The formation of the sacroiliac joints (SI joints) is the result of the sacrum (tailbone) connecting to the left and right parts of the iliac (pelvis) bones. These joints are stabilized by strong ligaments and are not joints that have much range of motion. This is because their main role is in supporting the weight of the upper body when erect and sitting. Because of the high demand of the joint it is common to have some problems that result in SI joint pain.

Commonly when things go wrong with this joint it is called sacroiliac joint dysfunction and usually means there is SI joint pain. It is also called SI joint syndrome, SI joint inflammation and SI joint strain. These are all variations on a theme of problem of this joint.

There are many causes of sacroiliac joint dysfunction. It is a joint like any other joint in the body and therefore prone to wear and tear. Osteoarthritis commonly happens in this joint because it is weight bearing in nature. As a result the cartilage on the bone surfaces, which acts like a shock absorber will wear away and the bone will rub on the bone causing pain.

Another common cause of SI joint pain is pregnancy. During the stages of pregnancy the body releases special hormones in preparation for childbirth that help relax the ligaments. The resultant relaxing of the SI joint structure and increased pregnant bodyweight can cause problems. Add on top of this the changed walking and standing posture of pregnancy and you have a recipe for SI joint pain.

Also any change or problem in the lower half of the body that disrupts the walking or gait cycle could cause SI joint problems. A leg length discrepancy, where one leg is longer than the other can do this. Also any injury to the lower back, foot, hip, knee or ankle can all result in a abnormal pattern of walking that places undue stress on the SI joints and causes SI joint pain.

Females seem prone to SI joint pain. This could be due to slight anatomical differences in the hips and pelvis. Two aggravating factors are known. Often when females sleep on their sides, the wider hip width means the top thigh drops down a lot. This put extra strain on the SI joint by opening it up. One solution is to sleep with a pillow between your legs and this should help the SI joint pain. Also sitting cross legged does a similar thing. It opens the joint and places uneven stress on it often for prolonged periods. The result is commonly SI joint pain. The solution is simple but may take some getting used to: stop sitting crossed legged.

Physical therapy for SI joint pain can be great. Yoga and pilates offer excellent benefits. Improving flexibility in stiff and tight areas can help reduce any compensation of the SI joints. Also building core stability can go a long way to helping take any excess stress off the SI joints. Remember the benefits and changes in the body may not be felt immediately with these activities, so it may require a slight commitment before you reap the rewards.


70 thoughts on “What Is Lupus Cancer Symptoms

  1. Kate

    What’s wrong with me?! Cancer, lupus, or arthritis?
    I have soooooo many questions, so here goes:

    I’m a 19 year old female. Since last November, I’ve had a constant dull pain in the left side of my upper back. I got an x-ray of my entire lumbar region, and it showed nothing unusual. I also get extreme headaches, intense heartburn, mucus in my stool, and extreme fatigue. I’ve gained about 30 lbs in a year. I got an endoscopy and colonoscopy to see where the mucus in my stool/ heartburn was coming from, but the doctor said my GI tract was beautiful. I’ve had 1,000 pregnancy tests, so I know I’m not pregnant.

    I’m prescribed Flexeril and Tramadol (neither of which helps at all), I take daily vitamins (which is why I’m stumped by the low vitamin d levels), and I smoke marijuana (would it cause the weird blood test results?) everyday. I was also on Accutane for about 5 months between Oct 2009 and Feb 2010.

    I just got some of my blood test results back and I have Elevated Sed Rate, Elevated C-reactive Protein (CRP), and Low Vitamin D.

    My primary care doctor suspects that I might have rheumatoid arthritis, and, she hasn’t confided in me yet, but I think she also suspects lupus.

    My main concern is cancer. Basically everyone in my family has had cancer or died from cancer. From the details I’ve given, do any of you think I could have cancer? Have you known anyone with the same symptoms who had cancer? If not, what do you think it could be?

    Any help would be appreciated.
    I know my dr. is suspecting lupus because she told my mom it’s a possibility (my dr and mom are best friends). My dad died of cancer, my mom had cancer, all of my grandmas and grandpas died of cancer, 3 of my 5 aunts died from cancer and one of them had it and survived, 3 out of 3 uncles have died from it, and 1 out of my 5 half-brothers has had it.
    I’m not on birth control pills and I’m a little overweight, but not a whole lot. I live in Florida, and I’ve been at the beach for almost all summer, so I know I haven’t had a lack of sun.
    Also, I didn’t pay for the pregnancy tests. Doctors gave them to me when I had the endo/colonoscopy, before I had x-rays, the entire time I was on Accutane, and not to mention the 6 or so times I’ve had my blood tested in the past 3 months. I’m not stupid, I know about safe sex.

    1. april

      Seems like you got a lot going on. Most drs would order an ultrasound with the pain you’re having. It would be cheaper to invest in some condoms than pay for 1000 pregnancy tests.. I had extremely low vitamin levels because I never got in the sun. Your body needs about 20 minutes of full on sunlight to get the vit d you’re lacking. High CRP is caused by infection, inflammation or being overweight…or PID. It is also elevated if you’re taking birth control pills. By Sed rate, I’m assuming you mean ESR, erythrocyte sedimentation rate? Just another test for inflammation.
      She hasn’t confided in you yet her thoughts on Lupus? Then how did you come by this knowledge? Do you know what Lupus is? If you had it or your dr suspected it, tests would’ve been run by now to verify, because lupus will kill you if left untreated. You were on accutane for quite a while…longer than most. I was on it and it can cause some wicked side effects, including bone pain.

      Has everyone in your family had the same cancer? Have they all had it while younger? And when you say basically everyone, who does that mean??

      You’re the second person to ask a question today, that a parent was best friends with the dr…doesn’t matter either way. You are of age and your condition can not be discussed without you present or without your knowledge first and you have to give explicit consent on who gets to know what. If you’re at the beach almost every day, then to be sure, you use a sunblock, which would also prevent absorption of the rays and would not make the vit d3. Most people are actually deficient in vit d.

      In rheumatoid arthritis, the small joints of the hands, wrists, feet, and knees are typically inflamed in a symmetrical distribution (affecting both sides of the body).

      Have they included these tests for antibodies when they took your blood?
      Abnormal antibodies can be found in the blood of people with rheumatoid arthritis. An antibody called “rheumatoid factor” can be found in 80% of patients. Citrulline antibody (also referred to as anticitrulline antibody, anticyclic citrullinated peptide antibody, and anti-CCP) is present in people with rheumatoid arthritis.

      X-rays can show bony erosions typical of rheumatoid arthritis in the joints. Joint X-rays can also be helpful in monitoring the progression of disease and joint damage over time. Bone scanning, a radioactive procedure, can also be used to demonstrate the inflamed joints. MRI scanning can also be used to demonstrate joint damage.

      Lupus…
      ■Fatigue
      ■Fever
      ■Weight loss or gain
      ■Joint pain, stiffness and swelling
      ■Butterfly-shaped rash (malar rash) on the face that covers the cheeks and bridge of the nose
      ■Skin lesions that appear or worsen with sun exposure
      ■Mouth sores
      ■Hair loss (alopecia)
      ■Fingers and toes that turn white or blue when exposed to cold or during stressful periods (Raynaud’s phenomenon)
      ■Shortness of breath
      ■Chest pain
      ■Dry eyes
      ■Easy bruising
      ■Anxiety
      ■Depression
      ■Memory loss

      I have Reynaud’s, it sucks..

  2. Holly

    What could be the cause of severe hives and swelling?
    For the past four years my entire body has been covered with hives along with “knots” in my hands, feet, and face that come with a burning, deep itchy sensation. At times my feet will swell to three times their normal size; this is different from the knots that appear in that when my entire foot swells it is extremely tender rather than itchy, to the point of being unable to walk. The severity of this situation varies in severity but has never completely ceased in four years. I am a 21 year old female in great health aside from the hives and swelling. I have seen 27 different doctors in the past four years in hopes of finding a solution; or at the very least, a cause. I have undergone all standard allergy testing, the allergy patch test, a skin biopsy; as well as eliminating foods and soaps, etc. from my lifestyle one thing at a time hoping that it was simply an undiscovered allergy. I have gone through multiple sets of blood work, ultrasounds, fluid samples and exen xrays testing for most major diseases and cancers with similar symptoms; lupus, thyroid, heart disease, etc., I have also been told that it is not gout or anything of that nature.
    I am in constant discomfort and am desperately searching for an answer.

  3. Bee

    What could I have? Please help. Could it be lupus? stomach cancer?
    I have these symptoms…I found out I have a uti and a stomach infection but no symptoms of them.
    -dizziness
    -tingling/pins and needles/very cold sensation starting at back of head then through scalp, arms, shoulders and sometimes entire body (this is very uncomfortable, sometimes unbearable)
    -joint pain and the feeling of very dry bones
    -spells of confusion
    -bad headaches (sometimes sensitive to light/sound, and sometimes temporary [1-3 seconds] sight loss)
    – often times I get a “falling” sensation when I stand up or walk
    – spells of insomnia
    – spells of sudden fatigue and weakness
    -memory problems
    -psychological problems including mood swings and depression
    -problems thinking/concentrating/absorbi… information
    -being constantly cold
    – spells of irregular heart beat
    – spells of chest tightness/pressure, sensation of heaviness on chest
    – shortness of breath/trouble breathing (like a panic attack)

  4. Completing My Bucket List

    Do you know what this constant body pain could be?
    If you are suffering from pain the legs, arms, back and feet. You sometimes ‘jump out of your skin’ if someone touches you too hard. You are fatigued yet can’t fall asleep at night and have problems dealing with extreme change in temperature. What could these be symptoms of? Say Lyme’s disease, arthritis and Lupus have been ruled out. Would this be consistent with Chronic Fatigue Syndrome? The extremeness of the symptoms may fade certain days but the underlying pain is there pretty much every day. Some days are better than others. Also would having endometrial cancer (successfully treated) within the past few months trigger any of these other symptoms?

  5. Asia ♥

    I’ve been sick for 5 years, why havent my doctors checked for Cancer or even brought it up?
    I first got sick when I was 16 out of nowhere.
    It started off with Nausea, loss of appetite and dizziness.
    About a year and a half later the symptoms got less severe.
    Then I started having severe fatigue, shortness of breath, pain behind the eyes, wounds that dont heal well, purple toes, gas, occasional stomach pain, anxiety, and chronic runny nose.

    I’ve been to alot of doctors and they can’t seem to find anything.
    I’ve been diagnosed with IBS..which doesnt explain anything.
    They’ve tested for:
    Diabetes
    Thyroid issues
    Celiac disease
    Lupus
    Adrenal issues
    Vitamin levels
    Liver blood test (I’m not sure if that included Hepatitis.)

    I have cancer in my family and I worry sometimes that my problem could be something serious… it’s been going on long enough and no one can tell me whats wrong..

    I do have a cyst on my ovary and a polyp on my gallbladder…what makes my doctors so sure that they arent cancerous?

