same tests done, and they still doesnt know whats going on. But since her life has been less stressfull the pain seems to going away and not coming back a frequent. Did they give her a MRI?

  20. sondra w says:

    I have Sle and suffer from chronic pain any suggestions on how to live a normal life?
    How to live a normal life when your pain is different everyday.
    I am the typical story, I suffered for one year with doctors disbelief that something was wrong with me even after the rash broke out covering almost my entire body, it wasnt until I ended up in the ER for two weeks when I finally got the definete answers to my elements. I have SLE,discoud lupus, now lupus nepritis and so on. Now my first indication that something was wrong with me was joint pain(i thought carpool tunnel), but the pain eventually spread everywhere and then the fatigue, and then swollen joints and raynuads syndrome,so of course then fibromayglia. When I left the hospital I wasn’t as fatigued but the pain never went away nor the joint swelling, just a differnet joint everyday,so for five yrs I’v been on oxycotin and percocet to live a more pain managed life, but sometimes my symptoms get even worse( how could they?) they do basically my joint pain becomes every joint, the pain medicnes stop working, I cant walk without a walker or I walk very slow and painfully, so I tell my doctor as always andwe run more labs, platlets at 60K,but not low enough for her to be concerned shes waitin for mor test results, she says that although I have these sypmtoms including a lovely rash, that my lupus may not be active. Please anyone is this BS or what? Can you have what is obviously a flare and it not be your lupus causing it? right now i am on imuran and plaqnil and i was on predinose for 4 years straight and finally said no more because it wasnt controlling these elments, she wants to but me back on it to bring my platlets up, but i know once i go off they go down again, I have been on every medicatio for sle and none have changed anything, I have had rituxan injects no chnage so last year we tried it again and i had an allergic reaction. She doesnt want to try cytoxan because she says it doesnt help with swollen joints fatigue or pain, does any one know or have any idea? please give me your suggestions, thank you and sorry for the spelling my hands hurt and keep missing the letters.

    • gillianprowe says:

      I have Rheumatoid Arthritis and some elements of Lupus, test positive for Lupus. However after many years of BS as you correctly say I went to another Country to get out of the BS. The Rheumatologist I saw their suggested I try Evening Primrose Oil, but I will be on it for LIFE and if I stop taking it, will have to start again. It takes about six weeks to kick in, but if I stop for one day, then I am back where I started. I did not I stuck with it and am still here to tell the tale. Evening Primrose Oil is a natural anti-inflammatory and it helps regulate the hormones, which seems to have been the problem. Now 50 I am Menopausal and my health is a lot better than it was in my 30′s, my only wish I had know about evening primrose oil back then. Best of Luck

  21. AndyR80 says:

    Please help my hypochondria?
    I am a 14 year old male who has been experiencing panic attacks due to stress recently. I had a spell of panic attacks when I was younger but it has flared up again. I constantly look up symptoms on the internet going from Lupus to Diabetes. Diabetes is the thing that is concerning me most. I have no history of diabetes in the family but I saw that type 1 strikes teens and you cant prevent it. This scared me and now every time I get thirsty diabetes comes to mind. I went to the doctors and she said I didnt have it. Diabetes is found in eye tests and I was scheduled to have one which was a few days ago. My eyes are getting stronger and no sign of diabetes but since yesterday I have been having nausea in the morning and I am scared. I have peed four times so far today. Is that normal?

    • Cassandra says:

      Well if the doctor said you don’t have it, YOU DON’T HAVE IT! As for nausea and frequent urination, that’s just stress darling. You are 14 you don’t need to be worrying about all this yet. If something does become wrong with you, have faith that your family and the doctors will help you through it. Diabetes is easy to test for, so please don’t worry if the doctor already tested you. If it makes you feel better, talk to a therapist about this. They’ll be able to show you some exercises you can do to reduce your stress.

  22. shayeshayeshaye says:

    Is there anyone taking CellCept? If so, how long did you take it and what symptoms did you have?
    SERIOUS REPLIES ONLY. THANKS!

    Hi, I was diagnosed with lupus almost 2 years ago after over 11 years of dealing with various symptoms and flares and kidney disease. Right now I am only taking 1/2 a 250 mg chloroquine tablet once a day but I still have pain and fatigue and my sed rate is going up slowly, which it does during seasonal changes. My doctor wants me to start chemo or steroids, which scares the crap out of me. I saw online that there is something called CellCept that may work to reduce lupus symptoms that may have more tolerable symptoms than chemo, but I don’t want to jump into anything. Can someone who has lupus who has or is using CellCept tell me if it works, how long it works, if you experienced any really bad side effects and if so did you recover? And did the lupus come back? Thank you for your help.

    • mgnysgtcappo says:

      My wife has been taking cellcept for her Lupus for the last two and a half years with little side effects. She was a little sick to her stomach at first but now it really doesn’t affect her. It has done wonders for her Lupus flare ups though. She hasn’t had kidney involvement since being on the drug and she is only taking 5 mg of prednisone right now. She also has antiocardiolipid syndrome and takes coumadin to thin her blood. If you have any more questions or would like some more detailed info please feel free to email me

  23. jenhicks87 says:

    could it be lupus?
    I have been going to the doctor for a while with various problems such as insomnia, fatigue, migranes, rashes, hair loss, joint pain, and some other things. The doctor blows my symptoms off or gives me anti inflamitory meds. I recently went to a sports medicine doctor because an old shoulder injury was flaring up… when I mentioned I was having other problems with my joints he had me get a blood test and said it is a posibility it could be lupus, rheumatoid arthritis, or fibromyalgia. I haven’t gotten the results back yet but I looked up these problems on the internet. I am also on meds for anxiety. (another symptom) If I test positive for rheumatoid arthritis would it be possible to have lupus. I seem to have alot of the symptoms. and if i test positive how should I go about talking to my doctor so he will actually pay attention and possibly come to a conclusion. instead of blowing me off again.
    the blood test the sports med doc ordered was for rheumatoid arthritis. I’m also wondering if I test negative for rheumatoid arthritis could i still have lupus? should I ask for other tests to be done?

  24. Jewelsn'all says:

    Can anyone give me a diagnosis? Help!?
    I’ve been to numerous doctors and had numerous tests including thyroid, lupus, dermatology tests, etc. No one has an answer for me. Here are my symptoms: I get episodes where my face (around my mouth, cheeks, eyebrows) will get a tingling feeling, in a few minutes it flares up red and I get like blotches. I have lost almost 50% of my eyebrows, and they do not grow back. The only thing that showed up abnormal was one of my kidney blood test was a little high. Any help, hope, thoughts or suggestions would be greatly appreciated. The doctors have no clue.

    • disgruntleddog says:

      yeah that rather baffles me as well. could be a reaction to something in your environment. are you possibly exposed to something (anything at all!) prior to each episode?

      you might try keeping a journal. write down what you do, what you eat & what items or substances you are around, and noting when each symptom occurs, for how long, and how severe. you may or may not discern a pattern this way

      good luck on this. and if this doesn’t work, or isn’t your kind of thing, don’t give up on doctors yet

  25. giinaa says:

    So about two years ago i was diagnosed with lupus..?
    And i took medication for it, and it got better. I know that it never truly goes away.. that I have the disease for life, but it hasn’t flared up in a while. However, the first symptom I got of lupus was the butterfly rash across my cheeks and nose, and that has never gone away. Is there any way I can get rid of it? I look really awkward with the rash across my face =/
    Thanks

  26. BECS6985 says:

    Tendonitis in fingers?
    I have had pain and inflammation in my ring fingers over the past few months… It is different fingers at different times. I had a blood test and got negative results for lupus, arthritis and any other virus that causes inflamming of the joints… the doctor didn’t mention anything about tendonitis but I have done some research myself & it seems to fit with the symptoms… the interesting thing about my inflammation is it seems to really flare up around the same time as my period… I haven’t read anything about a correlation between the two so I was wondering if anyone had any ideas why this could be?

    • SeleneBebe:] says:

      Finger Tendonitis

      Tendonitis is inflammation, irritation, and swelling of a tendon, which is the fibrous structure that joins muscle to bone. Each finger have two tendons. The tendons run along the palm side of the fingers and are very close to the surface of the skin, particularly where the skin folds as you bend your fingers. The tendons in the fingers are called flexor tendons. The longer tendon (flexor digitorum profundus attaches to the last bone of the finger and bends the tip; the shorter tendon (flexor digitorum sublimis) bends the middle joint of the finger.

      Symptoms of Finger Tendonitis

      An inability to bend one or more joints of the finger
      Pain when you bend your finger
      Mild swelling over the joint closest to your fingertip
      Treatment of Finger Tendonitis

      Initial treatment of the condition can include:

      Icing the area
      Avoiding activities that caused the inflammation
      Splinting the affected finger or thumb in an extended position for 10 to 14 days
      Your physician may prescribe an oral anti-inflammatory medication to reduce the pain and swelling. In addition, to reduce the inflammation of the tendon sheath, your physician may also give you an injection of corticosteroid (cortisone-like medication) directly to the affected area. If symptoms persist, another injection could be given in three or four weeks, except in cases of rheumatoid diseases. Patients with rheumatoid disease are at an increased risk for tendon rupture and surgery should be considered after one injection fails to relieve the symptoms.

  27. Chris says:

    “Lupus-like” symptoms with a negative ANA?
    Over these past five weeks, I have been experiencing migratory joint and muscle pain in my knees, arms, back, hips, stomach muscles, shoulder, neck, wrists and fingers. No inflammation. The joints seem to crack a lot. No fever, fatigue, rash, etc. I’ve tested negative for everything, including an ANA. The things is, there are only so many things that my symptoms qualify for but, just before these symptoms, I was quite stressed over my job. My doctor thinks it is a viral infection, that typically clears itself up after six to eight weeks. I’ve discounted so many other disorders (from symptoms and tests) but am still wary of lupus. I know that ANA results can fluctuate and that it’s possible for an ANA-positive person to test negative, from time to time, but I am wondering what the odds are of testing negative during (what would be considered) a “flare”. My doctor says I should move on from my fear of lupus, as a result of my tests, age, race, and gender. I am a twenty-one year old caucasian male (from Canada) with no family history and, from what statistics I’ve gathered, there are only about 1,000 or so adult white males, with SLE, in this country and that an estimated eighty percent of them experienced onset over the age of forty. Also, only half of SLE patients claim muscle/joint pain as an initial symptom. Combine this with my test results and you’d think I would be breathing a sigh of relief. No such luck. Am I worrying over nothing?