    I just wish I could get better

  6. ʜəɑƋɩəƨƨ нояƨеωомɑɴ

    Breast Enlargement Idea ~I’d like some feedback~?
    PLEASE READ, THIS IS VERY BENEFICIAL. I’ve spent hours upon hours reading different ways to increase breast size.
    The pills are worth hundreds of dollars, with only a slight chance of working, why would you do that? Also with breast enhancement pills, there are other ingredients in those pills the manufacture isn’t making completely known, only after doing research on different pills have I found out what is in them. Some have little bits of harmful ingredients while others are completely filled. Some are made all natural, but still have that little hint of danger, and still, are all expensive.
    Breast Augmentation is something completely different. Costing a range anywhere from $5000-$10,000. Going under the knife, leaves scars and sometimes unevenness. Would you really waste $8000 on lopsided breasts? Good idea for some, not so for others. Either not having the money, or the dangers involved. They do say breast augmentation has gotten safer over the years, but still, there is ALWAYS a danger with any type of surgery.
    Between the pill and the surgery, I’ve considered one, then the other, then back to one. I’m unhappy with the size of my breasts, and I always have. I can easily have the money for surgery, but don’t want the scars, I’m not wasting money on pills that can damage my health and have no affect on my bust.
    So, sitting and reading on what affects breast and their growth, I’ve read a few good things.
    -Estrogen is a hormone that comprises a group of compounds, including Astron, Estrada and Estrella. It is the main sex hormone in women and is essential to the menstrual cycle. Although estrogen exists in men as well as women, it is found in higher amounts in women, especially those capable of reproducing. Anyways, when you’re pregnant your estrogen levels rise, and well, your breast are noticeably larger. After reading and confirming, estrogen is the main hormone connected with breast growth. If you want larger breasts, here’s what you can do:
    Start eating different foods that have a higher level of estrogen. Apples, Cherries, Grapes, Tomatoes, and Pomegranates all have a good amount of estrogen. Apples especially. Alfalfa has high traces of phytoestrogens which is called dietary estrogens. Which means it acts like estrogen. Soy is also very high in estrogen, but a warning, soy extracts are BAD for you. If you are going to eat soy, cook your own soy, no soy extracts. Protein laden foods such as: fresh milk, fish, soy products, nuts and seafood, are also said to increase bust. Very last, flaxseed oil! Flaxseed oil is high in fatty acids and omega 3, 6+9. Very good to take for breast enhancement. And if in the end you don’t see you bust grow, flaxseed oil capsules also:
    Lower cholesterol, protect against heart disease and control high blood pressure, Counter inflammation associated with gout, lupus and fibrocystic breasts, Control constipation, haemorrhoids, diverticular disorders and gallstones, Treat acne, eczema, psoriasis, sunburn and rosacea, Promote healthy hair and nails, Minimise nerve damage that causes numbness and tingling as well as other disorders, Reduce cancer risk and guard against the effects of ageing, Treat menopausal symptoms, menstrual cramps, female infertility and endometriosis, Fight prostate problems, male infertility and impotence.
    All the food I’ve listed are healthy, and are not harmful to your health. Also, if you plan to change your diet, as with any diet do not do it in an extreme way. Slowly work the different foods into your already existing diet, this is best for you and your body.

  7. Holly

    What could be causing my hives?
    For the past four years my entire body has been covered with hives along with “knots” in my hands, feet, and face that come with a burning, deep itchy sensation. At times my feet will swell to three times their normal size; this is different from the knots that appear in that when my entire foot swells it is extremely tender rather than itchy, to the point of being unable to walk. The severity of this situation varies in severity but has never completely ceased in four years. I am a 21 year old female in great health aside from the hives and swelling. I have seen 27 different doctors in the past four years in hopes of finding a solution; or at the very least, a cause. I have undergone all standard allergy testing, the allergy patch test, a skin biopsy; as well as eliminating foods and soaps, etc. from my lifestyle one thing at a time hoping that it was simply an undiscovered allergy. I have gone through multiple sets of blood work, ultrasounds, fluid samples and exen xrays testing for most major diseases and cancers with similar symptoms; lupus, thyroid, heart disease, etc., I have also been told that it is not gout or anything of that nature.
    I am in constant discomfort and am desperately searching for an answer.

  8. Holly

    What can cause severe hives and swelling?
    For the past four years my entire body has been covered with hives along with “knots” in my hands, feet, and face that come with a burning, deep itchy sensation. At times my feet will swell to three times their normal size; this is different from the knots that appear in that when my entire foot swells it is extremely tender rather than itchy, to the point of being unable to walk. The severity of this situation varies in severity but has never completely ceased in four years. I am a 21 year old female in great health aside from the hives and swelling. I have seen 27 different doctors in the past four years in hopes of finding a solution; or at the very least, a cause. I have undergone all standard allergy testing, the allergy patch test, a skin biopsy; as well as eliminating foods and soaps, etc. from my lifestyle one thing at a time hoping that it was simply an undiscovered allergy. I have gone through multiple sets of blood work, ultrasounds, fluid samples and exen xrays testing for most major diseases and cancers with similar symptoms; lupus, thyroid, heart disease, etc., I have also been told that it is not gout or anything of that nature.
    I am in constant discomfort and am desperately searching for an answer.

    1. tom m

      what hospitals have you been to?
      try calling Loma Linda, California hospital it is a University hospital! thy are great at finding out problems out. like this one!!

  9. Jill The Oddity

    Why can’t my doctors figure out what’s wrong?
    For the past 8 months I’ve been suffering from a vast amount of symptoms that just get worse every day. No one knows whats wrong, and nothing helps. It’s ruining my life! I can’t even make it through a school day anymore, so I had to drop my favorite course and now I have to leave early every day under doctor’s orders. Sure, it sounds nice, but it’s not, its horrible. I haven’t gone out with friends in months and I’m in pain all the time. My family thinks I’m insane and wants to send me to a mental institute. Literally. They think I have Munchhausen’s or something. I’ve been to 3 doctors,not including a sleep specialist, a psychiatrist, a cardiologist, and a neurologist. They all admit somethings wrong, and it’s autoimmune. They just don’t know what. This is a living hell. Ive gone from straight A’s and leading in the school’s plays to dropping out of my classes and staying in bed all day. I’m 15, and I’m missing out on my whole life. Im going to a Reumatologist next week, and im being tested for epilepsy.

    The diseases they’ve ruled out are:
    Diabetes, Multiple Sclerosis, Mono, Leukemia, A few other cancers, Celiac disease, my MRI was normal, my routine blood samples are normal, and i think a few other things.

    my symptoms:
    constant extremely painful migraines
    sensitivity to sound and visual auras.
    Extreme fatigue, falling asleep. I sleep 10-14 hours a day.
    weird twitching, like shocks, but not painful, just super annoying.
    constantly ill, basically NO immune system
    bone and joint pain in upper extremities, pain when reaching up
    spinal pain
    staring spells, where im like half dreaming and not paying any attention to anything around me.
    mild cataplexy
    numbness
    low fever
    constant feeling of extreme sickness
    and the sleep doctor says i have narcolepsy.

    …A lot of other things as well. Especially odd things. (if you ask, answers will be in the additional details)

    The things i think it sounds most like are
    lupus and polymyosistis.

    If you have ANY ideas that would cover all of the symptoms, PLEASE let me know. I can’t take it anymore, and I want to just get on with my life. Please help me out
    the thing is, i dont think epilepsy causes extreme fatigue, and theyre going to check me for fibromyalgia, but does that cause excessive twitching and fevers, cataplexy (slight paralysis )?

    1. ★☆W.a.b.b.y✿❀

      I wish that lady above would stop ranting on about vitamin D deficiencies.. I do not think this what you’ve got and I don’t think the doctors do either. It sounds much more serious.

      I thought Lupus first as well. It sounds like your symptoms suck big time! I’m sort of in the same boat. I was diagnosed with Fibromyalgia, but my GP thinks that’s unlikely and more likely rheumatoid arthritis. I’m only 21 and have been sick since I was 11 with a lot of the same symptoms as you.

      It sounds complex whatever it is. Just don’t stop until you find what’s wrong. And in the mean time, just do what you can to make you feel better. If they try a medication and it makes you feel worse, then stop. I’ve learned that it doesn’t really matter about the long run if you can’t make it through the day.

      If you want to talk, my email is open on my profile. I check it regularly. =]

  10. ;sldkfja;sdklfj

    ** 2 QUESTIONs… **?
    1. What is lupus and what are the symptoms for lupus? My grandmother died from lupus around 36 years old, 5 days before i was born! I think that is pretty young! I take after her side of the family which has breast cancer, high blood pressure, ect…

    2. I have recently been noticing dandruff in my hair and have tried a couple shampoos, they didn’t work! What are other ways to get rid of it? I heard that tanning can help, is that true?

    -by the way i’m 14!
    Any advice will help, thanks!

    1. purple

      no tanning wont help dandruff..they make certain stuff you can buy over the counter at your local drug store for that.. Lupus is a chronic inflammatory disease that can affect various parts of the body, especially the skin, joints, blood, and kidneys. The body’s immune system normally makes proteins called antibodies to protect the body against viruses, bacteria, and other foreign materials. These foreign materials are called antigens. In an autoimmune disorder such as lupus, the immune system loses its ability to tell the difference between foreign substances (antigens) and its own cells and tissues. The immune system then makes antibodies directed against “self.” These antibodies, called “auto-antibodies,” react with the “self” antigens to form immune complexes. The immune complexes build up in the tissues and can cause inflammation, injury to tissues, and pain.

  11. Walton

    Autoimmune Disorders? Particularly for those with medical backgrounds…?
    A loved one of mine – a female in her 20s – has an undiagnosed medical issue and I’m seeking ideas.

    We’ve been to countless doctors, many of which agree it may be some sort of autoimmune disorder, but what it is exactly has been difficult to pinpoint. It started around 2 years ago when various sores/scabs started appearing on her arms and legs. These really weren’t/aren’t as ghastly as they might sound – they were your average run-of-the-mill sore: circular in nature, ranging from around the size of a pencil eraser to 2 or 3 times that large…Initially it was thought there might have been some practical cause surrounding them, such as scraping herself accidentally in the kitchen or while asleep. But as time went on, we realized that this wasn’t the case. Some have healed, but only slowly and leaving faint scars…Others have yet to heal and new ones begin….There might be a half dozen on each leg/arm…The only other syptom is slight fatigue, as she has known she is borderline anemic since she was a teenager.

    Anyway, we’ve been to GPs, dermatoligist, allergist, and at least one other specialist. They have ran ANA blood tests, CBC blood tests, taken biopsies for cancer, tested for lupus (a suspected culprit for a while because she’s had family members with this condition), tested for autoimmune disorders,
    tested for allergies, gluten tests, and much more…

    None of this yielded anything really…We found out about some light allergies she has, but nothing significant enough to trigger this…Recently went in again and run some of the same tests over again, still awaiting test results, but not extremely hopeful since we’ve been through this before and there is supposedly a great deal of accuracy with most of these tests.