    • Angela says:

      Your Dr. is partially right most of the time Lupus affects women, but men do become afflicted with Lupus. Where I’d have to disagree with your Dr. is that it usually takes many ANA test over several years and lots of grief and many negative test before Lupus is diagnosed. It took Dr.s 8yrs before they finally diagnosed my mom with Lupus, and after years of worrying what was wrong with her and why the Dr.’s couldn’t figure it out…It was almost a relief for her to know she was not crazy or a hypochondriac!
      FYI
      I suffer from Rheumatoid arthritis since I was 12yrs old and I too have joint pain…. Acupuncture has been the key to me living pain free.

  28. Melissa F says:

    Please Help Me! I’ve Had An Itchy Rash That Has Lasted Four Months. Lupus Rash?
    I’ve had a rash that started on my upper back that appeared after tanning one night. I’ve tanned before and never had this happen so I didn’t think it could be the tanning bed. Well I continued to tan and the rash begin to spread to my chest and then down my arms and on top of my hands. Then it spread over my cheekbones and over the bridge of my nose. It only appears in sun exposed areas. It’s stings, and itches and feels like it has a fever. It’s dry, scaly and shiny looking. I’ve spoken to several doctors and they all blame the tanning bed even though it’s been several weeks since I’ve been in one. When I get into the sun or around heat it seems to flare up more. From the pictures I’ve seen on the internet it resembles the lupus rash, especially the one on my face. I’ve had almost every symptom of lupus with other problems I’ve had but it seems like lupus rashes are not itchy nor do they have fever like mine. I’m a white female and I’m 28 years old. I’m also starting to see white spots all over my skin where the rash is present, like sun spots. I’ve tried-benadryl, hydrocortisone, bactriban, neosporin, nystatin, and various other anti-histammines etc. nothing relieves the itch or burn. This is driving me mad and becoming very bothersome. If anyone could please help me I would appreciate dearly. Thanks

    • Dog Rescuer says:

      YOU NEED A DOCTOR NOT AN ONLINE BLOG..

      GET OFF THE COMPUTER AND GO TO THE DOCTOR.!!!!

      TOO MANY PEOPLE MISDIAGNOSE THEMSELVES BY USING ONLINE SITES ONLY TO MAKE A BAD MEDICAL PROBLEM 1000% WORSE..

  29. Act4Love says:

    Should I get tested for Lupus?
    Hi, I’m 16 years old. I’ve been suffering from bumps and redness on my face (cheeks, mostly), and it’s been something which I cannot get rid of. I thought it was just acne. My mom, however, is currently studying to be a nurse, and in her textbook she stumbled upon a picture of the butterfly rash often associated with systemic lupus erythematosus (known as Lupus/SLE). I didn’t think much of it, until my mom and I researched the symptoms.
    These are the symptoms I’m currently experiencing:
    *Rash?
    *Extreme fatigue
    *Depression
    *Joint pain (mostly in my knees and ankles)
    *Migraine-like headaches almost every day for the past month
    *Difficulty concentrating
    *Psychosis
    *Inflamation of organs-last year I was diagnosed with gastreoenteritis.
    *Also, about a week and a half ago my back (around the kidney area) started hurting
    *I thought it was my period, but I have dried up blood that comes out everytime I wipe after urinating.
    *I have virtually no appetite.
    *My vision has been blurred the past few days.
    *The “flares” started about 2 weeks after the fatigue.

    What do you think about it?
    Thank you in advance.

    P.S- The symptoms listed started before I found out about the disease…less chance of psychosomatic diagnosis :)

    • FirstStar says:

      Yes, you should probably get tested!

      Lupus is an Autoimmune disease, which is caused by both genetic and environmental factors, so, if you have a family history of auto immune diseases (Such as Crohns Disease, Scleroderma, Rheumatoid Arthritis ect…) You are at an increased risk, also if you are female and between 15 to 45.

      It takes awhile to diagnose Lupus, but your doctor will (most likely) refer you to an Internal Medicine Doctor, or may order the test themselves (Blood test! Urine test!) And depending on what the doctor thinks, the blood test will include an ANA (Antinuclear Antibody) test (Very important test!!! if this comes out positive, it could mean Lupus, or another auto-immune disorder!!!)

      Some other blood tests may also include tests for Hep. C, and Hep D, along with a Creatinine test, Bilrubin and Albumin test (Too much to type- Google it!) and ALT test (To see how epic your liver is doing!)

      So YES. Get tested; because like I said, it takes awhile to diagnose because the symptoms mimic so many other diseases; it could take months.

      Good Luck! :)

      I’m 17 and had Lupus symptoms too; test results come back in January (Next month!) Hope 4 the best!

  30. Anonymous says:

    Does anyone have lupus?
    Hi, I’ve had lupus for almost five years now. It’s been in remission for four years, but the past few days it’s been flaring up again and I’m scared and I’m stressed and I’m nervous. I blame myself. For a month there I convinced myself, partially that I didn’t need meds, that I was cured. I even considered that I was mis-diagnosed and it wasn’t lupus, cause I hadn’t had any symptoms for so long.

    It was nice to feel normal. To not have to take handfuls of pills every day. It was nice to have extra money, my health insurance doesn’t really help with anything anymore.

    I just want it all to go away, I want to be normal. I don’t want to have to worry about this shit.