    So any ideas ? Do this sound auto-immune in nature or more like a environmental cause such as a food allergy ? If its autoimmune what might it be ? Given the duration and no other side effects might that point to anything ? None of these symptoms have greatly altered her lifestyle, she still maintains a job and attends graduate school, but its been psychologically stresful for all of us…Any help is appreciated.
    Some are in fact cystic in nature, and her mother had ovarian issues.

    1. Bco4th6th

      I don’t know whether this will help, but one of the first things I would is to start preventive treatments that will either take care of some unknown issue or rule it out.

      This sounds complicated, I know – and I apologize.

      What I mean is, around 75% of people’s health problems that aren’t inherited or injury-related are caused by unintentional dehydration – low water and salt levels. Water and salt make up about 75% of the body’s tissues (the number is just a coincidence), 85% of the brain and 94% of the blood.

      Because the medical community has convinced them that water has little or no nutritional value and is therefore unimportant, and because they warn people to cut back on salt, people are developing health problems that never existed only decades before.

      The current advice that doctors give is to “drink plenty of fluids”. But “fluids” don’t necessarily translate into “water”, and since water is unexciting, people opt for soft drinks, coffee, energy drinks and other alternatives. These drinks do not supply the body with the needed water, even though they may contain water. This is a common misconception that is fueled by the doctors’ advice (they went to medical school, so they couldn’t possibly be wrong). These drinks act like a diuretic and actually pull water out of the body at a rate of nearly 50% more than the water they’re providing.

      The body runs on water, and it won’t accept anything else (other than some natural fruit juices in small to moderate amounts).

      Click on the link below to learn the proper way to correct dehydration.

      One other thing you might consider is Oil of Wild Oregano and/or some other natural herb. Oil of Oregano kills harmful bacteria and is effective on many viruses. If this is the problem that your loved one has, this stuff should take care of it.

      The best thing is, both of these treatments (water/salt and oil of oregano) are natural and has no side effects other than improving ones health. They are completely compatible with any prescription or over-the-counter medication a person may be taking.

  12. happydays

    Only 23 and very sick. No one can figure it out. What is wrong with me?
    very underweight female. 23. born almost 4 months premature. was healthy until the age of 17 when i developed these symptoms:

    extreme fatigue, diagnosis of gallbladder disease (+removal of gallbladder). developed moderate depression (being treated successfully with zoloft. have also been on lexapro, celexa, prozac. all worked but side effects intolerable.), developed very painful joint pain in hips and down legs. (arthritis test negative). have daily headaches on the top of my skull. tested positive for COPD (have never smoked and have no history in the family). developed anxiety. developed unexplained tachycardia (being treated with atenolol.), developed rash on stomach which has been present for several years on and off. developed extremely painful menstrual cramps (periods have been stopped entirely by birth control medicine – nuva ring). Have developed melanoma in weird places not exposed to the sun and have not ever tanned or been out in the sun much. No scan ever performed. Spots seem to pop up overnight and when biopsy is done they have been melanoma cells. Each has been removed, with the last not being able to get clear margins. Have to be watched every few months to see if more pigmentation shows up.

    Generally do not feel “well.” Not terrible, but not well. Am VERY tired all the time.

    Family History: Grandmother and Mother: prolapse mitral valve. Treated with Atenolol. Both had dysthimia as well. Treated successfully with Lexapro. Both had rare cancers. Mother had extremely rare form of lymphoma, one of 3 in the US at the time. Grandmother had bone cancer.

    Fraternal Grandmother: drug induced lupus. Bladder cancer. thryoid disease, goiter removed.

    Fraternal Grandfather: Lung Cancer. Diabetes.

    Father: IBS. Allergies. Hay fever.

    Sister: High testosterone levels (unexplained.) Weird rash on arms and face – mystery to doctors.

    Great Aunt: very very rare form of Leukemia developed in her late 60’s.

    What is WRONG with me?!

    1. Maria

      I’m not certain, but your pedigree is loaded with quite a bit of autoimmune disorders. I have a couple at least (food allergies and allergy-induced asthma). My family on my mother’s side is packed with them (Guillain; pernicious anemia; psoriasis).

      I follow the autoimmune disorders protocol found in the Life Extension web site. I have their book. I don’t think they cover everything well, but the book is a good guide for me. Each section is authored by an MD who specializes in research. There is as section on autoimmune disorders and how to deal with it. The book is published on their web site. You can print out the portion on the autoimmune disorders.

      Autoimmune disorders are very common–Rheumatoid arthritis, Crohn’s, Ulcerative Colitis, Guillain, food allergies, pernicious anemia, eczema/psoriosis, Lupus, Multiple Sclerosis, and so forth. There are tons of diseases autoimmune in origin. You may just have a sliver of it, or none of it.

      I can’t think of any other plausible explanation. Systemic illnesses with all kinds of various symptoms that come and go just smack of an immune dysfunction to me.

  13. Jennifer O

    2 high d-dimer results with no blood clot?
    Hi everyone – first let me thank you for taking the time to help me, I don’t know what to do anymore.

    Okay – Family History: My father has a blood clotting disorder and is on life long anti-coagulant therapy. My aunt had lupus. Cancer runs on both sides of my family ranging from leukemia to breast cancer.

    Me –

    In July I was hospitalized with a suspected blood clot; I had racing heart, trouble breathing, and felt faint. D-Dimer was high at 4.56 but echo, ultrasound, and lung CT were normal. Sent home on a moth regimen of anti-coagulants.

    Yesterday, back in the ER for pain in my right leg and it felt as if my leg was emanating heat. Ultrasound clear but D-dimer elevated again at 3.86. Told to see hematologist. This morning I woke up and for the first 3 hours my pinky and ring finger on my right hand were numb.

    Other possible symptoms: I have been to an endocrinologist to have my thyroid checked because despite religious exercise and eating right, I gain a pound or 2 then stay at that weight and then gain some more. Plus I have a low libido and fatigue. All tests came back normal.

    I have noticed my memory is lacking these days and I can be quite irritable.

    Does anyone have any clue s to what is up with me??

    1. Agnodice

      A d-dimer is only helpful in the evaluation of a blood clot when it is negative. A positive d-dimer only means that further testing is required to evaluate for a blood clot. The d-dimer is a break down product of blood clots and many things can increase the D-Dimer. The lower extremity ultrasound and CT are more definitive test to rule out blood clots. The episode in July was likely a panic attack if all other possible causes were ruled out. I am guessing you had an EKG and your heart was monitored in the ER to rule out other conditions, such as an abnormal heart rhythm.

      Fatigue is a very general symptom that can occur with many conditions. Thyroid disease is a common cause of fatigue, but you had normal testing. Anemia and diabetes are other common causes of fatigue. Depression could lead to decreased libido and fatigue also. Hormone abnormalities like excess prolactin can also decrease the libido. Lack of sleep and anxiety could also contribute to decreased libido. Your doctor may have checked you for some of these conditions and I would suggest you also discuss this with your doctor if you have not already. Good luck.

  14. Michelle S

    Do I have a tumor? ParaThyroid Problems?
    PLEASE NOTE I have tried all the symptom checkers on the internet and this issue is too complex for those, so please dont suggest that in your answer..

    I have lots of symptoms and I feel like I am dying (literally) so I am interested to find out what people think I may have. I have all kinds of tests lined up over the next week (I just had a blood test, having a CAT scan, and checkups with various doctors, endocrinologists etc.)
    Symptoms: general feeling of being EXTREMELY tired (like onset of flu, aching muscles, esp in the lower back and the shoulders/neck area – to the extent that I sleep a good nights sleep then go out for 10 mins in the morning and have to come back home for a nap). I also have ear symptoms – my ears feel like I have a sock stuck between them, a fair amount of pressure in my head just behind my ears, and I hear sounds but in a “fuzzy” way (cant hear some low freq sounds like thunder etc – had a hearing test and this was confirmed). My ENT actually did surgery, draining fluid from my ears and putting tubes in my ears, and though this helped a little it was a VERY little, it definitely didnt help with the main problem.. I still have popping noises in my ears and those pops are followed by reduced hearing or enhanced hearing alternately and a feeling of wetness at the entrance to my ears, though the ENT says there is no discharge.. I occasionally feel a little dizzy. I seem to sleep ok, but as I am going to sleep I have that feeling like you are falling out of bed and kind of shock yourself awake – a few times each night.. not sure if that is relevant.. Just prior to the onset of all these symptoms I had a TERRIBLE backache – I could hardly walk for a week – and that was followed by what appeared to be a real flu.. Also recently I had a “boo boo” on my foot that failed to heal and I have had lots of pains in my mouth – as if my teeth were all going to fall out, and also a feeling of having mouth ulcers all over my mouth. Also, prior to the onset of these symptoms I had been feeling a lot more tired than usual for the past three years (since the birth of my second child).. during the first year of this, I had gone to the doctors and had lots of tests and they all came up blank – nothing wrong.. I am hoping this time they find something or I will feel like a hyperchondriac. Please feel free to speculate about what the problem maybe, though I prefer Doctors to give their views if possible.. I have come up with the following possibilities:
    Epstein Barr virus
    Hodgkins Lymphoma
    Myeloma
    Lupus
    Nasopharyngeal cancer

    1. Memere RN/BA

      I’m sorry but I didn’t even read any of it and I’ll tell you why. You should never try to diagnose anything on a web site simply because many of those sites don’t give both sides of the story or problem. They only give vague symptoms that could be anything.
      I was 23 when I had my parathyroid removed because of a tumor. It began on my thyroid, wrapped itself around my parathyroid, and half way around my esophagus prohibiting me from sleeping on my back because it would feel like I was being choked. The tumor protruded so it was visible on the outside It didn’t bother me at the time and if it wasn’t for my friends mother, I would never have gotten it checked out. I began loosing a lot of weight, started getting very fatigued. There are simple tests that can be done to visualize a tumor. I can see your lists of things you came up with. You picked some goodies. I hope you’re wrong. I’ve been there and I know what it’s like. so if you have a tumor and the parathyroid is involved, you will not only find out, but eventually you will see it, Just don’t wait until that happens. Good luck. Hope you’re well.

  15. superdiana4000

    What is Lupus, and how treatable is it?
    I was just diagnosed with Lupus, I have a history of Ovarian cancer and have had a full hysterectomy in 04. About six months after my hysterectomy I was diagnosed with LUpus. The problem is I don’t know what it is. I get stiff and puffy and my joints are hard to move, but my doctor doesn’t go into great detail of what this disease does. All they have done is put me on predsnisone, and draw my blood every once in a while. I have had recent symptoms that are new life blurry vision, headache anf REAL stiff joints…….help me, I don’t know where to go

  16. Phaylen

    Have you Had a reactivation of Epstein Barr?
    5 years ago i suffered one of the worst cases of mononucleosis my Doctor had ever seen. Swollen neck/lymph nodes, terribly sore throat that required ice packs, chills and high fever. I was better in about a month and resumed normal activities.

    1 month ago (October 24th) I started feeling a pulling in my neck, like a tight muscle, over time this grew into a full on stiff neck with swollen lymph nodes from behind my ears to the back of my head to my collar bone. hey are palpable under the skin in places, soft, movable, but definitely swollen and my neck feels tight in the muscles. I went to the doctor and he said I had an ear infection and put me on Amoxicillan.