    I’m scared that I won’t be able to have kids. I’m scared to even think about trying. Cause even if I am able to have kids, my children could be born with lupus or could be born in pain as a symptom of neo-natal lupus. I’m scared to pass this on.

    Anyways, I’ve never met anyone else with lupus or anything similar. I don’t like talking about this stuff with anyone I know because I don’t want to worry them or make them feel bad for me. So I was just wondering if anything knows what I’m going through, and can relate-at all. I’m having a hard time right now.

    Thanks

  31. Lauren says:

    Having lupus and pregnancy?
    A little background info… i have got mild lupus SLE, was diagnosed very young and also have heamachromatosis.The only symptoms i get are lethargic, muscle cramps, and if i dont eat healthy and stay active then i feel just unwell.

    We are thinking about a baby within the next 2 years but i want to know with my condition are there any things i should be aware of, or anything i should keep an eye out for?

    Does anyone out there have lupus and had children..? what were your experiences? Did you have a flare up while pregnant? Did you have a natural birth or c-section?

    Any info would be great!

    Thanks,

    • DARKESTKNIGHT says:

      Hello’ please check with your doctor and ask all the question and explain to your doctor your plans and go from there some people with lupus can do pretty good some can’t I has a friend very beautiful and caring young she have 3 boys and a girl she did’t married her boys daddy she went into the military got married has a little girl a couple of years after that she passed away that was the first time i ever heard about lupus, now i heard about it all the time. check with ur doctor and i wish u the best.

  32. tannfreak says:

    Can lupus be mistaken for..?
    Another disease? All of my symptoms that I have had match up perfectly to the symptoms of lupus. But my blood tests for lupus came back negative. And My regular blood test came back perfectly fine.

    I have been going through the same thing (extreme fatigue, exhausted muscles, not being able to concentrate, sensitivity to sun and also a fever today) for almost 5 weeks. And It closely resembles flare ups because the symptoms come and then leave for up to a week.

    What other disease could be affecting me?

  33. UniversityGirl says:

    Does this sound like lupus?
    I don’t know much about lupus, but I’ve been wondering if my mysterious symptoms could be related to it. (I have a doctor’s appointment in a week, when I will talk to her about it). But for now I just want an idea to prepare myself.

    Here are my symptoms:
    -extreme sensitivity to light (can’t even open my eyes and look straight ahead when it’s sunny out)
    -feet and ankles go through flare-ups where they get so swollen I can’t even move my toes or ankles
    -my joints get sore very easily
    -occasionally I have a flare-up where a random joint will swell for a couple of days then return to normal, for no apparent reason (has happened to ankle, finger, elbow, even my eye).
    -cold water and cold air hurt my joints so bad that it makes me cry in pain
    -I get mouth ulcers a lot
    -I get sick a lot (fevers and sore throats)
    -I have high blood pressure
    -I am anemic (iron levels almost nonexistent)
    -I have bad anxiety
    -I get chest pains
    -I am often short of breath very easily (although I have a slim build and am in shape!)

    I have been tested for Rheumatoid Arthritis but it was negative. My doctor has not put my symptoms to lupus yet but I am going to ask her about it. What do you think?
    Oh and I never have any energy, I am exhausted even after sleeping for ten hours, but this could just be related to my anemia.
    And very dry scaly skin, especially on my legs.

  34. Thomas says:

    What is it likely that I have wrong with me?
    I know it’s absurd to expect expert medical advice on yahoo, and that this is no substitute for a Doctor, but I’d just like some serious answers. OK, getting that out of the way, here is a list of symptoms I’ve had reoccurring off and on for the past ten months:
    >Constant congestion, I always have to spit and do sinus rinses, also my ears pop

    >A permanently swollen lymph node on the right side of my jugular

    >Off and on flu like symptoms. Generally every couple of months I will start to feel like I have a severe fever and can’t stop shaking. I get a very severe sore throat and fatigue, and I usually have to stay in bed for two to three days until I’m good again.

    >Fatigue. Constant fatigue. Some days I’m almost normal, some days I can’t stop yawning, but I haven’t felt completely aware in quite some time.

    >Overall body aches; they’re not too severe, but I get aches and pains more often than I used to

    >Inability to exercise; if I do anything beyond mild exercise I bring about another bout of the aforementioned flu symptoms

    >Mood instability; I’m almost always in a bad mood because of my health. I also have days where I can’t stop crying

    Now for the physical background:

    I’m a 20 year old male. On and off smoker. Caucasian. No diseases. Last diagnosed illness was mononucleosis in August of 2009. I have prematurely thinning hair (not sure if that’s relevant) and I’m 148 pounds.

    I’ve been to three different doctors. One just kept giving me different steroids and antibiotics. The other claimed it was depression and that I needed to psyche myself into feeling better (believe me I tried) the third has been much more sympathetic. Blood work was done on 4 different occasions. I tested negative for HIV, had a normal CBC, tested negative for Mono, and didn’t quite “fit” the criteria of fibromyalgia. The third doctor after seeing my blood work and doing chest X-rays decided to diagnose me as having Chronic Fatigue Syndrome and suggested I take it easy and eat better. I have a follow up with him in a month. I wasn’t too worried about it, but recently I’ve had two flare ups of the flu like symptoms. I’m averaging a flare up every three to four weeks. I find it hard to believe it could all be attributed to something as vague and unresearched as “chronic fatigue syndrome” and I have a girlfriend who suggested perhaps it could be a thyroid problem or maybe even lupus. I don’t really know, but I know I don’t want to keep bother my doctor and I can wait until the scheduled appointment, but my quality of life is being SEVERELY affected. Does anybody know what this may be?
    EDIT: I greatly appreciate the two answers so far. Getting stuck with a wrong but permanent diagnosis is exactly what I’m scared of. Is lupus able to be tested for? I know it’s a disease that’s fond of imitating others, so I wasn’t sure if it can be traced in the blood. I didn’t know MS was a possibility? That sort of leads me to include some more information which could be important. Occasionally, I’d say one night out of a week, I get very dazed and weak feeling, and I get cold sweats. I start craving food and drinks and sugar generally boosts me out of this state and I’m left feeling tired but unable to sleep. My older brother is diabetic and says that what I describe sounds like low blood sugar, so I guess I can include reoccurring low blood sugar as one of my symptoms. Thanks for all the help already, I know this will come down to a doctor, but I’m over my naive phase of thinking doctors know everything. I feel like I should be prepared with some knowledge they may overlook.

    • lestermount says:

      When I first started reading I thought you might have mono but since you have had it and now test negative you don’t have mono, but you might have the symptoms without having the actual disease.
      You do not have fibromyalgia, or chronic fatigue syndrome.
      Lupus is a possibility.
      You are going to have to wait for a positive test from the doctor there is no way of knowing exactly what is wrong.

  35. Plain Lady says:

    Is there a doctor in the house? Our family could use some doctor detectives!?
    We have been dealing with something for months now with no answers. Here are the symptoms starting with the head and moving down: headache (tear duct corner of eyes/eyebrows right eye especially, temple area or sometimes “behind” the eyes, then up over the head right side especially and back to the base of the skull), neck ache and fullness, shoulder, back, rotater cuff pain, some chest pain, GI issues with frequent stool changes from constipation to diahrea, nausea/stomach pain but no vomiting, no fever but elevated blood pressure. I have developed a ringing in my left ear as a result of all this. I had a dizzy spell that woke me up at 2am. I had an MRI done with the result of a spot on my cerebellum. Neurology gave the diagnosis of a stroke. I would have accepted that until my 17 yo son came to me with similar symptoms as myself. Another doctor said it very well could be a virus.

    I had an ANA blood test done with a 5.9 result. I requested my 17 yo son have one done with a 3.0 result the first time then he had another at 3.2. My 15 yo son started to complain of similar symptoms so I requested an ANA blood test for him…result of1.5. I’m aware that you can have a “positive” blood test and nothing be wrong with you. I’ve had blood tests going down the lupus autoimmune line. All results so far are normal.

    We had a hired girl here on the farm and found out that she has HPV. (We have since asked her to leave.) I realize this is primarily sexually transmitted but I tell you about her because I’ve wondered if there is something else she may have had that could be contagious.

    I just had my 3rd MRI this past Monday and was at Rheumetology this past Wednesday. Spot on cerebellum seems to be getting better…followup appt is next week to discuss. Rheumetology doesn’t seem to have any input. Will get a written summary in the mail.

    We just need some ideas of what to test for. I’m not one to wait for the doctors to think of something. If I come up with something, I go to them with a suggestion.

    My head pain started a little back in October (about a month and a half after this chickypoo started working here). It subsided then flared up big time on Dec 10. My 17 yo son started with stomach issues the beginning of December. We have a husband and wife living here on the farm who would have been in closer contact with the hired girl. The wife is complaining of similar symptoms. I’m trying to bribe her to get and ANA blood test.

    If you have any questions, feel free to ask. We are sick and tired of being sick and tired. Very frustrating.

  36. Lissie says:

    Question about Positive ANA results?? 1:80 Titre Speckled Pattern?
    I feel like a Hypochondriac. I went undiagnosed with Thyroid Disease (Hypothyroid) for 3 years Between the ages of 18-21. I have always been very aware of my body; and when things are wrong. At 25; I contracted Epstein Barr Virus (Mono) otherwise- I’ve led a very healthy life. Since turning 30; I’ve struggled with muscle and joint pain, swelling in face; hands and feet; headaches; extreme fatigue, high blood pressure, hyper-gylcemia, IBS; brain fog and memory problems. I’m tested regularily for my TSH levels; and most recently; for the first time- My tests showed a Positive 1:80 Titre- Speckled Pattern. I was going through what I would call a “flare-up” of extreme symptoms at the time of the test. I am scheduled with a Ruematologist end of March. My other blood work I guess did NOT suggest lupus- despite the new development of a Positive anti-body test. I guess I feel as though “something” is going on- yet my blood work- is within normal relms. Does anyone have any suggestions? These symptoms are almost deblilitating- and while it was suggested I might have Fibromyalgia- I can’t believe I feel so terrible inside and out- yet my blood work says I’m normal. I am also at a loss as to why I might suddenly show a Positive ANA test after years of being negative. Many say normal people have positive results for ANA. I would appreciate anyone who might have some insight on autoimmune challenges. Thank you.