    A week and a half later I was no better and went to the ER and they told me i had a virus, sending me home with Augmentin, claiming I should let it run it’s course.
    I went to the internet for research and while I don’t believe i had mono again because reactivation of it is so very rare, plus, I don’t have a fever or a sore throat- just these swollen nodes and pain in my neck. I went back to the doctor and asked to be tested for Epstein Barr Virus.

    I got a call the following week and the nurse said “You Labs are back and consistent with reactivated Mono. Get lots of rest.” I had questions such as why it would reactivate with fewer symptoms, and how long i could expect these swollen nodes and neck pain to remain since it had already been a month… they didn’t have the time for me.

    My EBV test reads as follows

    Clinical Situation IgG-VCA EBNA EA IgM-VCA
    ————————————————————————————
    No past infection – – – –
    Acute Infection + – + +
    Convalescent Phase + + +/- +/-
    Past Infection + + – –
    Chronic of reactivated
    Infection + + – –

    My epstein Barr Panel showed two High Counts.
    EBV (VCA) Ab, IgG 936
    EBV Nuclear Ab, IgG 243

    Now, given that it is rare for people to get mono twice, and if they do it is usually WITHOUT symptoms or due to a suppressed immunity (Like Lupus or Arthritis) I went searching further for answers.

    Because i have had a small rash on my chest at the center of my breastbone that is occasionally itchy, as well as what had been diagnosed as dermatitis around my scalp and upper back- My symptoms seem to correlate with the dreaded word no one wants to hear: Lymphoma. It also seem EBV has a direct link to some Lymphomas.

    I called back my doctor and demanded a referral to an ENT and a CT scan of my neck- I’ve had chest X-rays previously due to a light persistent cough and they are normal.

    I’d like to ask Anyone who suffers from long term EBV effects if they experience swollen nodes and stiff neck for more than a month years after initial mono infection. Am i putting the car before the horse or being logical here. The concept of cancer frightens me to death, though there is no Lymphoma in my family.

    Do you EBV sufferers feel the same way? Do you have chronic swollen nodes and a stiff neck for more than 4 weeks at a time without other traditional mono symptoms?

    1. Doctor J

      Hi Phaylen. I am NOT an expert in Epstein Barr infections. However, I have a substantial interest in the role nutrition plays in the functioning of the immune system – which can play a significant role in controlling Epstein Barr infections and risk for various cancers.

      What I am offering here is merely conjecture – an educated hypothesis. There is very little specific scientific research in the area of Epstein Barr virus infections and nutritional status. What research is available suggests the following possibilities:

      1) Vitamin D deficiency is very common (an epidemic) and its effects on the immune system can impair the system’s ability to fight viral infections such as Epstein Barr virus (EBV). Have your doctors tested your blood levels of 25-hydroxyvitamin D? This is the proper test for Vitamin D status. You want a number in the “high-normal” range to be healthy.

      2) Zinc status is a major player in immune system health. Low zinc intakes from normal diets are very common. Even marginally inadequate intakes of zinc can impair immune function and limit the immune system’s ability to contain a viral infection. Again, have your doctors tested your zinc status? Have they measured ANYTHING about your overall nutritional status?

      Below are a few links to scientific papers that support the comments I have made here.

      Best wishes and good luck.

      I have added a couple of additional papers on zinc. They are fairly technical but, they provide a solid scientific basis for the potential relationship between your zinc status, immune function, and risk of viral infection and cancer.

  17. Lady-a

    Ive been sick for 8 months now, but my doctor has yet to figure out what is going on. Any ideas?
    For about 8 months i have had these symptoms
    Coughing ( with colored flem)
    Weezing ( I have asthma)
    Difficulty sleeping
    Fatigue
    Loss of apetite
    muscle aches
    itchy skin
    head aches
    dizzy
    pain when breathing
    always feel cold
    low grade persistant fever

    So far my doctor has thought it was pneumonia, bronchitius, staff..ect i’ve been on meds but nothing has helped. I live a very healthy lifestyle..no drinking, smoking, good diet and exercise… Any ideas?

    I had an mri in august because i was experiencing aura migranes (vision loss)

    Today I just recieved my results from a blood test they did for lymphonic cancer, it was negative

    In November I did a chest x-ray for pneumonia but it came out clean

    I am a 22 year old female

    Do you think it would be lupus? how do you test for it?

    1. Devidayal

      Majority of your symptoms are as a result of poorly controlled asthma. Symptoms like muscle aches, fatigue, dizziness & headache can easily be explained by poor oxygen supply to muscles and brain. Coughing, Wheezing, difficulty sleeping & pain when breathing are because of the disease per se. Persistent fever suggests a persistent respiratory tract inflammation which is a cardinal feature of bronchial asthma.
      Please consult a Pulmonologist and request him to upgrade your inhalation medications. Also get your inhaler technique checked. I hope you will be better with these simple measures.
      By the way, Lupus can be easily excluded by ANA test.

  18. Adam F

    I have pain… and no end in sight.?
    OK, so I’ve got pains I can’t explain… the problem is that I’ve been to countless doctors and have been unable to get a satisfactory diagnosis.

    The pain seems to be everywhere… when I am seated in certain positions… I feel it in my hips and in my mid back. When I walk or stand for any length of time… the pain is lower now… like my lumbar area… and in my neck… I also have numbness and heat in my hands (like arthritis)… tingling in my chest… numbness, tingling and heat in my legs. I have pains in my chest too… though I think that might just be panic and fear over these pains…. I don’t know.

    I’ve been given pain meds and muscle relaxants which work… but then I run out and I’ve been unable to find a doctor who is willing to give me an ongoing prescription.

    I’ve gone to acupuncturists, chiropractors, pain management centers, walk in clinics…. I’ve spent THOUSANDS, all to no avail.

    I have also invested in a Temper-pedic mattress, weekly massage, a hot tub… and still I am plagued by pain.

    Further, as this is impacting both my mood and my ability to think clearly, I’ve spiraled into a deep depression where I feel absolutely certain I am going to die… and soon. The fear of this and worry over my family is keeping me up at night… I find myself looking up my symptoms and finding the causes ranging from anything from a weakened immune system to lung cancer to leukemia. So naturally I’m terrified.

    The other thing is that I’m uninsured and insurable (due to my weight… I’m 315lbs, and the fact that I’m self employed)… and because I’m unable to really exercise…. so it’s getting worse… not better.

    I had a seated MRI in January… I think some of my problems are only clear when I’m standing since that’s when I’m in pain.

    According to the MRI (we didn’t do the lumbar), I have I have at least three blown discs… T-10 to T11, T-11 to T-12 and T-12 to L-1…. that plus macular degeneration of the discs is causing inflammation and osteoarthritis symptoms…. I’m only 38… yet apparently I have the spine of a 70 year old.

    I recently paid $3000 OOP for facet injections… a mixture of steroids and Novocaine… and I’ve gotten some minor relief…. but I’m still in alot of pain and it’s not getting better. My hands are on fire most of the time.

    To be honest, I’m not convinced the pain I’m in is all in my back…. I feel chest pains and hip pains too… I’ve been told it’s all related… but part of me says fibromyalgia, part of me says it’s depression or a midlife crisis… and another part of me thinks it might be cancer, lupus, a heart condition, or even AIDS…. because all sometimes present as inflammation of the joints… and referring pain.

    To make matters worse, I now can’t find a doctor to give me something to help the pain anymore… I’ve been to dozens of clinics…. the prevailing thought is that if it can’t be cured with 30 days worth of flexoril and vicoden… I should be made to suffer.

    The last doctor I went to suggested I lose the weight…. as if that hadn’t been discussed… or as if I could stand up long enough to exercise meaningfully.

    So guys…. what do I do?
    I am dieting… and I’m taking Alli… a great diet pill… it’s working.

    I also do not have any history selling pills or avoiding treatment.

    The pain management clinics in my area are against giving out pain medication for some reason… they all promote alternative remedies… which don’t work.

    How do I find a pain management clinic who is willing to prescribe drugs?

  19. Chris[Curtsy]Fingers

    What is this sharp pain my my chest and shoulder?
    I have a sharp pain over my left lung in the lower left side back, my heart, and goes into my left inside shoulder. It lasted for a few hours, and the pain got pretty intense to the point it was taking my breath away. It got worse when I took a breath, laughed, or coughed. and then I went to sleep and woke up and it hasn’t hurt in about two weeks. I don’t smoke, drink, do any drugs. I havn’t had any injury’s, or had any trauma. But since its went away, I havn’t seen a Dr.

    Lupus and breast cancer runs in my family. So does heart disease. But If I had one of those wouldn’t I still have the symptoms?

    1. cowboydoc

      A sharp pain in the upper left quadrant of the chest radiating around the back, I would really worry about an angina or a heart attack. I think I would want to see a doctor and get an EKG, especially after I had four heart attacks like this.

  20. All me

    What could I be sick with?
    I’ve been sick for as long as I can remember, I was taken to so many different doctors being poked with many different needles and having to go through so many different CT scans, X-rays and nothing ever being found. I recently gave up on trying to diagnose what I have, but only because my symptoms went away. But now they are back and way worse…
    My symptoms are:
    Vomiting
    Headaches
    Stomach Pains
    Bloody stool (yes, I know its gross)
    Fatigue
    Heart Racing
    Irregular Heart Beat
    Chest Pain
    My entire body will get sore to the point of I don’t want to move

    Does anyone have any ideas?