  37. dedom19 says:

    Is this enough reason to be checked for Lupus?
    I am in my early 20s. In June 09 I had a blister on my thumb, that became infected after going into the ocean. A red line traveled up my arm so I went to the ER and received an IV antibiotic for a possible Strep infection (Cellulitus). I was also prescribed an antibiotic to take for a week. This resolved the problem. However, immediately after being off the antibiotic I developed jock itch (yeast) which I found is common after discontinued use of an antibiotic. I treated that with cream and rid myself of it completely. About 2 weeks later I developed hives. Now I have had theses hives since August. So for about 3 months now. They are mostly on my belly, less on my chest, even less on my arms. The hives are white in color, and only the size of mosquito bites, but seem to flare up slightly and turn red the day after heavy drinking. Which I’ve done twice since their first appearance, and have observed the flare up both times. Lupus, Thyroid Disease, or is this probably just chronic hives from some other source such as alcohol, or yeast? At what point and to what extent should I address this? I’ve had no other symptoms of Lupus except for the hives which I’ve read is rare. It is just the recent strep/blood infection and hives combo I’ve had that worries me into thinking this may be worth spending the money on a lupus test.

  38. Jess says:

    Does this sound like Lupus to you?
    I am autoimmune (hashi’s) and was recently DX with fibromyalgia and am being referred to a Rheumatologist for further testing. Whatever it is, it’s getting worse. I went to an Endo and he definitely thinks my symptoms are too severe to be caused by thyroid or fibromyalgia.

    I have moderate aches and pains all over constantly. But i have “flare-ups” that last up to 6 weeks, during those times i have pain in my hips, thighs, shoulders, arms, wrists, fingers, neck.. extreme stiffness that never goes away and turns into severe pain by nightfall. I have GI problems constantly, every other day i am constipated and diarrhea always follows. I have been living on OTC heartburn meds! I have been suffering from infertility for over 3 years. During flare-ups the pain is so bad i have to call out of work, it literally feels like my legs are going to pop out of the sockets, i can’t walk straight. My shoulders hurt so bad i can’t lift anything, and most of all i have weakness in hips and shoulders/arms. I shake real bad if i try to lift anything over 10lbs so i ask for help. I call out of work because i can’t walk straight. I am only 25 and sometimes im in so much pain.. RA runs in my family but i don’t get any redness or swelling of my joints. My lower back has hurt all week and ive been taking muscle relaxer and applying heat to the area, but it seems to have gotten worse overnight. I can’t bend over today.
    I could go on and on and on with symptoms.. but I really think in the end i will end up with Lupus. Do you think that is what it sounds like??

  39. beanbag says:

    Mild lupus, but when it acts up…what am I doing wrong?
    I try to eat right, I exercise, take Plaquenil, etc. My lupus is “mild” type, but I always have something “going on.”

    I had been doing fairly well, and then I get the symptoms of rheumatoid arthritis with red swollen joints and rheumatoid nodules. My face feels like it is burning on cheeks and there are lots of tiny red broken capillaries on my face. It is taking more and more Dermablend cover-up makeup to cover up my red marks.

    I am feeling frustrated as it always seems like I deal with one symptom after another and wonder what I am doing wrong. If you are a lupus patient, is there anything you know that triggers your flares?

    I know, I know…it could be worse, but if I listed all the symptoms I have had within the last 3 years, it would be a long list…
    Yes, I take steroids when I have a flare. My docs are great, BUT I didn’t know Lupus was progressive. Now I will have some good questions to ask next visit.

    • mgunnycappo says:

      First off there is no such thing as ‘mild’ Lupus. You either have SLE or you don’t. SLE is a progressive disease meaning that the signs and symptoms get progressively worse over time. Since you seem to be having more symptoms I would say that this is cause for concern that your Lupus is flaring and that you may need steroids to help calm the flare. Are you being seen by a rheumatologist? Have you called them and told them about your increase in symptoms? This is very important as stopping a flare quickly can help prevent further damage to organs such as the kidneys. Do not be so quick to dismiss your lupus as ‘mild’. I’m sure you’ve heard this from a medical professional somewhere down the line and they were completely wrong to tell you this. Good Luck to you

  40. tilly says:

    people who have lupus, when they get skin discoloration in the toes, is the discoloration white?
    i heard is one of the symptoms, are the toes always pale white and cold during a flare up? can someone who experienced the symptom decribe…? : ) thanks

    • Tracy L says:

      I was diagnosed with lupus 6 years ago and I usually have a paleness in my skin and my nail beds are usually white. However with iron supplements the colour usually returns. This can also be caused from the fact that I’m anaemic as well

  41. gracesgirl says:

    Dr’s and Nurses Please give advice on what specialist my daughter should see?
    Back in February, my 16 y/o daughter became ill with what we thought was the flu, then began thinking mono. All tests came back negative; both quick tests and regular blood tests. The symptoms persisted for three full weeks, then subsided, would come back for a week, subside and so on.
    We thought we were in the clear but she started up again a few days ago and had to go back to the doctor today. He is puzzled, I am puzzled and I need some idea of what type of specialist she should see. At first he said a Rheumatologist…I told him that I will go wherever he feels we need to go but please consider that if you go to a specialist like that, they will look only for that one thing (he was saying possible JRA)…but now that I think about it, I wonder if he was THINKING more along the lines of lupus and just didn’t want to say that in front of her. Her lab work was coming back at first showing something viral, then he did a follow up with ANA & Sed rate, etc. She was not having a flare up at that time and all came back ok.
    Here are a list of her symptoms….
    Fatigue (she is an athlete and can’t even play sports right now, some days she can barely get out of bed)
    Headaches
    Sore throat
    Joint pain
    She does have a “butterfly rash”..sort of..it’s more of a flushing on her cheeks–not raised at all –but only during flare up
    RBC’s in her urine

    She is on Adderall for ADD (which should hype her up but she is STILL fatigued).
    So, need to know two things
    1. What type of specialist should I take her to?
    2. Can ANA & Sed rate change if the dx is lupus and she is having a flare up of symptoms?

    I am at the end of my rope here. If I just knew what I was dealing with, I could deal with it…it’s the not knowing.

    Oh…btw….in December, she suffered a pretty bad concussion. Had CT scan of her head which came back fine, no bleed. I have no idea if that could have any bearing on her present condition or if it’s just an unlucky coincidence. At that time, she was fine, she fell from about 2-3 feet in the air onto her head, neck and shoulder. She seemed ok at first but the athletic director wanted me to get her checked out. By the time we got to the doctor, she couldn’t remember anything and stayed confused for several days.

    Thanks so much for any advice!!

  42. Queen of Night says:

    What did my vet mean?
    I took my cat to the vet today because he’s had mouth lesions on his face for the past month. Now before you lecture me about not taking my cat to the vet sooner, he has had this before a year ago and my vet told me then it was a scratch and it would be ok. Also he had one on one side of his face, and right before it completely cleared up the other side flared up. I have changed vets since this last flare up.

    Anyway, I showed my new vet today his sore and told him that this has happened before. He said that it seems like he had an autoimmune disease and it will be chronic for the rest of his life (he compared it to an allergy) but he didn’t seem too concerned about my cat, gave him a cordisone shot and told me to rub some neosporine on it. My vet is one of the leading Ferret vets in the country, he literally wrote the book on ferret vet care (I know a ferret is not the same as a cat), so I know he is a very good vet.

    So I’ve been doing research about autoimmune diseases in cats but I’m not sure which one he has. I’ve read about Lupus and FIV and Stomatitis but he doesn’t seem to fit any of those symptoms. Most of these are life threatening all of them are rare. He’s very healthy (his fur is so black and silky I can pass him off as Bombay!), active, eats about a cup of food a day. In addition to the mouth sores he sometimes gets sores around his foot pads. They clear up on their own. I am pretty sure it’s not FIV because he was tested at the ASPCA where I got him and then got his FeLV shot as soon as he was old enough. He’s also had this for at least a year, so that almost rules out the one Lupus, and he’s had no head sores so that rules out Discord Lupus.

    So my question is, can someone point me in the direction of what sort of autoimmune disease my cat may have and what sort of issues/quality of life can I expect for him?
    Nope don’t think so. My house is flea free! He is in door completely. He also doesn’t really scratch or groom himself obsessively.
    @synisterkat THANK YOU! That picture is an exact copy of what my cat has just in a different part of his mouth! He used to be a great hunter of mice, shrews and bugs when he was an outdoor cat!

    • synisterkat says:

      I’m gonna spell this wrong so bear with me. Feline Eosiniphilic Granulomatous Complex is also known as Rodent Ulcers because people thought the sores around a cat’s mouth were wounds caused from the mice they hunted and ate. It is an immune problem that is easily treated with corticosteroids and usually is not a big problem other than the expense of the occasional trip to the vet. Good luck to your kitty, sounds like he has a great home.

  43. Thermal Mercury says:

    Lupus – ways to combat it?
    My Mum has had Lupus for a while, basically her neck is always flared up, her asthma is made worse by it, it generally makes her feel weak, plus she has mild arthritis which doesn’t help. She has also had hair loss, all of these things seem like Lupus induced problems.

    She lost weight, 3 stone, and there was very little difference (though shes always been a bit overweight) So what ways can these symptoms be fought off? Shes only in her thirty’s but her illness makes her as weak as someone in her seventies or beyond.

    She has hair treatment to stop her hair loss, it’s expensive but it does the job…at the moment at least. But we think the hair loss might not have been lupus as it happened after a shock to the head.

    If anyone knows genuinely how she can be helped it would put us at ease, she is far from crippled but her arthritis is gradually progressing and the Lupus is still as evident as ever, so eventually she may be….

    • Eric says:

      i have found that working out and cardio exercise such as running helped me… i decrease my medicaions and haven’t felt better. i could bairly walk out the hospital, now i run a mile and a half everyday and lift weight every other day. i take 3 pills less then i did a year ago.

  44. betsy_51783 says:

    Can anyone help me with a rash on my arms, hands, legs, and chest?
    I have a raised rad rash that comes and goes on my body some times it is worse than others but it never goes away. I have had it for over a month now. I have tried topical ointments over the counter and prescription. I have taken antihistamines again both over the counter and prescription. (prednisone, atarax, benadryl…) The thing is no one seems to know what is causing it including 3 different doctors. It itches and there is no hiding it when it decides to flare up. I do have Discoid Lupus but this is not a symptom of it (so the doctors say) I am at a loss. A few people have told me that it might be caused by stress. I have tried to do research and have found very little on rashes caused by stress. I have been through a little lately and I could attribute it to that I just need to do something. Please any advice. Nothing I am taking or using topically is working and doctors are not helping. Any advice or help would be welcomed!!!!