    Any forms of cancer have been ruled out, PCOS has been ruled out, Lupus and Lyme disease have been ruled out….I’m starting to give up

  21. KaelynnU

    Please help me figure out what’s wrong with my body.?
    I’ve been getting sick more and more often lately. I’ve always been the sickly child. Fibromyalgia, lupus, diabetes and cancer run in my family but I really doubt what’s going on is cancer. My symptoms: severe joint and muscle pain constantly and motrin and Tylenol do not help, frequent headaches, heavy periods usually, I have pretty bad allergies, severe fatigue no matter how much sleep and all I do is go to school and I don’t take PE so I don’t exert myself, I’m usually irritable and lately I’ve been really really depressed. I’ve also been sick about 6 times in the past 8 weeks. When I get home from school it’s all I can do to stay standing and awake. I also have back issues but I don’t think that has anything to do with this. Pleas just help me figure out what’s wrong with me and give me a way to convince my mom to take me to the doctor
    Oh yea and I am super cold intolerant. I wear my big heavy coat when everyone else just wears a light jacket and I’ve lived in Kansas for over 7 years now.
    I can’t excercise. It hurts too bad during and afterwords. I tried to do track last year but had to quit after two weeks because my body hurt so bad. Btw I’m 14

  22. KaelynnU

    Help there is something not right with my body/health?
    I’ve been getting sick more and more often lately. I’ve always been the sickly child. Fibromyalgia, lupus, diabetes and cancer run in my family but I really doubt what’s going on is cancer. My symptoms: severe joint and muscle pain constantly and motrin and Tylenol do not help, frequent headaches, heavy periods usually, I have pretty bad allergies, severe fatigue no matter how much sleep and all I do is go to school and I don’t take PE so I don’t exert myself, I’m usually irritable and lately I’ve been really really depressed. I’ve also been sick about 6 times in the past 8 weeks. When I get home from school it’s all I can do to stay standing and awake. I also have back issues but I don’t think that has anything to do with this. Pleas just help me figure out what’s wrong with me and give me a way to convince my mom to take me to the doctor.
    Oh yea and I am super cold intolerant. I wear my big heavy coat when everyone else just wears a light jacket and I’ve lived in Kansas for over 7 years now
    I wasn’t super sick. It was just like 48 hour viruses but I was sick enough to stay home from school and for me I have to be pretty sick to stay home

  23. Jessy J

    PCOS and ovarian cancer?
    ok, so im 19 and have been diagnosed with having PCOS. but, i have noticed that i also have symptoms of ovarian cancer. now, what are the chances that i could have that also?

    i have changed doctors 3 times in the last three years and have finally found one that seems to truly care and she does everything she can to find out the true cause of things so i am very thankful i have her now, but i have not even been with her for a year yet.

    so, i was wondering if i should wate till my july visit to talk to her about this.
    i can not find much on ovarian cancer, and was wondering if any body had a good list of symptoms because i am very confused about this

    also, my sister has lupus, and her and my mother(both in medical fields and mother is married to a dr.) think i may have a m,ilder form of lupus, so it may not be ovarian cancer.

    so if some one could just please give me a good list, i can add more details because right now i am so confused i do not know where to start and all this is so overwhelming when you KNOW something is not right but do not know how to explain it in hopes of being properly diagnosed with out it taking years.

    (my sister was mis diagnosed with lupus for over ten years.)

    thank you soooo much!!!

    1. Jenny

      I also have PCOS so I understand the concern over other issues that can develop down there. If you’re thinking you could possibly have ANYTHING that affects your health, you need to talk to your new doctor as soon as you can. As horrible as they are, you need to get a full papsmear and examination. Your doctor will know if you should be worried or concerned. And it’s worth going as soon as possible because thanks to medical science of today, if caught early enough almost anything can be treated or cured.

  24. 27 Yr Old Married Guy

    Crohns, Celiac, Lupus, Hypothyroidism????? Help!?
    I started to have mental fogginess issued back in 2004, and remember having a general feeling of not feeling well. I can’t really remember exactly what it was like back then though. By the time 2006 came along, my issues had progressed pretty rapidly. I…

    – Had mental clarity issues.
    – I would get up to go to the grocery store and get in the car and realized I had forgotten where I was going.
    – I would bruise easily. I had diarrhea.
    My stomach was extremely bloated.
    I could barely carry on a conversation.

    After a few failed attempts at the doctors, I DIAGNOSED MYSELF with Celiac’s disease. Immediately, I went on a gluten free diet. After 6 months of being gluten free, I did notice improvement in some areas. But I never got to feeling 100%. Not even 60%.

    So I continued my research…

    About a year ago, I truly thought I was dying. I had…

    It feels as if all my stomach organs are swollen along with my head
    I feel like I have a fever, and my skin is hot to the touch (but no actual fever)
    Severe mental fogginess
    Underarm sweating
    Diarrhea
    Severe grogginess when waking
    Severe bloating
    Bruisings
    Pressure headaches (get migraines on occasions with blurred vision, I think unrelated)
    Swollen and puffy eyes
    Got sick easily
    Cold hands and feet
    Shiver in cold weather
    Fatigue
    Major skin issues. Pustuals on the hands and feet, rashes, etc. However I was able to get that at bay with very very mild soap.

    I knew at this point, I had to make a change. I cut everything out of my diet and slowly reintroduced things. At the end of this test, the only thing I could eat (at not perfect at that) was fruits, veggies, millet bread, sunflower butter (peanut butter substitute). I stuck to that diet for about 6 months and really better but dropped to 140 pounds. I went from a 1 out of 10 to a 6. But then started noticing that I was lacking nutrients and was getting other symptoms for not being balanced nutritionally. I have added a few things back in with a major herbal supplement system that I have created to help assist.

    Right now my diet is this…

    Food:
    Fruits
    Veggies
    Millet bread
    Sunflower butter

    Supplements:
    Garden of Life meal shake with probiotics and enzymes
    Activated Charcoal (Draw out poisons)
    Aloe Juice (Digestion)
    Basil (Digestion)
    Cayenne (Immune Booster)
    Cilantro (Detox)
    Cinnamon (Anti-Inflammatory)
    Coconut (Anti-Viral, Anti-Bacterial)
    Flax Oil (Anti-Inflammatory)
    Garlic (Anti-Viral, Anti-Bacterial, Anti-Fungal)
    Ginger (Anti-Inflammatory)
    Ginko (Blood Flow)
    Ginsing (Digestion)
    Lime (Anti-Biotic)
    Mushroom (Cancer inhibitor)
    Peppermint (Digestion)
    Rosemary (Blood Flow)
    Tumeric (Anti-Inflammatory, Cancer Fighter)
    Lemon Water

    I have seen certain improvements with my herbal remedy, but nothing too major.
    I thought way back that it was celiac’s. Deleting gluten from my diet helped, but did not fix the problem. My current research makes me feel like it is either Crohn’s or something similar, or Hepatitis C. I have read that the two can be confused. I have recently been tested through a private company for Hep C and it came back Negative. What confuses me is that I do not have stomach pain like most Crohn’s patients do. However, I am pretty sure I have an ulcer. I do have a sharp pain in my stomach that comes and goes at times. And the biggest issue for me is mental clarity and this swelling fever I deal with. I can deal with irregular bowel movements, but the way I feel is unacceptable. I have a copy of blood work I had done a year ago when I was feeling my worst, and I noticed that they didn’t test for Hypothyroidism? Do these symptoms sound like this could possibly be a culprit? Lupus?

    I am probably the healthiest person you know. I don’t drink, I don’t smoke, all of my diet is natural organic from the earth foods, herbs and minerals. I should not fee the way that I do.

    Please help!

  25. Kristy Elkins

    Fibromyalgia symptoms and treatments?
    I havent been diagnosed with fibromylagia yet, and am half afraid to tell my doctor thats what I think I have. Shell probably tell me im nuts, plus I read that theres no real test to say…Yes you have it. But after accidentally stumbling across an ad for Lyrica, and it listed some symptoms of fibromyalgia, I thought to do some research on the subject. Ive been back and fourth to the doctor…goodness like 15 times in the last 2 years! Initially just complaining about extreme fatigue, troubles falling asleep, and not being able to stay asleep once I fell asleep. Then it stemmed into joint pain complaints. I did find out I had lyme disease, so my doctor thought thats what the problem was. Well I took the meds, got re tested and the lyme is cured. This is over a year ago now…but my symptoms are worse. Been back again a few times since then, and she just said theres nothing wrong with me, im just depressed. She tried giving me sleeping pills, which just made me more groggy so I stopped taking them. Then she gave me some off brand stress management med… not quite a depression med, which didnt help. After doing reaserch on fibromyalgia, im SURE thats what I have. Besides the extreme tiredness, and lack of ability to stay asleep, I have horrible muscle and joint aches. I wake up and feel like ive excersised for hours the day before! Im stiff and find it painful to move. What really got me though, is I have pain in all the places ive read online that affect people with fibromyalgia the most. The neck, hips, shoulders, and knees. Thats where most of my pain is. I have frequent headaches, and the other thing that really sold me was the IBS thats linnked with fibromylagia. Ive always had bad cramps and gas like I have to go to the bathroom realllly bad even when I dont have to go, and my bowel movements have always been strange, going alot some days, not going for a day or two at other times. Ive always wondered why until I read about IBS. I know fibromyalgia can mimic lupus and other conditions, but my doctor did test me for lupus and a few others and they were all negative. I also read that fibromyalgia can come about after very traumatic times, and it seems like mine started about 2 1/2 years ago. And ALOT has happened to me in that time. My sister was murdered 3 years ago, my mom died 2 years ago, my brother had a cancer scare shortly after our mom died. So thats another reason I suspect fibromyalgia. So does it really sound like I have fibromyalgia? And what can I do to help it? I cant live with this tiredness anymore! I dont even care about the pain as much as I do about constantly being tired and fatigued!

    1. JMITW

      its possible you have fms

      but its also possible you have a post lymes syndroome
      lymes can cause permanant symtpoms if not treated early enough

      it could also justbe the lack of sleep

      a better sleep med is trazadone–its an antidepressant, but only taken at night.in a smaller dose

      .much safer than traditional sleeping pills

      most docs dont know what fms is and use it as a general label for pain

      they will say the pain of lymes is fms..that is not true..fms is its own specific neuro condition

  26. Asia ♥

    I’ve been sick for 5 years, why havent my doctors mentioned or checked for Cancer?
    I first got sick when I was 16 out of nowhere.
    It started off with Nausea, loss of appetite and dizziness.
    About a year and a half later the symptoms got less severe.
    Then I started having severe fatigue, shortness of breath, pain behind the eyes, wounds that dont heal well, purple toes, gas, occasional stomach pain, anxiety, and chronic runny nose.

    I’ve been to alot of doctors and they can’t seem to find anything.
    I’ve been diagnosed with IBS..which doesnt explain anything.
    They’ve tested for:
    Diabetes
    Thyroid issues
    Celiac disease
    Lupus
    Adrenal issues
    Vitamin levels
    Liver blood test (I’m not sure if that included Hepatitis.)

    I have cancer in my family and I worry sometimes that my problem could be something serious… it’s been going on long enough and no one can tell me whats wrong..

    I do have a cyst on my ovary and a polyp on my gallbladder…what makes my doctors so sure that they arent cancerous?

    I just wish I could get better

    1. M C

      Since you have a cyst on an ovary, I’d be suspicious of PCOS (polycystic ovary syndrome). It commonly gets overlooked because the symptoms can be quite similar to diabetes, digestive disorders, autoimmune disorders, etc. The symptoms can vary greatly from person to person which makes even more difficult to diagnose. Also, PCOS can be connected to gallbladder issues which leave me to wonder if the polyp on your gallbladder is due to stones which could also cause many of your symptoms.

      Given the age of onset of your symptoms, a diagnosis would lean toward PCOS since onset is typically within a few years of starting your period.

      Good luck and take care – I hope you’re able to get a diagnosis soon so you can focus on treatment and feeling better.

  27. angelinaismywifey

    My LYMPH NODES are extremely palpable (for years) i have lost TOO MUCH WEIGHT, what is wrong?
    Hello….if anyone would like to try to DIAGNOSE ME, I’d be SO GRATEFUL AT THIS POINT!
    ….. i’m 30 year old female, with a 10 year old son and had a thoracic fore gut tumor(benign) removed from my chest @ 15, a good portion of which was attached to my lungs, aorta,esophagus, Trachea.
    To Date- no known complications or regrowth.
    109 lbs
    5’3″
    hypothyroid, on synthroid
    Had IUD recently placed in cervix
    amphetamine salts,celexa, lorazapam for depression/fatigue and ADD
    MY SYMPTOMS:
    CURRANTLY AND THIS PAST YEAR: Generalized Swollen lymph glands(some firm and hard in groin area. Also where my hairline is in the back of my neck behind my ear i guess, and a few large ones up the side of my neck aligned with my shoulder), Re currant low Grade Fever(no higher than 101 w/out infection),Itchy Skin, Memory Loss,Hair loss, Acne,Bowel Changes,On and Off fatigue, mucus in my stool(for one year at least.More mucus than actual stool on average! SORRY TO BE SO GRAPHIC! Lower Back Pain, DULL ACHING PAIN on the inside of my knees,stiff neck,ankle pain after being on my feet for more than an hour.Also extremely dry; mouth,skin,hair,eyes,&nostrils, dizziness upon standing, sweats,wounds heal slowly, weird painless swelling above my butt where my dimples are(no dr has been able to guess why/what this swelling might be),diarrhea and constipation, tenderness above my belly button, hyper pigmentation on abdomen, arms and feet, anxiety, blood pressure has steadily increased throughout all of my many dr’s visits this past yr.
    ADDED RECENT SYMPTOMS:Kidney pain, visible blood in urine: for 2 months now! it was bright red and then less visible for awhile and now dark brown like tea and extremely strong smelling, hardening and bloating of abdomen, extreme fatigue, productive cough, chest pain, neck pain,easily exhausted, unexplainable bruises, muscle spasms and bulging type pain JUST under my rib on both sides separately, weird stabbing pain on my left groin area near my larger lymph glands that makes my tendon look swollen, thrush, protein in urine, HI albumin in urine, repetitive rbc in urine, BUT NO INFECTION!! (multiple negative cultures), kidney stone shows on CT in an area that is expected to be asymptomatic and may not even pass. BUT I DO HAVE difficulty urinating and cramping JUST PRESCRIBED CIPRO FOR A SECOND TREATMENT. (not sure exactly why since culture is consistantly negative)

    Many tests HAVE BEEN DONE: …..All Basics(CB C’s, liver, etc panels) + Lyme Disease,Hep(B,C etc), ANA,Sed Rate,R.F.,AIDS, Celiac Disease,Fecal Bacterial+Viral cultures,Lupus,Syphilis, Gonorrhea, Chlamydiae,Anemia, scleroderma, h. pylori, bladder cancer,
    P.C.P. says: hematologist &will do allergy & routine testing upon insurance ok
    E.N.T(ear,Nose&throat) says: inflammation or irritation down deep in my throat(but i smoke so…)
    GASTROENTROLOGIST says: gastritis, hemorrhoids,IBS, lymphoid aggragates in non lymph areas
    UROLOGIST says: extreme gross & microscopic unexplained hematuria, referral to hematologist(concerned about enlarged lymph’s in groin and unexplained hematuria———says kidney stone most likely not causing this amount of rbc,did FISH URINE TEST…NO CALL SO I’M GUESSING ALL CLEAR ON RESULTS)
    HEMATOLOGIST says: i’m thin so nodes are more palpable s we should wait. does not believe biopsy is neccessary at this point
    RHUEHEMATOLOGIST says: no signs autoimmune, non arthritic/ lupus like disease
    GYNOGYNECOLOGIST says: no infection, no discharge see urologist…
    DERMOTOLOGIST says: see rhuemotologist! lol, biopsied pigmented marks(inconclusive-possibe allergic reaction)

    i am waiting on results of a chest CT from HEMATOLOGIST because he heard alot in my lungs and another aids test(that’ll be 4 tests in the last yr(all negative)

    I’M SURE THERE IS MORE INFO I”M NOT OFFERRING
    but i can’t remember everything! lol any EDUCATED ADVICE would be appreciated
    THANK YOU!!!! i feel so helpless when i am sooo tired or weak….. i just want a solution!
    PLEASE HELP!

    1. PoisonTrees

      See what the CT results are. If you get no answers there, I would go to a different hematologist and insist on a biopsy. If you can’t get answers switch to a hospital that specializes in diagnostics.

  28. xxhottopicbabexx

    What is wrong with me?!?
    Here is my families health background:
    My grandfather has type 2 diabetes, and so does my aunt,my deceased grandmother and im pretty sure my birth mother did too. I dont know any history on my Dad’s side, he left when I was young. My mom, both of my aunts, my great aunt, my grandmother, and my great grandmother all have Lupus. All the women in the family (including myself) also suffer from depression.
    Here are my symptoms:
    Within the last month I have lost about 15 pounds without trying. Ive just lost my appetite. Ive been suffering from severe fatigue, rapid heart rate (at resting point my normal pulse is 130, after workout it can get well over) I get exhausted from walking up stairs, or eating, or just talking. Im suffering from shortness of breath. No chest pain. But I have noticed an odd lump on one of my lower ribs on the left side, its not so much painful as uncomfortable and kind of soar to the touch if you press hard enough. I also suffer from severe headaches, at least 1 daily, hot flashes, trembling (almost like seizures, but only in certain areas of my body), tingling sensations, soreness of muscles, aching bones, etc. etc. I could name more but thats just the main parts… any ideas on what could be wrong with me? please help!!
    could i have cancer?

  29. Destiny

    What is wrong with me? Serious Answers Only Please.?
    Okay for a while now I have felt extremely out of wack. Here are a list of symptoms, maybe you can tell me what is wrong with me…
    1. Pain in my joints. (especially hands, knees, elbows)
    2. Low grade fever (never over 99)
    3. Tired yet can’t sleep
    4. Dizziness
    5. Swolen throat (difficulty breathing)
    6. Pain in upper right hand side of chest when breathing (not persistant, mostly random)
    7. Round dime size bruises popping up randomly on legs and feet (no known cause)
    8. Severely dry lips (looks more like a rash of some sort)

    And before someone leaves something about STD’s that is impossible/ out of the question.

    Also some background info. My family has a history of heart problems, diabetis, lupus, and cancer.
    Also, I am not dehydrated. I drink water all the time. And I am trying to decide if I should see my doctor. I don’t have great insurance and don’t want to spend the money if I have nothing to worry about. I am thinking it could be Lupus. But I don’t like admitting I have a cold, much less anthing else.

    1. o'leary

      Have you spoken to your doctor or other family members? Because these are all signs of Lupus, so you’d better see your doctor. (not sure about the dizziness, but lack of sleep can cause that.)
      See your doctor for treatment options – take care…

  30. Jb

    Is it ok to let the rumors fly?
    I’m being treated for mental illnesses. My diagnosis is complicated and my symptoms have been strong enough to warrant a leave of absence. My manager has been great, not pressing for details or anything, and allows me to take my meds whenever I need to, even if I can’t take a break and have to take them in my work area.

    The problem is, my coworkers have their own theories on what’s “wrong” with me. I supposedly have cancer, diabetes, thyroid problems, lupus, birth defects… you name it, and someone thinks I have it.

    I’m not ashamed of my conditions but I’m a private person. I don’t want to volunteer information. Is it ok to just let them think what they want? I feel guilty. And if anyone finds out, will I be a liar by omission?

    1. Completely Anonymous

      Don’t feel guilty. Like others said, it isn’t any of their business. I’m glad your manager is so understanding.

      I do want to point out that, unfortunately, there is sometimes a stigma attached to mental illness. So if you have some really uneducated individuals in your office, telling them the truth (even if you just tell them your medical condition(s)) may make things worse.

  31. Michelle S

    Doctors only please answer this question?
    PLEASE NOTE I have tried all the symptom checkers on the internet and this issue is too complex for those, so please dont suggest that in your answer..
    ALSO Please note that I dont want opinions like “dont try to answer this on the internet” – I am already trying to answer this via blood tests, CAT scans etc. but I want a DOCTORS opinion on what my problem sounds like please..

    I have lots of symptoms and I feel like I am dying (literally) so I am interested to find out what people think I may have. I have all kinds of tests lined up over the next week (I just had a blood test, having a CAT scan, and checkups with various doctors, endocrinologists etc.)
    Symptoms: general feeling of being EXTREMELY tired (like onset of flu, aching muscles, esp in the lower back and the shoulders/neck area – to the extent that I sleep a good nights sleep then go out for 10 mins in the morning and have to come back home for a nap). I also have ear symptoms – my ears feel like I have a sock stuck between them, a fair amount of pressure in my head just behind my ears, and I hear sounds but in a “fuzzy” way (cant hear some low freq sounds like thunder etc – had a hearing test and this was confirmed). My ENT actually did surgery, draining fluid from my ears and putting tubes in my ears, and though this helped a little it was a VERY little, it definitely didnt help with the main problem.. I still have popping noises in my ears and those pops are followed by reduced hearing or enhanced hearing alternately and a feeling of wetness at the entrance to my ears, though the ENT says there is no discharge.. I occasionally feel a little dizzy. I seem to sleep ok, but as I am going to sleep I have that feeling like you are falling out of bed and kind of shock yourself awake – a few times each night.. not sure if that is relevant.. I was told it sounds a bit like an epileptic fit.. Just prior to the onset of all these symptoms I had a TERRIBLE backache – I could hardly walk for a week – and that was followed by what appeared to be a real flu.. Also recently I had a “boo boo” on my foot that failed to heal and I have had lots of pains in my mouth – as if my teeth were all going to fall out, and also a feeling of having mouth ulcers all over my mouth. Also, prior to the onset of these symptoms I had been feeling a lot more tired than usual for the past three years (since the birth of my second child).. during the first year of this, I had gone to the doctors and had lots of tests and they all came up blank – nothing wrong.. I am hoping this time they find something or I will feel like a hyperchondriac. Please feel free to speculate about what the problem maybe, though I prefer Doctors to give their views if possible.. I have come up with the following possibilities:
    Epstein Barr virus
    Hodgkins Lymphoma
    Myeloma
    Lupus
    Nasopharyngeal cancer

    1. lovelyred

      Sorry, Im not a doc… but I do work with them in a health care field.
      I have to admit that I have been having very similar symptoms as well for the last 6 years. I have seen specialist after specialist. Because the symptoms are sort of “vague” in a way, they are starting to get closer to an answer. I am now awaiting a referral to the Endocrinologist (and my health care team seems very positive that I will get a diagnosis then).
      For me, this has been going on so long because I was diagnosed with Gullaine-Barre Syndrome and a chronic form (CIDP) and thought that the symptoms I now have were because of that. You might want to Google that and see if it sounds a bit like when youre experiencing. They thought for a long time that it was Epstein-Barr, Lymphoma, or MS.
      I have spoken to more than a couple of colleagues about this and they all feel that all signs are leading to hormones being unbalanced. have you had your hormones checked? I have had some results saying that some of my hormones are not where they should be…

      From what you wrote, it sounds like the referrals and tests they have ordered are leading you on the right path.
      I know how hard it feels to keep pursing this while you are feeling so sick, but please for youre own sake, keep on it until you get an answer and feel better again. The squeaky wheel gets the grease.