    • Love the babies says:

      If the “raised red rash” is obviously square or triangular in the areas that it pops up in, it is probably a contact allergy to something. A lot of folks have nickel allergies, so you may want take notice of where it happens and what you are wearing in those areas. You may want to consider patch testing as well. Contact a dermatologist rather than a family doctor.

  45. Dance-a-Holic says:

    I need help editing my research paper. I’m really bad at papers…..please help!?
    Well, its on lupus. I have the intro and two body paragraphs, and I still need to do the conclusion. So, I was wondering what I should change on my paper, and what I need to add..? I also have to do a powerpoint based on the paper, that should last a minimum of 5 minutes up to 15.

    The reason why I chose this topic was because my dad has lupus, and I wanted to know more about the topic. He was diagnosed with lupus when he was about fourteen years old. He still receives treatment for it by going in for blood tests and taking medication He has the most common form of lupus, Systemic Lupus Erythematosus (SLE), in which causes the antibodies to react against his own normal tissue. He has arthritis and joint problems, but nothings wrong with his internal organs. To support my dad and other lupus survivors, my family and I all go to the lupus walk in honor of remembering the people who had lupus that died. The things the audience can expect to read in this paper are the different types of lupus, the symptoms, the treatment and cures.
    Lupus is the result of an unbalanced immune system that can be destructive to any organ in the body. It can be categorized into three groups: discoid lupus Erythematosus, systemic lupus Erythematosus, and drug-induced systemic lupus Erythematosus. DLE is always limited to the skin and is identified by a rash that may appear on the face, neck, and scalp. It can evolve into the systemic form, which can affect any organ or system of the body. Systemic lupus Erythematosus is more severe than discoid lupus and can affect almost any organ or organ system of the body. No two people with SLE will have identical symptoms. Drug-induced systemic Lupus Erythematosus occurs after the use of certain prescribed drugs. It is more common in men, because the drugs are given to them more often.
    Lupus is hard to diagnose because it has a wide range of symptoms involving various parts of the body; and symptoms differ from each person. Most people develop painful joints and a rash, but lupus may also cause fatigue, depressions, and kidney problems. The treatment of lupus varies from person to person because each person has different symptoms. Most people with SLE require a regular blood test to check for lupus flares. Medication is the primary medical treatment for lupus. Presently, there are no other methods available to treat lupus because there is nothing else that can have the necessary impact on the immune system. Currently, there is no cure for lupus, but with early diagnosis and proper medical treatment it can significantly help control the disease.

    thanks. it would be much appreciated!!!!

  46. roguekg83 says:

    Is ankle swelling that gets very painful during exercise a sign of Congestive Heart Failure?
    I have had swelling in my ankles and legs for many years now. I have SLE lupus and am on several meds, none of which are new. For the past 5 years I’ve been having frequent palpitations or the feeling my heart is jumping. Test on my kidneys and thyroid have came back negative and I am not having a Lupus flare. I have had severe kidney damage in the past and I read this could lead to CHF. I’ve gained 25 pounds in the past 4 months and thought this was due to birth control I was on but I’ve been off the stuff for a month now plus I’ve been exercising daily on my treadmill. But when I exercise I get an excruciating pain in my right leg and it’s been swelling a lot more than my left leg lately. I really don’t think there is a blood clot or anything in my leg, but my extreme weight gain and inability to lose anything along with my severe leg/ankle swelling as of late has got me wondering if something is up with my heart. I have had constant lower back pain that feels like fluid moving or a slight burning sensation right at my hip when I am laying down. Oh and to add my menstrual cycles have been really bad and happening every other week and the gynecologist said the problem is not gynecological. I’m trying to help my doc figure this out so any input of what these symptoms may mean is much appreciated.

    • mgunnycappo says:

      IMMEDIATE ATTENTION REQUIRED:

      You need to be seen by your doctor immeidately. This is urgent. Have you been tested for Antiphospholipid Syndrome? This is a disease that often accompanies SLE (approximately 50% of SLE patients have it yet only 25% are actually tested for it). APS can cause blood clots to form called DVT. This problem is HIGHLY excerbated by the use of hormonal birth control. The warnings that you have heard from birth control advertisements about how they can increase the risk of heart attack and stroke…these messages are geared towards you. The OB/GYN should have never put you on contraceptives in the first place. This is contraindicated in people with SLE and especially those with SLE and APS. I remember my wife’s hemotologist YELLING at her OB/GYN over the phone a couple of years back when she was trying to give my wife birth control to help with an abnormal menstral cycle. He said “YOU’RE GOING TO KILL HER AND I WILL TESTIFY AGAINST YOU IN COURT” Pretty strong words for a doctor (this hemotologist is a Fellow with UCLA and has immense experience with SLE and APS). Suffice it to say that the OB/GYN looked into what he was saying and found him to be 100% correct. Have your OB/GYN do the same, she/he will come back into the room with an ashen look on their face realizing that they goofed.

      More importantly you need to be seen by your rheumatologist immediately. Tell them about your symptoms. They may just refer you to the local ER to have an ultrasound done on your ankles looking for clots. Tell your Rheumatologist that you’ve been on birth control and also ask if you’ve been tested for Antiphospholipid Syndrome. Your Rheumatologist will take it from there.

      Good Luck to you…do not wait on this, it could save your life.

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