      All the best.

  32. babynunz

    What could it mean if I’ve had swollen lymph nodes for over 3 years?
    I am a 26 year old female. I have had a swollen node in my armpit for over 3 years, one in my groin that has been swollen for over 5 years, and nodes in my neck that have been swollen for about 3 years.

    In 2006, I was diagnosed with mono. Months after it had supposedly gone away, the node in the right side of my neck was over 3cm long & still growing, so I saw a surgeon & he was concerned about cancer and removed it immediately…it was examined by pathology and was benign. 4 months later, I was still not entirely healthy and had my tonsils removed.

    Over the last few years, I am still tired quite a bit, sweat a lot and still have the swollen nodes. The one in my groin hurts even when I do not touch it, and the one in my armpit is very tender to the touch, but the ones in my neck to do not bother me.

    I’ve had spleen & liver scans that came back fine, blood tests that came back fine, but this is still concerning me. Over the last couple years I still have days where I run a low grade fever for about a day. My doctor always puts me on antibiotics (which don’t ever take down the size of the nodes or cure the other symptoms). He has also done a chest xray to check for sarcoidosis and that came back clean.

    My aunt has lupus & a host of other auto-immune diseases and my great grandmother died very young of rheumatoid arthritis.

    I have been to a ridiculous number of doctors who keep telling me that there is absolutely 100% nothing wrong with me. I’ve also noticed an increasing number of tiny red pin-point spots on my chest, stomach & thighs. I’ve always had one on my chest for years, but the others are new.

    I need a real answer, I need help. I am so tired of making doctor appointments that lead me nowhere.
    I have had the one in my groin and armpit checked, my gyno said the one in my armpit could be due to the hormones in my birth control, so I stopped taking it and the size and tenderness of the node never changed. The one in my groin has been checked by my primary care and a surgeon. The surgeon said nothing to worry about, it’s not a hernia or something else, just a permanently swollen node. My concern is that over the last couple months it is becoming increasingly painful…
    Also, I am 5’6″. My normal weight is around 118-120…over the last couple months I have dropped to about 113 without trying. I don’t know if I should be concerned about that as well or not. I have not had any appetite loss and eat full meals regularly…?

    1. lala

      Please ; get your thyroid gland check ;; I know a man who is just 35 and like you had swollen lymph for years and like you he was diagnostic for mono and like you saw a myriad of doctors ; for finally in last oct to be said ; that his thyroid gland was full of cancer [ Doctors never check this gland ; especially when you are young ] so you have to ask ; OH maybe its not your thyroid ; but at least you will know for sure about the thyroid ; its just a simple blood test

  33. Michelle S

    What is wrong with me?
    I have lots of symptoms and I feel like I am dying (literally) so I am interested to find out what people think I may have. I have all kinds of tests lined up over the next week (I just had a blood test, having a CAT scan, and checkups with various doctors, endocrinologists etc.)
    Symptoms: general feeling of being EXTREMELY tired (like onset of flu, aching muscles, esp in the lower back and the shoulders/neck area – to the extent that I sleep a good nights sleep then go out for 10 mins in the morning and have to come back home for a nap). I also have ear symptoms – my ears feel like I have a sock stuck between them, a fair amount of pressure in my head just behind my ears, and I hear sounds but in a “fuzzy” way (cant hear some low freq sounds like thunder etc – had a hearing test and this was confirmed). My ENT actually did surgery, draining fluid from my ears and putting tubes in my ears, and though this helped a little it was a VERY little, it definitely didnt help with the main problem.. I still have popping noises in my ears and those pops are followed by reduced hearing or enhanced hearing alternately and a feeling of wetness at the entrance to my ears, though the ENT says there is no discharge.. I occasionally feel a little dizzy. I seem to sleep ok, but as I am going to sleep I have that feeling like you are falling out of bed and kind of shock yourself awake – a few times each night.. not sure if that is relevant.. Just prior to the onset of all these symptoms I had a TERRIBLE backache – I could hardly walk for a week – and that was followed by what appeared to be a real flu.. Also recently I had a “boo boo” on my foot that failed to heal and I have had lots of pains in my mouth – as if my teeth were all going to fall out, and also a feeling of having mouth ulcers all over my mouth. Also, prior to the onset of these symptoms I had been feeling a lot more tired than usual for the past three years (since the birth of my second child).. during the first year of this, I had gone to the doctors and had lots of tests and they all came up blank – nothing wrong.. I am hoping this time they find something or I will feel like a hyperchondriac. Please feel free to speculate about what the problem maybe, though I prefer Doctors to give their views if possible.. I have come up with the following possibilities:
    Epstein Barr virus
    Hodgkins Lymphoma
    Myeloma
    Lupus
    Nasopharyngeal cancer
    I just want to add that, I have tried the symptom finder on webmd and it is sorely lacking for this kind of multi symptom thing.. it doesnt help..but thanks for the suggestion

  34. Metal Nettle

    My list of symptoms, anyone want to have a guess?
    I have a few symptoms, on their own they don’t seem to be much of anything but all together I am a bit worried, every time I go to the doc they look at one condition and offer advice but I’m wondering if I should make a list and bring it in – and how can I do that without appearing like a total hypochondriac, lol

    I’ve had several tears to my back muscles over the years, and have constant low level back pain with bursts of sharp stabs and stiffness, the doc says it’s muscular not my spine or discs – I can accept this, and I take codeine to keep it at bay. However, since about January, I have had pain in the back of my left knee – the doc refered me to an osteopathy clinic where a technician told me it was just soft tissue, suggesting the capsule at the top of the ligament, and I was supposed to put on cold packs for two weeks and go back, tried that and it didn’t help, so he’s started massaging it – and by massaging I mean digging his fingers in to see if he can make it less sensitive. It hurts. It doesn’t sound like a great idea.

    I also got a huge swollen node under my arm (coincided with a careless sunburn), I went back in two weeks to have it checked again and they sent me for a blood test, the results of which were within acceptable range.

    Now, my problems are, I have bad lower back muscles, I have this dodgy knee and I have a huge lump in my neck, and a smaller one on the back of my head, but with my white count being ok, it’s not going to be breast cancer (what they were ruling out) but also not likely to be an infection. My new thing this past week is a sharp pain around the top right of my left shoulder blade, feels like a muscle or a tendon, not in the bone and not in the joint, more in the soft tissue. It feels like my back muscles do, that sharp itchy pain when it’s torn and healing. I have a click in my neck too, something grinding.

    So why would this lymph gland be up? could it be connected to something in the back of my knee? and if so, what?

    I am female, 40, in good health, I am 5ft4 and about 110pounds, I have never been ill with a named disease except childhoods (measles, chicken pox, mumps) and asthma when I reached 32, I am on nothing but occasional asthma meds and my codeine.

    I wonder if I am treating my body too harshly and carrying loads of shopping that are really too heavy now I am getting older (not old yet though), but since I am taking the back pills, I am perhaps not realising it’s hurting me until later? maybe I have weakened muscles prone to injury – but why if that’s the case? I don’t really know, anyone care to take a stab? have I got two unrelated issues (nodes and muscles) or does it sound like something all together? it’s not cancer of lupus, the bloods rule one out, the symptoms the other. My knee thought it was slightly injured in May 2009, does not have a Bakers cyst, had the U/S to rule that out before getting sent to the osteo.
    Sorry, that should read “cancer OR lupus”, I appear to have badspellingcheckitis too.
    No shutup, that’s not the answer, being rude rarely is. My medical file after 40 years is about 2mm thick, I’m not a hypochondriac, Amanda said the same as my husband, go tell them there’s something wrong and make them do something, but I do play it down, D says I will die saying “I’ll be alright.”

    This is the first time I have asked listing all my problems to see if anyone can see anything that might be connected. Since I suggested it might be wear and tear, I don’t see that I am being unrealistic in my analysis, but I have had minor things and they usually do get better, these just don’t seem to, my back has been “injured” for about 5 years now. The codeine of course is on prescription, I don’t buy it illegally, it was assessed to be the most suitable by my doctor.

    1. Amanda Titus

      bad idea to go into the doctor with only one thing to tell them,if several things are wrong with you.
      like saying:hey i’m sick but not that sick,so i do not need that much attention or medication.
      the knee and node both needs antibiotics.infections is what you are dealing with here.probably need to seek hospital help.try another doctor for sure.never say you are in good health if all of this is wrong with you;specifically because the old saying of:the squeaky wheel gets the grease,would make those in charge enough to do something about it,wright you off before takeing you seriously.
      mostly what this sounds like to me is infection.
      probably several different spots,but infection big time.

  35. Lori

    Syndrome? Disease? Cancer? Aneurysm? Please help me help myself with my medical mystery!?
    I feel as though my “ordeal” should be featured on the television show Mystery Diagnosis (hah).

    Over two years ago I started having tolerable pain around/above my left scapula. The pain progressed to intolerable and has never went away.

    The pain is persistent and doesn’t feel better with heat, ice, tylenol, ibuprofen, massages or posture. It’s a deep, tight pain. In the last year and a half the knot of pain has spread into my left arm. My arm isn’t really in pain, but I have uncomfortable warm tingling and weakness that goes throughout my arm and into my fingers (especially the pinkie and ring finger).

    I went to an Orthopedic doctor and ended up getting four x-rays. When he viewed them he found bilateral “extra bone growth” on my cervical spine (point c7, to be exact). In medical terms that means I have congenital small ribs in my lower neck that aren’t supposed to be there. Also, he found that I have minor scoliosis of the upper back that bends to the left. For some reason he ordered for me to get a Bone Scan. It came back healthy and there was nothing “wrong.”

    Months after that I started having bluish fingernails and toe nails and stiff joints. I went to a regular doctor (who completely dismissed the pain above my left scapula and discomfort in my arm, by the way) and he ordered a complete blood panel, a test for autoimmune diseases, and a lyme disease test. He thought maybe I have lupus or something. Everything that was tested came back normal and healthy. The only thing that was a little off was that my white blood cell count was a tad higher than normal. Fierce general disappointment and anger — also from him ignoring the pain in my back and weirdness in my arm.

    Exactly the spot where I have constant pain (above/on left scapula) there is thing that moves around if you massage it (although it is not a superficial lump), which my right side does not have so I know this isn’t normal. The lump, like, snaps and clicks. And when I move my left arm in full circles that area clicks and sounds like it it grinding against something, whereas my right side is normal.

    Also, I’ve been to the ER twice from the pain and the doctors and nurses just scoff at me. One time a nurse took my blood pressure and it was 154/110. She just said, “Oh, that can’t be right,” and didn’t even bother to take it again — just walked away. That certainly shouldn’t be right, indeed! I’m a 24-year-old female of average weight and I’m a vegetarian! Anyway, they gave me an x-ray and some majorly condescending doctor just said, “Your x-ray just shows some arthritis in your shoulder. Don’t worry, you’ll live.” First of all, it’s not even my shoulder that hurts. What.

    So, what’s going on with me? Does anyone have any ideas, since the doctors I’ve been to are lazy and/or uncaring?

    Here’s the symptom list:
    *Mainly and most important*:
    .Never-ending pain above my left scapula (for 2+ years)
    .Warm tinging and weakness in my left arm and fingers

    .Bluish nails
    .Fatigue
    .Muscular aches all over
    .On-and-off joint stiffness (with minor discoloration and swelling)
    .Periods of mysterious bruising on my upper thighs
    .Left thigh pain/tightness
    .Increased intraocular pressure in left eye (rare for my age says the Eye M.D.)
    .Periods of extreme vertigo, where everything in my sight seems to tilt to one side for one second. Then I become disorientated for 10 minutes afterward. Scary when it happened while I was driving.
    .Hair began falling out much more than usual. My hair got thinner.

    Note: A lot of my “oddities” are on the left side of my body — left eye, left scapula, left arm, left thigh, minor scoliosis bending to the left. Hmm..

    All and any help appreciated! I’m desperate for opinions and/or answers! Thanks.

  36. leta

    DDT exposure in the USA?
    a family member was exposed to high volumes of DDT in the 70’s.
    he had some symptoms that came and went over the years but now they have excellerated(has all the symptoms of MS, but the test have been inconclusive to this day)..
    here are some of the symtoms: blurred vision,spots,and wavy lines in the eyes and eye pain, open sores that wont heal, debilitating headaches, legs,toes arms and hands are tingling and numb at times, cognitve thinking is impaired,has a hard time expressing what he needs, urinary pain, legs give out at times the list could go on and on..
    I was wondering how many other people have experienced these symptoms after long term exposure?
    He has been tested for Lymes,thyroid,cancer,MS,Lupus etc.

  37. BigTime

    General Medical Symptoms – Doctors no Help?
    I have a history of broad uncomfortable symptoms. Some are certainly worse than others, but all of them seem to ail me from time to time especially when experienced at the same time. I have been tested for so many different problems, to the point where I can say with confidence I do not have certain diseases. My symptoms, though, feel so serious when they happen I sometimes wonder if my life is in danger. Here are some:

    1. Shortness of breath – sometimes so severe I feel like I will pass out
    2. Chest tightness and pressure – especially in the sternum
    3. Severe fullness in gut and nausea with dizziness
    4. Increased heart rate and palpitations
    5. Weakness, especially in my hands

    Also, I suffer some less frequent symptoms that still trouble me:

    1. Sharp, ice-pick headaches
    2. Difficulty concentrating and even some short term memory loss
    3. Stomach pain, sometimes very severe

    I am a 25 year old male, in basically perfect health by what anyone can tell me (6 foot,160lbs, very low bodyfat maybe 9%, BP 110/60, GREAT cholesterol, no family history of anything I can think of). I also don’t take any prescriptions, I don’t drink, smoke, or do drugs.

    I have been tested for lupus, brain aneurysm, brain tumors, lung cancer, asthma, Lyme disease, rheumatoid arthritis, hep C, you name it. I’ve had CBC’s and other blood counts all of which are normal. My SED rate is normal. Angiotensin normal… you name it.

    I’ve also had an Echo, EKG, and a stress test for my heart, AND a holter monitor.. everything normal and healthy they say. My resting heart rate is about 50bpm usually. Lately, however, it’s felt much higher.. I have no idea why. These issues have been going on and adding in number for about a year now and they’re getting worse but doctors don’t take me seriously. What should I do?

  38. britters *

    What is causing all these symptoms?
    I have been having health problems for the last few years and I’m determined to find out what is wrong! I am an 18 year old white female who lives in new york.. if any of that makes a difference.

    Some of my symptoms include: increased fatigue, I can sleep for hours and still feel tired. For the past 3 years I have gotten a rash on my neck and chest that is not inflamed but warm and comes and goes at all sorts of times and have heat sensitivity to that area and sometimes chest pain. A few months ago I had an infection in my arm pit and was told it was cellulitis and was given an antibiotic, since then I have had frequent pain in both of my arm pits and it seems to be swollen at times. For the past 2 years or so, I produce breast milk in my left breast but I have never been pregnant, sometimes it is a clear liquid that comes out and sometimes a milky liquid. About a month ago I had to go to the emergency room because both of my breasts were swollen and it was very very painful but they sent me home without telling me an explanation to what it was and it all went away a few days later. For as long as I can remember I have had joint and muscle pain all over my body, mainly the upper back and neck. In january of 2010 I went to the hospital because my back, both lower and upper, hurt so bad that I could barely move. I had high blood pressure and slight chest pain but once again they weren’t aware of the cause so I was sent home with some tylenol. I have noticed that when I get many of these symptoms I get very emotional, either very sensitive or angered easily. Recently I have been getting twitches in my hands, mainly in the thumb area. I have noticed that my concentration isn’t as good as it used to be, I am very anxious and impatient.

    Doctors have gave me some ideas of what it may be but nothing was ever diagnosed. They suggested: anxiety disorder, lupus, thyroid disease, tumor on the pituitary gland, breast cancer, skin cancer, rheumatoid arthritis, graves disease and I think thats about it.

    Someone please help before it gets worse!!!

    1. Tuning In...

      Sounds like Cryoglobulinemia.

      Symptoms vary depending on the type of cryoglobulinemia and the organs that are affected. In general, symptoms may include:

      Difficulty breathing
      Fatigue
      Glomerulonephritis
      Joint pain
      Muscle pain
      Purpura
      Raynaud’s phenomenon
      Skin death
      Skin ulceration

      And many more others as it’s is a syndrome with many possible symptoms

      The doctor will perform a physical exam. There may be signs of liver and spleen swelling. Tests for cryoglobulinemia include:

      Complete blood count (CBC)
      Complement assay — numbers will be low
      Cryoglobulin test — may show presence of cryoglobulins
      Liver function tests — may be high
      Rheumatoid factor — positive in types II and III
      Skin biopsy
      Urinalysis — may show blood in the urine if the kidneys are affected

      Other tests may include:

      Angiogram
      Chest x-ray
      ESR
      Hepatitis C test
      Nerve conduction tests, if the person has weakness in the arms or legs
      Protein electrophoresis – blood

      As there are too many complications, anxiety builds up within yourself which is why doctors may think you have anxiety disorder or as suggested by the other answer of having neuro related illness.

      This blood disorder is very difficult to be diagnosed and treated. It won’t kill you but you’ll have to take constant medication so as to contain it. Many doctors are baffled by it and seriously many don’t even know about this blood disorder.

      Please suggest to your doctors to try those tests on your blood. I have a hunch I am right.

      Take care and good luck.

  39. ira jo

    I have joint pain that come and goes for two months. What you think it is?
    It is not really painful but It feels irritated. sometimes it’s not the joint but my muscle area like the calf and the arm. GP that I went to doesn’t suspect lupus because I don’ have any other symptom.
    Two months ago I have a swollen lymph nodes on my neck and now it had subside, after doing MRI doctor cleared me of cancer and now, it is the joint and muscle pain that is bothering me.Can anyone help? should i go to tcm to find out?

  40. chan

    I am worried I have melanoma under my fingernails and toenails.What can I read in the Bible that will ease me?
    since black friday of this year, I came down with unusual sickness (feeling of burning throughout body constantly), fatigue, brown streaks in all fingernails and several toenails and my WBC has dropped to 3.8. I have tested for everything from routine to fungus to parasite tests . My dr doesnt feel the need to test me for cancer or even lupus but something is wrong as I know my body. I dont know what to do. I have two small children under 3 and I am freaking out. My symptoms are strange and the only thing I find that causes these thick brown streaks under nails is melanoma.
    I know I need to lean on the lord during this time. Any help of what readings will ease me would be appreciated.
    Thanks

  41. woohoo

    What do my symptoms point to?
    I just got back from my rheumatologist. Looks like I do not have arthritis, lupus, my blood sugar is fine (no diabetes), no Lymes disease.
    Heres what I do have: Severe pain in my hands especially at night and in the morning, but also throughout the day. It is less my wrists and more my middle and pointer fingers. I have a hard time straightening my hands which my MD says is not typical of carpal tunnel.
    I have pain in my knees in middle of night and mornings.
    My hands go numb when I am driving, or having them upright.
    My shoulder was hurting/ clicking for a while, felt like a torn rotator cuff, but I stopped working out and that seems to have stopped.
    I am worried that the inflammation is cancer?

    1. MonTana Tiggs (Smokey)

      II can tell by your description that you are a little depressed; more like alot because you are feeling like you -what in the
      heck is wrong-with me I know something is wrong am i crazy??? Right?????
      ______________________W-E-L-L_____________________________

      – I am going to be your little voice telling you: DO NOT GIVE UP! – LIKE I WAS TOLD BY SOMEONE ELSE- You
      know your body best and there is a reason for why you are feeling the way you do

      My dr has a new attitude, WITH

      THE RESULTS OF MY LAST TESTS…

      CAN I SHARE A SCENARIO:

      -I spent the last year and a half going thru heart tests (passsed with flying colors) CT scans, AND it was not my heart at

      all…however, NUMBNESS, ETC — and it was turing to PAIN>>> well after several specialists and a bunch of tests,

      my dr finally sent me to a NEUROLOGIST…
      I found out a number of things;

      I have been able to get off a few meds and I feel better already!
      — 1. I was on topamax for migraines, GONE
      — 2 i was on BP meds, the topomax was causing heart pain and chest pain and the exact same symptoms in my r arm (

      tightness and the numbness) BUT since it is a pinched nerver- GONE another med!

      I didn’t give up complaining, my DR referred me to a neurologist and did a bunch of neurological tests and found the

      problems!!!!
      my dr finally sent me to a NEUROLOGIST…
      WHAT A RELIEF!

      OK truth be known,because — I was dealing with the same thing. I found out i have a PINCHED nerves – occipital (head) and ulnar nerve at my elbow. .

      before suggesting, I would Take inventory of all that you have done:
      , injuries, meds, falls all dr reports etc.

      I did and this is what the results were: I had fallen, but I had no pain, however, within a month, I was not able to

      ‘grasp ” the steering wheel- my r side of my face- ear top of head and back of it wer all going NUMB– freaked me

      out and I thought i had a stroke- lol

      I kept telling the Dr and he was getting flustered. however – YOU KNOW DEEP DOWN THAT SOMETHING IS

      WRONG
      DO

      I used to type up a storm and have no errors- I am down to hunting and pecking- LOL (well – not that bad yet–)
      I had an MRI of my neck and head. The reports were that I had a herniated disk right at the base of my scull and

      that Occipital nerve and also my 3 fingers middle ring and pinky were going numb all the time.

      Eventually I will have surgery, but what was recommended is a soft elbow pad- to give it a little rest – do not lean on the elbow.

      My shoulder neck all of it was hurting so bad and i was also thinking that the brain tumor i have had gotten bigger-

      WHAT A RELIEF TO FIND OUT – some NERVE is just acting up

      ONE irritated little bugger ! LOL.

      rest assured no cancer!

      KEEP TRYING TILL U GET THE ANSWERS AND IF U NEED SOMEONE TO TALK TO – EMAIL OR MSG ME

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